December 2th
2008
11:50 PM
My Mom (87) who was in great health given her age, was given Avelox for a urinary tract infection. She has developed severe side effects that include shortness of breath,chest pressure, (not chest pain)swelling of her esophagus & eye lids, confusion/agitation, dry mouth,complaints of twitching in her mouth.
The worse case of all the symptoms has been the swelling of the esophagus and eyelids. Her eyes are swollen shut and she labors to swallow & talk. Eating is a monumental task.
She is currently hospitalized and the medical team seems to be having a hard time accepting this as an allergic reaction to the Avelox. They have run series of tests to look for other things such as pnuenomina, heart issues and stroke issues. So far the tests have revealed nothing out of the ordinary. One would think that they would start treatment with steroids or another anti-allergic treatment but they seemed convinced that the Avelox is a non issue because she only took 2 doses @ 400 mg each starting Saturday & Sunday (11/29-30). This ordeal started Sunday early evening.
If anyone else has experienced specifically swelling of the throat & eyes please post!
February 20th
2008
11:06 PM
This is a total nightmare and i need advice! I was on Lamictal for a year and about six months into my health began to slowly deteriorate. It started with shortness of breath and heart palpitations and eventually attacked every system of my body. My symptoms are muscle pain, spasms and knots to the point that i can't turn my neck sometimes, joint pain (mostly knees), stabbing floating pain everywhere, headaches, frightening tingling in my extremities and a few times my entire body, sore throat, flu-like feelings, stomach cramps, bloating and heartburn. The list goes on. I have been off of it now for two weeks. My psychiatrist has never seen this type of reaction before and is not convinced it is the Lamictal. I have been to every single type of doctor and the ER twice, had extensive lab work, CT scan and two MRIs. I have been off Lamictal now for two weeks and am not feeling much relief. I am so scared and frustrated and please need advice. Has anyone else experienced this? Does it ever go away? I feel like I am literally living a nightmare with no-one to turn to for advice because no-one seems to know ANYTHING!!!!
-- By humphrsa23 | Reply | (13) replies | Private Message me
September 30th
2007
11:28 AM
I am a 56 year old female who was very active ranching, balng hay taking care of irrigation etc. 3 years ago I had pain in my left arm and my heart was racing went to the E.R. where they did a 12 lead ekg. Could not find anything wrong other than my blood pressure was up to 160/90 they gave me ToprolXl 100 mg and told me to see my primary care physcian. Which I did. He continued the medication.
Since that time I have complained to all of the symtoms I have seen on this site. With one exception. Two months ago I was watching TV and had double vision. It only lasted for a few seconds but noticed the next day my peripheral vision was gone. I made an appt with an opthomologist and he spent 3 hours with me and recommended an MRI which was conducted some 2 weeks later. I was referred to a neurologist who ran a lot of blood work. My first batch of blood work showed a raging inflamation. They started testing for MS, lymes, lupus etc. Last week i met with my neurologist for the follow up blood work report. Everything is normal he says but by the way you have myathenia gravis. You get double vision again you call me I will give you medicine. Like I am a two year old.
I have researched myasthenia and the one thing you dont want to do is be on a beta blocker or a calcium channel blocker, as both of these will aggravate the condition. I called him to ask that he change my blood pressure medication. He says I wont do that. My primary care physcian is no longer in practice with the original medical group and has left the area. I saw him only 2 weeks ago and nothing was mentioned. The point is folks Don't trust anyone. Oh and by the way the side effects you are seeing mimic myasthenia gravis. Now no one knows what causes it for sure. Stress is a factor. But if you have not been tested get yourself tested. I may not even have this disease but I am getting off this medication and I am going to find out for sure what in the heck is going on. By the way I have seen a cardiologist last month without a referral because I wanted answers and he says there is absolutely nothing wrong with my heart...so why was I put on this medication? Heaven help us all.
-- By rawson | Reply | (3) replies | Private Message me
February 1th
2006
11:51 AM
My husband is diabetic and has mysdthenia gravis. Today he started with 60mg of prednisome for 2 weeks and then is to take 40 mg. for 2 weeks. The doctor said he may have side effects. He could get better as the myasthenia is now affecting his speech and swallowing when eating or get worse and need to go to the hospital as a result of taking the prednisone.
Does any one have mysasthenia gravis and taking prednisone and has it helped?
July 28th
2005
11:42 AM
Muscle weakness, dry eyes, fatigue.
My dad has been on Lipitor for at least 3.5 yrs. He started getting muscle weakness in arms and legs and last week it had progressed to him being wheelchair bound. He was getting muscle weakness when on Lipitor and went to two Drs. which one diagnosed him with Myastemia gravis and the other with Lou Gehrings disease. He finally went to a third Dr. last week and she got him off Lipitor. Between the three Drs they had him on prednisone, mestinon etc, totalling 8 different medicines. Family members finally told the Drs to get him off all medicine except an aspirin and vitamins. He is starting to respond, not slurring speech, more movement in arms and looks much better. Hope he can get his life back.
Toprol-XL (1) PredniSONE (1) Avelox (1) Lamictal (1) Lipitor (1) Azathioprine (1) Lisinopril (1)
May 13th
2009
11:53 PM
I have been on lisinopril since december 08 for hypertention. My symptoms didn't appear immediatly. But as time went by, I started to notice extreme fatigue and a dry hacking cough. I ignored it at first because I was diagnosed in april of 08 with myastenia gravis. I thought it was just complications with my illness. So I told my internist about my symptoms and of course at first he wanted to blame it on allergies and sinus. I have never been so bothered with allergies in all of my 39 years so I new it had to be the pill. I have recently been to my doctor with continued complaints so he has taken me off of the pill and wants to see me back in 2weeks.
-- By msjmbrown1 | Reply | (1) replies | Private Message me