November 17th
2009
1:12 AM
OMG!!!!! I am a Registered Nurse and still didn't know so many women (including myself) had these extreme side effects from this awful thing. I had a miscarriage back in March and chose Mirena as my birth control afterwards. Every since then I have felt like I was going (or already gone) insane. Like the original poster, I have EVERY SINGLE SIGN AND SYMPTOM!!!!! I haven't slept more than 2 hours at a time since, My bra size before was a 36C, I am now back up to 40E. Which is larger than they got after I had my son and was breast feeding him. I have the pregnant belly, mood swings from hell, hot flashes, off and on cramping (especially after sex), acne that has scared my face, bouts of awful depression, unable to concentrate on anything, lower back pain, nausea, and I always have this feeling that I'm pregnant. I also gained a whooping 25 lbs which is impossible since I had gastric bypass surgery 6 yrs ago. Just like many of you I stepped up the exercise and modified my already limited diet. I truly wish that I had stayed on Depo-Prevera. I plan on having this thing taken out of me this week. This awful "demon" needs to be taken off the market. I guess all of us that have had these extreme side effects need to be on the look out for a class action lawsuit. No woman should have to go through what all of us have been through. To those of you that have already had it removed: Did you lose all the weight that was gained after the Mirena placement? If so, how long did it take??? I'm so ready to be normal again!!
-- By ckingrn | Reply | Private Message me
November 11th
2009
6:53 PM
I got diagnosed with endometriosis about a month ago and had emergency surgery. I had my first shot of Lupron a week after my surgery. I am now experiences the hot flashes, mood swings,and not being in the "mood". I have not noticed anyone else saying anything about the side effects being not in the "mood". I am only 24 years old and getting married in February. I need help!!!! I am suppose to get my second shot on the 23rd of this month. I am not sure if I should get it or not. My husband-to-be and I would like to start a family right after our wedding. I feel so bad for him I don't want him to have to turn to movies or anything else to have to get pleased. I am still young and should not be going through this. I need help and don't know what to do.
mpluv05
November 10th
2009
3:32 PM
For me, it has been about 10 years, I think, since I was on lupron. I got a shot every 3 months for almost 2 years. At the time, the Dr. told me that the Lupron was still in the experimental stages but they thought it would be beneficial for me to try. I had a mini lap done because of a softball sized cyst rupturing so she couldn't see anything in my abd with the regular lap. I was diagnosed with stage 4 endo and started not long after on the lupron. I do not envy any woman that has or is going through menopause because the mood swings and hot flashes that I remember, were aweful.
Since the end of my Lupron, many years ago, I have noticed a few things that I never really put in line with the shots, ex...severe headaches, bad memory loss (to the point that I sometimes cannot remember things I just did), joint and muscle pain.
For me, the Lupron was a God send for the endo, I was cleared after about a year and went back 2 years ago for another lap and that was clear of endo but I have bad adhesions.
Before all of this started, I was a very active person with horseback riding, clogging (a type of celtic dance), and a very dependable person. Things are getting worse for me and I am only 32 yrs. old.
This is one of those moments, I know there was a reason for me to write this but now after being so long from reading the other comments, I cannot remember what my point was. No need to delete this though.
If anyone knows of anything that I can do to help with the memory issues, please help me out. All kidding aside, I cannot remember to take the vitamins that are suppose to help me remember.
November 8th
2009
10:59 PM
I am taking omeprezole & blood pressure medication & am having muscle cramps in my legs & feet mostly, but even in my chest (Thought I was having a heart attack).I am experiencing severe fatigue & like one of the previous posts, I'm having difficulty even holding the steering wheel of my truck.It's difficult for me to stay awake ,especially if I relax for more than 5 minutes.I assumed it was the blood pressure meds, & stopped taking them recently to see if that would help.(It didn't) I'm going to stop all synthetic meds ASAP & hope for recovery.I've been taking these for 3 years & am experiencing many of the same symptoms as other posts,including swollen breasts (I'm a male)...THANK GOD FOR THIS SITE!!! I'll keep you posted on my progress. Best to all fellow sufferers.P.S: My doctor thinks I have more symptoms than "a 90 year old lady" (I'm 54)God Bless, & I'm praying for you all.
-- By jazznerd | Reply | (2) replies | Private Message me
November 6th
2009
6:59 PM
I have had two shots of Lupron, as a result I've gained almost 30lbs, had very bad joint pains and little hot flashes. I also experienced hair loss and became moody at times. However, my doctor did warn me that I would gain weight as a result of the shot and that I may experience hot flashes. December 2009 will make one year since my first shot the second shot was in April and I"m just beginning to feel normal again. It is now November 2009
-- By bcammie | Reply | (1) replies | Private Message me
November 5th
2009
12:26 AM
I had the Mirena put in November 2008. And this is the WORST birth control I have EVER had. I have uterin contractions, hot flashes (im 19 yrs old) No sex drive, bitchy, and no period for over 6 months. and nothing is getting better. So I got the depo shot which is 99.7% effective. And no side effects. I wouldn't ever recommend this birth control.
C
-- By chels_e1990 | Reply | (1) replies | Private Message me
November 5th
2009
12:04 AM
I'm a 20 year old female, 125 lbs, exercise everyday, and eat very well. I recently had an the mirena IUD put in after a year on depo provera. I cramped for about a week after insertion and then started to have pain on the left side near my pubic bone. I also was having nausea, blurry vision, difficultly focusing my eyes, dizziness, severe chest pains, and a pin prick sensation along with hot flashes all over my body. After finding this site, I called my doctor who didn't believe that the mirena was causing this, even though many of these are listed as severe side effects. I'm a 20 year old woman! Why would i suddenly develop some disease that made me feel this way? Despite her claims that the mirena wasn't responsible, the chest pains were unbearable and the uterine pain was shooting down my legs. I demanded to have it out. One day later the uterine pain was significantly better and my vision was back to normal. I still have slight chest pains but they have diminished appropriately. the hormone in mirena has a half life of about a day and a half so in two days it should be completely out of my system and the chest pains should subside. To conclude, if you are having these side effects and have no other conditions, try getting the mirena removed. It fixed me completely.
-- By wtshf | Reply | (1) replies | Private Message me
November 2th
2009
10:50 PM
I am suppose to get my fourth shot tomorrow!!I have been experiencing a lot of I am get hot flashes,vaginal dryness really bad, increased appetite,night sweats,and weight gain,last one that has been horrible to deal with is my severe headaches.I am 24 years old and mom of 3 children.We wanted to have the option open if we did decide to have another child.I am still having the cramping to the point that I can not be the mom I want to be.I really don't know what I should do.Now reading all these messages I am very scared.Any one with comments please feel free!!
-- By mykids3 | Reply | Private Message me
November 2th
2009
8:41 AM
I am having Mirena removed today at 1:30 pm. I guess i hopped online just now to reassure myself to go through with it and not to wimp out if the doctor suggests (again) that i try to keep it. I got it inserted Dec 15th last year and have bled just about every day it seems since then. It hurt like hell when i got it. I took 3 days off work. I sweat thru a sweater and jeans on my way home from the appointment. I felt like i was going to die curled up at home by myself. Nobody believed me. I have had the worst attitude and mood swings. I am 29 years old, and don't have kids. I have never had acne in my life and have subscribed to ProActive since having Mirena. One time my chest, arms, upper back and shoulders broke out in small red bumps like i was diseased. I was not using any different perfumes or lotions etc. It went away in about a wk but i will bet it had something to do with my Mirena after reading these other posts. Once i was driving and my right foot cramped so bad i had to pull over and relax it to get home. I have not had regular bowel movements since Mirena. I swear to you- its like peristalsis stopped working on me. I always have to have help. Ive been through countless jars of Fleet suppositories and fiber supplements. And i have been on a constant detox type diet full of fiber foods to help move. I recently took my first trip to Europe. I was very worried because i had started to feel hot flashes 2 weeks prior! Hot flashes! Did i tell you im 29? It was a chilly day in October and i wanted to stip down to my undies in the AAA Travel office. I may have had a couple yeast infections in my life (in college) before Mirena. Since Mirena i have had one every couple weeks. Ive had odor out of this world when i never used to. Nothing over the counter ever worked. The doc actually tested me and found nothing abnormal about my swabs. She gave me a handful of the Diflucan pills. (Why give me that if i have nothing abnormal). I read up on vaginal health and flora. I bought the plain yogurt with probiotics etc. I started using tampons dipped in yogurt to calm things down there. Thats the only thing that felt good (but now 100%). My friends started to joke and call me Fruit on the Bottom (like Yoplait- lol). My area down there was sensitive to the touch and in pain at one point. It actually swelled up and looked super crazy one time and went back to the doctor. She again said she found nothing wrong. I asked for removal because that episode actually scared the crap out of me. My underwear even hurt. The blood and discharge burned. It was like my fluids were toxic to me. She didnt seem to believe me! She gave me 2 estrogen patches. Said to use one for the first week, remove and replace with the second one the second week. I did this and the bleeding stopped. I went for a follow up appt and she said ok- the bleeding stopped, you are ok now. The next day- you guessed it! I started bleeding again. I have been a pretty fit chick (even though im curvy/plus sized) and i pay attn to what i eat. At one point i stopped exercising and would eat anything not nailed down! I would be halfway thru a meal and plotting on what to eat next! I consulted a nutritionist and started losing the 23lbs i picked up from my Mirena binge. I have 3 friends who got Mirena and loved it. Its why i got it in the first place- because i was having abnormal periods and wanted to get it regulated. This has been a learning experience for me. I look forward to being myself again. The birth control part of Mirena is that ive been such a damned dragon that no man wants to come within 10 feet of me. LOL! And even if he wanted to I don't know what kinda mood Miss Vagina would be in that day so i don't risk the bad experience. I am going back to Orth Tri Cyclen. I never ever ever had a bad day with it. It wasn't broke so i never should have tried to fix it. I hope some of this stuff helps you. Im definitely going to my appointment to rid my body of this enemy.
Imagine me as King Leonidas on The 300 kicking Mirena into the dark pit of no return. This is Sparta!!!! :) Make your removal appt today. Im changing doctors after this also. Take care of yourself ladies!
D.
-- By curvyspice | Reply | (2) replies | Private Message me
October 29th
2009
9:39 PM
I had my surgery July 16th. Last Lupron shot was June. My period has started back . I think it took about 2 1/2 months for mine to restart. I stop having the severe .irritating night sweats but I still get these off and on hot flashes that are not as severe as they were. I am hoping that the temperature changes will hopefully stop in the next few months. Although I don't like the body temp changes. I feel much better now that I don;t have the severe pelvic pain.back pain . severe abdominal pain . urinary tension and pain . difficulty standing straight and walking and excessive bleeding.
-- By virgo38 | Reply | Private Message me
October 29th
2009
9:29 PM
Hi everyone. I am so glad i found this website. I am 26 years old and i got my mirena put in October of 2007. A few months after getting it put in i noticed my hair was starting to fall out, i was real moody, hot flashes. So i went to my obgyn and he said it was my hormones so put me on birth control on top of the mirena, don't know what point of that was. But me and my husband were debating whether or not to get it taken out, because i am really bad at taking the pill but after reading everyone's stories on here yall have made up my mind for me. I'd rather get it taken out and see if my symptoms stop. The hair loss has bothered me the most. I went from having a head full of thick hair to having real thin hair, my husband was amazed at how much hair i have lost. When i wash my hair at night it just falls out like nothing, i have a big ball of hair in the tub. I even went and seen a dermatologist and he didn't know what was wrong! Calling my doctor tomorrow to make an appt. to get this taken out!
-- By les5885 | Reply | Private Message me
October 28th
2009
12:40 PM
I have had 2 cortizone injections in my neck for pain down my arm caused by pinched nerve. I have had hot flashes since day 1 and they haven't subsided. I have them all day and all night long. I actually think I have them more than I don't. Doctor said that the hotflashes might have at first been caused by the injection but now he says it must be menopausal. To me it seems too coincidental. And my increased appetite is winning the battle. I can't seem to get enough to eat, but it did help my pain.
-- By bontron | Reply | Private Message me
October 26th
2009
2:06 PM
I'm 48 and got a Mirena put in last January at the suggestion of my doctor. I'd been having menstrual migraines and we thought that a steady dose of hormones might help with the dips and prevent my headaches. Well, it has helped some, as the headaches don't come every month anymore, however, I do still get them, so it hasn't really done what we hoped. Add to that my (growing!) list of symptoms and something has to be done. I am very active. I do Taekwondo 4x a week and was working out 5x a week this summer in preparation for my black belt test. You would think that I'd lose weight with the workouts I've done for the past 10 months, but no, my weight has increased over 10lbs! And it's not muscle, either: My breasts, waist, hips and thighs have all increased. I feel bloated, tired to the point of exhaustion even after 8 hours of sleep, and all of my joints are achy. The brain-fog has gotten so bad that I've had to go back on ADD meds to try to maintain my focus at work. I'd been doing my workouts for 3 years prior to getting the Mirena, and I never felt tired the way I feel it now! I'm seeing my doctor next month and this thing is out of here!
-- By tkdmom | Reply | (2) replies | Private Message me
October 26th
2009
11:41 AM
I've had Mirena since Jan. 2006. This is what's going on with me.
EXTREMELY bloated all the time, diagnosed as IBS. I’ve tried everything: herbs, teas, diet changes, prescription meds (currently on anti-depressant (for the IBS, not depression) and an anti-spasmatic pill), and non-prescription meds (currently taking beano before every meal and gas-x after the beano has not worked!)
Irritability
Tired all the time
Not motivated to do anything
Forgetful
Loss of concentration, I have the attention span of a 3 year old it seems!
Heart fluttering and dizziness like a panic attack. The doctor actually said it was panic attacks but I honestly don’t feel “panicked” when they happen.
Fluttering in abdomen as if there were a baby in there
Sometimes feel a pulling or stinging sensation in my uterus
Hubby can feel the strings and we think they are irritating his manhood
A lot of these symptoms seem like depression but all praise be to God, I have a wonderful life. I have the greatest husband and kids I could ever ask for. I love our life. I’m not unhappy at all. I didn’t consider that it may be the Mirena until my husband mentioned that he thought the strings were causing the irritation on his penis. I started googling Mirena to see if anyone else had this problem and came up with so many “other” symptoms of Mirena. I thought “WOW!! Maybe THAT’S my problem!” Maybe it’s time to make that appointment to get it out.
-- By thatwhitemuslimgirl | Reply | (5) replies | Private Message me
October 26th
2009
10:56 AM
I have been getting lupron depot injections since my laproscopy back in August and had no trouble the first month except for hot flashes. After the second injection I started to experience migraine type headaches and I would get the shakes really bad through the night almost as if I was coming down with the flu. I just had my third injection and the symptoms are worse. I feel tired, nauseated, body aches, chills through the night and hot flashes all day long. Will my symptoms continue to get worse as I go on? I have two more months of injections and I am contemplating not doing it. My husband and I have a beautiful little girl but really want another child. Is two more months really going to guarantee pregnancy or is it a waste of my time?
-- By sarahmitch23 | Reply | (1) replies | Private Message me
October 25th
2009
6:10 PM
I'm 24 and just recently finished my lupron treatment for endo. I'm still having some of the side effects and have yet to start my period again. I honestly would've rather had surgery again for endo than go through months of the side effects. The memory problems, overall fogginess, night sweats, insomnia, mood swings, hot flashes, and just the stress and complete crappy quality of life I've had most of this year has completely affected all aspects of my life. It's not easy at work, at home with my husband- surgery took a day or so to recovery from and this has been a nightmare for months and months. I'd really think about it and research the benefits for you vs the side effects before doing it. If there are any other options- I'd absolutely consider them.
-- By jaroski | Reply | (2) replies | Private Message me
October 22th
2009
2:38 PM
Had my Mirena put in about 4 weeks ago. I feel like I am sick ALL the time. I have had every symptom mentioned and then some. Severe nausea, indigestion, headaches, fatigue, mood swings, hot flashes, depression, lack of sex drive, achiness, dizziness, anxiety, loss of appetite, and excessive sweating and hot flashes. My husband also says it irritates him when we have sex. I did a good bit of research before getting the Mirena, and never realized any of these side effects could happen. The Mirena website doesn't mention any of these other than headache. The doctor made it sound wonderful, and I just never thought I would feel like this. I almost feel like I am pregnant again, but I know I am not. It is horrible! I have an appointment in 4 days for my Mirena check up, and I am going to have it removed then. Please do your research before getting the Mirena! I am glad I found this site. Now I realize I am not the only one.
-- By aavwife | Reply | (1) replies | Private Message me
October 20th
2009
10:58 PM
I started Lupron injections 9/28/09 and I started having side effects almost right away. Headaches, mood swings, socialized anxiety, lack of appetite, no short term memory, no short term memory (LOL), confusion and extreme inability to focus, hot flashes/night sweats, tired all the time. Also, when I'm not having a hot flash/night sweats, I am chilled to the bone. This may be due to my appetite, which in turn is odd that I have cravings of chocolate. My husband has to pretty much force me to eat a meal. The chocolate craving goes beyond anything else, it's strange for me to eat like this. From what I understand is that it could be a hormonal issue due to the Lupron. Also chocolate can trigger endorphins that can help with pain, seeing how as the Lupron is doing nothing in that department!
-- By warning | Reply | Private Message me
October 17th
2009
2:28 AM
I am a 35 year old male in perfect health. last week i received two Kenalog injections in my trap muscles to to treat muscle spasms{trigger points) from a pinched nerve in my back. When I went home later that day as I layed down I begin having severe heart palpitations. I went to my doctor and my blood pressure was very high 169/94 with a heart rate of 127. For the last week I have been experiencing anxiety attacks, insomnia, hot flashes, sweating, nervousness jittery, very emotional. I had my heart checked out and had bloodwork drawn all normal. I was put on lopressor 50 mg 2times per day and xanax to help me sleep at night. I am crawling out of my skin! I can feel my heart beating all hours of the day and night! It is driving me crazy!! I regret getting the injection!!! The doctor told me it could take 2 months before the steroid leaves my body. I hope I will not have any lasting affects of the drug! I am very nervous these symptoms will not go away! I also am experiencing headaches and burning in my stomach. I am also always hungry and yet I am losing weight.Im thinking about seeing an endocrinologist. Im scared!!
-- By 4321abcd | Reply | Private Message me
October 15th
2009
1:30 PM
I am much like the rest of you and have just finished talking about this with friends at work....
1. no sex drive - used to be twice a week and sometimes more, but now just after one month with the ring, this has decreased to almost non-existent!!!
2. Headaches that come out of nowhere
3. Hot flashes and low grade temp
4. Vaginal dryness
5. Depression and wanting to be alone and having difficulty in coping with tasks at work.
6. weight gain
I too much like all of you here, am taking this as a mens stabilizer, offered by my OB/GYN which she raved about!!!
Taking this out and never using it again.
-- By snowy32 | Reply | Private Message me
October 14th
2009
9:59 AM
ok, so I am 28yrs old just had my lap for endo on October 1 and my doctor has recommended lupron, and am going to be getting the med in a week to 2weeks,but after reading this I am soooooooooo scared to even get near this med. Its like you either take this with the hope of saving fertility and no pain..or not and have endo ravage your body and you will live with unbearable pain!!! I have no idea what to do,and i am so scared after reading this. Is there anyone that did not have weight gain, headaches etc...anyone that can testify that lupron actually worked for them? did any one have a baby after doing this. my bigs thing is being able to have a baby. Cause right now its my health on the line, my ability to have children, my ability to have a normal life free of endo pain or these crazy, horrible side effects...please help me!!!
-- By jadejean | Reply | (3) replies | Private Message me
October 12th
2009
6:12 PM
Well, I was doing some research because my pain from my endometriosis is returning and I'm actually considering asking my doctor for another round of Lupron. I was on lupron over 2 years ago and experienced minimal side effects. I had the hot flashes, no hair loos just hair growth in unwanted places like my face, and just a few bouts of tearfulness. i actually lost weight on lupron and consider it to be the most sane time of my life. The women in my family over produce estrogen so i'm not sure if maybe my experience was different in that my estorgen level was not depleted to nothingness but to a more normal level. I am saddened to hear so many women suffering with what I considered my wonder drug!
-- By ans4thern | Reply | Private Message me
October 10th
2009
12:45 AM
I was prescribed medrol by my GP due to an ongoing rash that needed to get under control. I believe I had the 40mg dose/wein pack. The first two days I felt as though I were on speed. Day 2 at the grocery store I stopped to take my blood pressure because I was sure my heart was racing out of my chest. Thankfully, it wasn't and happened to be palpitations that I was having. I had hot flashes where my face and chest would get red like a sunburn. There were the sweats and the leg weakness/soreness. I did have sporadic headaches but, nothing a Tylenol wouldn't alleviate thank goodness. I've read here that numerous people had very bad headaches. My last day on the meds I started to experience the fatigue. Today is my first full day off and I certainly felt flu like. Sporadic lightheadedness, weakness and fatigue that would all come and go throughout my workday along with sporadic energy. I'm glad that I found this site so at least I know that this is normal and will subside in a few days. Other side effects I experienced were worsening of my post nasal drip along with a funny taste in my mouth, mood swings, insomnia, hyperactivity and muscle aches.
-- By kerijean | Reply | (1) replies | Private Message me
October 5th
2009
12:41 PM
I have had Mirena for 18 months now. I love it. I have had no side effects that you all are describing. I have 4 friends that switched and all love it and only one had to have a follow up to have the strings shortened.
As far as the weight gain, ladies, let’s be honest. We are not 18 anymore and as we get older it is only going to become more difficult to keep weight off. Blaming it on a B/C....lets think about that last chocolate bar we ate because we were busy carting the kids off to a sports practice HMMM....
With any drug comes side effects, headaches, nausea, and some other terribly worse, but lets again be honest, all of these were pointed out in the literature available.
I just thought I would take the time to write my support as this does work and work well for some women, just not all, same as any other form of B/C.
-- By quilt5 | Reply | (4) replies | Private Message me
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November 20th
2009
10:28 AM
I've had most of the side effects mentioned in these posts. But the biggest problem I've had is the massive mood swings I've had. I'm talking really bad temper tantrums. Has anyone else had this? My oestrogen level is sitting under 130 which is way below the normal 750 - 1400 level. I am only 35, but in a psudo menopause state. I tell you what, if I cannot conceive once this thing is removed, I will sue the pants off them! How can no one tell me that I could LOSE my ability to conceive if I use this? I used to have normal levels and now I'm menopausal? At 35? Do me a freaking favour. Take this thing off the market. NOW.
-- By millimilli | Reply | (1) replies | Private Message me