Hunch symptoms and conditions

I am a 40 year old female. I found out 3 years ago that I have factor V. I've been hospitalized for 17 PE's. I was being treated with coumadin, plavix, lovenox. My INR will not stabilize. The doctor has now put me on 30mg. of warfarin a day. and my INR still sets at 1.2. My side effects are awful. I feel tired, week, cold, weight gain, but most of all the terrible headaches. The doctor says it has nothing to do with the warfarin. I stay depressed and now losing hair. I've taken my doctors advice and I'm going back to the cancer center where they are more experienced. I feel like I'm dying everyday and its not in my head. I do believe its side effects. And if its not moving my INR than to me it seems useless to take such a high dosage. Its a catch 22.

I am so glad that I found this site and to see that there are other women out there who are having problems with the Mirena. I thought it was just all in my mind! I had the Mirena inserted in February 2008. Started having problems with high BP when pregnant with first baby and when I went back on pill after his birth BP wasn't doing any better. After having my second child, I contemplated about Mirena vs. having tubes tied. My OB said the Mirena was the perfect thing for me and was pretty much like tubal ligation, but without the surgery. I had no problems when Mirena was inserted..just bleeding (seemed like forever for me to stop bleeding) and the normal dizziness. For the first three months, I never knew when my period was going to be, but I just kept remembering what my OB said "your periods will be like nothing after the first three months." My periods did get a little better...however not the "light" or spotting periods. After the first three months, I started noticing that my hair was starting to fall out more but thought it was part of postpartum. I started feeling really tired, skin started to break out, felt depressed, my mind was racing, couldn't sleep, had problems remembering things (simple things), migraines got worse and more frequent than what they used to be before, moody, agitated, had chest pains, nausea in the morning (at one point I thought I was pregnant again!), stomach pains, diarrhea/constipation, kept having vaginal discharge (like when you are pregnant), came down with bacterial vaginosis, UTI's were somewhat common,no sexual desire and my BP was out of control. Seven months after having Mirena inserted, I started having sharp pains near right ovary. I had problems with cysts in right ovary before and had them removed so when the pains started, I had a hunch that most likely it was another cyst. My OB closed her practice so when I went to new OB for annual pap, I mentioned all the things I was experiencing including suspicion of cyst. I told her I had been experiencing all symtoms since Mirena was put in. She told me that she has never heard of the Mirena to cause symptoms like these. Told me that perhaps I was still having effects of postpartum and that my body was trying to get "back to normal" and get used to Mirena. Had all these blood test done and everything came back normal. I did have a cyst on right ovary and was told that it should go away within 2 months. Just had a follow-up ultrasound today (2 months later) and cyst is still there along with other cysts on right AND NOW left ovary. Most of the time, I am in a lot of pain especially on the right side. I was told to just take Motrin for the pain, but that nor heat packs work at all. I am really considering to have the Mirena taken out. I REALLY believe that the Mirena is the cause of my cysts. Is there anyone out there who have gotten cysts while with the Mirena? And has anyone experienced having no problems with cysts after the Mirena was taken out? Since finding out that I have multiple cysts on both sides and knowing that my doctor will probably tell me they will eventually go away on their own (first one is less than 2cm and others are smaller), I don't know if it is even worth keeping the Mirena in. I hate having all these symptoms...I just want to be "normal" again. BUT, IT IS VERY COMFORTING TO KNOW THAT THERE ARE OTHERS WHO ARE OR HAVE EXPERIENCED THE SAME. Now I can tell myself that it is not all in my mind and I am not going crazy!

After reading all of these posts, I realize I'm not alone. Mirena was the perfect option for me because I'm very forgetful when it comes to medications. What sold me was when I was told it has a 99.9% effectiveness against getting pregnant. I was only told of the good things. After it was inserted i was in SEVERE pain from the cramping, it reminded me of labor contractions. I took 600mg of ibuprofen then layed down and cried myself to sleep. I got it July 28th, 2008. Since then I've been bleeding on and off but more bleeding than not. I get sharp, cramp-like pains in my lower stomach and sometimes vaginal area. I also suffer severe lower back pain. I was bleeding so bad at one point and it was very different from any period I'd ever had so I thought maybe I was miscarrying. I called the doctor and it was rather blown off and I actually got kind of laughed at, saying it's just your body adjusting. I have restless nights and wake up exhausted. I have those far out dreams like you do when you're pregnant, except I'm not. I also get bloated and uncomfortable at times. I've been bleeding now for almost a month straight. It comes and goes, which is very aggravating. I'd almost just thought about getting it taken out and just going with oral birth control that way I'd have a normal period but I love not having the boundaries in the bedroom. I'm giving it the 6months, like they told me it'd take and if all my symptoms are still present I'm considering removal.

I've been reading just now today of the side effects. What made me was I was at the dentist yesterday for a root canal. Couldn't do the original routine visit due to other worse problems had occurred. I've been on the Mirena for 9 months now. Guess what?! I've had every side effect that has been mentioned by every person. The new side effect that has not been listed is that I think it also has an effect on your teeth. The "Depot" shot has effects on your bones & teeth and I'm sure the Mirena has something to do with this year's bad review at the dentist office. In fact my habits of taking care of my teeth are great.... from drinking water all day long to now chewing sugar free gum...and since the Mirena my teeth are getting worse & worse! My dentist wanted to know what I was doing different? I didn't think of it at the time, but I have a hunch this is a source for my constant dental visits, not among the 38lb. WEIGHT GAIN!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! & COUNTING!!!!!!!!!!!!!!!!!!!!!! this WILL BE REMOVED AS SOON AS THE FIRST OF THE YEAR.....HAPPY NEW YEAR TO ME!!! CAN'T WAIT!!! My husband thought I was becoming a hypochondriac(if i spelled that right)!!!
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OMG -I'm 47 and I've been on for 6 months now and I've had a hunch for a few weeks but never thought I'd find this!! I was on Hydrochlorothiazide for 1 wk-had cramps in my toes so Dr. immediately took me off even though I said I felt great-but peed a lot!- He said this would be better for me..... EVERYTHING I've been feeling is the same as you.......I've just not been able to put my finger on it - I just felt "different", I thought it was me and I was getting "old" with a nagging tinkling cough, at the worst time "bed time"...ruins any sex life! I had fatigue, problems concentrating, headaches- back of my head, blurred vision- my eyes would kinda fog over- scared me to death so had tests but all was ok), I've been getting that "bummed out feeling" & didn't feel like doing anything but I've always loved Summer and Fall - going to the beach, riding motorcycles, swimming, my garden and to be outside, but now I kind of force myself to do. Then just this past week I've been feeling sick and nauseated, with an acid reflux vomit feeling and I've just had enough.......There are way tooo many coincidences here....... I have to get off of this stuff!!

I had my Mirena put in about 7 months ago, since then i have been getting sicker and sicker. I was just diagnosed with hypothyroidism in June, but my TSH level is almost back to normal now and I still feeling so ill. I have gained 15 pounds, feel very emotionally unstable, I'm moody, fatigued, have constant joint and muscle pain! I am so depressed and no matter what i do I just can't feel better! I just want to die! My husband had a hunch that it could be the IUD causing this all and started researching it. He found this website and read to me what everyone had said. I was shocked! I'm a nurse so i got off the phone with him and removed it myself, which I do not recommend if you are not a health care professional. I'm sure it's just in my head, but I feel better already! I hope that all of my symptoms resolve now, but either way that is one less thing that could be causing my symptoms. I hope this helps others and let me know if you also had joint and muscle pain! Thanks and GOOD LUCK to you all!

Pam

My son has been on Singulair since the age of 6. He is now 13 years old. He developed seizures 3 weeks ago - temporal lobe aura epilepsy during which he was hearing voices. EEG abnormal, MRI normal. He hasn't started medication for the seizures but I have stopped his Singulair immediately! This was just a hunch - searching the net to see if there is any correlation. I have been to the Pediatrician AND the GP the past 3 weeks and no one said anything. I think a great number of children are on Singulair in SA. Does anyone know about the possibility of this danger?

Hi, I wish I would have found this site a long time ago! I had Mirena put in in Dec 2005 after the birth of my son. I was nursing and was told that the birth control that I could take and would not interfere with my milk was "not as forgiving" as regular pills (and, I definitely did not want to get pregnant again at that time) So, I went with the Mirena. It seemed great in the beginning. I had the strings trimmed a little after my husband felt them and got freaked out and then everything seemed great.
It's funny how this has worked out for so many of us because after having a baby, your life is so changed and your body is so out of whack that it's hard to say what could be causing it. I ended up becoming extremely hypothyroid after having my son (I wonder if Mirena may have had anything to do with it!??!?!) Even though I take thyroid medication now and seem to have it very under control, I still have no sex drive, have tremendous mood swings even though I am on antidepressants, my acne is worse than it was when I was a teenager, and what I consider to be worst of all, tremendous eczema! Last summer I became so covered in eczema, my face, neck, chest and arms, that my mother said I looked like a burn victim. I was insanely uncomfortable and extremely self-conscious. After going to all kinds of doctors who only kept prescribing topical creams and steroid pills, I started going to an awesome alternative medicine nutritionist and realized that there was something internal going on causing my skin to react like this. After seeing him for months, we came to see a pattern between my eczema flare-ups and my period. I always seemed to start getting really itchy around the time of ovulation and we also discovered that during that same time I would be gluten-sensitive. I had all the tests done and I do not have Celiac disease.
I can't believe that I am only reading about all of this now. Thank you all so much for confirming my hunch that it might be the Mirena. I am going to call my Gyno today and have it removed.

I was having problems with my birth control pill Marvelon, I just felt like I was PMSing all the time. One minute I was furious at nothing, and then I would just want to cry but about absolutely nothing at all and it was through the entire month not just before my period. I felt like I was going nuts. I had my doctor switch me and she put me on Alesse. But 6 months in my PMS like symptoms are still here but reduced, but now my skin looks terrible. My neck has completely broken out in what is almost a rash except it's all zits. This is what used to happen to me for years while on Tricyclen but the doctors would never believe me! They just kept saying it's meant to cure your acne (which I didn't even have before birth control) when I finally got off tricylin it all cleared right up and never came back after a full year of turtle necks and cover up makeup and that was 10 years ago. So I just had my doctor move me again, she's now prescribing Yasmin, which I hope will be much much better. One thing I do know is when they say it will get worse and then better, they don't know what they are talking about!! if you are still reacting to the pill after the first three months, then try a new one, there are so many options out there and living life with acne that will supposedly 'miraculously' eventually heal is just not worth losing a year of your life with no confidence because a doctor has a hunch it will all fix itself when it never really does. If you don't break out then stay on it and enjoy, but if you do then don't be patient and wait it out, don't be scared to tell your doctor you want to just try something else.

IA huge thanks to you guys for putting this info out there, because I'm sure the Singulair website wouldn't go into detail about this, and tell about side effects it has: FYI -->

This was what I found on the Singulair website, no more, no less (see post below this one please)

'm really sad to hear that these things happened to you guys and your children.

My 8yr old (55 lbs) son got a cough that ended up lasting about 4 weeks, so i finally took him to his pediatrician. He gave him a breathing treatment and hinted at him having asthma- but he wasn't sure. We have no family history of asthma and in my mind i thought it was pretty far fetched, but we continued the breathing treatment for about 2 weeks and my son cleared right up.

We came back in the Friday after Thanksgiving for a check up and his doctor said that my son sounded much better. The doctor said that looking over my son's medical history (not much of anything) he said he could have asthma-but he wanted to put him on Singulair for the next 3 months until the winter is over.

He said it would be a preventative measure to keep my son's symptoms from "flaring" up. The doctors said " This is not a steroid, and there are NO side effects. Its a once daily chew able for children." I thought-hmmm that's a first, a drug with no side effects. Then I was thinking" "What symptoms was the doctor referring to?" He had a really bad cough he got while visiting his dad's family (bug going around). But I held my tongue and just nodded. He wrote out the prescription, and I left. I heisted as I pulled out in front of the pharmacy and then kept driving.

I felt uneasy about the whole thing. Giving him a daily medication for a condition (asthma) I doubted my son had. Glad I did my homework, I decided to not fill the prescription. I don't feel the least bit guilty for not giving him the meds.

I started taking Symbicort 4 weeks ago. I'm an active person, eat well and I'm in good shape. I caught a cold a week after taking symibort. It seems that as my cold got better, I didn't feel like I could breathe any easier. Since I starte taking it, I've been real fatigued. I wake up very tired and I'm sleepy all day. I stopped taking it yesterday. I fell better today. I went back on Advair until I can see the Doctor to try another medicane.

I lterally just starting taking Yasmin today. I used to take Tri-phasil, but found it just wasn't keeping my mood in check over the last 6 months, not to mention I was suddenly getting 2 periods a month. So, I stopped taking the pill for a month, and after seeiong ads for YAZ ended up with Yasmine after visiting my Dr.
My questions for the ladies with symptoms of anxiety and mood swings: Did you not have these symptoms before starting the pill? If so, are you saying that Yasmin made them worse?
Also, I would be curious to find lout what BC pills you NOW use, and how the hormone dose compares to Yasmin. The Tri-phasil I used to take was stronger than Yasmin. If I begin to feel any side effects using Yasmin, I will have to assume that I just need something stronger and will begin with Tri Phasil again.

I am 40-years-old and took Singulair for about two months. I first took it for about two weeks and got horrible symptoms and then stopped for a week and then tried it again for about a month. Never again will I put Singulair into my body. My symptoms were chronic and severe muscle cramps and twitching, restless legs, body aches, numbness, tingling, hair loss, weight gain, and skin changes (urticaria and angioedema). I also used to suffer from menorrhagia to where now I barely get a cycle. I cannot blame Singulair for the headaches/migraines because I have been a headache/migraine suffering for many years.

When I first stopped taking Singulair the symptoms calm down. But since then they have come back with a vengence. I have been to several specialty doctors (family doctor first, endocrinologist, neurologist, allergist and rheumatologist). Now please let me defend myself by saying I see my family doctor and gynecologist yearly for a physical and also when I am sick and I have always been basically a very healthy, and slender woman with thick hair. I was on no other medications other than ibuprofen and acetaminophen for the headaches/migraines. What they have found so far is that I have secondary autoimmune hypothyroidism (only my TPO antibody and thryoglobulin are extremely elevated, but my TSH, T3 and T4 are completely normal), and allergies to everything outside (no food or pet allergies) and idiopathic lupus (because my skin has developed urticaria and angioedema).

I am going for an EMG and MRI of the brain in one week because they are trying to rule out MS. They have been saying that my symptoms look like MS or lupus. They have ruled out lupus because my blood tests do not show lupus only my skin is acting like lupus. My allergist put me on doxepin for my skin and twitching symptoms. This medication has helped my skin and slowed down the twitching.

I am not trying to blame Singulair, but it is very strange that I was a basically healthy person with some outdoor allergies and mild asthma. I would get pneumonia once a year also (always around the holidays). Now, I feel like crap since taking Singulair. My legs are the worst of all the symptoms along with the constant twitch under my right eye. This can drive a person insane, especially when you are trying to relax and your body cannot.

Thanks for listening,
Carrie

I was on the Nuvaring for about two months. During that time my already presesnt anxiety was out of control. I lost about 8lbs in two weeks at the worst time. I could not eat, I could not do anything. My work requires me to stand for a long period of time, in which my upper and lower abdominals would cramp so bad that I had to sit, or hunch over to try and get away from the pain. Due to other things going on in my life, I decided to take the ring out. After changing my diet and taking out the ring I put weight back on, I wasn't happy about it; and I didn't want to have unprotected sex with my partner. I started using it about two weeks ago, and wow! The side effects have hit me harder and faster. I woke up last weekend wanting to cry, then back to sleep, woke up and almost got sick. I feel terrrible and I dont want to do anything, and my relationships are suffering the most. I called my local Womens Health Clinic and they told me to take the ring out immediately and try to get on some other form of birth control. My advice, if anyone has those symptoms, consult your doctor asap.

And, I also had the discharge, and constant yeast infections right before my period, and it always come out in sex. Its just a good thing that my partner and I are comfortable with each other.

Resumed taking 81 mg of aspirin as recommended by the Dr after a minor MI three years ago. Just realized that the same symptoms I had with shortness of breath and weakness I had experienced then until I stopped at the time after a year on the aspirin because I was tired of the bruising and upper GI problems and vision disturbance, the aspirin is probably the culprit of my extreme shortness of breath also! I ran out of or forgot to load my weekly vitamin containers with the aspirin I started using just two days ago and have experienced much relief from the extreme breathlessness! I am going to conduct an experiment and go back on the aspirin in a couple of days to see if my hunch is right, I think this may be an answer to prayer for me as I was on the verge several times of calling my Dr the last few days it was so severe.

I am so relieved to find this site! My children were on Zyrtec for allergies. A nurse practitioner suggested Singulair as an alternative. We have had problems with behavior in preschool that we did not have prior to the Singulair. My younger daughter also has complained of stomach pains. I am glad I followed my hunch and looked up the side effects and stumbled across this board!

I have been taking Levaquin for a severe infection in my hand. After about the 2nd day, severe diarhea started. After the 5th day I started having joint pain. By the 10th day I could no longer walk and am in severe pain. My physician does not know what is wrong. He gave me a cortisone shot in one knee to see if that would help.

My wife looked on the internet last night just on a hunch that it could be the Levaquin. What a surprise! Now I want to know if this pain will last forever, or when it will leave (since I tossed the rest of my prescription)

Why are they prescribing this stuff???