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100 Side Effects posted for handfuls

October 21th
2009
11:51 AM

i discovered that i had hyperthyroidism which was from grave's disease and grave's thyroid eye disease in jan. 2009. at the end of march i had my thyroid removed. never let anyone use the radiation treatment if it is in your eyes. my surgeon said if we had waited another week i would have been dead. they started me on 75 mcg of levoxyl. it made me mean, i prayed to God to let me die in my sleep every night. the dosage was changed to 88 mcg. my hair was falling out by the handfuls. i kept calling my dr. and being told it was normal. i lost 75% of my hair mass almost to non reversible. i have been on appearex and women's rogaine once a day and am using nioxin hair cleanser and conditioner for 2 months. i have new growth thank goodness. my toes almost froze off my feet, the headaches cannot even be described, i gained 40 lbs, this will be the 3rd time in 7 mos. they need to change my dosage to 100 mcg. my body cannot take it. today i am starting synthroid. until i found this site today i had no idea most of my agony was from levoxyl and it's side effects. thanks so much for all the information. good luck to everyone.

-- By gravesdisease | Reply | (2) replies | Private Message me

October 6th
2009
6:05 PM

feel so so sad and just want to die, can't get out of bed for more than 2 hours at a time, so much pain in hips and legs that I just want to take handfuls of pills to stop the pain, no motivation to do anything, nausea and stomach ache all the time, and of course constant runny nose, can't make it up a flight of stars, swollen hands

-- By alaskamom | Reply | (1) replies | Private Message me

September 24th
2009
9:09 AM

Got the Mirena out yesterday...nearly instant relief of the bloated stomach, foggy head, constant headache. I slept like a baby for the first time in 2 years, I feel clear headed and HAPPY today. Had some cramping after she took it out and spotted for a few hours. It had started to embed itself in my uterus and when she removed it the pain I've been experiencing for the past 2 weeks was immediately GONE. Of course she attempted to give me a million ways to fix all my side effects without taking the "plastic nightmare" out of me but I was firm and told her that it was coming out if I had to take it out myself. Started the patch same day, still anticipating some bleeding but so far nothing to speak of aside from feeling immense relief. I had acne (horrible cystic acne on my back) hair falling out in handfuls, bloated, couldn't lose 5lbs even though I eat clean and work out 6 days a week, bacterial vaginosis several times, foggy head, mood swings like never before, my blood pressure was beginning to raise, stomach and back pains, i could go on for days. I do want to point out that had you asked me 1 1/2 years into having the Mirena if I was happy with it I would have said absolutely, I had no period and no side effects until having it for almost 2 years!

-- By byebyemirena09 | Reply | (1) replies | Private Message me

September 19th
2009
4:02 AM

Hi, just wanted to follow up. I HAD my Mirena in for roughly 3 months. I had it removed after a lot of speculation. I must admit, I feel a lot better. My hair is no longer falling out by the handfuls, my moods have evened back out, joint pain is still there but not nearly as bad. The weight thing...I lost 10 of the 25 pounds within the first month, and have not lost an ounce since then despite a strict diet and moderate exercise. But, the odd thing is, that 3 days post removal, I started my period, bled HEAVY for 4 days and back to normal flow on days 5 thru 8 (yes, 8) but now, a month and twelve days later...no period, and I'm right back to retaining water in my hands and feet, and again have the bloated gut, with lots of cramping. It's very odd...

If anyone can offer some insight, it would be greatly appreciated. Oh, and I forgot to mention, I'm actually dreaming again!!! It's awesome. Sleep is good!!

And another thing, I couldn't help but notice that a lot of women are saying they had theirs inserted more than a year ago...the "IUD" Mirena hasn't been on the market that long. The previous Mirena was a coil, not a silicone IUD. I've been told by one of the doctors at the hospital I work at, that it's more so a reaction to the silicone than to the hormone...food for thought...

And, along with the few lucky women who have been successful with their Mirena endeavor, I also have 2 friends who absolutely LOVE theirs! No side effects, no weight gain, nothing! That's why I decided to get mine, but I knew within a matter of days that something was going on. I wasn't my self, and after never in my life struggling with weight, I all of a sudden was outgrowing all of my clothes. It wasn't pleasant. So again, congratulations to the lucky ones, and for all others, my sympathy. Removal is quite simple, no pain at all. It was over before I could even hold my breath. Felt similar, but not even as bad, as a pap.

-- By francesca1 | Reply | (2) replies | Private Message me

September 15th
2009
8:22 AM

How interesting that I find this information out now. I had my third child at 39 in 2005 and have always suffered from bad periods. I was talked into having a mirena inserted and thats where my story begins. I was told that I would have spot bleeding for about 3 months - after 9 months of continual periods I was well and truly over it as was my partner. I went to my gp who order an ultra sound. This showed it had moved and was sitting sideways and would have to be surgically removed. The side effects were herendous for me and still are after having it taken out two years ago. Not only did I have my periods for 10 months non stop, I had continual nausea, migraines (which I had suffered previously but not to the extent I was having them), massive weight gain, fluid retention, the worst pms which was constant and so so aggressive towards everyone I came in contact with. My sex drive went out the door and my relationship started to fail. My hair also started to fall out in handfuls and still does to this day and my skin was always so dry. I was also constantly tired and had very little energy. Two years ago I went in to to have the mirena surgically removed and at that time I also had an oblation and my tubes tied. The oblation worked for about 6 months but my periods are worse than they have ever been and thats because now Im told Im pre-menopausal!!! I still have the occasional migraine, my hair still falls out in handfuls and my skin is still really dry. My sex drive is starting to come back (thank god). I thought all these crazy symptoms would go away once this horrible mirena was taken out but it seems they're here to stay. I now see a psychologist every week trying to get my aggression back under control which is working well. I wish I had known about all these symptoms prior to having the mirena - I might still be with my partner instead of being single. My advise to anyone wanting permanent contraception - get your tubes tied and stay right away from mirena.

-- By niltub66 | Reply | (1) replies | Private Message me

September 12th
2009
11:06 AM

Okay, here is my story.
I went on Ovcon when I was 19 (in 2000 I think) and took it nonstop for about 8 years. I finally went off of it this past April 2009. When I first started I did get all the normal side effects (5 pound weight gain, breast tenderness, etc) but after 3 mos it resolved. When they switched to Balziva I noticed those same mild symptoms that also resolved. I finally made the decision to go off of it when I broke up with my boyfriend, since I had been wanting to for a long time. I noticed over the last 4 years my hair had been getting progressively thinner and thinner. I can't believe how much thinner my hair looks now compared to when I started, looking at pictures from when I started was always a shock. I know there is no real evidence for this but BC has been loosely connected with gum recession, ligament laxity, etc which I have also been experiencing. Don't know if that can be attributed to BC or not, but it just contributed to my concerns with being on the pill for so long. After 8 years, I barely got a period, it was more like a day or two of clumpy brown crap, I'm sorry I know that is gross, or no period at all. Honestly the period part of it was a plus since it is never fun to be on your period.
So, I was very worried about what would happen, especially with my hair when I stopped taking the pill. Let me tell ya, it wasn't pretty. Starting a few weeks after I finished my last pack of Balziva, (I didn't stop mid pack in order to keep things as normal as possible) my hair started falling out in handfuls in the shower. I actually sat and counted 300 hairs in the hair catcher after one shower. This went on for about two months. I bought Nioxin #1, and it didn't make much difference with the amount of hair falling out. I told myself I would not seek medical advice until my periods regulated again. In my mind this would mean I was back to normal and on a normal hormone cycle. Yikes my hair got thin, but with the Nioxin, did start to grow back. It took about 4 months to get my normal period back, or what I think is a normal period, its been so long since I had one. I was happy about this because my nurse practitioner said it could take up to a year to get your period back. I'm not completely regular now (September) but it seems to be approximately every 5 weeks. But it wasn't really regular before I went on the pill if I remember correctly. Anyway, even though my hair still looks very thin, I am noticing short, growing hairs all over my head. Which is such a relief! I really didn't want to have to go on any more synthetic hormones to take care of my hair problem. I will probably get my hair cut short so it doesn't look so bad till the new hairs grown in. The Nioxin I bought ran out about a month and a half ago and I am back on normal (cheaper) shampoo and the hair that falls out is much less. Although I do still notice my hair all over the place, its not as extreme as it was. We shall see if it ever gets back to pre birth control thickness again. Just a note, I did use the three step Nioxin package, cleanser, conditioner and the spray that is supposed to stimulate hair growth. But again I only bought it once to give me a boost.
Hopefully this is informative for anyone worried about going off the pill. I just really wanted to be all natural again. And condoms aren't so bad :) once you get used to them.
Oh and I have been trying to maintain a healthy diet including lots of greens like kale and spinach, less meat, and lots of fruits and veggies!

-- By infoseeker1 | Reply | Private Message me

September 6th
2009
4:01 PM

Well, I've finally figured out how it is that Mirena works as birth control: if you're not having sex, you can't get pregnant. The first few weeks after having it inserted (about 2.5 months ago), I was fine - spotting pretty regularly, and having significant cramping, but nothing I couldn't handle. Then slowly I began having other side effects: dry, brittle hair that falls out in handfuls, dry skin, irritability, depression, fatigue, lack of motivation to do anything physical, extreme bloating through my mid-section (I am too terrified to get on the scale to see how much I've gained, but it's been about 4-6 dress sizes), swollen hands, migraines, and no sex drive. I mean, ZERO. My husband and I had a very active sex life which has now gone down to a couple times a month if I'm not too tired at night. I was a runner up until this summer (used to do 4-6 miles three or four times a week) and now I can't go more than a mile without becoming completely exhausted. I absolutely intend on getting it out, but ironically I'm so brain-dead tired all the time I can't seem to remember to make the phone call.

I did my research prior to getting Mirena, and read page after page of women who had extreme side effects from the hormone, but somehow assumed I would be one of the blessed few to escape them. That was big, fat, giant mistake. Bad pun intended.

-- By islane | Reply | (1) replies | Private Message me

August 24th
2009
12:38 PM

This website is a joke! After I had my Mirena inserted 4 months ago I started reading on the internet about possible side effects. I was furious with myself that I hadn't Read up on this before the appointment. There were so many horrible reviews involving hair loss, weight gain, acne, and mood swings! I was so scared and actually thought about removing the Mirena that week. I then found multiple reviews on websites not owned and operated by other drug companies that are trying to scare people in order to prevent the sale and use of the Mirena and the side effects listed here were a 180 degree difference. I have not experienced any weight gain, in fact, I recently was able to shed 5 pounds from picking up running again (so it is possible to LOSE weight on the Mirena as well). I have had zero hair loss, have not had a pimple anywhere or any random hair growth. My live in boyfriend and I have discussed if we've noticed any mood swings or changes and my mood which is usually optimistic and positive has been the same since I had the Mirena inserted. My periods are much lighter and although they can last an extra day or two more than what I was used to, they are light and I have not had any cramping. I'm writing this review not because I absolutely love the Mirena, I think it's a fine form of BC but who LOVES their BC, isn't it all kind of a pain. The Mirena is by far the most convenient form of birth control and I don't worry at all about missing a day and the chance of getting pregnant. I'm writing this review because I encourage everyone to talk more with their doctors about the side effects and look around on the internet for REAL websites.

-- By katejbp | Reply | (10) replies | Private Message me

July 13th
2009
6:07 PM

Ugh, this has to be the worst medicine I have EVER been on. I was having anxiety attacks that occurred every evening and lasted for hours. Hot flash, nauseousness, inability to concentrate, thought I was going crazy.........
they started after my mom went in for open heart surgery in Nov of 2008. They put me on Xanax for attacks, and Clonazepam (double ugh), and I didn't take Effexor for a while, but my aunt convinced me to do it as I wasn't doing much better.

The thing is I'd been having issues with fatigue, heart palpitations, facial hair, etc. for several months to years and the doctors ran blood work and said everything was fine........

With the clonazepam and effexor I didn't have mood swings so much, but it was because I spent 16-20 hours a day in bed. When I first started the effexor I was told that the side effects go away after your body adjusts, and as it was the fourth or fifth anti-depressant I tried I figured I would suffer through. I lost 40 pounds (as I was/am overweight it was a good side effect in some ways) in a matter of 6 weeks, lost my appetite to the point that when I realized that I needed to do something about it I had to force myself to eat 1/2 piece of toast a day, slowing eating more...........I went several weeks only able to eat an average of 500 calories a day. I was so nauseous all the time. I was pretty much having a break down. I would only be "functioning" for 2-6 hours a day.

After going to the ER because my muscles began shaking while standing or trying to climb stairs (I'm only 28), having racing heart beats which they just prescribed more medication for, absolutely no energy, my hair falling out by the handfuls, I would wake up with it on my pillow............could not concentrate for the life of me, falling behind in school work (back to school mom), unable to do papers because I couldn't think.............

They finally tested my thyroid (runs in the family, have been telling them it sounded like my thyroid from the beginning........) my levels were finally off the charts, my TSH wasn't even registering. I was diagnosed with Graves disease........which can cause the panic attacks that they put me on the medication for in the first place.

As I figured it was probably the Graves, I tried weaning off my meds, only to feel as though I was going nuts and going to die............... I cut my clonazepam and effexor dosages in half, and within 2 days I could concentrate, and within a couple weeks I could go up and down the stairs again.............

Even now it is hard to say how much of my issues were caused by the Graves and how much was due to the Effexor combined with the Clonazepam. I was able to wean of the Clonazepam within 6 weeks by cutting my dosage in quarters every two weeks, but NOT the Effexor. I tried cut it and started having panic attacks, couldn't think, major migraines, and bed ridden........so I had to reduce it even slower.

Once I got down to half a dose, all of my symptoms went away except the fatigue. That is why I associate a lot of it with Effexor and NOT the Graves, because the symptoms did not go away until I reduced the drugs. I am now finally free of Effexor for about a month, and it was a hard road. It took me six months. I still have some issues with concentration and the occasional panic attack, but they are very minimal. I have read that this could be due to either both or one of the drugs I was on as it can take a year or more for your body to adjust.

Anyhoo, I wonder if the medication didn't trigger the Graves, or what.............but I would NEVER EVER suggest this medication to anyone.

I have gained most of the weight I lost back........but that is to be expected since my metabolism probably hit rock bottom not eating anything but toast for weeks.......

Anyhoo, I really wish that Doctors would tell you what could happen before giving you a drug. At least then when you start having these symptoms you know where and why...........rather then going in, and them having no idea?!?!?!? Funny, as if you search online you see lists that match exactly what you are going through.

I am now VERY leery about taking any meds at all, including Tylenol.

-- By plainome | Reply | (1) replies | Private Message me

July 6th
2009
8:53 PM

My 14 year old daughter received her fist Gardasil shot in Sept/Oct 08. Soon after she started losing her hair and thinning. Now it is coming out in handfuls. She is so upset and I believe that she is becoming depressed due to the emotional heartache. She has not received any more shots. Anyone who reads this don't give this to your daughter.!

-- By pswearingin | Reply | (2) replies | Private Message me

May 19th
2009
5:58 PM

I had Mirena put in after the birth of my 3rd son, on 4/2/09, just 6 weeks ago today... I have been cramping really really bad, and had started bloating (bad)... Sex was just painful, it would hurt so bad, and I didn't know what to do... The nausea, ongoing sleepiness, depression, handfuls of hair falling out, and mood swings... I figured it would just pass... I decided that I was going to have my dr take it out today, only because I couldn't stand the pain anymore... ONLY 6 WEEKS!!! I found that I have gained 10 lbs in the 6 weeks...When my doctor took it out, he had it swabbed immediately, not a good sign... He then told me that he had to do an exam at that time... I found out today that I have an Endometrial Infection, which partners with the PID... I have to take 2 antibiotics and see my doctor on June 1st... I also requested the depo shot... I really hope that I will be okay, and I hope all of you will too... My heart goes out to you all... I know that I've been in tears since I left the doctor office, I don't understand how someone can make something that can hurt anyone this bad...

-- By 3boysmommy | Reply | (3) replies | Private Message me

April 11th
2009
3:59 AM

I took Yaz for a few months last year and I had to quit taking it because I got to where all I did was cry all the time. I became so depressed I couldn't even be looked at with out crying. My husband took my Yaz away. It took around 2 months after quitting taking Yaz for those symptoms to go away and in those 2 months my hair was falling out by the handfuls. I went to the doctor and had lab work done even thyroid and nothing was to blame. I feel that it was Yaz as this pill is evil.

-- By courtneybsmom | Reply | (3) replies | Private Message me

December 9th
2008
6:22 PM

I Just started the lupron injection 2 weeks ago. My side effects have been coming one by one immediately after i had my shot my whole right side felt sore like my arm down to my leg. two days later i felt really sleepy and kept getting headaches that would come an go through out the day.a week into it i had to leave work because i was vomiting constantly it was horrible a just felt so sea sick. i just want to know what else am i in store for? an i'd like to know how much hair loss is it going to be?

-- By rainbow86 | Reply | (2) replies | Private Message me

November 20th
2008
3:35 AM

My hair kept coming out by the handfuls. I've lost at least 8 inches since I started simvastatin! I mentioned this to the endocrinologist and he said he didn't know, but he prescribed it. I am furious, hair is a woman's crowning glory.

-- By tiredoffeelingsick | Reply | (1) replies | Private Message me

November 13th
2008
11:50 AM

I am a healthy 58 yr old woman. On May 20 2008, I went to the dentist to have two small fillings done. At the time of the shot I experienced what felt as though I had received an electrical jolt because the shot hit my nerve. This jolt radiated down to my ovaries. I complained to the dentist instantly. Right after the visit I started noticing that my hair was thinning. On June 17, 2008 at my normal hair appointment I commented to the beautician that my hair was thinning. On June 27, 2008 at the second visit to the dentist I experience the same problem from the shot and again told the dentist of problem. By July 18th I noticed some extreme hair loss in two locations on my scalp. I pointed out my hair loss condition to the Dermatologist at the Cleveland Clinic on July 18, 2008 he referred me to a hair loss specialist. On September 2, 2008 I meet the specialist she stated that the hair loss was caused by some extreme stress to my system. I told her about the dental work and my reaction to the injection. She said that could have been the catalyst that started this problem. The doctor said if there is some "shock to the system", as many as 70% of the scalp hairs are then shed in large numbers about 1 to 2 months after the "shock". This sudden increase in hair loss, usually described as the hair coming out in handfuls is called acute telogen effluvium. Has anyone else had a similar experience?

-- By anneliese | Reply | (3) replies | Private Message me

October 20th
2008
8:52 PM

my BF has been taking antidepressants for 15 yrs- mostly a combo of lamictal and parnate. he is always depressed, has no energy, can't lose weight, suffers from chronic migraines (for which he downs handfuls of Tylenol and Excedrin) and constant muscle pain. i'm afraid to drive with him because of the road rage. his thinking is foggy, he is overwhelmed by every little thing and he constantly loses his keys, his phone- you name it. when he saw the commercials for AADD, he started to think he had that too and needed even more medicine!

i've had about all i can stand and in doing research, i found that niacin is useful for people with depression. it has to be the flushing kind and you need to take enough without flushing. some very depressed people have taken 12,000 mg a day and still not flushed!

so i started him on niacin and as we built up his dose, he cut down on the antidepressants. he got to 2000 mg of niacin a day and it took him 2 months to wean off the antiDs. he had minor brain shivers, but not nearly as bad or as many as when he has tried to get off the meds in the past

he has now been completely off the antiDs for 2 months and is taking between 300 - 500 mg of niacin daily.

here's what has happened: in 2 months, he has only had one headache and his muscle aches have gone; consequently he has only taken one Tylenol in the last two months as opposed to 10 a day like he used to. he has more energy- this Sunday when he got out of bed, he got active doing things instead of slumping on the couch for hours. i also almost fainted when i drove with him and he didn't scream when a pedestrian cut out in front of him. he is much more able to focus, he is not getting overwhelmed by everything.

and for the past 3 weeks at weight watchers, his weight has gone down a little

he is very happy about it.

-- By propsguy | Reply | Private Message me

September 26th
2008
11:06 PM

I have been on Topamax since Jan of 08 for complex partial seizures. I was very pleased with it at first but started having
some more unpleasant symptoms. My hair recently started falling out about two months ago in massive handfuls! I was
and am very upset about it. I did have the tingling in the hands and feet when I first started taking it and I don't drink sodas
at all which I did all the time before. I did not lose weight at first but did a couple of months ago when I got very ill with a GI
problem. I actually lost about 20 lbs in about a month. This is when my hair started falling out. I have had a lot of labs
drawn and my TSH was undetectable but my thyroid levels (T3 and T4 are normal) and my antibodies are normal as well so,
there is no telling what is going on?? I just want off of this medication before I am bald!!

-- By ajac199197 | Reply | (1) replies | Private Message me

September 16th
2008
5:07 PM

I can't attribute this directly to my cortisone shot - however, I've noticed that the past few months I have been losing my hair. I can pull it out virtually by the handfuls anymore! I am only 24 - this doesn't seem normal and the only change I could point to is the shot. HAS ANYONE ELSE HAD HAIR LOSS THEY CAN TIE TO A CORTISONE SHOT?

I also noticed a change in my period. Nothing as extreme as I'm reading here - but I'm so glad to have read this - puts my mind more at ease to know have a cause for that.

I have tried other remedies - but the cortisone shot has been the only thing to actually work. Any other ideas?

-- By brandy001 | Reply | (4) replies | Private Message me

July 9th
2008
8:15 AM

Saw Levaquin on the news yesterday. I was very pleased to see that they are putting a warning on this med. I thought it was just me with a problem with Levaquin. I have allergies to antibiotics anyways so I attributed my problems to just another allergic reaction to an antibiotic. Wow!
I took Levaquin in April 3 years ago for a respiratory infection of some kind. I then had the same experience I have with allergies where my tongue felt swollen. I called the nurse and she told me to take the next dose anyway. I did so and my chest/esophagus felt like it was on fire. I couldn't breathe. I went into the Emergency room and they gave me a lidocaine/maalox combo that would take the pain away for a while and diagnosed me with reflux.
I went on some reflux medications later that caused more problems for digestion. The more we tried to solve it the more my system reacted. I ended up in the emergency room about 5 times that year. Two were for chest pain from the esophagus and two were from severe allergic reactions (anaphylaxis). I became allergic to many categories of food and lost down to 110 lbs. I went to naturopaths and other specialists and none of them could pinpoint any problems. I was tested for Celiac and had two upper GI and one lower GI that year alone, My Dr. bills totalled more than $5,000 for that year.
The next year I had given up. The only doctor that I would go to was the allergist and the new GI doctor I had found. I still worked but was in such severe pain that I did nothing but sleep when I got home. I cried and begged God for death or healing all night long. I was losing my hair in great handfuls. They put me on ativan and I became addicted to the stuff. I was allergic to most foods. I had a diet of about 6-10 foods that I would cook homemade and I would never eat out unless I knew what and how the food was prepared. I took vitamin c in very high doses and that took the pain away.
I slowly re-introduced food back to my system. Now I have a less restrictive diet but it still is limited. I am now allergic to all nuts, rice, sunflower seeds (sunflower oil is used in most potato chips), some other grains, and melons. I still have problems with legumes and some other foods.
It took 2 years for the pain to subside and I still have digestive problems with diarrhea on and off. I am fine just as long as the pain stays away. I don't mind being limited on my diet.
I had noticed that my legs and joints hurt during that time too- but the other pain was so severe and my diet was so limited that I attributed that to diet.
If there is a class action lawsuit on this stuff I would like to be involved.

-- By antmimi | Reply | (1) replies | Private Message me

June 27th
2008
9:46 PM

I am 29 yrs. of age. My experience with Mirena has been mostly bad. With any medication I usually try to see how it works for me and my body before reading into any web site. I don't want to pre-determine my side effects before they even happen! So, I didn't look up anything on this until I started having side effects of my own. And here's my story...
I got this thing put in right after the birth of my son in Feb. (MY 2ND BABY)My dr. told me it would be the best time to do it since everything was still fairly loosened up down there. I have to say that it really didn't hurt me to have it put in. I barely felt it. I went home with some minor bleeding and started cramping a bit. The next day I cramped a lot. Nothing that a menstrual cramp medication couldn't handle though. Next, I started gaining some weight. I checked on-line immediately to find out if weight gain was an issue. I found that many if not most of the women had some weight gain. Little did I know that weight gain was minor compared to my other symptoms.... I have had HAIR LOSS!!! I think I'm going bald. Ok I am over exaggerating, but seriously I lose handfuls of hair with each shower. I have gotten to the point where I just towel dry my hair and spray it with hair spray (kind of the messy look) I don't want to comb it and lose more hair. I have been very itchy in the vaginal area, and have had discharge also ( kind of wet and watery looking). Is my water breaking again??? lol I have read some of the stories about the mirena and decided that some are far fetched, but I really have to say that having these side effects for myself I realize what my "normal" is. My body is not agreeing with this at all. Even if it would level out after a few more months I don't even think it's worth the wonder! I have tried to stick it out just thinking I must be crazy and that these side effects are not from the birth control, but now I am realizing that I am crazy to leave this Evil thing in! I will be getting it taken out ASAP!

-- By bella25 | Reply | Private Message me

June 2th
2008
6:29 PM

Paper-thin skin on arms, hair falling out by the handfuls, clotting problems with the slightest scrape on my arms, bruising on my legs. Going to go back to Advair 250/50 and see if these problems go away.

-- By danabeth | Reply | Private Message me

May 19th
2008
6:07 PM

I was diagnosed at age 46 with osteopenia and being post-menopausal (altho I never had any symptoms). I was put on Fosamax 1X/week. After a couple of months I developed a painful locked left shoulder. X-rays revealed nothing, and the doctors could not give me any cause except "getting older." I was unable to hook my bra, raise my arm above my head, take an item down from a cabinet shelf, pull a shirt over my head, or put my hair up. I was referred to a physical therapist, and after four months of daily exercises with tension bands and light hand weights, most of the pain subsided and mobility resumed.

Now, a year later, I have developed terrible pain in my right shoulder along with pain in the upper arm, difficulty sleeping due to the pain, and recurring pain in the left shoulder. The right shoulder is not locked as was the left, but it is more painful.

I started doing the shoulder exercises on my own and found that the pain would be better for a few days, then resume with a vengeance--usually on the weekends. After reading this website and many others--voila! I have been taking Fosamax on Fridays. I've been off it now for two weeks and the pain is definitely better.

A few other things that have helped are a good massage to loosen the muscles around the shoulder joints, nighttime application of a heating rub (BenGay), and sleeping with a small pillow tucked under the armpit on the painful side (like holding a baby) to take the weight of the arm off the shoulder joint.

I have also been losing clumps of hair every day; I don't see any thinning or bald patches, but I am amazed at the two handfuls that come out every time I wash my hair. I feel so much weaker, especially in my arms, than I ever have in my life. I have always been quite strong for my small size, able to life heavy things, run long distances (three marathons), and have great physical endurance. Now I feel like a weakling; I have trouble getting up or down if I am seated on the floor or laying down, trouble lifting anything over my head, and trouble relying on the strength in my arms for ordinary tasks such as lifting or throwing.

I will check back on this site often and post an update if I see any significant changes after being off the Fosamax for a while longer. I want my shoulders, my hair, and my strength back!

-- By txmarty | Reply | (2) replies | Private Message me

March 5th
2008
10:03 PM

I had 2 kenalog injection in my sacroiliac joints. I had these injections within 2 weeks of each other. I had them done because I suffer from a chronic back pain, had had a spinal fusion and within 4 months began suffering unbearable pain in my hip and leg,it felt as though my hip was dislocated.
The side effects I have suffered are as follow: extreme hunger,weight gain, puffiness in my face and stomach, excessive hair growth on my face. The wierd part of the excessive facial hair is that before I had these injections done I always left handfuls of hair in the shower and when I put hair products in my hair, since the injections I hardly lose a single strand of hair.I also had severe night sweats,mood swings, and I have yet to get my period since I had the injections.
Above all of this I also suffered steroid withdrawal. Like I said I has these 2 injections within 2 weeks of the other. Abpput 3 weeks after the last injection I began to have a creepy crawly feeling in my arms, cold sweats, and vomiting. I called my Dr who said it was withdrawal from the steroids. I couldnt believe this. I did some research online . I discovered that this does happen if you have more than one injection within 3 weeks. I guess it does make sense because when you take oral steroids you are almost always given a taper pack. You are weened off of them so that you don't go into withdrawal. With an injection obviously you can not be weened but if you have the injections too close together, withdrawal can happen.

The only advise I have is that if you can wait to have your injections more than 3 weeks apart...do it because the withdrawal is miserable.

-- By sideeffects101 | Reply | Private Message me

January 27th
2008
1:09 PM

I was on Topamax for 10 days with a few minor side effects but nothing serious enough to quit it. My husband and I went to the library about 6pm. I am 46 and never wore corrective lenses but was noticing that the shelves farther away were blurry, I didn't worry too much since I had been having ongoing thyroid problems and figured my eyes were swelling (though that normally happened only in the mornings). By the time we got home and were sitting down to dinner I noticed that when standing in the kitchen the people in the other room were completely blurry. By 11 pm I could only see clearly within 18 inches of my face.

I awoke at 2 am with a severe headache and almost complete blurriness, I had to hold the pill bottle very close to my eye to be sure it was correct and even then could not be sure. My husband gave me the meds and I went back to sleep. I didn't wake up until 1pm!!! When I awoke all light was painfully bright and I could see NOTHING clearly! I was rushed to the hospital and was diagnosed with acute angle-closure glaucoma caused by TOPAMAX!!!

Thankfully the docs were able to reverse the symptoms but said one more day I would have been permanently blind. My eyesight has never returned fully, though I can function just fine and do not feel depressed about it.

Please, be very careful on Topamax. The stuff is dangerous to many people though a life-saver for so many others. Also, may I suggest to those with the tingling that you get your calcium levels checked as this is a classic symptom of low calcium. I just wonder how Topamax affects the other body systems, such as the adrenal and parathyroids.

-- By fibro_fog | Reply | (1) replies | Private Message me

December 18th
2007
6:27 PM

Hair loss! My hair was falling out by the handfuls after about 5 months on Yasmin. It first I had no idea that it could be the BC, since I have never had any side-effects like that from any other kind. I stopped taking the pill immediately, but my hair still falls out! I've been off Yasmin and any other BC pill for over a year now, and my hair is still falling out! Help! My Dr. is completely ignorant and telling me that he's never heard of any side-effect like that. I also have really bad acne. I had thick hair and completely clear skin before I started this BC pill. What the heck is happening? I had all my hormone levels tested as well as thyroid, and those are fine. Any ideas? Anyone else having this problem? Anyone found a cure? What is going on, and how do I get my hair back?

-- By eknowlen | Reply | (6) replies | Private Message me


 

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