April 10th
2008
5:40 PM
Follow up to my post earlier today...
I took the my son to the doctor this morning and he was somewhat dismissive of the recent reports on Singulair...says he's had a lot of kids on the drug and never heard a peep about side effects until last week when the report on suicidal tendencies showed up. He did advise that when these kinds of behavior changes happen after a new drug is started he would recommend that we stop taking the drug no matter what it was, but I still felt uncomfortable with his response to us.
I felt like he was accusing me of making it up or only coming up with it because of recent news and message board posts. In fact, I made the appointment BEFORE I saw the posts. I was worried about his behavior BEFORE I saw the posts. It's just that seeing the stories from everyone else basically confirmed my suspicions that it might be the drug causing the problems.
I feel like I definitely wasted OVER AN HOUR waiting for a doctor to spend five minutes making me feel small.
Last night was the last time my son will take the drug, and I don't care what the doctors think of me.
-- By adschimek | Reply | (10) replies | Private Message me
April 2th
2008
6:46 PM
I kind of think CNN and the FDA are intellegent enough to figure out that they should NOT get information off this website. What makes everyone think all these posts are real? First you have to weed out the pranksters who post here for fun, then you have to weed out the competitors to Merck who post here to bust chops, and then you have to weed out the ones who really have a psychiatric condition and get their jollies by posting made up stories.....shall I go on? This is the INTERNET people!!! Anyone with one, two or ten verifyable emails can sign up (I have 11 email addresses myself). I have been intrigued to see the same people posting under multiple user names. Then you go to the other boards and see them there. If you really study these messages you can figure them out. So my point is, NOT ALL THESES STORIES ARE REAL. I think I would be generous in saying 25% of these posts are legit. I would hope that no government agency or news agency is going to risk their reputation on a public forum message board.
-- By chris555 | Reply | (14) replies | Private Message me
November 28th
2008
5:49 PM
I got my Mirena fitted 5 weeks ago. After the 1st week I could feel myself starting to become really low, my head began to get ‘foggy’, total lack of motivation and the headache from hell. This peeked at 3 weeks when I became very depressed, snappy, anxious, extreme tiredness, tearful, severe headache and an inability to concentrate – my brain felt it had no depth to focus or absorb anything. I also felt I was standing on the outside, looking in! I had a similar but far milder reaction to the POP so recognized the symptoms immediately.
I went back to the doctor and tearfully explained how I was feeling and how I was convinced it was a reaction to the Mirena. She totally dismissed this and said she felt there was a lot more to it than that and started talking about PN depression. She also said that in the 16 years of fitting the Mirena she had never experienced anyone with these symptoms. I assured her I was not suffering from PND, but in my ‘fragile state’ wasn’t capable of arguing my point and began to wonder if she was actually right, so what a relief to discover this web-site! I also found a great document issued by the New Zealand Medicine and Medical Device Authority, a Government Agency (http://www.medsafe.govt.nz/Consumers/cmi/m/Mirena.htm ) acknowledging that all the side effects I was experiencing were all common occurrences in between 1 and 10 in every 100 patients – it also acknowledges virtually all the other symptoms everyone else is listing and states that ‘These side effects are more common during the first months after insertion’- so why wasn’t my doctor prepared to accept these symptoms when they are officially recognized in other countries? Are the drug company bonuses more important than patient health?
Anyway, 5 weeks on and my mood has lifted, deep down I still feel low, but my normal self is sitting on top of it. I still want to snap at the kids, but I can control the urge to do so! My head is still foggy and I still feel detached from everything, the headache is still there and I still can’t concentrate / absorb anything! My fingers, knees and wrists now get really stiff / sore and the back of my neck aches when I wake every morning. Fortunately, I haven’t had any cramping or much spotting.
I am due to get it checked in 1 weeks time, but have decided to get it out and hopefully get it replaced with a non-hormone coil. Heavy periods seem great compared with how I’m feeling right now!.
-- By helhar | Reply | Private Message meI can’t wait to get back to my old self!.