Hysterectomy symptoms and conditions

I was given lupron depot 5 years ago (2004) for endometriosis & adenomyosis . I researched the side effects and upon learning them I didn't want to take the shot. I suffer from multiple back problems, and the bone loss scared me. I voiced my concerns with my doctor at that time. He told me he knew better (he didn't want to perform a hysterectomy) and that he was giving me the shot. It has been a nightmare since. The side effects were terrible, the worst was the severe mood swings. Lupron depot changed who I was. I no longer was the happy carefree person I was. I was constantly angry and because of this drug I developed high blood pressure. This has not improved in 5 years. (I also gained weight from the shot and it took me 4 years after the last shot to finally lose all that weight.) I do not recommend any woman to take this shot. Do not let your doctor talk you or bully you into it. They only care about the money not you!!!!!!!

ive been on mirena since march 2008. at first i thought this was the best birth control product out there. however for over two years i have been riddled with allergies, sinus infections, upper respiratory tract infections, tiredness, headaches, joint pains, muscle aches, gastric and bowel problems, cyst like acne, mood swings tachycardia (rapid heart rate), anxiety. at first i thought all these were related to getting older (im 29) and work related stress so i wrote it off. but being a person who has never been sick in my life to all of a sudden being sick once a month is crazy. this has been the only thing i could think of that i could think the problem is. i hate to remove the iud because it is so convenient but i am sick of being sick. the doctors dont tell you of the not so obvious side effects like these. i just hope that no permanent damage has occurred.

It is amazing to read about all of the side effects of Mirena and yet it can still be on the market. I don't understand.
I have all of these side effects. I had it inserted in April and am now getting it removed. However - went to have it removed and they can't find it (as they cut the strings to close) so I have to go back in for an Ultrasound so they can remove it??? GRRRRR!!! I have to wait until next Tuesday to get it removed.
I have put on 15 lbs in 3 months (I eat healthy and exercise daily), my back is killing me, my breasts are the size of watermelons.
I am so angry and movited to get this device taken off the market. I can't wait to get my life back. If you are considering it DO NOT DO IT!!!!!!!

I had Mirena put in January of this year, I am 49 years old. I did not need it for birth control as my tubes are tied. I was having very bad perimenopausal symptoms so my doctor suggested I try it for the hormones. I was still having heavy periods 8 months later. A little over two weeks ago I had a complete hysterectomy so obviously the Mirena is gone! I was and am having HORRIBLE joint pain as others have posted. I feel like I am 100 years old some days, my legs and shoulders and hips hurt the most. I read that the Mirena hormones are contained in a steroid reservoir, whatever that means,does anybody know? I have been on steroids before and this is exactly the same reaction I had, hip and joint pain so bad they had to take me off. Well anyways, I am glad it is out of my body but my question to anyone is, once you had it removed, how long did it take for the joint pain to subside????

I got my Mirena o June 18th, 2009. It is now November 17th and I have an appointment to have it removed this Friday. It started with unexplained hives and rashes constantly. The bottom of my feet, my palms, my knees, upper arms, throat and stomach. I was on constant high doses of Prednisone and anytime I started lowering my doses, the hives returned. I went to the ER three times for swelling and hives so bad I could barely see and could barely breathe. seemingly caused by NSAIDS, which I had never had a problem with before.Next was severe lower abdominal pain accompanied by groin pain so bad I could barely walk. Friends said it sounded like cysts, but, when I had an internal ultrasound done, nothing was found. After that I had severe breast pain and swelling. The final straw was the constant all over muscle aches and joint pain in my knees. I feel like I am 100 years old! I am tired all the time no matter how much sleep I get. I went to a dermatologist and I mentioned the Mirena, as I had to my OB, his response was "middle age". I thought I at first has Lupus, but, the rash did not fit that description. I changed detergents, blamed it on a foster dog, anything I could think of. Finally after reading so many posts and finally finding a connection with the rashes and hives, it can be nothing other than the Mirena. I even noticed that this device had the second most posts on this site. I can not wait to have the Mirena removed.

I have been on fosamax for about three months. All of a sudden I noticed my hair falling out. I had very thick curly hair, and now I fear that it will all go away. I am in a state of panic right now. I am wondering how much hair will I be left with, and will it ever grow back? Can anyone tell me ?
I have stopped the fosamax a week ago, and will never take it again no matter what my doctor says. He is blaming the hair loss on hormones. But I have not had hormones for years. I am 57, had a hysterectomy at 28, took premarin for years, and stopped about 8 years ago. I have also been having pain in my shoulder which now that I read about other people having shoulder pain. could also be from the fosamax. Please tel me what to do about my hair loss! Will it grow back?

I have had two shots of Lupron, as a result I've gained almost 30lbs, had very bad joint pains and little hot flashes. I also experienced hair loss and became moody at times. However, my doctor did warn me that I would gain weight as a result of the shot and that I may experience hot flashes. December 2009 will make one year since my first shot the second shot was in April and I"m just beginning to feel normal again. It is now November 2009

I am so glad I am not crazy and all alone. I've had my Mirena since January for perimenopause and was still getting my period every month until this month. No I have such cramping, joint pain I can barely walk and my lower back is killing me. I am scheduled for a hysterectomy this Wednesday, I CAN'T WAIT, I'll be done forever.

I had my Mirena inserted yesterday afternoon during a hysteroscopy. The procedure went fine, and other than some cramping (and bleeding - which I knew would happen), last night I was feeling fine.

I woke up this morning with the absolute worst migraine headache I have ever experienced. I believe the nausea and dry heaving I've been experiencing all day are from this huge headache. So far, I am not impressed with Mirena - I wish I had found this website prior to my surgery. Although I'm not entirely sure at this point whether my migraine is due to the Mirena, or the anesthesia from my surgery. My doctor was VERY high on Mirena, and basically talked me into it. I went to her with the intention of having a robotic-assist hysterectomy. I have three children (and don't want any more), and have severely heavy periods - I get anemic every month. She seemed to indicate that she'd like me to try the Mirena first, and if it doesn't work out, then the hysterectomy. With three small kids, I don't think I can withstand the months and months of side affects that I have read on this site.

HEADACHES,NAUSEA,MAJOR HAIR LOSS,EXTREMELY DRY SKIN,GALLBLADDER REMOVAL,FULL HYSTERECTOMY,PANIC ATTACKS,MOOD SWINGS,STOMACH/DIGESTIVE PROBLEMS,PARANOIA,NEAR LOSS OF JOB,PROBABLE LOSS OF MARRIAGE,MONETARILY DEPLETED,SHORTNESS OF BREATH,HEART PALPITATIONS,VISION TROUBLE,CHILDREN TRAUMATIZED,LOSS OF ENERGY,NEED FOR THERAPY,CURRENTLY USING THE CLYMARA HORMONE PATCH. I WAS ON THIS YASMIN DRUG FOR ALMOST FIVE YEARS, AND SYMPTOMS STARTED ABOUT 2 MONTHS AFTER I STARTED ON YASMIN. I WAS PUT ON YASMIN TO KEEP OVARIAN CYCSTS FROM BURSTING. I FINALLY TOOK MYSELF OFF OF IT DUE TO WHAT FELT LIKE A MINY STROKE AMONG SOME OF THE OTHER SIDE AFFECTS. I HAVE NOT BEEN ABLE TO FIND MYSELF FOR 5 YEARS, I DON'T EVEN KNOW THIS PERSON INSIDE ME. DOES ANY ONE KNOW IF CLYMARA IS OKAY TO BE USING W/WHAT YASMIN HAS DONE TO ME? IS THERE A CASE # NUMBER FOR ANY CLASS ACTION SUIT OUT THERE?

My story is long and somewhat depressing. I have had horrible periods my entire life. I have tried birth control pills which caused migraines. I have tried birth control shots which caused 6 months of non-stop bleeding and endometriosis. Finally, I am told that I should try Mirena. I was hoping this would be the answer but it has been just another problem. I have had cysts every single month since insertion. The cyst always develops on the side that is ovulating and then ruptures a couple of days before the period begins (yes I still have periods). Sometimes cysts develop between ovulation and rupture quickly as well. Then the first couple of days of the period are hell because of horrible cramping pain. Yes, the bleeding during the period is lighter, but the periods are lasting anywhere from 9 to 12 days. I have been on prescription pain medication for this now for 6 months. I have no sex life because the pain is there every day. My hair is falling out and I am on the verge of tears all the time. I can not continue like this and have an appointment set up for later this month to beg the doctor to perform an ablation or simply give me the hysterectomy that I have been asking for over the last 15 years. My children are grown and I have no plans to have any more. Why do I need to endure this hell?

OK - I had the Mirena implanted because I have polyps - Bleed very heavily when they burst. Cramping Pretty severe, and Cysts. This was an alternative to a Hysterectomy. I would preferred the Hysto. But my HB isn't in control so they won't do that. So Now, My bleeding has gotten heavier, Cramps and Discharge are Worse, NO sex drive, Moodiness, Angry at the drop of a hat, Cry all the time, Could care less about most things, really starting to effect my Marriage. Do you think all the bleeding effects the HB?
How do I go about getting it out? Will insurance cover that?

Just needn' ta vent! Thanks

Well this is my second go around with Lupron. In 2004 I was on it for 7 months for the treatment of Fibroids, at the time I was 25 and I was told the only other choice was a hysterectomy. Well my doctor at the time said the side effects would not be bad and so did not give me anything for the mood swings and hot flashes. This almost caused a divorce, I guess I was pretty bad! Well it did the job, but I did gain 30lbs. Five years later, I was diagnosed with endometriosis. I was informed that I needed another go of Lupron. Well in those 5 years I had lost 100lbs and was feeling good. I started the Lupron in Feb. of 2009 and have gained almost half of that weight back and still no period. I have not had any children and it is looking like the next step for me is a hysterectomy. My depression that I thought I had under control worsened considerably and now am on 2 different depression medications. The only positive thing I would have to say is that the pain is gone for now and this time they gave me something for hotflashes and mood swings.

mirena has done wonders for me. i have no complaints. i got mirena in Feb. 08. so about a year and a half ago. i got it because i had the most unbearable periods where they had me on narcotics and it was completely ruining my life to the point where they wanted me to have a hysterectomy at the age of 20. when i got it implanted, i had severe pain or about 2 days, but since then:

-i have not had a period...
-i get occasional cramps once a month around when i would be having my period, but they are no where near as painful as they used to be...
-my boobs have grown a little...
-i haven't gained much weight, expect for the weight that i had lost on all my medication before...
-and i still have just as much sex as i used to...

all in all, mirena literally saved my life.

Funny, I've been on Lisinopril for 4 yrs. & just noticed the tip of my tongue felt numb & with a weird taste. I thought it was from the Hysterectomy I had ungone a month ago. Nope it's due to the Lisinopril. So is the depression. WOW, I think it may be time to change BP Meds.

I had my Mirena inserted 15 months ago. The gynecologist felt that it will keep polyps away (as I just had one removed that was border case) instead of a hysterectomy.
I started to put weight on, my hair was always oily, I got palpitations,hot flushes,anxiety,depression,join pains and loss of concentration..
Worse of all is that my blood pressure went mad. Despite two very strong blood control tablets I could not get it down. I got pains in the side of my face and thought I was having a stroke.
I mentioned this to my physician who thought I was crazy as I was on such strong medication. mes cape town
After I was rejected twice by the gym I went to another doctor who agreed with me that this was all caused by the Mirena. I told him to remove it immediately and it was the best thing I could have done!
I just want to warn ladies to first investigate the product before having it inserted.

Does anyone here ever had any tingling issues? I had total thyroidectomy in Feb. 2009. Felt good the first month or two and have gone down from there! Some days are good, some are bad. Never know from day to day how Im going to feel! I started out for about a month and a 1/2 on 125 levothyroxin.....then my doc lowered it to 100.......as of July 14th, Im now taking .88. The tingling Im getting is all over my body, different places, here and there. Ive had some heart rate issues for a couple of months now too and finally had my regular doc send to me see a heart doctor.
Thought maybe the tingling could be from low calcium.....it was normal, CBC was normal, ECHO was normal.....waiting on the holter test results right now. The heart doc gave me a prescription for Toprol. I told him I wasn't going to take it cuz sometimes my heart feels like its barely beating and Im afraid it will make it worse. Im glad I didn't get it! Ive read of too many side effects.
Palpitations, kinda fast heart beat with pounding.....sometimes it feels likes its barely beating! Most of this occurs when first laying down......every now and then while sitting, etc. I do not exercise.....and should but just don't find the time. I switched jobs around the time I found out I had several nodes on each side of my thyroid. I was getting tired a lot and just thought i worked too much. I went from a physical job to a sit down, 12 hour, graveyard shift. Since the surgery, Ive felt it more. Im tired of feeling like crap all the time......I was already going thru some perimenopause stuff before all of this! Before I ever found out about my thyroid, I did have real light pounding of heart when laying down and tingling every blue moon, but very mild as well.
Now with no thyroid.......and medicines with all the side effects......IM GOING NUTS!!! Right now the moodiness and tingling are whats bothering me the most. Some days Im really tired, others Im ok. My body gets hot off and on, no fever. The past 3 days my calves, feet, and ankles have started to swell........never before! Plus I get some throbs and pains in my legs and arms and under my arms here and there. I probably need a new doc and I change of medicine......but Im afraid.
For one, Ive decided to go back to a physical job........and hopefully it wont screw with my heart rate even more. Ive read up on tingling........Im guessing maybe its from all the damn stress since my calcium was normal. Does anyone here have any suggestions?????

I've had the Mirena since Aug. 2006 - three years now. I considered having it removed because of intense irritability, depression, suicidal thoughts, and lack of interest in sex the past 5 months. I went to my doctor's office this morning to have it removed, but kept an open mind to alternatives. I'm 39 years old, and the doctor indicated that at my age, some of these issues are normal. I found a list of Menopause side effects, and many are similar to Mirena's side effects! At any rate, I asked if there is a way to offset these side effects so that I can keep the Mirena. She gave me an estrogen patch called "Vivelle", and I'm hoping that will help. Has anyone else tried estrogen therapy to offset Mirena's side effects? I still have the Mirena and will follow up in a few weeks.

This is my less than 24 hour update from yesterday since I had my Mirena removed. I had my yearly appt. yesterday and explained to my dr. all the problems I've been having over the last year. I thought he would try to talk me out of having it removed but he was very sympathetic and removed it without question. So, I'm definitely relieved about having it out. I'm sure it will be a while before I will be able to notice any changes that I can directly relate to the Mirena coming out. But, I can tell you that my husband and I can already tell the difference during intercourse without the Mirena. It is so much more comfortable so, we are very excited about that! I requested Yaz for birth control since I've been on it before and never had these emotional issues while on it. He also gave me a brochure and DVD on the Essure which is the in-office permanent sterilization procedure. So, I'll be doing research on that to see if that will be a good thing for me to do.
Another thing, too, during my gyno exam, he found a lump in my left breast. I have never had any problems and definitely no history of any kind of cysts. I'm not blaming the Mirena but all of this is just way too coincidental. Now at 35, I'll be having a mammogram and ultrasound to determine what this lump is. I'm just praying hard that it won't be anything and definitely trying to stay positive. I'm just very relieved to have the Mirena out and I will stay posted as to any additional changes in the future.

I was given this shot by an idiot of a Dr who told me that it was "for inflammation". He never told me it was a steroid and even though I asked repeatedly about side effects, I was brushed off with "if you don't have a reaction within 15 minutes, I would not have any". I wish I had trusted my gut instinct and never let him do it. I have only been on it a week so it hasn't dented YET, but I have mood swings, irritability, insomnia, jitteriness, dry mouth, racing heartbeat, and though I am eating only 1200 calories a day, I am already gaining weight. Does anybody know if there is a way to get this out of your system faster? I had a hysterectomy so I do not have the bleeding issues.

Wow. I had Mirena insertedin March 2009, following two years of horrible periods following my third c-section. I would have a heavy period for an average of 10 days, then get two weeks off and start again. They originally tried giving me Depo Provera - BAD! I was losing blood clots the size of my fist for three months!

At first Mirena seemed ideal, though I don't need birth control - I had a tubal ligation with my c-section. The periods were just awful! They inserted the mirena during a D&C and hysteroscopy because I also had uterine polyps. My hair is falling out (my thyroid has been checked, thank you);I have acne on my face and back; I am growing hair on my face; I am irritable; my back hurts; I am bloated; I am gaining weight even though I am on a reduced calorie diet, gave up drinking wine AND run two miles a day; I have yeast infections; sex hurts and I bleed nearly every time I have sex; I have a low sex drive now; I bleed when I exercise or go for a walk; I have ruined every pair of panties I own, and I am still having 14 day long periods. No longer heavy periods, but 14 days of bleeding, then nine days off before starting again!

I had a doctor's appointment yesterday and told him all of this: his responses were that the spotting and irregular periods are likely for the FIRST YEAR (WHICH IS NOT IN THE FINE PRINT INCLUDED WITH THE MEDICATION!!!) and that doctors can't find or treat the cause of heavy periods and bleeding, only treat the symptoms.

We need to band together to demand that women's health issues are taken seriously. It is not acceptable to have a doctor say that the cause of these problems doesn't matter. Treating the cause should be the primary goal, not peddling drugs or covering up symptoms! The New York Times ran an article yesterday recommending Mirena as a solution to heavy bleeding in women! This is not a solution. And neither is a hysterectomy - I am only 31.

Hi. I just had a laproscopy done 3 weeks ago for endometriosis. I am 26 yrs old and have been dealing with this pain for almost 2 yrs now and it is the worst pain in my entire life. My doctor is now suggesting Lupron because even after the laproscopy the endometriosis was level 4 and had bonded to my intestines and literally trapped my ovaries and uterus against the lining of my stomach. The pain was a 15 to say the least and the past 3 mos it had landed me in the E.R. Finally the docs figured it out. I started my period 2 weeks after the surgery and the pain was still pretty bad. An 8. Now I am seriously considering Lupron. My health is on the line and this pain is not right. At this point I am considering a hysterectomy if Lupron does not work. Any help suggestions please? Monday I follow up with the Dr.

Update:- Went to see Gyno today for the results of VScan..... Lining 2.03cm thick and of rough texture....also "pollup or fibroid" is present he asked about the Mirena I said no didn't want it.....He booked me in for a D&C, Hystoscope within the next 30 days.... he still insists on putting a mirena in after D&C etc until I can get a Vaginal Hystorectomy which he said he will do ..... he wants to make sure that there is nothing cancerous with the lining etc, before he did the Hystorectomy on me......

Waiting game for me......... to see what will eventuate......

I was diagnosed with ILC August 2007. I had bilateral mastectomy w/ reconstruction, chemo and started Tamoxifen. Then I had a hysterectomy and I started Aromasin about six months ago. Prior to starting Aromasin I had some muscle and joint pain from Tamoxifen but I could tolerate most days. Three months into Aromasin, I couldn't get out of my car. It literally took me 15 minutes one day and I had to trade cars with my daughter. Naproxen gave me upset stomach, ibuprofen wasn't enough, Tylenol wasn't enough, Hydrocodone kinda helped but makes you feel weird. My doctor decided to take me off of it and i haven't taken anything since. My side effects were: extreme stiffness, better with motion but joint pain was so bad i didn't want to move. I have been documented as having overall generalized weakness as a result. My doctor said Aromasin shouldn't make me feel this way but why is it doing this to everyone else (mostly) too? I am now being evaluated by a rheumatologist for arthritis. My joints still hurt so bad. I gained weight, cant concentrate, can't sleep, can't wear my shoes. my ankles hurt the worst after being on my feet. My ankles, knee joints, hip joints, neck, elbows, wrists, fingers, toes and jaw are all very painful now.
If i would have known all of this, i never would have had my hysterectomy and stayed on Tamoxifen. I can only hope at some point this will get better. I just pray the cancer doesn't come back in the meantime.

im currently on my fourth month of treatment with lupron and would like to know if anyone that had fertility problems was able to conceive after a course of lupron...? im 32 and have 2 beautiful children, but would like one more before i undergo a hysterectomy...i have been diagnosed with endometriosis, adenomyosis and severe pelvic adhesion's. i was in so much pain that it was ruining my life...the lupron has been pretty great this time around...six years ago i did it without any add-back therapy, but this time im taking progesterone along with it and the side affects have been minimal...still have mood swings and a decreased sex drive, but no hot flashes or night sweats. its definitely worth the pain relief...for me anyways.