April 26th
2007
11:35 AM
wow!
it sounds like everybody hates topamax from all the posts that i read... although i didnt read them all...
anyway, at first i had the memory loss thing but it seems to be ok now. i think i always had memory problems though, but it did get worse for the first couple months on topamax and then a little worse when my doc upped my dose. although now i think that my body may have gotten used to it, bc i feel a bit back to normal with my memory.
i also have the leg tingling. mainly i notice something like a slight throbbing if i put my foot down too suddenly, but it doesnt actually hurt. i notice the actual tingling in my legs/feet when i drink though, but only when i drink.
what else? oh, the hair loss. ALTHOUGH, this could also be from my dying my hair a lot... bc i have always had a hair loss problem, but i think the topamax accelerated it.
however, these side effects arent enough for me to get off the drug until my doc thinks so. i had migraines every week or more. horrible ones where i had to stop what i was doing and lie down. i missed a lot of school , missed a lot of work... sometimes they would last for more than a day. i needed help. now i only get migraines during that time of the month, and several docs have said its bc of the lack of estrogen... even when i get those migraines i only get the symptoms , not the pain. i dont even have to take anything. i have my life back... haha, i sound like a lifetime story or a commercial. anyway, i <3 my topamax and im just going to start taking a biotin supplement to prevent hair loss until i can get off this drug when it is time.
-- By jennefur | Reply | Private Message me
October 29th
2006
3:47 AM
Hello, I have had severe fibromyalgia, Crohn's disease, Chronic Fatigue Syndrome which put me in the bed for about four years. My pain was so severe, I was put on morphine. They were ready to put the morphine pump in when I just rebelled and put my foot down. I was tired of everyone ruling my life. I was like a zombie but was still in severe pain. When I pulled off the medication, it left me with neuropathy in my feet. I asked the doctor to put me on Neurontin for that. I had no idea how it was going to effect my fibromyalgia. The very first pill I took, I was scared to take it because I am so hyper sensitive. It eased my entire body down and it felt so good. For the first time in such a long time, I had the best nights rest. i had been sleep deprived for years. Since then, the doctor has eased my dose up and I am presently on 1200 mg a day. I am starting to excercise my muscles for the first time lifting cans of soup. I know that sounds funny but I have come from my death bed. I am concentrating so much better. I am working on a home study course and being able to get up very early and go to bed at a good time. I again stress that I sleep so well. The only thing I can see that has happened differently is that my vision has gotten worse. I don't know if it is from that. My pupils are not equal either as someone else has mentioned. I also have had some ringing in my ears but I am taking other medications too and can't say that it is just neurontin that is causing it. I have hope now where I didn't have before in my life. I can't say enough good about what Neurontin has done for me. You have to start out very low on it and gradually go up. Carole
-- By wrinkleford | Reply | Private Message me
June 26th
2006
5:04 AM
Has anyone had problems with severe muscle cramping. I have been waking up through the night with severe cramps or spasms in my legs and feet. It goes from the calves of my legs to my toes, my feet curl and I can hardly put my foot down. It is very painful. I'm not sure if this is realted to Aciphex or not.
-- By ubadtoby | Reply | Private Message me
April 3th
2008
9:09 PM
My husband took Ambien for about 4 months when he was experiencing severe insomnia. (He would go days without being able to sleep!) The Ambien majorly messed with his head!! The best way to describe it is that it made him STUPID! Its so sad, but true. He couldnt think!! his head was foggy. Do not confuse this with him being sleepy. It was NOT sleepyness, or drowsiness. It was his thought process. the brain itself! Simple things became hard to do. He'd forget EVERYTHING!!
The straw that broke the camels back was when he almost got in 2 SERIOUS car accidents. One day on his way to work he was pulling out of a gas station right into traffic. He said he didnt even look! he just drove without thinking!!! By the grace of GOD alone did he not kill someone or get killed himself!! Then the last time, where I put my foot down... My husband went to make a left turn into a store parking lot... but he was in the right hand lane!!! So he turned right into the left lane of traffic and we got t-boned by another woman. THANK GOD it was at slow speeds. Both lanes just started off from a red light, so we were all going less than 20 mph. But the accident was almost hard to believe! If i wasnt there I would have never believed he would do such a STUPID thing!!!!!! Both incidents were within the same week!!
At work that week too he locked himself out of the one office and had to call his boss to come let him in.... (thought there was a problem with his key) the problem was he had the deadbolt locked! It never even dawned on him to unlock that part too!! Now mind you he's been employed here for 3 years! He's been in and out of this door a million times!
My husband is a brilliant man!!! Went to college for Civil Engineering, is a math wizard, among many other things! He has a squeaky clean driving record! This isnt a case of him just being an idiot on his own merits. This medicine was seriously messing with his head!!!!! he said he felt like he had no control over his mind. He had no "quick" thinking!
I called his doctor to ask if it was the Ambien CR or possibly another medication (he takes meds for blood pressure) and the doctor said to stop the Ambien because that was the newest medication. Within a week of stopping it, my husband got his mind back!! It was night and day!!!
This is the worst medication and I will not be surprised if its pulled from the market! Its one thing to give someone a headache, or maybe make them gain a little weight. These things arent dangerous. But when it messes with critical thinking and thought processes....this is DANGEROUS!! I have no doubt in my mind my husband would have ended up killing himself in a car accident if he didnt stop that medication when he did!
-- By missangi | Reply | Private Message me