Freaks symptoms and conditions

I just want to make another post about studying Singulair in premature babies. There is a person who is very dear to me that I remind practically every day that a scientist proves what is NOT true just the same as a scientist proves what is true. I have read hundreds of Merck studies on montelukast. Does anybody ever say - NO - not true? So with all those YES men behind them, Merck experiments on premature babies. Oh, my God. Where does this end?

I would like other people's opinion of Merck's study about using Singulair (montelukast) on neo-nates - premature babies. This absolutely freaks me out. http://clinicaltrials.gov/ct2/show/NCT00492102?intr=%22Montelukast%22&rank=7

I would like other people's opinion of Merck's study about using Singulair (montelukast) on neo-nates - premature babies. This absolutely freaks me out.

http://clinicaltrials.gov/ct2/show/NCT00492102?intr=%22Montelukast%22&rank=7

I have been following this forum ever since the news broke and I feel compelled to post my 4 yr old's experience with Singulair. He has been on it since before he was 2 yrs. I called my child's asthma dr on 3/28/08 with my concerns and his staff had already had a meeting about the news and he advised me to go ahead and take him off of it.
We always wrote off his overly-sensitive behavior to normal toddler tantrums, but when the behavior continued past toddler age, we began to wonder. He also would sob, talking about death a lot and how "God was going to miss him" People said, "Oh, he's just trying to get your attention!" But I knew that 4 year olds should not have such things weighing on their minds. He also frequently complained about leg pain, which I brushed off as growing pains.
We have noticed a TREMENDOUS and immediate difference in our son since stopping this medication. It brought me to tears, realizing the drastic change and wondering how I could not have put two and two together before. Some examples of the changes: He no longer "freaks out" over small problems (he dropped something the other morning and I braced myself for the usual screaming, but instead he calmly picked it up) He is able to sit down and concentrate on an activity (like coloring) He can express his emotions w/o screaming. No more night terrors. The list of changes I've noticed actually goes on and on, but the point is, it is very clear that his mind was in an altered state on that medication and that is entirely unacceptable to me.
As a side note, I told my child's peditrician that his asthma dr had taken him off Singulair and she acted very surprised saying "Oh, it's been on the market so long, and these couple reports in the media probably don't mean anything." My question is, how long has it been on the market for children and how many drs have been lead to believe that these side effects couldn't possibly happen and therefore ignored their patients concerns? I'm convinced that had I brought my concerns about my child's behavior to his dr before, she would have probably prescribed an anti-depressant or ADD medication and never once considered the Singulair to be the problem.
My heart goes out to other families that have been affected and pray that the medical community will respond according in warning people about the potential effects of this medication.

I posted earlier, and I just felt it was necessary to add a few additional comments. My daughter is 9.5, and after I got home from work tonight and spoke with her pediatrician, I felt it was important to have a long overdue heart to hear with my daughter. First off, I told her that I no longer wanted her to take the Singulair, and that her Dr. supported that. I told her what she needed to in place of the Singulair. Then came the hard part... My daughter has made comments to me over the last several years, as often as 2-5 times per week about suicdal thoughts. I am not sure when it even started, maybe when she was 5?... about wanting to die, or wanting me to just kill her, her killing herself. This has troubled me for years, and again, thought this was my parenting, and found it too embarrassing to discuss. I briefly mentioned this once to the pediatrician and once to my son's therapist, and didn't seem to get any reaction from either. In hindsight, I wish I would have taken these more seriously, but given her age, I thought she was just having an angry temper tantrum, which there were many.

At any rate, tonight, I talked about these comments with her, and asked her to tell me more about why she said them, and did she mean them, or was she just angry with me? Her answers were very disturbing. It took a great deal for her to be willing to answer me, she was afraid I would be upset with her, and when I reassured her that if she didn't talk to me, I couldn't help her, she finally talked to me. She told me that frequently she did feel like she wanted to die. Sometimes it was a feeling of wanting to make me suffer. Sometimes it was a feeling of just wanting to end her life. Many times she would have these thoughts and they were just kept to herself. She would often think about how she would end her life while laying in her bed, after she had taken her Singulair at night, and not falling asleep. Or, it would wake her from her sleep. She stated that these thoughts would occur 4-5 times per week. Many times she had nightmares that involved me, and did not feel that she could tell me. What frightens me most, is how many times my daughter would awaken in the night and sleep walk. She has not harmed herslef before, but had I not learned about this, and stopped the Singulair, who knows??

So, this all came out tonight, as I held her, we cried together, and I assured her that these thoughts were not her normal brain thoughts. I told her I would help her, as long as she communicated with me.

Oh my god!!!! My poor daughter. My daughter Karilynn has been taking this drug for about 8 months now. She is 2 1/2 years old now. All of the sudden she had a drastic change in behavior, sleep and eating patterns. She began with sleep problems. She would wake up in the middle of the night screaming that the green monsters were after her. I chocked it up to night terrors that weren't explained. Then she started waking up screaming that her "bottom" hurt but would point to her stomach. She quit eating, cried all the time, started acting out randomly. My little girl who had never had discipline problems started randomly hitting and biting me. It wasn't even when I would discipline her for something. She would literally come up and bite me out of no where. She throws huge tantrums now. The daycare lady even asked me if something was going on at home because she was doing strange things there also. Not knowing what was wrong (but trusting my mother instinct that there was SOMETHING wrong) I started to think that maybe she was being abused. The night mares, the random pain.... I even had a breif moment where I thought my grandmother was hurting her. I want to throw up thinking about that now. I took her to the pediatrician, who ran every test imaginable to "rule out any physical reason" that could be causing all of these symptoms at once. Test after test came back negative. I actually have the number to the psychologist that does "play therapy" sitting in front of me because we were seriously terrified that someone was hurting her. Little did I know it was us!!!! I called tha asthma dr. yesterday after seeing the news story and he told me that my concerns weren't really valid and that it sounded like she was being a "typical" two year old. That really made me angry. After reading all of these accounts there is very little doubt in my mind that it is the medicine. It all makes sense now. Halleluah if it is such a simple fix!!! I was worried my daughter was being ABUSED!!!! What an unimaginable feeling for any parent!! I quit the singulair last night against the asthma doctors "urging" and gave the daycare lady a heads up. Its sad to say but I pray this is all that is wrong with my little girl!!! If someone files a class action suit please let me know. Also if there is anything more I can do to make sure someone else doesn't go through this let me know!!!!!

My almost four year old son has been on singulair for a little over two years now and I am SICK to my stomach after reading all of these entries.
Our son was such an amazing baby, he was very even tempered and behaved beautifully. After some chronic sinusitis and environmental related allergies he was placed on Singulair 15mg granule packets once/day. It was a gradual change in his behavior but very noticeable.

Our wonderful child became very irritable, hipper, restless, moody, and overly sensitive, Our son went from sleeping trough the night to waking several times a night. We are lucky if we have a couple good nights a month. He has also been tougher to get to sleep at night he goes from 8am to midnight on most days (no naps) and will stumble and fall - and he will still protest sleep. On other days he is so hard to keep awake sometimes crashing after school, missing dinner, and going thought the night.

He too like others has been complaining of leg cramps, but I just thought it was a tingly foot....after he would continue to walk around for hours limping, I just thought he was joking. But, the funny leg cramp would always make a reappearance.....and now this could be why????

He is very physical with us and his brother....always hitting and kicking intentionally. His behavior was only exacerbated by the recent birth of our 6 month old. My husband and I have been brought to tears and worn out by his extreme behavior. One moment he is happy - then aggressive or moody and brought to tears....he is like an emotional roller coaster.

He always has a blast at pre-school but completely loses control and freaks out when it is time to go, he says he hates school and is miserable there, he cries so much he throws up. He also goes through hunger strikes, when he is so emotional he choses not to eat. It did not used to be like this!

Coincidental or medical poisoning????

After reading all of these entries, there is no doubt in my mind that Singulair is the culprit.

This drug should be recalled and the pharmaceutical company should be held liable and accountable for this. Our lives have been disturbed and our children's health compromised, what for....a PROFIT?

The FDA needs to do more extensive testing on pharmaceutical drugs and implement more stringent guidelines. and the prescribing doctors shouldn't push these drugs so emphatically.

As of last night we stopped the medication and are relying solely on the Zyrtec OTC. I pray for a change.....we miss the little boy we used to know :-(

I have only been using the NuvaRing for about 2 weeks and have noticed a ton of side effects that my doctor didn't seem to mention. My boobs hurt really bad, it's very painful to even put my bra on, I want to eat everything in sight, I have been on my period for 12 days and it doesn't look like it's going to let up any time soon (I'm 25 and have never went longer than 6 days), and I get raging mad or really sad over nothing, when normally I am very patient and unemotional. I also am very tired during the day and cannot sleep at night. I have had severe headaches, but didn't think anything of them until I read the comments on this site. I'm definitely going to take the NuvaRing out and try something else. I want to try an IUD, but the insertion kind of freaks me out.

Hey I'm 20 years old and ,I just had Mirena inserted in me September 07.I was skeptical to get it ,but I got it because I had 2 children in a row by c-section.I didn't want to get pregnant again right away .I notice that I never knew when or if I'm going to have my period.So that kind of freaks me out but that isn't my problem all that much .Lately after my husband and I have sex it seems like I will have throbbing sensations right after in my vagina.Ive been trying to see if anyone has this problem too,but haven't had any luck yet.I'm going to get Mirena taken out soon but I don't know when.My sex drive is like dead and Ive want to sleep more than I want too.-Courtney (Tn)

I got the Mirena put in Sep. of 2006, 2 months after giving birth to my son. I didn't have any problems the 1st year I had it. I nursed my son till he was a year old. After I stopped nursing is when the problems started. I gained over 10 lbs. in like 2 weeks. I was bloated everyday. I went to my doc and he didn't want to take it out. Told me that my weight gain and bloating was not from the Mirena. Then I was getting major headaches. They were so bad and I never got headaches before. I started feeling like there was a baby kicking inside me. So weird. I didn't think anything of it. It still does it. Freaks me out. I have had heart palpetations too. That really makes me nervous. My husband has been telling me for some time now too that my hair has been coming out too. Alot. And yes I agree, my hair has gotten so thin. I used to have really thick hair. I am calling my Doc today and making an appt. to have the Mirena removed. I am just worried b/c my husband and I do not want to get pregnant again anytime soon. I was 125 lbs when I got the MIrena put in, I am now almost 150. Doesn't matter how much I workout or how good I eat. I can't loose even a pound. I am making the call now.......We'll see

has anyone noticed excessive breast tenderness with the NuvaRing. my boobs have always been a little sore the week before my period, but now they start feeling sore, and even aching, up to two weeks before. it freaks me out monthly as breast tenderness is a sign of pregnancy.

Okay- A friend just emailed this site to me, my son is 4 and has been taking Singulair for about 2 years. He has seasonal allergies which seem to be year round, asthma and food allergies. He is on Singulair and Allegra daily, this in it self freaks me out. What I have noticed for at least the past year is that when he is running around or moving a lot he hold his right side and says he has a pain in it, we now call it a "stitch". it happens not from strenuous activity, our doctor just says its growing pains, that doesn't make sense. something is bothering him it happens with somewhat frequency. I am really thinking about his behavior, it seems to me he can change on a dime. from happy to very angry, outbursts and then right back to sweet, yes this could describe any 4 year old, but not any 4 year old is on Singulair. I remember saying to him where is my sweet boy? I feel like that might have been when we started the meds, i am so used to his behavior now that it seems almost normal but there was a time he acted differently. and i do remember saying that.... was it when he went on Singulair???

I am 17 and have been on ortho tri-cyclen lo for 2 years now I never really notice until I started having sex I wanted to do it for about the 1st 4 times than after that I never wanted sex, me and my bf had gone without sex for like 2months and every time he wants to do it I say I don't want to he says I never want to than it starts a huge fight, so we basically fight all the time. We have been together 11months yesterday. I don't know what to do I am really thinking its because of the pills, I get WAY moody, and I cry a lot. I'm always cranky and tired. I'm only 17!! I should want to have sex lots of sex not have no sex at all what is wrong with me? could if be the pills ? I have been on them for a long time now but I never really thought that it would be birth control to cause all of this.someone please reply.

This is my first experience with the pill .I recently started taking Loestrin 24 Fe about 4 days ago due to being on my period for a little over 3 weeks. My Dr.told me to take double doses for the first 3 days he highly recommended it even though I'm a bit skeptical especially after reading everyones Horror stories about it. Ever since I've started taking them I have these really Sharp HEADACHES.. and extremely emotional. I Don't know if this is just normal or if it's signs of something possibly more serious. I've read a lot about blood clots and that's what freaks me out the most( I don't drink/smoke) Should I be alarmed?? Could it be just my anxiety.. I've been freaking out so much that I'm contemplating not taking it anymore someone help?! Any INSIGHT?????
Thanks!

I am 25 and I have endometriosis, and every side effect of yasmin that you all have is what i have been experiencing with endometriosis, the only difference is that i have a perfectly normal cycle, its either 28 - 30 days no more no less but still i'm not getting pregnant. I started taking Yasmin about a week ago and to date i have no symptoms. I think what happens is that we search online for information about these medication and what we read freaks us out and we start making our bodies believe that we have these symptoms, in-fact we are constantly looking out for these symptoms. when i read up on endometriosis i wanted to become pregnant so bad for the first time and i would make my self feel pregnant because i would go to these endo forums and read peoples symptoms who got pregnant with endo and i would find myself looking for those symptoms and then my body tricks me into thinking i have all the symptoms they describe on the endo sites and at the end of the 28 days my period arrives in full force as usual. but i schedule my self to take yasmin around my lunch time where i guarantee i will have a bite and i notice that with any pills if you do not eat while taking it, it can cause nausea, headaches. I know that it is very possible for people to get side effects from these medications, but i think we need to relax a little and take our minds off them and put our trust in God and let him take charge, pray everyday, and i don't mean pray for your problems, i mean give God thanks everyday for what he has done in your life and for waking you up because God already knows your problems, he just wants you to show acknowledgement for all he has done. This is the path that i am trying to take to overcome my endometriosis and just hope that one day he will look deep in my soul and help me and women just like me with menstrual issues, and help me and my husband to concieve our first child. the only side effect i am looking forward to while on Yasmin is falling pregnant at some point (you know how some people mistakingly fall pregnant on BCP's well i am looking forward to that) (smile)

Update:
Another week has gone by with the ring out and i feel GREAT!
I'm not paranoid! I'm not sad, or antisocial... I haven't passed out once since it's been out!
I've been able to stay awake all day, every day. No naps, very very little fatigue (just a little at the end of long days, which i think feels normal).
I feel social! Sexual! I have self confidence!
Honestly, in the past month I feel like my life has completely turned around. I am getting along with my boyfriend sooo much better because I am mentally healthier and finally have a libido again!

I agree- if you're not experiencing weird symptoms, you're lucky! I loved the ring at first. Just be careful and aware!

As for alternatives to the ring... I don't know what to do really. I decided with my doctor to take 3 months off of hormonal birth control just to figure out how I feel naturally. After that though, I'm not sure. Just relying on condoms alone kind of freaks me out. Definitely not ready to deal with baby decisions...

Hi everyone, I've been off Yaz for two weeks now and have had severe depression, emotional numbness, anxiety, muscle weakness, migraines, and on and on. The symptoms are actually getting worse in some ways since I went off the Yaz.

I'm hoping someone can tell me whether they've had any success in going on another birth control pill after Yasmin/Yaz in order to stabilize side-effects of depression and anxiety, which are what freaks me out the most. I've been off Yaz for two weeks now and if anything my side-effects have gotten worse. I'm seeing a doctor and trying to figure out what's going on, but in the meantime I am desperate to feel like myself again. I'd rather not go on anything else hormonal for the long-term, but I'm considering going back on an older, completely different prescription (Loestrin) which didn't cause me any psychological side-effects. One of my doctors says it should be fine, but the other doesn't want me to do it. Has anyone else felt an improvement in depression and anxiety from going onto a different pill prescription? Thanks for your help!!

I think I maybe just figured out the answer to these symptoms you guys are describing, with mood changes and nightmares?

From Merck Frosst website:
The team finally chose quinolein as the basis for their compound, because it has affinities with the LTD4 (leukotriene) region.

Quinolein - elsewhere it has been listed as a seratonin inhibitor...

Also, is Quinolein related to Quinine (a malarial treatment that causes nightmares and psychotic symptoms?)

What do you all think?

Has anyone who has been on Yasmin for more than two years noticed post-sex vaginal bleeding? I'm 24 and I've been seeing the same guy for three years, been on Yasmin for two and a half years, and all of a sudden (please forgive me being graphic), when we have sex in the doggystyle position, I start to bleed. It's only a little bit and it doesn't continue. There is no pain.

The only thing I can think of is that having been on Yasmin for an extended period of time has led to this side effect.

Otherwise everything is fine. I haven't become pregnant, my cycles are regular, I haven't experienced mood issues or the dreaded recurring yeast infections that one poor girl described. The bleeding freaks my boyfriend out and dampens the mood, to say the least.

Has anyone else experience this? Please let me know, I'm hoping to eliminate the most likely causes of this symptom so I can figure out if it's my body or what....

My 24 month old daughter was prescribed Omnicef for a sinus infection. She began waking up multiple times in the night screaming. She acts like she is in pain, but won't tell you what hurts. She freaks out when you touch her when she wakes up like that. She also appears to be hallucinating and we're not really sure she is even waking up. She has had 4 doses and now the mood changes have gone into the day hours. We have contacted the doctor and they agree with us that she should stop taking the medication. We cannot confirm the bowel movement side effects because she has not had one in 2 days. We checked the side effects insert from Omnicef last night when things were bad and nothing was on it about nightmares. I understand that not all children react the same to medications, but there are too many with the same reactions to overlook this.

hi,yes i still get chect pains 8 months after stopping taking yasmin,i also have an irregular heartbeat. my doctor told me it was nothing,just anxiety......hmmmm. well i'm not sure about that but nothing bad had happened so far.if after a year i still have the pains then maybe i will follow it up. i still have breathing difficulties sometimes too,feels like i am being smothered. the other awful thing that i get is a massive feeling of pressure in my head,it feels literally like it is being squashed,it only lasts a few seconds but happens about twice a day.that really freaks me out,i start thinking oooooh what if i have a blood clot on my brain or something! i have no idea what all these aches and pains are. maybe they are just anxiety symptoms,i just hope they will go away soon.

sarah

Hi Ladies, Sorry if this is duplicate I had problems with my email. Silke, have you had swelling in your ankles too? Sometimes I feel like I have fat rolls around my ankles and hands because they are so swollen it leaves indentations. My large heels actually were snug this morning. It freaks me out and makes me think I have a blood clot or something, but I know I had so many darn tests I'm from what the dr's say a completey healthy 27 yr. old.

It's crazy. I must say that I took it for over 3 yrs. and I am way way better than I was, however I guess the set backs are a bit discouraging. It's like I feel great, then all of a sudden my leg is killing me and I can hardly type anything on the computer. I'm sure it's going to take a while, but I'm just glad the anxiety is gone.

I have recently started taking Yoga which I believe has helped my recovery process a lot. Gina I have also found that if I start getting dizzy, I will drink a vitamin water, or a gatorade propell water. I haven't found anything to work yet for the fogginess. I think something in those drinks must help stabalize my electrolites or something, which is a help but not 100%.

I did have some horrible night sweats last night and got winded walking to my car this morning, but like all of you have said 6 weeks compared to 3 1/2 yrs. is a very short time to get back to normal.

I also have tried to report my side effects to the hotline number numerous times and I have left several messages, no one has returned my call. Interesting. Those of you who have made a report, have you gotten any answers from them or do they just take your side effects?

I check this site every day and absolutely love hearing what everyone else is going through, b/c it makes me feel like I"m not alone in this mess. Thanks again for everyone that shares.
Hill

hi my names chris,

can anyone help?? ive been off yasmin for 3 months and i keep having heart pulpitations... is it normal? ive been to hospital and had so many blood tests but they say im fine....sometimes it lasts for days at a time...
is there anyone who knows what i can do to help stop them? it realy freaks me out...
help!!! : ( im so worried..

One day, my girlfriend start freaking out, like she was having a anxiety attack. But the thing was she wasnt, she could feel her fingers. She thougth she was going crazy. After about 3 weeks of this, we found out that singulairs side effects were undeniably parellel to the symptoms she was having. It has been a month since she stop taking it but still, feels it and freaks out. Does anyone know how long it took it took the symptoms to wear off? PLEASE GET BACK WITH ME ASAP!!!!

This freaks me out reading all of these...I just expierenced something....

I was in the hospital because they thought I had a stroke. I am only 26 years old. My whole right side when numb and weak and it was my leg, arm, and face, and lips, nose, and eye areas. It then went away after 48 hours. They have no idea what it was. they have done MRI's and ruled out Bells Palsey and tons of stuff. I also see flashing lights so they are starting to lean towards migraines.

The only weird thing is that I went in a while ago for extreme belly pain burning and they found that my liver was enlarged.

Now, someone else above mentioned these stroke like symptoms and the enlarged liver.

I also get strange thoughts. I am on Neurontin 2100 MG for anxiety.

Anyone have any advice?

******

I have not been myself since I started Yasmin. Although my Nurse Practioner swears by this pill, it is going in the trash today. I have gained weight and my periods are so heavy. Moreover, I have never been such an emotional basket case in my life! I snap at people and feel like I am so bitter towards everyone. My boyfriend is so patient, but I would NOT want to be with someone like me no matter what the cause. This is crazy! So for the love of family and friends, I am getting off of pills all together. We females have turned into freaks being so dependent on chemicals. Forget it - back to mother nature's latex.

Can any of tell me how long before I am normal again after I stop?

Thanks!