Hemotologist symptoms and conditions

I am a 40 year old female. I found out 3 years ago that I have factor V. I've been hospitalized for 17 PE's. I was being treated with coumadin, plavix, lovenox. My INR will not stabilize. The doctor has now put me on 30mg. of warfarin a day. and my INR still sets at 1.2. My side effects are awful. I feel tired, week, cold, weight gain, but most of all the terrible headaches. The doctor says it has nothing to do with the warfarin. I stay depressed and now losing hair. I've taken my doctors advice and I'm going back to the cancer center where they are more experienced. I feel like I'm dying everyday and its not in my head. I do believe its side effects. And if its not moving my INR than to me it seems useless to take such a high dosage. Its a catch 22.

I stumbled on this site while doing research on DVT's. I am a nurse and was on YAZ continuously (skipping the inactive pills and going straight to a new pack) to control my migraines for about a year. I developed 3 DVT's in my left calf and behind my left knee. I have been having charlie horse cramps as well. I am now on lovenox injections 2 times a day and 7.5 mg. of coumadin to deal with the clots.I have also had the issues with heart palpitations, chest tightness, and feeling like i can't catch my breath. I read in one of the posts where it was described as she "had to think to catch her breath". I totally agree! I thought this drug was great, until now. I stopped it last wed 1/7/09 when they found the clots in my calf/knee. Can anyone with experience tell me how long it took them to recover from the palpitations and breathing issues. I am a very health person, non smoker, with no prior or family history of any clotting issues. Thanks for all the info on here and God Bless everyone who has suffered!

I am glad that I found this website! I have been trying to find out how long it takes for my moon face to go away. I was prescribed 60mgs daily of Prednisone while 35 weeks pregnant for 3 weeks. When pregnant, I developed a condition called Thyromocypenia (my white blood cells die off during my pregnancies). In order for my OB to not have to put me under again for a repeat c-section, she referred me to a hematologist who put me on this drug. I asked him about side effects and he stated that the most common is increased appetite, which did not affect me. Even though I was pregnant at the time, my appetite did not change, but what did change was my face after I stopped taking the Prednisone. While in the hospital after the birth of my son, they did taper the dosage for 3 days and at the point of discharge, I was completely off the drug. I left the hospital on a Wednesday and overnight my face had swollen so strangely that I went back to the hospital on Friday. I had no idea that there was such a thing as this moon face syndrome. The nurse that attended to me in the emergency room told me about it. She said that she had taken Prednisone before for asthma and it took her face 3 weeks to return to normal.

I just had my son on 5/4, and my face has been swollen exactly a week today. I can see where some areas are reducing, but it is still not back to normal. My face did not swell at all during my pregnancy and I only gained 18lbs, so this was really startling for me to have been through 9 months looking great and after giving birth sitting up with a pie face, swollen nose, swollen lips, a swollen neck, and swollen shoulders. I also experienced a couple of migraines that nearly took me out. I hope to never have to take this drug again!

I had taken reclipsen for 6 months, and whenever it was time for me to stop taking them so my period would come on...I would bleed forever. Thus far, I have bled for 4 weeks straight. That is not normal at all

I just returned from seeing a hematologist for bruising and bleeding under and through the skin of my forearms. Luckily, it is not a bleeding problem, but a dermatological condition known as "cutaneous atrophy". I read on this website that is a side effect of the kenalog injections.

I've been getting the injections in both my knees for the past year (shots every four months). The injections help the pain in my knees, but I think I will just take darvocet for the pain and tell my rheumotologist that I do not want any more of these injections. I've also experienced the excessive sweating around my neck and upper back, not knowing why. Scary side effects.

I just started taking Warfarin on December 11, 2006 due to blood clots from surgery. My protime numbers won't go over 2.0, so I'm taking 12 mg and will probably start Lovenox injections. All my life I have rejected taking pharmaceuticals of any kind, and now this. I've told my doctor to get me off these meds asap, but now I have to see a hemotologist. If he says warfarin for life, I'll tell him no thank you. I will not live the rest of my life poisoned. As for side effects, the only thing I've noticed is a fitful night's sleep. I really haven't been that tired. I do get achy, but figure that's from physical therapy from surgery.

Thank God I'm not the only one! I was actually relieved when I found this site. I was an active 60 yr. old female until hit with blood clots in lt. leg that went to lungs. I've been on Warifin for almost four months these are my side effects: extreme fatigue, back and leg pain, over-all weakness,decrease in flexability of limbs, dizziness, vision changes even from day to day, memory loss( I've always been known for my great memory). I did mention these to my hemotologist last month and he sent me to ER. Cat scans of head, chest and abdomen all were normal. Every doctor I have seen says Warifin is not to blame but all this has developed since I began taking it.

I have been to see my Primary Care Physician for a pain in my leg. It's like a foot-falling asleep pain. While trying to figure out where this pain is coming from, I have had MRIs and bone scans that said that I have bone infarcts (blood not getting to certain parts of my bone) throughout my whole body, I am only 27 years old. My hemotologist has found no problems with my blood and my rheumatologist says that the only thing she could think of that would cause this are high doses of Prednisone. She told me I have a very rare bone disease, but wouldn't give me a straight diagnosis. That's all of the info I have. I have only taken Prednisone about 5 or 6 times in my life for no more than a week at a time, but my rheumatologist said that's the only explanation. I am now going to an oncologist for a bone marrow sample, but I am being told that Prednisone is the only explanation of why this is happening to me.

To Guest 12473 especially: Many thanks for your posting.

I too, have been on this lisinopril for nearly two years, starting w 10mg and recently ending at 40mg. Side effects include erratic BP, horrific dry cough in the evening, productive but sometimes bloody sputum in the morning. Unexplained low grade fever that comes and goes. WBC going out of sight, RBC going down. Hemotologist/Oncologist wants to do bone marrow biopsy thinking the same as Guest 12473: lymphocytic leukemia. My opinion: I've been slowly poisoned by this filth for months. Of course the body is doing strange things, the WBC are trying to fight off this chemical infection. I pray permanent damage has not been done. Quit the lisinopril 48 hours ago. Cough is starting to improve, feeling somewhat better and more energetic, but am now getting queasy throughout the day. Supposed to fly to England and Wales in a few days; hope I can make it.

This filth needs to come off the market now!

I had posted before about severe muscle/joint pain and weakness while taking Zocor. I was also having a problem with my white blood cell lymphocyte count. They were less than a tenth of what they should have been. This would adversely affect my disease fighting capability. After several visits to a hemotologist/oncologist and over 20 lab blood samples, nothing was found. I told my doctors that I had read on the Internet that Statins had been found to be immunosuppressors, lowering both T & B cell counts dramatically. None of them knew of or had read about this.
The only reason my blood cell count was even checked was because I complained of tiredness, pain, etc.

I decided to stop taking Zocor on my own and the improvements were dramatic. The muscle pain and weakness lessened considerably but did not totally disappear. My vision sharpened. The Lymphocytes went back to normal in a little over two weeks.

With so many people taking statins, are our immune systems being weakened making us more susceptible to cancer and disease? Certainly this question needs to be answered.