August 5th
2009
11:54 AM
I have had mirena since July of 2006.. I never thought about the things I was feeling could be related until I just read your blogs! I constantly feel pregnant and I am talking all the symptoms!!! Bloating and stomach pains included! Depression, anxiety, sleepiness here lately, severe back pain, numbness.. I am almost 25 and thought some of these problems were growing pains(I know that probably sounds nuts). Please if anyone has a suggestion as far as what I should do here is my e-mail address ******! I need advice and it looks like the doctor's just want to make a buck!!
Thanks,
R.
July 28th
2009
2:01 PM
My son was put onto 4mg Singulair when he was three years old. He is now six years old. For the past three years he has been a very quiet child, to the point that people commented on how shy and withdrawn he was. He never wanted to go anywhere or do anything. His favorite activity was lying on the couch watching tv. He was always thirsty, frequently went to the toilet,often complained of a sore stomach & had several bowel movements every day, did not sleep well at night, was often grumpy, could not concentrate for very long, was frequently ill with cold-like symptoms and did not really like you to touch/hug him. At the beginning of the year he was diagnosed by an occupational therapist as having low muscle tone. In March of this year, his pediatrician increased his singulair to 5mg. He began having terrible pains in his legs, to the point that he would cry and be unable to walk to the toilet at night. I took him to my GP who did every blood test under the sun and x rays of his pelvis and legs. He could find nothing wrong. The only thing that had changed was the increase in Singulair. I had a look on the internet and found this website. I immediately decreased his dose to 1/2 a tablet for a week and then 1/4 tablet for a week before taking him completely off it. Within a few days our whole family and his teacher and therapist noticed a huge change in his personality! He talks all the time now, he laughs a lot, he loves playing outside and has lots of energy. He teacher says he is much more receptive at school. His occupational therapist says his muscle tone has improved. He has not had one single leg pain since coming off the medication. He is sleeping well at night, his stomach is never sore and he has not been sick at all. Not even one little sniffle!! Best of all he is a normal, affectionate little boy. I feel very angry with the manufacturers of Singulair and with his pediatrician, it feels as though my son has lost three years of being a child. He felt terrible all the time and I had no idea! I have told everyone I know who has a child on singulair to look at the side effects.
-- By bronwynt | Reply | (3) replies | Private Message me
July 27th
2009
10:41 AM
Just finished reading the posts and I feel like it was written about my 8 year old. I never connected the two issues of anxiety, frustration doing schoolwork, quick to tears and leg pains. I kept telling them they were growing pains. Last night he called me from his father's and said he has suicidal thoughts... not that he wanted to kill himself, just couldn't stop thinking about it... good lord. After months of dealing with him not wanting to go to bed and not feeling safe we have an answer. I told my ex husband to stop the medication today, I will post back after a few weeks to update the progress. I usually never post randomly on the internet, but this site might have just saved my son from emotional turmoil!
-- By seg874 | Reply | (3) replies | Private Message me
July 12th
2009
12:53 AM
My eight year old son was diagnosed with mild asthma by our GP and was taking Ventolin for a persistent cough. When this didn't relieve the cough the doctor prescribed Singulair. He started the Singulair in March 2009 and within 2 months we realized that his personality had dramatically changed. It has taken us a while to figure out what was going on because eight year old boys are starting to assert themselves more and I think the side effects have been escalating over the last month. He was angry most of the time, very hateful towards his siblings, saying very dark, nasty, hurtful things. He argued every time we asked him to do something and would snap into a screaming inconsolable emotional wreck at the drop of a hat many times a day over trivial or imagined problems. He was having nightmares and bursts of hyperactivity that were overwhelming. He told us he felt frustrated all the time and hated everything. When we tried to calm him he was unreachable. Just yesterday he had his fist clenched and pulled back ready to punch me when I was trying to help him with a computer problem. He was shaking and his face was contorted with rage and he just wasn't my little boy anymore.
It has been devastating for our family and we were ready to take him to a psychologist. He is normally an incredibly considerate, perceptive, loving child, highly intelligent, helpful and fun loving with a great sense of humor.
He has also complained of leg pains and has been wetting the bed again. It was only yesterday that I began reading about other people's side effects and have taken him off Singulair as of last night. Whilst he has still been argumentative today already the aggressive intensity seems to be easing.
I am absolutely mortified that I allowed this to happen to my son and my family and I am so grateful to others for sharing their experiences.
We still need to address his asthma and will make an appointment with a specialist next week, but given his asthma is so mild he should not have ever had to suffer these side effects.
I only hope now that he has not sustained any long term effects and that his younger brother has not been scarred by the truly horrible things that my son has said to him.
March 26th
2009
9:18 PM
My 16 year old daughter got her first Gardasil shot on January 9th, 2009. Her doctor practically pushed this on us during a routine doctor visit. The dr told us it was safe and would protect my daughter from numerous things. She never once told us of any side effects and made me feel like if I didn't get her vaccinated, I was being a 'bad mom'.
Shortly after the first vaccine, we were in Walmart and my daughter started feeling like she was going to pass out. I thought it was because she hadn't eaten well that day so I bought her a candy bar and she ate it. (She's had several more of these episodes over the last few months.)
Then she started having severe leg pains that I thought were just 'growing pains'.
After the second shot on March 9th, 2009 she started having severe dizzy spells where she would run into things. Again I did not think anything of it other than maybe she hadn't eaten well that day. Then she started having numbness/pain/tingling in both legs and left arm. This is when I received an email about Gardasil that opened my eyes.
I started researching and found out about all these other girls that are having the same, if not worse, symptoms! I was in shock and disbelief.
That same day, Friday, March 20th, 2009, she had an attack that was so bad I had to take her to the ER. At the hospital, they ran blood tests and did a CT scan. All tests came back normal. The doctor there told me not to get the third shot because he said my daughter was having an allergic reaction to the vaccine.
Since Friday, March 20th, I have been researching nonstop. My daughter has been having new symptoms almost daily such as back pain, bladder pain, pain behind both kneecaps, severe weakness, tingling in both legs and left arm, left arm is very weak, nausea, weight loss, etc.
Friday night, she had an episode where her entire body was jerking uncontrollably and she was in pain with her legs and left arm. Her heart was racing so fast and she was having trouble breathing. (she constantly says she feels like she cant get a deep breath and that it hurts).
I was able to get her relaxed enough to go back to sleep.
On Monday, March 23rd, I called her doctor and told them what was going on. They told me to bring her right in. They also said that VARS had contacted them asking for my daughters' medical records. ( I had already reported to VARS before calling the doctor).
At the doctors office, I talked to her doctor about all of these cases and deaths that have been reported. She kept saying it was not the Gardasil. I asked her how she could be so sure, since this is such a NEW vaccine, nobody knows what to expect! She eventually started partially agreeing with me and examined my daughter. She called to get the reports from what the hospital had done and said she wanted to do more bloodwork. I had to take her back in to the dr's office the following day, Tuesday, for more blood to be drawn. They took 6 vials and said we wont have the results for about a week.
I am CERTAIN that my daughter is suffering because of the Gardasil shots!
She was a healthy, happy, vibrant, energetic 16 year old. Now she is tired all the time, weak, sick, and cant do her school work. She is very scared because of what we have found out from other girls.
I'm afraid for what is to come! Every day she seems to have a new symptom.
I found a great support group at ******
They have been a great help to me over these last few days. They have done their homework and are working very hard to get our government to do a thorough investigation into Merck and Gardasil before more of our beautiful daughters are harmed or killed.
I urge everyone to educate yourselves before you vaccinate with Gardasil!
If you want more information or if you want copies of the documents that we have found, including a Warning Letter that was sent from the FDA to Merck last year that found them in violation of NUMEROUS things, come to our ****** group.
March 9th
2009
1:26 PM
I have had two sons on Singular. My three-year old had drastic behavioral changes about a month after starting to take Singulair. He suddenly had severe separation anxiety, was crying and whining all the time, did not want to be alone at all. Normally he is very happy go lucky and we did not see his bright cheerful smile for weeks. I took him to his pediatric doctor and described the behavior and she immediately said to take him off the Singulair. After two weeks, he was back to his normal, happy self. My older son is 5 and has been on Singulair for over a year. I consulted with his allergist right away after my 3-year-old was having trouble. I wanted to take him off the Singulair and he advised against it, because my 5 year old has more serious asthma and allergies. When he first started he had nightmares, and when I mentioned it to a friend whose son is also on Singulair, she said, oh, give it to him in the morning instead of night and that will help with the nightmares. That did help. Yesterday, I decided to take him off of it. It seems like he's always coughing and congested, he complains often of growing pains in his legs that will make him scream and cry and beg for medicine to make the pain go away. He becomes emotionally uncontrollable - i.e. he will have crying jags and when I try to console him or ask him to stop crying he'll say he can't help it and he'll say, "You don't understand, I can't control it." He has also complained of headaches and I wondered how would a 5-year-old even know what a headache is? I feel very naive and am thankful for sites like this because you will not always get this information from your health care providers and also the drug companies. If you are like me, and you've ended up in the emergency room and also calling 911 because your child is having and asthma attack, you be be so afraid you'll give your kids whatever the doctor prescribes and you'll look at it as the lesser of two evils - do you want to be in the emergency room or can you live with the side effects. It has taken me a while to get smart about this. There has to be a better solution out there.
-- By d_b | Reply | (1) replies | Private Message me
January 7th
2009
2:04 AM
Just had laprascopic surgery to remove a borderline ovarian tumor the size of a 6-7 month baby yesterday. I've been taking Lisinopril-HCTZ 10-12.5 for about 2 years now and have posted on this site before regarding my symptoms. Since this med works on the kidneys/adrenal glands and adrenal glands regulate some hormones I am wondering now about the possible connection between this med and my sudden cyst/tumor. The tumor was actually my left ovary enlarged to that size! Although benign, my very first symptom of this cyst started exactly when i began the med. It grew pretty rapid over a two year period. I have found no proof or mention anywhere and every doctor looks at me like I'm crazy, but my entire life I have NEVER had issues with my menstrual cycle or even much pain. After I began this med, I HAD to use ibuprofen every period. I began my cycle at 11 and not until 34 did I have issues - same time I began Lisinopril/HCTZ. Are their any women who are having female problems since taking this? Of course, the heart palpitations, arm and leg aches (like those of growing pains when you were a kid), dizziness, anxiety, depression, irregular sleep habits that I cannot break, increase appetite for mostly meats and proteins, some mild hair loss, abdominal cramping/tingling, hands and feet numbness, shoulder/neck pain, overall achyness, sudden/rash emotional extremes, even suicidal thoughts I know are side effects of this med.
-- By djg315 | Reply | (2) replies | Private Message me
November 10th
2008
2:34 PM
I started getting my shot (im on 2nd), im getting the third one in a month.im only 11 and im maturing very quickly.i'm scared because and i'm feeling pains around the middle waist-to the point to collapsing.i'm having minor headaches.and im nausea and sick a lot.i sometimes have trouble breathing.i wake up in the middle of the night sometimes almost screaming because of the pain.i know it doesn't have to do with my period or growing pains. i haven't told told my parents because im scared they'll overact.ive only told 1 of my bff's. i don't know what to do so please send advice.............is it even this shot!?
thanks, A.
September 25th
2008
7:48 PM
My Daughter is almost 11 and has been on Singulair since the age of 3. She has some very serious signs of anxiety. I was never told of any of the possibilities of these kinds of side effects. As a matter of fact the doctor never discussed any side effects. I only know what I read on the prescription information almost 8 years ago. I am horrified to find out about this information. She has also been complaining for a very long time of spasms and pains in her legs which I have brought up to her doctor and he claims they are and have been growing pains. She came home from school the other day and was devastated over some bullying that had occurred toward her that day. I was heartbroken to listen to this from her knowing I cant be at school to protect her from this unnecessary garbage and at the same time was waiting for the 11 o'clock news on the singulair information. Now reading all of this, I am sincerely concerned about what is really going on in her mind after I watched her get up the next morning on her own at 5:30 a.m., ready by 6:00 in a full blown anxiety attack about going to school, and dreading going period. I will be speaking to her doctor immediately and I will be removing her from this prescription to see if there is a difference.
-- By weatherb11j | Reply | (4) replies | Private Message me
September 23th
2008
12:59 AM
My 9 1/2 yr old son started Singulair in July 2004 when he was 5 yrs old.Looking back now we realize that he started showing signs immediately. We only gave him Singulair in the fall when he had the most trouble with his asthma. His asthma was under control immediately but was not worth the damage that was done. He complained of pains in his legs that I just thought was growing pains. He would sometimes run a fever with no other symptoms of being sick and then the fever would go away. He would also feel like he always had to go to the bathroom, especially after he went to bed. I gave him Singulair at 7pm before he went to bed. The biggest change we noticed in him was the signs of attention deficit. We first noticed that he kept getting out of his seat at dinner time. No matter how many times we told him to sit down he would sit down and then a little while later he would get right back up. We realized after a while that he wasn't doing it to be defient he just couldn't help himself. I asked his Kindergarten teacher if he had trouble sitting in his seat or with attention but she didn't think he was any worse than any of the other Kindergarten kids. In 1st grade, at the beginning of the year, his teacher said he had trouble keeping his attention but then by January she said he was a different kid. We usually stopped giving him Singulair in December. The same thing happened with his 2nd grade teacher. I question his allergist in the fall of 2nd grade but his allergist said Singulair wasn't the cause for his ADHD symptoms. When his 3rd grade teacher contacted us in Oct 07 with the same complaints I realized that it must be the Singulair. I looked online for Singulair side effects and came across this website. I couldn't believe it. I was so disappointed in myself for not doing it sooner but we took him off Singulair immediately. I called his allergist the next morning and questioned him for a second time and he told me that sometimes parents of kids with ADHD just look for something to blame for their childs behavior. I couldn't believe he said it to me. We made an appointment at Children's Hospital Boston to have him evaluated for ADHD just in case but couldn't get an appointment until Feb 08. When we had him evaluated he had been off Singulair for over 3 months. The neurologist said he did not have ADHD. When I asked him if he thought Singulair could have been to blame for the symptoms he was showing and he said there was "compelling evidence" that showed Singulair does cause ADHD symptoms in some children. We were happy that he did not have ADHD but were so sad that we gave him this medicine for 3 years without realizing what damage it was doing. My biggest fear now is that there may be long term damage. All his symptoms have gone away but sometimes he still seems a little out of it and I don't know if it is just his age or his personality or if it might still be some long term effect from the Singulair. He is such a sweet, loving, caring boy and I hope that I didn't do any long term damage by giving his this horrible medicine. I hope that something will be done soon to get this medicine off the market. My prayers go out to all the families who lost children on this medicine. I can't even imagine the pain you are feeling but I thank you for getting your story out and saving other children! I am thankful that I was able to get informed by this website because God knows my allergist wasn't looking out for my son! His asthma has been under control since being off Singulair and just seems like a happier child over all!
Thank you!
September 17th
2008
1:00 AM
Well after reading these posts...I am very sad that I didn't read this before I allowed my 3 year old son to start Singulair! The last month he has been complaining of lower back pain. Just recently, stomach pain as well. Says his head hurts, and at times is not himself. I pick him up from preschool awaiting a very energized little boy to talk nonstop about what he did and he doesn't:( He was put on this med for allergies with Flonase and Zyrtec as needed. I took him to the doctors for this lower back pain and they said it possibly was from playing too hard or growing pains. Trusting our pediatrician I took it as that. My son continued to complain and continued to, at times, seem depressed. I took him to the ER because the last week and a half he has had fevers of 100-102. They said its all viral. I came home, looked Singulair up trying to figure out what was wrong and found all of this. I am so sad I never researched this before and continued to give this to my little boy trusting it to be good for him. Needless to say, I am making another appointment for him tomorrow to discuss other options. Thank you all for the information!
-- By italia2 | Reply | (2) replies | Private Message me
August 19th
2008
11:56 PM
My 6 year old was prescribed singular for allergy relief. After 1 night of taking it he woke up with leg pain. Not too severe, just sore so I thought they were just growing pains. After the 2nd night of the medicine he woke up and his legs hurt so badly that he has a very difficult time walking. We took him off the medice. After the 3rd night with no medication he woke up with a little leg pain, but not anything like the previous day. After the 4th night he was fine and has been fine every since. It had to be the singular. My pediatrician did not have any other children that had had this type of reaction, but said that we should not give it to him again. He said that we should listen to our bodies, and if we don't feel right after medication then we should stop taking it. It was scary for my little boy
-- By bluebunnylala | Reply | Private Message me
August 11th
2008
5:19 PM
I am so thankful to have found this information!!!!! We have an appt tomorrow afternoon because of my 3 1/2 yr old daughters chronic leg pain. It hasn't fit the growing pains symptoms and I have to give her Tylenol or ibuprofen every day - she is inconsolable with pain at times. (She has been on Singulair for 2 years!!!) After reading these situations, I checked singulair's side effects which include 2 other symptoms that my daughter has all the time without explanation - nose bleeds and stomach pain!!! I am taking all this to the doctor appt tomorrow. We missed a nightly dose of Singulair once before and she had to start breathing treatments the next day, every 2 hrs for a few days until we got her breathing under control again. I am anxious as to what our alternatives are and what they're side effects may be....
Thank y'all for sharing your experiences !!!!
July 28th
2008
12:16 PM
I have just come across this website and I am so upset. My 10 year old daughter has been on Singulair for 8 years. Since she was 2 years old. About 3 years ago I spoke to her pediatrician about the fact that I was concerned that she had been on it for so long and about the possible long term side effects. She brushed me off and told me that there weren't any.
Over the years she has complained often of stomach aches and pains. We even had her on Miralax for a couple years because the Dr. was sure it was constipation. The last couple of years she has been complaining of leg cramps and I sort of brushed that off as "growing pains."
She is extremely emotional and has serious mood swings. I even asked her Dr. about ADD and she said it was just her personality. I am almost in tears typing this because I have no way of knowing if her actions are because of her age, her personality, or because of this medication. She has been on it for so long that I wouldn't know what her personality would be if she had never taken it.
Her asthma tends to be seasonal and she hasn't had an attack in years. I took her off the meds as soon as I read about the disturbing side effects that hit too close to home. I am upset that her Dr. never warned me about these side effects (that were not listed on the label) and didn't take my concerns seriously.
She is very small for her age and I was concerned that the medication may have stunted her growth....little did I know there were so many other dangerous side effects. I just hope and pray that she doesn't suffer any long term negative effects from this medication that I have given her, thinking I was helping her.
-- By casibugg | Reply | (2) replies | Private Message me
June 6th
2008
3:17 PM
WOW!!! I am glad I came across this website. I have twin boys that will be 7 this month. One has been on Singulair for about 3 years for allergy induced asthma and my other son has been on it for 9 months for allergies. I am taking them both off of it today. The son that is taking the medicine for 3 years has become increasingly angry and gets upset over small things. Over Memorial weekend, he lost a game he was playing on the wii and exploded. He was banging his head and then started to hit me. NEVER in my life have I seen him attack anyone. A few days later he threw rocks at his friend because he wanted the wagon. Over the past 3 years I have noticed some change in him and just took it as growing pains. He has always been a strong will child. However, over the past 3 years he has gotten worse and since he has physically attacked me and his friend, I have decided to send him to counseling. Now I firmly believe it is the Singulair.
My other son has been on it since August. He started to have anxiety within a month of taking it. His behavior has been stressed, depressed and not wanting to play with other kids. He was biting his nails to a nub, licking his hands, not talking to anyone at school and rubbing his head. I have also noticed he does like to look at the person he is talking too. Of course I thought the worse and thought he was being molested. I went to his Teacher and she has worked very hard with him, but he is still a loner. If you knew him before, he played with everyone and enjoyed life. I was told by his Ped. that he had anxiety and to have him see a shrink.
I am hoping that after taking them both off this medicine, I will see improvement.
-- By nradovcich | Reply | (2) replies | Private Message me
May 15th
2008
12:10 AM
Hello, I've never been on birth control before, but i recently had an abortion and decided I really need to get on some kind of birth control. I am 27, married, and I am a NON-SMOKER. Nuvaring seemed to be the best option for me, easiest, effective and practical. I'm only on my first ring, it comes out for the week break in few days. So far I have NOT had any irritability or headaches, or anything like that. I have gotten a little "spotting" which to me can still be linked to the abortion or even sex. What I DID notice, however, is that I had a few sharp chest pains here and there, quick and not consistent, my husband thinks that could be from stress. I also noticed what I thought to be a pulled muscle in my lower calf could be a sign of a blood clot, which totally scares me. A persistent issue I HAVE had so far, is that I have that numb "pins and needles" feeling in my limbs a bit more often than usual. I do sit odd and my limbs tend to fall asleep more than the average person, but I actually notice it happening more frequently, like my blood circulation isn't as good as it was. I have NOT had high blood pressure. I ALSO noticed I wake sometimes with severe leg pain (cramping) that reminds me of those "growing pains" one would get as a child. I haven't had those since I was a child, wondering if it could be due to the NuvaRing. If anyone has felt similar pains let me know. I am visiting the clinic tomorrow to discuss these things and to see what could be a safer method of BC 4 me!
-- By sparkzstar | Reply | (2) replies | Private Message me
May 6th
2008
1:34 PM
I took my 16 year old child off of singulair 6 weeks ago (3-28-2008). She started taking it 11-17-2003. She became dark, depressed, grades dropped, dropped out of dance and cheerleading, started cutting her legs with razors, stomachaches, headaches, anxiety attacks, trips to the emergency room. 6 months of fluoxetine given by her psychiatrist. Nothing helped her be happy again. Sad and Dark young woman. NOW: She smiles a lot, and is eating diner with the family. No headache or stomachache for a month now. She is sleeping better. Before she said that her mind would not stop thinking. She is taking pictures again and even asked me to order her book called "Understanding Exposure" and is talking about taking a class on digital photography at NMSU branch university to start on her college electives now. She is out more and even has a part time job at an ice cream parlor. Just lately I have stopped checking the trash for waded up tissues with blood (from cutting). Chris, I have had all her medical records sent to her primary Doctor and we are very willing to open them up. You have to have a child suffering to understand where we are coming from. The most dangerous place on earth is standing between a mother and her child. Singulair took our children from us and maybe changed them in some way forever.
-- By 58peppy | Reply | (2) replies | Private Message me
April 11th
2008
12:42 AM
My 6 year old son has been on Singulair for 2 years and I have noticed a big change in his behavior but it all started with leg cramps and falling down alot..I told my dr about what was going on but she told me that it was nothing to worry about that it is growing pains..Before he started the on the singulair he was always a happy go lucky kid never had problems with him back talking or ever really getting angry. Now that I read all these reports these are the problems I have with him now:
My child has never offered to hit, kick or slap me but in the past year he has gotten more aggressive not only toward me but others as well..
He is fearful of people now thinking that they are being mean to him or picking him out to pick on or make fun of.
He has problems of headaches on a regular basis but just thought it was due to his sinus infections...
I have also noticed that my child has started hurting himself like punching even slapping himself in the face when he gets really angery or fustrated about things..
Sometimes he has problems with nightmares but not that much..
He also has problems with stomach pain as well...
My concern is taking my son off Singulair with his asthma being under control right now and he just recently had sinus surgery but I think it will be the best thing for him just because I want my sweet child back not the aggressive and abusive child he is now.... That is why first thing in the morning he will be taking him to his dr to find another medication to put him on and take him off the Singulair....
April 3th
2008
1:18 PM
I have been following this forum ever since the news broke and I feel compelled to post my 4 yr old's experience with Singulair. He has been on it since before he was 2 yrs. I called my child's asthma dr on 3/28/08 with my concerns and his staff had already had a meeting about the news and he advised me to go ahead and take him off of it.
We always wrote off his overly-sensitive behavior to normal toddler tantrums, but when the behavior continued past toddler age, we began to wonder. He also would sob, talking about death a lot and how "God was going to miss him" People said, "Oh, he's just trying to get your attention!" But I knew that 4 year olds should not have such things weighing on their minds. He also frequently complained about leg pain, which I brushed off as growing pains.
We have noticed a TREMENDOUS and immediate difference in our son since stopping this medication. It brought me to tears, realizing the drastic change and wondering how I could not have put two and two together before. Some examples of the changes: He no longer "freaks out" over small problems (he dropped something the other morning and I braced myself for the usual screaming, but instead he calmly picked it up) He is able to sit down and concentrate on an activity (like coloring) He can express his emotions w/o screaming. No more night terrors. The list of changes I've noticed actually goes on and on, but the point is, it is very clear that his mind was in an altered state on that medication and that is entirely unacceptable to me.
As a side note, I told my child's peditrician that his asthma dr had taken him off Singulair and she acted very surprised saying "Oh, it's been on the market so long, and these couple reports in the media probably don't mean anything." My question is, how long has it been on the market for children and how many drs have been lead to believe that these side effects couldn't possibly happen and therefore ignored their patients concerns? I'm convinced that had I brought my concerns about my child's behavior to his dr before, she would have probably prescribed an anti-depressant or ADD medication and never once considered the Singulair to be the problem.
My heart goes out to other families that have been affected and pray that the medical community will respond according in warning people about the potential effects of this medication.
April 2th
2008
9:33 PM
I have a 10 year old daughter who has been on Singulair for 3 years for allergies. The medication worked great and has not had ANY problems with allergies at all. I don't know exactly when her behavior started to change. It was so gradual. She became irritable and easily upset but I thought it had to do with hormones. In January 08 she began complaining of stomach problems and the doctor thought maybe reflux. We tried medicine for that but it did not help for long. Then in March 08 it really it hard. She began to have leg cramps often, which I thought were growing pains and the mood swings were terrible. She began to have tantrums that were so bad they were like night terrors but she was awake. She would talk of dying and hurting something or breaking something. She would lye on the floor and pound away uncontrollably. She would cry help me help me why am I feeling like this. She states she doesn't know why she does this and does not feel normal. I was researching allergies this past weekend and came across the Singulair problems. I had no idea about them. I immediately stopped the medicine and today is the 3rd day without it. I have seen improvement already. I was really encouraged because of her unusually great mood. However, she had a crying episode
tonight. I know it takes time to get out of the system. I am hoping within a few more days she will be free of this terrible medicine. Patients should definitely be warned of possible side effects. Not everyone may react in this terrible way but from reading so many forums there are a tremendous amount of people who do, children and adults.
March 29th
2008
3:28 PM
Praise the Lord! It is about time. When I read this in the paper yesterday I could believe it. I have been waiting for this to happen for two years now when i decided to take my daughter off this junk. I have told every single person i know what this stuff did to my sweet little baby whom is now 9. She too experienced nightmares, mood swings, anxiety, night sweats, stomach aches, headaches, constipation, urinary problems, leg pains, aggression. She has always been a normal kid for her age. She had always been in dance classes since she was 3 and loved it. Never ever had she been into trouble at school or dance but when she got on this stuff her teacher was calling me at least once a week about her being rude and very forgetful about everything. Her dance teacher told me she looked like she was spaced out all the time. And not listening. I noticed she was having panic attacks in the stores when we would be shopping. She cried and told me"MOMMY I DO NOT KNOW WHY I AM ACTING SO MEAN? I HATE MYSELF. I DO NOT WANT TO BE ME." i cried too and we started praying about it. I posted on this site 2 yrs. ago when i decided to take her off against her ped. advice. She actually got mad at me when she tried to put my younger daughter on it when she was 3. I told her no i was not going to give it to her nor was i giving it to my older daughter any more. She looked at me like i was crazy. And said my girls needed it. I told her i did not like what it did to my older daughter. We do not go to her any longer. It took a couple weeks and my daughter started acting like her old self. I do think it messed her mind up though. Singular is evil and should be off the market. It makes me sick to think back on what it did to my daughter. It was a complete nightmare!
-- By jenniferbombardiere | Reply | (2) replies | Private Message me
March 28th
2008
1:59 PM
I have been crying for almost 24 hours now. I cannot believe what I am reading and hearing about Singulair. My son has been to hell and back again and again. I cannot say for sure the Singulair is the culprit. But after reading all of the other stories on this website, I am convinced it is a strong possibility.
My son is 11 years old. He has severe allergies and asthma. He takes many, many medications for this including Singulair. He as been on Singulair for about 8 years now (my best guess because he has been on it for sooooo long.)
My son was diagnosed with ADHD in pre-school. He has taken many medications for the ADHD, but none have ever done any good at all. We thought some of the medications even made things worse. Now, I'm not so sure.
After exhausting all the ADHD medications, our pediatrician sent my son to a psychiatrist and a counselor. The psychiatrist put him on 2 different antipsychotic medications. Again, neither one did any good and seemed to make matters worse. The psychiatrist sent my son to a psychologist to be tested for Asperger's. For those of you who don't know Asperger's is a high functioning form of autism. The psychologist ruled out Asperger's by diagnosed ADHD and Anxiety Disorder. He did not prescribe any medication.
For some unknown reason, I've only given my son the Singulair off and on for the last year. My son had the best year in school ever. However, his pediatrician was still not satisfied. He sent him to see another psychiatrist at Children's Hospital in Pittsburgh. We were told he is believed to have more than one disability. He is believed to have ADHD, Aspergers, Teurettes and a possible 4th medical problem that has not yet come to light.
We are scheduled to see a neurologist at Children's Hospital on the 15th of April to rule out any medical reasons for his tics. We see the psychiatrist again on the 18th of April.
I am so tormented by this recent news. Has all of these problems been caused from him taking the Singulair for so long? Although he has had his best year in school yet, he still has a lot of problems. Are the side effects of the Singulair permanent.
The other side of the coin is this: It is also very scary to watch my son not be able to breath. Asthma can also be life threatening. What is a parent supposed to do.
Also, I now don't know whether to keep these appointments that are coming up. I hate so much to put him through more. He has endured enough doctors and tests to last him a lifetime. However, what if it is not the Singulair and there is help out there for him that I am not aware of.
Please if anyone else has had a similar experiences e-mail me. I would love to hear from you.
God Bless everyone who has been through this kind of hell.
-- By foxhlam | Reply | (4) replies | Private Message me
March 28th
2008
10:53 AM
WOW! I cant believe this, I happened to see the news this morning about the correlation between Singulair and suicide. After reading all the posts, I am amazed, how many stories describe my 13 year old son. He has been on Singulair since he was 5! We have gone thought he ADHD, BI Polar diagnoses, taking medications and therapy. Funny thing, once we stopped the meds for ADHD and Bi Polar, we did not see a difference in his behavior. We have just chalked it up to an emotional child. He has said since he was 5 that he wished he would die (hence starting therapy for depression) quick temper, loss of attention in school, leg pains (growing pains as I was told by the doctor) and the list goes on..... We just this week stopped the Singulair, hoping he has outgrown his childhood asthma and also due to loss of insurance, we could not afford it, and then this morning I see the news! It pains me that all these years I have spent trying to help my child with his emotional issues and it may be linked to a medication that helped him breathe. It is nice to know that so many others have the same problems and he is not the only one. I hope also that the effects are not permanent and the meds come out of his system quickly!
-- By jenbaker02 | Reply | (1) replies | Private Message me
March 27th
2008
6:37 PM
My daughter is 15yr old and has been taking Singular since she was 4 yrs old. It is rather shocking to see some of the side effects being spoke about, as she has experienced some of these same side effects. The pain in the side that others have referred to as the 'stitch' in the side. We have taken her to several different physicians and they all state that it is from exercise, or growing pains, or the way she sleeps at night. This has been going on with her for at least 3 yrs. She also experiences the terrible buzzing tone in her ears that others have experienced. I have taken her to the ear/nose/throat physician several times and he states that it would need to be fixed by surgery... hmmm... sure makes a parent wonder! She also experiences frequent headaches, and is exhausted when she wakes up in the morning after a good 10 hrs of sleep.
I will be contacting her pediatrician in the morning as my daughter only has one lung and has terrible asthma, although I would like to know the other options rather that Singulair.
Singulair (27) Yasmin (2) Gardasil (2) Advair HFA (2) Lisinopril (1) PredniSONE (1) NuvaRing (1) Mirena (1) Sulfamethoxazole (1) Lipitor (1) Omeprazole (1)
August 17th
2009
3:30 PM
I'm 41, male, and have been taking Omeprazole for about a month now due to an H. Pylori infection that was also treated simultaneously with PrevPack and Sucralfate. A subsequent endoscopy found no ulcers, polyps or stomach problems; my entire GI tract down to my stomach is clear.
I was taking a single 20mg pill per day and had it upped by my doctor to twice a day, though it seems that twice a day is now worse for me. Foods that were fine with me on a single pill seem to give me problems with two pills.
Now that I am on Omeprazole alone (taking no other meds) I have had strange sensations, both mentally and physically. My legs and arms get tingly, I have sharp pains across my chest (as if I am doing a heavy bench press and my muscles are being pulled), my heart rate will speed up, especially if I am laying down, and occasionally I suffer bouts of all-over body aches which feel almost like growing pains.
Mentally I am feeling depressed, anxious and on one bad night I felt oblivious to the world, as if I could walk off a cliff and it would be no big deal; scared the crap out of me. Often I have trouble getting motivated to do anything and find that my only way to get around it is to try and absorb myself in a book. Any other chore or project I try, I start but just can't seem to finish; my mind wanders.
I thought this might be connected to angst about dealing with the pain and circumstance of the infection, but previous to my H. Pylori I had another physical trauma that caused me trouble and I had no mental side effects; I was dealing with it and understanding it as a result of getting older and my body doing what every body does as it ages.
Is it Omeprazole? I suppose I can't really say for sure but reading this and other forums I am under the impression that it is probably having side effects that are serious enough to cause concern. I could probably deal with most of the physical side effects but the mental ones are scary. I will stop using Omeprazole starting tomorrow and see how it goes, confining myself to foods which hopefully won't cause too much reaction and go from there.
-- By juangon | Reply | Private Message me