September 21th
2009
4:53 PM
I was about 1 month in to my 3 month cycle of taking doxycycline for blepharitis issues when I started having symptoms. It started on a friday night with extreme indigestion. There was a lot of pain in my chest and also into my arm. I was belching and very uncomfortable. Next day I woke up and only had the pain in my arm, belching and pain in my left abdomen under my rib cage.
I thought it was just really bad indigestion from something I ate so I continued with the medicine. Within a few days time I deteriorated more and more. The pain in my abdomen had spread from just being on the left to being left, center and right. I also got random pains all over my body it seemed. This seemed to come and go throughout the day. My vision would blur, I had extreme anxiety and also depression, my arm remained weak and then my legs got weak as well. The fatigue was overwhelming. I'm usually an insomniac who struggles to fall asleep by 1:30. I began to struggle to stay awake until 11. The lymph node in my neck also enlarged, and I began to experience a loss of appetite. I have currently lost 5 pounds in one week. I also always feel dehydrated and in a fog. I went to an urgent care clinic and the doctor really just thought I was crazy from what I could tell.
I stopped taking doxycycline about 5 days ago and the fatigue is slowly letting go(very slowly). The blurred vision has cleared up a bit but still comes and goes. My mood is still very down and I can't help to still feel anxious and can't stop wondering if I have some deadly disease process going on. The heartburn and abdomen pains are also subsiding slowly(I feel a little better each day).
I'm glad I found this website. It's helped me not freak out as much about my symptoms(although I still have my moments). Since I started feeling bad I've convinced myself that I have heart attack symptoms, pulmonary embolism symptoms, symptoms of AIDS and symptoms of lymphoma. It's still hard to not feel like doomsday is upon me but reading that many of you have had similar feelings and side effects makes me feel a little better.
I just hope this clears up soon because I think as long as I feel pain, tired or anything off I will be anxious about it. I have fear of ending up on Mystery Diagnosis lol.
-- By kelce | Reply | (2) replies | Private Message me
August 26th
2009
8:19 PM
I was started on Bactrim 7 days ago. The first two days I felt fine, but the 3rd night I got cold...very cold and could not stop shaking for about two hours. My heart was racing and I was nauseated and couldn't focus. This went on for about 8 hours before going to the ER. Upon arrival I had elevated BP and pulse, but after a couple of hours it went down to normal. I saw a new doctor who said it sounded like I had a hypoglycemic attack!! I never had one of those before!! So, I'm figuring I'm getting sicker and maybe it is not from the Bactrim so I take it again and last night was another horrible night!! Racing heart, confusion, and urinating every 30 minutes. Thinking maybe I'm having another attack I get up and eat some applesauce and my husband gives me some sweet tea. I promptly threw up a few times and then we went to the computer to look for ourselves the side effects of this drug. Guess what? It causes hypoglycemia, racing heart, confusion and does something to your kidneys and makes you urinate too much and could be very dangerous!! That was it for me!! I didn't sleep the rest of the night but slept on and off during the day and felt like myself today for the first time since taking the drug. I don't know if it has done any permanent damage, but I will let everyone I know about this awful awful drug!!
-- By grandmotherof3 | Reply | (1) replies | Private Message me
June 29th
2009
4:42 PM
Worst night of my life--woke up feeling filled with anxiety, insomnia, had to get up repeatedly to urinate, felt very agitated, though I felt very peaceful & relaxed at bedtime, feet were swollen so badly I couldn't put on my shoes. I took 10 mg of Benadryl, which did not change how I felt. My internist took me off the Singulair immediately, when I contacted him the next morning.
Despite being on an antidepressant which was recently increased, very recently I felt sad, anxious, and was crying all the time, felt irritable, and was chronically tired. I took 400mg of gabapentin (Neurontin), prescribed for nerve pain, numbness, tingling in both hands & feet at 9 p.m. Just before bedtime at 10:00 I'd take 10 mg Singulair. 1-2 hours later I was wide awake, sometimes not sleeping for hours or at all, even after taking 1-2 Benadryl, without the dyes.
Over the past two years I've had eczema, for which I saw 2 different dermatologists and an infectious disease specialist. Eczema was so bad, I couldn't sleep at night. I consulted with every imaginable doctor, including the allergist who prescribed Singulair & was told it couldn't be the Singulair because Singluair was FOR ALLERGIES. Was diagnosed with fibromyalgia by a neurologist, recently had a repeat of an MRI because I couldn't walk the pain was so bad. My neurologist was unable to find any reason I had pain & difficulty walking, after reviewing the results of the MRI.
I've seen my internist for heart palpitations. When I reported urinary frequency, he had me get a cystocopy (negative) because I had hematuria, blood in my urine, and I had weight loss.
I still have many of the side effects, like the numbness & tingling in my feet and hands, however, I am able to sleep through the night and did so immediately after going off the Singulair. A lot of the fibromyalgia pain I was having has subsided, depression, anxiety has subsided as well.
-- By kaydea | Reply | (1) replies | Private Message me
November 2th
2008
2:33 PM
As a fairly healthy 34 year old male, I went to my doctor for help getting over poison ivy mid-July 2008. I received the Kenalog 40 injection without being advised on any potential side effects. Within 36 hours I started having severe anxiety attacks with spikes in my blood pressure and vision problems (spotty, increased sensitivity to light). These attacks continued for 4-8 weeks during which time I underwent an MRI (head), stress test, and blood work to make sure nothing else was causing my symptoms.....conclusion: everything normal. My doctor prescribed me Xanax to help with the out of control anxiety. Started feeling more normal 60-90 days later. I started trying to run on my treadmill to get back in shape at the 90 day mark, and once again....symptoms returned. It's been a couple of weeks and I'm getting closer to being back to "normal", but I have no idea how long it will be before the Kenalog has completely metabolized out of my system, and I can get on with life. This has been a horrible experience and I would caution anyone from receiving this drug!
-- By rake_g | Reply | (2) replies | Private Message me
October 6th
2008
6:24 PM
Hello everyone! I just want to thank each and every one of you for your postings. On more than one occasion I would come to this site because without all of you I probably would have truly lost my mind. I just want to give a brief history of what's been going on with me because if it can help one other person then it's all worth it. In 2005, I go vaccinated for chickenpox, I work in health care, never had them, and wanted to start having children since I'm 36. A month after the vaccine I broke out in a horrific rash ALL OVER and had it until April of 2008. I went to the hospital where I had the vaccine, 5 dermatologists, 3 Infectious Disease, various medical doctors and no one knew what it was. This April, I was admitted to the hospital with Autoimmune Hemolytic Anemia. After 3 hematologists, the last one feels the vaccine threw my immune system into a tizzy. I started with 60mg of Prednisone and eventually got down to 2.5mg. The hemolysis(body produces antibodies that attacks it own body) started again so I went to a new Hematologist and was put back up to 30mg and just got put down to 10mg today. Right now my biggest concern is the hair loss. I use to have such thick hair and now I cry almost daily because I loose so much. I am going to try the Ensure like someone posted just to see if that helps. I drink protein shakes, take Silica, multivitamins (Solgar) that have biotin, and going to try Nioxin shampoo. I have terrible mood swings and now I feel like I am going through withdrawal. It's almost like I want to take more just to feel better. I know that sounds crazy. The big fat moon face, my joints feel like they pop out, confused easily, can't sleep, and just can't really leave my house and live a normal life since April. I HATE IT!!! The only thing that helps me feel better when the daily prednisone "kicks in" is walking and exercising. I feel so bad for everyone this drug is just awful. I get angry because not one person told me what life was going to be like on prednisone. I think that is just mean. That's why these postings are so important. I know this is entirely to long but I feel so much better getting my story out there. Did everyone's hair eventually grow back. I don't know if I will have any left next month. Thank you all so much.
GG
May 16th
2008
7:31 PM
It saddens me to read all the horrible effects this drug has caused. My husband took Levaquin back in August 2007and after 2 days starting have aching muscles, joints, drenching night sweats, high fever, rash. He took this poison drug for days(for a swollen lymph node in groin) and the side effects would not go away. He too was a very healthy 43 year old who worked out 4-5 times a week and very physically fit. This went on for months. He was tested for TB, AIDS, Lyme disease, I think every infectious disease and lymphoma, all came back negative. In Oct. 2007 he was hospitalized for 6 days and we were told that he had a very rare disease called Still's Disease. (google it and read about it please) I with all my heart and soul feel that LEVAQUIN brought this disease on. There is very little known about Still's but it's scary to think that doctors are giving this poison to patients. My husband has been on daily injections of Kineret, Methotrexate and Predisone since October and thank God these meds have given him relief. PLEASE DO NOT TAKE LEVAQUIN and tell all you family, friends and co-workers about it!
-- By gqhobbs | Reply | (1) replies | Private Message me
April 5th
2008
2:08 PM
My Daughter has been ill since Feb 4, 2008. Here are her symptoms. Rash on head neck and chest, low grade fever, almost daily vomitting, nauseau, low grade fever, kidney issues, severe abdominal and lower back pain. All tests have been negative, hospitalized twice.
I sent just a local email out to a few contacts talking about the symptoms, girls in our community Papillion, NE are suffering from similar side effects. How can we stop this from hurting other children?
jo
-- By gardasilisdangerous | Reply | (3) replies | Private Message me
January 12th
2008
7:31 PM
I took this in the hospital for 4 days through a IV, I had a 9 beat V-Tach then a few triplets and more. The RN on duty came in and said don't ever let them give this to you again, and showed me the tape that was off the monitor that I wore, she said they use paddles to get you to come back and that's the only thing they can do. I have never had a heart problem in my life, I had a blood infection and my ammonia level was high because I have a liver disease that was why I was in the hospital. The infectious disease doctor they got for me for the blood infection came in when I was ready to be released and said here's a script for a weeks worth of Levaquin , I said isn't that what caused my heart to react like that? He said no take it. I came home and called my liver coordinator and she said get of that stuff we've had so many problems with it.
-- By jvanr2000 | Reply | Private Message me
July 5th
2007
12:48 PM
had two sets of injections in my neck for neck spasms. First set in March 2nd in June. after the first injections I notice fatigue, I lost 33lbs. of muscle mass in three weeks. been lifting for 28 yrs. and it's all gone. Burning sensation in legs weakness in arms, legs. Adrennal and pituary glands have shut down testosterone level dropped from 675 to 75. chronic thrush (yeast infection) on fluconazole 150 mg. once a day. Drs. do not know when this will leave the body. Now have to see infectious disease Dr. because of the recurring thrush, possible liver damage from fluconazole. Also lost at least 3/4" in height.
Thsi stuff is vicious.
June 29th
2007
3:31 PM
Has anyone experienced bilateral achilles tendon tears on Levaquin therapy?
-- By honee | Reply | (4) replies | Private Message me
January 8th
2007
12:13 PM
Bad metalic taste
headaches
depression
upset stomach with cramps and diarrhea
breakouts (pimples/acne)
I've been on it for 5 months for an infectious disease caught while boating. I'm unable to stop taking the medication because the infection will spread on my legs. I'll never take this medicine again. I've asked to put on something else but the ID doctor refuses.
-- By deana2455 | Reply | (1) replies | Private Message me
March 22th
2005
8:13 PM
Oops! Excuse the entry below. I goofed & hit the wrong key.
Anyhoo, here is my Levaquin story. I am 51 & was diagnosed with cellulitis on Jan. 19th of this year. I was given an IV drug, (Daptomyacin) & 500 mg of Levaquin for 16 days. Towards the end of the treatment, my joints became very achy. (mostly in my knees) I was having burning, tingling sesations throughout my body & my calves were cramping. One week after treatment, I could barely walk through our house. I normally am active, with daily walks & short jogs. Within days, I had to have knee surgery. It is now almost 5 weeks past my surgery. The achy joints, burning, cramping & tingling are still present off & on throughout my body. Although the orthopaedic surgeon did find trauma in my knee, (past fractures, etc.) I am convinced the Levaquin sped up & exacerbated the damage. Now my other knee is hurting so bad, I am starting to think that one will need surgery as well. Both my orthopaedic surgeon the infectious disease Dr. that prescribed the Levaquin dismiss the notion that Levaquin had anything to do with it or that my joints are aching because of the drug. I am thrilled I find this site, because I realize that I haven't imagined these symptoms. But the reality of these reactions is quite sobering. I have never had a bad reaction to a drug in my lifetime. This one was so sudden & severe, I had to add my account to this list. I've just started trying the Milk of Magnesia & hope it works. I too have been drinking lots of water. God bless each of you out there suffering with this & may we find some solutions soon.
February 17th
2005
11:04 AM
I am 35, was in good health, ate right etc. In October of 04, I took levaquin for a bacterial infection that had caused swollen lymph nodes. The infection returned and I was given another round of levaquin after Thankgiving. Around the holiday season, my feet and legs starting hurting (feet hurt, leg muscles ached), left wrist and fingers started hurting, and recently my knees and thigh muscles have begun to hurt. I have been to several doctors, including an infectious disease doctor who ran scores of tests (everything came back negative). He is treating me for TB even though the tests came back negative (a biopsied lymph node indicated an infection). He thinks it is a mycobacterial infection. When I can across this site about levaquin, it was like an epiphany - some here decribed my symptoms to a T. I called my doctor but he said these symptoms were not from levaquin. He wants to put me in steroids for a week to see if that helps the pain. I am able to go to work and function, but running and moving around pain free are not options now. I am ready to return to normal.
Anyone have suggestions for these symptoms? How long does it take for these effects to dissipate? If the pain would go away, I'd be back to normal. This has been going on for a few months now, but I haven't taken levaquin in 1.5 months.
Help!
Rob
******
Levaquin (5) Gardasil (1) Bactrim (1) Doxycycline Hyclate (1) Rifampin (1) PredniSONE (1) Kenalog (1) Singulair (1) Mirena (1) Biaxin (1) Kenalog-10 (1) Sinequan (1)
November 3th
2009
6:58 PM
As I posted earlier, I got the Mirena taken out a week ago and they told me it was normal procedure to do a culture when they remove it. Now they call me back and tell me I have MRSA which is the really bad staph infection, INSIDE me, and it was most likely caused by the Mirena IUD. This thing is so serious it's considered an infectious disease, and the 2nd doctor I saw about it literally said, "If it gets into your blood stream you can die." Wow. Thanks, Mirena.
-- By mommamrp | Reply | (2) replies | Private Message me