August 1th
2009
7:41 PM
Please someone help. I've been on prednisone for a year and a half. told I had Adrenal Insufficiency and as I was weaned off complained to my doctor about mood swings and not being able to sleep. Now down to low dose and experiencing free fall feeling in chest,shortness of breath and worst of all rage. Want to break things and just die.My mood swings escalated and they want to up my prednisone and told me to see a psychiatrist! My eye sight has changed this past year for the worse. Need new glasses and if they up it I'll go blind! I want my life back. I use to be the most level headed, peacemaking person and now I don't know who I am. Please someone HELP I need advice how to get out of this vicious cycle.
Thanks in advance
July 15th
2009
8:26 AM
I have used Nasonex for about two years. Last spring, I developed vision problems which I didn't attribute to the Nasonex. In the fall, I was diagnosed with a cataract and glaucoma in my left eye.
I did not have any known risk factors and take very few medicines, so I believe the Nasonex caused the cataract and glaucoma. The first eye doctor never mentioned that the Nasonex could be causing my eye problems so I continued to take it until recently when I discovered it was probably to blame. I am now facing cataract surgery and the new eye doctor I went to told me I have the eye of someone 20 years older.
July 9th
2009
11:51 PM
My mother just died from all of the secondary effects of prednisone. She was diagnosed with glaucoma 4 years ago but no one ever did a sed rate blood test to find out that she had giant cell arthritis. So once they found out, they treated her aggressively with 60 mg of prednisone. She swelled up immediately and had terrible pain in her legs. Then she became diabetic with big sugar swings that couldn't be controlled. Then s he got thrush in her mouth and couldn't eat or drink. Then she became dehydrated. For pain they gave her constipating pain meds and this caused a bowel impaction. She had tremors and then she had mental confusion. Then her skin started splitting everywhere but wouldn't heal. Then she started losing fluids from her skin. Then her bowels got impacted again. Then her colon ruptured and she got sepsis. Her sugar levels went haywire. Her heart wouldn't slow down, her skin tore up worse, she lost more fluids. And finally she got pneumonia and fever. She died in my hands after so much s suffering - it was just ungodly.
I hope she's ok now and happy and having no pain and is in God's loving arms.
I will never forgive this doctor.
Please be careful with this drug. It is so incredibly dangerous.
-- By francinelitz | Reply | Private Message me
June 15th
2009
8:03 PM
My experience was a seven day short-lived trip through hell on Topamax.
I began experiencing a constant headache for several months in February 2009 (no prior history of headaches). I am healthy 32 y/o male. After multiple MRI's and CT scans came back negative I had a very severe headache that sent me to the ER. The ER helped arrange for me to see a Neurologist, who after patient listening to my laundry list of symptoms concluded I was having migraines (even though I had no sensitivity to light, sound, or nausea). I had been doing a decent amount of research on headaches and didn’t agree that they were migraines but decided, he’s the neurologist, I should trust him. Let me also say at this point, I am not a person looking for a pill to cure my problems, but I was getting desperate as my headaches were ruining my life. I was prescribed Topamax.
I was suppose to start with three days at 25mg, then go to three days at 50mg, and finally up to 100mg per day. The first three days were uneventful when I hit 50mg and then 75mg…I was out of my mind. I read these messages and see people at 400mg with no problems…it makes me cringe to think of dosing that high. I stopped at 75mg…here were my side-effects. Tingling in my face, lips, hands, arms, and fingertips, chest pains (I do have GERD and it jacked up my GERD bad!!!), pain in the back of head, taste confusion (soda tasting flat), and pressure in my eyes and temples…But those are NOTHING compared to the complete feeling of anxiety that over took my body. I had a mild nervous breakdown at work, became paranoid to the point where I was afraid to do routine tasks. And the MUSCLE SPASMS…those are the worst part. I have muscle spasms all over my body, just random fluttering of muscles in my chest, arms, back, neck, head, and face! I became suicidal and had the worst night terrors ever, of things, that I wasn’t even afraid of.
I have been off Topamax cold turkey for four days now and the anxiety has significantly subsided. I have worked through a lot of the anxiety with my wife and I now believe that stress is the cause of my headaches, not migraines like I tried to tell the doctor…but the muscle spasms have not stopped (they have decreased) yet…but I can’t wait for the Topamax to leave my body.
I used to think these messages boards were part of the problem, but they are very helpful. Do your research before you put anything into your body…trust yourself and if you disagree with your doctor, get a second opinion. This has been a life changing event for me.
Health and Happiness to all
-- By serpo | Reply | (1) replies | Private Message me
June 5th
2009
1:18 PM
A year ago I was diagnosed with Sarcoidosis and began taking 50mg Prednisone per day. The worst side effects in the beginning were weight gain, moon face, facial hair, hump-back neck, bruising (for example, just by my knees being together while I sleep,) excruciating joint pain and water retention to the point I felt my skin would split open. And poor vision which could have led to glaucoma, but an eye specialist put me on eye drops to reduce the pressure to normal levels. I've felt horrified and embarrassed by the change in my appearance but relieved that my sarcoid was being treated.
I feel confident in my case that Prednisone was the necessary treatment. My pulmonologist, opthamologist and regular doctor all agreed on a course of treatment. But I really advise people to get a second or third opinion before they take it. A friend of mine was prescribed a weeks course of Prednisone for a severe sinus infection. Luckily she didn't have any side effects but I really question if it was necessary. I'd also like to stress that if you're on Prednisone and experience worsening vision, please see an opthamologist who is a glaucoma specialist because it can lead to blindness if not treated.
And lastly, sorry this became a novel! I have been tapering off and I'm down to 20mg. But recently I've noticed my hair is thinning so much. I lose a ton when I brush it and it clogs the drain when I shower. Also my skin is shedding. When I shower and use a loofah sponge like I've always done and I lose layers of skin like a snake. I would really like to know if my hair will start to grow back when I'm finally off the Prednisone or am I going to lose it completely??
May 24th
2009
5:36 PM
I was started on Advair HFA about 35 days ago. A little background about me is that I'm 35 years old, in good physical shape. I'm a competitive cyclists doing road races anywhere from 45-100 miles, I work out 2-4 hours everyday. I've had lifelong chronic asthma, but have fought the disease with my healthy lifestyle. I also play the saxophone.
Since I've been on Advair I've developed a constant sore throat. Been coughing up stuff constantly when I'm out training on my bike. Can't seem to sleep for more than a few hours at a time. The worst side affect has been the leg cramps which are killing my training for up coming races. I have constant leg cramps that force me to get out of bed over and over to work them out. My energy levels have dropped to the point that I can't do even half a workout without being totally wiped out. This is coming from a guy that averages 60miles a day on the bike, the other day I couldn't even do 15 miles and had to stop from the constant cramps and tiredness. This stuff is a nightmare. I've gone back to using nothing but my albuterol inhaler. I'll continue to do lung exercises 4 times a day and completely clean up my diet and basically get this stuff out of my system. Let this be a warning that you can't get something positive without something negative as well.
-- By heathbu | Reply | (4) replies | Private Message me
May 9th
2009
4:33 PM
I started taking prednisone when I was only 12 years old and I was on it for about a year and a half. At the age of 10, I was diagnosed with glaucoma, uveitis and cataracts and for about 10 years now I have had all these illnesses. My experience with prednisone had been HORRIBLE. Within two months alone, I gained 50 pounds, my skin started to get really really thin, I started to develop stretch marks ALL over my body with the only exception of my face and hands. I started to get the chipmuk cheeks to the point that my family was afraid that I was going to literally explode. My liver was damaged. My kidney was damaged. The vertebrates in my spine where being chipped away. There was a point in that year and a half where the doctors told me that there was a 70% chance of me going blind. The bottom line was that PREDNISONE WAS BRINGING NOTHING FOR ME EXCEPT RUIN. On top of that, I was constantly depressed. Kids at school would point at laugh hysterically at me. And if people weren't laughing, they were struck by fear and were trying to figure out what exactly I was. I remember this one instance in my school cafeteria where one girl stood up on the lunch table, pointed at me and screamed SHE'S AN ALIEN!!
I was and still am scarred physically and emotionally. My arms and stomach are really saggy because the skin is soo thin. As I said my entire body is scarred with stretch marks. I can't show the slightest bit of my body to anyone because I am so ashamed, embarrassed and afraid of peoples judgments. I am afraid that no one will ever want to be in a relationship with me.
All I can tell you is that though I stopped using it about six and a half years ago, this dreaded drug has truly ruined my life from the very start of my childhood.
-- By toronto | Reply | (3) replies | Private Message me
May 9th
2009
12:24 AM
I suffer from gout... this was the first time I took Prednisone, and, in terms of foot swelling / pain , it worked well.
However... 20-30 minutes after taking 20mg of prednisone, I experienced eye problems. I began seeing "floaters." I experienced significant eye "pressure?" for 24 hours. 48 hours later the pain went away. It's difficult to explain. I'm not a doctor. My eyes felt "big." "Intra-ocular eye pressure" might be the correct term.
I don't know how to explain it... it really messed with my eyes. Neither my doctor nor my pharmacist could confirm this as a side effect.
Has anyone experienced this? Thank you.
-- By rbrs09 | Reply | (1) replies | Private Message me
April 10th
2009
12:03 PM
I am a 42 year old woman. I started taking Topamax in March of 2008 for severe migraines. The migraines often caused vomiting and for my body to jerk similar to having seizure. I have had migraines for the last 15 years, but prior to starting Topamax I was having migraines almost every day (for about 6 months). My life had come to a stop. I had been through all of the neurological tests, and CT scans, etc. with no results. Topamax has nearly halted my migraines. I have a severe "head-ache" about every 6 weeks now that last 3 days. A huge improvement! However, my doctor had said that I should not be on Topamax long term so I have tried going off of it twice in the last year, each time on the 5th day to be hit with an all consuming migraine. I had come to this website to find out why I should not be on Topamax long-term to discover that many of the other health problems that I have been complaining about in the last year are probably a result of Topamax and the doctor did not ever suggest that was the case. I have TINGLING IN MY HANDS AND LIPS...the doctor thought this might be my thyroid, but that test was normal. I have had REDUCED VISION, the doctor said it is due to age and working on a computer all day. I have had JOINT PAIN which they are treating with an anti-inflammatory and suggested it’s probably the onset of arthritis. I have had WEIGHT LOSS, SHORTNESS OF BREATH, and the PAIN IN THE BACK OF THE HEAD. These are all things that I see others describe as symptoms of Topamax! Wow! I wish my doctor would have told me this so I didn't think there was something else wrong. I WILL NOT STOP TAKING TOPAMAX. Even if taking Topamax meant that my life would be 2 years shorter or something like that, there is no living in that kind of daily pain. But I am grateful to know that the symptoms are normal. Topamax has giving me back my life.
-- By gskinner | Reply | (2) replies | Private Message me
April 8th
2009
1:12 PM
Hey all. I have had asthmatic bronchitis for about 6-7 weeks now and I have never had asthma or bronchitis before. It started off as a normal flu for 3 days with fever. Then when the flu went away, I started having trouble breathing and shortness of breath. It felt like I ran a marathon walking to the bathroom. I never had that before. The doctor told me it was bronchitis. All tests were fine. I was taking azithromycin (took 3 paks of them) and that was the only thing that made me feel normal, but it did not get rid of the infection. Then I was placed on cipro and steroids. Now I'm not on any antibiotics. I'm taking prednisone and just started the advair inhaler. I was having asthma attacks that I never had before. Very scary. Did anyone have asthmatic bronchitis before??? What did you do to get over it and how long??? Please help!!!
-- By elaina7 | Reply | (1) replies | Private Message me
March 17th
2009
1:17 AM
I started taking Topamax for migraines. I had been on the medication (about 25 mg 1x/day) for 7 days. On the 8th day, my doctor told me to double my dose and take 2 - 25 mg pills each day. I did that on the 8th day.
It was Memorial Day, 2006, and I had taken a pill that morning. By about 10am, I was dizzy, had blurred vision, a pounding headache, and slurred speech. When I got home, I went straight to bed thinking I could sleep it off. I woke up about 2 hours later with the most horrible pain you can imagine and was completely blind. I called for my husband, who rushed me to the hospital. I spent 4 days in the hospital completely sedated. I threw up constantly and subsequently lost 14 pounds in those 4 days because I could not keep anything down due to the pain. I saw every kind of doctor and no one knew how to help me or what was wrong.
On the 5th day, the hospital had me see an eye specialist. He took one look into my eyes and ran out of the exam room. He returned shortly and told me that I had acute angle glaucoma and that I was lucky I had come in to see him. He told me that if I had waited, I would have been permanently blind in a matter of a few hours. He had to do laser surgery to blast holes into the backs of my eyes to relieve the pressure that had built up.
He asked me what medication I had been on. I told him Topamax. He did some research and found that glaucoma is one of the side effects of the medication. When I went back 3 weeks later for a follow-up visit, I had started getting my eye sight back. The doctor told me that since I had been in, he had 2 other people with the same diagnosis all brought on by Topamax. He then called the FDA and told them they needed to list that side effect in a more visible place on the drug pamphlet.
-- By hoopmomof3 | Reply | Private Message me
December 28th
2008
4:34 AM
Started taking xalatan 3 month ago. I have very poor sleep and was wondering if xalatan had something to do with it? Also dry eyes, more than before I started taking xalatan. Also my vision is more blurred than before. And my eyesight is diminished some. But I think one should ask the question: "Maybe my psycological situation is also effecting me". If you get glaucoma and start with eyedrops, it could also make you think: "I am really having a problem", and then you start to sleep bad i.e.
-- By jesperchristensen | Reply | Private Message me
November 18th
2008
10:34 PM
So happy to find this site. I never noticed My son never had an eye tick until last month, ironically we started giving him Singular on a daily basis about the same time. My son just turned two and is has also been waking up screaming 3 times every night. Have others reported this same problem...also he is on Pulmicort too, have you read that it is linked to Glaucoma and Cataracts? Do you think that this could be causing the tick? Please HELP! I want a parent's opinion before bringing this up to the doctor...they are so quick to jump to more drugs it makes me sick! Thank you! Any other children with eye "ticks" like really quick consecutive blinks?
-- By nhplaydates | Reply | (7) replies | Private Message me
November 10th
2008
8:07 PM
4 yr. old son on Albuterol and Pulmicort for asthma triggered by allergies and colds. He is off of both during the summer, once he goes on the medication for the allergy season he experiences mood swings, violent tantrums, is confrontational, basically his personality changes. We have tried reducing the dose and cutting out one medication or the other with the same effect, the symptoms persist. We feel we have no choice because of the severe asthma attacks.
-- By asthma111 | Reply | (3) replies | Private Message me
August 24th
2008
3:02 PM
Am in my second month of taking Metoprolol to control atrial fibrillation. Have been increasingly dealing with disturbingly vivid dream, headaches, slight nausea, abdominal discomfort and overall achiness. What is an alternative med to treat atrial fibrillation? I have glaucoma and a cardiac pacemaker for complete heart block. All suggestions welcomed. I'd like to dump the Metroprolol but appreciate that since starting to take it, I've had no problems with fibrillation (which my pacemaker isn't designed to control).
-- By dec9 | Reply | (2) replies | Private Message me
August 11th
2008
12:16 PM
Very bad back pain from the waist up after being on it for three weeks. It took five days to go away after I stopped the Xalatan. I had narrow angle glaucoma which was zapped. It is now two years later and I can see just fine without taking any meds. I would never take it again
-- By barbfreeman | Reply | Private Message me
July 29th
2008
6:11 PM
Thank you so much for your website. I cannot begin to tell you what this drug has done to ruin my life.
I had been on it for over 4 years on a misdiagnoses (Never should have been on it) and was told
“It was no worse than Tylenol.” Ok I thought as I was suffering from a few swollen joints every
now and then but was fine otherwise.
Then one day I was working and someone noticed my face was swelling. I looked in the mirror and
low and behold my face was rubbing my glasses. I asked my doctor and he said “it will go away soon.”
I am very athletic so I continued to run and work out as I slowly went from a 30” waist to a 50” inch waist!!
People at my office thought I was on a food binge like no other. My wife was stunned on how fast this
happened as was my family. Now the problem had gotten much worse. Constant body aches and swollen ankles.
After a year I went from jogging, to walking, to using a cane to using a walker…how sad my family felt
for me and no friends insight. my company then laid me off as I used the walls as a walker and simply could
“perform up to par.”
Next came the extremely high sugar, blood pressure, Glaucoma and I suddenly noticed I was having problems
seeing. Went to the eye doctor and was told I was getting cataracts but it would take a couple of years to form.
90 days later I could not drive and could barely see in both eyes, now I was almost blind.
Now 80lbs overweight almost blind with Glaucoma, high blood pressure, diabetes and cataracts. not to mention severe depression and mood swings that were unbearable, and yes still using a walker from severe muscle pain.
Well the time came where I lost my health insurance and was unemployed. I was out of Prednisone
one day and called my doctor. He said come in for $320.00. I said I didn’t have it and pleaded for them to call
in a 30 day supply, I was told that they “weren’t a charity” and “go to the emergency room” click!! My wonderful
doc was gone. Well I went to the emergency room the next day and was told “they don’t give refills.” I had been
off prednisone for a day and as some people know if you stop that high of dose for that long you may die from
adrenal crisis. So I stood in the emergency room for 12 hours waiting to go into this crisis! Finally a nurse convinced
a doctor to see me for 30 seconds, gave me a refill and a list of welfare clinics and booted me out the door. They
hated my appearance and hated me for no cash.
One day I decided to end this nonsense and tread everything I could from sources I hadn’t read that were very old
regarding what was wrong with me. I went on self imposed diet of 1000 calories a day and lost 60 lbs…yes!!
I stated weaning from the Prednisone and took a ton of supplements I had read about. I got down to 7.5mg every
other day. Yes, suffering tremendous total body aches, severe mood swings, dizziness, severe hunger and
confusion but I plowed though. By the way I don’t recommend this but I couldn’t get a refill for a prescription from anyone
because I ‘had made to much money.” So I turned to the Internet for everything. I bought 500 5mgs for $23.00 screw the doctors I don’t need their prescriptions. I am now totally off for 6 weeks I do have some bad stiffness, muscle aches and mood swings but after 4 years of pure hell I am truly thankful to be off this dangerous drug, it ruined my life.
So I went to a new Doctor finally and my diagnoses was a food allergy and simply had a small stint of bursitis a total mis- diagnoses from my first Doctor! Doctors aren’t gods so take it from me trust yourself first and do your research.
My prayers to all who suffer from this drug. Damn the incompetent doctors who wrongly prescribe it!
Dan
PS Does anyone know how long these severe body aches last after completely stopping. Its been 6 weeks and its just a little better. My doctor told me to fight it out or get back on pred. NO WAY!!
July 29th
2008
6:08 PM
Thank you so much for your website. I cannot begin to tell you what this drug has done to ruin my life.
I had been on it for over 4 years on a misdiagnoses (Never should have been on it) and was told
“It was no worse than Tylenol.” Ok I thought as I was suffering from a few swollen joints every
now and then but was fine otherwise.
Then one day I was working and someone noticed my face was swelling. I looked in the mirror and
low and behold my face was rubbing my glasses. I asked my doctor and he said “it will go away soon.”
I am very athletic so I continued to run and work out as I slowly went from a 30” waist to a 50” inch waist!!
People at my office thought I was on a food binge like no other. My wife was stunned on how fast this
happened as was my family. Now the problem had gotten much worse. Constant body aches and swollen ankles.
After a year I went from jogging, to walking, to using a cane to using a walker…how sad my family felt
for me and no friends insight. my company then laid me off as I used the walls as a walker and simply could
“perform up to par.”
Next came the extremely high sugar, blood pressure, Glaucoma and I suddenly noticed I was having problems
seeing. Went to the eye doctor and was told I was getting cataracts but it would take a couple of years to form.
90 days later I could not drive and could barely see in both eyes, now I was almost blind.
Now 80lbs overweight almost blind with Glaucoma, high blood pressure, diabetes and cataracts. not to mention severe depression and mood swings that were unbearable, and yes still using a walker from severe muscle pain.
Well the time came where I lost my health insurance and was unemployed. I was out of Prednisone
one day and called my doctor. He said come in for $320.00. I said I didn’t have it and pleaded for them to call
in a 30 day supply, I was told that they “weren’t a charity” and “go to the emergency room” click!! My wonderful
doc was gone. Well I went to the emergency room the next day and was told “they don’t give refills.” I had been
off prednisone for a day and as some people know if you stop that high of dose for that long you may die from
adrenal crisis. So I stood in the emergency room for 12 hours waiting to go into this crisis! Finally a nurse convinced
a doctor to see me for 30 seconds, gave me a refill and a list of welfare clinics and booted me out the door. They
hated my appearance and hated me for no cash.
One day I decided to end this nonsense and tread everything I could from sources I hadn’t read that were very old
regarding what was wrong with me. I went on self imposed diet of 1000 calories a day and lost 60 lbs…yes!!
I stated weaning from the Prednisone and took a ton of supplements I had read about. I got down to 7.5mg every
other day. Yes, suffering tremendous total body aches, severe mood swings, dizziness, severe hunger and
confusion but I plowed though. By the way I don’t recommend this but I couldn’t get a refill for a prescription from anyone
because I ‘had made to much money.” So I turned to the Internet for everything. I bought 500 5mgs for $23.00 screw the doctors I don’t need their prescriptions. I am now totally off for 6 weeks I do have some bad stiffness, muscle aches and mood swings but after 4 years of pure hell I am truly thankful to be off this dangerous drug, it ruined my life.
So I went to a new Doctor finally and my diagnoses was a food allergy and simply had a small stint of bursitis a total mis- diagnoses from my first Doctor! Doctors aren’t gods so take it from me trust yourself first and do your research.
My prayers to all who suffer from this drug. Damn the incompetent doctors who wrongly prescribe it!
Dan V
April 25th
2008
9:13 AM
Unfortunately my lawyer told me that they do not want to take our case because of the lack of evidence that Singulair has caused our daughters problems. :(
Does anyone out there have a pending class action lawsuit that We may be able to get in on? I have tons of proof that Singulair has caused our daughters problems and loss of almost 5 years of her elementary school career!
My phone number is *** and my email is ****** if You email me please put "Singulair" in Your subject line so I know it pertains to this posting.
Thank You in advance,
Chuck & Brenda
Jamestown New York
April 1th
2008
11:16 PM
I am so glad that I found this site. I was put on Toprol in January and Just recentky i have panic attacks, chest tightness,tingling and numbing sensations in hands and feet, and i am deperessed. I also have some difficulty breathing. My Dr. told me that I am depressed and these side effects are from depression and not the medication so she gave me Zoloft, which I am not taking. I am not crazy i know that my symptoms are from the meds. i am going to wean myself off and pray i can be "normal" again. This is the worst time of my life and I pray that I can do this.
-- By neecy | Reply | (3) replies | Private Message me
February 19th
2008
4:25 PM
I have been taking Advair 500/50 for about two years ( I am now 60 years old,) to help control my allergy related asthma (that only presented itself when I had to take steroid eye drops for glaucoma.) While I had the hoarseness, dry mouth and occasional mouth sores, they seemed livable compared to uncontrolled asthma.
One morning about a month ago, when I was taking my normal AM puff, I suddenly felt as though a giant sledge hammer banged down on my head - pounding me into the floor - almost losing consciousness. Then, I experienced pounding, racing heart that felt as though it might jump out of my chest. I turned white and gray - my family and I thought I was having a heart attack.
I was terrified to take another puff - thinking it might be my last. Two days went by, when, I decided to experiment by taking a very light puff, barely taking any into my lungs. (I had been further scared by warning about suddenly going off steroids.) My doctor was out of the country and no one wanted the liability of advising me.
One hesitant puff of Advair caused the exact same pounding - heart jumping and racing reaction. I decided right then that I did not need further evidence to "pound into my head" that Advair was now toxic for me.
The odd thing is that my doctor seems to discount my experience by saying I am the only person this has ever happened to (implying there must be something wrong with me!) When I asked about the dangers and appropriate process for suddenly stopping steroids, she pooh-poohed my concern saying there are no side effects from inhalers with steroids. (Several nurses recently told me that was not necessarily true. Who knows what to believe!)
I have stopped Spiriva and Advair and have scheduled an appointment with a doctor and nurse practitioner who use diet, exercise and nutritional supplements to help treat asthma. A friend has gone to them for several years and is now off all asthma medication, has lost about 50 pounds, has improved health and looks 10 years younger! I can only hope this works for me!
I am also writing Advair manufacturer with my experience;copies to FDA. I can only wonder if there are others as 'rare' as me? If so, let it be known. thanks
I
-- By slickrock | Reply | (1) replies | Private Message me
February 3th
2008
7:59 AM
I've been on Topamax about a month now for nerve pain. It really hasn't helped my pain much, but the side effects have been incredible. I've worked up to 150mg and have had side effects from the beginning. Unfortunately, I haven't lost weight, which I need to do and the Doctor said it was probably because I don't drink sodas.
Here are the side effects I've had:
memory loss, "can't find the right word", confusion, difficulty breathing, eyes burning when looking at computer and tv, trouble reading & spelling, slower movements, dry mouth and ears vibrating.
I forgot to fill my prescription and it's a Sunday morning, so I am cutting my dosage in half. I hope decreasing so rapidly doesn't cause any kind of reaction and I will have to see how I feel as to whether or not I continue at the lower dose. I probably will. My husband does not like me on this drug. It makes me quite stupid and slow, and it doesn't even help my pain.
The eye pain is what worries me the most. My Doctor warned me about glaucoma. I don't want to take a chance and over the last week or so my eyes have started hurting more and more.
Good luck to everyone.
-- By elisheva | Reply | Private Message me
February 1th
2008
2:19 PM
I was prescribed Topamax with Wellbutrin in combination by a Psychiatrist to aid with an eating disorder. He told me how this was an "off-label" use of the drug and warned me about side effects like the tingling hands and feet, but assured me that drinking plenty of water and making sure that I get enough Potassium in my diet would be enough. He never once mentioned anything about my eyes.
When I picked up the medication, the Pharmacist went over the information and asked if I had questions. He did not once say anything about my eyes, vision, or glaucoma.
I started with 25mg on Dec 18, 2007 and went up to 50mg on Jan 9th, 2008. On Jan 26th, anytime I would stand up from a sitting position, I would get an intense pressure in my head, ears, and a very forceful pressure behind my eyes, and also rainbow circles popping up in my vision when I moved my eyes around. If I stood still and waited anywhere from 30seconds to 2minutes, the pressure would go away and I could function just fine until the next time I sat for more than 10-15minutes.
I called my Psychiatrist and he recommended that I drink more fluids and take a multi-vitamin. No mention of glaucoma.
The next day (yesterday), the same "head rush" was happening only it lasted longer and felt like a mini-migraine. I started looking online and WOW, there is info everywhere about the side effects.
I did not take the Topamax last night and this afternoon I have an appointment to see my eye doctor. I will also be looking for a new Psychiatrist. The way doctors are bribed to push meds is frightening.
The drug combo he prescribed really did help the way he said it would, but I would never have risked my eyesight!!!!!
January 27th
2008
1:09 PM
I was on Topamax for 10 days with a few minor side effects but nothing serious enough to quit it. My husband and I went to the library about 6pm. I am 46 and never wore corrective lenses but was noticing that the shelves farther away were blurry, I didn't worry too much since I had been having ongoing thyroid problems and figured my eyes were swelling (though that normally happened only in the mornings). By the time we got home and were sitting down to dinner I noticed that when standing in the kitchen the people in the other room were completely blurry. By 11 pm I could only see clearly within 18 inches of my face.
I awoke at 2 am with a severe headache and almost complete blurriness, I had to hold the pill bottle very close to my eye to be sure it was correct and even then could not be sure. My husband gave me the meds and I went back to sleep. I didn't wake up until 1pm!!! When I awoke all light was painfully bright and I could see NOTHING clearly! I was rushed to the hospital and was diagnosed with acute angle-closure glaucoma caused by TOPAMAX!!!
Thankfully the docs were able to reverse the symptoms but said one more day I would have been permanently blind. My eyesight has never returned fully, though I can function just fine and do not feel depressed about it.
Please, be very careful on Topamax. The stuff is dangerous to many people though a life-saver for so many others. Also, may I suggest to those with the tingling that you get your calcium levels checked as this is a classic symptom of low calcium. I just wonder how Topamax affects the other body systems, such as the adrenal and parathyroids.
-- By fibro_fog | Reply | (1) replies | Private Message me
PredniSONE (15) Topamax (11) Advair HFA (4) Singulair (4) Xalatan (2) Pravachol (2) Toprol-XL (2) Atrovent (2) Sinemet (1) Lamictal (1) Cymbalta (1) Zocor (1) Albuterol (1) Nasonex (1) GoLYTELY (1) Eucerin (1) Diamox (1) Warfarin Sodium (1) Mucinex DM (1) Naphazoline Ophthalmic (1)
September 24th
2009
7:02 PM
I have been taking prednisone for three years now and I love it. When I am off of it I cannot breath and I get fluid in my lungs and my arthritis comes back and I ache all over. I could not live without it. The only side effects I have is a little weight gain, sweating, and moon face but the side effects are better than the all over acheing and not being able to breath. This drug has been very good to me.
-- By foxylady628 | Reply | (2) replies | Private Message me