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Graves disease symptoms and conditions

Here are side effects posted by other members, that mention graves disease.
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100 Side Effects posted for graves disease

October 18th
2009
7:59 PM

Glad I found you all. I have a couple questions. I am on 5mg Lisinopril and am already weaning myself off. What other meds do you recommend for blood pressure? Can we just stop taking it? I've only been on it for a couple weeks. I check my b/p daily and it is usually good. So I don't believe I have "high" b/p. I think it went up during pain and stress and my doc decided to keep it in check. I've been getting a lot of headaches and dizziness. I also have MS and Graves disease. So I'm confused and complicated.

Thanks

-- By peacockgirl | Reply | (2) replies | Private Message me

July 28th
2009
3:34 PM

Murdered by Levaquin.
This may be hard so bear with me. I need to give you a little background to show what an injustice (criminal you be the judge) happened to my soulmate. Her lifelong dream was a humble little spot in the wilderness and at 58 and on a disability we were able to make that happen; and she was happier than I'd seen her in years. Existing conditions included depression, anxiety, fibromyalga and chronic fatigue, and a thyroid condition that she got from over radiation for Graves disease many yrs. ago. Oct. 07 she came down with pnemonia and made a trip to ER. the Dr. saw something he didn't like so prescribed Levaquin. She left there sure she had lung cancer. Three days into a 10 day course her lower extremities became extremely painful and swollen, a call to her GP was never returned. We thought she was experiencing some effects of pneumonia or cancer. 2-3 wks. later a dr. appt. where she was in such bad shape she had to wear my shoes and be carried from car to wheelchair she could barely walk. An alternate dr. saw her. got xrays prescribed more levaquin and prescribed water pills for her swollen lower extremities. 2-3 weeks later side effects much worse has now traveled up to her midsection (peripheral neuropathy) she is now wheelchair bond going to dr. office and guess what lung hasn't cleared up yet so more levaquin with no solution or idea what is happening to her body ( she was terrified and in horrific pain. So she was prescribed 3 courses of levaquin and ignored the blatant side effects. The next several months at home were hell, the neuropathy continued up her body, she could no longer feed herself or hold anything in her hands. Every day the pain and frustration were unbearable and she cried for hours at a time. I couldn't get her to go to hospital as by now we knew what we were dealing with PN and it is irreversible and she knew she was dying and if she left she'd never see her dream home again. We finally got her to the hospital, they wouldn't accept my Achumes Razor and suggested numerous things conducted numerous tests including a Gallum scan and still no answers. She deteriated fast. She was within a week about 63 pounds and suffering severe sycosis with hallucinations. She experienced depersonalization. She had severe pain to the touch. I now know she is going to die and I'd promised her I'd never let her die in an institution but we could get no home care. They now wanted to kick her out of hospital after 3 months and suggested a hospice and although terminal she was undiagnosed so did not qualify. I have seen both parents a brother and numerous people die from a variety of ailments but this was truly a horror show esp. the psycosis and pain she was in. It scarred my heart and soul forever. No insurance so I am fighting to keep our dream home and keep her memory alive, made it a year but the future is uncertain. She died July 5 07, 2 days after she died the FDA put out a black box warning label so how come every time i insisted it was that poison they would not take me seriously. I now know what drives people over the edge to retaliate in some way. In Canada I don't think there is any class action happening, but in everybody that knew about it it would appear like gross negligence at least giving it to her 3 times after showing adverse reactions after first course. She was stolen away form me and her daughter just as she had reached peace and serenity. It breaks my heart continually and I don't know what to do with this rage I feel. It is now 13 months and no autopsy, apparently a hold up at pathology. Feel free to comment I really can't believe she's gone I haven't disposed of anything or even changed the house in any way.
M.

-- By holeinmyheart | Reply | (3) replies | Private Message me

July 25th
2009
8:47 PM

Hi, my name is Eva and I am 27 years old.
I am a mother of 2 and had Mirena IUD inserted a few months after my 2nd daughter was born. This was 3 1/2 years ago.
Since then I have developed Eczema on my hands (which is the least of my concerns). More importantly I was diagnosed with Graves' Disease (hyperactive thyroid function) last year.
I had developed a goiter on my neck (enlarged Thyroid) , my hair was very brittle & my eyes were always dry and itchy.
Since then I have undergone Radioactive iodine treatment to destroy my thyroid. Reading all of your posts seriously made me angry and I teared up because I definitely think that there is a link between Mirena and thyroid problems. It makes sense that your body would try and fight off any foreign object in your body and maybe that send the thyroid into a out of whack mode ?
I am currently researching if there are any clinical studies out there on this possible connection. If anyone would like to join me - pls. contact me at ******
I have an appointment to have my Mirena removed in a few days, I sincerely hope that it will make a difference in my health.
Best regards,
E.

-- By germangirl | Reply | (2) replies | Private Message me

June 23th
2009
5:17 PM

Hi, I just wanted to add that I have had my mirena for 16 months and it's not been easy. For the first three months I bled continuously and was so run down I couldn't fight off a case of strep throat which caused me to develop Graves Disease (overactive Thyroid) that was12 months ago. I then had a 21 day cycle for 4 months and was utterly exhausted. In the last 3 months have had severe bloating and acne, terrible cramps and nausea. I have only gained 4 pounds but can no longer wear any of my trousers it's so bad. I saw my dermatologist today and she confirmed I now have acne, but said it's unrelated to the mirena - I have to start a 4 month course of antibiotics. It's really getting me down, what are you supposed to live with horrendously heavy periods or the terrible side effects of the mirena?

-- By mishmask_uk | Reply | Private Message me

March 13th
2009
4:35 AM

Wow! Let me tell you my story: I was first diagnosed with HBP (170/140) during a high school sports physical in the beginning of 8th grade (I was about 14 years old). I was in top shape and a very healthy eater. I had probably (from what I remember) every test done to see what was the cause of this hypertension - and the only thing found was that my kidney's produce too much rennin (the hormone that increases BP). I was then put on Lisinopril 10mg. Everything continued well for about 6 years - I also stayed in shape and ate healthy. However, throughout those 6 years, I did notice my curly hair turning straight and my incredibly (can't do nothing with) thick hair started to thin and become style able. Now...I do know this is my fault, but in the past 2 years my healthy eating habits have slipped, I've gained weight and started smoking - plus have a sit down, don't move kind of job. However, about 1 year ago, I had a slight spike in my pressure and my doctor added a diuretic (HCTZ 12.5mg) to my lisinopril. Ok, that brought the pressure down and all seemed well. Then..... In December 2008, not long ago, I started not feeling well. Thinking I was sick, I went to the doctor's to find my blood pressure to be 190/140. Immediately, my does was increased to 30-12.5mg. That brought a quick drop in my BP down to 110/66 - I was so darn dizzy I could barely function. I was also but on short-term disability because all this caused me to be off work for so long. Unfortunately, when my dose was adjusted to 20-12.5mg and the dizziness stopped I went back to work. Now, I can't go back on S.T.D. for many, many weeks. And....... The past month has been complete HELL!! My hands (mainly fingers) and toes are almost always cold, I've been dieting for over a month and am struggling to lose weight, my hands and feet go numb more often than usual - I never used to find myself waking up in the middle of the night because of pins/needles feeling, my hair is thinner than ever and stick straight - I'm afraid I'm not going to have any left, I have UNBEARABLE headaches (sometimes all I want to do is sleep and sometimes, like tonight -it's 4:12am- I can't sleep), I have acne like a teenager - mind you, I never had more than 1 to 2 pimples at a time growing up, and that was rare (I was lucky)... Thank god for FMLA or I would have lost my job since I've spent so much time home since I thought all was good and went back to work. Only wish I could make a dollar again. Now to top it off...I was referred to a nephrologist (kidney specialist) who after seeing me only once for about 30min and reviewing blood work from the end of January (I had a high calcium level as well as some others that deal with the kidneys) wants to take away the diuretic (HCTZ) part of my medication (hopefully to reduce the calcium level) BUT DOUBLE MY MG OF LISINOPRIL. HE WANTS ME TO TAKE 20MG TWO TIMES A DAY. I was starting to think all these new symptoms that came on so quick were a result from the increase of lisinopril - now I think I'm sure. I'm not changing my medications until I can talk this over with my PCP - I'm going to ask we try a medication change. Does anyone have any suggestions? Or any suggestions why a 20-year-old has blood pressure as high as 190/140 with no family history of HBP or really any health problems? Any suggestions why the kidneys are producing too much rennin? Any meds that drop the pressure and we don't get headaches - I can live with cold limbs and numbness - it's the headaches that are rendering this 24-year-old helpless :(

-- By alyssa07 | Reply | (2) replies | Private Message me

February 9th
2009
3:15 PM

Has anyone had extremely painful, deep, inner bursts in/around a certain side of their pelvic area? Its hard to explain the pain I have been getting since I got Mirena inserted one year ago but I cant take it anymore. Usually when I am constipated it gets worse. It feels better when I lay down. It comes and goes and when it comes I cant take it. It is a pain I have never felt before?

Has anyone else ever had this happen?

-- By aleonard2 | Reply | (6) replies | Private Message me

December 20th
2008
12:21 AM

51 year female, History of Hyperthyroid disease (Graves disease) treated with radiation in 1984, now have Hypothyroid taking 100MCG Synthroid. Began 20mg of Simvastatin 4 weeks ago. Developed mild rash, hives off and on but that was normal anyway so I didn't think anything of it. In the 3rd week a Co-worker noticed that I was walking a little stiff and thought my foot problem was back but I mentioned my knees felt strange. Again this is normal with the cold weather here. This week my knees and calves were swollen and I could hardly walk down the stairs. I called Urgent care and they told me to stop taking the Simvastatin. It's been two days and I feel better but I wonder if my joints will ever be the same? Will I walk normal again? What's next if I can't take statin's? Red Rice Yeast has been banned.

-- By wildcat1998 | Reply | Private Message me

December 13th
2008
8:16 PM

Im 17 years old and started getting sick a lot after getting my period at the age of 13. after numerous tests, and 2 years later i was diagnosed with both hashimotoes and graves disease. the doctors put me on synthroid and for a week i felt great. then after that i no longer wanted to take it. i didn't like the way it made me feel. i've been on the medication now for 2 years and my hair is so thin. it keeps falling out, and its very noticeable. i get a lot of headaches and severe cramps. i'm almost always tired. i get my levels checked every two months like the doctor wants. they are regular. anyone else feel the same? my mom is considering switching doctors.

-- By owenskate | Reply | (2) replies | Private Message me

December 5th
2008
10:33 AM

I had my demon mirena inserted in July 2004 after the birth of my son. Since then my life has been one nightmare after another. I have had body/muscle aches, swelling in ankles and hands. Slight fever all the time, skin rashes, dizziness, depression, my hair texture changed, insomnia, and night sweats. I was so tired I couldn't even do normal daily activities. My mood swings were so severe I began to think I was bipolar. I have been to about 15 different doctors over the past 4 years and I have been diagnosed with everything from Rheumatoid Arthritis to Lupus to Graves Disease and after finding this blog and others I know realize it's my Mirena! I called my doctor and am having it removed ASAP! She agreed that is was more than likely the mirena that has been ruining my life for the past 4 years. I didn't equate my symptoms with the mirena because they didn't start until about 7 months after I had it inserted. It was SO not worth it. I would have MUCH rather had another child than to go through all this misery for four years. I can not wait to get this thing out of my body.

-- By candygurl | Reply | (2) replies | Private Message me

October 12th
2008
6:46 PM

I have had a merina in for 12 months to reduce heavy periods as tehre was no change I went back to the doctors to have it removed only to find it had been out of position, so had another one inserted and some blood tests as i was feeling unwell, depressed,weight gain,itching eyes, feeling cold, insomnia,heart palpitations,headaches the tests showed i had hyperthyroidism yet i had more symptoms of hypothyroidism i feel this was caused by mirena but the doctors deny it yet looking into different sites the above symptoms are very common so i don't know if i feel unwell due to the merina of the thyroid will be going to the specialist this week hopefully to find out has anyone else had hyperthyroidism diagnosed while on mirena

-- By portresort | Reply | (6) replies | Private Message me

September 30th
2008
6:54 PM

Graves Disease patient going in remission.
I have experienced all the same symptoms as every one else
leg cramps, exhaustion, loss of sex drive, anxiety/panic attacks,weight gain, hair loss, horrible terrible rash on feet and palms of hands I could go on.
My concern is my doctor taking me off PTU and has not mentioned the Toprol. I understand that stopping increases your risk of a heart attack so what's next?

-- By nobodyspecial | Reply | Private Message me

September 18th
2008
3:10 AM

Wow! I think i have just solved my problem(s)...i am 33 yr old healthy level headed woman,only med taken was ortho-tricyclen.
I began taking YASMIN 06/08, felt o.k. til beginning of July/08 when i switched to OCELLA. I began to experience some strange symptoms. I had eye pain, nausea, blurred vision,vomiting. 08/08 began getting severe headaches which lasted all day. then the eye pain became more severe. ended up going to several medical doctors, put on antibiotics, cat scan, just got my blood checked yesterday for graves disease /thyroid and addisons disease! i was thinking tonight what is making me feel this way... it dawned on me that i had a change in birth control and that is when all these symptoms started to occur. I really believe this is the answer, i don't think i have any disorder/disease i believe this pill has some serious problems. i fear that we will soon hear that it is pulled from the market due to some disease/disorder inducing side effects! I can not believe i found this-probably saved my life or maybe prevented something horrible from happening to me. i just hope i don't have any lasting effects from it:( i am still awaiting my test results...

-- By 33yroldwmn | Reply | (1) replies | Private Message me

June 30th
2008
5:05 PM

I was diagnosed with graves disease last year, I had a really acute case that turned me into a total nut job.
In October after going through several thyroid storms and the doctors not being able to keep me stable with medications, I had a full thyroidectomy in October.
I started on .100 mcg of levothyroxine and then the dosage was gradually decreased, I started having a lot of random body aches, mood swings, lots of muscular pains and no energy.
They ended up raising my dosage and detected that I had a large vitamin D deficiency, after several treatments of taking 50,000 units of vitamin D, and also adding my levothyroxine dosage I started feeling better. I still have mood swings here and there, and feel sad periodically, but the last month or so I've been feeling more fine than I have in a long time. They have me on .170 mcg of levothyroxine for two months now. Last week I started getting headaches more frequently, and one of the times I got this nose bleed.
This past weekend I got a headache, and then later that night I had another nose bleed.
I don't usually get nose bleeds or this many headaches so I'm a little concerned.
Also the last time I was getting headaches and constant nosebleeds was when I was really hyperthyroid.
As far as the doctors go, I'm in between insurances and quite honestly I've been frustrated with both my pcp and endocrinologist...

-- By mostrovsky06 | Reply | (2) replies | Private Message me

June 27th
2008
9:32 PM

I needed Metoprolol Tartrate for a very high heart rate for graves desease, I was in the 115's+ lowered too 8o beats per min. Which is great!
BUT, having some horrid side effects.
BAD night chills, intolerance to cold. Shake for 3+ hours then sweat. Feels like I was hit by a train after then I get very nauseasous and light headed
Sleep is bad, toss and turn all night and have a greater fear of the dark
ALSO, my bones hurt all the time!! Never did before, had tests done nothing there.
This is the only drug I could find that didn't make my heart flutter and feel all funky. Its a great drug for just that. All the side effects suck..bad

-- By lifesimpressions | Reply | (3) replies | Private Message me

May 19th
2008
2:51 PM

I started taking the generic of Toprol (metaprolol) 3 months ago. I'm on 150mg per day for a rapid heartbeat, I'm 39 years old. It has helped my heart problems but I don't know if the side effects are worth it. I experience major fatigue that may last a week at a time and subside for a few days, aches in my back and neck (which I've learned may also be attributed to the Lipitor that I am also on), and my worse symptom is constant diarrhea. Some days I will run to the BR 15 times in one day. It seems to subside by dinner time, but that is probably because I stay away from food all afternoon. I'm fortunate that I am a stay at home mom I can't imagine having to go to work in this condition!

-- By kstranahan | Reply | (2) replies | Private Message me

March 10th
2008
7:34 AM

Not sure if it is related, but I developed an overactive thyroid disorder (Graves Disease) shortly after I used Betadine throat gargle for the first time. I followed the directions correctly, although I did use up the entire bottle over a period of a couple of weeks.

-- By bec_ford | Reply | Private Message me

February 6th
2008
5:22 AM

Hi all x l started taking levo in Sept 04 along side ptu for graves disease... I've never felt well since! Had thyroid removed July 07 remained on levo and l am going down hill fast!! I read about myself in all the posts here from the stomach problems to the muscles spasms etc etc etc if l remember right this all started back when levo was given to me as part of black and replace.....

-- By niecsey | Reply | Private Message me

January 27th
2008
1:09 PM

I was on Topamax for 10 days with a few minor side effects but nothing serious enough to quit it. My husband and I went to the library about 6pm. I am 46 and never wore corrective lenses but was noticing that the shelves farther away were blurry, I didn't worry too much since I had been having ongoing thyroid problems and figured my eyes were swelling (though that normally happened only in the mornings). By the time we got home and were sitting down to dinner I noticed that when standing in the kitchen the people in the other room were completely blurry. By 11 pm I could only see clearly within 18 inches of my face.

I awoke at 2 am with a severe headache and almost complete blurriness, I had to hold the pill bottle very close to my eye to be sure it was correct and even then could not be sure. My husband gave me the meds and I went back to sleep. I didn't wake up until 1pm!!! When I awoke all light was painfully bright and I could see NOTHING clearly! I was rushed to the hospital and was diagnosed with acute angle-closure glaucoma caused by TOPAMAX!!!

Thankfully the docs were able to reverse the symptoms but said one more day I would have been permanently blind. My eyesight has never returned fully, though I can function just fine and do not feel depressed about it.

Please, be very careful on Topamax. The stuff is dangerous to many people though a life-saver for so many others. Also, may I suggest to those with the tingling that you get your calcium levels checked as this is a classic symptom of low calcium. I just wonder how Topamax affects the other body systems, such as the adrenal and parathyroids.

-- By fibro_fog | Reply | (1) replies | Private Message me

October 1th
2007
8:16 AM

When a class action lawsuit is filed, let me know....this drug should be taken of off the market immediately. We started all of this with an OB/GYN that prescribed this “miracle pill” and now have had to go not only to our primary doctor, but also a psychiatrist, gastrenologist, college campus counselors, psychologists, psychiatrist, and the campus medical doctors; All the while, accumulating enormous doctor bills. All the doctors say, "No, Yasmin won't cause those problems" (except the college campus doctors..wonder why? Hmm.. could it be that they are not in private practice?)....well, I beg to differ. Everyone needs to give this website to their doctor so the doctors can hear from the patients that have taken this drug, and not listen to the pharmaceutical companies that are pushing this drug to be the "miracle pill". Maybe if enough people complain and go to the media, we can get rid of this drug!
My daughter who is 18 was put on Yasmin because of irregular periods, hormonal imbalance, etc. We were told it was the new “miracle pill”. It will make you loose weight, regulate your periods, clear up acne, you name it, it will fix it. Yeah, right.
She started taking this pill in March 2007. She was off at college but called to tell me she was experiencing horrible headaches, behind the eyes. She complained about her stomach hurting, but we just figured it was the stress of freshman year at college. Then she said she got where she couldn’t eat when she went to a restaurant. When she came home in May for the summer, I noticed a total personality change. For example, she was always a neat freak, and now she wouldn’t clean her room. The first day when she drove home, she started crying she was so mad about the traffic. Yes, she has always had a little road rage, but this was ridiculous.
By June, not only could she not be in crowds, like at a restaurant, but now she is having full blown panic attacks and IBS. We called the OBGYN and they said, “Yasmin won’t cause this, go see your primary doctor”. I knew that the only thing that had changed with her was taking the YASMINE. I knew it had something to do with all of this so I “Googled Yasmin” and this website (http://www.medications.com/se/yasmin) was the first one I looked at. All of her symptoms matched everyone else’s! I am so glad we found this website, it explained everything and I had her to stop Yasmin immediately.
So we went to the primary doctor, explained about the Yasmin and how we thought it was the culprit of everything. Of course this doctor also says, “Yasmin won’t cause that”. We told him to look it up on the internet and see how there are over 3000 complaints on this drug, more than any of the other drugs on the market.
Besides the emotional problems she starting having, her pulse and blood pressure was sky high, so he puts her on medicine for that, and puts her on an anxiety medicine and sends her to a psychiatrist. She is very thirsty all the time, and develops IBS. She can’t eat without having pains in her stomach. So, now we’ve have gone from having just irregular periods, to all of the above, plus a psychiatrist.
The psychiatrist doubles her medicine (and puts her Pamine for the IBS) because the panic attacks are gone, but she still is having a lot of nervousness, anxiety, can’t sleep at night, crazy thoughts, worrying all the time, etc. A month later he changes her medicine again, to Effexor. The first 2 weeks, she does okay, but the packet doubles the strength after 2 weeks. It takes 4 weeks for it to take full effect. Right after she doubles this medicine, it is like her senses are on hyper-mode. She can taste everything that is in her food (chili powder, seasonings, etc…), taste the metal in water, and she can hear someone’s phone vibrating, in another room.
Then she goes back to college at the end of August 2007, and it’s horrible. The Effexor is having bad, bad side effects. We called the psychiatrist that she was using at home and he doubled the dose. That was the worse thing they could’ve done. The side effects were worse than ever. I had her to immediately go to a psychiatrist on campus. She told him the whole story and he believed her! Needless to say we switched doctors. He then lowered her dose back down to ½ a dose and hopefully can slowly get her off of all this medicine.
The newest thing she has developed is being hypoglycemic. The campus psychiatrist sent her to a campus medical doctor and he told her that they would get to the bottom of this. He tested her for everything under the sun. Low blood sugar is the only thing they found. But, she hasn’t taken the Yasmin since May. No telling what the results would have came back like if it was done at the time she was taking Yasmin.
Thank goodness she has counselors and doctors there at the campus that believes that Yasmin can cause all of these problems, and are working with her. From what I have read from the people that have used this medicine, although most doctors do not agree, Yasmin takes like 6 months to get out of your system. I think I am going to believe the testimonials of the people who take this medicine, over a doctor who prescribes it.
If everyone goes to the media, their doctors, the FDA, congressmen, and make them aware of these horrible effects, surely we can get this drug off of the market! Does anyone know a class action lawyer that would pursue this? For my child to have to go through all of this is ridiculous, not to mention costly. What do we know of the long term effects this drug will have if it is doing all of this when you first start taking it?
If you have the same concerns as me about this drug, and would be interested in looking into a class action lawsuit, please email: ****** I would be interested to see how many would want to pursue this.

-- By taylorwilldo | Reply | (32) replies | Private Message me

September 24th
2007
1:45 PM

I was prescribed 25 MCG tabs of levothyroxine (generic for Levoxyl) by my MD for my hypothyroid. (I was tested at a 4.5 reading -- just below a normal 5 reading). After 60 days of taking levothyroxine EXACTLY as prescribed (i.e.; on an empty stomach, 1st thing in the morning with a glass of water; no vitamins for at least 4 hrs afterward), I started to have symptoms that I've never experienced before: my hands began hurting so bad with joint pain; my lips felt numb; and I was sweating more than I ever had in my life. I decided to stop taking the medication due to these symptoms, and in about 7-10 days from stopping, ALL these symptoms had disappeared and have not returned to date. I relayed this information to my MD who told me that my symptoms had nothing to do with Levothyroxine and that I needed to continue taking the drug. It's more than strange to me how some MDs will not listen to his/her patient -- even more so now that I've read other info on the internet where many other people have had these same side effects taking levothyroxine!! On my own, I am now looking into taking an all natural alternative that I found on wellness resources called "Thyroid helper". I will not take Levothyroxine again if I can avoid it by taking an alternative. Has anyone else out there had success taking "Thyroid Helper"?

-- By maggb1 | Reply | (10) replies | Private Message me

August 15th
2007
12:55 PM

I am extremely hot and sweaty, memory loss, fatigue, aching hands, dizzy at times and most recently had a fainting spell (black out) while I was attending a movie -- it started with dizziness and then I became totally burning up hot and wet with sweat so much so that my hair was wet -- this lasted about 1/2 hour and ended with the dry heaves. Please let me know if anyone has experienced this. I had my thyroid blasted with radioactive iodine about 3 years ago (Graves Disease) and I have been hotter than blazes since that time. I am on 112mcg of levoxyl

-- By lrm007 | Reply | (1) replies | Private Message me

June 26th
2007
7:39 PM

i've been on synthroid for 9 years. started at some low dose and gradually went up to112 mg. get extreme itching all day everyday if i don't take allegra for that.not a rash just itching. that doesn't bother me as much as the fatique. every joint in my body aches all the time. sure there are better days but fo rthe most part it's bad. tried physical therapy and chiripratic care but no avail. they ended my sessions. my legs get sooo weak and my feet burn lower back really aches. sometimes muscle cramps. i'm very negative towards my loving family and it hurts me to do so. can't seem to keep upbeat. soo tired all the time.
is it the syntroid? i used to be very energenic and a doer. now i have spurts of activity in the morning , but then i just can't get motivated. help me any suggestions?

-- By simo | Reply | (19) replies | Private Message me

June 23th
2007
10:32 PM

I take 5 mcg of cytomel a day. I have symptons like "hayfever". Sneezing,runny nose, sinus drainage, my eyes are sometimes itchy,burning, watery. The glands around my neck swell a little, my jaws hurt, and the inside of my ears itch. The PA in my doctors office said to contiue to try and take it for 2 weeks to see if the symptons ease off. I have started taking cytomel 3 different times and stopped because of the above symptons. I just can't see being this miserable for 2 weeks. I also take 150 mcg of syntroid once a day. I had diagnosed with graves disease in 1994 they gave me radiactive iodine to stop my thyroid from functioning.

-- By elewallen | Reply | Private Message me

April 30th
2007
10:00 AM

I think what a lot of people are posting here are more side effects of thyroid conditions rather than side effects of thyroid medication. After my RAI treatment I started on a generic brand of levothyroxine. I even got my doctor to let me try Armour Thyroid since many people do well with it rather than Synthroid. Armour didn't work well for me, but it definitely is the only way to go for some people. After months of misery, things finally smoothed out. I was a royal pain in the butt to my doctor because I questioned everything. The biggest side effect for me going from hyper to hypo was edema. A clinical name for water retention. It wasn't so much the bloated feeling that bugged me. It was the pain in my hands and feet from the water retention. I have never, ever had a problem with carpal tunnel syptoms even though I have always used my hands a lot for work and I play the guitar. I had to add a small dose of dieuretic to control the edema and relieve the hand and feet pain. Sometimes it does flair up depending upon what I eat and how much I sweat, but that's what goes along with this type of illness. It's not just a magic pill that makes you feel "back to normal". You have to be demanding of your doctor to try other things to get you to feel right. You even have to pay attention to how you feel at different times of the year to figure out how to adjust what you take, eat, or do to feel better. I have noticed that with all things remaining constant, how I feel in terms of energy level and edema is related to the season. The body is weird that way. I still have side effects from the treatment from time to time, but I finally figured out what seems to work best for me. Maybe things could change over time, but I've learned that medicine just doesn't have a black and white treatment plan that works the same for everyone for thyroid related conditions. To sum it up, question everything your doctor tells you, demand to try things that you think would help you feel right, pay attention to what your body is telling you and adjust, and fire your doctor if they treat thyroid problems as black and white. Your doctor is not the one suffering from the condition, you are. It's your life and there's nothing wrong with being demanding about wanting to feel right.

-- By lunchham | Reply | (2) replies | Private Message me

December 27th
2006
5:37 AM

I have been on this medication for a year now. It has helped my Blood Pressure but I do have a lot of the side effects listed here. I have a dry cough all the time and I am haveing a terrible time with blurry or duouble vision. I am not sure if this is from the meds or from the Graves Disease but I do know that I see double a lot. I also have a lot of headaches, dry itchy skin around my eyes. The biggest problem I have is that I am allways tired. I feel like I have just run a marathon all the time. I just want to sit around and do nothing and that is not me at all. I try to stay busy but for the ost part I am content to sit around, listen and not talk to people and again that does not fit my Type "A" personality at all.

-- By rminn1 | Reply | Private Message me


 

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