September 4th
2009
6:12 PM
The mirena coil has destroyed my relationship. At the beginning my partner told me he could feel it and it hurt us both. But when i told the doctor he said my partner was making it up as it is not possible to feel it. Im made to feel like a liar, and im sick and tired of them lying to me. I get sharp stabbing pain all the time, every day where the coil is. Sometimes i can not sit down as it hurts so much. I have no sex drive, i also get this weird pain at the top of my left leg near the fallopian tube. I bleed almost everyday and have constant cramps. Which is causing my spine to curve, due to not been able to sit up properly. My partner has left me as it has been going on for 3 years. I can not even begin to start a new relationship as sex is very painful and i bleed heavily afterwards, which lasts for weeks. I have a connective tissue disorder called Ehlers-Danlos vascular syndrome. And the hormones that are in the mirena coil react to my condition and i shouldn't be having the this coil. But my Dr refuses to take it out. I am deeply depressed by this as my life has been ruined by the mirena. I also suffer with headaches and i burn up and i start to sweat quite bad. Which can be very embarrassing. I didn't really want the mirena but i was pushed into by my doctors, as they thought they knew best. I told them that it wasn't recommended as i have EDVS. But they don't care what i think. I have begged for them to take it out but they will not do it. Im at my wits end as i don't know what to do anymore. I am 33 years old with a disable son to look after. And it can interfere with me looking after him as the pain gets too much. I want it out and i want my life back before i have no life left! Ladies please do your homework before making any choices. Dr's are not super human and they do not know everything. They are only human and make mistakes just like anyone else.
-- By 6littleducks | Reply | (1) replies | Private Message me
July 19th
2009
6:09 PM
I had Mirena inserted in June, 2008 after the birth of my second child. I was almost 30. I didn't notice too many side effects until December/January of 2009. My hair was falling out in clumps (worse than it does right after you have your baby), my body ached like I had the flu, I had to desire or energy to take care of my kids, I didn't care what my house looked like or that my laundry wasn't done. The least little incident when send me over the edge - screaming and crying like a crazy person. I felt flutters throughout my stomach (kind of like that of your baby when you first feel it kick) and I would have "lightning strikes" through my heart. All I wanted to do was rest - didn't want to clean, deal with my kids, talk to my husband about my feeling and definitely DID NOT WANT TO HAVE SEX! And in my mind I had already decided that it was depression and so I scheduled an appointment to see my OB/GYN about it. Thank GOD I found this web site before my appointment. I described my symptoms to her and, sure enough, she was concerned that I may be depressed and was probably about to send me on some wild goose chase with drugs and treatment and all of that... Not that there's anything wrong with being depressed - it's a real condition that's easy to find yourself in as a mommy - but it wasn't the case with me. This stinkin' Mirena has made me this way! Instead of opting for her depression treatment, I had the Mirena removed that day. It's been out for about a week now. I've had a couple of days of spotting but OMG do I already feel so much better. The energy level is coming back to normal, I want to be with my kids and it's OK when my husband touches me. For those of you who are considering Mirena as a possible BC method, please reconsider and do your homework. For those of you who have Mirena, please know that you are not crazy, nor have your children/pregnancy made you crazy - you have a foreign object in your body that is screwing up your mental and physical well-being, your family, and your life. I urge you to make a list of all of your systems and talk to your doctor. Don't let them tell you that's it's all in your head or that you're depressed. I'm depressed that more research wasn't done on this "wonder cure" and I'm depressed that I lost a year with my family that I can't get back because Mirena kept me in a FOG! Good luck to all of you...
-- By ladkins7 | Reply | Private Message me
July 10th
2009
6:54 PM
severe GERD, respiratory problems, blurred vision,tingling sensation, abdominal pain, abdominal spasms, nerve and muscle damage,chest pain,headache,
-- By lisapineda | Reply | (5) replies | Private Message me
June 13th
2009
11:31 PM
MY 76 year old mother, on hbp meds for 30 years,METOPROLOL, for quite a few years now ,And she complains of severe pain in her shins, NIGHTMARES, for years now to her Dr. Lately she has been having fainting spells, and at times has short term memmory loss, The Dr did cut her metoprolol in half. dreams aren't as bad, She is going to have a D&C due to uterine polyop, all of this has sent me to the internet researching all the meds she is on, I feel bad I haven't done this research sooner, I just thought the doctors know???? Please we need to do our homework, research and take responsibility, for our health and those we Love.. I have been cooking and shopping for her past month, Lots of RAW fruits and vegetables,garlic and other healthy, herbs and oils, she has lost 10 lbs, bp has dropped 135/70 was 155/90 she is now down to 210 lbs, 5 ft, Im hoping the Dr. will take her off the metoprolol soon
-- By fabat50 | Reply | Private Message me
June 10th
2009
12:03 PM
I've been taking Balziva for over a year, and I don't know what the heck these people are talking about! I think that before taking the pill they had serious menstrual and emotional problems. Before birth control I had long, heavy and painfully crippling periods. I do not have that anymore. My periods last about 4-5 days which are not painful and moderate flow at best. Actually, until recently, they had been so light that I couldn't use tampons and a panty liner was sufficient. Maybe the last couple times have I been heavy enough for a tampon (perhaps because my body finally adjusted after the last few years of birth control.) I was a moody person before birth control so I'm definitely now blaming that on the pill. I still get extra angry/moody that week, but I did before the pill too. And the only time I spot between periods is when I miss a pill, which only lasts for a couple days.
The only side effect that I could say is caused by the drug is the loss of sex drive. But again, that may not necessarily be the pill. It could be my place in life. I'm a college student with an extremely busy schedule - full time school loaded with too much homework and I work as a flight instructor (tell me teaching some new by how to land is not stressful!!) Oh, and I lost the closest person to me two years ago which I still haven't accepted and basically closed my heart after that. I don't have trouble losing weight as long as I watch my diet and exercise. I don't really think that Balziva has caused any negative side effects, at least nothing that could be explained by something else in my life. I gain weight because I let myself go on break. I lose weight because I eat right and exercise after that.
-- By capnsteph9 | Reply | Private Message me
May 11th
2009
2:45 PM
I have been on Topamax for 2 1/2 months. My dosages have been varied due to side effects that scared the daylights out of me. Never more than 100 mg a day, at which point I was a vegetable. After such terrible side effects - pressure in the eye, blurriness, loss of speech, coordination, complete exhaustion, inability to work, stopping mid sentence with inability to complete sentence - I finally had it. I talked to the doctors all along that I was terrified what was happening to my mind and body but they just said it was too soon to tell if the meds were working or not.
Out of pure frustration and concern for my own well being, I decided to try to taper off Topamax and then stop completely. I lost feeling in feet and hands, pins and needles, weakness in feet and hands as well as spasms- lovely. Frightened me so much I wound up in emergency thinking something else must really be wrong with me. MRI said all was fine as regards to MS or stroke, etc. Whew!
Continuing to withdrawal and mad as @#*! that the Dr.s don't know what they are prescribing to poor patients, Topamax is a dangerous crap shoot. Funny to me how something as horrible as this drug can be prescribed in our government, yet medical cannabis prescribed properly with little to no side effects is a crime in most states.
What have I learned from this experience?...be your own advocate. Don't let anyone ever push you into saying something is black when you clearly see it is white. Get angry, state your feelings if you feel you are being harmed and brushed off and not helped. You still have the brain cells in you to make good decisions though Topamax and pressure from others about "not taking your meds" may knock you confidence for a loop.
I'm thankful I live in CA where I can make legal choices that are not available to others in the USA. Shame on the drug companies, shame on the Dr.s that need to do their homework, shame on our FDA for letting this horrible drug on the market whilst holding back natural herbal relief that grows right out of the ground for all to use legally. Shame on me for not doing my homework earlier and doubting myself and letting other decide for me for so long now.
Good luck, hope you all find some comfort and fire in this message. We are our own best advocates. No one knows us better than ourselves. Freedom of choice is a wonderful thing - so thank you makers of Topamax, for helping me to find the strength inside to tell you....JUST SAY NO! to drugs - your drug in particular. May you be recalled and not harm any others, and may your profits plummet as you have make you $ on the suffering of so many others.
April 9th
2009
12:59 PM
My son used a nebulizer 2 to 4 times a day every day from the time he was one and a half years old. When he had just turned three his doctor prescribed Singulair. It was like a wonder drug for us! It took care of his asthma and we didn't have to use the nebulizer any more. He's been on it ever since -- he's 10 now -- he also takes zyrtec and has a rescue inhaler that he uses maybe once a week. About every other year he requires a course of steroids and a week of regular nebulizer use. Also, for the past year he has also required a daily inhaled steroid.
Now, about his mood issues. My son has always been sensitive and intense, moody. The first time I became alarmed was when he was 7, and he told me he wanted to burn his hands on the stove to punish himself for forgetting his homework. I consulted a psychologist who evaluated him and said he was not clinically depressed. Since then he has had periodic "dark" episodes -- especially in the winter. He has said he wants to die. He has had crying jags over things that are upsetting (loss of a pet was the worst) but it seems excessive for him to be saying he "just wants it all to end." He has told me that he is always unhappy and that he hates himself. He has also had problems with moody acting-out with friends. He will brood about hurt feelings until he loses his temper and screams at the friend. I have worked very hard with him on learning to manage his emotions. He hit a friend at school who was teasing him. He accepted his consequences willingly and willingly wrote letters of apology -- he told me he thinks he has anger problems and doesn't want to be this way. And his character is that he is a sweet, caring boy who can't stand to see anyone hurt, but also can't stand to be hurt.
A couple of years ago I asked his allergist if any of the meds he's on are linked with depression. He said no. We have a family history of depression, and I thought my son had gotten the worst combo of all the genes.
Recently, this all got to the point that I decided he needed to see a psychiatrist and quite possibly take medication for depression. Before I made the appointment he had a check-up with his allergist. Going down his list of meds the dr. said, recently Singulair has been linked with depression, have you noticed any moodiness or sadness? My first thought was that I have, but that he's always been like this. My 2nd thought was that he has been on Singulair for most of his life. I said yes and that I'd like to try him off of it.
My son resisted going off of it. He has had enough negative experiences with asthma that he didn't want to risk it, but I insisted. I didn't expect to see any change, but I thought it was important, as I was going to take him to a psychiatrist to consider depression meds, to see how he did off of it for a couple of months.
Less than a week later, he had been in a wonderful mood -- to the point of being silly and giddy all evening -- for 3 days in a row. The kind of mood that I don't see him in often, and when I do I think to myself, "he should be like this more often." One evening he even realized he had forgotten to bring home a homework assignment. I thought, "oh no, here we go, his evening is ruined." But he talked through his options with me, looked a little uncertain, and said, well, okay, I guess I'll have to tell my teacher I don't have it. I'll tell her I'll make it up at lunch if she wants me to. That was it! He didn't mention it again. I didn't say anything about his mood, because I really don't think I can know anything after just a few days -- it could be coincidental. The next day, he said to me that he thinks being off the Singulair is "working." He has now told me that a couple of more times.
I am tentative, but amazed. Even if my son does have a predisposition to be depressed, maybe the Singulair was making everything worse, and things really can improve for him. I am afraid to be to hopeful. At the same time, I feel guilty for giving this medicine to him for 7 years without a second thought.
As an aside, my son has periodically complained of leg pains, that I always told him were growing pains.
I would love any feedback that anyone can give me. So far (these two weeks), his asthma has been controlled with pulmacort, zyrtec and albuterol, so that aspect is okay.
March 21th
2009
12:58 AM
Wow, just wow I can't even begin to say how happy I am to have found this site. I am actually choked up. A little background:
I got the Mirena in about three months after the birth of my daughter in July of 02 (our second child), at around this same time my husband and I were having severe marital issues, we were a VERY happy couple before this. I was extremely irritable, was so mad at him all the time over anything he would do that would remotely annoy me, we attributed this to the baby blues and tried to work through it. My sex drive was non-existent, and I hated him more than anything. Well, about three years ago we divorced... after much counseling and anti-depressants, even being diagnosed as having bi-polar disorder and being put on Lithium (which I refused to take) I was NORMAL before all this, why did I snap? I had one baby and was fine!!! That was the greatest mystery to me, and I felt like a horrible worthless person. :(
The now:
I have met someone else, and we are engaged to be married and just bought a home together, when we first started seeing each other I was VERY shocked that my sex drive was back (which I now attribute to it being new, and I was free for the first time in years), however, over the past years we have been together it has all but completely vanished again. We will have sex maybe once or twice a month, and really it is to make him happy. My temper is outrageous, my kids are very touchy when it comes to asking me to do something etc.. I find myself stuck to my couch or to my PC playing WoW because it takes little or no effort on my part. I have no energy to do anything. Cleaning the house, or simply helping the kids with the homework is just.. exhausting mentally. My fiance takes the kids out because I never want to. We will make plans together only to have me break them, the ONLY thing that he can get me to do is eat out.. because and here is a shocker, I just want to stuff my face so long as it is prepared by somebody else. I used to love to cook and I don't want to anymore. I don't know how much weight I have gained since the insertion, this was 7 years ago and two Mirenas in. But I am HUGE in comparison to how I was.
About one year ago, a few months after the 5 year replacement was put in I started having problems with walking, which again Mirena didn't even cross my mind as being the culprit. I woke up one morning with slight cramping in my feet, within a month I was unable to walk. The doctors could not figure out what was wrong with me, I was getting odd lumps on my legs, and the pain from trying to walk was just unbelievable. They tested me for lupus, and it was a no go. Did the talk of birth control ever come up with the doctors? No. But after about a month.. it just, went away. Just as suddenly as it came.
Someone on here posted about "panic attacks" hun.. I have the same problem. My heart like to fly up to my throat, and it is the equivalent of feeling as though I were drowning.. but only for a few moments. Heart doc said.. I am normal. HAH! Really? NEVER had this problem before the Mirena... hrm.
So in a nutshell MY side effects I believe are (some not listed in the above background):
Insane mood swings
Walking problems
The inability to relax
NO sex drive, zilch gone
Laziness, no ambition to do anything even small daily chores
Discharge and odd odors
Never feeling clean downstairs
Facial hair thats right ladies, growing a beard :(
Large amount of weight gain
insatiable appetite
Depression
Dryness
Diarrhea
Sharp pains in my abdomen and breasts
"Fluttering" spasms in my abdomen almost feels as though a baby is kicking
One divorce and a quickly fading engagement...
PLEASE take it from me, DO NOT get this. It is just not worth it. It has changed my life for the worst, I have made do with my past and am actually happy for the divorce, the Mirena actually helped me to see what I would ignore in him. But everything else, has been nothing but a long painful road. It has made a normal healthy woman, into a fat lazy woman that has lost her lust for life and everything in it.
I am making a doctors appointment on Monday, I can't express how shocked I am that this birthcontrol has done this to me, sure some people may think that some of the problems I am dealing with or have dealt with may not be directly attributed to it... but think about it. I was fine and nothing was wrong until I had this inserted. And there are far too many coincidences to allow myself to turn a blind eye. I will keep you updated in my "rebirth".
Again.. thank you.
-- By hauntedutah | Reply | Private Message me
March 17th
2009
10:47 PM
I've been taking Wellbutrin on and off for 10 years. I had issues dealing with the loss of my mother, the loss of my father and a bad marriage, then trying to quit smoking. I thought it was great and seemed to give me energy and help with depression. But for the past 4-5 years I have been having issues with major memory loss. My boyfriend of 6 years notices it the most and says it's getting worse. I have talked with my doctor. I am experiencing a lot of the same types of memory loss as noted on this site including issues with multitasking, I have a very hard time concentrating. I am in the Computer Technology field and have a job where I have to be on top of things at all times. My short term memory is hurt the most. I have been going crazy because I haven't been able to concentrate enough to help my son with his homework. I am having issues managing my personal business as well ie. bank balance, losing bills, forgetting to pay bills, signing forms for my childs school. My work is suffering due to my forgetfulness. I am also upset with myself for not being able to concentrate and keep up. Minor issues: I am losing hair. I have constant dry mouth which I knew could be a side effect.
I will cut back this week and come totally off by March 27th to see if this helps. I will repost at the site in a month. I will also keep up with the site until then. I feel like I should mention this to my doctor. Has anyone quit and noticed an improvement? Has anyone thought about getting together to make a formal complaint or trying to notify the drug company?
signed: ddk
March 5th
2009
1:44 PM
I had Mirena inserted Oct 3, 2008 six weeks after having my first child. I too really wish i had done my homework. My side effects were little things and i really wasn't sure if i wanted to have it removed since it does work and i enjoyed not having a period. But in the end i decided that the fatigue, hair-loss, acne, headaches, inability to lose my pregnancy weight and last but not least, my mood swings were all hindering my daily life more than i realized. i feel ugly due to the acne, thinning of my hair, and because im stuck at 170 lbs and i'm only 5 ft tall. i didn't want to go out in public. I was so so tired all the time for no reason. i feel more tired than i did being 6 months pregnant in the military working 15 hour days with only one 10 minute break an hour to sit with anemia. it just isnt fair to my daughter that i can't give her the attention she deserves. So, March 2nd i finally got it removed. The removal didn't hurt. My period came immediately. It's only been three days and my acne is about 60% clearer. Unfortunately the headaches continue. I still feel tired, but it hasn't been as severe. I really can't wait to get back to feeling like my old self. It's been so long. Now my dilemma is what to do about preventing pregnancy. I've never used any bc besides condoms but my husband and I don't really enjoy sex with them but i'm afraid after this experience to use any other kind of hormonal bc. Any suggestions???
-- By luckyme0510 | Reply | (1) replies | Private Message me
February 7th
2009
7:49 PM
My daughter had her 3rd Gardasil shot in the beginning of November 08.
About 2 weeks later her glands in her neck started to swell. I took her to my ENT who did a mono test, which turned out negative. However her glands were still very swollen, one was so big it had to be surgically removed. The doctor thought she had Hodgkins, thankfully it was also negative. OK now what? After more blood test were taken she was diagnosed with Epstein Barr Virus, a form of Mono. Like so many other posters she was a very healthy active girl prior to the Gardasil shot. Since the 3rd shot she has had 2 UTI's, is unable to sleep at night and has frequent headaches.
I am another one of those mothers who regret having my daughter get these shots. I didn't do my homework. Now I can only pray that she does not have any further complications. After reading the post on this, I wouldn't recommend getting these shots.
January 11th
2009
6:46 PM
DO YOUR HOMEWORK PEOPLE, Lisinopril is NOT made from snake venom. Blood pressure meds were developed from INFORMATION that was obtained by recognizing and separating certain enzymes from the venom. The drugs were then formulated to SIMULATE the effect the venom has on human blood pressure. I too, am taking lisinopril along with a long laundry list of meds after a heart attack and 3 stents. No doubt anything you put in your body that God didn't make can cause harm, and evidence of serious side effects abound. However, harm can also come from false information and perpetuated lies, such as blood pressure meds containing snake venom. THEY DO NOT............ only the research comes from the pit viper. NO VENOM.......... get smart, read more, understand what you read and you will be healthy.
-- By huh1051 | Reply | (1) replies | Private Message me
January 7th
2009
2:37 PM
I am the husband to a wife that has Mirena. I married the sweetest,
greatest, prettiest, sexiest most unselfish angel of a woman back
in 2005. I had been in a miserable marriage for 11 years before.
Anyways soon after we were married, she got pregnant and we now
have a precious 2 yr old daughter (and a 10 yr old previous marriage).
6 months after our daughter was born, my wife got on Mirena (the devil pill). She has changed more than you can imagine. She's gained some weight, very moody, severe back pains, bleeding, depressed, absolutely no sex drive, tired, grumpy and just plain mean. She has been a huge part of helping my 10 yr old through lots of life changes (divorce, changing schools, etc) and he just loves her to death but she's been so mean to all of us for the past 14 months. She goes through spells and she'll be herself for a day or 2 then she's right back to the grump. She complained and complained about her back so I went and bought a $1200 mattress and it she still complains. We dated for 2 years and NEVER fought. We
had the best relationship ever but now, all we do is argue. Nothing I do
makes her happy. I'm miserable and I know she is too.
I've approached her about getting the Mirena removed and she talked
to her doctor and he told her that it wasn't the problem and she doesn't think that's the problem. I just wondered if there's anyone out there that can give me some advice on how to convince her to get that thing removed
before it ruins our family.
December 22th
2008
2:24 PM
Im 25 and i started taking the Loestrin after my surgery for Endometriosis in Oct. At first, didn't have too many problems, but it seems when I got closer to the bottom of the pack, I got sick and moody. Just though since I was about to start, adn after the surgery could be the after affects. Well, after reading everyones great information, I know now its from the pills. I never took any until all of this (endo). I took lybrel (which don't take that either, i bleed for two weeks) my husband and I live apart right now due to me finishing school, and you would think when I got to see him, I would be all over him... WRONG. now i know why. And lately, ive gained weight, (even though i started working back out) im crazy tired, i mean falling asleep at work and cant control it, and it doesn't seem to help if I get an energy drink. I get plenty of sleep. More then what I would be getting if I was up all night doing homework and was fine then. Just called my doctor and waiting for a call back. I talked to my husband, and since I have never really taken birth control now bec of the endo, we are going to ask if I can get off of it. Just havent had any good luck with birth control. Not worth the craziness. I really havent had the depression side of it, but again like others said, everyone is different, and Ive only been on it for 2 months. Ive tried the ring (horrible, kept falling out) and i have done the patch (which i loved until the news went around saying people were dieing from it, so i got off of it in 06, and haven't been on anything until now) so ill keep yall updated, good luck everyone on finding the right one, i think im going back to the old days, and say screw birth control....
-- By sassycassey9 | Reply | (2) replies | Private Message me
December 18th
2008
10:35 AM
Like many of the other stories my daughter was a happy healthy 14 year old high school freshman prior to receiving the Gardasil vaccine. Now she is chronically ill suffering from pancreatitis, gastrointestinal disorders including extreme nausea,vomiting,and diarrhea,headaches,blurred vision,pain,fatigue,hypersensitivity to light and sound,and has had pneumonia twice.We have recently spent 8 weeks in two different hospitals to return home with still no answers as to how to end this nightmare. She has a central line so that we can give her IV nutrition TPN and Lipids, is on 5 nausea medicines and 1 pain medicine every 6 hours round the clock just to keep her comfortable. We are going to take her to Mayo's with the hope they can help us, I refuse to accept the fact that this is what her life has become and that our only option is to treat the symptoms. The doctors so far are completely clueless without it being in black and white on a piece of paper from a test result they seem to dismiss you with out any compassion at all, I wonder if they would have that same additude if this was their daughter. If anyone out there has found any kind of help please let me know. I can't believe Merck is still being allowed to poison our young girls while the FDA looks the other way!
-- By summers | Reply | (3) replies | Private Message me
December 16th
2008
7:23 PM
hey i tried this drug last night and took two of em and i think its the greatest drug ever created by man.... i kept clapping my hands and it felt sooo good omg its awesome.... i love it sooo much....i use to take xanax bars and methadomes but hydrocodone (the pink 650 mg ones) is wayyy better... i slept like a angel.... when u have ALOT of homework to do this will make the time go by extremely fast and it actually makes u wanna do the homework more then anything....
-- By dalton_ditto | Reply | Private Message me
December 4th
2008
1:57 AM
Im 15 and I never knew that singulair had the side effects that included mental/mood change or worsening depression, etc. Although I did find it strange that I always seemed moody or bi-polar, it never occurred to me that it would be caused by singulair. I've been taking it for about 3 years and before I went from 5mg to 10mg i use to have difficulty sleeping, but just last October when I started taking the 10mg i noticed an even greater change in my moods and mental thoughts, i was always sad, doubtful, mad, and was always thinking of all the negative things in life, in fact I even went through a really deep anxiety stage around the end of October, it was a mixture of the medication and stress i'm guessing, but I couldn't stop crying, I'd cry then forget the reason, start crying again, and wonder what i was crying about or why i was crying for such a thing that lasted for about an hour... Then when I ran out, i sort of just put the thought aside to refill them for the whole month of November and noticed i began to feel more... up-beat, very happy, I cant remember the last time I felt so great for such a long period of time, at least not during my pre-teen through teen years so far. All my friends noticed too, normally i would be complaining about how the day is going so bad, but i can't compare November to any other month during the past almost 3 years, although my asthma symptoms came back. So I started taking them again this Monday, and right away that night when I was doing homework, i was studying about tabacco all these thoughts rushed through my head, I felt bad for the people i loved that smoke, and I started crying, almost blaming myself for their smoking, when i stopped crying i started wondering why i cried... it made no sense, normally i'd just be like, "oh man... why do they waste their time doing that.." and forget about it, but the tired, sad, doubtful feelings came back right away. these past few days I've felt like that, and today before i was about to take my pill i looked at some new information that was never included before about the mental/mood changes, worsening feelings of sadness etc... and it all just hit me like a ball going 90mph.
-- By kisshu | Reply | (1) replies | Private Message me
December 1th
2008
9:58 PM
My son is in second grade and has been on Zyrtec and singular since he was four years old. He was diagnosed with asthma and peanut and tree nut allergies. He has always been the sweetest kid. However, we noticed in first grade that he was spacing out and not always focused. he became easily frustrated, did not want to do his homework, cried for everything and gave up easily. This year in second grade we are noticing the same thing in addition to talking back, being aggressive with his brother, rolling his eyes and having a nasty disposition. He is negative and complains a lot. His grades have been suffering greatly. He rushes through his school work and does not pay attention or try.
I am so happy for the reading that I am seeing on this site. My son is coming off the singulair and the Zyrtec first thing in the morning.
October 28th
2008
6:33 AM
I don't know what is wrong with you people but its like you can't handle anything. I had the mirena put in November last year and yeah ok i had cramping for the first month or so and yeah i had spotting. But unlike some of you fools i knew what the side effects were i read what came in the package which means i knew what to expect before i got it put in. And yeah there are loads of possible side effects but if you read everything and know what could happen you shouldn't complain if something does happen. Not everyone who has the mirena has these things and for people who are considering it i would recommend trying it and after 3 months if it doesn't feel good then get it removed. That especially goes to people that have just had a baby... i mean really in the first 3 months after having a baby who is really seriously interested in sex right away. The reason i am here was to see if there was more information about them now because UNFORTUNATELY i had to have mine removed for an operation. I had a cyst on my fallopian tube which was not mirena related. In fact almost all women get them when they are menstruating but they go away. Unfortunately with me they don't go away and this is the 2nd cyst to be removed in 3 years. I am planning on getting a second mirena inserted next week. Because frankly i find it ideal. And yeah i may have had mood swings on occasion while i had it but come on think about it what woman doesn't have mood swings. So sure you can blame everything on the Mirena but for the most part besides then for the people where the mirena got stuck or moved during the time you had it... its all in your head. And like i said before i would recommend the mirena and if after 3 or 4 months it doesn't suit you then go for something else... but don't dismiss it because some people have too much time on their hands and like to spend it whining over everything on the net. Remember with the Mirena you have a 50/50 chance of having symptoms or not. Take that risk before taking the risk of going on the pill and forgetting to take it or going on depo provera and putting on 20 pounds.
-- By malmcclennon | Reply | (13) replies | Private Message me
September 11th
2008
3:05 PM
Thank you for sharing your experiences with this medication. My 4 (almost 5) yo has been on Singulair for almost 2 years now for allergies. I've noticed over the past few months a slow change in his behavior/attitude, not positive changes. He's become an aggressive, angry child that can be set off in a split second over nothing. He's also getting worse with not wanting to go into other parts of our home alone. He won't even walk down a short hall to go to the bathroom alone - is afraid of I don't know what. Lately, he's also been obviously having bad dreams because he kicks and yells in his sleep. I've just chalked all of this up to his age. While taking a walk yesterday I ran into a neighbor that was telling me the doctors want to put her son on Singulair but because of the possible hyperactivity and other side effects she won't do it. I came home and found this site along with others describing similar side effects as my sons. As of last night, we took him off of Singulair. I'm curious to see if this is the problem. I'll keep you posted.
-- By dominla | Reply | (7) replies | Private Message me
September 6th
2008
8:38 AM
Hey to All.
I know that the ALA study got everyone upset and I am happy we all emailed her.We all pretty much got the same response from Heather,defending the study and the integrity of the results.If only this investigation would conclude!
The Merck company contacted our Senator and indicated there was a conclusion and then ,they never got back to her before the weekend.I will have news early in the week.Please everyone just keep on voicing your concerns by reaching out any way you can.Sometimes it seems unbearable and I have to take a break with the communications on this website but,I continue my communication with my local contacts and the FDA.
I would love quick results and everyone would love this to get the publicity this story deserves but,if you look at how far we have come getting attention focused on this drug it is amazing.
This website has been here for years and people have complained and nothing has been accomplished until now.Our system is so broken it will take time to fix it.Drugs get approved everyday and when they are put out for multi use,the population benefit -risk ratio changes and there is little oversight on this matter.
The problem is much bigger than just notification of updated side effects,which indeed is why our son died from this drug.It is reporting adverse events to the FDA and the drug company and following up on your report.We can only fight within the system of the government that is in place at the moment and push for change to take place in there programs.
This is what has take place as of this year,The FDA's new 'Safe Use "iniative(which when it gets further developed will increase our partnerships with physicians as well as patients) and the July 2008 AAM report" Education in Safe and Effective Prescribing Practices" which aims to address the education of the next generation of physicians on how to best use medicines.This may help in notification practices and over prescribing but, we want the drug companies to lose the unprecedented control over the clinical research and and evaluation of there own drugs.What other company in the USA, gets to self regulate.Change will come ,we have asked for accountability by having a signature exchange when new and updated side effects are found.Full disclosure of all reported adverse events to doctors from the company representatives,with signature required upon full understanding of the benefit -risk ratio change. A prescriber should know all the good and the bad about a medicine they have chosen to dispense,if not then they should not be able to dispense it.If we were not knowledgeable about selling mushrooms and we sold the poisonous ones ,because we did not take the time it would take to educate ourselves about them,would we not be legally responsible for our actions.
Accountability is what we are asking for and maybe the candyland doctor prescribing practices would stop.They seem to ,not have a responsibility to their patients and the company has no responsibility to the prescribers,so who is responsible for our safety?
I will keep fighting for real change and all you people must do the same ,make an appointment with your representatives and have them contact our Congress representative of NY,maybe with enough onboard we can get the legislation we need to put a law in place for proper notification practices.Kirsten E. Gillibrand Member of the US House of Representatives 120 Cannon House Office Builing Washington, D.C. 20515
This is how change is made ,if you want to help please go forward and do this and don't stop until they listen.I am always willing to do whatever I can,it is physically exhausting and sometimes I just have to step away but, my daily review of this site has not stopped and my fight will continue.Dave and I sit here and our hearts just break for all but, we need people to push their Representatives they do work for the people just remind them of that.Any one with questions or that wants to communicate via private email just ask for my email address or phone number or leave me yours and a time and I will be sure to contact you,Kate M.
August 31th
2008
2:35 PM
Back again Oh my am so confused on what to do.. I was taken off this med(LISINOPRIL) at my extreme constant complaint- and put on another--well either I have atypical reactions to all these drugs or am still having side effects from the Lisinopril-- I am taking diavon now-- I feel even worse-- rash is back head hurts so bad I could cry and I am weak all the time.. I could pull every hair that is left on the top of my head right out! I now have that rash around my neck and upper legs- was told before it could be the shingles hey I never had them before,, never.. my nerves are shattered I cry a lot and am hesitant to change again-so I stopped this is day 2 and my headache has subsided
What are we to do I am at wits end.. I know I need something but what today I am at 140/90 going back up,, any suggestions? I started taking Zinc yesterday was told that I am experiencing LOW ZINC LEVELS DUE TO THE LISINOPRIL(HAS ANYONE ELSE BEEN TOLD THIS?)
August 27th
2008
2:57 PM
I lead music for a children's choir and noticed my voice getting weaker over the past year, to the point I could no longer sing. Then my speaking voice got raspy as well, almost like laryngitis. Went to the doctor, and he told me to get off Advair immediately, replacing it with a liquid inhaler. That started to improve my voice for about a week, then my voice almost left entirely. I had to get off all asthma meds at that point, but what to do when one grows accustomed to breathing?
I am a hiker. The doc knew that. He suggested I focus on more hills to increase my lung capacity. I did my homework I made the following drink when I'd get up in the morning: 1 glass full of ice and some water, about an inch from the top. 1 heaping teaspoon of unsweetened cocoa (caffeine helps asthma and i like chocolate) 1 handful of chopped dates and here is the important ingredient - 1 full dropper of mullein oil, found at health food stores. Mullein opens my airwaves in about 2 minutes. I drink this weird shake and have no problems with my breathing and am off all other asthma meds. Asthma varies in people, as does severity, body type, health history, etc.
I hope this may help someone who would like to stop the asthma drugs and still be able to breathe.
-- By hrw10730 | Reply | Private Message me
August 27th
2008
10:43 AM
Hi everyone....I wish I would have done my homework on Femcon before I started taking it. I have not had a period since my son was born....almost 3 years ago! My ob-gyn thought something was wrong with me and did every test known to man but everything came back normal. She prescribed Femcon to "help" regulate my period. I came on my period in the middle of taking my second week. I have been on my period,heavily, for the past 9 days! I want to pull my hair out! I am constantly cramping and bloated to no end! Not to mention my husband is getting irritated because we have not had sex in almost three weeks(he was out of town on business for two weeks)! I am going to call my ob-gyn today to see if she can prescribe a different birth control pill because if this is what it takes to regulate my period, I would have been fine not having one!
-- By chynaboo | Reply | (1) replies | Private Message me
Singulair (18) Mirena (11) Adderall (6) Levaquin (5) Yasmin (5) Lisinopril (4) Gardasil (2) Zyrtec (2) Adderall XR (2) Advair HFA (2) PredniSONE (1) Celexa (1) Topamax (1) Lipitor (1) Desogen (1) Toprol-XL (1) Synthroid (1) Geodon (1) Lamictal (1) Metoprolol Tartrate (1) Kenalog (1) Femcon FE (1) Avelox (1) Loestrin 24 Fe (1) Warfarin Sodium (1) Amoxicillin (1) Lupron (1) Hydrocodone CP (1) Fosamax (1) Balziva (1) Wellbutrin (1) Zocor (1)
October 29th
2009
9:27 PM
I have had rheumatoid arthritis for 20 years,controlled reasonably well with a combo of methotrexate, naproxen and enbrel. I do a 10 day course of prednisone several times a year for bad flares. I absolutely hate taking prednisone because it turns me into a crabby, edgy, insomniac who can't stop eating. It makes me bloat and that REALLY makes me nuts because I've done so well at weight watcher's, I don't need that nasty, upset stomach over full bloat feeling. And the "roid head" headache thing ? I'm on the phone all day at work so that's bad, too. The insomnia is the worst, really, because I just lie there awake. When I stop taking it I return to normal within 2 days. I only do it when I am absolutely desperate - I already lost some tendons in my left hand to arthritis related damage so I tend to use the prednisone when the fluid builds up in the right hand or if I'm really too sore. I'm also aware that long term prednisone usage is a one way ticket to osteoporosis / osteoarthritis, so I really have to feel like I cannot deal before I take it. It's a hate/hate relationship.
-- By carribeth | Reply | (3) replies | Private Message me