Going tomorrow symptoms and conditions

In the past five years I've gone through two six month Lupron treatments. The first Lupron treatment was given without a Laparoscopy. After being told for ten years that I was one of the unlucky few who have "bad periods", I finally found a doctor who would listen. She diagnosed Endometriosis after I listed my symptoms and put me on a Lupron treatment plan. I had one one-month injection and two three-month injections. Most of my side effects were tolerable; weight loss (almost sixty pounds but I was over weight to begin with), hot flashes, night sweats and memory loss. However, I experienced horrible back and hip pain...to the point of following up with a pain management doctor who insisted there was no reason for me to be in pain.

About four years later I found a really great doctor who performed a laparoscopy to diagnose my endo. She removed fibroid tissue from both ovaries and my colon. My next period was just a horrible so she suggested we follow up with another Lupron cycle. I expressed my concerns with the pain I experienced the first time and she suggested I have add-back therapy. She prescribed a regimen of Estradiol and Norethindrone along with six monthly Lupron injections. The side effects were worse this time around. My depression kicked into overdrive, I was constantly struggling to keep my anger in check, I would wake up dripping from night sweats, hot flashes were bad, blurred vision, memory loss, insomnia and the pain in my back and hips was excruciating. She prescribed Celebrex for my back and hip pain, which didn't help too much. I have a three year old son and had to use a wheel chair when we went to the museum because being on my feet for more than fifteen minutes was impossible.

I've now been off the Lupron for about six months and I have yet to regain any sort of short term memory. My vision is much worse than before I started the second cycle and has yet to reverse. My depression is still bad, as well as anxiety and irritability. However, as soon as the last month of Lupron started to wear off, my back pain did dissipate. I'm still having trouble sleeping but have found solace in Ambien...which could be a bad thing. I don't want to depend on chemicals to help me sleep at night. I just had my yearly exam with my doctor and she apologized for all the pain I experienced. She told me that in all the years she's given Lupron treatments, she had never seen a patient in as much pain as I was in. I don't think I'll be undergoing the Lupron treatments again in the future. I'm currently starting Yaz as a way to keep my periods at bay and only have three or four a year. I'm not real sure if that's a good thing either but we'll see. I have sympathy for all the other Lupron patients out there who experience the bad side of the drug. I don't understand how a medication such as this, which has such drastic side effects, can be marketed to people who are already suffering from pain in the first place.

I am soooooooo glad to have found this site. I, like many, many of you, also thought there was no way in the world all my symptoms were being caused by the Mirena IUD, because all of my doctors have told me time and time again that the level of hormones being released by this thing is SOOOOOOOO tiny that it couldn't possibly be causing all that's happening. I had the Mirena inserted in February 2007... by August of 2007 I started experiencing hives all over my body that began as a burning/tingling in my hands and feet, and within a matter of a few weeks had spread to my entire body. I now have had this on-going rash (hives) that never has fully gone away for the past 9 months. My doctors all could not tell me at all what was causing it. I have been taking antihistamines like crazy to keep it "in check" but some days even those do no good. My grandma and mother kept telling me to get this IUD out, but I told them it couldn't possibly be from it due to what the doctors had told me and because I'd had it in since February and didn't get hives until August. However, I truly believe this MUST be the cause, as it's the only new thing in my life during that time period... I've always used the same soaps, ate the same foods, and NEVER have I had any outdoor allergies. It MUST be the Mirena. In addition to the hives, I CANNOT LOSE WEIGHT, have stayed at 174 pounds since having this inserted. I have tried exercise, dieting, etc. and notice NO changes. Due to the ongoing hives my body is going through a constant fight against this allergy, and as a result, my neck has a giant cluster of enlarged lymph nodes that will NOT go down in size. Probably because my body never gets rid of this foreign body so it's continually tried fighting it and just can't so they stay swollen. I had my lymph nodes biopsied and I do NOT have cancer... I am going tomorrow morning to have it removed immediately and I will be absolutely STUNNED if it turns out to not be the cause. I am THAT certain the Mirena has caused all of this. I would NOT recommend this IUD to ANYONE. It is absolutely the worst thing I've EVER experienced in my life. I plan to get in contact with the attorney mentioned in an older post below about the class-action lawsuit. I have spent 9 months of living in pure misery with burning, itching, red and swollen hives all over my body, living in total anxiety not wanting to leave my house and have others see me and think I have a disease. Not to mention all the time and medical costs that I have incurred from seeing doctor after doctor that can't diagnose me.