January 4th
2009
10:01 AM
My mom was put on Levaquin for 3 days to follow up on a Colitis diagnosis. She began hallucinating, hearing voices, can't sleep, loss of balance, among other things. We suspect it's Levaquin and took her off yesterday.....how long until she gets back to normal? She seems to be getting worse even though she is off it now.
-- By jikajobe | Reply | (4) replies | Private Message me
December 28th
2008
10:03 PM
My sixteen year old son, five year old son and three year old son are all on singulair for allergies. My three year old actually has asthma. They have been on the med for about a month. The singulair has been working just great so far as symptoms are concerned.
My five year old has complained of hearing people call him by name...people that were not me, my husband or his brothers. He says he doesnt know who it is but it's not us. Several times a day he says, "Mommy did you call me?" "Someone called me." He has also told me and my husband about a few bad dreams that were very vivid. Needless to day, after the second time my son complained of hearing voices, we no longer have given any of the boys the medication.AGJ Chesterfield, VA
September 27th
2008
8:38 PM
my son took biaxin for five days starting about 10 days ago we thought he was schizophrenic till we read about this stuff he seems to be getting better but we will have to see he was hearing voices by his head and scared him he babbles about very weird thoughts all night cant sleep 17 years old his face looks different during episodes he was typing very weird stuff on messenger said he cant stop they make him type very scary drug if your doctor prescribes it run sceaming to another doctor
-- By anon_tsim | Reply | Private Message me
June 3th
2008
3:22 PM
My son has been on Singulair since the age of 6. He is now 13 years old. He developed seizures 3 weeks ago - temporal lobe aura epilepsy during which he was hearing voices. EEG abnormal, MRI normal. He hasn't started medication for the seizures but I have stopped his Singulair immediately! This was just a hunch - searching the net to see if there is any correlation. I have been to the Pediatrician AND the GP the past 3 weeks and no one said anything. I think a great number of children are on Singulair in SA. Does anyone know about the possibility of this danger?
-- By katryna | Reply | (4) replies | Private Message me
May 1th
2008
9:02 AM
My son is 9 years old and been on Adderall XR for about 3 weeks and says he hears voices and they tell him they are going to hurt someone... He also has become very aggressive with his siblings... Has anyone else ever had this happen.. Please Help
-- By ksmetzer | Reply | (5) replies | Private Message me
April 29th
2008
12:14 PM
Some common sense observations about Singulair side effects. (As everything on the internet, this is only my opinion.)
Conclusion up front: Ethics in science SUCKS these day. Put enough money on the table and what happens? I don’t mean all scientists, just the few. But, the Merck ghost writers are the tip of the iceberg for those in the schm#ck category. Maybe, if we reveal the extremes of abuse of laboratory animals, the ASPCA will organize and save us all. How about if they find out about the pharma labs that just beat the cr@p out of the lab animals to produce a stress response to find out what chemicals are produced? What was that all about?? Probably military—send our soldiers out to war over politics/oil, then we will have a pill to give them every night to put them back together again for the next day??
1.The cysLT1 receptor, which Singulair blocks, is a gene, found on the x chromosome (?), part of our inherited innate immune system. It is evolution. The hypersensitive individual overreacts to environmental stimuli causing unpleasant or dangerous symptoms. It is advantageous to intervene to prevent that. Merck’s idea was to block cysLT1 so that the chemicals secreted by the mast cell cannot reach the tissues in the lungs and nasal passages to cause the inflammatory responses-asthma being the more severe.
2.How did Merck develop such a drug? The cysLT1 receptor , a gene, has a profile, a chemical map of the components. Montelukast, was modeled to chemically bond with the receptor so that it does not function. That bond will endure until the liver enzymes break it down. Montelukast blocks the leukotriene response until it is time to take another pill. All that sounds good so far.
3.Now comes the first of the too good to be trues. Montelukast was formulated for a specific gene profile. However, cysLT1 has variations, numbers unknown, but more than several. Even Merck recognizes that it is not effective for everyone because the clinical data shows that. Mis-matches with the gene profile can cause montelukast to be recognized as an allergen. Then, the body mounts an immune response against montelukast.
4.Many of the symptoms that we see here are allergic reactions to montelukast, headache (18%), types of neuro-muscular (10%), hives, nausea, vomiting, leg pain, stomach cramps, and more. Some people will recognize montelukast instantly as an allergen. If the mis-match is slight, the allergic reaction could be acquired or build over time. Montelukast will ALWAYS be an allergen to those people. Doctors will do great harm if they treat allergic reaction to montelukast with other drugs. Those people must STOP taking montelukast.
5.The second too good to be true, is that cystLT1 receptor, involved in the leukotriene response, is only a very tiny part of the immune system, genetically programmed to function as a WHOLE. Now what? It is highly unlikely that montelukast can block the leukotriene receptor - cysLT1 in the brain, lungs, spleen, intestinal mucosa, etc. and not cause some kind of re-structuring of the immune system to compensate for that. Those who take Singulair can expect that they are a new adaptation of human being who can operate without the cysLT1 receptor. Or, they can expect long term damage. How scary is that?
6.What would happen if Merck revealed that montelukast, by definition , cannot work for everybody because it is based on a gene profile with variations? What would happen if patients and doctors started to think about the immune system as a whole? Then Singulair – which means “single thing you need for air – breathe” the logo is even Singul-AIR, would not be the huge money maker that it is. Doctors would find a way to use it, for whom it is effective, in an appropriate way to consider the long term effects. For some people, this drug could have a place. But this drug does not deserve to be a CASH COW-money, money, money!
7.What in the heck is wrong with the FDA? Are they under a spell or hiding under a rock?
-- By concernedcitizen | Reply | (3) replies | Private Message me
April 2th
2008
6:57 PM
I have a 15 yr old son, that has been on Singulair for 4 years. He used to complain to me about not being able to sleep through the night, he couldn't concentrate at school. He was an honor roll student. Then he became short tempered. He also isolated himself, and no motivation. He would not want to do anything. He was depressed. Does not want to shower or anything. He has absolutely no self worth. He would talk about having these problems and I would just say to him that maybe it was just the changes going on. New school, changes to his body, it's just those times where changes and expectations are harder. Some handle it better than others. Than everything just continued to go down hill. My son is very intelligent, so when mom did not listen, he decided to self medicate. Went online to try find out what was going on. Tried to find what would help him. He learned quite alot about pharmacology(spelling???) at any rate he then started experimenting with other drugs. Prescriptions drugs. He just wanted desperately to be happy. I found out about this. He was getting into trouble at school, grades fell. So we then sought counceling and then a psychiatrist. They put him on all kinds of meds. Prozac, Ridilin anti pshychotic drugs. You name it my son has probably done it. Now my son is an addict. I now hear all these things about Singulair don't know what to think.??????? I have had him a drug treatment program of which he was kicked out for overdosing. Then, the hospital of which just put him on more drugs. I don't know what to do. He has asthma, when he does not take his Singulair the asthma really kicks in. I know this we are going to look for something else to treat his asthma. I need input. My thoughts are simple. I believe that it is possible that the problems my have started with Singulair but then my son took a step further. I think to try to survive. But in the mean time he is now an addict and I'm scared of whatever permanent damage that may have occured over the years. Are there any other parents out there, that think their teenager might be going through the same problems? If so PLEASE reply to this message.
-- By desperatemom1 | Reply | (4) replies | Private Message me
April 2th
2008
6:46 PM
I kind of think CNN and the FDA are intellegent enough to figure out that they should NOT get information off this website. What makes everyone think all these posts are real? First you have to weed out the pranksters who post here for fun, then you have to weed out the competitors to Merck who post here to bust chops, and then you have to weed out the ones who really have a psychiatric condition and get their jollies by posting made up stories.....shall I go on? This is the INTERNET people!!! Anyone with one, two or ten verifyable emails can sign up (I have 11 email addresses myself). I have been intrigued to see the same people posting under multiple user names. Then you go to the other boards and see them there. If you really study these messages you can figure them out. So my point is, NOT ALL THESES STORIES ARE REAL. I think I would be generous in saying 25% of these posts are legit. I would hope that no government agency or news agency is going to risk their reputation on a public forum message board.
-- By chris555 | Reply | (14) replies | Private Message me
April 2th
2008
4:08 PM
Please report your negative side effects to: https://www.accessdata.fda.gov/scripts/medwatch/medwatch_online.cfm
If the FDA is launching an investigation then they need all the reports we can send them.
I posted early in 2007 that my daughter had become angry, violent, withdrawn, appeared to be hearing voices in her head, etc. Pediatrician dismissed Singulair link. Found this site and took her to a specialist and then took her off this horrible drug. She is doing much much better. It has not been an instant recovery, although we did see some changes immediately. This drug needs to be thoroughly investigated.
-- By jderochi | Reply | (1) replies | Private Message me
March 10th
2008
9:06 PM
I was on Prednisone for a year and weened myself off because of the side effects.I'm back on it now and can't wait to be off again.Not that i felt that much better off of it.They started giving it to me through my i.v. in the hospital about 2 weeks ago.I was admitted for a Crohn's Colitis flare up and dehydration.The first 3 days were ok but then i felt the Prednisone kick in.It wasn't that bad until i left the hospital and started 40 mgs by mouth.I couldnt really sleep at all.Really bad panic attacks.Crazy dreams, hearing voices.I'd wake up every 20 min. dripping with sweat.I'd panic all day and night.Now I'm being weened off and am taking 20 mgs.I'm really weak.Can hardly type this.Its hard to walk.My arms and legs feel so weird.I'm having a really hard time concentrating.I feel like I'm on drugs all the time.Really dizzy,every things funny looking.Its like a really bad panic attack that never goes away.I have 2 more days then I'm down to 10mgs.Then another 7 days then I'm off.Hopefully this will all pass and i can be normal again.I can't live like this.I don't even know if any of this is making sense.I hope all is well with everyone of you and will keep you in my prayers.Hopefully we'll all be normal again soon.God bless,Carl
-- By staind373717 | Reply | (2) replies | Private Message me
February 11th
2008
1:39 PM
My 9-yr-old daughter was just prescribed Adderall for a one-month trial period. The first day was incredible. She was such a joy to be around. It was like I had my little girl back. She has been so trying for so long that I was just ecstatic. Although she did suffer from a bellyache throughout the day, which I hope will subside. The next day was not as wonderful. She was still a little hyperactive but her concentration was still improved and she was on her best behavior all day. The third day was almost as good as the first day, but that night she came into our room saying she heard voices whispering. When I asked her what they were saying she couldn't tell me what was said but was very scared. I have been distraught ever since. Is this indicating she does not have ADHD or is it a side effect from the medication?
Please help, as I don't want her to continue on this medication if her mental stability will be sacrificed.
-- By mamacita | Reply | (2) replies | Private Message me
July 19th
2007
6:49 PM
Took mostly for seizures, but have been informally diagnosed with Bipolar II.
Had tremors at night, almost immediately, marked anxiety, weight loss, strange heat flashes, severe headaches (already have a migraine problem), complete w olfactory hallucinations (could have been breakthrough simple seizures, or headache auras).
Felt detached from myself and others. But the most disturbing symptom of all was auditory hallucinations. I have no history of psychosis and this only happened after starting Lamictal. Basically I could hear a constant chirping sound, subtle, but loud enough at night to keep me from sleeping unless my radio was playing to distract me from the sound. Could it have been a new form of seizure? Maybe, but regardless, the sounds started at the time I started this drug. Plus, according to a psychiatrist, I had no signs of psychosis, just the unexplained phantom sounds. One last possibility: Maybe an inner ear problem. Still would like to look into that.
People are right when they say this is still an experimental drug. If I had known what I was getting myself into, I never would have tried this drug to begin with. If any of you have had auditory hallucinations on this drug, without a history of any sort of hallucination or psychosis, PLEASE respond here and let me know about your experience. Thanks!
-- By drugsensible | Reply | (5) replies | Private Message me
March 25th
2007
11:04 AM
hey everyone. I really read all your stories about geodon. I am new to this i am taking depakote 500mg once daily. now the doc prescribed me some geodon, to take at bedtime. i hope i dont go thru the tremors or hearing voices like before when i was on prolixin the worse drug for me personally. i hope geodon will help. and lastly, this life is stressful as it is and i sympathize with all your stories and finally THANK GOD FOR MEDICINE, without it who knows where we would be. ill keep u updated on how geodon works with me. hope u all feel better and hope i feel better also :)
-- By ramirabbo05 | Reply | Private Message me
October 7th
2006
8:10 PM
I have been on geodon for 6 weeks and i could say i have experience some horrible things such as seeing things at the corners of my eyes and hearing voices. I can't stay put for one second, feeling rejected by my doctor, unable to accomplish things that I know that I can very easy, having problems with my blood pressure dropping to 90/60. This usually happens in the mornings and gets so bad that I have to left work and come home. I feel confused and light-headed, can't sleep. For four weeks I went with two hours of sleep a day. I feel that its causing problems with my marriage. For the moment, my doctor has me on 60 mg of geodon and on 2 mg of klonopin. I don't know which two of them are the worst, I have been to the hospital twice for maniac attacks. The only thing good about the geodon was that I lost 30 pounds. The way I feel I rather be fat than feel like shit.
OG
August 1th
2006
7:20 AM
iam writing this on behalf of my mother, she is 53 years old and has been taking 40mg of simvastatin for aroung 4 months. she is experiencing severe pains in her legs and feet, causing her to lose sleep and is also hearing voices which is distressing her, does anyone else suffer from these side effects?
-- By bonjela5 | Reply | Private Message me
July 6th
2005
10:49 AM
My 7 year old son has been taking Adderall XR for about 3 weeks and last week he told me he was hearing voices in his head. Different ones. They have mean voices. I asked his doctor about it and he said as long as they don't tell him to do anything we are ok. I am not comphorted with the Dr response. I am not sure if he is actually hearing them or if he is able to hear his thoughts, due to being able to consintrate. Has anyone had a simular experiance?
-- By sadiz2000 | Reply | (1) replies | Private Message me
December 28th
2004
12:47 PM
VERY STRANGE SIDE EFFECT. PLEASE LET ME KNOW IF ANYTHING SIMILAR HAS HAPPENED TO YOU. I cannot find anything like it in the available literature.
I had forgotten to take my paxil the night before. I had about 3 cups of coffee about 5:30am. This side effect occurred about 10:00am. I was driving in bright sunlight into the sun. Suddenly, there was a strain in my brain and a loud snap or pop in my brain and sudden flashes of light like a strobe or lightning. It went away as soon as it was over (.25 seconds) and did not occur again.
I think my psychiatrist thinks I am crazy. She is asking now if I am hearing voices.
Where can I get some confirmation on this side effect?
PLEASE HELP!
James
-- By knightsj1 | Reply | Private Message me
September 24th
2004
9:32 AM
I've been on Zyprexa for 5 months and I've tried twice to wean myself off of it. The first time I tried it myself and it was unsuccessful, as I ended up having severe insomnia that lasted 8 days (absolutely no sleep at all). I then decided to seek a psychiatrist to help me wean off and he reduced my dosage every two weeks from 15 mg to 10 mg to 5 mg to 2.5 mg and then to no Zyprexa at all. That too ended up being unsuccessful as I also ended up having severe insomnia. I wanted so badly to be off the drug this time though and thought the psychiatrist must know his stuff so I presumed that my insomnia would eventually go away after 2 weeks or so. I ended up having insomnia for 3 weeks (with no sleep at all) and with massive headaches. I suffered throughout the whole process and then went to two psychiatrist who ended up telling me that I needed to go back on 5 mg of Zyprexa and that I need to stay on it for another 6 months as I may have a relapse and that's probably the reason why I have the insomnia.
Is there anyone who has experienced the same things I have? Has there been anyone who has successfully weaned off Zyprexa and be totally drug free? I'm not bipolar or anything. I was hearing voices back in April this year and I have recovered from it as I no longer hear voices. All I want is to get off this drug and carry on life as I did before I started on Zyprexa.
I've been to 2 doctors, 2 psychiatrist who all tell me that I can get weaned off it but based on the two unsuccessful attempts and the severe insomnia, I doubt them. Could anyone solidify to me that I can get off this damn drug? It's destroying my job and relationship. I hate the psychiatrist who put me on this drug.
Anyways, for those who have successfully weaned off, I'd like to hear your story as to how long you were on the drug and how you were tapered off it eventually. I need some faith and hope that it's possible to be Zyprexa free.
-- By amiduong | Reply | (1) replies | Private Message me
May 26th
2003
5:04 PM
I was put on Levaquin for a infection in my uteris. The first hour I took it I felt like I had the flu and then as the days passed I was gassy, stomach ache, diarrhea, headache, confusion and started hearing voices. On day 4 I didn't take my meds and called my doctor. I still heard voices the next day and here it is 3 days later I'm still having stomach problems and diarrhea. No voices but the confusion is still lingering. I have never had a problem with any medication. Never a single side affect until Levaquin.
-- By wisterias33 | Reply | Private Message me
January 5th
2003
7:31 PM
I have recently (end of July/02) gone off Seroquel as I felt absolutely fatigued and tired out all the time, and felt
like I did not have a life. I was first put on Seroquel in 1997 as I have been hearing voices since 1996 following a mild concussion after a fall. I am now 69 yrs. old. Another serious side affect was a weight gain of 45 lbs. Being on Seroquel did not take the voices away, so as well as still having to cope with that on a daily basis, I had all these nasty side affects. I felt that if I continued to gain weight at this rate, that I would end of having a heart attack or diabetes. The only thing Seoquel did for the voices was to subdue them somewhat. Since telling me doctor that I wanted off this medication (I tapered off it), I have lost 24 lbs., and continue to lose weight. I feel more like I am a part of what is going on around me, and I don't feel so totally lost. However the voices have gotten more bothersome, and I try to cope as best I can by keeping my faith in Jesus Christ. It is my faith that has brought me safe thus far, and not the medication. It is now 5 months since I stopped the Seroquel so hopefully it is now all out of my system. I don't know if one day I will have to try another form of medication or not, I take one day at a time, and will just have to wait and see what develops from here. Hope this information helps others.
April 9th
2003
1:26 PM
This is a follow-up to my posting of Jan.05/03. I have just had cataract surgery. I understand that this can be a side effect of Seroquel along with many other nasty ones. However I do realize people do tend to get cataracts as they age, but I had no evidence of cataracts forming before Seroquel, so who knows??
I have now lost 40 lbs., since being off Seroquel, am still coping without taking another med for hearing voices which continue & continue & continued.
My abdomen is no longer bloated and making me look like I am 9 months pregnant. I feel more like I have my life back in spite of hearing voices as I feel more motivated to do things around the house.
Singulair (6) Seroquel (5) Levaquin (2) Adderall XR (2) Zyprexa (2) Geodon (2) Adderall (2) Paxil (1) Zocor (1) PredniSONE (1) Lamictal (1) Biaxin (1) Yasmin (1)
February 4th
2009
8:56 AM
My daughter was on Yasmin for a year, and almost immediately began experiencing a variety of symptoms including depression, mood swings, headaches, nausea, tingling and numbness in her legs, etc. Doctors checked her thyroid, gave her a cat scan, prescribed anti-depressants, anti-anxiety, anti-psychotic drugs ( she started hearing voices) and warned that she couldn't stop these drugs abruptly without causing their own serious side effects. After her second hospitalization for suicidal threats, the psychiatrist, at our insistence took her off Yasmin, the only prescription drug that she was taking when the problems began. She began to feel normal within a few months, and was able to wean herself off Prozac a short time later. We are convinced that this is a very dangerous drug.
-- By veryconcerned | Reply | Private Message meIn doing research, I found that there is a consumer watchdog group, called Public Citizen ( ******), which monitors FDA reports and has successfully lobbied to have a number of drugs removed from the market. They have Yasmin listed on their "do not use" list ( ******) because of the risk of increased potassium levels and blood clots. The British Medical Journal (******) also has articles suggesting a link between Yasmin and thromboembolisms.
I believe the first step for any of us who have had adverse experiences with this drug is to go to FDA.gov and "Report a Problem". My understanding is that the level of severity of the problem leads to a required response on the part of the agency.
I think the biggest problem is that this drug is very widely prescribed but that few doctors seem informed enough to make a connection when the serious side effects ( fully described on the label) begin to emerge.