November 2th
2009
6:59 AM
I am extremely sensitive to medications. That being said, even though my thyroid levels were normal, my doctor believed I had hypothyroidism. He put me on .25 mcg of the generic brand of synthroid. I could only take it for 5 days because during that time I developed feelings of "dread" and I was afraid to go to sleep at night. When I stopped the pills, I started to feel better but I believe the stuff was still in my system. Some stressful things happened right after, and it threw me into panic attacks with scary, racing thoughts, trembling, insomnia, etc. I'm slowly getting better. But after reading this, I feel even better now knowing that I'm not losing it and chances are great that it's the synthroid that's causing it.
-- By odie | Reply | Private Message me
October 15th
2009
2:40 AM
I don't know if I can blame Zocor on my weak thighs--my doctor says that muscle weakness as a result of the drug should include all of my muscles. I've also developed an extremely itchy neck-also not sure if this is related. Weight keeps going up in spite of increased exercise and limiting daily caloric intake to below 1500 calories.
-- By raewill | Reply | (6) replies | Private Message me
October 7th
2009
5:48 AM
i have just been reading this site and god am i glad, i took Yasmin for two months and came off as my boyfriend said i was being really nasty, i was also suffering with side affects. But i spoke to the doctor and they said to try and last it out as i have skin problems and she said it would help, so i continued to take it. But within one week in taking it side effects seem worse!! I have now two days left and decided not to finish the pack. The side affects are scary i thought there was something wrong with me . They include ...
* Moodiness*no energy*Pale*tired*muscle pain in legs, arms, hands, neck and the bottom of my back*Very sore tender breasts*no sex drive*thrush & dryness*needing to wee more often*Strange heart beats*itching more often everywhere!!
And there are probably more, im just hoping i loose all the side affects as quickly as possible.
September 27th
2009
2:37 PM
I had a baby in May.I had the mirena inserted in the beginning of August. I began having night sweats and noticing a lot of hair loss at the beginning of Sept. I went to my Ob/gyn who said it couldn't be the mirena causing the symptoms. So I thought that maybe I had a thyroid issue.(After my last pregnancy I had post-partum thyroiditis, which caused my hair to fall out and night sweats). I had my levels checked, and sure enough my t4 levels were high. So, now I am waiting for my t4 levels to go back to normal and hope that's what was causing my symptoms, not the mirena. I have also read that the mirena can cause thyroid problems, so who knows what is REALLY causing my symptoms. My most recent symptom is numbness and pain in my wrist/hand. I'm thinking it is possibly carpal tunnel syndrome which can be caused by hypothyroidism. If you just had a baby and are having the night sweats, hair loss, heart palpitations, weight gain etc.... I would recommend getting your thyroid checked.
-- By beepskie | Reply | Private Message me
September 15th
2009
8:22 AM
How interesting that I find this information out now. I had my third child at 39 in 2005 and have always suffered from bad periods. I was talked into having a mirena inserted and thats where my story begins. I was told that I would have spot bleeding for about 3 months - after 9 months of continual periods I was well and truly over it as was my partner. I went to my gp who order an ultra sound. This showed it had moved and was sitting sideways and would have to be surgically removed. The side effects were herendous for me and still are after having it taken out two years ago. Not only did I have my periods for 10 months non stop, I had continual nausea, migraines (which I had suffered previously but not to the extent I was having them), massive weight gain, fluid retention, the worst pms which was constant and so so aggressive towards everyone I came in contact with. My sex drive went out the door and my relationship started to fail. My hair also started to fall out in handfuls and still does to this day and my skin was always so dry. I was also constantly tired and had very little energy. Two years ago I went in to to have the mirena surgically removed and at that time I also had an oblation and my tubes tied. The oblation worked for about 6 months but my periods are worse than they have ever been and thats because now Im told Im pre-menopausal!!! I still have the occasional migraine, my hair still falls out in handfuls and my skin is still really dry. My sex drive is starting to come back (thank god). I thought all these crazy symptoms would go away once this horrible mirena was taken out but it seems they're here to stay. I now see a psychologist every week trying to get my aggression back under control which is working well. I wish I had known about all these symptoms prior to having the mirena - I might still be with my partner instead of being single. My advise to anyone wanting permanent contraception - get your tubes tied and stay right away from mirena.
-- By niltub66 | Reply | (1) replies | Private Message me
September 12th
2009
1:45 AM
I have been taking Levoxyl for about 2 years. I have told my Endo doctor many that I have had headaches, nausea, stomach pains and have gained 40+ pounds in the 2 years. Every time I go in to review my blood tests and tell her I'm not feeling right I get the same respondents as a lot of you; they are you sure you are not pregnant? you need to change your diet and eat right? you exercising enough?...The Dr always seems to ignore my symptoms. The last 4 weeks have been Hell for me...I woke up one morning thinking my stomach was going to burst. I went to the Er. They did an ultrasound...found nothing..gave me stomach reflux meds and I went home. 2 days later the pain was a lot stronger right under the center below my rib cage. Went back to the er. They gave me more protonics and gave me a gi dr. I went to the GI doctor and got a contrast scan and then a scope. They of course found NOTHING. A week later I woke up again with the worst pain yet and the cold sweats...to the point where I was going to pass out...Went back to the Er where they gave me a cat scan. Everything was perfect the er doctor said. "They said they couldn't tell me what was wrong". I knew I wasn't going crazy and having all these symptoms but no one could explain why or what is was. I was getting fed up of being sick...So I took my Levoxyl like I do every morning and within 15 mins the pain was back. I went online to look up the side effects of Levoxyl and found this site. Its great to know that I am not the only one out there with these side effects from this medication and am not going crazy! I made an apt with my Endo Dr today called and told her this med was making me sick. She made me have an apt with her assistant. I printed off this page to show her I wasn't alone. As of today I am off of Levoxyl. Thanks to the new Dr who FINALLY listened to me. I do not have to take any other form of this med either. Since I just had a nodule not hypothyroidism. Please Can anyone tell me what they went through from withdrawal from this medication? and anything that helped it go away? and How long did the "detox" from Levoxyl last?
-- By bailey99 | Reply | Private Message me
August 21th
2009
4:36 PM
About a week ago I was having a severe headache that had not subsided for about two days. I knew it wasn't a migraine because I had suffered with migraines before and the pain was not at all similar. The symptoms I was having were fatigue, severe weakness, and the two day headache. The doctors then ran the usual blood tests and ruled out my adrenals for the fatigue and weakness issues. Just as a side note, I also suffer from Depression and Anxiety so keep that in mind as I continue. The doctor decided to give me Reglan with Benadryl in my IV. Bad choice! About 20 minutes later I started to feel droggy and in an altered state of mind. I felt as if my body was heavy and my sense of tough was lessoned. Then the fun part came. Without my control my left arm would shot up straight in the air as if I was a 6 year old trying to get the attention of my teacher. It was horrible because I would feel a tingling sensation right before it would occur. So I started to time the sensation and hold my arm down, however, I almost hit my mother who was beside me. So just to recap, here I am sleepy, droggy, in another state of mind, and with my hand flinging in the air. I was not a happy camper. Did I mention this all toke place at 2-3 in the morning! The doctor just told me that the reaction was an adverse reaction that some patients get. Thanks Doc ;)! The only way to offset the Reglan is by administering more Benadryl. So if you are ever found in the position where you are having an adverse reaction to Reglan try some Benadryl. The next day when the rest of my panels came back I have hypothyroidism, which means that my body does not produce enough thyroid enzymes to support my thyroid function. Hypothyroidism causes depression, weight loss or gain, fatigue, weakness, and many more symptoms. Good Luck to everyone and stay off the Reglan not a fun trip to be on.....
-- By amandaduarte08 | Reply | Private Message me
August 20th
2009
4:22 PM
I have been reading all of your Simvastatin experiences with high interest and would like to share my adventures with all of you as well. My story began seven years ago when I was relatively healthy and enjoying life. My doctor prescribed Lipitor for my elevated cholesterol and two months later I found myself in the emergency room after having a severe bout with vertigo for the first time in my life. I have since spent the last seven years fighting this debilitating illness which continues to haunt me after having seen every top neurologist in my area and having taken every neurological test available. It would be as difficult to convince me that I was not somehow "poisoned" by Lipitor as it was for me to convince my doctor.
I was eventually prescribed Simvastatin 40MG and seemed to stabilize for a few years even though my dizziness problems persisted. Suddenly I began experiencing bouts of upset stomach and severe lower abdominal pain. I allowed my doctor to order basically every nasty test known to man in an effort to discover the cause of this new problem, but all have come up negative so far. Eventually I began to experience total exhaustion in the middle of my work day, not to mention the back, neck, and muscle pain that has been described so vividly in this forum. Basically, I have become a 53 year old man who feels much older, has absolutely no energy, and rarely has a day when I can honestly say I feel alive and well.
I am not a doctor and I can't honestly prove that Simvastatin is the cause of all of my problems. However, I do have common sense and after reading all of your thoughtful comments on the subject I would be foolish to at least not suspect that the drug may possibly be making me less healthy and not more healthy. Thank you all for opening my mind to this possibility and I certainly plan on discussing this with my doctor very soon, who may no longer by my doctor should he continue to insist that I take this nasty drug.
-- By dizzyguy | Reply | (10) replies | Private Message me
August 2th
2009
3:04 AM
I have taken Yasmin for a year and a half. Since then I have gained 25 pounds, developed thyroid disease, and am very moody! I have taken several different types of BC because I have periods that last for two weeks and are very painful. I have to get off of this pill to see what happens. I can lose the weight, but I will be on medicine the rest of my life for thyroid disease. I also have headaches almost everyday and I have cramps for two weeks out of every month!
-- By katbrax1012 | Reply | (1) replies | Private Message me
July 26th
2009
12:40 AM
I gained 50 pounds, had terrible acne, lost half my hair, severe lower back pain, developed hypothyroidism, depressed, suicide attempts.
I was a happy, thin, beautiful 27 year old when Mirena was inserted.
Don't let Mirena destroy your life like it did mine.
-- By davidandgoliath | Reply | Private Message me
July 25th
2009
10:13 PM
I am 45 and had the device inserted in June. Since then I have had an annoying constant red-brown discharge and my period three times. My menstrual cramps are definitely greatly lessened but what is freaking me out (apart from the discharge) is the anxiety I am experiencing for no reason. I am also feeling depressed. I am greatly concerned as being on the pill many years ago I had a mild stroke and my doctor assured me that the hormones ion the Mirena stay in the uterus. Why then the sudden anxiety attacks? I have always been a really laid-back person - I can only relate this sudden appearance of anxiety to the Mirena - it started about two weeks after I had it inserted.
I am now debating whether to ride it out - has anyone had the anxiety subside?
-- By katherineg2000 | Reply | (3) replies | Private Message me
July 15th
2009
9:02 PM
this is insane! I have been diagnosed with hypothyroidism and have been taking the synthroid for four years; starting at sixteen after gaining weight and losing energy- which probably resulted in teenage move- and introduction to alcohol and reefer for social acceptance. I noticed the synthroid helped with my sleepiness, but now im crying bc ive realized ive been slowly killing myself by doing what ive been told and keeping my mouth shut. I used to be more outgoing, and embraced my creativity when alone, now to find myself in a never ending cycle of anxiety, and depression triggered when solo and am def. more of a sociophobic hermit with drunk friends i see once every 2 weeks. I have noticed the hair loss, and have been getting progressively worse over the years and feel ancient. After reading this i am willing to sacrifice my energy for any extra feeling i can get out of this numb lifeless being ive digressed into to- i need to find a more natural solution for this hypothyroidism- any suggestions- we need a revolution on this, fuck synthroid!
-- By wormholeworthy | Reply | Private Message me
July 14th
2009
1:29 AM
I was prescribed Simva 30mg to replace Lipex which is no longer government funded 6 weeks ago. Since taking this medication I am waking up with tingling in my elbows and fingers blurry eyesight and what really worries me and no one seems to have mentioned is low body temp 34.2 and then a reading of 34.8 now averaging around 35.2
Please is anyone out there suffering from low body temp
-- By dallas01 | Reply | (5) replies | Private Message me
June 26th
2009
8:20 AM
ALSO, I'm 21 and take thyroid medication for hypothyroidism.
-- By asianette | Reply | Private Message me
June 24th
2009
5:37 PM
I am a 48 year old woman, 5'1" (now 145 pounds). I had Mirena inserted almost exactly 5 years ago, and am scheduled to have it removed in 2 weeks. I gained 25 pounds over the course of the last three years; prior to that, my maximum weight for my whole (non pregnant) life was 123 (I was at 120 when Mirena was inserted, four years after the birth of my second child). I have always been very healthy, never abnormal blood tests except during my two pregnancies was tested as pre-gestational diabetic and had to watch my carbs.
I never put it together with Mirena until just recently, when I started doing research on hypothyroidism after a friend told me that my symptoms could be due to that problem. Depression, hair loss, acne on my back, and the terrible weight gain. I went to see my G.P. who referred me for blood work. I hoped to see evidence of low thyroid function (actual TSH value, 3.12 -- I was told this is normal on a range of .4 to 4.5). I also discovered that I now have high cholesterol (269 triglycerides, 251 total cholesterol, 46 HDL, and 151 LDL). My fasting (14 hours) glucose # is 99 (I was told this is normal on a range of 65-99 mg/dL), and my vitamin D, 25-OH is 21 (also was told this is still normal but low on a range of 20-100 ng/mL). I tried to give blood six months ago, and was turned down because of anemia, so I've been eating a lot of spinach, greens, and more red meat than I normally would, so I was interested to see if I am still anemic -- the red blood cell count is 3.8 (told it was normal on a range of 3.8-5.1 mill/uL). I mention these specific results because although I was told they were normal (except for cholesterol), when I physically went to the doctor's office and requested a copy of the results and did some research online I see that my thyroid IS actually low-functioning -- according to guidelines revised six years ago, anything over 3.0 is considered hypothyroid and should be treated. Plus, isn't a fasting glucose of 99 pretty high? Yet my doctor's only suggestion: diet and exercise. Good grief, I've been on a diet since I had my first child, 13 years ago. True, I don't exercise regularly (I'm a teacher and mom of 2; I never seem to have the me time.) I guess I have an excuse to get a gym membership now.
Also, for the last year I've had increasing pain in my shoulder (I couldn't lay on my side, for example, and lately I can't reach behind me or over my head). An x-ray turned up mild bone degeneration, but not enough to cause the pain I've been having. I was referred to an orthopedist, who today diagnosed a shoulder rotator cuff injury (I've had no injury; he says it is a common degenerative complaint in the over-40 crowd). He gave me a cortisone injection and I'll be on PT for a while to see if the pain goes away. If not, I'll have to have an MRI and surgery to correct the tear.
I'm posting all of this in case it might be useful to someone out there who might be going through the same thing. I had a thyroid test done about six years ago at my OB/GYN, and it was normal then (though I don't have the number; I'll get it in 2 weeks at the OB/GYN). It will be interesting to learn whether my thyroid level has gone up since Mirena. Also, although my research suggests that the effects of these synthetic hormones do not wear off for some time, possibly even years, I will finally feel like there may be hope if my symptoms improve over the next few months when Mirena is gone. If so, I will share it with you.
If you are reading this, perhaps you have a similar story. I wish I had been more aggressive about checking out the possible causes of my many symptoms, but I let them go for years because, I guess, I just figured I'm a healthy woman who is no longer young. (Oh, one more thing: for the first year or even two years that I had Mirena, I had incredibly heavy periods. The blood flow was similar to that during the day or two after the vaginal births of my daughters. Don't know if that's significant, but it took a couple of years for my periods to get fairly normal on Mirena.)
-- By wishidknown | Reply | (3) replies | Private Message me
June 17th
2009
1:04 PM
Hello... I started taking Levothyroxine last July for slight hypothyroidism. I felt great for the first 6-7 months, but then in January the problems started for me. I was getting severe anxiety which the doctor said was stress and he also thought I was depressed. I knew I wasn't, but he put me on Ativan and Prozac. The week I took prozac was the worst week of my life. I thought the effects I had were from the prozac, but now I know now it was my thyroid spiking, which the doctor never checked my levels during this period. My heart rate doubled, I had insomnia, was gagging, sick, felt like my body was on speed and wanted to die. I was prescribed a beta blocker for my anxiety previously which I had never taken, but decided to take when my heart was racing, which helped me feel a bit better for the week, but I knew something was wrong. I had this happen again recently for about a week (and I was on nothing but levothyroxine). I know what anxiety is and I have never had anxiety or depression my whole life until these episodes that happen when taking this medication. By the time I went to the doctor to get labs done, I had been feeling a bit better and he said my levels were fine. I am now wondering if it's side effects from the meds or if it is spikes in my levels making me hyperthyroid instead. All I know is that I cannot live like this!! I have a 3 yr old and I need to be happy and healthy like I used to be before this medication... no more heart racing, racing thoughts, anxiety, and insomnia. Please help!!
-- By jlucas | Reply | (2) replies | Private Message me
June 16th
2009
9:08 AM
I had the Mirena inserted right after I had my baby in Sept 2008. I have not had a period since then. Which is a curse and a blessing in itself. I have had terrible migraines at least once a week since then. I have no sex drive at all! I am tired all the time and cannot get enough rest. I work full time and have a small child, I cannot afford to feel this tired. I also have developed acne all over my forehead and chin. I am 27 years old. I didn't even have this when I was in high school. This is ridiculous. I had a thyroidectomy four years ago when I had half of my thyroid removed and have been fine since then until now. I really feel the Mirena has slowed by thyroid down because I have many of the symptoms of hypothyroidism.
-- By kakeysmom | Reply | Private Message me
June 15th
2009
6:28 PM
Just want to survey everyone and ask for responses for the following 3 questions:
1. how long did you keep your Mirena and if you no longer have it, why did you have it removed?
2. how many of you had your thyroid checked? who's came back abnormal? what were the levels?
(I'm a medical student doing research on this one since I believe the levonorgestrel affects our thyroid hormone. My TSH was elevated to 5.2 which is considered "subclinical HYPOthyroidism". This was mid cycle when my natural progesterone AND synthetic progestin were cumulatively high. When I had it rechecked 6 weeks later (around my period when any natural progesterone level is gone) it was normalized at 1.5. So I think that the P+P screws up our thyroid and can throw us into a high TSH and "hypothyroid state". The opposite effect may be true during menstruation and we can become HYPERthyroid for a few days... hence the really bad anxiety?!)
3. where is everyone from? perhaps we can have support group meetings?
-- By ameigh | Reply | (11) replies | Private Message me
June 12th
2009
3:56 PM
I'm fed up. About 4 years ago I had a complete thyroidectomy and OMG my life has been a mess ever since, Yes, I needed the gland removed (it was a goiter pressing on my air way and esophagus), it needed to come out but OMG what a nightmare. Synthroid is a drug I can't figure out. I am convinced that this has ruined my life. I have developed chronic/non-stop head pain and pressure. My B.P. has gone up and now I'm on B.P. medicine. (still have severe head pain). It just never leaves me. E.R. visits/hospital stays and on and on. They treat me like I'm a complete lunatic because they can't seem to find anything organically wrong with me. Ummm-it hurts(my head). I am starting with a new Doctor who is a D.O. rather than an M.D. and I am praying that he finds what the **** is causing my pain. I feel like crap. The T.S.H. is in normal range but I have learned that the T.S.H. is not everything (even though my thyroid is gone). The isiots for lack od better description, are just too lazy to go the extra minute to find out what is wrong here. I just want to be able to function and this head pain will not let me do that. It is a nightmare and I have nothing but sympathy and empathy for anyone who suffers with pain on a daily basis.
The only constant is the Synthroid. Maybe I can't take this stuff. It has to be that my body just can't tolerate it and need something else or T3 added (I don't know). I just pray that this new doc can figure it out because I feel so helpless with this. My pain is always there squeezing and pressing. It is horrible. Maybe Synthroid is the culprit. Good luck to everyone.
-- By levels | Reply | (3) replies | Private Message me
June 1th
2009
5:20 PM
Does anyone have any thoughts on after stopping the nuvaring. I was only on it for 2 months but the extreme moods and depression made me stop and never look back. Its been 6 months since I stopped, I have not used any birth control since. My hair started falling out when I was on it, but it never stopped and is now getting worse. I am not feeling well and seem to have all the symptoms of hypothyroidism, I just had a blood test today and am waiting on the results. I am 25 yrs old and otherwise healthy besides this. I feel like all my symptoms, physical and emotional started with the nuvaring, I am wondering if anyone else has developed hypothyroidism after being on and stopping the nuvaring???
-- By chrissys78 | Reply | (3) replies | Private Message me
May 27th
2009
6:19 AM
my daughter received her first shot in August of 08. Within 2 weeks she had a terrible bout of thyroiditis which translates into hypothyroidism;very tired and fatigued. A few months after that severe dizzy spells, racing heart and seeing stars in the middle of the night. Then migraine like headaches. Now chronic nausea and tingling and pain in her chest, shoulder and arm. Recently diagnosed with Parsonage-Turner syndrome which produces neurological impairment from "viral infection". The impairment is supposed to improve over time. She has had a hellish year. How is it that a 19 y0 girl who was healthy and a runner has turned into what doctors now think is a hypochondriac?
-- By dmr | Reply | (1) replies | Private Message me
May 11th
2009
6:13 PM
I was on the Depo Lupron for 4 months. I had all the typical side effects; hot flashes, acne, night sweats, and weight gain. All which I was told by my Doctor that are all normal.... I asked if there were any other major side effects and he said some, but with a very low occurrence and left it at that. Well, I started gaining more weight... I put on 15 pounds in less then a month. I had a lump on the side of my throat and couldn't figure out why I was so tired all the time, why my hair was falling out, and why my skin was so dry. I went online and read a little more about the drug and it's side effects. Yep, right there it said it was known to cause thyroid problems. So now I have to live with hypothyroidism, something that is manageable, but will never go away. All because this drug. I say if you don't need to take it, DON"T!
-- By nanny75 | Reply | Private Message me
March 16th
2009
12:28 PM
I have only been on Synthroid for 2 months, but my appetite is out of control. I read that gaining weight might be a side effect of Synthroid. You would think that you would lose weight with it since it makes your thyroid run more efficiently. My TSH is 4.3, still normal, so I don't guess I really need it yet. I am going off of it and going to the health food store and take Thyroid support.
-- By lyndy27 | Reply | (2) replies | Private Message me
Synthroid (55) Levoxyl (25) Mirena (19) Yasmin (19) Levothyroxine Sodium (5) Lisinopril (5) Lipitor (5) Toprol-XL (5) PredniSONE (5) Loestrin 24 Fe (4) Euthyrox (4) NuvaRing (4) Zocor (3) Singulair (3) 5-Aminosalicylic Acid (3) Levaquin (3) Lupron (3) Simvastatin (3) Eltroxin (2) Gardasil (2) Zoloft (1) Thyrox (1) Lithium Carbonate (1) Kenalog (1) Armour Thyroid (1) Vytorin (1) Fluorescein (1) Effexor (1) Femcon FE (1) Tri-Sprintec (1) Reglan (1) Wellbutrin (1) Warfarin Sodium (1)
November 2th
2009
7:08 AM
Reading this has been really comforting. I am extremely sensitive to medication. I went in to see my doctor and even though my blood tests were normal, he believed I had hypothyroidism and put me on 25 mcg of the generic version of Synthroid. In the first 5 days I developed feelings of "dread" and I was afraid to go to sleep at night. Right afterward I got hit with some really stressful stuff and I went into full anxiety attacks (something I hadn't experienced in 15 years). Now, after about a week I'm a little better than I was before but I still cannot eat much and scary thoughts race through my mind...I also feel detached from everyone, like I'm in a bubble or something. I emailed a therapist yesterday, but now that I know the synthroid is probably still in my system, I feel a lot better. Thanks to everyone for sharing.
-- By odie | Reply | Private Message me