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Horrible disease symptoms and conditions

Here are side effects posted by other members, that mention horrible disease.
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50 Side Effects posted for horrible disease

July 20th
2009
5:33 PM

I am 32 years old and I have had Mirena since Oct 2006. I did fine with it at the beginning, but now I am not doing so well. I still have Mirena in me and I am scheduled for it to be removed in a couple of weeks. That's the soonest they could get me in. I cannot wait to get it out of me. I pray I will start feeling better because I cannot go on feeling as bad as I do everyday of my life. My symptoms are very similar to others that I have read. I gained weight right after I had it put in me and I have always weighed in around 125 lbs then I put on 15 to 20 lbs. I didn't realize this was the reason I gained. Not only did I gain excessive weight, but I also developed an eating disorder with all the weight I gained. I could not keep the weight off me and now I battle bulimia. Which is a horrible disease that has about destroyed my life. Although bulimia has been a battle for me I have started to over come it and I am doing 10x better than I was 2 yrs ago. As far as the Mirena goes I have dizzy spells everyday. It's not a couple of dizzy spells a day it's several. My hair comes out in hand fulls. My completion is not as pretty as it once was. I now have a little acne when acne was never any problems for me. I am tired and moody. I cry easy and I get depressed and down on myself. I do not have a period anymore but I will spot a little blood. It does seem like I have more discharge now as well. I get very bloated and my body aches. I hope I will start feeling better and getting my life back to where I want it. I want to feel good again. When I had Mirena put in me it was painful. I hope it is not as painful to have it removed as it was having it put in. I hope everyone who reads this feels better or starts to feel better. I am glad I found this site and that I can relate to several. I wish the best for everyone, because we all deserve to be at the top of our game unfortunately Mirena has brought several of us down. I pray for all of you.

-- By agolfer77 | Reply | (2) replies | Private Message me

May 28th
2009
6:16 PM

I just went in for my second shot of Lupron (out of a series of 6) for treatment of stage IV endometriosis. The most noticeable side effect I experienced was during my first menstrual cycle after my first dose of Lupron. I had never experienced menstrual pain or cramping (even though I had advanced endometriosis) until after Lupron. I have a fairly high pain tolerance and yet the cramping for the first 2 days of my period were almost debilitating. I had extremely heavy bleeding and have had spotting daily ever since (app.18 days). I have gained about 3 pounds because I have no energy at all. I'm usually active and work out 4-5 times a week but by the time I get off work, I'm too fatigued to do so (hence the weight gain I guess). I have hot flashes and night sweats all the time. The most recent side effect is high blood pressure. I have never had high blood pressure in my life (I'm a healthy 25-year-old woman) and when I went in for my 2nd Lupron shot today, they told me I all of a sudden do. I don't seem to have mood swings but do feel depressed and sometimes more anxious than normal. I have experienced a decreased interest in sex as well.

-- By thylacine0113 | Reply | (2) replies | Private Message me

October 17th
2008
9:49 PM

I have contacted an attorney in Delaware who is willing to pursue a possible class action suit. I explained my side effects from this drug and told him of the countless others that are suffering as well. He said if I was willing to do the "legwork" and gather up names of others who would like to join this suit, perhaps we could get a class action started. If anyone is interested please reply by contacting me at ***** Please be sure to type "Kenalog" as the subject and include your name, email address, and a description of your experience with Kenalog. I will than gather your responses and forward them to the attorney. He will than contact you individually, so please include a contact number. This will take some time. So please be patient, as you know these cases take time. I have spent 15 months trying to get some kind of help from various doctors, to no avail. Someone needs to step up and take responsibility.
Hope to hear from many of you. Thank You

-- By tricia38 | Reply | (24) replies | Private Message me

October 14th
2008
8:49 PM

I recently lost my brother Marty to ALS. Marty asked me to tell everyone about his experience and I promised I would. Marty began taking statin drugs in his early 40's. He took them off and on at the suggestion of his PCP. It began with Lipitor and progressed to Crestor. In Dec of 06 tests revealed elevated muscle enzymes, he was also having pain in his left leg. His PCP called and told him to discontinue the Crestor, which he did. The pain continued and other symptoms began to materialize. Symptoms included muscle weakness, toe drop, fasciculations and continued pain in his leg. In June 07 after many tests he received the diagnosis of ALS. He passed away in August 08 at age 52. He believed as I do that statins caused this most horrible disease in him. He also believed that cholesterol is a symptom not the causal agent of heart disease. Now you must decide.

-- By martysister | Reply | (5) replies | Private Message me

October 2th
2008
10:59 PM

Since I've gotten my Mirena Implant I've been diagnosed with 2 different STD's and an infection which after the blood tests came back negative! So far I have taken meds for HPV, Herpes, and a UTI. Each time I go in for my pap smear and check up to make sure the IUD is still in place I inform the doctors (have visited 6: 3 for the first pap, 3 for the second opinion) that one of the biggest side effects of the implant is abnormal pap smears, even hand them the same pamphlet that the inserting doctor gave me when I first got it (which clearly states abnormal pap smears as a side effect) however I still end up with some horrible disease/infection!

So far, in the one year I have had this thing in me, I have taken 20 different meds for these STD's that I NEVER HAD!!!! These meds have made me horribly sick and the UTI meds almost killed me.

Also, like many women on here, I have bad hair loss, headaches, horrible back pains, and crippling stomach pains. Constantly attempting to get my doctor to give me an ultra sound to make sure that the impant didnt tear me but she refuses! Go to the hospital to ask them for the same and they refuse also "Thats not likely with the implant."

This is my one year check up coming up, I want this thing out! If they do not take it out I'm threatening with a lawsuit. This is NOT a life saving device and they should have NO say in whether or not this stays in!

-- By mg38 | Reply | Private Message me

February 22th
2008
8:51 PM

I have been on 40mg/day of Lipitor for 5-6 months and this is how I feel: totally drained - no energy at all - horrible lower back pain - I've been in physical therapy for the past 6 weeks. My neck muscles, back muscles and hip muscles were in constant spasms. Right after beginning Lipitor I woke up with vertigo and still have the dizziness. I was convinced that I must have some horrible disease and was dying at age 47. I stopped taking Lipitor 3 weeks ago and starting taking fish oil, vitamin c, coq10, b vitamin, daily vitamin - the muscle spasms are a little better - still have lower back pain, brain fog, some dizziness. I am so tired all the time - it's so difficult to work a full time job right now. Has anyone else had these same symptoms? Does anyone know how soon I should start to feel better?

-- By angie1961 | Reply | (4) replies | Private Message me

January 19th
2008
10:20 PM

anxiety

depression

light headedness

I stopped taking this med after one month

this was 3 yrs ago

and I'm still feeling it

the anxiety and shit..

ughh

and I'm only 20!!

-- By briman | Reply | (1) replies | Private Message me

October 31th
2007
11:09 AM

I suffer from Endometriosis that alone is a horrible disease. I'm lso severly Anemic, with that alone my Gyn advised me to try the Nuvaring, Yes it has stopped my period. That part is Great ! I've had it for about 3 months.. once my third week came along where I rest for a week. I havent I'd place another sot hat I wont Menstrate. This time around, I've rested due to My husband and I wanting to concieve. The side effects have been the worst feeling ever !!!!!! I've had to miss about 1 week from work. I will never use or recommend this to anyone. I haven't been able to drive due to the DIZZINESS!!!

-- By sophie_075 | Reply | Private Message me

September 25th
2006
7:15 PM

I had sinus infections on a regular basis and refused to
take antibiotics any longer. I put up with the yukky nose
blowing daily. My doctor gave me Singulair 1 a day for a
week. Within on day, I had relief. My concern is>>>>
I also take Advair for my asthma. Both are a marvellous
drug but would be interested if there is any concern to
be using both.
I would not give up Advair as I was a chronic asthmatic
who was statis asthmaticus on several occasions. Yes I did
take Serevent and Flovent before Advair. I salute the doctor's
and especially the chemists who are able to give so many
relief from this horrible disease ASTHMA. I never thought I'd
live beyond 40 yrs of age because of this illness. I'm now 65
and many years ahead of me. Due to the severity of my illness, a sore throat, hoarseness, loss of smell and taste is
not a priority as I can breathe. Yes, thank you all the people
and companies trying to rid us of that terrible disease. I hope
a young child can be given something else to help him through this problem if side effects occur.

-- By shoppe10 | Reply | Private Message me

February 8th
2006
11:58 AM

to hill (the last posting)

you are not going crazy and ur not dying of a horrible disease!!! my names chrissy im 23 and i was on yasmin for only one month last july and i suffered some of what you have. i went to the ER twice in august because i had a racing heart beat like about 147 beats per minute, plus my chest felt soooooo tight and heavy !! my left arm was aching i swear i thought i was having a heart attack.
they check everything and told me nuthing was wrong but i just didnt feel right. i was constantly anxious which is not like me at all and always tired..... alos had bad migraines for two days at a time...
the good thing is the symptoms will wear off i promise you but ur right ur body needs a break...!!
im now 7 months yasmin free and i feel so much better.... ive started going to the gym again and iv found the energy i lost....i do sometimes get the symptoms when im ovulating or when my period is due but its nowhere near as bad as it was.....
you will be ok you just need time... and dont let anyone tell you that ur crazy because your not... only you can feel whats going on in ur body no one else...
this website is what saved me and the girls on here were so supportive !!!
<<<< LISA if your still around id love to know how your doing>>>>
so please read all the postings on here and stay off yasmin!!! you will be ur old self again its just gonna take time...

lots of hugs to you
chrissy xoxoxox

-- By chrissy22 | Reply | Private Message me

July 24th
2005
7:14 AM

I have recently been diagnosed with sarcoidosis. I am not looking forward to being on predisone. Are there any other drugs for treatment of this horrible disease. Thanks.

-- By boneyita1234 | Reply | Private Message me

July 15th
2005
7:11 AM

I am a 47 year old man. A year and a few months ago I was put on 10 mg a day of Lipitor. After about a month my feet began to hurt and burn, then my legs felt week. Now my hands feel strange, (week, and kind of crampy). I drop things, my hand writing is terrible, I have a hard time typing etc. My ankles, knees, hips, back, elbows, wrists, and knuckles ache. The pain and burn, tingling, and numbness in my feet is constant. I have had problems with memory loss and loss of concentration. I have days that I am so week it is hard to go up stairs, roll over in bed or just get out of a chair. I feel like I am over 100 years old at times. I feel like I have been poisoned! About 2 months ago I asked my DR. if it could be the Lipitor and he said " no, I doubt it, quit taking it for a week and see if you feel better" and ordered a blood test, which came back normal. I quit for 2 weeks with no change and started taking it again. I dont think he understood how bad I was feeling & was not much help! I am feeling much worse and changed my Dr. I have had an MRI to check for MS, which came back normal and now have an appt with a neurologist. I have just found this website and I am on my 3rd day of no Lipitor. The last 2 months I have been afraid that I am dying of some horrible disease! I hope this is my problem and I start feeling better soon!!!! If Lipitor is the cause of my problems, it has taken a year of my life away from me!!

-- By ljkpr | Reply | Private Message me


 

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