September 15th
2007
8:14 PM
I have been on Toprol-XL 25mg for 3 months. Shortly after I started this medication I developed hip/upper thigh pain which feels better when I walk. It seems the muscles are very sore in my legs. Never had this prior to taking this medication. It just gives you a sick feeling. I am going to start weaning myself off of this med by cutting it down to 1/2 a tab. I will say one thing it has regulated the PAC's but perhaps the flutter in my chest that will not hurt me, is better than the side effects of this drug. Of course the doctors deny that this drug has these side effects.
-- By aab31 | Reply | (2) replies | Private Message me
July 15th
2007
11:40 AM
I too have nothing new to add just wanted to share my experience. I had severe bylateral ear infections accompanied by a sinus infection. My dr. gave me 10 days of augmentumn (sp?) it didn't work so she then prescribed 10 days of Levaquin (poison!) my insurance company didn't approve it at first so the pharmacy put a call into my dr.'s office and was waiting for an alternative. I was in so much pain from the ear infections that I did the single worst thing that I regret in my life. I called my insurance company and had them overide the rejection and approve the medicine, I wish to God I didn't. I did ask them if it was a controversial medication and they said no, just that it needs to be approved. Well, I started on Monday July 2nd and by Wednesday July 5th my knees started to ache really bad, just thought I walked a little too much on the 4th (nothing out of the ordinary I walk all the time and swim) well I thought it would subside and NEVER ever ONCE thought it was due to an antibiotic (aka levaquin/poison). I experienced sleeplessness and nauseau and didn't think anything of it, I know most antibiotics can make you nausiated. Well, by Sunday I could barely walk and when I had to crouch down to get something, I had tears in my eyes trying to stand up, the burning in my knees was unbearable and I still didn't relate it to the medicine, I had NO idea! Well, by Tuesday I took my 9th dose and my ears had felt better but my knees were getting worse, so I woke up on Wednesay and didn't take the medicine and then called the dr.'s. I asked if this could be related to the medication because it's not getting better, and the nurse said, I've never heard of that before, but hold on. She came back and stated "it says a side effect can be tendonitis and she said I needed to come in right away" I saw the dr. and she said, yes it's a side effect but it happens mostly in teenagers, but she was a little concerned that I was still having severe joint pain more than 24 hours after stopping the medication and that she wanted to do a lyme test. She told me that even if the lyme came back negative she was going to put me on dicylomine (sp?) for 3 weeks as a precaution because lyme tests can produce false negatives. She said wait another 24 hours and if I'm still in pain then she will prescribe the lyme meds. Well, 24 hours past and I got the lyme back, negative, my knees were killing, my muscles started to shake in my upper thighs and I was getting vibrating sensation along with muscle contractions. I called them back and on Friday and stated that I did some research on Levaquin and this is a side effect of the medication and I am NOT taking another antibiotic for a disease that I don't have! They asked me if I could wait until Tuesday to come see the dr because she was on vacation and I agreed hoping that my pain would subside with the prescription motrin and some ice. By Saturday (yesterday) it was moving down to my left shin and both the back of my ankles were killing like they were stiffl. I called and they said to put warm heat packs on and take the motrin and they would see me tomorrow if necessary. Well, the trembling in my legs were so bad that I had to take a diazapam to calm them down (which I didn't want to because I wanted to measure the pain, but couldn't stand it any longer) and put heat packs all day. I got some sleep last night (most likely due to the diazapam) I think the ice is worse for this but it feels better at the time. I am NOT getting any better, what is going on with me? I cannot believe this company has not been put out of business! I am going to see the dr's on Tuesday and am treating my condition as if it's tendonitits, I am now experiencing the muscle contractions in my arms. I am drinking water like it's my job and trying to stay off my legs with just a bit of stretching. I do pilates and go to the gym but have not gone since the 2nd of July the day I started the medication and am getting frustrated because I need to go for my back (arthritis of the spine with some herniated discs which are killing me now because I haven't been able to excersie or stretch). I am SO furious that this drug is on the market, the nurse said that it was a serious but RARE side effect to the drug and that she has never heard of anyone having it, well I don't think it's as rare as they would like to think and would like to do something about getting it taken off the market!
PLEASE tell me PLEASE has anyone just ONE person recovered from this HORRIBLE nighmarish pain and anguish? I am looking for that one beacon of hope that others have recovered and are feeling better, please anyone. I have children and I need to take care of them but I can't move my legs without excruciating pain going through them, especially the burning of the top of my knees. ANY help on how you took care of yourself would be great help to me. Thank you all!
-- By lazacka | Reply | (8) replies | Private Message me
December 15th
2006
12:14 PM
Guest 34551
Hi! Thanks so much for your informative post. I had no idea prozac was used this way as well and will definitely read up on it as you suggested. Your story is intriguing to me because you describe my situation pretty closely, and confirmed what I had felt all along, that my testosterone had fallen and that estrogen had taken over (even if my estrogen was registering a normal level it was still too high because I did not have the testosterone levels to balance it). Did your doctor confirm these findings with you? I had the same annoying stomach problems and just when I thought things were getting better again, I would feel bad again. However at my six month mark, I did feel some improvement, maybe a little more than the 1% you were describing, but not completely, so I tried to restart my old pill I took for 12 years with no problems before I took the yasmin, and at first I felt pretty good and things really started to feel normal, but then about 12 days into it I started with the anxiety again and stopped taking them immediately about day 15 and all my symptoms seemed to start over from scratch just like after I quit the yasmin. (I really wanted to die at this point), but now 4 months after that episode I feel like I may be progressing again, but it is like you said, back and forth. And all along I have been testing my hormones monthly, I was starting to see my testosterone come up when I was starting to feel better, but when I tried to take that pill again it fell again (I could feel it, I knew even before the results came back) But I want to know, did your doctor confirm your hormones with lab tests? I will definitely read up on the prozac, as I had not heard of it used in this way. Your right though, that is a pretty low dose. Also, I was just wondering did your doctor ever suggest hormonal replacement with bioidentical hormones?
Thanks for your post and in advance for your reply.
Sincerely, BitterRN
April 16th
2006
10:40 AM
I hope many people read this. I was treated for endometriosis at age 29, 1995 with 6 months of lupron injections. yes, it may have gotten rid of some of the problems like period cramps, but I have developed permanent memory loss; my short term memory is shot; I had the worst depression during those 6 months. The thing that bothers me the most is that 11 years later, I still have memory issues. I wish I had known back then that the medication was not even FDA approved for infertility.
-- By dvgomez32 | Reply | (1) replies | Private Message me
Toprol-XL (1) PredniSONE (1) Levaquin (1) Yasmin (1) Lupron (1)
January 6th
2008
5:59 AM
Hello,
about a week ago I admitted myself to ER because of terrible breakout of hives (never had them before) but was covered from head to toe.
Doctor prescribed PREDNISONE 80mg for 4 days, and gave me an IV with the drug a week ago Saturday night (don't know how much was there), 12/29/07, I took my daily dose 80mg Sunday noon. I only slept about an hour or two. By new years eve 12/31, I have started getting cold chills, feeling unbearably cold, then the next day 1/1, I felt like I was 100 years old, all my joints were stiff, I couldn't get up from bed, couldn't sleep much but there is still more.
By Wednesday I have felt even more stiff and hives were not going away, I went to the doctor (my stiffness went away after couple hours in the morning) he prescribed more PREDNISONe for another week, luckily I have stopped taking the medication after 5 days of 80mg, plus whatever they gave in in an IV but I still have what I think are side effects from taking it.
Ankles are still sore, I cannot sleep because an extreme numbness sets in my left hand middle to index finger, it is no numb it hurts like an elephant is sitting on it, that is why I am still up at 4:30 in the morning. When I am up it just tingles. Not sure what to do but can't sleep at all for last 3 days and getting really tired.
If I knew what Prednisone does I would never take any of it, I'd rather deal with hives oh and they still didn't go away, I have had them for about 10 days now, they did stop itching. Honestly I felt very very sick a day after taking it, I didn't associate this with Prednisone, until I found this website. Please if you can stop taking it or see for yourself how much you should take 80mg is definitely too much, for me at least.
Did anyone have to deal with joint stiffness, and numbness how long does it take for it to go away. My wife says to to ER again because I can't sleep I am just very uncomfortable with the numbness and rattle in bed, but guess what they could shoot me up with more Prednisone.
-- By buton6 | Reply | (10) replies | Private Message me