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Here are side effects posted by other members, that mention guidance.
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50 Side Effects posted for guidance

August 17th
2009
4:31 PM

I'm 44 with 2 kids & started Loestrin 24 about 3 weeks ago. I just wanted to say that if you are experiencing any side effects, please keep in mind to give the pill AT LEAST 3 MONTHS for your body to get used to it. Your body has to adjust to the hormone level. I am already being treated for PMDD (extreme PMS resulting in major mood swings & depression) so I really don't want to mess with that situation since I have finally gotten that under control with a low dosage of Prozac. I feel fine now but started having long, heavy periods so I decided with my doctors guidance to try the Loestrin. If it doesn't work, I will consider ablation surgery since I don't want anymore kids. I have had some spotting & feelings of slightly more depression on the Loestrin but I will definitely give it 2 more months. Good luck to all and HANG IN THERE!! It sure sux being a woman sometimes!!!

-- By dezhankins | Reply | Private Message me

April 27th
2009
12:43 AM

i am really glad i found this site, and got to really understand what may be my problem. its the SINGULAIR, i really believe. i will share my story so no one has to go through what i have been going through. (i just stopped my medicine a day or two ago, so i will repost and see if i start seeing changes in my behavior) well first off i am 19, and i started taking singulair when i was a senior in high school, so about 2 years ago. i didn't see any noticeable changes for awhile, except for probably a year now, a little more or a little less. for this whole time, i have not been sleeping, i wake up 3-4 times a night, fully awake and can never fall back asleep for hours. its almost like my body tries shutting down, but my brain never does, i have the craziest dreams, most of them are me suffocating or not getting enough air, which are really scary. I have been having really bad anxiety, panic attacks, basically i have been just feeling like i am going to die every second of the day. the feeling of being trapt inside my own body. it seems like every month it just gets worse and worse. i cant focus, i don't go to school, i don't work, and i believe its from the side effects of this medicine. i also always feel so tired, and so weak, i cant even look through a clothes rack without my arm aching. i have been having a hard time breathing, which is odd seeing its supposed to help me breathe, i have been sick at least once a month, through this whole time i have been going to my Dr. at least twice a month or more, telling her my symptoms, i even went in their one day crying i was so scared. and she just kept telling me, its probably all in your head, this, that and the other. she even put me on probably 10 different medicines trying to see which one would help. and of course none of them helped anything. I started thinking, and feeling like i was going crazy, what was wrong with me? i wondered constantly. For a couple months now, i figured i had to take it into my own hands to figure out what was wrong, seeing this Dr. doesn't seem to understand me. I looked up every disease or problem imaginable, and had blood tests done, but every thing came back normal. i didn't understand what was going on, every month i just feel worse and worse, lately i have been telling my mom i just want to die, that i cant keep living my life this way, of course i would not do this for the fact that i couldn't do that to my mom or my little sister, or anyone, but it feels like it would be easier then dealing with everything i have been. along with everything else i was/am feeling, i also feel a lot of hate toward myself, i feel like i am not good at anything, and i feel very ugly, sometime i don't even want to leave my house, because i just feel disgusting. Finally, a couple days ago, my little sister which is 10 and really smart i may add, was watching TV and they happened to have a commercial for SINGULAIR. she told me that everything i have been saying that was wrong with me (she hears me complaining a lot about all my problems to my mom) were all the side effects from SINGULAIR. of course i wanted to know more about this even though i have taken this medicine for awhile without any of these problems, i started researching and realized that all of my symptoms happened to be the side effects from singulair. and then i started reading other peoples stories about it, and about linking it to suicides and everything. i told my mom and i told her i wanted to stop the medicine right away, at least just to see if this is what it was all along. i haven't taken it for 3 days now i believe, and i already see a difference, i actually get tired now instead of staying up reading till 5 in the morning, and i haven't been waking up at all during the night. i am pretty angry that my dr. couldn't figure this out, or at least maybe even think about it. for awhile i thought i was honestly going crazy, i lived in fear for so long that something was extremely wrong with me, that i haven't lived my life the way i should of, or wanted to. i never thought that it was just the EXTREME side effects of this medicine. i am so thankful for my little sister listening to all my complaints and all my anger toward myself, and actually putting it together that it would be my medicine that was supposed to make my asthma better. as i said its only been a couple days and i already feel better, i will repost to tell you if im back to my "normal" self after being off this medicine for a longer period of time. i feel so grateful for my little sister, who would have guessed she would tell me what a Dr. couldn't even think about. i really feel that if i get back to my normal self, i really have her to thank for saving my life. <3

-- By jaclyntaylor89 | Reply | (4) replies | Private Message me

October 22th
2008
8:12 PM

On the fda;s cder web site is a calender of meetings,there is also a calender for tentative meetings,tentively scheduled on dec 10 and 11 is a meeting of asthma allergy,risk management and drug safety,we know they hired public relations so we wonder if maybe they will be there,as this investigation comes to an end,i wonder is there more we could have done,i don't think so,i am perturbed that we were not contacted after we filed our reports,as i wonder how they will get the rest of the story.It is my understanding that these meetings are open to the public,unless otherwise specified,there is no specification on this one yet,i hope if any one is in the Dc area and they have a chance to go they will tell us what is said.I hope they look into the chances of some having maybe perm issues and give us guidance,they have been silent for so long as we have battled this in the dark.If by scheduling this meeting the investigation is over and they have a conclusion and our not going public yet ,well shame on them,if there is one thing we are disparate for is information as to what to do next,heres hoping every one,keep fighting

-- By flindy | Reply | (2) replies | Private Message me

September 17th
2008
1:42 PM

I was prescribed 7 days 750mg of Levaquin on 9/10 and finished 9/16. I was originally diagnosed with bronchitis but went back to the Dr. yesterday cause I was not doing any better and he now says it's viral. I've gone to the hospital because I passed out on 9/13 and continue to faint at least once a day. I have tingling/numbness in my hands, ankles, toes, my knees hurt, my lower back is in a lot of pain, almost to where it is not tolerable, I'm dehydrated (I'm drinking and eating, just not as much) it is extremely painful to eat, my tongue and my gums hurt terribly. Last night I had a horrible dream (I don't dream usually, not nightmares) and today I started to hallucinate (mildly) A week ago I was functioning normally, a mother of 3, playing with my kids and now I can hardly walk without assistance, I can't go to work, I'm in constant pain. Someone please give me some kind of guidance. Will these feelings ever go away? What should I do? Thank you!!!!

-- By momma3 | Reply | (6) replies | Private Message me

September 16th
2008
12:20 AM

IS THIS SITE AN ANSWER TO OUR PRAYERS?

A little while ago less than two hours, after a very emotional, difficult battle with my daughter, we had yet another heart to heart to try to do better. At the end of our talk WE PRAYED for guidance to know how to help the situation. So I'm here looking for a link to her behavior fron the ADHD medication and I see someone had posted about Singulair side effects. I was floored! I have never thought that Singulair was not a safe drug. No doctor has ever mentioned any negative side effects to me regarding it. The more I'm reading about it the more in shock I am. Have I and her doctors been doing this to my daughter? My 12 1/2 yo daughter has been on Singulair for probably 10 years. She was a 28 week preemie and had severe lung issues so it was a needed medication. Her behavior has worsened the older she has gotten. Because of mostly anger issues and problems in school about a year ago she was started on ADHD medications. We are currently trying to find "the right one" . I feel so awful. Could all her misery have been caused by this little pill that was suppose to help her? Why has her pulmonoligist continued to give it to her although she has not had any serious asthma problems in years? I think I will stop all medications and see what happens. My daughter has also been on amytriptylin for about six months also for severe migraines. What do you think? Should I stop all of them cold turkey or gradually decrease one at a time? I would GREATLY appreciate any advise.
Thank you

-- By bamvanfam | Reply | (6) replies | Private Message me

July 6th
2008
7:59 PM

I've taken Lisinopril (10 mg once a day) now for two months and am reasonably happy with it so far. My BP seems under control. I bought a BP monitor and record the results on a spreadsheet. Since starting Lisinopril in early May, my average BP is 112/64, down quite a bit from where it used to be. I often check it several times a day. I do have some side effects, the worst of which is light-headedness when I rise from sitting or lying down. I also have some tiredness. Lately I've developed itchless red spots on my right forearm that come and go. My big concern is what longterm use of Lisinopril will do to my body. My goal is to continue with a diet and exercise program and, with the doctor's guidance, wean myself completely off this medicine by the end of the year. I would suggest to anyone who hasn't to buy a BP monitor, record the results and show them to your doctor. The doctors treat you on one snapshot of your BP taken at their office, and BP readings can change dramatically during the day, depending on the situation. If your average BP, say, is 135/80 at home and you're being treated for what the doctor sees, perhaps 160/95, questions arise as to dosage and to the necessity of taking any BP medication at all. walterj

-- By walterj | Reply | (1) replies | Private Message me

June 30th
2008
10:50 PM

I'm seeing some posts from parents who say their children have returned to normal after discontinuing the use of this medication. However, there seem to be a lot of diagnosed "ADHD" or "BIPOLAR" conditions. Are your children really returned to normal? Or have they been diagnosed with a psychological issue and are receiving treatment? There seems to be a connection here, even after discontinued use, especially male adolescents. Any thoughts?? The increase in cases of ADD, ADHD, AUTISM, etc has been multiplying at a very disturbing rate in the last 10 years. I'm thinking definite connection to the "new" breed of "receptor blockers". What is it triggering? Any thoughts out there? Lets post anyone with similar cases and see how many are out there.

-- By wewe | Reply | (1) replies | Private Message me

January 9th
2008
2:22 PM

I posted a question to anyone who used Tri-Sprintec before, but now it's been several months & I'd like to let everyone else know how it's worked for me! Tri-Sprintec has been the best birth control I've ever taken. I have been on other birth controls over the years, and up to this point Yasmin was good but I still had some side effects. I've just started my fourth month on Tri-Sprintec, and I feel more like myself again. I don't have any crazy mood swings, my skin has cleared up, my periods are regular again & my appetite has gone back to normal. I recommend Tri-Sprintec to anyone who is looking for an affordable & reliable birth control (it's offered at the Wal-Mart pharmacy for $9 a month if you don't have insurance.)

-- By onesweetangel76 | Reply | (64) replies | Private Message me

July 8th
2007
5:44 PM

My son is 4 1/2 and has been on singulair since he was 3. He was diagnosed with asthma at the age of 1. He too has occasional bouts of bedwetting, vivid imagination, dreams most everynight. (Not sure if they are nightmares) Has mood swings. Has digestive issues.
Has had 3 seizures, and medical tests cannot find any problems there. I believe it is caused by the Singulair as well. However, it has controlled his asthma quite well. He has only allergy trigerred attacks now, and very seldom. I will just have to seek God's guidance in what's best for him at this time, until he eventually, and prayerfully outgrows this. I ask God to guide you all in your search for answers. I will check back for updates.

God bless and be with you all.
Concerned Mom

-- By peenutsmom | Reply | Private Message me

April 28th
2007
4:45 PM

Was on increasing doses of fentanyl for back pain - with time and not much time, the fentanyl slowed my digestive system so bad I suffered with gastroparesis. I have taken myself off with a doctor's guidance. My last dose was ten days ago after slowly tapering from 100 to 12mcg. I still have some gastroparesis and wondering if it will ever end. How long does it take to get back to normal????
Most people have not heard of gastroparesis - your system slows to the point that food does not go down normally and one ends up with horrible nausea.

-- By lynnesknb | Reply | (1) replies | Private Message me

February 26th
2007
11:47 AM

i started taking seroquel about 2 years ago, and with being steadily increased in the dosage i have gaine 100 pounds, and i cannot lose anything. I have tried every diet out there, besides surgery. I am afraid to go off them because i have insomnia and deppression, and anxiety soo bad that i can never sleep. and now in reading other persons' effects i am starting to wonder if all my other problems are an affect of this medicine. I take 800 mg. a night just so i can sleep 7-8 hours. How crazy is that??? i am so afraid...

-- By gcat | Reply | (1) replies | Private Message me

April 18th
2003
3:46 AM

I am a male that took a four month shot of Lupron with hormone shots to kill the tostestorone and shrink the prostate. This would enable me to leave town for three months and return in May for a radical prostectamy. Since then with the guidance of my primary physician, we returned and had the surgery after one and one half months. (best decision we ever made). Now the hot flashes are unbelievable and sleep is intermittent in between flashes. I have no other symptoms that are negative. Surgery was a success but hot flashes are terrible. Hopefully at some time in the future the effects of the shot and the hormones will wear off and I can get back to a normal sleepful night

-- By willcater4u | Reply | (1) replies | Private Message me


 

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