June 29th
2008
11:41 AM
Read my symptoms first; at the bottom it will tell you how long I had the IUD and the time line of the symptoms.
constant pelvic discomfort
(sometimes to the point where Advil usage doesn't even help)
("zaps" or "pings" of pain...light lightening bolts)
almost constant bleeding
(sometimes with clots - in differing sizes)
(coloring can be bright red to burgundy and brown)
(odor from the bleeding is very noticeable)
immediate weight gain
(this includes severe abdominal protrusion)
(I belly dance, & the costume I had just worn 2 weeks prior to insertion no longer fit)
severe swelling of the extremities
(hands usually do swell in hot weather, however, I've never had my feet and lower legs swell up like this - I had elephant feet/legs)
immediate acne issues
(my skin is always clear except for a few during my period)
moodiness
brain fog
(I'm a bookkeeper, & I noticed an immediate problem with my making stupid mistakes or taking longer than normal to resolve usual issues in this regard)
clumsiness
(could be attributed to the brain fog)
breast tenderness
(feels like someone's constantly squeezing/poking them)
movement of the IUD
(I could feel that it was out of position; it was more on my right side and caused ALOT of discomfort)
Here's the kicker, ladies. This was all within 1 WEEK of USE.
I demanded removal of this nasty thing & the GYN office refused.
After two more weeks of hell, I insisted, & they finally removed it.
This is what I experienced AFTER the removal:
Immediate relief in my pelvic area, BUT, still having pelvic pain.
INTENSE bleeding & clotting. To the point where I bled through my clothing at work (yes, I was using tampons & heavy pads).
The GYN's office didn't seem concerned; they said this was my body's "normal" reaction. (yeah, right). I finally stopped bleeding a good 5+ days later.
Even more breast tenderness.
Weight gain/bloat has not gone away. (I'm quite active)
Still experiencing brain fog.
Acne is starting to dissipate.
I have a ****** Group set up to shout to the world about this horrid device; look for: mirenajustsayno
Report your experience directly to Mirena; they have a contact # to report an "Adverse Reaction". From there, file a report with the varying health organizations.
On another note, I also had several ultrasounds done at the GYN's office prior to the insertion. The DR stated I had no ovarian cysts, no fibroids, BUT, my uterus was overly large. I sounded at a 10 as opposed to the usual 8. I was told it didn't matter, that I was a good candidate. He also stated that I had "a little endo".
(The reason for my use was to control the heavy bleeding during my period, along with the severe cramps.)
Well, I had some ultrasounds done at the hospital late last week, about 10 days after the removal of the Mirena. This is the result:
irregular complex cyst on my left ovary
unusually thickened uterine wall (no other explanation other than it was thicker than average)
It was noted that the series needs to be repeated.
(I'm assuming they want to look deeper)
Note that I have not resolved whether or not there was any perforation from the IUD moving out of place; the GYN never ran an ultrasound to verify it - they just did a regular exam & told me "it was still in my uterus". (that exam initiated severe bleeding for several days as well)
Good luck and let me know how you're doing!
And, yes, I do have several friends that LOVE their Mirena.
-- By nancyinnh | Reply | (3) replies | Private Message me
October 3th
2007
3:26 PM
I would like to stop taking paxil, I have been on it for 3 yrs. When I skip my medicine I get what feels like electrical shocks in my neck & head. I wasnt sure if I had a pinched nerve at 1st but began to associate this with the event that I had not taken my meds. I also have onset of panic attacks & rapid heart, & terrible terrible forgetfulness, as to even what cabinet I would like to open, I open the wrong one, go into the wrong doorway, wrong driveway. I am very concerned. I have told my Dr. that I would like to get off this Paxil but Ive been told that it would be best since I was suffering from anxiety attacks in past. I would like to be committed to be able to handle the withdrawls. If anyone has been successful in stopping Paxil and now feels pretty back to normal, please let me know. Thanks
-- By carlton8020 | Reply | (13) replies | Private Message me
August 6th
2007
3:37 PM
This is about my 4th or 5th time being infused w/solumedrol 1 gram for 3 days. I have been diagnosed w/MS for about 7 years. I have experienced joint pain but only when one doctor did not put me on a prednisone taper.
Overall, I am apreciative to the makers of this drug because it allows me to walk, button my clothes, cut up vegetabes for my 13 yr old daughter and my husband. Currently I am on my first day of a three day treatment and already I am experiencing the benefits. I am rt handed and it was tighter and feeling like card board, the same with my chest, back, and right leg. I felt like someone had tied a belt around my chest very tightly. It was hard to breath like a chest was on my chest! I am waiting for the nurse to start my IV at 4:00. I inject every Tuesday with Avonex. I REALLY need this medication to work so that I can drive my daughter to school each Wednesday. She is in Independant Studies because I was having vertigo and was afraid to continue driving. I was given a one day treatment of solumedrol in the emergency room. After treatment vertgo stopped. Yippee!!That was 11 months ago. Hot weather, sunlight exaserbates my condition to the 'enth degree. So here I am again hoping my right foot and right leg will get back to almost normal. People that are infirm are happy to receive whatever relief they can get in order to cope better with an illness even though I know that the only true cure for makinds ills can only come from God's Kingdom, but for now God has giver men intelligence to cure some of the illnesses that we face: Cancer - Chemotherapy (20 years ago killed my mom - hardened her lungs) ; Ads, Polio, Measles, TB and the list goes on there are upsides and downsides and it's a slippery slope, but I LOVE THAT I CAN MAKE THAT CHOICE!!! P.S. I have started using some vitamins ( B12,B6, Calcium (as solumedrol does some bone damage) and Vitamin E
January 7th
2007
12:25 PM
- decreased sex drive
- discomfort during sex, and burning sensation afterwards--despite removing device before sex
- break-through bleeding
- after 2 1/2 months --> itchiness and skin irratation on the vaginal lips perhaps this is due to increased release of hormones due to being in the tropics (hot weather) and going in a hot tub multiple days in a row
I'm going back to a low dose pill today.
-- By maddscience | Reply | Private Message me
December 8th
2004
10:17 PM
After stopping Lipitor AND Fosamax, Ihave regained the ability to walk down the stairs without holding on to the hand rail.I have also regained the flexibility in my knee joint which had been very painful when I squatted down.I was previously unable to get up from the squat position without holding on to some support.
I have noticed people remarking on legs turning and feet tripping over things if feet are not picked up sufficiently. I too have these symptoms but was not noticing them as separate side effects.
My general mental fog has been remarked on by people with whom I play Mahjong and Bridge . I seem unable to remember things for very long.I have also had one episode of the room spinning round while I was seated. Is this another side effect or just the result of hot weather and dehydration????
PG
Australia
April 29th
2004
12:01 PM
I have been on pred for 2 years off and on for Temporal Arteritis that the doctors at long last have decided that I don't have. They started me out on 60 mm and now they are taking me off at 1mm every other week. I am down to 11mm now. I have experienced all the side effects except the acne and problems with periods. I gained 40 pounds and have such bad pains in my lower back that I can't stay on my feet for long. And I'm always hungry though I try to control it. My main withdrawal symptom is extreme itching from my neck to my wrists and thighs. especially where there is any pressure on the body such as waist bands etc. I tried to get off it once but it was at a faster rate and that is when the itching started. I will gladly put up with the itching as long as I can get off this "Satans curse" of a medicine. I also have jerking in my hands and a general feeling of shakiness. I was glad to read that someone else had painful sensitive teeth I didn't know it was connected to the pred. I too wonder if I will be able to lose all this weight after I'm off the pred. I do know that the moon face goes away because it did the one time I came off the pred then had to get back on it. I also have weakness in my thighs and arms. and my arms are always getting big ugly bruises or torn skin on them to the point that I have to wear long sleeves in hot weather.feel free to email me with your story. Especially if you are off of it so I can have some idea what might happen to me
-- By iraynbo | Reply | (4) replies | Private Message me
April 18th
2003
3:46 AM
I am a male that took a four month shot of Lupron with hormone shots to kill the tostestorone and shrink the prostate. This would enable me to leave town for three months and return in May for a radical prostectamy. Since then with the guidance of my primary physician, we returned and had the surgery after one and one half months. (best decision we ever made). Now the hot flashes are unbelievable and sleep is intermittent in between flashes. I have no other symptoms that are negative. Surgery was a success but hot flashes are terrible. Hopefully at some time in the future the effects of the shot and the hormones will wear off and I can get back to a normal sleepful night
-- By willcater4u | Reply | (1) replies | Private Message me
Mirena (2) Lupron (1) Lotrel (1) Paxil (1) Solu-Medrol (1) NuvaRing (1) PredniSONE (1) Lipitor (1) Wellbutrin (1)
July 23th
2009
8:59 PM
I have been taking Wellbutrin XL 300MG for 18 months now. It definitely cured my depression but since last couple of months I noticed my hair falling at an alarming rate. I can now see my scalp in several places. It is discouraging. I am going to lower the dose to 150MG and then stop after some time.
-- By ajmer | Reply | (1) replies | Private Message me