May 8th
2009
3:44 PM
I am on 25 mg of Topamax and on day 5 of it. Very slightly dopey, but this does not disturb me. The stranger symptom is that I do get hungry and then eat and then experience a significant nausea. I had anticipated a loss of appetite or general malaise, but this seems to hit only after I eat. In turn, I have to really moderate what I eat, not because of a lack of interest but what will hit on the other side. So it would seem the opposite of what others are experiencing...anyone else have this symptom?
-- By zoladrum | Reply | Private Message me
March 25th
2009
9:36 PM
My daughter got the gardasil shot ten months ago. She was a normal healthy beautiful active teen before the shot.She had been running about ten miles a day and within none DAYS of getting the shot ( the reaction started sooner) she was in ICU fighting for her life! She has chest pains, shortness of breath, dizziness, headaches, stomach pains, insomnia, hairloss, voice changes, personality changes, auto immune issues, rashes, strange swelling, leg tremors, hand weakness, fatigue general malaise and I could go on and on. This was supposed to be her senior year, but she is so weak and missed so much school, she had to drop out. This has got to stop!
-- By truthaboutgardasil | Reply | Private Message me
October 15th
2008
9:24 PM
Wow. This news gives me so much hope. I've been on the Nuvaring since it was still in the post-trial stages and nobody had even heard of it. My doctor recommended it because it was supposed to help with acne and weight gain, and I'd been having no luck with Yaz or Ortho Tricyclene. I've always had irregular periods, I've been depressive since high school, and I started having migraines when I was 13. Ten years ago, I was diagnosed with fibromyalgia. What this means is that all these symptoms that everyone was describing here, while they have been getting dramatically worse, were nothing I would even think of ascribing to my birth control. I've gained 40 pounds in the last 3 years, but I blamed that on my increased depression and general malaise. I'd stopped having migraines more than once a year, but now I get migraine-like (not usually as bad as the originals) headaches as often as 4-5 times a month. I've had insane mood swings ranging between white hot anger and debilitating depression (even having thoughts of suicide for the first time since high school), and sex burns and leaves me walking funny about 99.9 percent of the time. I thought it was just me, or the fibro (which leaves me feeling pretty sensitive all over); same with the nausea, especially in the morning and always during my period. Could this seriously be the Nuvaring? Oh my god, I hope so. An easy solution like that makes me want to cry from relief.
... but how do I do birth control now? Do we always have to use a condom? I've never been pregnant, so I've been told the IUD isn't nearly as safe if your cervix hasn't been violated by childbirth. Oh well, better than being crazy, I suppose.
-- By symptomsahoy | Reply | Private Message me
September 13th
2008
11:38 AM
I had been on the pill for years until my OB suggested the NR. It sounded like a great idea (no worries about missing pills). I was on it for a week until yesterday when I was on my way to a metro station from work. I suddenly felt faint, nauseous, I was hyperventilating, shaking all over and I could barely walk. I stopped at a local store I tried to drink some water and eat something but the food just sat in my mouth, I couldn't swallow and my throat felt as if it were closing up. All the things that could be wrong with me flew through my mind. Was I having a stroke, a heart attack, was I dehydrated, did I have a brain tumor, do I have diabetes, I am going into a diabetic shock. All I knew was that there was something terribly wrong and whatever it was couldn't be stopped and I was going to die. I had to call a co worker to come pick me and take me to the nurse at my office. It was the most terrifying moment of my life.
Once at the nurses office she determined that I was having a panic attack. She ran off a list of possible causes and one that stood out immediately was that it could be hormonal. I knew then that it was my new birth control (the nuvaring). It was the ONLY thing that had changed. This explains the fatigue, mood swings and the general malaise I've been experiencing over the last week. I thought I was just having a bad week, things that never used to bother me suddenly became unbearable.
I immediately took the ring out and I will NEVER use it again. I have had only one panic attack before this, and that was 3 years ago, but it was mild compared to this one. I was absolutely crippled yesterday. I have never felt so helpless/crazy/terrified/alone in my life. I'm still not 100% today (a little weepy/depressed), but it feels like my body is getting back to normal.
So if any of you start feeling depressed or fatigued shortly after using this product please please please consider using another form of birth control. I don't want anyone to EVER go through an anxiety attack like I did.
-- By berserkernahn | Reply | Private Message me
August 5th
2008
3:29 PM
19 year old daughter had shot in may, experienced severe soreness at the injection site, nausea, fainting, lethargy and irritability. Holly continued to complain of general malaise and achy joints. Holly had her 2nd shot in July and left for College in August. When she visited for Thanksgiving break in November, she experienced her 1st known grand mal seizure. We did not get the 3rd shot of the series. Since then she has had several more seizures and was put on anti-seizure meds which at this time are working well. Holly continues to complain of "brain fog" which was present after the first shot and has yet to resolve. She is still irritable, which makes the situation she is dealing with concerning the seizures and the restrictions that she had, almost impossible to deal with.
-- By jukysarrn | Reply | Private Message me
May 28th
2008
12:15 PM
I took Fosamax 70 mg once weekly for seven months before getting off due to intolerable side effects beginning after four months. The worst problems were vertigo and dizziness, which came on suddenly. I woke up one morning and when I tried to get out of bed, I felt like I was falling. I had to call my husband to assist me to the bathroom. Although these symptoms became less severe, I never regained my equilibrium while on Fosamax and was unable to exercise on the floor due to vertigo when I lay flat. I also experienced heart palpitations,extreme coldness, and general malaise about two hours after taking my weekly dose. I now wonder if I was having atrial fibrillation, another serious side effect of Fosamax. I am so glad I got off it!
I gave my body a month to clear out the drug and then I began taking strontium citrate 680 mg once daily. I feel well again and began a blog to relate my progress at http://strontiumforbones.blogspot.com/. Please visit and comment.
Bonelady
-- By bonelady | Reply | Private Message me
May 13th
2008
12:32 PM
I have been on Levoxyl 125 mcg for about two months after my thyroid was "killed" with the radioactive pill. Ever since I have been on this medication, I have constant headaches and feel sick on my stomach all the time. I had to go to the ER the past week because of the intense vomiting. The doctors tell me it's not related to my thyroid or the medication. How can this be? I didn't feel this bad when I was hyperactive thyroid. My wife has had to take care of our 18 month old all by herself ever since I have been taking this medicine. I feel like I am missing out on my life! This is terrible!!
-- By bry6009 | Reply | (2) replies | Private Message me
May 10th
2008
3:31 PM
I was prescribed generic Macrobida for UTI and developed pain in my legs and hips within a couple of days of starting it, then headache and feeling lousy, next severe constipation, then anxiety and sleeplessness (I was unable to sleep all night one night). The constipation, anxiety and sleeplessness were so severe and so unusual for me that I decided to look online to see if they might be related to the antibiotic since I hadn't changed anything else lately and found that other people have had the same problems and realized that the body aches, general malaise, and headache was probably related as well. My choices of antibiotic therapy are limited due to allergies and bacterial resistance issues so I will try to tough it out but wanted other people to be aware of some of the problems this medication has caused me.
-- By chemnerd | Reply | Private Message me
April 21th
2008
10:45 PM
Just checking in after nearly a year or so, during which I cut my 10 mg Lipitor dose in HALF! I knife the little white pills down the middle and take 5 mg per day. My doctor did not notice any difference and HDL/LDL etc, are still in the range he likes. So, let's see about symptoms. The Plantar's Fasciitis is still there, but much improved, probably because I gave up full court basketball (at age 55). I have a few other symptoms that I recognize from others posting about them, such as occasional muscle ticks, general malaise, and sleep disorders, but, in general, I seem to be tolerating the 5 mg dose better than the 10 mg dose, AND, most importantly, it IS at a therapeutic level. I have not mentioned this to my Dr., and will keep it that way. If he can't tell, then my plan is working, sort of.
I really think Lipitor is poison and will eventually kill anyone who uses it, but am hoping I can cheat the hangman with the 5mg doses. I don't want to go back to cholesterol readings in the 250-plus range, because heart disease is the big killer in my family.
We'll see how 5 mg goes. I'm not suggesting anyone else necessarily should try this, but I was amazed that the numbers on my labs were almost identical as the 10mg.
-- By jbmitch | Reply | Private Message me
December 31th
2007
7:17 PM
I have taken lisinopril for about six weeks. I have severe bladder pain, difficulty urinating, dizziness, anxiety, weakness and general malaise. Today I stopped taking it and I still feel deflated. Hopefully after it wears off I'll be back to normal.
-- By kingfish | Reply | Private Message me
October 16th
2007
12:47 PM
My experience is also not a good one. At the end of June 2007 I was prescribed Cipro XL 500mg for 3 days for a bladder infection, at an immediate care clinic. Over the next two weeks I experienced abdominal inflammation to the point I looked 6 months pregnant. I returned to the same clinic where I was again prescribed Cipro XL but this time 1000mg for 14 days and waited for a urine analysis to come back. As this showed no infection I was told to continue the CIPRO and contact my gynocologist who could find nothing wrong. I was sent for abdominal and pelvic ultrasounds. Both came back clear but I was still in considerable pain and the inflammation had not gone down but was worse. In addition I was constipated constantly, a problem I had never had. From my gynocologist I was sent to my family doctor. Blood work was done as well as a barium enema. Nothing found, everything normal. As at this point, October 3rd I was having constant diarrhea with blood I was sent with a stool culture. Cipro XL has caused me to have a strain of C-difficile. As the diarrhea has stopped my family doctor feels I should not be given medication (not antibiotics) to clear the virus. With lots of fluids, probiotic yogurt, etc it will take time but it will go away. I will just have to put up with the cramping, bloating, head aches and general malaise I have felt since it was prescribed at the end of June. I only hope anyone prescribed CIPRO XL will think twice before taking it and perhaps request a different medication. There are others.
-- By peggyethier | Reply | (1) replies | Private Message me
April 21th
2006
2:55 PM
I'd rather have allergies than take this medication again. Actually, I'm going to appeal for an Rx for Allegra, which gave me no problem.
The side eeks from Singulair I experienced were: clenched teeth, hard time falling asleep, racing thoughts, awful body aches, hard time waking up and a feeling of general malaise.
I'm sure this drug works miracles for some folks, but for me? I'd rather sneeze and drip.
April 2th
2006
10:36 PM
I have been symptomatically ill with Hepatitis C for about 15 years and I was in for a real 'hum dinger' when I took 300 mg of Erythromycin 3 times a day for 3 days. I started getting diarrhea and a general malaise. I stopped taking it and have been eating fresh scallops, potatoes, and tofu. My salad and herb intake has not been up to par and I have to get the fresh veggies back into my diet. But the point is, if you Dosing: Erythromycin may be taken with or without food. Erythromycin is metabolized mainly by the liver and caution should be used in patients with abnormal liver function.
or a loved one has an abnormal liver condition do not take Erythromycin.
-- By byronhb | Reply | Private Message me
October 23th
2005
8:38 PM
I had an allergic reaction to lamisil tablets. After an extreme round of skin rash and sores came the wheezing and coughing from bronchial spasms. The doctor prescribed advair and albuteral. I actually got worse! Muscle pain, coughing jags every morning with green mucus, dry cough and general malaise. I looked for warnings with the advair box and found none. I had to go to the internet to find out that this stuff CAUSES bronchitis. It's been 3 months now. Two months of inhaling that junk and one month off. I'm still coughing up green chunks every morning and cough all through the day. There should have been warnings in the box and the doctor should not have prescribed this stuff for me.
-- By moneebee1 | Reply | Private Message me
October 12th
2005
8:57 AM
After taking Aciphex for several weeks, I began have alot of stomach problems, frequent BM's (6-7 times a day, ) lots of bloating and gas, nauseous, and general malaise. After going to see my MD, she said to stop the Aciphex. Within 3 days, all my symptoms subsided. No problems now since going off the Aciphex. Reflux has come back with a vengence. I will seek other options for dealing with GERD.
-- By daleenasmomma | Reply | Private Message me
October 11th
2005
5:59 AM
I am a Rheumatologist at private practice in PR. I was consulted on a patient who is recently diagnosed as pneumonitis, biopsy report is compatible with pneumonitis and refers it could be hypersensitivity pneumonitis or collagen disease. The patient refers that after she started singulair she noticed swelling of hands and general malaise that dissapeared when she D/C it. This happened by the same time as the pneumonitis. Has pneumonitis been reported with Singulair?
-- By ylopezmd | Reply | Private Message me
June 27th
2005
1:39 PM
I had 1/2 my thyroid removed with a benign golf ball sized tumor 3 months ago. After 1 month, I was put on levoxyl.
I have joint pain, cold and hot flashes, inxomnia sometimes for several days and the rest of the time - extreme fatigue. My period has decreased from 7 days to 2 days. I experience dull headaches that will last for 3 days.
My mood swings range from severe bitch to total calm - nothing can bother me. Depression is followed by mental high.
My vision is changing so much that in the last 4 weeks, the doctor has changed my prescription 3 times because I am trying to get glasses that work for me. Sometimes I have double vision, sometimes I have large blotches in front of my eyes of areas that I cannot see. Sometimes everything is just fuzzy.
I have constant nausea. In the beginning I gained 15 pounds. Now, I have lost 5 pounds. What I eat has absolutely nothing to do with my weight.
I go through periods of extreme thirst.
The levoxyl causes me acid reflux - severe and getting worse.
It causes me to have acne which I do not normally have.
The hair loss is scary.
Loss of memory is acute and mental fog comes and goes. This is difficult to deal with as my job is technical.
At times I sleep for 18 hours - straight. I have had narcoleptic incidents when I have been driving. These are scary because I feel like I am falling asleep at the wheel and by some miracle - bump in the road - etc. I come back awake. I find a place to pull over, get out and walk, go to the bathroom, whatever, get back in my car and instantly fall asleep.
I get home from work and have no energy to do anything. General malaise and feeling like an old, old, old woman. I am only 47 and the doctors excuse so far is that I am in menopause. I say, no way because menopause does not have cold flashes, etc. menopause is not caused by meds!!!
I also have the dry skin and itchy. Oh my god, I itch constantly - all over.
As you can see, I am experiencing all the symptoms of everyone else. For those of you who question whether or not we are taking this medicine on time and according to all the strict rules. The answer is YES. I even take my vitamins now during the evening. The doctor told me not to worry about that stuff so much but I have tried to follow the instructions hoping that it would help and it has not helped at all.
The only symptom that I have that has not been mentioned is that I am constantly flushing red. When I flush red it is not associated with any of the other symptoms. Sometimes I flush red only in my hands and my neck and face. My skin will feel tight. This has happened up to twice a day but is entirely random. Othertimes when I flush red, my whole body will flush like I am severly sunburned and I have experienced intense itching. This lasts for about an hour or two and happens up to 4 times a week. Several times I have turned completely red and had no itching. Once the red flushing with itching happened while I was sleeping and was so intense that I awoke from a deep sleep and had to stay awake for 3 hours until it subsided.
I have just switched doctors myself. I have been told that reactions such as mine are extremely rare. That the doctor has no idea what is happening. The endocrinologist ran one test for Cushings (which came out normal) and then basically said have a happy life. So, I am printing this web page and taking it to my new doctor. I want OFF this levoxyl.
-- By piggywiggy96 | Reply | Private Message me
June 25th
2003
8:51 PM
I am an average, somewhat healthy 46-year-old woman who is presently taking 50 mgs. daily of Toprol XL for a heart condition - triple arrythmias. For months I have been feeling lethargic and just generally feeling ill with soreness in my ears and throat, and a daily bout with congestion in the mornings that usually clears up midday each day. It finally progressed to the point of fever,chills, muscle aches and pains and general malaise, and I was prescribed Levaquin 500 1xdaily for a diagnosis sinusitus. (Although it's been a few years since I've experienced an acute attack, I do have a history of sinus trouble) Additionally, my facial complexion had become terribly ruddy, blotched and broken out from the underlying sinus infection....
Well, let me just say, that, on my 8th day of Levaquin, perhaps I have noticed a few muscle aches and pains and weakness, as most persons on this website have claimed, but then, in my 46 years of life I have only been on antibiotics 5-6 times and each time I become weak and with muscle aches and pains. Similarly, when one is recovering from anesthesia after surgery, one feels achey and weak. Hello, your body is being subjected to a man-made synthetic to assist your body to achieve its original goal. This most recent goal of mine with levaquin was to rid my body of a sinus infection that had developed an abscess in the sinus cavity. Well, let me add that I have not been able to breathe as clearly and deeply for months, as I have since I started this medication. My lethargy has gone away, and while I still feel the overall feeling of being on a strong antibiotic, I feel extremely improved. I have not developed a red rash. (Perhaps staying in bed resting, and not going in the sun has helped. I do live in sunny Florida) In fact, my ruddy facial complexion has totally improved! I have not had ear ringing, or hallucinations, or an outer body experience, or any other side effect that seems to be popular on this site. Additionally, I experienced not one heart palpitation or heart arrythmia. I agree with the good doctor who recommended on this site that we all take a look at our health history and our symptoms prior to taking the medication and don't blame every symptom on the medication. I am not one to rush to a doctor when I'm feeling a little under the weather, but let me tell you, when I need something to rid my body of bacteria and infection, I thank God for medicenes like Levaquin and the good Doctors who care to really listen to your symptoms and prescribe what you may need.
-- By measton | Reply | Private Message me
Levoxyl (2) Singulair (2) NuvaRing (2) Gardasil (2) Topamax (2) Aciphex (1) Lisinopril (1) Fosamax (1) Lipitor (1) Macrobid (1) Advair HFA (1) Erythromycin (1) Levaquin (1) Cipro (1)
September 28th
2009
2:05 PM
I started Topamax over a year ago and titrated up slowly, 25 mg a week until I got to 125 mg a day, split dosing. I was started for migraine prophylaxis. Once it kicked in, it did an amazing job of keeping my headaches away. But, here is something really important: if you are going to have surgery, there are contraindications with Topamax and anesthesia. No one either knew this or told me this and I only found out weeks after I went through a really lousy experience. What I believe happened is that the combination threw my body's pH balance off. I felt like my insides were burning and it was only at that point that I started to experience the severe diarrhea and weight loss, fatigue, and general malaise. It lasted for weeks. All I could figure at the time was that it was just taking me a really long time to recover from my surgery (ovarian cyst removal and unilateral oophorectomy), but that didn't make sense. I felt like I had a horrible flu for weeks. I kept seeing my doctor saying something was wrong with the way I was healing (ie, i had an infection or something). Anyway, this eventually stabilized as I back off the Topamax. I was so weak that I didn't even realize the memory issues or word finding problems, but when I started to feel better physically, I did notice those. That REALLY bugged me. I like to be sharp. So, I tapered off. About 1.5 months later, my headaches started coming back. I decided to try Topamax again feeling that now I understood it much better and could watch it more closely. Maybe this time I could ride out the side effects. Well, this time several months passed at the same dose. My headaches were still there and I had no side effects. We upped the dosage. Still having headaches, but no diarrhea, no weight loss (in fact, weight gain of 15 pounds over the last 9 months since last Topamax round), no real problem with word finding, etc. Up to about 200 mg daily by this time. It has been about 6 months and I have started tapering down and about to give up, down to 150 mg daily right now. NOW, here is something interesting: I just have another surgery, but no anesthesia. It was oral surgery. I did, however, have to take a round of antibiotics. It seems that this round of antibiotics has kicked the cycle into gear because I started having gastric problems, perhaps because of the antibiotics (although in the past, I have not had problems with antibiotics before, ALTHOUGH I did have to take them last year with my in-hospital surgery), I don't know, but I have finished the round of antibiotics and I am still having diarrhea. My appetite is suppressed, and I have lost 5 pounds in this last week. Many people say you cannot lose weight if you stop Topamax and restart it later. That is an interesting. I wonder why that is. Topamax is such a strange drug. Why did it not work for me the second time I took it, or at least for 9 months? Is it just now kicking in with its side effects as the result of upsetting my gastric system? Will it start working now for my headaches, too? I think I will continue to taper off or maybe see if I can prevent headaches on a very low dose. Oh, another interesting thing: I found the first time I took Topamax, it made me feel energized. I found that this time, it made me feel the opposite. I sleep a lot more and feel more sleepy during the day.
-- By florestan | Reply | (1) replies | Private Message me