August 19th
2009
10:32 PM
My neurologist put me on Prednisone for cluster migraines. I started with 80 mg for 2 days, 60 mg/2, 40mg/2,20mg/2. It was so effective at keeping the cluster attacks from coming. I was so thankful to finally have something to stop the attacks. I have suffered with CH for 20 years and other than pain medication to abort an attack I never had anything that worked as a preventative. After taking the prescribed dosage I stopped taking the Prednisone. My neurologist warned me that this drug can be very effective short term but I would not want to have prolonged use because of the side effects. Unfortunately, when I stopped taking it my cluster migraines came back full force. So I went back on taking 20 mg daily. That was a BIG mistake. At first I was euphoric, on a constant high. I had so much energy even though I would only get about 4 hours sleep because my mind was racing from 2:00 am into the early morning hours. I would wake up with night sweats and needing to urinate 3 times per night. My face got puffy, I had terrible heartburn, increased thirst and a decreased appetite. My family was watching me wizz around like the Tazmanian Devil wondering why I was acting so bizarre. I thought I was seeing things so amazingly clear! The worse part of all is the itchy, red rash that started on my elbows, then knee caps. It has now spread up and down both arms and legs. I went to see my GP and I told him that I have never had any skin rash like this before. Could it be the Prednisone causing it? He of course said it was unlikely because Prednisone is used to clear up skin problems. Now having stumbled on to this site I realize that it must be the Prednisone doing this to me. I am unfortunately going to have to suck up the pain of the migraines and let them run their course until they leave me for a few years. I'm so disappointed that Prednisone isn't going to be the cure after all.
-- By clusterhead | Reply | Private Message me
July 26th
2009
11:57 PM
My name is Katie, I am 31 years old. I have been suffering with what doctors call Chronic Idiopathic urticaria for 16 years now. I was prescribed Zyrtec 14 years ago and remained hive free until I had my first son. After a complicated pregnancy and emergency delivery the hives returned full force. The doctor prescribed Singulair in addition to the Zyrtec.
The hives went away; however, I have so many other problems now. I have been seeing a specialist thinking I have lupus or some other disorder, but all my tests are normal. It wasn't until I had my singulair refilled yesterday that I realized instead of symptoms, what I am experiencing may be side effects.
-- I have gained 60 lbs.
-- I have horrible headaches almost daily
-- I am so tired that when I am not working it is impossible to even make myself leave the house
-- I have taken myself to the hospital 3 times thinking I was having a heart attack and told I suffer from acid reflux
-- I have so much pain in my legs/feet/back that I can hardly walk
-- My hands and feet like to go numb for no apparent reason
-- I am always anxious & moody.
-- Can't sleep
-- Clearly I am not myself. Lately, I have felt the quality of life I am leading is horrible.
Wouldn't it be something that I have spent all this time & money trying to figure out what else is wrong with me when it is the medicine I thought was keeping me well really making me sick. Why do the finest doctors not realize when your symptoms are actually side effects?
I am pretty out raged at this point. I would take myself off this medication today if only I knew how to control the edema.
-- By knaustk | Reply | (2) replies | Private Message me
July 10th
2009
8:07 PM
I was on birth control for 17 years because I suffered from severe cramps and bleeding when I was a teenager. Two years ago I was so sick - extreme fatigue, dizziness, nausea, severe constipation, severe depression, irritability, almost constant yeast infections and overall just felt very sick. I had gone to many doctors for many different testings and they all told me they couldn't figure out what was wrong. Some thought IBS, Chronic Fatigue Syndrome but nothing specific. I finally got to a point where I didn't want to live like this anymore and went to see a Holistic MD. He changed my life! The first thing he said was that I needed to come off the pill. Of course not wanting to ever have children - this was very scary to me. It took me about a year of talking to him about that that I finally decided to give it a try. OMG! I became a totally different person! Happy, full of energy, no fatigue at all, no more yeast infections, all my symptoms disappeared. It took about a year for the hormones to regulate because I had been on them for so long. I'm telling you all this because after being off of the pill for two years, I decided to try the ring which didn't work and then thought I'd try going back on the pill for my huge fear of pregnancy. Well, it's only been 3 weeks and all my symptoms are back in full force. I am miserable and will be taking myself back off. My quality of life is more important than anything else. The doctors don't tell you these things because they believe what that sales reps tell them who of course want to make a ton of money. As women we need to stand up and speak out so that is what I'm doing. My husband and I are researching other options but the pill is definitely not one of them.
-- By jwill | Reply | Private Message me
July 9th
2009
10:49 PM
I started on the NuvaRing in April of this year, so this is my 4th month on it. The first month was great! I loved that I didn't have to think about it daily and my libido was through the roof! The only side effects: I noticed immediately that it increased my discharge, which was a little uncomfortable on a day-to-day basis but was very nice for making love. The discharge was also a whitish color, which threw me off because I'm used to it being clear but my doctor assured me that all was normal. Also, it would occasionally fall out during more passionate sex, which wasn't a big deal. I just washed it off with cold water and reinserted it. The second month, things seemed great until the last half of the month. I noticed that there wasn't as much discharge and I would get a slight burning sensation after sex. About a week later, I came down with a full blown yeast infection. I hadn't had a yeast infection in 10 years! I treated it with an OTC 3 day suppository, which seemed to help it a little. I removed the NuvaRing like normal and a few days later I started my period. Things seemed to go back to normal and a week went by without much problem. The middle of the 3rd month I was slammed full force with yet another (or the same) yeast infection, plus bacterial vaginosis as well. I asked the doctor about the NuvaRing and it possibly causing/aiding yeast infections. She assured me that it wasn't possible for the ring to cause infection. She gave me instructions on how to properly rinse it off in case it ever fell out again. She prescribed me 2 doses of Diflucan for the yeast and an antibiotic for the BV. I took both and afterward things seemed fine for another 2 weeks. This week, I noticed that I had a weird itchy feeling down there before bed and sure enough when I woke up in the morning it appeared I had another yeast infection. I called to make an appointment but the nurse just called back and prescribed me 2 more Diflucan pills and told me to give one to my partner. I asked again about the NuvaRing perhaps being an aid in the appearance of these infections and again she told me that it wasn't possible. At this point I am really confused. I don't know if I have a really bad yeast infection due to the ring or if my boyfriend and I are simply reinfecting each other. I also asked about whether I should discard this NuvaRing and start a new one after the infection clears up and got a very vague response of "it's your call". I really don't know whether to can the NuvaRing or keep going a little longer to see if this is all a big coincidence. I just think there isn't enough known about the NuvaRing...by my physician anyway. More side effects to note in the fourth month: weight gain, loss of sexual desire, vaginal dryness (the discharge was short-lived), irritability, crying fits. I'm just at a loss...I really wanted this to work for me...
-- By stripeysocksgirl | Reply | (2) replies | Private Message me
June 12th
2009
1:56 PM
I have always trusted the COPPER coil and have been using it for about 10 years now...I got it taken out to have a baby, and was planning on getting "fixed" so I wouldn't have any more, but my doctor said that Mirena was even better, so I figured why not, it'll stop my periods altogether. I've only had mirena for a couple of months now, and I have to say...what everyone says here scares the hell out of me. BEFORE mirena I was on medication for panic attacks and slight depression, and I had no sex drive at all. But so far, believe it or not, I find these things getting better! I wonder if mirena has opposite effects if you've already had the symptoms...I hope so...right now I feel great...I'm becoming me again, the panic attacks have considerably subsided and I feel like I'm digging myself out of the depression...I've been ecstatic! The only real side-effects I've had are cramping one random day and tingling once. Also, I'm not gaining weight, but not losing either. The only annoying thing I find is I have that thick brown discharge instead of a period for 5 or six days, but I'm wondering if my period will stop completely eventually (hopefully) but no matter what I'll take brown sludge any day over an 8 day bledfest.
However, after reading through everyone's comments, I find myself really worried, since I've only had mirena a couple of months and a few of you said that it took like 6 months or so for anything bad to start happening. If that's the case then where will that leave me afterwards? Will my depression get worse?? I don't know what to do, and now I'm pretty nervous.
-- By whiteroses | Reply | (4) replies | Private Message me
April 19th
2009
9:23 PM
Hi everyone, I have just read all thirty pages of posts to try to find some answers to my crazy reaction to prednisone. My thoughts are with you all since I have had an usually severe reaction to prednisone. I was on prednisone for 1 week in October 2008 at 60 mg/day for a sinus surgery. I am still having the following side effects at full force:
Axiety to the point I can't socialize
mood swings
hot/sweating even in freezing weather
whole body shakes
severe migraines
tooth sensitivity
muscle pains
extreme thirst (I drink almost 2 gallons/day)
hungry all the time
moon face
water retention around waist
acne
hair loss
rapid heart rate
dizziness
nightmares
night sweats
high blood pressure
high hear rate
I'm not exaggerating, my parent's can contend to that. I do have a history of having sever reactions to medication and I've had all the gland and blood tests which all check out. I never had a single one of these before the prednisone - I was a healthy 22 year old.
I was wondering if any could tell me when this hell will end - my job and well-being depends on it!
-- By ames | Reply | (6) replies | Private Message me
February 25th
2009
12:11 AM
I still currently have Mirena in. I have had it for 2 years 2 months. I am 27 years old. I have had no children. I was on the Depo shot for 8 years. Then switched over to Mirena. I was happy and it worked well for me for about 6 months. Then I began to get the dreaded side effects starting with horrible scaring acne. I got many treatments from my dermatologist including trying to take Yaz birth control (he knew I already had Mirena in) to try to stop the acne. The only thing that did help with the acne was blue light treatment combined with Levulan but I have to go often to get it or else the ance comes back full force and the acne treatment is expensive. For the past year I have had a sharp shooting pain in what feels like my right ovary shooting down my right leg. I went to OB/GYN after multiple pap smears/ultra sounds and blood tests, she couldn't find anything wrong. She sent me to see GI doctor. I went to see him in July 2008. He thought I might have appendicitis so referred me to get abdominal CT scan. Insurance refused to pay. He said I should get a colonoscopy. I refused. I have been ignoring the pain near my right side and down my leg ever since. If I really did have appendicitis my appendix would have burst by now. For the past couple of nights I have begun to have night sweats. I do believe all of the above is related to Mirena. I have begun to discuss with my husband alternate birth control and removal of this thing. If we get a law suit going I want to be involved.
-- By mtapia713 | Reply | (1) replies | Private Message me
February 21th
2009
3:00 PM
I think that mirena is a birth control because it doesn't allow you to have sex at all. I have had the mirena since Dec 27th and I have been bleeding since Jan 10th. I haven't had all the symptoms of acne and weight gain but the bleeding is horrible. Every time I think it is going to stop then bam it comes back in full force. I have a doctors appointment at the end of March and I am going to tell her to remove it. I am going to have to do something or I am gonna find myself being single. It is really unfair to my boyfriend that he has to go without because I am out of commission. Doctors never give you all of the side effects to these procedures. I would have never done this to myself had I read this site first. I have 2 kids and I don't want anymore any time soon but I am gonna have to find another method of birth control. Mirena is the worst....
-- By shegurl82 | Reply | Private Message me
January 11th
2009
12:39 AM
I got on mirena June 2006. Since that time I have had ovarian cysts like crazy, weight gain depression, acne and constant muscle pain. Also, more and more, I forget things. I forgot my age a couple weeks ago...I forgot my boyfriends age too and had to ask him after deep intensive thought, I JUST COULDN'T GET IT! So I made an appt. to get it taken out. I can't wait to see what happens....I've never had problems before, no acne, no weight problems, no memory problems, no cysts....now I have it all and I'm miserable. So, wish me luck ladies, and I hope all goes well for you guys too.
-- By misstricia85 | Reply | (1) replies | Private Message me
January 7th
2009
12:23 PM
I got my Mirena November 14, 2008, the day before my wedding. The pain was insane, I could barely stand up as I walked out of there and hardly made it through my wedding rehearsal that night. I cramped and bled for the first couple of weeks and then it suddenly stopped only to come back full force as a full period on my honeymoon of all times! My hair started falling out immediately, but until I read these boards I was blaming it on the dry winter air and all of the coloring I do to it. My migraines came back full force (I got the Mirena because my doc took me off of the pill because it was giving me migraines) mid December and I have gained about 10 pounds always feeling bloated. I've been feeling depressed lately and extremely tired! I thought it was because I recently lost my job and now that my life has calmed down I was starting to feel the effects of it, and now I know it was the Mirena! Thank Goodness it's now really me! Just in the last couple of days I've noticed vision problems, not really blurry, but kind of wavy vision...I was starting to blame it on the fact that it's time to have my eyes checked anyway (I wear glasses) but my eyes really don't change from year to year anymore, so wavy vision is a major problem! So, to summarize, 10 lbs gained in a month and a half, bloated, constipated, migraines, wavy vision, spotting, depression, tired constantly to the point of exhaustion (I can fall asleep on demand).
I'm making an appt with my doctor this week to have this thing taken out! I don't know what to do next. I can't have any more babies...I had one baby, she died in March 2003 due to multiple birth defects and the doctors don't know what caused them, I'm not going to do that to another child and I'm not going to go through that again. I can't find a doctor to tie my tubes though, so hopefully my husband can find someone to give him a vasectomy!
-- By maksmom | Reply | Private Message me
January 2th
2009
5:59 AM
I am sooo glad that I found this website!!! I have had so many of these symptoms, unfortunately for a lot longer than some of you other women. I've been on Aviane for about a year. The pharmacy automatically gave it to me instead of Alesse. I have a very stressful job as a 911 dispatcher so I though most of the side effects were from stress. I read an article in a magazine about how birth control effects your sex drive and started doing some research..... come to find out its not from stress!!!! I called and made an appointment with my doctor immediately!!! Although she told me that the symptoms that I had aren't normally caused by birth control, she switched me to Ortho Tricyclen Lo. It has already made such a difference!!! The mood swings are gone, Im not overly emotional or angry or erratic. I don't explode at the drop of a hat, I feel soooo much more mellow and in control. My sex drive has come back in full force!! My husband and I have had more sex in the last month since I've switched pills than we've had in the past like 6 months. He too has noticed a lot of changes and definitely agrees with me that it is worth it to pay the extra money each month to have a good pill and have me feeling better. I wish I would have thought about switching birth controls sooner. Aviane is terrible!!! It will make you into a craaazzy person!!
-- By mrscoleman2be | Reply | Private Message me
October 24th
2008
2:36 PM
I just had Mirena inserted on Oct. 21, only three days ago. The pain wasn't to bad, just very crampy. I had to concentrate on making sure I wasn't holding my breath due to the discomfort. It otherwise went well, quick. Mine was inserted by a nurse practitioner. She wanted me to come in and have it inserted during my time of the month. She said it goes in much more smoothing that way for a couple of reasons, moisture acts as a lubricant, and during our cycles, our cervix dilates slightly. I was at the beginning of my period when I went to have it put it. Just spotting waiting for the gates to break loose. I still am just a little heavier than a spot, my period has yet to come full force, cramping like it wants too though. The past two days, I have had the worst mood swings. Feels very similar to the baby blues. I am hoping this is just my body adjusting to the hormones and it will subside as I had postpartum depression after my daughter was born (4yr). After my son (6mos) I was ok, just baby blues for a couple weeks and I was back to my old self. With my history though, it scares me, I don't want to experience that feeling again. I have been getting very angry over little things the past couple days as well. Almost uncontrollable. I came home and found that our cat had got in our blinds and broke a slat (I guess that is what I can call it) I was so mad, I kicked her and she slid across the kitchen floor. I felt so horrible and guilty after. That is so not like me. I would just ordinarily scold her and forget about it. I am worried that it is going to get worse. Ever since I have had Mirena placed, I have noticed these changes and it seems to be increasing each day. Like I said, I have a 6 mos baby and my husband is deployed. The last thing I would want is a Dr to dismiss my side effects. I already have a stressful life situation right now, if this makes it harder for me and my family, it is going to have to go.
-- By sgt_mom | Reply | Private Message me
October 14th
2008
2:53 PM
I've had asthma for well over 20 years (I'm 31) and I feel as if my problems are stemmed from the new inhaler. I've taken albuterol, advair, singular all fine with no problems. A couple of months ago I tried the new inhaler and thought nothing of it but the bad taste. About a month later I noticed a white patch/bump on the roof of my mouth where the hard palate meets the soft. Went to an ENT, biopsied it, and it came back negative; they wrote it off as just an abnomality. Well I went back to my old inhaler and I noticed that the bump was still there but hardly noticeable. I am now on the new inhaler again and the bump is back full force. I also have been getting headaches and sinus pressure headaches around my eyes & nose. I've never had this before.
I wonder if there is something we can do to fight for the old version to remain on the market.
Anybody else have anything similar??
-- By belle247 | Reply | Private Message me
September 29th
2008
9:41 PM
I have been on Singulair for about one month and am experiencing extremely painful cramps/charlie horses in my legs. I am taking Singulair for adult onset asthma. Have a horrid cough, been told over the past 20 years, yes, 20 years, it is caused by allergies but no medication stops the coughing. Then they figured it had to be caused by acid reflux. So prilosec is prescribed. Still have the cough. Now this specialist deems it to be adult onset asthma. The Singulair does not stop the coughing - so what is next? Major leg cramps/charlie horses.
-- By judy327 | Reply | (4) replies | Private Message me
September 16th
2008
5:07 PM
I can't attribute this directly to my cortisone shot - however, I've noticed that the past few months I have been losing my hair. I can pull it out virtually by the handfuls anymore! I am only 24 - this doesn't seem normal and the only change I could point to is the shot. HAS ANYONE ELSE HAD HAIR LOSS THEY CAN TIE TO A CORTISONE SHOT?
I also noticed a change in my period. Nothing as extreme as I'm reading here - but I'm so glad to have read this - puts my mind more at ease to know have a cause for that.
I have tried other remedies - but the cortisone shot has been the only thing to actually work. Any other ideas?
-- By brandy001 | Reply | (4) replies | Private Message me
June 30th
2008
8:39 PM
I have only been taking singulair for about a month. I have noticed that I have become more irritable, grouchy, hateful and just numb, not really wanting to be around anyone, not caring about anyone else's feelings much. I also noticed I have become extremely lethargic, to the point of falling asleep at work as well as heart palpitations and stomach pains. I just started new birth control pills so at first assumed they were causing these side effects, that is until I looked up the side effects of this drug! I have over half of the side effects so I stopped it immediately and can already tell a difference in my mood. I have to sons age 11 and 14, both who have asthma and allergies. The took this medication for a few years with no side effects but have not taken it for about a year now. My youngest son however, has been diagnosed with ADHA and ODD and possibly BiPolar disorder. As I read the other posts, I realize the description of how their children act while on this drug is exactly how my son acts. I wonder if there can be irreversible permanent damage from taking this medicine? He has been on a number of ADHD drugs, none have helped except to make him stop eating and lose weight and he is small for his age, so I have taken him off everything. Has anyone else out there experienced what could be permanent damage from this drug in their children? Even after being off the drug for a year or so? If it could make me miserable within a month, what can it do when one takes it for years? Its sometimes hard to tell the effects of medicine on small children. My son prob starting taking it around 4 yrs old and took it til he was about 8 or 9. Just wondering if anyone else out there has had this happen to them or their children.
-- By cinnamonbuns2005 | Reply | (2) replies | Private Message me
June 17th
2008
2:43 PM
age 48 - after having no period last summer into fall and then suddenly it returning full force with no end in sight I had numerous scans that found my ute the size of a five mo. preg. and multiple fibroids. Really not in the mood for a hysterectomy I asked my doctor what other options I had. She did a D&C and Mirena placement in the hosp. end of Nov. '07. Things were fine for a few weeks and then the spotting began. I spotted all the time and could never go without wearing a pad. Now in my 7th month of giving it the so called TIME to thin out my ute lining, lighten flow etc. I am having it removed tomorrow morning at 8:30 and scheduled for hysterectomy pre-op July 11th. Here is the never ending list of crap I've had to deal with since I had the Mirena put in:
Mood - horrific. High then low... no in-between.
May 22, 08 - current heavy bleeding with cramps and spleen sized clots.
flow stoppage for 24-36 hours only to gush and return full force at will.
ovary pain both sides
upper leg pain
massive wt. gain = 32 lbs
swelling/bloating
extended stomach from under breasts to pelvic bone
June 12th, woke to spinning room.. day I called to make the appt. for removal.
burning sensation left ovary region
acne ear to ear chin line - extremely oily face
headaches
shakes
sweats in air conditioning day/night
full bladder sensation 24/7 with more freq. trips to the bathroom
less bladder control
Guess that about sums it up... I am sure it is a combination of menopause onset and the Mirena. I will be able to gauge better the few weeks I am Mirena free before I have my bag of fibroids removed. At the very least I expect the acne to lighten up and hopefully some wt. LOSS.
May 14th
2008
2:21 PM
Has anyone experienced pain in the abdomen on the right side? Seems to have started when I started this birth control...sometimes it's under my last rib, and then there are days it hurts all the way down to my hip.
-- By ttrinkle | Reply | (4) replies | Private Message me
May 12th
2008
2:39 PM
Hi Ladies,
Same here. A week and 3 days post-removal. I feel a little better except for my period coming back. It started on Monday and stopped on Thursday. It was ok. nothing major. Then started up with full force again on Saturday night to Sunday morning. It is very clotty and very painful.It has taken a toll on my body. I was in bed all day Sunday. I don't feel like I have been run over by a train as before with the Mirena in place, BUT I feel the PMS raging. I have felt lightheaded and weak from so much clotting, but knowing that this too shall pass is such a great feeling! I see the light at the end of the tunnel, but my only worry is that my body will take a while to get back to normal. I have read other threads on other sites that say after 2-3 months, it all gets back to normal. maybe it depends on how long it was inside? I just wish it would disappear altogether. That IUD is awful! I still cant believe I suffered so much without putting it all together. They make you believe wholeheartedly that it is not the Mirena causing symptoms. Then how else could a normal, healthy woman begin to deteriorate so much?
I was again surprised to see one or two comments about how they feel like an 80 year old woman. That was my favorite line before I found this website. It was quite shocking. It felt like I was listening to myself speak! No joke. I would be asked how I was feeling today and I would respond with sincerity that I was feeling like I was 85 years old.
What bothers me the most is that I was a newlywed throughout this whole time. My marriage suffered and I thought it was me and that I had a bad attitude. I thought that I was just so tired and nobody understood me. Don't ask me how but my husband had a feeling it was the Mirena the whole time. I could not believe it! I am sure many of you feel cheated out of a year, two years or more of a good life and a good marriage because of this. It is frustrating to look back and see how it all played out. To think that now I am "recuperating" and getting "back to normal". We should not have been going through that in the first place and we should not be recuperating from anything. Our bodies can get back to normal, but it's that emotional roller coaster that stays with you. To me, it's lost time that as a newlywed forming a new family, I could have enjoyed with my husband and daughter being my loving self and not a mean, raving hormonal lunatic like I was. Yes, I still feel really bad about it all. Mirena is a nightmare. I am blessed to have a wonderful sweet and beautiful 4 year old and such a patient, loving husband. They both kept after me, loving me, even if I was turning into Oscar the Grouch.
Don't give up, ladies. Hang in there!
April 30th
2008
10:51 PM
I took Topamax for 6 months. I am a control freak by nature and really liked the drug at the start when I took 25 mg.; however, like most people who take Topamax know, you increase the dosage until you get to 100 mg. By the time I got to 75 mg. I was a basket case. I did lose weight and I was really calm; however, I thought I had Alzheimer's. My short term memory was shot and was slowly effecting my long term memory. I was constantly at a loss for words and stuttering all the time. For someone like me who is extreme control freak this was very debilitating. I also had constant tingling on my nose (I know weird) and my fingers. My husband begged me to stop taking Topamax because he could see the difference in me. Like everyone else my Migraines completely went away and so I thought the benefits outweighed the side effects.. The doctor said that maybe 75 mg. was to high so he put me back to 50 mg. It didn't change. Finally after 6 months I was almost a vegetable. I stopped talking which is extremely unusual for me. I stopped hanging around my friends and family and wouldn't deal with my kids. My daughter finally came up to me and said I don't know who you are, but I want my mommy back. That was all I needed. I weened myself off and within 2 months was back to normal. Unfortunately, my migraines came back full force 4 days a week. The good news is that about a year later I was having a physical and the doctor said that my thyroid was off and needed to start taking Synthroid. I have to say I couldn't believe it, but ever since I started taking Synthroid my migraines have completely gone away. From having them 4 days a week to maybe have 1 or 2 a year since being on Synthroid. I have been basically Migraine free for almost 2 years. I highly recommend that people, especially women, talk to their doctor to see if their thyroid could possibly be causing migraines. I have had migraines since I was in college 20 years ago.
One thing I do have to say is that the company that manuf. Topamax listed all the side effects. It did say that Topamax could possibly cause Neuropathy, loss of memory, weight loss, etc... It also stated that the symptoms should disappear after 6 weeks; however, it some cases they didn't. I respect that they were honest with their research and were very clear in the side-effects. I have many friends who use Topamax and thank g-d for it everyday. They had no side effects from the drug and have been living happy lives.
-- By texdog | Reply | Private Message me
April 8th
2008
6:50 PM
My son is 8 and he has been on singulair for at least three years, maybe four. When I heard about the side effects a few weeks ago, I stopped his medication right away. I have since learned that it should be tapered off, but won't put him back on to do that. He had so many of the depression, I hate myself, everybody hates me, facial tic, stomach ache symptoms . . . Now he is almost two weeks off of singulair and he is throwing screaming fits, kicking, threatening, uncontrollable for up to two hours and more! Is this a side effect of coming off of the medication? Has anyone else had this experience? Please email me at amy-weaver4@sbcglobal.net - I'd really like to hear if anyone else has experienced these symptoms. Thank you! Amy
-- By ymategan | Reply | (3) replies | Private Message me
March 30th
2008
5:43 PM
I have been on Topamax for several years now for crippling migraines. I now take 125 mg at bedtime. I once tried to take myself off of it but, the headaches came back worse than ever So... I went back on. some say that it works because migraines are like a type of seizure. I sure don't know but I'll do anything not to have them like I used to. Recently at night my arms and legs get numb; sometimes one side sometimes both sometimes all I feel is my trunk. It is really scary, but more scary for me is the headaches with the intense nausea that accompanies them. You just can't function. Lately I also feel very tired too! Every one tells me it is just stress from work and "perimenopause" (just what I need more hormonal fluctuation to cause headaches) I really wonder if all this increased fatigue could also be the Topamax ... I mean I could easily sleep 11 hours per night if you let me! Has this happened to anyone? Did perimenopause complicate your treatment?
-- By tiredalways | Reply | (1) replies | Private Message me
March 27th
2008
7:40 PM
I started taking Chantix in August right after I had my teeth cleaned by a periodontal office which I was doing every three months. Three months later my periodontal disease which had been controlled for four years came back full force. I had just had an implant placed in July and now am in fear of losing it along with some other teeth. I have had to have new bone graphs and gigival flap cleanings trying to stop the problem. I have now been off the drug four months and things seem to be going better. PLEASE CHECK WITH YOUR PERIODONTIST IF YOU HAVE EVER HAD PERIODONTAL DISEASE BEFORE TAKING THIS DRUG.
-- By smonsen | Reply | (1) replies | Private Message me
March 26th
2008
3:42 PM
I was on Advair for 3 months. I had the following DAILY symptoms: throat constrictions/swelling, loss of voice, difficulty breathing/panic attack-ish reaction, and most recently heart palpitations followed by my heart skipping beats. I am now off of Advair for 5 days now. The first few days were rough - I got every symptom in full force. I am now taking Flovent 110 mcg. I am supposed to take it 2/day, but have started with only 1/day to see if my body will react to this lower dosage. I look forward to becoming healthy again - like I was prior to taking Advair.
Oh, and I went to 2-3 dr appts every week to try and uncover why I was having these terrible symptoms. All gave up on me. Including the asthma doctor that prescribed the medicine. Surprising that the entire GROUP of doctors did not know the side effects of Advair well enough to recognize them in me.
-- By auntlainey | Reply | Private Message me
Mirena (9) Singulair (4) PredniSONE (3) Levaquin (2) Topamax (2) Loestrin 24 Fe (2) Advair Diskus (2) Chantix (1) Fosamax (1) Gardasil (1) Albuterol Sulfate HFA (1) Kenalog (1) NuvaRing (1) Celexa (1) Oxymetazoline (1) Aviane (1) Desogen (1) Yaz (1) Lamictal (1) Yasmin (1)
November 19th
2009
11:40 PM
I really wish I had read about the side effects before I started taking it. I'm currently on day 5 of a 10 day pack. I'm currently being treated for depression/anxiety/bipolar and am on a lot of medicines to control it. I had been doing fine, but once I started taking levaquin, everything spiraled out of control. I was having a hard time falling asleep, waking up, doing anything. The worst part was my depression hit full force and I had serious suicidal thoughts, which I haven't had in a long time. I'm so upset it took me 5 days to put two and two together. This drug is absolutely horrible.
-- By ix3music | Reply | Private Message me