Happy boy symptoms and conditions

for about a week I can not read the replays to people's posts. Can it be fixed please? My son is on week four being off singular. There are good days and bad. Hopefully we are heading toward more good. I think what I have noticed is he does better with extra sleep and vitamins.

So happy to find this site. I never noticed My son never had an eye tick until last month, ironically we started giving him Singular on a daily basis about the same time. My son just turned two and is has also been waking up screaming 3 times every night. Have others reported this same problem...also he is on Pulmicort too, have you read that it is linked to Glaucoma and Cataracts? Do you think that this could be causing the tick? Please HELP! I want a parent's opinion before bringing this up to the doctor...they are so quick to jump to more drugs it makes me sick! Thank you! Any other children with eye "ticks" like really quick consecutive blinks?

PRAISE GOD for all of the stories shared on this site. And I've only read page one. My husband called me back today to say that he "googled" Singulair and found some interesting things (to say the least). While we were on the phone, my three-year-old was in the throes of another meltdown, kicking me, hitting me, throwing whatever he could get his hands on. My older two boys, 8 and 12, were ordered, once again, to lock themselves in their rooms to avoid being hurt by him. He will throw stuff, bite, hit, kick, and, at times, spit on us. This disturbing behavior is rather constant lately. He is like a mad man. Very scary.

Caleb has been on Singulair since about age 1, when he was diagnosed with chronic sinusitis and allergic rhinitis. Unfortunately, we initially equated his rages with the onset of "terrible two's" and dismissed his behavior to a chorus of "oh, he's just a boy!" My husband felt, at times, that I was just not disciplining him properly. I intuitively knew, having raised two other boys, that this behavior was abnormal, even for severe tantrums. We received a variety of suggestions from his pediatrician, caregivers, and grandparents, all to no avail. We have several calm days but things always deteriorate back to insanity. He is VERY unpredictable.

Last Thanksgiving, Caleb (age 3) was kicked out of his daycare setting for biting and hitting. Once I witnessed him run as fast as he could into a group of playing children, falling on them, kicking them. He would walk up to sweet little girls half his size and push them down as hard as he could. It was a nightmare. My husband had to take 3 weeks of leave to stay home with him while we prayed and searched for new care. We had him evaluated and he was staffed into the "developmentally delayed" program in our school district (for poor adaptive skills and personal/social behaviors). We recently had his tonsils removed, hoping that some of the sinusitis symptoms and behaviors would improve. They really haven't. This past week we have been looking into the Feingold diet. We have been PRAYING for answers. The last time we spoke with his developmental neurologist, he recommended a trial of Risperdol (sp?). We feel like more meds would be like a band-aid, not a solution. But his rage is becoming unbearable.

So, that brings us to today. I was so moved by your accounts. Unlike so many of you, we don't have much of a "before" to go by. But his "after" sounds VERY much like what you have all described. It's probably the pure rage that I see on his face that is the scariest part. And at the same time he seems desperate and vulnerable. He truly seems to snap. If we had pool chairs, I can just picture him throwing them (citing another post :).

We are going to throw the Singulair away. He will never, ever have it again. Even if this isn't the cause of his problems, I certainly don't want to exacerbate any behaviors with this toxic medicine. I will post again just to let anyone who's interested know if this changes his behavior. I am praying that my entry will help someone else, just as all the other postings have helped me. I have renewed hope.

I have copied many of your comments to a Word document. I will be sharing it with a high ranking officer at the medical clinic/hospital on Keesler Air Force Base. I hope that he will discuss this with his staff and that perhaps we can at least make a difference here. I, too, will be filing a report with the FDA. I can only pray that this medicine has not permanently altered his developing brain.

My baby (1 yr) was just prescribed Singulair from a CHOP doctor. I am so thankful that I found this website. I certainly will not fill the prescription. I was hesitant at first anyway because he only had one fluke "asthmatic" insident that sent him to the ER (but has many food allergies and dog allergy). Anyone have any advice on where I should go from here? Honestly, I am afraid to go back to that doctor and they told me it would be very difficult to switch doctors at CHOP. Everyone knows CHOP is one of the best. It is so hard to get honest advice. Every doctor thinks you will sue. Or they're out to use you for their research. He thinks this was the beginning of asthma and it will get worse. It was a scary episode...first time I ever called 911 for one of my children. Breathing is obviously very important, but he never has any problems breathing otherwise (running, laughing, playing) Just got a cold that turned bad quickly. Should I prevent with meds.? My thought is to just keep the neb. and Albuterol handy. I hate giving daily meds. to a developing baby. My gut says to let God develops his immune system naturally. (Not against periodic meds. - So thankful for Benadryl!) Please help! Mommy of 4

My 2 year old son was put on singulair to help with asthma and allergies. Within 2 weeks we noticed a change in him - he wasn't the happy boy he normally is. We wound up in the ER one weekend after he had 3 petit mal seizures. The ER doc diagnosed febrile seizures. I wasn't convinced. Our pediatrician didn't agree, either, and sent us to a neurologist (but he didn't think singulair was the cause). The neurologist also hadn't heard of seizures associated with the drug.

My poor boy had an EEG and was in doctors offices, hospitals at least once a week until the EEG results came back normal - scary for a 25 month old child. I stopped the medicine immediately after our ER visit - call it mother's intuition. He hasn't had a seizure since. Although the doctors aren't convinced singulair caused the seizures, I firmly believe it did.

My 9 year old daughter has been on singulair for about 5 months now and she is moody and not a very nice person sometimes. Now she in complaining of headaches and even cry's with the pain I want to take her off but I am a bit scared that if I take her off to quick this might be harmful can anyone let me know if they had any problems when they stopped their childs singulair.
Worried Mum
Australia

This is in answer to concernedcitizen. My son, when he began to have behavior issues, was placed on Tegretol, Wellbutrin, and Abilify. He could not tolerate the Tegretol. So he stopped that. His "depression" seemed better so they took him off the Wellbutrin, he continues to be on the Abilify. We tried to take him off of that once, it wasn't pretty. His anger, frustration, rage, crying, depression, etc all came back....of course he was still taking the Singulair. (little did we know then....) We see his neurologist very soon. I am going to ask about trying again to remove the Abilify. My son is 7. He was started on these meds 4 months after having surgery to remove a cyst in his brain....we thought all the problems were just who he had become after having brain surgery. It was very depressing. I read all of your research with great interest. I had thought it had to be a something in the brain being triggered. My son had a tendency toward these things due to the location of his cyst....we had the "luxury" of knowing he would have behavior problems. So did his doctors.... Now with all the research it would seem someone like my son, who has a cyst in the left temporal lobe (a region that controls behavior) should not have EVER been placed on a medicine like Singulair. At the very least, he should have been taken off that medicine, before being placed on anti-psychotics. Good Grief. Thanks again for all your work. I will be taking some of the literature with me to the Dr. As I am sure others on this board will.
By the way - My son has been off Singulair for 10 days now. He is a very happy boy. Downright giddy. He is annoying his sister to no end. Dad and I are enjoying every blissful minute.

UPDATE:It is now a week since my 6 yr old son stopped taking singulair. My happy boy is back! He has now had a second day in a row with positive reports from school. These are the first 2 positive days of the entire school year!!! Its no mystery anymore! I am 100% positive it was the Singulair he was on. It may work for some people with no side effects and thats great for them. But for those parents out there that had the slightest doubt I am telling you from experience to go with your gut! Speak to your Dr for alternatives and get back your happy children!

My daughter is in kindergarten and has been on singulair for about 4-5 weeks. Her allergies are gone, no more snoring and and no more coughing attacks. My husband did ask the other day what was wrong with her because she had cried about 3 times that day. For any little comment regarding her older brother/ saying we loved him more etc. This is just not like her, now that I am reading this... I am putting two and two together. Does anyone out there know if Clariton will help with allergies as well as singulair?
I am seriously thinking of stopping the singulair.

I just wanted to post an update on my son. I posted his story on Sunday since hearing about this investigation. He took his last Singulair on Saturday night and every day I see my happy boy coming back! He tells me that he has had a great day at school for the past two days, and that he has decided he isn't as "stupid" as he used to be! He also comes to me for hugs and kisses now and for the last two nights at bedtime he has said he just loves me so much that he feels like he can't stand it and he likes to fall asleep hugging my arm! This has not happened before. He was a loving toddler before he was put on this medication for asthma at three years old. Not long after that he became very hard to please, very sad, at times violent, even throwing metal tonka trucks at his big brother and laughing when he cut him! He has had leg pain, constant stomach pain , night terrors and was convinced that every where we went people just would not stop staring at him...I could go on and on. We went out to eat last night and he did not even notice anyone "looking at him" and was even making cute funny faces at a little toddler at the next table to make him laugh. I am so glad to find this website to see that I am not alone in all this. As for the people who are saying that we are making these claims up, I am not pursuing any action toward anyone on this, I am so happy that my son is returning to normal and no amount of money could replace this feeling! If any other parents would like to email me for support and a shoulder to lean on, feel free to email me. Laura jtolto@aol.com

These stories sound all too familiar! What a nighmare this is for so many people. My son is 7 yrs. old and has been on Singulair for 5 YEARS! His dr. prescribed it for "cold induced asthma" which was a complication from RSV. Just about every time he got a cold he would develop pnemonia. The Singulair along with a nebulizer seemed to help his breathing. At first he was clingy. He wouldn't leave my side. We had to take him out of preschool because of it. Then, slowly his behaviors got really weird. He experienced severe anxiety, depression, self hatred, worried that me and his dad were going to die, sleeping problems, seperation anxiety, trouble focusing, stomach pain...etc. I too thought that I must be a horrible mother. My 9 yr. old isn't on any medication and he is a normal child. I thought I was doing something wrong with my youngest boy! My husband and I were seriously thinking about taking him for mental professional help. We have been to his dr. two seperate times to discuss his behavior problems and he basically blew us off! There are no side effects listed (from his prescription) that have anything to do with behavior problems. I always check the paper I get when I refill his prescription. I haven't given him this junk since March 28th as soon as I heard the news. Finally, all the pieces of the puzzle fit! I have seen improvement already! Last night he actually asked to go to bed. Before it was a terrible struggle to even suggest that he goes to bed. He did his homework tonight without any difficulty focusing!! That was awesome to watch! I hope he continues to get back to the sweet and happy boy he was a such a long time ago! He and his brother share a room and have bunk beds...right now I hear (for the first time in forever) him laughing with his big brother! Oh, what a beautiful sound!!!!!

what happens when you take children off this drug cold turkey? my doctor said it was ok to do that. but this am my son (he's 4) woke up (day 2 off drug) and started screaming that the lights were hurting his eyes...and ran around turning all the lights off. i sat up and watched him sleep all night. I'm flipping out. what has this drug done to him and thousands of other children? will it go away now that they are off? anyone else have withdrawal issues?

My 9 year old son has been on Singulair for about four years for asthma and allergies. It did wonders for his asthma and allergies. However, since starting the medicine, has experienced rages, anger, impulse control problems, extreme mood swings, violent and destructive behavior, repetitive behaviors, bed wetting, weight gain, bad self thoughts, ADD, paranoia, peer social interaction problems...shall I go on? He sees a psychologist once a week for counseling and a psychiatrist periodically. He was diagnosed last year with major depressive disorder and mild ADD. He was placed on an antidepressant, an antipsychotic, and an ADD med. My big-hearted sweet boy gradually faded away. When I heard the news about the FDA investigation last week, I did some investigating myself. What I found was gut-wrenching! The Singulair went in the trash. This drug has stolen four precious years of my sons life and made the entire family suffer! We have been through hell. Only four days off the medication and he is already feeling better and looking like my happy boy again! We are slowly weaning him from his psych meds. I am full of hope now for him and his future and my family's weel-being but I am FURIOUS at Merke!!!

my 15 year old son had irritablity and slept restlessly and then took his life on august 4th he went from being a happy boy to being gone in a months time on singulair.

I'm glad I decided to look up side effects for Singulair. My 5 1/2 year old son has allegeries and was prescribed Singulair and Nasonex. Our son before taking these drugs was a smart and happy boy. Since taking these drugs for almost one year, he has shown very aggressive behavior by hitting his sibling, cousin and classmates. When asked about what he did or learned in school he couldn't remember. Favorite line, "I forgot". He started to display ADD like symptons too. Short attention span. Can't seem to be able to focus on one topic like he used to. He would cry easily and talks back. Lately, he showed a total lack of respect for even his favorite uncle. Basically, he has this attitude on and off. We, as parents, are trying to understand what is going on with his behavior and are getting quite frustrated. Time out has no effect and we are tired of yelling at him when simple reasoning doesn't work with him. My mom had mention a while ago that perhaps the drugs had something to do with it, but I didn't believe her. Now that I've read about it here I think we will need to take him off and see what happens. As to his allergy, we will just have to find something else if Singulair is the culprit. His present behavior is unacceptable and is not good for his younger sibling to see this kind of behavior. I want my happy son back. We are not the liberal kind of parents that would let the kid get away with everything. And yet, we do not run a military type of family. We use alot of common sense and fairness in raising our family, so it just boggles our mind about the behavior of our son. It's bad when other family members who we see every-so-often noticed the changes in him too.