February 25th
2006
9:01 PM
My 6 yr. old son was started on Singulair for what
was believed to be exercise-induced asthma back in October 2005. We were only
given a sample pack of approx. 12 doses to try. He originally complained of
headaches and I noticed that it was one of the side effects as listed in the
pamphlet that came with the sample pack. Approximately two weeks later, he was
given a prescription for it at his well visit by his pediatrician (we did
however have a pending appointment to see an allergist for future testing).
I had started to notice some unusual behavior on my son's part (he was making a
slurping-type sound out of the corner of his mouth and he was starting to have
blinking and eye tics - looking up/rolling his eyes/while opening his mouth). I
then stop giving him the Singulair for approximately 2 weeks since we were
planning to see the allergist. I didn't feel right about giving it to him
without actually getting a formal diagnosis yet, plus he still said he was
getting headaches.
I then started second guessing myself and was thinking that perhaps his unusual
behavior/tics were caused by his allergies, so I started him back on the
Singulair.
We met with the allergist and found that he did have seasonal allergies along
with an allergy to dust mites and cats (we have had a cat now for one year), so
obviously they wanted him to continue on the Singulair once daily.
He has been on Singulair regularly now for approximately 1 1/2 months and I have
noticed what my husband and I call tics - he is blinking alot, he still opens
his eyes widely, in the last few days he has started grinding his teeth, tilting
his head toward his shoulder as if he were stretching his neck and I noticed him
today moving his mouth to one side.
Needless to say, my husband and I are scared to death. I only have a small
sense of comfort after reading some of the posts on this site from other parents
who are mentioning possible ticks from Singulair usage. I have been crying my
eyes out daily lately after watching my son's actions. I am fearful that he is
developing Tourette's Syndrome/Disorder and he has an appointment in approx. 2
weeks to see a Neurologist about this problem. I was due to pick-up his next
month's supply of Singulair as I have only one dose left, but I have decided to
stop him cold turkey! I am not going to give him his last dose of Singulair. I
don't know how long it will stay in his system, but I pray to God that this is
the cause and that it is not something worse.
Have anyone else experienced anything similiar to what I am describing? Have
you noticed anything like tics? I would love to hear from someone who has
posted previously about their possible tics with their children and what they
have been experiencing lately? Did you stop using Singulair and if yes, what
have you found? Have the "tics" gone away?
August 17th
2008
1:57 AM
I can't believe what I am reading! I have been a competitive runner for over 25 years, and in the past two years I started running mainly trail ultras - races up to 70 miles. This March my husband noticed a huge dent in my left glute muscle that over the course of four races got worse and led to a secondary dent in my hip area. I just assumed I had injured my muscle somehow, but no amount of rest, PT, or stretching has helped.(it's been 6 months now) I developed hip bursitis, medium to severe pain in all my joints, including both knees, my left ankle, and extreme spinal stiffness.
None of the experienced PTs I've been to have seen anything like my dent, and they are baffled by my worsening condition. I'm so scared I'll have to give up running altogether, as my joints are failing me. My PT has advised me to go to my regular doctor to get bloodwork, X-rays, an MRI & all tests done to see if something is wrong with me that is beyond muscle-skeletal. Before all of this, I had low back issues but no joint issues at all.
I found this web site by chance, and suddenly I remembered that several months before noticing the dent, I received 2 steroid injections in my butt, as well as pills & cream for a super severe case of poison oak that covered my whole body and face. Do you think my doctor will tell me if it was Kenalog if I ask?
I, too, am very very interested in any other stories of severe joint pain and inability to run especially after receiving these shots. I hope we can help each other figure this out & get answers.
-- By bluetrailgirl | Reply | (2) replies | Private Message me