Hematologist symptoms and conditions

FINALLY! I am also experiencing hair loss, hair breakage, my blond hair is turning RED, and when it's wet after thoroughly washing it, it absolutely WREAKS of chemicals! My hematologist also swears that it's not because of the Lovenox-my hair stylist agrees with me, that it IS the Lovenox because nothing else has changed in my lifestyle. I think we should do a class action law suit since it's not listed on the Lovenox.com website as a possible side effect!

Warning: I do not know if this is related at all (or if there is anyway to know for sure). I accidentally saw a connection looking up conspiracy theories, and I can't seem to find any "real" information about it at all.

My daughter at 14 years of age had this shot. She didn't feel good after, but I thought "normal" vaccination reaction and haven't thought about it since. Feeling a bit faint, a fever, and such.

However, last September (a few months later) she was diagnosed with autoimmune hemolytic anemia. It started with her heart racing, she looked pale (and sometimes even yellowish), tired all the time, her urine turned a dark color, and fainting. Not knowing anything about this I assumed that she was dehydrated, and had her drink lots of water. Until she started fainting, at which time I took her straight to our family doctor. (Another reason that I wasn't to worried is she actually had been to many doctors who didn't seem to think this was abnormal.)

She started on high doses of prednisone to keep her immune system depressed, and has now moved on to mercaptopurine (as the steroids made her suicidal.)

I plan on bringing this "possible" connection up to her hematologist and I will report back (she has an appointment on the 11th.). However, I think it is better to do a little scare here, and possibly help someone rather than take for granted that I am not sure... (So take this information with a grain of salt.)

Also note that this was sudden onset, they can find no cause, and we have no family history nor any of the other typical reasons (sometimes can be "medicine" induced.) 10 months later she is still testing positive on her combs test though.

I was diagnosed with Factor V Leiden after experiencing bilateral PE's in February 2004. Since then, I have gained A LOT of weight. Not that I needed to but dang. I am at my highest ever & nothing I do will make it go down. I am almost 80 pounds heavier than I was in 2004. Something is not right. I suffer from depression (have for more than 15 years). My medication doesn't seem to have the same effect. My joints are killing me so it's hard to exercise.

A side note, shortly after being hospitalized for the PE's for a week, I noticed my hair thinning. Doctor told me it was because of the "shock" to my system due to having the PE's.

I will have to be on Warfarin for the rest of my life. I turn 45 in November. Ugh.

Has anybody had the same problem with weight gain? Is there anything to do about it? I feel I am at the end of my rope & slowing losing my grip.

I stumbled on this site while doing research on DVT's. I am a nurse and was on YAZ continuously (skipping the inactive pills and going straight to a new pack) to control my migraines for about a year. I developed 3 DVT's in my left calf and behind my left knee. I have been having charlie horse cramps as well. I am now on lovenox injections 2 times a day and 7.5 mg. of coumadin to deal with the clots.I have also had the issues with heart palpitations, chest tightness, and feeling like i can't catch my breath. I read in one of the posts where it was described as she "had to think to catch her breath". I totally agree! I thought this drug was great, until now. I stopped it last wed 1/7/09 when they found the clots in my calf/knee. Can anyone with experience tell me how long it took them to recover from the palpitations and breathing issues. I am a very health person, non smoker, with no prior or family history of any clotting issues. Thanks for all the info on here and God Bless everyone who has suffered!

I took Yasmin for 5 months. I was sick while on it and decided to go off of it. My doctor said that it was not the pill, but as I got sicker she agreed I should go off of it. Within days I was in the hospital and for three years I suffered deteriorating health until we found that Yasmin had lowered my serum b12 very much and that deficiency will progressively cause many severe health problems. I also had low vitamin D and low protein c antigen which left me at higher risk of clotting. My symptoms: heacd aches, stomach problems, all digestion problems, swelling and weight gain, severe blood clots during menses, burning stomach, joint pain, heart palpitations, irregular heart beat, feeling cold at times, low body temperature, low blood pressure, confused thoughts, depression, low libido, as I got worse I also developed numb left leg and foot, numb hands and breathing irregularities during night time. I also suffered a miscarriage due to the b12 deficiency which was undiagnosed, because the fetus could not assimilate folic acid without enough b12 in my body.

I found an Endocrinologist that listened to me and he ruled out all hormonal issues and found the low serum b12, vitamin d, low protein c antigen. He then recommended me to a cardiologist who said I had a slight mitral valve prolapse something I had never had, which he felt had become symptomatic due to the severe health crisis. I saw an gastroenterologist, because I had taken Yasmin with Advil and it is contraindicated, but I was never told that. I saw a hematologist, who said my blood issues very hard to explain and after a year and seeing my medical record for years prior to Yasmin told me it seemed things changed after I took it. I am now in good health, but it took me 3 painful years to get here. I also got acupuncture to ease my symptoms.

Good luck to all of you! I have found out that in the US their is some work currently to bring litigation forward.

Hello everyone! I just want to thank each and every one of you for your postings. On more than one occasion I would come to this site because without all of you I probably would have truly lost my mind. I just want to give a brief history of what's been going on with me because if it can help one other person then it's all worth it. In 2005, I go vaccinated for chickenpox, I work in health care, never had them, and wanted to start having children since I'm 36. A month after the vaccine I broke out in a horrific rash ALL OVER and had it until April of 2008. I went to the hospital where I had the vaccine, 5 dermatologists, 3 Infectious Disease, various medical doctors and no one knew what it was. This April, I was admitted to the hospital with Autoimmune Hemolytic Anemia. After 3 hematologists, the last one feels the vaccine threw my immune system into a tizzy. I started with 60mg of Prednisone and eventually got down to 2.5mg. The hemolysis(body produces antibodies that attacks it own body) started again so I went to a new Hematologist and was put back up to 30mg and just got put down to 10mg today. Right now my biggest concern is the hair loss. I use to have such thick hair and now I cry almost daily because I loose so much. I am going to try the Ensure like someone posted just to see if that helps. I drink protein shakes, take Silica, multivitamins (Solgar) that have biotin, and going to try Nioxin shampoo. I have terrible mood swings and now I feel like I am going through withdrawal. It's almost like I want to take more just to feel better. I know that sounds crazy. The big fat moon face, my joints feel like they pop out, confused easily, can't sleep, and just can't really leave my house and live a normal life since April. I HATE IT!!! The only thing that helps me feel better when the daily prednisone "kicks in" is walking and exercising. I feel so bad for everyone this drug is just awful. I get angry because not one person told me what life was going to be like on prednisone. I think that is just mean. That's why these postings are so important. I know this is entirely to long but I feel so much better getting my story out there. Did everyone's hair eventually grow back. I don't know if I will have any left next month. Thank you all so much.
GG

I had used NR for six weeks when I woke up at 3 am with SEVERE chest pains. Went to the ER and was diagnosed with *substantial* pulmonary emboli (blood clots in the lungs). I was hospitalized for five days and am now under the direction of a pulmonologist and hematologist for the next six months while I'm on blood thinner therapy. I had to do injections into my abdomen twice a day to prevent further clotting until my blood reached a theraputic level with the Coumadin (blood thinning drug).

Usually, pulmonary embolism afflicts sedentary people or those who have recently had surgery or those who have cancer . .. etc etc etc. I am a 33 year old personal trainer. I have ZERO risk factors for this to have happened to me . .. other than the nuvaring. It was determined that it was the cause and I was told to remove it immediately and to never never never use it again.

Please be careful in your decisions to use this product. I used it for the convenience of not popping a pill daily as I would usually forget. Wish I would have just looked a bit further into the possible side effects before choosing to go ahead with it.

Has anyone had a High White Blood count due to the Mirena? I was given the Mirena to help with the Progesterone because I'm so young and I didn't want to have a hysterectomy. I haven't had children and want to try even though I've been told it's not possible. I have a 1% chance which is why I want to give it a try, but I'm almost 34 years old, so I only have a little time since I'm already in Pre-Menapause. I have had horrible headaches and also bloating, but I thought it was from my GI problem I've been dealing with for over a year now. I had the Mirena insert on February 11th, but my White Blood Count has skyrocketed to the point they want me to go on to a Hematologist. I was on Seasonable and I almost had a heart attack because my blood pressure went up to high because of the side effects. Just be careful. Now reading this website has me suspicious, so now it maybe hysterectomy time. This was my last chance to try something.

My son is 4 1/2 years old and has been on Singulair since he was 2. We have been happy with the improvement we have seen in regards to his asthma. No more breathing treatments have been great. The last couple of years though he has continued to get severe headaches that put him out for at least a day with high fevers. The first time it happened was when he was 2 and he had a mild seizure with spiked fever. I haven't thought about it at all until he was due to get another headache and hasn't. We have missed some doings due to the holidays and walked out schedule. The timing and symptoms are seeming a little to coincidental. We have seen a hematologist and immunologist for his chronic headaches but no one knows why he is having them. He has even been admitted for them. His white blood cell count has been elevated with no known cause as to what his body is fighting. I think we will take him off of the Singulair for at another month and see if he gets anymore headaches.

I have been taking warfarin for over a year now. I'm not sure if my symptoms are from the meds or not. I have a very itchy scalp, and I occassionly have difficulty swallowing. Right now I have a pinched nerve and right shoulder pain, have had it on and off for 6 months, my right index finger was numb and tingly for a month. I am currently seeing different doctors to see what the problem is, so far nothing. I'm hoping to go off Warfarin soon, against my hematologist's advice. Has anyone had any similiar symptoms while taking warfarin?

I just returned from seeing a hematologist for bruising and bleeding under and through the skin of my forearms. Luckily, it is not a bleeding problem, but a dermatological condition known as "cutaneous atrophy". I read on this website that is a side effect of the kenalog injections.

I've been getting the injections in both my knees for the past year (shots every four months). The injections help the pain in my knees, but I think I will just take darvocet for the pain and tell my rheumotologist that I do not want any more of these injections. I've also experienced the excessive sweating around my neck and upper back, not knowing why. Scary side effects.

My second run in with a blood clot resulted in passing out on my way to pick up my 8 yr old daughter and being rushed to the ER because of a PE (near death), I'm thankful to be alive however (no reason for PE and being on coumadin for the rest of my life) I feel so tired now, I don't want to go to work, I can't concentrate, I suffer from dizzy spells, I'm always hungry (weight gain), nausea sometimes. before passing out I was working out, doing Taebo, the balance ball thing, walking. Now I feel like I'm and old woman. I'm 32 yrs old and taking #5 coumadin and I feel so bad the majority of the time and yes the doctors say "it's shouldn't be the coumadin" but I think it is my whole world has changed and I'm just trying to get back to being the fun, outgoing, active me. I miss myself so much, its like I'm depressed. I MISS MYSELF.

My 52 year old wife had a painful capsulitis in one arm that just did not get better. In the absence of her regular doctor, we went to a walk-in clinic for help for the unrelenting pain. She was given two injections of Kenelog withing 14 days of each other. The pain in the arm started to recede but a few days after the second shot, we had to admit her into a hospital emergency department for severe heart palpitations, extreme weakness in her legs, tingling and numbness in her hands and fainting. She was stabilized over six hours, blood tests were done and an electrocardiogram was done. She was negative in all the tests. It is now almost eight weeks later and she continues to experience palpitations irregularly and continuing fatigue that forces her to lie down at work and curtails her usual activities. None of this had ever happened to her before the second Kenelog shot. Her doctor has now had her screened for liver and kidney inflamation and she will have an echocardiogram in ten days. She has also seen a hematologist for interpretation of the blood tests. She is anxious and depressed by all this and feels frightened about the severe fatigue that keeps on hitting her. She'll never let herself have another Kenelog shot as long as she lives!!!

I had been on 60mgs of prednisone for a month and a half for ITP. Initially it brought my counts up slightly but they crashed back to where they were when I started after a month of the treatment. I did my research, and demanded I be given anti-D treatment (win-rho). My hematologist (blood vampire) gave me it and it brought my counts up considerably. Three weeks later they fell and he won't let me be weaned off the prednisone saying that its jepordizing my counts. The prednisone did not work for me, dropping as it did while on such a high dose. He says he won't advise me to go off the drug nor will he write me a perscription for a tapering dose. I go to a clinic because I'm a poor 23 year old that just graduated from college. This drug has made my life a living nightmare. The first two weeks it gave me severe depression and I did not eat. Gave me horrible mood swings, killer fatigue, joint pain, double vision, skin and acne problems, nasty taste in my mouth, muscle weakness, fat distribution on my stomach, waggy skin, etc. I am so ashamed of my body. I got edema all in one place my stomach one night and I could barely breathe and my heart was pumping so hard. It stretched out my stomach permanently and gave me stretch marks. I have gained 17 lbs dispite following a strict diet - I went off sugar and watched my salt and carb intake. My idiot of a doctor won't let me get off this drug from hell. I am so miserable and depressed. I basically threw any chance away of growing into a healthy person when I am older, I think. I think that because of this drug I am facing irrepairable damage. I am not even married or have children and yet who knows what damage it is doing to my reproductive system. If I knew what I knew now, I would never put that drug in my body, or I would have never even seen anybody for my disease, I would rather bleed to death. This drug should be taken off the market. It's handed out like it is candy. If I was just given the safest treatment for my disorder (anti-d) and seen that it worked then I would have never had to gone through this. But preds are nice and cheap let's give it to a 23 year old and ruin her life. What do they care what it does to me? They ignore me, even after telling them it made me suicidal. I feel like a shell of a person and haven't been myself since. I'll either have to find another doctor or taper myself off which I hear isn't too good since I'm on 20mg pills and can't accurately measure a taper. I'm lookin foward to premature aging with prednisone.

I have been taking Lipitor for the past 6 years without I thought any problems. I now have pain in my left shoulder that feels like a rotator cuff injury. Doc sent me for an X-Ray
which showed no abnormality. He then wanted to send me to
an Orthopedic dr for an MRI which I didn't do. I just had my
blood work done for the 6 month check and it revealed tha I
was anemic. He referred me to a hematologist to check
further. His preliminary diagnosis is multiple myeloma. I have lower back pain along with pain just under my rib cage
on my left side. I have felt all along the problem is from the Lipitor, but the doctors don't think so. How does this pain take to clear up. I have been off the Lipitor for nearly 3 weeks with no change. If anyone else has had this pleas let me know asap.
Thanks

I was prescribed Levaquin 750 q day for what appeared to be a breast abscess and swollen nodes in my left axilla. By day 3 I didn't feel a whole lot better, the infection didn't seem to be improving greatly, day 4-6 spanned a weekend, by day 7 I was so miserable I checked into the ER. There they did blood work that showed that my bone marrow was completely suppressed, which meant that my body was unable to fight the infection at all. The result was a two week stay in hospital, IV antibiotics x 4 weeks, incision and drainage of stated area x 2, and a lengthy recuperation. I am an RN, have never been sick a day in my life before this episode. I am still unable to return to work because of my low white blood cell count, and will very likely have to change jobs because I doubt whether I will be able to return to 12-hour shifts on an ortho-vascular floor. I am still quite weak, tire easily, need to rest frequently, do not have anywhere the ability to work a full day that I had before this episode. The affected areas are finally healing, but it is now 6 weeks post appearance of the infection. My WBC is still about half of what is should be to be low-normal. I am being followed by a oncologist-hematologist to correct the damage that was done to my bone marrow by this dangerous medication.