Guinnea pig symptoms and conditions

Daughter was sick for 6 weeks with what started as a virus . Dr.'s said virus needed to run it's course and allergies were also bad so they put her on Singulair. When she wasn't improving they said she had mono. No improvement, still mono. Still not improving, more specific test, not mono. Dr's chalked it up as she had a virus and was now just depressed from being down for so long. Well when you have mono u r told not do anything and only rest. After weeks of doing this she was depressed and weak. Then we were told that the diagnosis was wrong and we were had been trying to nurse the wrong sickness. Dr's said to send her back to school. By that time our daughter was so far gone it wasn't possible. Every time we left the house she would scream and panic. Experiencing exhaustion and not her self (She loves school & was always a very happy child) I knew there had to be something wrong with her. They sent her to the hospital lab twice and found nothing. Still trying to say she is only depressed but now being rude about by saying that we were just giving her, her way. My husband & I decided that the Dr.'s were not doing there part and trying to get to the bottom of her illness. So we began looking at what had been different in her life over this period of time (5 weeks).The only thing that had changed in her life other than her catching a virus was that she was put on Singulair. We had enough common sense to know that some people may have a reaction to some medicines that others won't. And just because not every Dr. has experienced this doesn't mean it can't happen.We read the pamphlet and all of the side effects. Even the rare ones she was experiencing. Shaking that looked like seizures, body aches, numbness in fingers and toes, extreme fatigue, loss of appetite, weight loss, irrational behavior, anxiety, paranoia, coughing, depressed, swelling of the lips, hallucinations, blurred vision,screaming every time she left the house, and complaining of constant pain. We felt like that had to be what it was. So we researched it and found on medications.com story after story of children who had gone through the same thing that she was experiencing. Dr was very rude and said she had never heard of that before and just send her back to school. So my husband ad I made the decision to take her off the med. The day before we rushed her to the hospital was her last day on the Singulair. That turning point was the seizure like shaking,hallucinations, saying that she couldn't hardly see us.That night in the ER they ran a CT Scan and found nothing. They admitted her in the pediatrics unit and we began a week that felt much like a month. They started her on an IV. They called in different Dr's...resident Dr's, pediatricians, etc. Everyone said our theory on the Singulair was possible but since they had never personally experienced a case of that they just weren't sure.When no one could figure out what was wrong they then called in a neurologist. He was very concerned and immediately started assessing her and ordering blood work and tests. She had an MRI and an EEG. All came back normal. He listened to our theory and said it was possible but to be sure he wanted to test for for everything else to make sure nothing was being missed. She had lost 5 lbs before her hospital stay and not sure how much more after that but while in the hospital when I bathed her, it was so sad to see her stomach all shrunken in. They put her on 5 different medicines while in the hospital that we were so upset and torn because then we felt like she was being drugged. They had her on an IV the whole week she was there and hooked up to monitors.She had a couple of really bad episodes while she was there where she felt like she couldn't breath, couldn't stop shaking and then she lost her speech which scared us to death. They ended up sedating her to calm her down. That one episode was on a Wednesday and then Thursday they gave her another medicine and it looked like she was having a bad reaction to it....her eyes were open but she couldn't move her body. We were freaking out thinking something was wrong. I ended up crashing and had to be carried away. All the result of everything going on of course.Everyone on the staff was very frustrated at not being able to help her. We felt like we were loosing our baby.We continued slowly getting through the end of the week and weekend dealing with all the symptoms still. Dr came to the conclusion that he felt she had got a bad virus. Although, he never dismissed the fact that it could be the Singulair but said unfortunately there was no test to look for that. He said parents usually know their kids better than anyone though.Dr. said when she was released she would have to go to inpatient rehab because of the anxiety issues and because she had not walked for so long (4-5 weeks).Dr came in Monday morning and said if she did not start drinking more she was about 2 days away from a feeding tube. During the day she started drinking more and when he came back in that night he said she had drank enough and he took her off the IV and said she could go home and we could do outpatient rehab. We were so happy to take her home even though we knew it would be hard. So the next day, Tuesday, was very hard and we had very serious episodes with not talking, loss of hearing, shaking, still not walking and passing out. We called the Dr. at the hospital and they said it was all due to the anxiety. We were praying over her so hard. Well Wednesday she woke up and said she had no more pain, she was hungry, and she started walking again. We got our baby back! And there is no doubt in our mind that it was that Singulair. We know that it was. From the time we took her off of Singular to the time she was totally restored was 9 days. It happened just like the all the other parents had described. As soon as it was out of her system she all of a sudden came back to us. We decided to not take her back to those pediatricians. I recently took her for a follow up with her Allergist,who was not aware of what had happened and after hearing the story said that he had experienced two of his patients being allergic to Singulair and they had hallucinations. They were pulled off the medicine immediately so their cases were not as extreme as hers. Please be cautious! This was a devastating experience! Please feel free to email us. I have documented our whole story if you would like it emailed to you.