September 24th
2009
10:00 AM
One week into taking the meds . I did feel anxiety and nervousness. I have never felt those feeling until I have taken that medicine. i also had diarrhea.I started feeling a sensation above my knee where is would start tingling and it would go numb and then start burning after standing for like 10 mins .I have never had any problems with my legs. Then the second week into in the middle of my thigh started a burning sensation. The third week it just kept getting worse . I went back to my doc and told him he said it was my weight and me walking. So Sept 11,09 I stop taking it. I have been off it for like a 7days . the burning has gone down to a soreness in my right leg but my right foot is very sensitive. It very annoying. I do not what it did to me . It has been the worse 1 month experience in my life. I have lost 25 pounds which is great eating right and walking.If it was not for this website and my mother in law I would of kept taking it. Like a dummy. I am looking for a good doctor in
-- By jzapata23 | Reply | Private Message me
August 11th
2009
2:33 PM
I was 23 (the recommended age range is anything past your teens) and took Accutane for 6 months. I was closely monitored by a good doctor and had no ill effects. I did have painfully dry lips (used Aquaphor, as many here did) and dry skin. I had to drink lots of water, but I do that anyway. My results were amazing, after 6 years on another antibiotic with a doctor who refused to prescribe Accutane. As long as you have a good doctor and loving family and friends who will watch out for any emotional side effects, don't be afraid to take Accutane if nothing else is working for you. Acne does NOT "just go away" for many people. I suffered from age 12 to 23, getting worse every year. I am 28 now and still have clear skin.
-- By whoisthisperson | Reply | Private Message me
July 29th
2009
12:44 AM
My boyfriend was prescribed sulfameth (10 days/ 2x) for these bumps that appeared on his arms and legs and would appear anywhere that he would scratch. Within 5 minutes of taking the first dosage in the evening, his eyesight became blurry. He had a severe headache that night, chills and a high fever that lasted through the night. He took 2 ibuprofen pills but they didn't help. He couldn't get to sleep the entire night. He also became even more itchy than before he took the sulfameth. He couldn't move due to muscle pain and fatigue. His fever was still there by the time i got there at 7 in the morning and he was shaking uncontrollably. His heart rate was up. It looked to me that more bumps appeared on his body and some became a dark purple blotch, like a bruise. His fever broke around noon and stayed away for a couple of hours but it returned. His skin started to peel after his fever returned. At first i noticed it was on his nose and ear but i didn't think much of it since i didn't see it anywhere else. An hour later he texted me and said his whole body started peeling as if he had sun burn. His temperature is still slightly raised after over 24 hours.
I refused to give him the second dosage of sulfameth that morning and proceeded to call the doctor who had prescribed it. All she said was that he needed to come back in. No way in hell was i bringing him back there. She didn't even look at him for literally a minute and prescribed this crap. She said nothing of the side effects. There was no warning. Even though i looked it up before he took it, I didn't think it would be this bad.
June 26th
2009
10:49 AM
I truly think my rheumatoid arthritis was the result of taking lipitor. Didn't have any symptoms before taking Lipitor but while on it woke up one day and could barely walk. Doctor immediately took me off of it and I saw significant improvement but still have the disease and its painful effects
-- By eileenpatrice | Reply | (5) replies | Private Message me
March 23th
2009
12:09 PM
I've been taking Niaspan for about six weeks now; I started out at 500mg for the first three and I'm now on week three of 1000mg. I hadn't had any side effects and I was thrilled because I can't take statins (though I do take Lovaza with success). My doctor mentioned -- but did not stress -- the "take an aspirin ahead of time" or "eat something with it) thing, so I haven't been. Three nights ago I work up from a very weird dream about my house being on fire and couldn't go back to sleep, partly because I felt hot. I got up and looked in the mirror, and as others have described, I was beet red on my neck, chest, and arms, and very itchy and hot. The "rash" was mottled at the edges. It reminded me of sun poisoning. I wasn't sure what to do; it was 5 am and I knew my partner had a bad night with sleeping already, so I didn't want to wake her. I took a Benadryl. I was wide awake, so I got onto the computer to do some stuff (never thinking I should research the damn thing!), but about 20 minutes later, I felt itchy on my stomach. I went into the bathroom and looked again. My stomach and lower back were now getting it! Interesting. I went back to what I was doing, then about 10 minutes later, my stomach was hot, so I looked again. Now my stomach and all of my back were covered, and I noticed that my neck wasn't as red. Hmmmm... 20 minutes later I looked again, and now my neck and chest were pretty clear (but still itchy) and my butt and upper thighs were getting it (stomach and back still had it). I could actually feel it breaking out on my legs! 20 minutes later, my stomach and back were clear, and my legs were covered. about a half hour later, it was completely gone. I wracked by brain trying to figure out if it was something I ate, a new detergent, a drug interaction gone wrong, but I could think of nothing. I never associated it with the "flush" my doctor told me I could get. This was so much more than a flush. The next night I was so tired that I took a half an Ambien and slept through with no problems (and remember, I had no issues before this, at least that I could remember). I thought it was a fluke. I then spoke to my father yesterday about The Rash, and he asked if it could the the Niaspan, as he had taken it before (but the flushing had been too much and he stopped). I did some research and through that I found this page. Bingo! I had already taken the Niaspan, so I couldn't try the aspirin first. Last night, I woke up at 3 feeling hot and looked, and sure enough, it was starting on my face and neck. I took a Benadryl and went back to bed. I finally fell back to sleep. I'm still a little itchy, though nothing unbearable. Tonight I will try the aspirin a half hour before and eating something non-fatty with the Niaspan. I'll give it a week to help, then I'll call my doctor. I hate to give it up if it works because I am just about out of other options to lower my cholesterol.
-- By zummol | Reply | (2) replies | Private Message me
March 11th
2009
12:03 AM
My doctor is a good doctor she is a great listener. Medicine is a hit and miss process for one to undergo. Singular worked great to keep the asthma at bay. Yet, there was a down fall that my doctor did not expect. I was having major mood swings. Such as anger, sadness, depression. Once I added Singular, it didn't come until the second month. I know myself quite well I am funny and very loving. This change came like a thief in the night. I woke up one day not standing the sound of my family voices and felt angry. I was crying and feeling sad to the point I was just waiting for the next mood to come. I do know the difference us women have with moods. This was a different degree of a mood swing. I been threw ups and downs so life was not the problem. I notice this change and immediately told my doctor. But, also I was on my rescue inhaler and a steroid inhaler. I believe it became like a combine cocktail of drugs. This combination cause me to feel this way. I got off the steroid that I was taking and Singular. I notice in just two days I am more patient, happy and so is my family. My doctor has me on new meds now and hopefully this well work. Please, as soon as you feel different don't wait seek your doctor's advice immediately. Good luck to all who suffer from Asthma. May there be a cure one day. Thank You, S.
-- By mustangsally | Reply | Private Message me
February 17th
2009
4:09 PM
I got the Mirena on 2/2/09 and had it promptly taken out on 2/13/09. This evil device made me feel emotions from rage, anger and depression to out right panic attacks where it felt like the walls were closing in on me and I couldn't breathe. I had major bleeding from the moment it was put in, but thankfully no cramps. I was very tired and had motion sickness while driving. I felt very hungry all the time.
I didn't even attribute ANY of these symptoms to the Mirena (except the bleeding) until I was packing my bags to leave my husband in a moment of pure rage followed by a panic attack. My husband calmed me down and wanted to know WHAT was going on, because I've NEVER acted that way before. Also, I've NEVER had a panic attack before. The only thing he could think of was the it was the Mirena because that was the only new thing in my life.
So, we googled the side effects of Mirena and found that many women experienced rage, depression, thoughts of suicide, and panic attacks as well as fatigue and motion sickness. So, I made an appointment to get it out. My OB didn't want to take it out. She said I hadn't had it in long enough to give it a fair chance. But I told her that my husband wouldn't let me go home until it was OUT! She did take it out, but all the while she was looking at me as if I were INSANE. She said there is no medical way that Mirena could have caused any of what I described (except the bleeding). She said that scientifically it is IMPOSSIBLE because it only has a low progesterone dose. She tested my thyroid instead (which came back just fine). She seriously did not believe me. I told her that I had googled the side effects of Mirena and she simply told me, "You can find anything on google to support your claims if you try, but it doesn't make it true."
Since I've gotten it out I have felt like myself again. No more rage or moody panic attacks. I am still bleeding, and although it was heavier than I'd ever experienced before, it is FINALLY going away.
I am so glad I found this site because now I know I'm NOT crazy!
-- By tmw1979 | Reply | (2) replies | Private Message me
January 27th
2009
10:14 AM
I was prescribed this medicine after having a cold/flu like symptom.Just to show you how powerful this medicine is all I took was my first dose (2 a day) and for the next 7days I have never been the same.I had to go to the ER 3 times, I vomited several times and passed out on one occasion, my blood pressure dropped, was given IV, could not sleep for several days thought I was going insane, did not feel safe by myself, sudden weakness, constant cold feet, diarrhea.Blood work showed nothing but I was given anti-anxiety medication to calm me down and make me sleep.Please take my advise NEVER EVER TAKE THIS MEDICATION IT SHOULD BE BANNED a good doctor should not prescribe this medicine
-- By checkfirst | Reply | Private Message me
December 21th
2008
9:11 AM
My eighty year old wife wa given ten Avelox tabs and told to take them one each day for her lung infection.
She has taken them five days along with a cough syrup which contains codeine.
The result is that she has been sleeping about eighteen out of every twenty=four hours.
After finding this site, I stopped her from taking ant more of them.
October 22th
2008
11:34 AM
My dad is 73 years old and has been in the hospital, rehab, nursing care, back to hospital, currently back in rehab since August 3, 2008. He was on Flomax which he was taken off of the first week in August after arriving to the hospital with low blood pressure and leg weakness to the point of being unable to walk. He had been taking it for years so doctors did not think Flomax the cause. However, once they ret'd him on Flomax he was unable to hold his head up when sitting in wheel chair (drooling) and very unresponsive. He also vomited and just stared at it, unable to respond to try to clean himself up. They took him off Flomax with some improvement. (He could hold his head up and respond.) His weakness declined to the point that he can no longer pee/poop without a diaper, can't swallow, can't speak (due to weakened vocal chords), and has no energy. He has a feeding tube. To date, they have not been able to pin point what dad's problem is. I noticed that on October 10, 2008, they returned him to Flomax. He again is sitting in wheelchair with head hanging down. No energy to do rehab. I have requested they take him off Flomax and LEAVE him off. I don't trust this drug. I think his long-term use of this drug could be what's killing my him.
-- By donnaraleigh | Reply | (2) replies | Private Message me
October 20th
2008
4:58 PM
Hello . . . why do we continue to take medications that cause us such physical and mental anguish . . . we hope for a life . . . I am one of those who takes a cocktail containing . . . Lithium, Lamictal, Cymbalta, Sequel, Topamax and other medications for high blood pressure, low thyroid and osteoporosis . . . down four medications . . . because I have a good doctor . . . it is impossible to distinguish which one or the synergism of the medications . . . which do what . . . what I want to say . . . there are more medications now . . . more doctors . . . change doctors . . . change medications . . . you might not feel great . . . but you will feel better about taking control . . . it has happened to me . . . M.
-- By dmnoldan | Reply | Private Message me
September 30th
2008
6:45 PM
October I received my mirena in 2006, if I had known then what I know
1st now I would never have gotten it. My husband and I share 3
2008 beautiful children, 2 being twins, since the risk of having another
8.30am set of twins was high, and his refusal of a vasectomy, my
doctor assured me this was the best thing for me. During the
2 years that my mirena was in I gained 20 kilos and continued
to gain blowing me up to 130 kilos. I have always been chubby
but no efforts to lose weight would work. I suffered depression
and the same doctor started me on medication for that,
still saying nothing about my mirena as the possible cause for
my problems. I was suffering excessive sweating, and not the
nice smelling kind, terrible tiredness and fatigue, aches and
pains, pelvic pain and complete loss of periods. It was only
when I went to my doctor a few months ago and demanded
that the mirena be removed, that I have started to improve. No
more sweats, I am still on my depression medication and am in
the process of weening off it. I have started to lose some weight
but unfortunately have now been blessed with liver disease. If
it's not one thing it's another. I have been researching to see if
mirena has contributed to my liver problem as I did not have it
before the mirena was inserted ????????? My experience has
not been a happy one, but losing trust in who I thought was a
good doctor really sucks. Don't take what they say as truth!!!!
Now I have to convince my husband to have a vasectomy and
so far he is proving quite difficult!!!!!
August 14th
2008
3:15 PM
I have now tapered to 10mg prednisone every other day and will end 75mg Cytoxan Aug 19th. Just went to the Dr. and she said protein is back in urine (bad) but also rising in blood. (good) I can continue to taper prednisone but will have to have another 24 hr urine speciman to determine wether I have to go on cyclosporine. Was originally diagnosed with Minimal Change Disease, but now she thinks it could be another kidney disease. Has anyone had successful tapering with the addition of cyclosporine? Does the urine protein ever get higher? What about side effects of cyclosporine.
-- By looboo | Reply | (1) replies | Private Message me
June 30th
2008
11:16 PM
The arthritis/crohn’s disease drug Remicade, manufactured by Centocor is a deadly drug and should be taken off the market. The drug has caused death and permanent damage to patients across the world. The drug company makes billions of dollars and downplays the side effects including the increased risk of lymphoma and blood problems. The company downplays infusion-related reactions saying that those reactions usually occur within 1-2 hours post infusion. Here’s the truth:
*Centocor has been reprimanded by the FDA for publishing false claims in its marketing literature given to physicians. See FDA website for official document.
*The literature lists syncope (drop in blood pressure), bradycardia (slowed heartrate), pancytopenia (dangerous drop in blood cells..platelets, whit blood cells, red blood cells etc, increased risk of lymphoma, serum sickness. The literature says to call MD if you are “pale”.
*Here is a case of what happened to a woman in her 30’s with rheumatoid arthritis after only the 2nd infusion. She was not on methotrexate at all so this is all Remicade’s fault. Approximately 2-3 days after the 2nd infusion the patient began to feel tired and sore but still worked an 8 hour shift that day. By 12 midnight the patient’s entire body flared up…every joint was literally swollen and she was vomiting violently.. She could barely get to a phone to call for help. Her blood pressure dropped to 50/40 and all of her blood counts plummeted. Her Sedimentation Rate (which measures inflammation had always been below 2 and it spiked to 29!!!) Remicade caused the opposite of what it was supposed to do. It also increased greatly her C-Reactive Protein which is also a measurement of inflammation and can cause cardiac inflammatory processes as well increasing the risk of cardiac damage. The nurse in the triage area told the patient that if she had not called for help SHE WOULD HAVE DIED !!! She ended up in the hospital for 5 days in an isolation room. She was in excruciating pain and had to be given Oxycontin every 12 hours and Dilaudid IV every 2 hours to control the pain. For the first 2-3 days she could not even walk or go to the bathroom without assistance. She was given high doses of prednisone to decrease the inflammatory process and get her pain under control. A hematologist performed a bone marrow biopsy which revealed an abnormal population of plasma cells that can develop into myeloma or lymphoma. The hematologist said that the patient would have to be monitored lifelong to watch the pre-cancerous cells. The patient was out of work for 3 months and was forced to change jobs because of her fatigue level and short term memory problems. She also suffered post-traumatic stress due to her near-death experience and total upheaval in her life. She is a healthcare professional. Even 4 years after the reaction her blood counts are still abnormal and she has still had short term memory problems and vision problems.
-- By lopi13 | Reply | (3) replies | Private Message me
June 29th
2008
4:42 PM
I got all those problems but the higher the dosage the more attacks i had.Another neurologist think that i just have pseudoseizures-paranoia attacks.Anyways the doctor screwed me up,he gave me 5 years ago something different and my seizures started daily than switched me to lamictal.I must say that sometimes i have or HAD electricity in my left hand all the time and once a women touched me and got stunned lol.anyways lamictal is bad,i didn't have any side effects like loosing hair but i did have A LOT of head hecks.I must share something with you,when i read epilepsy.com it seems that my seizures called myclonics in the end they are not but they similar in effects.Myclonics its seizures that happens only in the morning.Heres the catch for me,i figured out that if i won't close my eyes the first hour after i got up and went to the sun outside than i didn't have seizures.Its not a real solution so i decided to raise the lamictal from 175 which was ok for me to 200-250 like the good doctor said,just made me worse.Now i started dropping it by 25 mill each week and i must say i feel better only a little tired after 5 years that my body got used to it.Anyway if any of you have myclonics than don't close your eyes.BTW i have AURA-feeling before the seizure but luckily for me after a second if i open my eyes nothing will happen although i don't always take notice of it.In midway it would happen if i seat in front of computer and will lose attention if someone will call me or whatever but its a mill-sec seizure,barely noticible if at all and i never get "disconnected" from reality!!!
the ONLY thing which is bad for me is that except that im sick now my blood pressure is huge-140/82 and pulse 106 which is being like that for couple of days but i will get trough that.Since i lowered my dosage my midway seizures stopped,now im on 100.
P.S=Check yourself with the neurologist with a different one preheps.IF you can describe the whole seizure it means you don't dispatch from earth which mean it might be psydo seizures which are psychotic and not epileptic,the most important thing is that if someone takes lamictal or any anti apileptic drug even tho he doesn't have real seizures the medicine can do this.I got screwed and now i try to get over it,the doctor trowed me on woods with tablets after having a first seizure WHICH IS WRONG because you sepused to get tablets only after 3 attacks and after describing seizures and doing eeg tests to make sure that you DO have the problem.
Anyways remember what i said about the closing eyes in the morning part,if you close your eyes and feel weird keep them open at least those that have them after they wake up,that was a solution for me and it can help you to...MY doctor said everyone like me but i think he is laying,the other neurologist said my doctor was wrong probably about the seizures,i think i have both but i do know that believing and saying that you don't have anything WILL help you and lower your seizures,after speaking with the doctor i actually started to believe i don't have anything and walla i have almost NADA,today i had zero!!!! :D
OF course don't lower dosage without first consulting with someone expert,but since i know i can control basically every seizure i have and i know what to do to avoid it i let my self start dropping dozes!!!
GOOD LUCK my friends believe in yourself and if you want some personal info leave your msn i will add you and try to answer you the best i could,i was researching my self trying to figure out the core of the problem for 5 years but after 6 months knocking my head in the pipe when i washed my face i learned what i should avoid to minimize the chance!!!Try that
-- By kostareyna | Reply | (1) replies | Private Message me
June 24th
2008
8:36 PM
I've booen on 100 mmg of toprol for over ten years. Have all the side effects including tinnitus and impotence. Last week for chest pain spent the night at the er , three blood tests, three ekgs, a stellar stress test and echo. All normal and still the sense of doom and the pain under the breastbone... This has been ruining my life. I'm furious after reading all this testimonies . Olease someone give me advise. ******
-- By freddy | Reply | (1) replies | Private Message me
June 16th
2008
7:49 PM
Found this on a web site listed at the end.
Very scary!!! COQ10 is a must when taking any statin drugs your body needs it for your
muscles. Other statin drugs may be better.
Numerous adverse side effect reports have implicated Lipitor as a possible cause for severe neuromuscular degeneration. Some people who have been using Lipitor for two years or more report symptoms similar to multiple sclerosis or ALS - Lou Gehrig's Disease - in which they are losing neuromuscular control of their bodies.
For instance, in an article entitled "Life After Lipitor" that appeared in the newspaper Tahoe World on January 27, 2004, Tahoe City (California) resident Doug Peterson began having serious neuromuscular problems after taking Lipitor for two years. He began losing muscular coordination and slurring words when he spoke. Then he lost balance, followed by loss of fine motor skills - he had difficulty writing. He went from doctor to doctor, trying to figure out what could be happening. Finally one doctor suggested that he stop taking Lipitor, and the downward health spiral stopped and his health is now slowly improving.
These adverse effects have begun appearing in peer-reviewed medical journals, and numerous people have reported similar symptoms at public adverse effect reporting websites such as medications.com. People have reported "trouble swallowing, trouble talking and enunciating words, feeling fatigued all the time, neck aches," "motor neuropathy which mimics ALS," "Blinding headaches, nausea, vertigo, disorientation, memory loss, extremely dry eyes, pain and stiffness in my neck and calf muscles, abominal pain," and "Muscle pain, weakness, spasms, buzzing in right leg. Can't hold arms or head up in vertical position for 2 minutes without extreme pain and weakness."
How could Lipitor potentially cause this kind of harm to so many different parts of the body? Lipitor is a "statin" drug which inhibits the production of cholesterol in order to lower LDL cholesterol counts. By limiting the production of cholesterol, Lipitor may be indirectly causing membrane degeneration in neural and muscle tissue.
The problem is this: cholesterol is essential in your body for many functions. It forms part of what is called the cell membrane - the outer layer of every cell in your body. It helps transport and pack the major components of the cell membrane, called "phospholipids," that are made from essential fatty acids (EFAs). Without sufficient cholesterol we would die, because our tissues are constantly being repaired and replaced with new cells.
Our body produces several thousand milligrams of cholesterol per day to carry out these essential functions, and each day the excess of cholesterol is supposed to be naturally recycled. If your body doesn't have enough new cholesterol each day, you cannot repair and replace your cell membranes and they will eventually degenerate.
The continual recycling of cholesterol happens naturally when you have sufficient ascorbate, another name for vitamin C. Excess cholesterol is naturally converted to bile acid and then excreted. But if you don't consume enough vitamin C (about 2000-3000 milligrams per day for an adult), cholesterol builds up in your bloodstream. It is here that doctors make a critical error: instead of telling you to take more vitamin C, they prescribe Lipitor.
If Lipitor and other similar statin drugs are in fact indirectly causing neural and muscular degeneration, this is a very serious matter indeed.
There are twenty million people in the U.S. on Lipitor alone, and probably millions more on other statin drugs (Zocor, Pravachol, Mevacor, Altocor, Lescol, Crestor, etc.). Are they all going to become victims of cell membrane degeneration and nervous system problems? There are few long-term studies that bear out the safety of these drugs, and side effects such as "muscle pain or weakness" are just classified as a reason for some to stop the medication rather than an indication of something very wrong with the drug.
What is most horrifying about this problem is that cholesterol balance can be achieved without drugs, simply and safely by taking 2000-3000 milligrams of vitamin C per day for an adult. Unfortunately, vitamin C was misclassified as a micronutrient in the 1930s and 1940s, rather than an essential nutrient involved in dozens of body processes. Our health authorities recommend that we take only 60 milligrams per day, barely enough to prevent scurvy.
It is my hope that people on Lipitor and other statins learn that they do not need to take these potentially harmful drugs.
For more information about the connection between vitamin C and the prevention of cardiovascular disease, see the article Natural Therapy for Cardiovascular Disease, or visit the research website of Dr. M.
******
May 22th
2008
9:10 AM
I was prescribed Zyrtec a few years ago for allergies. I also have MPV and need to take Atenolol, I will need to take Atenolol for the rest of my life. My cardiologist recommended I stop taking Zyrtec because it can give you an irregular heart beat. When I tried to stop it I got very bad withdrawal symptoms, chills,heart racing, insomnia, itchy skin. I thought I was going crazy, so I took one Zyrtec as soon as I took it 15 min later the symptoms stopped. The next night I decided to try and cut the pill in half and only take 5 mg, that was ok for 3 day's then the symptoms returned. I had to take the other half of the Zyrtec and then the symptoms went away.
I can not believe that I have to find a way to wean off Zyrtec. I am very annoyed that they do not list on the label that their could be withdrawal symptoms after taking Zyrtec for a while. I am not giving up I am going to continue and try to wean myself off the Zyrtec, hopefully I won't have a heart attack in my attempt to get off this drug. If anyone has a successful way to wean off Zyrtec please post it. Thanks and I hope this helped someone who was thinking of taking this drug. STAY AWAY FROM IT..
May 3th
2008
9:03 PM
I have come to the conclusion that our pediatricians, allergists and various other doctors, have been brainwashed by the drug reps,possibly even bribed. My friend took her son off of Singulair almost a month ago when I told her about all of this. He already suffers from a learning disability, but she feels that his ability has improved along with his disposition and complaints of various aches and pains. She took him for his usual appointment at his allergist and told him what she had done and why and he literally YELLED at her, calling her a fool and demanded that she put him back on it. She stood her ground and refused and now is under the impression that her son will be dismissed as a patient from that practice. That won't be a problem. From what I read and what I hear, a lot of doctors are dismissing the whole deal. They can't be bothered with finding out for themselves, what the truth really is. No, they might miss out on the "perks" from the drug reps, like free samples of the deadly drug, or free pens, or a chance at a vacation in the Bahamas, and the list goes on. The drug reps are a hazard. They lack education on the drugs that they are "dealing", and if they HAVE been educated and are still promoting it,
they are no better than the crack dealers in the alley.
April 24th
2008
3:10 PM
Our son started taking Singulair when he was 2 for severe allergic rhinitis and cough variant asthma (in addition to Zyrtec, which didn’t control all of his symptoms). He is 5 now. For the last three years, he has been an increasingly violent, difficult, defiant, argumentative, volatile child who has intense mood swings--one minute he’s laughing uncontrollably, the next he’s weeping over nothing. His doctor and therapist recommended that we see a psychiatrist to have him evaluated for bipolar disorder, which used to be unknown in children. Because he has such chronic sleep problems, the doctor also suggested we take him off Singulair (and increase his Zyrtec dose) to see if it improved his sleep issues. Within a week, he was sleeping much better and was a calmer, happier, gentler boy. He suddenly could take “no” for an answer without flipping out and trying to hurt me. We thought that we were just in an unusual, calm window that would shift either to mania or intense sadness or both, any minute. We also thought that his behavior change might be due to sleeping better. We were enjoying the rare reprieve. Over the last weekend, his springtime allergies really flared up. We gave him Singulair on Monday and by noon, he was completely out of control. I had to strap him into his car seat at one point to keep him from hurting either me or himself. It finally occurred to me that Singulair might be causing his “bipolar” disorder. Of course, we stopped the Singulair. After two days he was a new boy. Yesterday, I Googled “Singulair bipolar children” and got a few hits. I am stunned to read how similar other families’ experiences have been to ours and I feel sick that we gave this drug to our child for three years.
-- By isobel1228 | Reply | (7) replies | Private Message me
April 3th
2008
6:31 PM
Wow. I can't even express how blown away I am by all of this.My son is 7 and has been on singulair since he was 2. He was moved to the 5 mg last year in March. The only difference between my son and all of your stories is that when he was in kindergarten we discovered a rather large arachnoid cyst in his brain that had to be drained. It was easy to blame some if not all of his behavioral problems on the location of the cyst. It is in the left temperol lobe. Having something in that region of the brain can cause behavior problems. His cyst was also big enough to push on his pituitary gland making him think he needed to use the bathroom all the time. He had a slight case of diabetes insipidus. During all of this he was complaining of headaches, fatigue, leg pain, the boy could not walk from one end of the mall to the other, he would melt down at the slightest provocation and turn into an angry little monster at around diner time. We attributed it to low sodium levels messing with his head, but his blood work never reflected someone who was THAT bad. After his surgery he had some normal depression, but in March, four months after, he became a different person. He was full of rage and anger and almost got kicked out of school. He broke things at home and lashed out at people, he said awful things. He was put on Tegretol, (that made him very sick) and Wellbutrin. Since he couldn't tolerate the tegretol they switched him to abilify. He still takes this. The one time we tried to take him off he went completely nuts again. Same kind of aggressive behavior, lashing out, no self control, crying all the time, very moody, saying things like "nobody loves me." My son is the sweetest person you will ever know. Before all of this, he would melt your heart with his kind words. Now he has been diagnosed with ADD, Aspergers, and has all of one friend at school. I go every day to eat lunch with him so he doesn't have to sit alone. I completely understand that my son will continue to have problems once this medicine is out of his system, because he does have other issues, but this morning the first thing he said to me was, "Mom it's weird, I don't know why but I feel so happy."
He has been off the Singulair for 6 days now. I called his allergist and he was VERY interested in all of this and wants to meet with me. He has always been so heartbroken by how my son has struggled. Don't think all doctors are bad. This one isn't. He is going to help me report all of this. He is really upset too. Of course he is older, been around for ever. I don't know. He cares about his patients. His receptionist said she thought they would be getting a ton of calls about this and I was the only one. Hang in there everyone. Alone we are quite together we are LOUD.
March 26th
2008
3:51 PM
I was put on Toprol XL 6.5 yrs ago. My heart rate had soared to 130+ and b.p. was elevated. So my family doctor put me on Toprol XL 100 mgs. From day one I felt exhausted. He told me that would soon clear up and not to worry, we needed to be more concerned with my heart rate and b.p. I listened and was a good patient. After a year of total exhaustion and having to quit my job I asked to be taken off Toprol. He said it was the only medication that would control my heart rate and b.p. together. He agreed to reduce it to 75 mgs. After a few months I went back and said it was still too much! My b.p. was better as was my heart rate so he lowered it to 50 mgs. Things got a little better at least I could get out of bed by 10:00! Fed up I lowered it to 25 mgs. and tracked my b.p. Finally I told my doctor and he said as long as my b.p.was better 25 mgs.was ok. By this time though I was having other symptoms, body aches, joint pain, mind fog. He attributed it to arthritis and put me on Vioxx. 2 pills later I stopped due to chest pains. The symptoms I had experienced over the past 2 yrs continued so I sought a new physician. Once again he said Toprol XL was the only medication I could take for tachycardia and high b.p. My b.p. was again elevated so my meds were increased to 50 mgs. he wanted to go 100mgs., I said NO!
In 2004 I was diagnosed with Fibromyalgia, the pain had become so bad now it was debilitating. I had all the full blown symptoms of Fibro, extreme exhaustion, body aches, joint pain, mind fog, depression etc etc. So I sought treatment for Fibromyalgia for 3 yrs. Not so successfully I might add.
I should note that I had none of these symptoms before Toprol XL.
During a recent Gynecology visit my b.p. was extremely high. I told her my story about Toprol. She said point blank, They are NOT listening to you. I think all the side effects you have been having are due to the Toprol XL.She sent me to a Cardiologist. God bless her!!
After many tests he immediately took me off Toprol. He put me on another medication instead. I am having withdrawal side effects from Toprol, shakiness, shortness of breath, heart rate acceleration and mind fogginess. But, anything is better than another day on Toprol. He told me what I was experiencing was normal withdrawing from Toprol. He also assured me there were many other alternatives to Toprol and if the new medication doesn't work there are other options.
I think Toprol XL is the next drug that should be banned!! I pray everyday my life will return to what it was before Toprol XL and that I will not have any lasting side effects from this horrible drug.
March 24th
2008
6:09 PM
I was on toprol-xl for almost 8 years without many problems. i also take isosorbide mononitrate.A few months back I was switched to the generic version (metoprolol succinate er by sandoz) now i have many problems.First I have to say I am disabled with severe COPD. Although I do not feel depressed I have a lot of symptoms of depression. Remember I had no symptoms what so ever until switched by Walgreen's or HMO or Doctor to the generic version. Not sure what to do I have a doctor that does not truly listen,plus he did not want me on toprol xl to begin with. Even though it was good for me. Good luck people!
-- By tking1013 | Reply | (6) replies | Private Message me
March 16th
2008
4:54 AM
My sister died of a heart attack after being on lisinopril for a month and a half.. She had no known heart problems..
She passed away in 5 am. The evening before she told me that she was going to stop taking lisinopril because of the side affects.
I miss her so much.
-- By elby | Reply | (2) replies | Private Message me
Toprol-XL (6) Singulair (5) Lisinopril (4) Yasmin (4) Mirena (3) Lipitor (3) Lamictal (3) Levaquin (2) PredniSONE (2) Zyrtec (1) Synthroid (1) Remicade (1) Loestrin 24 Fe (1) Sulfamethoxazole (1) Lotrel (1) Levoxyl (1) Avelox (1) Biaxin (1) Accutane (1) Neurontin (1) Niaspan ER (1) Flomax (1)
November 13th
2009
11:36 AM
I am so happy I found this website, I have been taking Lisinopril for about 5 years now. I have been have dizzy spells or the tunnel effect for about 2 years now. I thought I was going crazy! I can't drive, sit in a meeting, or even sit through church and it's getting worse. I call my mother and just sit and cry thinking something is wrong with me. I'm so glad all of you came here to tell your experiences. I will stop taking this medication RIGHT NOW!!
-- By sdm | Reply | (5) replies | Private Message me