July 16th
2008
4:38 PM
I have been on prednisone since November 2007 for minimal change disease, 65 mg, in May I started to decrease the dosage (per Drs. orders) and by the time I got to 15 mg all my symptoms came back and I swelled up again. I was again put on a higher dosage of prednisone and put on Cytoxan 75 mg. I am now decreasing prednisone, back to 15 mg every other day and will be off Cytoxan next month. Hopefully this will work. Right now my main complaint of side effects is chest pressure, anything I eat or drink makes my stomach swell and I feel like I can never take a full breath. I recently had chest and abdoman xrays and an ultrasound, all negative. Does anyone have this symptom? I also have moon face, weight gain, hump on back, insomnia, headaches, digestive problems ,shakes, night sweats, vision problems, extreme tiredness and hair loss. How long before all this goes away?
-- By looboo | Reply | (4) replies | Send Private Mail
July 14th
2008
4:31 PM
Hi all, I have had the Mirena since May of 08. I had twins in Feb of this year and was given the little plastic ring for birth control. That gave me TERRIBLE migraines. i hardly ever even have headaches let alone migraines. It was impossible to take care of twin infants along w/migraine pain. I really shouldn't be on estrogen anyway because of a clotting problem in my family. So my doctor recommended the Mirena. I wanted it anyway because I can't remember to take pills now, (I'm a little busy.) Since I had it put in I have been losing my hair in unbelievable amounts which my doctor attributed to my just having twins. My depression and anxiety meds are NOT working anymore. My fourth and fifth toes on my right foot are completely numb and stiff, almost like I have arthritis or something. I have NO interest in having sex w/my husband. But after taking care of twins, who does?? Just kidding. I am not very happy with this IUD, but have decided the alternative (being pregnant) is not a better option at this time. So, for now I will continue to be a bitchy, balding, arthritic, celbate mother of two. Good luck to everyone else
-- By sgtswife | Reply | (2) replies | Send Private Mail
July 14th
2008
4:23 PM
Hi, I just got the Mirena back in April and I have had nothing but problems from the get go. First they had trouble inserting the Mirena so instead of 5 minutes it took more like 20 minutes....by the time they got finished I started sweating really bad. I went to stand up and almost passed out. They laid me on a bed, put an ice pack behind my neck and gave me water. They checked my blood pressure and it was VERY low. 15 minutes later my blood pressure still wasn't coming back up so I was not allowed to leave. They started telling me that some people's bodies go into a form of shock and that was probably what happened and they were worried about my blood pressure not coming back up and possibly having to take me over to the emergency in order to get my blood pressure back up. Well about ten minutes later they finally get my blood pressure back up to normal so they finally let me leave their office. I get out to my vehicle and all of a sudden I feel like I am fixing to pass out again. I laid down and called a friend to come and pick me up. I kept an ice pack on the back of my neck for another 30 minutes while resting before I finally felt better again. A couple hours later came the pain. Very bad pain that lasted for the next two weeks and I am usually a person that can take pain. Finally the pain eased up after that and now I only get pain once in a while but here I am 3 months later and I am still bleeding. I feel tired all the time, I've had a lot of migraines, it is painful during sex sometimes, my sex drive has almost totally vanished and my energy level is almost at 0. I have also been experiencing stomach problems and a bloated feeling. I am EXTREMELY tired all the time. I never feel like I get a good nights sleep. I have also been experiencing hair loss but I didn't know if that was from the Mirena or not until I started reading posts on here. Now my bleeding is slowly getting worse the past few weeks. Not only am I bleeding still but now it is coming out in little clots too. Now I am getting worried so I have made an appointment to go back in. I came on here hoping I can find someone that has had the same problem so I wouldn't have to worry until the appointment. Its really disgusting and I am so sick of having this mirena in already.
Good luck to those of you that haven't already experienced these same side effects already......
-- By shyann6 | Reply | (2) replies | Send Private Mail
July 13th
2008
1:07 PM
I've had Mirena for about 3 months now - 6 weeks after I had my second child. My son is breastfed and right around the time I got mirena inserted, be broke out with what seems to be baby eczema. I have a few of the same side effects as many other women - hair loss, NO sex drive, fatigue - but I am wondering if anyone has seen side effects in their breastfed babies. I'm taking him off of the breast for a couple of days to see if he improves and will post again with the results.
-- By dna | Reply | Send Private Mail
July 11th
2008
1:43 PM
well this is my first time hearing about these conditions. i was just aware of it by my mother when i told her ive had these lympth nodes by my pelvic area for about a month which is a month later after my last injection of the gardasil shot. throughout my entire injections ive nevered experience any sie affects not untill my last injection but my side affect are the lympth nodes. the story my mother had told me was about a girl around my age(16) who had gotten paralyze from the injection once she discover her lympth nodes but difference with her and i,she had soo much pain frm themas in pain to walk maybe swelling had occurred. As i read through all the articles of women and teens had experience such horrible side affects from this injection i have came to realize after my second shot ive myself experience hair loss an as of right now my hair is so thined out that when i pick up my hair there bald patches in th front but question is could this be a gardisil disaster? see i didn't worry much about it due to family memeber will constantly tell me no more hairspray or anything and let my hair down because too much of all of it could be the cause of my hair falling out. but till this day i am still losing an enormous amount of hair even after my injections of the shot. should i be worried or should i wait it out as i was??
-ally
July 11th
2008
7:19 AM
Information For The Recently Diagnosed
Possible Side Effects of Coumadin®
I found the following on a website dedicated to Factor V Leiden patients who need the warfarin/coumadin due to the genetic issues:
******
Here are some of the side effects reported by members of our mailing list who are on Coumadin®:
Hair thinning-hair loss
fatigue or being tired more often
taking longer to recover from cuts or bruises
sun burn or sensitivity to light
depression.
You may experience some of these effects or none of them.
Also reported: Uneven INR's with generic coumadin®. I refuse to take generic coumadin® (warfarin). My INR will not stay stable on it. But some folks like it. It's a personal choice.
Possible side effects of LMWH:
Bleeding is the main adverse effect, either major (internal) or minor (injection site bruises, easy bruising, etc).
osteoporosis may be an issue with long-term use
very rarely an allergy develops, called HIT (heparin-induced thrombocytopenia)
liver tests (enzyme levels) may become temporarily elevated, but usually return to normal and rarely lead to the need to stop LMWH
last but not least: empty wallet syndrome (very expensive drugs)
link
******
-- By fiona | Reply | Send Private Mail
July 11th
2008
12:20 AM
Eureka! My unexplained weight gain (10 lbs), moodiness, fatigue, acne, excessive white discharge, recurrent yeast infections, and clumpy periods are no longer such an enigma. I previously had some horrendous side effects from Depo Provera, to include severe depression, suicidal thoughts, and hair loss; I thought NuvaRing would work great for me due to the low dose of hormones. At first, the ring was fantastic....didn't have to remember to take a pill everyday and no downward spiral of depression. The first symptom I noticed was the excessive discharge and the clumpy periods. Next was the moodiness, anxiety, and bouts of crying during every week 3 (that the bf has patiently put up with!). I have been trying to ignore the fact that my jeans don't fit, I have turned into a TV watching zombie, and I have a burning sensation associated with my 2nd yeast infection in 3 months (ugh!!!!). I wish I would have found this website earlier; it would have helped me put two and two together, acknowledge the side effects, and quit the Ring much earlier (not 11 months later!). Yes, each woman's body reacts differently to hormonal birth control, but if you have undesirable side effects from the Pill or Depo, you'll most likely get them from the Ring plus a few fun extra ones:) The upside to this product: it is incredibly convenient and my small breasts filled out. So not worth it to me!!!!!
-- By alohaallie | Reply | Send Private Mail
July 9th
2008
7:53 PM
PUSS LIKE BUMPS/PIMPLES, HAIR LOSS, WEIGHT LOSS, DEPRESSION, NO ENERGY, NO SEX DRIVE, MOODY, HEADACHES, PAIN IN MY LEGS, VOMITTING, NIGHT SWEATS, CRYING AND CHANGE IN THE TEXTURE OF MY HAIR, CYSTS...
-- By asya | Reply | (1) replies | Send Private Mail
July 9th
2008
2:20 AM
I was on Coumadin for a blood cloth I had last year(I originally started on 2.5mg and kept getting bumped up higher and higer as my PT/INR tests kept coming back).
I had most of the symptoms described here. The three worst being fatigue, memory loss and hair loss.
I remember constantly being tired on this medication. I had to go back to work after a few months and I remember not being able to lift much of anything and being extremely tired.
When I would take showers I remember running my hands through my fingers and literally pulling out clumps of hair. Each and every time. I thought I was going nuts.
The worst was the memory loss. I had severe short term memory loss like you wouldn't believe. I would be fine one minute and then space out and I literally could not remember what I had done the day before.
-- By msmorbid921 | Reply | Send Private Mail
July 8th
2008
2:42 PM
Hi everyone, I just want to say thank you for all who shared on this site. I am a 47 year old woman. I have spent several hours reading posts last night and today, and discontinued my Singulair last night. I have been taking it for approximately 4-5 years for mild asthma. Since then my health has gotten worse and deteriorated rapidly in the past year. I have had chronic chest congestion leading to frequent infections. Have had pneumonia three times in the last three years and frequent bronchitis. In the last eight months I have been on antibiotics more often than not, along with Singulair and Advair and frequent rounds of prednisone. Still I continued to worsen. I have had a rash on both legs since March which clears up with a shot of prednisone, but comes back within a few weeks. I've been going to bed nights by 7:30 and still find it hard to get up and go to work. Energy levels would vary, but some days I literally felt as if I could not keep putting one foot in front of the other. I have always been the quiet, serious type and prone to depression, but this past year it has been getting progressively worse. I have become very antisocial and even missed my son's wedding because I was so stressed out about it. I have also had alarming hair loss and just feel that my body is in a very depleted state.
My doctor, an allergist, ran a number of tests, but could find nothing. He finally referred me to a specialist at a University. He did a bronchoscopy and tested for tuberculosis and sarcoidosis because I had very similar symptoms to both of those diseases. They were both negative, but they found a rare form of bacteria in my lungs that doesn't respond well to medication. They felt that it should run its course eventually. I'm sure all of the immune suppressing drugs I have been on have made it difficult to recover from this. Aside from a two week prescription for a form of sulfa which they felt the bacteria may respond to, I am off all other drugs. For congestion they have prescribed a therapy vest instead of medication. I am very anxious to see if being free of Singulair and Advair helps me to recover more quickly. Already on day one I feel a better outlook on life and even went on a shopping trip with my mother today :-) I can't say at this time what role Singulair has played in all of this, but am anticipating an improvement after reading all of your posts. Thank you.
July 8th
2008
12:23 AM
ok i have been taking topomax for about roughly 7 years. at one time it got so bad with the memory loss they put me on the alzhimers med. that they proscribe for about everyone with alzhimers. i have had clumps of hair fall out so they put in a prescription for hair loss. i once weighed 100 lbs size 0 im 5 ft tall and i am usually about a 7-8 . the topomax i was taking it for my toruretts syndrome and every so often it causes a clich ill have face freezing that will last for and hour to 3 days or make it worse. ill get hives i get aggressive angerd very easily at the drop of a pin and wont eat at all because i forget i forget everything i once stared at a wall for 3 hours i couldn't move my body or eyes my mind went blank like someone shut off the electricity . plus bad acne ( um when i first took it it was like i was getting high with my entire body tingling like when ur foot has fallen asleep even my eyes felt like that) i have sufford some vision problems everyday and forget what and where i was going it has made me have some psychological problems increase
i have now recently stopped taking it i still get rashes i am always cold hair is still falling out still hear a ring in my ears i see things that aren't there like little firecrackers going off in my vision or blackouts like when u get a migraine i am always itching tingly all the time aggravated all the time
but now i eat i have gained like close to 20 lbs but i am more focussed in some things it helps when i am in class to stay focussed but not really because im not used to being so alert but i think i like not feeling foggy anymore
July 6th
2008
2:39 PM
I posted on here a few weeks ago complaining about my excessive hair loss to the point of seeing through my hair. I went to my obgyn after reading this forum. He said he is not surprised....that anything containing progestin causes hair loss. Also any traumatic experience....to expect hair loss to start from 3-6 months post trauma....I had a baby, a mirena, marital separation, and 2 d&c, along with a bad delivery and severe blood loss, ALL in a matter of 4 weeks. So, it could be all or one....either way he was not scoffing at my claim of the mirena being the culprit of the hair loss. We agreed to give it a few weeks and see if the loss slowed, if not I will return to have it removed......I also put on a quick 10+ ponds which I am not happy about, but my appetite is raging. I am still breastfeeding too, so I don't know which one is the cause. I also lost hair and gained weight last baby....so who knows. I will keep everyone posted.
Staci from SC
-- By palmettogirlbft | Reply | (1) replies | Send Private Mail
July 6th
2008
12:11 AM
MIGRAINES! I never had one before in my life before taking this crap.Stopped 3 months ago now hair loss,Help has anyone else had this happen does it grow back?
-- By catseye | Reply | Send Private Mail
July 5th
2008
10:19 PM
OMG!!! I thought I was the only one feeling like I was losing my mind on this stuff. Since I've been taking Yaz, I've had zero sex drive. If I'm lucky I might get 20min of a good sex drive. I've also had mood swings that make Naomi Campbell look like a two year old having a tantrum. I've had more arguments with my husband in one day, than I've had in our entire relationship. I cry about everything. Sometimes I cry and I don't even know what I'm crying about. Yaz is the worst thing on the market.
-- By step0049 | Reply | (3) replies | Send Private Mail
July 5th
2008
11:22 AM
Weight gain, swollen middle,ankles,and feet. Tired and eat every little and exercise by walking most days. Can't walk too fast because I experience shortness of breath. I take 150 mg a day.
-- By forgot | Reply | (2) replies | Send Private Mail
July 5th
2008
5:58 AM
Hi - just to say firstly, I have my mirena in for almost a year and a half and am hoping to have it out next week, before I kill someone!! So I am in no way 'pro' mirena.
just wanted to comment on your hair loss posts- after my first daughter, this happened to me too, without mirena. I actually had bald patches and was super paranoid. My hairdresser told me that this is very common in the few months after giving birth - the hormones are trying to rebalace and this unfortunately is a side effect. My doctor confirmed that it was not alopaecia as I was self-diagnosing. I used to cry in the shower seeing all my hair in the drain - but now, 3 years, another daughter and mirena later, my hair is beautifully healthy again.
But on the other mirena symptoms I have. My poor husband has not had any affection in the bedroom for almost 2 months now, which is scary as we enjoyed a healthy 4-5 times a week sex life until a few months ago. My first year with Mirena was fantastic, I recommended it to friends, but the past 3-4 months have been hell. Who is this psychotic person that has taken over me???? My husband is almost afraid to talk to me some days, because I go from sweet and cheerful to a screaming, raving lunatic in seconds, without warning. The weight gain has been huge - about 45lbs in 16 months and then the days where I don't feel depressed, I look in the mirror and it makes me depressed with the huge gut I now have. I've always been a curvy lady, but I never had a big stomach and it seems that all of this 45lbs is just sitting around my tummy.
Now I have to decided to have it out, and I'm left with the dilemma of birth control. My 2 daughters are 18 months apart, the oldest just turned 3, so I don't want another baby just now. However I would like another one in the future. Pills don't work for me - I took them religiously and got pregnant with both my daughters whilst on the pill. Do I choose condoms? Would I actually stop a spontaneous moment of passion to go to the drawer to get one, lol? I'm kinda not really sure what to do. All I know is that I need to get this out next week, and pray that I find another form of birth control. But in saying that, another baby in the house couldn't be as bad as what this thing is doing to my mental health.
I'll post again after I have this out
July 3th
2008
7:30 AM
I am 24 years old and I had a pulmonary embolism last month. I was on the birth control YAZ for only 3 months, and that's what doctors seem to think caused it. My insurance only paid for me to be in the hospital for three daysand I was sent home with lovenox shots and Coumadin pills.
One month later, my INR is still unstable, fluctuating so much that they are checking it twice per week. My dosage is constantly changing. I have a red, painful rash on my buttocks - it hurts of sit for more than a few minutes. I am losing clumps of hair. I have lost my libido. I am very irritable and snap at my husband several times per day. I have a headache almost daily and frequent nausea.
I hate these side effects!
-- By sigmachideltachick | Reply | (5) replies | Send Private Mail
July 2th
2008
11:14 PM
I had my Mirena removed 6-25-08. I only got it in March. I have had one problem after another. I had a weird bulge under my breasts that stuck out further than them when I decided it has to go. That bulge disappeared the day after having it removed. I also had MAJOR hair loss, fingers twitching, joint pain, migraines, my face looked greasy an hour after washing, and visual disturbances where I actually felt like I was seeing through drunk eyes, especially at work. This thing should be off the market. I feel 99.9% better than I did a week ago. Oh, I'm also not a turbo bitch to everyone anymore either. I am actually pleasant to be around. It was the best decision ever made to get this beast out of me. What a waste of money though!! Good luck to everyone else.
-- By bulgebegone | Reply | Send Private Mail
July 1th
2008
6:46 PM
I have been on this medication for about 3-4 months now, and I have NEVER passed out or fainted before in my life and I have done it three times already since I've been on this medicine. I have had an increased amount of hair loss . But other than feeling very dizzy, then nauseas, then hot flashes and then passing out.... not too many other side effects. Has anyone else experienced this?
-- By aas | Reply | Send Private Mail
June 30th
2008
6:22 AM
Hello all Yasmin Survivors.
I stopped taking Yasmin in July 2005 and three years on I am still re-building my life! I feel this pill and its side-effect stole some of my best years, I am 33.
My main side effects were extreme anxiety, agoraphobia, pounding heart, panic attacks, fear of doing anything (even going 10 minutes away from my own home). I was on it for 12 months and the side-effects started very gradually at about 5-6 months, I barely noticed them creeping up on me. It took me another 6 months of taking it to start to question whether Yasmin could be causing the extreme change in my personality. I think if I hadn't stopped I'd have had a major breakdown. I had lots of weird physical symptoms too including, bloating, passing urine all the time, leg cramps, dizziness, hair loss.
Anyway, all the extreme anxiety and stress caused by Yasmin left me with exhausted adrenal glands - which I'm now trying to re-build. Anyone feeling fatigue, nervousness, anxiety, inability to handle stress in the same way as you used to, PMS several months after stopping Yasmin should look into Adrenal Fatigue as a possible cause of their symptoms. It's hard to treat and can take a long time to recover - but there are lots of things you can do to help your body re-build. Visit ******(doctor Andrew W. website on Adrenal Fatigue) as a start to find out more about the condition and how to find out whether you are suffering from it.
It would be good to hear from more people re-building their lives after the impact of taking Yasmin on this site. Also, is anyone out there trying to put together a class action?
Sarah
June 28th
2008
11:18 PM
All this talk of HAIR LOSS, POSSIBLE GALL STONES, ANEMIA etc. is really scaring me as my doctor (gastro-i) has prescribed it for extreme IBS. Am interested to know if anyone else has experienced hair loss. I HAVE been experiencing gas and feeling tired. Don't know if the tiredness is due to the Walchol. Am very uncomfortable about taking this drug after reading all these comments.
-- By margozinha | Reply | Send Private Mail
June 28th
2008
8:50 AM
I am 41 and like another poster, I use the ring to help regulate my period as I am in perimenopause. I have had no sex drive, fatigue, extreme change in discharge and a lot of vaginal pain. This is my 4th ring to use, and I am considering taking it out and talking to my doctor about something else. Maybe I just need to deal with the side effect of extremely long amounts of time between periods, but it sure doesn't make me feel secure since I can still get pregnant!
-- By tah_momma | Reply | (1) replies | Send Private Mail
June 27th
2008
9:46 PM
I am 29 yrs. of age. My experience with Mirena has been mostly bad. With any medication I usually try to see how it works for me and my body before reading into any web site. I don't want to pre-determine my side effects before they even happen! So, I didn't look up anything on this until I started having side effects of my own. And here's my story...
I got this thing put in right after the birth of my son in Feb. (MY 2ND BABY)My dr. told me it would be the best time to do it since everything was still fairly loosened up down there. I have to say that it really didn't hurt me to have it put in. I barely felt it. I went home with some minor bleeding and started cramping a bit. The next day I cramped a lot. Nothing that a menstrual cramp medication couldn't handle though. Next, I started gaining some weight. I checked on-line immediately to find out if weight gain was an issue. I found that many if not most of the women had some weight gain. Little did I know that weight gain was minor compared to my other symptoms.... I have had HAIR LOSS!!! I think I'm going bald. Ok I am over exaggerating, but seriously I lose handfuls of hair with each shower. I have gotten to the point where I just towel dry my hair and spray it with hair spray (kind of the messy look) I don't want to comb it and lose more hair. I have been very itchy in the vaginal area, and have had discharge also ( kind of wet and watery looking). Is my water breaking again??? lol I have read some of the stories about the mirena and decided that some are far fetched, but I really have to say that having these side effects for myself I realize what my "normal" is. My body is not agreeing with this at all. Even if it would level out after a few more months I don't even think it's worth the wonder! I have tried to stick it out just thinking I must be crazy and that these side effects are not from the birth control, but now I am realizing that I am crazy to leave this Evil thing in! I will be getting it taken out ASAP!
June 27th
2008
5:58 PM
I started Topamax in November of 2007 the usual 25mg and worked my way up to 150mg. I have always had pretty thick hair and now have hair loss in the widows peak and top part of my hair. Needless to say I am devastated. I have cut myself down to 50mg in the am and 50 mg in the pm. My Neurologist states that she has not heard of hair loss but even this web site and the drug company states that it can cause hair loss. I have with the help of a very good massage therapist determined that my migraines are cervical so I am seeking a second opinion and taking myself off this drug. Not worth the hair loss if I don't need to be on this drug.
-- By summergrl | Reply | (3) replies | Send Private Mail
Yasmin (112) Mirena (72) Topamax (45) Lisinopril (37) Wellbutrin (35) Synthroid (32) Lipitor (23) PredniSONE (23) Warfarin Sodium (22) Levoxyl (21) Singulair (17) Kenalog (15) Depakote (14) NuvaRing (14) Toprol-XL (13) Lupron (12) Diovan (11) Advair HFA (8) Fosamax (7) Loestrin 24 Fe (7) Ovcon (6) Trileptal (5) Advair Diskus (5) Lamictal (5) Maxidex (4) Aviane (4) Femcon FE (4) Gardasil (4) Zocor (4) Neurontin (3) Omeprazole (3) Methotrexate (3) Levaquin (3) Pentasa (3) 5-Aminosalicylic Acid (3) Yaz (3) Desogen (3) Methimazole (3) Lotrel (2) Proscar (2) Ketoconazole (2) Atenolol (2) Prozac (2) Estrostep Fe (2) Femara (2) Zyrtec (2) Hydrochlorothiazide (2) Januvia (2) Prometrium (2) Tenormin (2) Nicomide (2) Imuran (2) Paxil (2) Ortho-Cept (2) Pravachol (2) Welchol (2) Premarin (1) Flecainide Acetate (1) Aromasin (1) Xalatan (1) Dyazide (1) Jolessa (1) Tegretol (1) Cotazym (1) Cytoxan (1) Darvocet A500 (1) Effexor XR (1) Carbatrol (1) Topamax Sprinkle (1) Simvastatin (1) Propecia (1) Ambien (1) Cyclessa (1) Norvasc (1) Ambien CR (1) Protropin (1) Lotensin (1) Arimidex (1) Celebrex (1) Parlodel (1) Avandia (1) Actonel (1) Fluvoxamine Maleate (1) Prevacid (1) Eldepryl (1) Triphasil (1) Metoprolol Tartrate (1) Prilosec (1) Anectine (1) Elmiron (1) Effexor (1) Zyvox (1) Protonix (1) Plavix (1) Tri-Levlen (1) Pramosone (1) Novasal (1) Lodine (1) Reminyl (1) Prevalite (1) Ortho Tri-Cyclen Lo (1) Lithium Carbonate (1) Methylpred DP (1) Garlic Oil (1) PMS Progesterone (1) Arava (1) Methadose (1) Cytomel (1) Apri (1) Claritin (1) Glucovance (1)
July 19th
2008
6:55 PM
I too have experience a late period, 11 days late so far. In addition, I am having extreme nausea. I thought maybe I was pregnant, I took 3 tests and all are negative. I have been on the Wellbutrin for 1 month now and am not really thrilled with the results. Actually, I find it's not helping at all.
I was on Celexa for about 6 months and loved it with 2 exceptions. Hair loss and a huge loss of my sex drive.
My thought is that none of these drugs are without side effects...there is no free ride.
Anyone else have similar experiences with Wellbutrin?
-- By hilary45 | Reply | Send Private Mail