August 17th
2008
6:55 PM
a full week after my first remicade treatment, i suddenly developed a very severe headache, followed by a stiff neck, a stiff left arm, a sore jaw where i couldn't open my mouth very far and i could not chew, then developed a fever, chills and itching. It came on fast but also subsided a good bit within about 12 hours. has anyone else experienced something like this, a full week after a treatment?
-- By dwynn | Reply | (5) replies | Private Message me
April 1th
2008
10:33 PM
Good evening all....I as well as you all have a story to share about my son. Kameron lived the terrible twos to the fullest and turned into the biggest sweetheart when he turned 3. But then his doc wanted to try something stronger for his allergies and thats when Singulair changed out lives. Kameron has been on that junk since about November/December and since then everyones lives around him has been pure hell. He turned into satan in the flesh. I have never seen as much anger as I do in my son. On a weekly basis we go through stomach pains, depression, anger issues, him not eating for days, many sleepless nights, and thats not even all of them. He has spit in my husbands face and called me very bad words (that nobody has ever used in front of him towards me), Ive walked around with black eyes from him (remember he is only 3), he has given me bloody noses and straight up told his dad and I both that he hates us, and doesnt love us anymore. We cant take him around our friends children cause he is very abusive and controlling with them. He shows no interest in the things that he once loved, like his toys and pets. We have taken him to the doc and have been told over and over again that he is just a typical 3 year old but a mama knows when something is wrong with her baby!!I havent seen my sons precious smile since this stuff has taken over him or even heard him laugh. Im taking him to a different doc tomorrow and takin all of your comments with me and I am not leaving his office till they do something for my son!! My thoughts n prayers are with all of you that are goin through this cause I myself now how hard its been..
-- By kameronsmama | Reply | (1) replies | Private Message me
August 19th
2008
10:58 PM
My daughter is 12 and just started taking Prednisone 5 days ago (40mg - she weighs 105lbs) .. I've been watching her salt intake - tonight she looks a little pale to me - is that a side effect? has anyone else experienced that? She has Ulcerative colitis (2 years this month) - started w/asacol, colazol, 6mp (gave her pancreatits) now is on methotrexate since Nov '07 - was put on prednisone because of a recent flare - to me none of these medications have put her into remisson - always goes 3-5 times a day - sometimes blood - sometimes not - don't know if prednisone will help - so afraid of the side effects -
-- By jmmm70 | Reply | (9) replies | Private Message meDr. said if it doesn't - Remicade will be the next option - after that surgery - only thing - my daughter has never complained of pain - except when she was on 6mp -
sorry for babbling - just so scared...