Immune system attacks symptoms and conditions

I have been on prednisone continuously now for 15 years. I was put on it in March of 1995 for a lung condition called chronic eosinophilic pneumonia. I was 122 pounds when I first started prednisone. Now 15 years later I am 197 pounds. I am 35 years old with osteoporosis. I have dealt with depression, terrible headaches, stomach ulcers, hormonal imbalance, hair loss, swollen feet and ankles, I now wear glasses when I didn't before, I have thin skin now that looks older than my 35 years, I deal with night sweats, and in the summer out in the heat my very round moon face turns red as a beet. But, no one can get me off the prednisone. I have seen many specialists, and within 1-2 days of starting to wean past 10mg I get so sick I have to be hospitalized, I literally can't breathe or live without it. I hate this stuff and what its done to me, but I have no choice but to take it or I will die. Doctors have tried alternate medications, nothing but prednisone works. If there is ANYONE who has had to be on it as long as I have or have had success in getting off it after being on it for so long, I would love to hear from you.

I have been taking prednisone for five year for sarcoidosis,an autoimmune disease that targets first your lungs and then your immune system attacks any and can attack all muscles of the body. It left me with scaretissues in my lung.started with 70mg. down now to 20 and have been down to 5. every time i think i can come off my breathing gets worse but i think the medication also causes shortness of breath. i have lost vision in one eye ,no central vision since this med.break out in rashes.feels like iam disconnected mentally and phycially eye floaters in the other eye weight gain of about 50 pounds that will not move and i don't eat hardly anything.nervousness,moodswings and let me not forget the hypertension that i never had until this med. Now iam taking meds to doctor the problems the p rednisone created. CANNOT WIN FOR LOSING!!!!!!!!!!!!!