Gluten free diet symptoms and conditions

PRAISE GOD for all of the stories shared on this site. And I've only read page one. My husband called me back today to say that he "googled" Singulair and found some interesting things (to say the least). While we were on the phone, my three-year-old was in the throes of another meltdown, kicking me, hitting me, throwing whatever he could get his hands on. My older two boys, 8 and 12, were ordered, once again, to lock themselves in their rooms to avoid being hurt by him. He will throw stuff, bite, hit, kick, and, at times, spit on us. This disturbing behavior is rather constant lately. He is like a mad man. Very scary.

Caleb has been on Singulair since about age 1, when he was diagnosed with chronic sinusitis and allergic rhinitis. Unfortunately, we initially equated his rages with the onset of "terrible two's" and dismissed his behavior to a chorus of "oh, he's just a boy!" My husband felt, at times, that I was just not disciplining him properly. I intuitively knew, having raised two other boys, that this behavior was abnormal, even for severe tantrums. We received a variety of suggestions from his pediatrician, caregivers, and grandparents, all to no avail. We have several calm days but things always deteriorate back to insanity. He is VERY unpredictable.

Last Thanksgiving, Caleb (age 3) was kicked out of his daycare setting for biting and hitting. Once I witnessed him run as fast as he could into a group of playing children, falling on them, kicking them. He would walk up to sweet little girls half his size and push them down as hard as he could. It was a nightmare. My husband had to take 3 weeks of leave to stay home with him while we prayed and searched for new care. We had him evaluated and he was staffed into the "developmentally delayed" program in our school district (for poor adaptive skills and personal/social behaviors). We recently had his tonsils removed, hoping that some of the sinusitis symptoms and behaviors would improve. They really haven't. This past week we have been looking into the Feingold diet. We have been PRAYING for answers. The last time we spoke with his developmental neurologist, he recommended a trial of Risperdol (sp?). We feel like more meds would be like a band-aid, not a solution. But his rage is becoming unbearable.

So, that brings us to today. I was so moved by your accounts. Unlike so many of you, we don't have much of a "before" to go by. But his "after" sounds VERY much like what you have all described. It's probably the pure rage that I see on his face that is the scariest part. And at the same time he seems desperate and vulnerable. He truly seems to snap. If we had pool chairs, I can just picture him throwing them (citing another post :).

We are going to throw the Singulair away. He will never, ever have it again. Even if this isn't the cause of his problems, I certainly don't want to exacerbate any behaviors with this toxic medicine. I will post again just to let anyone who's interested know if this changes his behavior. I am praying that my entry will help someone else, just as all the other postings have helped me. I have renewed hope.

I have copied many of your comments to a Word document. I will be sharing it with a high ranking officer at the medical clinic/hospital on Keesler Air Force Base. I hope that he will discuss this with his staff and that perhaps we can at least make a difference here. I, too, will be filing a report with the FDA. I can only pray that this medicine has not permanently altered his developing brain.

I suggest to anyone that has Hashimoto's Thyroiditis (type of Hypothyroidism) to have a blood test done for Celiac Disease. There has been research done linking Celiac Disease and Hashimoto's Thyroiditis. Celiac Disease can be controlled by a gluten-free diet (wheat, rye, and barley free). In the US, not many doctors recognize/know of this link. I have been hypothyroid for 20 years (had Hodgkin's Disease (cancer) - radiation/chemo at age 16) I have 2 sisters with Hashimoto's Thyroiditis and were iron and B12 deficient. I was diagnosed with Hashimoto's Thyroiditis 3 months ago with iron and B12 deficiency. I have been on a gluten-free diet for 2 months now. My dosage of synthroid (levothyroxine) was 175 mcg and now is down to 137 mcg. I hope that I am one of the lucky ones that will have their antibodies to their thyroid normalized (no more synthroid!) I have a couple of days left before my next blood test and I hope that it goes down more. I am feeling better now than I have in a very long time. I have attached a link for those of you interested. It is an endocrine article from Finland outling the link between Celiac Disease and Hashimoto's Thyroiditis (among other things). I hope that this helps some of you. http://edrv.endojournals.org/cgi/content/full/23/4/464

I am very skeptical of all of the claims I have read here. I am no advocate of GSK or any other drug company for that matter, but I think people are getting carried away with attributing their symptoms to Advair. The known side-effects are readily available, anything else is purely based on assumption. I agree that Advair may in fact have many more possible adverse effects than they let the public know, but let us be careful about making ourselves little scientific researchers and concluding a causal relationship based upon a single case study (and an informal one at that). Talk to your doctor about trying something with less risk, such as Singulair, Azmacort, Intall, Fluticasone Propionate, etc. Please though, be careful not to be so quick to claim generalizable findings based on your specific case. I myself am going to work with my physician to attempt a gluten-free diet and a less invasive medication therapy. Advair is not habit-forming or addictive, so withdrawals are doubtful at best. Read up on the pharmacology of Advair (salmeterol in particular), and you can come to your own conclusions. Best wishes to all of you fellow asthmatics!

I started lamictal about 4-5 years ago,50 mgs three times a day, I was always tired,depressed, and found it to be very hard to do anything at all. I started to gain alot of weight and had diarrhea.Went to see the Dr..I was told I had hep-A for two years.I asked my doc to send me to a specialist to make sure I did'nt have cancer of the liver, the specialist told me I had celiac disease.So I went on the gluten free diet for almost another two yrs. My psychiatrist then decreased my clonazapan and put me on another 75 mgs a day of lamictal. I broke out in such a rash I went to the hospital 2 days in a row, they did'nt know what was wrong. I went for my next appt. to see my shrink,i told her about my problems, she said "I told you if you break out in a rash stop taking the drug" she(or I don't remember) never told me that! I have been lamictal free for about two months now. I now have a whole new set of Dr.s ,they can't find any signs of either hep-a or celiac. I have so much energy now,my head is clear and feel almost normal again! Still working on the weight, slowly but surely it' Is going down. I was always a size 1 at 105 lbs,and went up to 140. I am 50 years old and it is much harder to lose the weight . has anyone else had any of these symptoms? Please let me know. Thanks!