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100 Side Effects posted for good job

August 26th
2009
11:27 PM

I am a 36 year old woman, and I have taken Singulair for the past 8 months. I got a lung infection over the winter, and the clinic I went to put me on the 10mg Singulair. It helped my lungs and got me over the worst of the infection, but I never anticipated the side-effects. For several months, I attributed what I was feeling to hormones (like severe PMS) and the stress in my life. I started to have thoughts of death, especially at night. I also began to have a hard time leaving my house. I would have panic attacks, worrying that the window was left open, the stove was left on, and god forbid there was a dark cloud in the sky (I became convinced that a terrible storm would come). Several times, I nearly got in a car accident racing to get home after work. Then, I started to obsess over getting sick. I was convinced that I would get some terrible disease and die soon. The fears and anxiety got worse and worse until one day (a rainy day), I quit my job of twelve years. It was a good job. I was happy with my work, and I made more than enough money. I ended up moving across the country back in with my estranged husband, because here I would not have to work. I could stay home all the time, away from germs and storms and anything else bad. That was three months ago. Still on the Singulair, I began to obsess over death. The panic attacks were so severe that they triggered asthma attacks, and not being able to breathe triggered more anxiety. I stopped sleeping at night. In three months, I've slept four nights. I began to have nightmares that made me wake up screaming and violently lashing out. I had to urinate 5 or 6 times every night. I developed severe stomach pain and nausea. And I had leg pain (actually, I hurt everywhere, severe pain). I had headaches, dizziness, and fatigue. Slowly, I began to realize that it might be the medicine. I started to research, and yesterday, I took my last pill. Since then, I have not had one panic attack. I have not had one asthma attack. I slept last night with no bad dreams. I know what's happened now, and I'm so sad that I lost so much of my life because of this drug. I really had a good life...friends, a home, a great job... Now, I'm very tired. My body is very weak and still hurting. I'm shaky. But I believe in time, those effects, too, will go away. I feel like my body has been through a war. I'm grateful that I didn't kill myself. There were a couple of really bad days when the urge to be violent towards myself was overwhelming. One day, I punched a fence, making my knuckles bleed. I think I could've killed myself, and I know it was Singulair. It's going to be better now. Just as a note: what helped me withdraw without any major worsening of asthma was Advair 250/50 twice a day.

-- By autumnsparrow | Reply | (3) replies | Private Message me

August 13th
2009
8:50 PM

I have had Mirena since January, 8 months now, I am feeling so sad, actually I am looking now in the net as I was not able to stop crying and there is no reason for crying, everything is ok in my personal life. I am very concerned as this symptoms have increased in the last four weeks and I am seriously consider removing Mirena, I want my normal life back.

-- By olgcons | Reply | (3) replies | Private Message me

April 8th
2009
2:40 PM

I go by the ID Miserable Knees. I posted last spring on medications.com about my adverse reaction to Levaquin. I was given a 10 day prescription for a respiratory infection. 3 days after I finished taking Levaquin, BOTH KNEES were swollen, painful and I could barely walk. I spent a month throwing myself backwards into chairs due to the inflammation in my knees. My knees were on fire, I was in pain every day. After seeing an orthopedic doctor an MRI showed cartilage damage. A year later, I'm living with permanently altered legs. I was an avid walker, loved to hike, would spend hours walking for recreation. Levaquin changed all of that. I had a career requiring me to be on my feet for 12 or more hours a day. Levaquin changed all of that. I decided, if this could happen to me, it could happen to anyone. Now, there is a documentary about the dangers of fluoroquinolne antibiotics. When I was harmed by Levaquin, I was flabbergasted that something like this could happen to me in the prime of my life. I made this 52 minute film for all of the people like me who trusted the system, (government, doctor, medicine) to guarantee my safety. "Certain Adverse Events" is the name of the documentary and it is now available online. You can reach the documentary site by going online to the .com of "Certain Adverse Events"

Miserable Knees Productions

-- By miserableknees | Reply | (1) replies | Private Message me

February 5th
2009
10:14 AM

I first started Lisinopril hctz about 3 years ago. Within the first day I had hives, a rash, itchy skin and RED RED face. Dr says it will go away. So I keep taking it. Fast forward a month and I start coughing, coughing at night so bad my husband can't sleep. It's so bad I feel like I'm choking and cough so much I am almost throwing up from the dryness and my throat being so constricted. During that time, I also start having some big whopping sinus pain and pressure. Felt like there was a tennis ball in my sinuses. Big time pain, headache. Dr says nothing wrong, just some allergies. I start taking Benadryl at night to sleep, to help with the itching, wheezing, coughing. It seems to help a bit. So I deal with all this. ALong with the coughing at times I am having trouble getting in air. Almost like I have to force it in. Not sure if it's my throat, sinuses or my chest. Next comes, some bass drum booming of my heart. I think it's so loud in my chest and my ears that others can hear it. This still happens on occasion. At times my legs feel like tree trunks or cement and I just don't have the energy to do anything. My hair started falling out in GOBS. I go to derm doctor, they say it's stress. It'll go away. Next I have kidney pain.... this goes on for a few months... come to find out I have a stone. But I never had any kidney problems before. Doctor's say it could be from the hctz and my kidneys having to work harder, but they were speculating. GP says keep taking Lisinopril hctz the benefits outweigh the side effects. I asked him if he has ever had a kidney stone he says no. I keep taking it. Leg cramps come next, bad cramps. I go to dr and he says it's my potassium, the hctz has depleted the potassium in my body and need to start on some big styrofoam potassium pills. All this goes on for almost two years. Fast forward to now. I'm still beat red in the face (and cannot handle the sun), coughing, sinuses full, itchy and bass drum beating (on occasion), heart flutters (on occasion).... four days ago I almost fainted because I was so dizzy within two hours of taking my pills in the morning. I am by no means able to sit on my butt and do nothing because of all these side effects. I have a farm to run, horses to feed and ride, hay to bale and put up, and I'm ready to get my body safe enough to start trying to get pregnant. I start doing research and find Lisinopril to be UNSAFE for a fetus. I start to think, well if it is unsafe for a fetus why is it safe for me? So then I googled side effects of Lisinopril and it brought me here. Thank God, I have a GP appointment tomorrow. I'm taking control back of my own body. I've had enough....

-- By beauisabella | Reply | (4) replies | Private Message me

February 3th
2009
8:55 PM

I just be on Yas for almost a month ( i will finish my first package in 2 days)
For the first couple of weeks, i do not feel anything different on me, but after my one week non-hormonal pills (white sugar pills) and start again with the hormone pills in the green section, I started to feel very EMOTIONAL and mood swings.. It seems like i could snap at anyone at anytime, very sensitive and very irritable. GOSH.. However, I do not have any other side effects, in fact, Yas has done a very good job in reducing my pms and clearing up my skin.

-- By bladeliva | Reply | (1) replies | Private Message me

January 27th
2009
11:24 PM

It's been almost 1 1/2 years since I have taken Levaquin for Bronchitis. I took it for only 3 days, after that I couldn't stand the pain and that was the only thing different so I knew it must have been the Levaquin. I suffered major, severe joint and muscle pain. I couldn't even walk down the stairs to the living room. As for lasting side effects, I am dealing with arthritis in my knees...which I never had before and I am only 40. I have severe tendinitis in my elbow which may require to correct. I know I am getting older but jeez....I am unsure if the arthritis and tendinitis is completely related to my reaction to the Levaquin, but what else could it be. I am not that old nor am I that out of shape. My only hope to spread the word about this evil toxic poison before someone else gets hurt.

-- By noonlevaquin | Reply | (1) replies | Private Message me

January 6th
2009
2:55 PM

I have been on lisinopril now for about 9 months, 10mg/day. I am tired. I have lost half my hair. My chest feels weird, and I have heart palpitations. I thought it was coffee, but it never went away, even after I went decaf. My muscles aches. My hands are swollen in the morning. I have been watching what I eat, and have cut out red meat almost completely. I only use it as an ingredient in one dish I make, and then I only use 1/3 to 1/2 of what I used to. I eat oatmeal, drink the low cholesterol OJ, take vitamins and my cholesterol has shot up over 60 points in the last 6 months. I have sinus trouble, my scalp itches, my back itches and my ears itch. I am a 51 year old woman. My BP was in the 140's when I started this drug. I stopped taking it two days ago, and will see this doctor on Thursday. If she is like the rest, it won't be the fault of the drug. It will be mine. I felt a lot better before I went to her and I am so mad at myself for taking this drug.

-- By tiredofdrugs2 | Reply | (1) replies | Private Message me

December 20th
2008
3:15 AM

Hello All. Diagnosed bipolar in 2004, been on and off meds realizing that I guess I can't really be off of them, though having a hard time dealing with it. Been on Lamictal, Lithium, Geodon, and several anti-depressants and others I can't remember honestly in the past, now just Geodon, 80 mg at night (can't do it in the morning, can't work). It's now 2 a.m. and I'm desperate. I feel worse on my meds than I do off, though I get suicidal and sabotage my life and my marriage and kids. I have experienced insomnia, tired in the morning, my muscles ache, I dance all morning long and my co-workers think I'm crazy ( I guess I may be). I have landed in crutches because my "dancing" has caused shin splits. I hold a good job and I have two kids that I need to tend to. My husband travels a lot and I just can't seem to deal with the Geodon. All others caused similar issues. I'm desperate on my meds, but I suffer schitzo symptoms off meds. Any suggestions would be greatly appreciated. BTW, just found two great doctor's, one for therapy and one for med admin. Only been back on my meds and doctor's appts for 2 months after being off meds for 9 months and suffering another "great" relapse. Help me!!!!

-- By gonenuts | Reply | (1) replies | Private Message me

November 14th
2008
11:21 AM

My 4 yr old daughter has been on Singulair for 3 weeks and one day as prescribed by an ENT for her persistent sinus problems. I made the mistake of being too trusting and not reading enough about the medication before giving it to her every night for the last 3 weeks. She has been out of control. I blamed it on her oppositional personality but yesterday at my whits end, sat down at the computer to find some parenting advice to work with her temper, aggression, crying, whining etc. - Not to mention nightmares almost every night. When I made the connection to her behavior changes and when she started taking Singulair i found more info than I could imagine. She will never take this again nor will either of my other children or myself! I can't believe a drug with this severe of side effects is prescribed so freely and without any caution from the docs. I blame my self and hope there are not any long term effects from this useless medication.

-- By momhicks | Reply | (4) replies | Private Message me

September 29th
2008
8:35 AM

I had Mirena inserted in January 07 and for the first few months things were ok. I came across this site about 6 weeks ago after I'd been experiencing cramps, lower back pain and constant bloating for about 2 months. After reading other womens' symptoms I recognized a few I was feeling myself, such as feeling tired all the time and aching joints, extremely painful breasts, also I lost interest in the most basic everyday things. I have gained 15-20lbs in the last 18 months and nothing I did would shift it. Well I decided to have it removed and it was taken out a couple of days ago. It's a good job I have a strong personality as the doctor did his best to convince me I was making a mistake (I had it inserted to help with painful periods) and basically said on your head be it. I'd rather have a painful few days each month than all the symptoms I had all the time. Well I am now having a really heavy period, with pains to match, which I'm hoping will calm soon. I must admit I'm not feeling very different but I feel better in the knowledge I have control over my own body instead of that little plastic contraption. If I gain or lose weight, it's down to my own actions. I'll post again in a couple of weeks to let you know how it's going. All I can say is that it's your body and the decisions are ultimately yours, don't let doctors bully you and you should go ahead and take control. Best of luck to anyone who is thinking of having it removed.

-- By dawn1964 | Reply | Private Message me

September 12th
2008
2:28 AM

I was on Lipitor for less than a week 2 years ago and the muscle pains were so bad that moving my head was painful. I called the doctor's office and was instructed to stop taking the medication; which I did and felt 'back to normal' within a few days. I haven't had my cholesterol checked since that time, or if I did before surgery, no one mentioned anything negative about it. However 6 weeks ago I had a heart attack. Apparently my cholesterol was twice what it should it have been, and my potassium was incredibly low. So I'm now on Lipitor (standard procedure after having a heart attack and high cholesterol seen as the cause of it) to ensure that another blockage does not occur.

The only problem is I'm now bloated even though I've changed my diet drastically (no more junk food or soft drinks, no 'white' flour products, no dairy products with more than 5% M.F and lots of veggies and fruits). I've lost 3 or 4 pounds but my pants are too tight around my waist, and now I have a my upper abdomen bulges over the waistline. Besides that, I get muscle 'kinks' in very places and after sitting for more than 10 minutes I limp when I take the first few steps.

People have told me to 'keep taking Lipitor and Plavix' but exercise more. The only problem with that is that I have a brain aneurysm and the neurosurgeons don't think it can be operated on 'without it being a very high risk procedure'. The first one ruptured 10 years ago and since then I've managed to control my blood pressure. However the meds I took for that was what lead to my potassium being so low that my electrolytes were imbalanced. That combination of low potassium and high cholesterol is what lead to the heart attack.

I'm 54 and feel as though I'm losing control of 'how' I feel. Between Lipitor, Plavix and diuretics and medication for hypertension I'm not sure if it's one drug in particular that's making me 'ache, limp and look like a blimp' or if it's because of the interaction of all of them. How do I decide 'what' to stop? What's more important to look after first - my heart or my brain?

-- By bvh123 | Reply | (4) replies | Private Message me

September 5th
2008
8:57 PM

I'm going to be interviewed about my family's horrific experience with Singulair on Monday by a CBS news affiliate out of Boston. I am going to try and blow the lid off this story and will hopefully be posting my interview on youtube. This has gotten so ridiculous with the ALA "study" ....and I never wanted to go there....but it almost to the point of conspiracy. These people are just downright creepy!!!!!!!!!!

-- By matthewct1 | Reply | (1) replies | Private Message me

September 3th
2008
4:21 PM

Let me start by giving you some history.

My sister is a 22 year old girl who worked full time and was never seriously ill until this summer.

During the last full week of June my sister started having headaches. She told me that these headaches were like none she had ever had before. Days later she started complaining that her legs and wrists hurt. She said that her legs were so tired and achy she could barely walk up the stairs. At that time I dismissed what she was saying. My sister constantly wears heels and I chalked up the complaint to a pair of shoes that were not yet broken in.

By July 4th, the headaches were so intense that she went to urgent care. The physician she saw in urgent care gave her an antibiotic and sent her on her way. By July 7th, she was having difficulty standing up and walking was almost impossible. My sister started complaining about severe joint pain. Her ankles began to swell and her stomach appeared distended.

On July 8th, my sister went to her primary care physician. I believe he sent her for an x-ray and said that she had a cyst on her sinus cavity which was causing her to have severe headaches. He then gave her another antibiotic and referred her to a rheumatologist never even thinking that these two symptoms may be related.

On July 10th, my sister saw the rheumatoid arthritis doctor her pcp referred her to. He dismissed her complaints saying that she probably has some form of arthritis, but that there are over 800 forms and it would takes months to pin point exactly which one she has. He then gave her a prescription for Celebrex and sent her on her way. She spent the entire week in bed because her joints were so swollen and achy that she could not move. She actually crawled to go to the bathroom.

By the middle of the following week, my sister's stomach began to burn. She contributed it to being a side effect of the Celebrex and stopped taking it on July 21st. We had no idea that the pain was so bad. My sister's last normal meal was on July 22. By the 23 she had no appetite and could not go to the bathroom. On July 24, the stomach pain was so bad that she could not work, or sit, or function. All she did was cry. She went back to her primary care physician who then prescribed her prevacid to help with the so called indigestion. He told her if the pain continues she could call him. On July 25th the pain became unbearable. My sister called her PCP as directed and he told her to go to the ER. Never once did he say he would meet her there! I brought my sister to the ER where they did an x-ray and cat scan of her stomach. They found nothing. At that time my sister had not gone to the bathroom or had anything to eat since the 22nd. The physician in the ER said that she was literally "full of shit" and needed to go home and take a liquid laxative. My sister is only 22 and my parents were away on vacation. We were stupid and didn't know any better and were so happy that they didn't find anything that we accepted his findings and got out of there.

My sister took the liquid laxative prescribed by the ER physician as soon as we got home. We waited anxiously for it to relieve her stomach pain. After many hours the laxative did not work and my sister ended up back in the ER. This time she was screaming in pain. One of the doctors there told her that if she couldn't calm down she needed to leave her ER. My sister did just that. At this point my parents (back from vacation) took my sister home and called Digestive Disease. A doctor there told my mom to give my sister 2 Enemas. He said that should relieve her pain. My mother followed the doctor's orders, but the pain did not stop. Sunday, July 27th my sister was right back in the ER - this time at another hospital. This time my sister was admitted to the hospital for severe stomach pain. After 5 days and numerous tests my sister was discharged. The doctors found nothing in her cat scans, x-rays or ultra sounds. The pain was more manageable (she was on morphine every 2 hours) and they said she was ok to go home.

August 1st my sister had a great day. She was sitting up in bed and seemed to be in good spirits. The following day she couldn't get out of bed. This time it was neck pain. My sister said the pain in the back of her neck was so severe that she could not lift her head up or move it side to side. By August 4th she was admitted to the hospital again. This time we brought her to University Hospital in Syracuse, NY. We were sure to get some answers there...or so we thought. As soon as my sister arrived in the ER they started treating her with antibiotics. They were certain she had an infection. They then told us they would have to do a lumbar puncture to check her spinal fluid for infection. We thought we would finally have an answer to what was wrong with my sister, so we agreed. The spinal fluid came back fine - no infection. At that time they admitted her to the hospital. While at University Hospital my sister was treated by a team of doctors. They tested my sister for lyme disease, west nile, lupus, leukemia etc. They performed a spinal tap, cat scans, x-rays, ultra sounds, blood smears, etc. All of these tests came back negative. The doctors could find nothing abnormal except for an elevated white blood count -22,000 (it was also very high during her last hospitalization), an elevated C reactor and a very high SED rate. After 4 days of numerous tests and pain killers (first morphine, then Dilaudid, then Dilaudid with a fentanol pain patch) they discharged my sister. The head doctor told her that he believed she had viral meningitis and that it would eventually work its way out of her system. By this point my mother and I were skeptical. We did the research and viral meningitis should only last approximately 10 days. Mig had been sick since the last week in June. No one was putting all these symptoms together. On the day of her discharge my sister started getting her stomach pain back. The pain was mostly on the left side of her lower stomach - under her belly button. Again she was told the pain was due to constipation and she should buy some Miralax when she got home.

My sister was home for a mere 2 days before she would be hospitalized again...for the 4th time. Her stomach pain was back and worse then before. My family could not believe this was happening. My sisters spirits were down and the excruciating pain was making her mentally unstable. This time the ER physician recommended a hematologist come in to see my sister. We just wanted answers so we agreed. This hematologist, Dr. R stated that she believed my sister had drug induced lupus. We were shocked as my sister was tested for lupus twice before and both times the test came back negative. Dr. R explained that she believed my sister got drug induced lupus from the Gardasil shot. My entire family was shocked. We had never heard of any severe side effects like this from the Gardasil shot. Dr. R asked my sister for her permission to test her again. My sister agreed and a week later my sister learned that she was positive for drug induced lupus. My entire family was so happy that my sister finally had a diagnosis and could begin treatment. We were told that after a 6 week steroid treatment (Prednisone) my sister would be back to her old self. We were ecstatic!

My sister was home from the hospital and on the steriod treatment for 10 days when things started to go wrong again. The doctors were very concerned with the dosage of Prednisone that my sister was taking (80mg. I'm not sure how many times a day). They cut the dosage down in half over the course of a few days to prevent kidney damage and other side effects. Once the Prednisone was decreased, my sister started getting sick immediately. Her forearms were very weak - she could not put any pressure on them. Her shoulders would tingle and she would get shooting pains down her right arm. One of her doctors believed she was developing fibromyalgia and prescribed her lyrica. Shortly after my sister began taking lyrica she started seeing stars. She had double vision and a migraine that would not go away. My mother called her doctor and told him about this. His answer was for my sister to stop taking the Lyrica. She did immediately.

On August 29th, my sister still had a migraine. This was day 3 without a break. She woke up early Saturday morning and began vomiting every 30 minutes. After a few hours of non stop vomiting my mother called her doctor. His nurse practitioner was on call and she told my mother to take my sister to the ER immediately. My mother went back into my sister's room to tell her they had to go back to the hospital and she found my sister having a seizure. My sister has no history of seizures. My mother called 911 and the ambulance came to bring my sister back to the ER...her 5th hospitalization.

Shortly after arriving at the ER, my sister had another seizure. Immediately after the seizure the ER doctor ordered my sister to have an MRI. My sister had one during her last hospitalization only 2 weeks before. That MRI was normal. This one was not. There are lesions all over my sister's brain. The neurologist told us that he cannot believe she does not have permanent damage. According to him there is no oxygen going to her brain.The neurologist also explained to us that her brain looks as though she has been poisoned. He said that her MRI is very similar to an MRI of a patient who has been poisoned with antifreeze. Later I learned that Gardasil has both aluminum and sodium borate (which is in both rat poison and cockroach killer). However, according to the doctor once your brain looks like my sister's all the poison is out of your body. My sister's team of doctors started debating as to whether this could all still be from the Gardasil shot...my sister's last shot was on 02/22/08. Some believe that the side effects started off as mild, but since they were left untreated for so long they've turned into a serious neurological problem. They told my family the only way to truly know what is going on is to do a brain biopsy.

Yesterday, my sister was transferred to Mass General in Boston. We were hoping for a bigger hospital, better technology, more seasoned doctors. So far my sister has been treated badly. When my mother told the doctors' about the Gardasil shot and the devastating effects it has had on my sister they dismissed it. When my mom asked the doctors to test my sister for heavy metal toxicity they completely ignored her. I fear that she will never get the proper care.

-- By marissar | Reply | (8) replies | Private Message me

August 18th
2008
6:14 PM

I started taking 10 mg. of Lisinopril on July 8, 2008. At first, I experienced extreme fatigue and weakness. However, this wore off after a few days. The dosage was increased to 20 mg. on July 21, 2008. I started having horrible symptoms on July 29, 2008: rapid pulse (as high as 118 b.p.m. while I was quietly reading), heaviness in my chest (which felt worse after I exercised), and shortness of breath. I had never felt so bad before in my entire life!!! I suffered with these symptoms until August 15, 2008 because I was hoping that they were just temporary. Unfortunately, they only got worse the longer that I waited. It is such a shame, too, because Lisinopril really did a good job of keeping my b.p. down.

This is the third day that I haven't taken Lisinopril, and I am feeling a little better. I am now on Metoprolol, which is helping with my rapid pulse. For those of you who experienced breathing problems while taking Lisinopril: How long did it take before your breathing returned to normal?

-- By secretgarden | Reply | (1) replies | Private Message me

August 13th
2008
5:57 AM

hair loss, memory loss, weight loss, confusion, hand shaking

-- By xomajenta | Reply | (2) replies | Private Message me

July 24th
2008
8:37 AM

Levaquin is a wonderful drug and one of a very few that help men with prostatitis. If you have ever suffered with a prostatitis infection you know what i mean. No problems here with Leviquin.

-- By guy123 | Reply | (9) replies | Private Message me

June 10th
2008
10:10 AM

Folks, Lipitor is the most widely prescribed drug. People are blaming their various problems on lipitor. They should see the appropriate specialist to address their specific symptoms vs self-diagnosing and blaming it on lipitor.

-- By borismcfly | Reply | (3) replies | Private Message me

May 14th
2008
9:36 PM

My baby is 3. She had strep throat from Jan to April. I'm talking off the antibotic for max 4 days and the fever would return along with swollen glands, difficulty swallowing and just plain miserable. Took me 2 ENT referrals for someone to finally agree with me that this is not normal and something needs to be done. We scheduled a T & A for April 18th. The surgeon told me that she had a severe sinus infection as well (surgery day). He recommended that we start Singulair 4mg at night along with Nasonex to possibly help with her constant sinus congestion. I gave it to her and noticed nearly an immediate a change in her disposition.(looking back now) At the time I simply chalked it up to having her tonsils out. She was on the medication until Friday May 9th. Her babysitter said that she was seeing what I was at home...only I hadn't shared my dgtrs behavior at home with her...call it guilt for being a single mom who works...I just thought she was having trouble adjusting from a week at home with mom from the surgery recovery to getting back into the "norm" routine. At home she would cry at the drop of a hat. Not just wimper or whine....but tears and screams for nearly an hour. I would ask her why she was crying and she'd simply reply "I don't know Mommy." One minute we'd be playing and she's be laughing and the next she was angry and anxious. She would complain of "tingles in her feet"...I thought she had just been sitting on her legs and her foot had fallen asleep. She would deliberately instigate her older sister...totally not her. She became fearful of her room at nighttime...and took for ever to get to sleep. A co worker had mentioned that a little boy she worked with had his medicine changed b/c the dr said one of his meds may contribute to his behavior issues. Being a nurse I asked what med...SINGULAIR. I immediately went to the web and googled singulair. I found this site...and began to read parents horror stories of their experiences. She has not had another singulair nor will any of my children - EVER. I feel guilty that I didn't take the time to research it before I put her on it. I feel blessed that I was in the right place at the right time to find out about this site. I thought that my kind and sweet little girl had turned into. I know it's only 5 days off the med but she's back to her sweet self about 75%. I am blessed that my experience was not even a month long...but losing your child to a medication that no one warns you about even for a day is WRONG. I think I would be more "forgiving" if anyone along the line of me picking up the med had said ANYTHING...but no one said a thing. My prayers are with those who were not as lucky as I was to stop this med so quickly. I hope your children return to their pre singluair selfs quickly and permanently.

-- By rhondajrowles | Reply | (1) replies | Private Message me

April 23th
2008
2:31 PM

I've been on Lyrica 75mg 2x/day for Fibromyalgia for 1 1/2 wks. I was on Neurontin for 4 years before trying this new med. The side effect that I'm hoping goes away soon, is around 3-4AM every night that I take Lyrica I wake up to pee and when I lay back down when I close my eyes the room spins like crazy. It's exactly like a night drinking in college but I haven't touch any alcohol in months. The 1st few days that sensation did not go away until the afternoon, but now it's usually gone by the time I wake up to go to work around 7AM. Hopefully it'll just keeping shorter in duration. Other than that side-effect it does quite a good job controlling FM pain.

-- By curls321 | Reply | (1) replies | Private Message me

April 21th
2008
8:53 AM

Hi, I am a mother of 6. They are 11,9,7,4,and twins 2 1/2. So nothing surprises me as far as kids. I have been through it all. My 7 year old had been taking singulair for allergies and ear pain, for over a year. Did my doctor once ask me about any of the side effect, NO!! This is not ok. My son suffered, decrease appetite, weakness, fatigue, mood swings, irritability, fears of being alone, scary dreams, anger, bone and joint pains. Before he was a loving kid (who had his moments)!!! I had no idea the singulair was causing all these destructive side effects. I just thought this is a phase he is going through, he will soon get over it. Finally I took him to his ped. and we did blood work and x rays. I told her something was wrong with him, he has not been himself over the past 6-8 months. This is one reason why I never suspected his singulair, it did not show up immediately. All of his test came back fine. I just happened to look at the side effects of this medicine. I almost died!!! Every single thing that this poor child has suffered from was on this list. Then more, I found this page and other mothers have had the same experience. I was just amazed that this has happened to so many. I was relieved that my son was normal. He has been off singulair for 6 days now (he doesn't know why I took him off it) . But you would not believe the change. It is AMAZING!!! In only 3 days, I started to see change in his anger. You would not ever in a life time believe that a medication can do this. I have been poisoning my son for a year. I think that Merck should take some of that 4.3 BILLION dollars and do some better research!!!! Concerned citizen you are right on. I have read many pages of this forum and I think you are doing a good job researching this. Maybe Merck should hire you as one of there "experienced personal". It just makes me seriously sick to see that the medical field is not seeing this problem!!!

-- By dawniesue80 | Reply | (5) replies | Private Message me

April 16th
2008
2:21 PM

Well, I'll share my story with you, and feel free to comment or ask any questions. I had been taking Yasmin for about 3 years. For the majority that time, I was in college (UCLA) while my long term boyfriend and family were back in the Bay Area. I was extremely depressed, which I presumed to be because I missed my boyfriend, and school was very difficult, etc. However, I had terrible anxiety, to where whenever I went to class, walked the campus, etc, I would have trouble looking up, for fear of making eye contact with others. To ask a question in class made my heart race. I would get terrible lumps in my throat that I could not get rid of. I used to be really outgoing, friends with everyone. But at UCLA for two years, I barely made new friends (maybe 3-5), blaming it on being too busy with my studies. Pretty extreme anxiety. As a child, I was a gymnast and suffered from OCD at one point, probably due to the anxieties of a very strict, mature schedule at such a young age. I guess I've been anxious in some way or another during my whole life, however I feel it was WAY worse during the course of being on Yasmin. I have also suffered from depression in my life, but the worst times were during high school, and during the past few years while on Yasmin. I am not saying I blame Yasmin for these things, but I definitely think it made them worse. I also have been having terrible mood swings, crying spells (to where I felt like I was going crazy), and not feeling like “myself”. I did take a break from the pill after I broke up with my boyfriend, and felt WONDERUL, woke up in a great mood, ready to take on the day, instead of forcing myself to try to start the day happy (which rarely worked). It has been a CHORE to be happy and grateful for my wonderful life (family, friends, good job, own apt., dog) for the past few years.

I stopped taking Yasmin 3 days ago (Sunday the 13th was my first day off of it) and already feel more normal, balanced and myself. Happy, hopeful, more relaxed. Of course this could be “placebo effects”, but I now myself really well, am very in tune with my emotions, etc., and I definitely feel different. I am not rhuminating either, which was another effect.

Does anyone have a similar story? Thanks! -Cassie

-- By csandino | Reply | Private Message me

April 16th
2008
12:10 AM

My 4 year old daughter has been on Singulair daily for approximately 2 months. We started noticing some minor changes in her behavior early on (shyness, separation anxiety, anger, moodiness) but chalked it up to starting a new pre-school and arguing with her older sister. Then about two weeks ago, she started having an obsessive-compulsive type behavior about wiping herself. My first inclination was that she had some type of infection (yeast, UTI, bladder, etc) but all of the tests came back negative. My doctor told us to stop the Singulair, so we have been off for about a week now, but the OCD symptoms haven't lessened. I would say that some of the other behaviors are improving somewhat, but I am not seeing a "whole new kid" effect after being off for one week. Has anyone had a similar experience with OCD type behaviors? I am beside myself with concern! Thanks for any help.

-- By freakedoutmom | Reply | (8) replies | Private Message me

April 12th
2008
1:11 PM

I just got a very condescending private message from a doctor on this site who said that while my articles from Europe are very helpful that I don't know what I am talking about and that I could mislead the public. Then I see how many parents and patients got a condescending attitude from their own doctors.

Well the public has been mislead but it is not my fault. I don't see any experts in this field stepping up to the plate to acknowledge that these side effects exist, have been reported by authorities in other countries, and that these experts are interested in learning why they are happening. This is an extremely widely prescribed medication that involves the lives of millions.

Merck's research director was quoted as saying that they know of no mechanisms by which these side effects could be related to psychiatric adverse drug reactions. That was a flat out LIE. So what if I quoted you a research article from China that was very complicated and yes, could possibly be misinterpreted by somebody? I just needed to give you an example. The only expert so far that had the guts to give you a truthful statement was Dr. J. Douglas Bremner. Thankfully, he corrected a misunderstanding about saying that it was "unclear."

I hope that we will all hang in there and something will be said by somebody, anybody on this site that will make the FDA listen and investigate Singulair (montelukast) all the way back to the very original studies done in test tubes not on people. And, then take a new look at it from the standpoint of what we now know about human genetics. I guess I will keep repeating myself about one size does not fit all.

I would also PRAY that all clinical studies on Singulair (montelukast) would be suspended until the FDA decides why these side effects occur. And that they would issue a statement to doctors to make conservative decisions regarding treatment with Singulair until the results of the investigation have been reported.

I hope that nobody thinks that I am trying to mislead anyone. The answers are either unknown or being hidden by Merck. How would I know the answers? I don't work for Merck. How many other people are out there trying to translate articles in foreign languages to see what's going on? American doctors are calling Merck and being assured that there is nothing to these claims.

I wonder how many experts there are that just don't want to be another Jeffrey Wigand or don't know what is wrong?

I know that I am ranting but somebody should do it.

-- By concernedcitizen | Reply | (6) replies | Private Message me

April 9th
2008
7:07 AM

For those who need some "scientific" documentation to take to their doctors regarding the adverse side effects of Singular - montelukast. This reports from the Netherlands in 2002 does a good job of explaining side effects found in the clinical studies versus those found in post marketing reports. I am disturbed to hear reports that patients are either afraid to talk to their doctors for fear of being ridiculed or their doctors are dismissive of their complaints.

So here is one worth printing for your files.

http://www.lareb.nl/documents/kwb_2002_3_monte.pdf.

-- By concernedcitizen | Reply | Private Message me

April 2th
2008
6:58 AM

Everytime I read these side effects, I am still amazed about how the stories are so similar. My youngest son and I went to the doctor today. I think my son's doctor does a very good job. However, he is still suggesting the Singulair. He checked for updates on Singulair. Since the "FDA" has not sent any information with some of these serious side effects, it is still the green light. That is fine. But, I will not be administering this medication to him or my other child. These stories and my sons' side effects are substantiated enough for me. I think it is a matter of time, and we will all blessed after its findings. I am reading all these side effects again because my youngest son is again sick with diarrhea and puking. This has been happening a lot this year, and he is suppose to be taking the MAP testing. This stresses me since he has missed so much school. Last year, for quite some time he suffered with separation anxiety, and it took my husband and I forever to get him to school. Sometimes when we got him to school, he would not get out of the car. Sometimes we had to go inside with him and negotiate to get him inside the classroom and try to tell him we would be fine. One morning it was two hours, and another morning I finally left the school with him and took him to his father. I was exhausted!!!!!!! The school counselor would try to help too. I just do not think this is my child's disposition......................

-- By 64744 | Reply | (3) replies | Private Message me


 

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