August 30th
2009
8:24 AM
i recently had my second mirena coil fitted. the first was fitted as i had severe pms and very heavy prolonged periods. the coil worked for this - i have not had a period for over four and a half years. the gynae doctor thought it a good idea to replace it as i could possibly start to menstruate again if i didn't have it, he also thought it possible the pms would return.
i am 53 and the coil was "overdue" for replacement by about 3 months. i have had ibs for years but have had a lot more problems over recent years, my doctor puts it down to stress (he has done other tests this year - all fine, apart from a slightly high blood sugar level he was not over concerned about).
the few months leading up to the coil change were almost ibs free. could this be because the hormone had "run out" ??
since having the second mirena fitted 3 weeks ago i have felt awful. i am bloated to the point where i look pregnant, i am having to take fybogel again every day as i was so constipated, and although the fybogel is working for that, the bloating continues and i feel really nauseous on and off all day, and constantly full and have little appetite.
i am wondering if the coil is responsible as my gp can see no other cause apart from stress. could it be that my body no longer "wants" this hormone? is it worse this time because of my age?
it was also extremely painful having the second coil fitted - it was def not that bad the first time.
i never ever put the ibs down to the coil before, but some kind of instinct made me look my symptoms up on the net today and i was shocked to think that i may be feeling so rough now (and had increased ibs over the past few years) because of the mirena.
i am seriously considering visiting the clinic on Tuesday to ask to have it removed.
does anyone have any advice?
May 14th
2009
7:26 PM
I have been taking Aciphex for about a month when suddenly I started have terrible stomach pains, severe diarrhea, and extreme exhaustion. The exhaustion was so extreme I was sleeping for 2-3 hours a day, not even planning a nap, just crashing on a couch.
I feel bloated and my mouth is dry and feels metallic..in short I felt plain awful!
I thought I was fighting off a stomach flu, but it did not feel "fluish"..I then had one of those light bulb moments..this was the only new medicine I have added to my regular regime.
I am stopping this drug immediately..will let you know if my instinct is on target.
April 16th
2009
10:54 AM
Wow I am so glad I found this site. I had Mirena inserted on January 15, 2009 and I am still bleeding with no break! I also have had non stop sinus infection and brutal headaches behind my eyes. After 2 rounds of antibiotics and no relief I put 2 + 2 together and realized it is Mirena!! NOW starting 2 days ago I have this weird pulsating in my ears - I can't even describe it. I am having the Mirena removed April 27th not soon enough. I should have gone ith my instinct not to get it. Always trust your instinct and your body.
-- By amyd83 | Reply | (1) replies | Private Message me
February 25th
2009
10:07 PM
I've been on Lamictal 150mg for 2 years. recently I have been having tingling in my feet and arms/hands. I'm wondering if anyone else has had anything similar.
-- By extra1 | Reply | (1) replies | Private Message me
February 3th
2009
11:54 PM
Sorry, I'm new to this! I was wondering if anyone else has experienced vaginal burning sensations with Mirena. I had mine removed yesterday after six months; I've had a problem with burning on and off since November 2008. It's been particularly bad since the beginning of January 2009. My doctor said Mirena's not causing the burning, but he can't find an explanation for it yet, and I've already tried 4 different creams - none worked for long. My instinct said that Mirena was the problem, so I'm going to wait and see if my symptoms go away. Comments welcome!
-- By mjdlpw | Reply | (1) replies | Private Message me
January 15th
2009
3:11 PM
My 6 1/2 year old daughter has been on Singulair for 3 1/2 to 4 years now and we have had horrible experiences! She was having night terrors, mood swings, angry issues, self control issues, crying over small things, etc. We have been to psychiatrists and psychologists who have diagnosed her with mood disorder, sensory processing disorder and anxiety disorder! Well she has recently been having stomach problems so we have been going to a GI to figure that out. I got online to research and found numerous sites that told how Singulair causes all these things in children. We took my daughter off the meds and within 3 or 4 days seen a tremendous difference! She is a totally different child! It just really frustrates me and saddens me that all these children and their families are going through all this and the doctors do not seem to care. The allergist or psychiatrist didn't believe me. They say no study has ever proven such things. I don't care what they say we as parents know our children and we are the experts when it comes to seeing how they change when on this medicine, we are the ones that live with them and are with them everyday not the doctors! I think they just don't want to lose out on their money from prescribing this drug 90% of children with allergies and asthma!
-- By abuckler | Reply | (4) replies | Private Message me
January 2th
2009
1:46 PM
I was put on Lipitor 10 mg. last Spring about 8 mos. ago. I have never taken medications/drugs other than aspirin or Motrin or antihistamines. Since that time I have had a strange combination of unexplained symptoms arise throughout the months. These sx's included: Headaches, stiff neck and severe neck pain, acute shoulder pain, hip pains, joint pains, severe knee pain (tendon or Ligament problems?) and loss of movement, hair loss, jaw pain and some memory confusion. Initially, I had severe HA's for several months, but attributed them to stress, however, I had never experienced HA's as a common occurrence. Then we went away to our Maui house to get away from stress, HA's continued, along with leg and shoulder pains. At the same time, I started noticing several strands of hair falling out if lightly touched my hair to move it out of my face. The pains seemed to move around my body at different times, for no apparent reason. I am used to daily exercise, living in CO in the mountains @ high altitude, not usually having muscle soreness. Now, given my leg and knee pains have gotten so bad, I cannot hike and have difficulty climbing my stairs. Skiing is out. Snorkeling caused leg cramps. No explained reason for having muscle tenderness or soreness without my usual exercise at present time. When the pain leaves one area it tends to arise in a different part of my body. At the present time, my hair loss has subsided, as also my jaw pain and headaches. However, my leg pains and knee pains are so acute (for no apparent reason) it is impossible to exercise and difficult to walk that I looked up adverse reactions to Lipitor, finding all my sx's most probably might be attributed to this drug. Partially my fault for not looking up RX information prior, especially being a medical professional for many years. My husband kept throwing away the info when purchasing the RX. Too many unexplained symptoms, I decided to obtain the drug info. myself. I tended to make excuses for months, such as: I am getting older, under stress, must be an old injury, not exercising properly, need PT therapy etc.... I am dc/ing the drug immediately and have an appt. with my MD on 1/5/09 to discuss.
-- By forestseaski | Reply | (11) replies | Private Message me
November 21th
2008
12:36 AM
My mother is 74 and has been on Lipitor 5 mg for about 6 weeks now and has experienced her 1st TGA. She called me today to tell me that someone had come into her house and cooked a platter of bacon and moved a basket around. She couldn't find her purse and went outside and sure enough it was in her car, but the door was standing wide open and the purse was sitting on the seat. She remembers nothing! This evening she swore that our second child was born in a different house. This from a woman who can remember the tiniest minutia. This Lipitor is terrible stuff! She is now officially off of it. R.
-- By royblizzard | Reply | (3) replies | Private Message me
November 6th
2008
12:24 AM
Well, I have had my Mirena since June/08. I had my son in May/08. I was 7 weeks pp when I had it put in. After my son was born I felt ok, no pains besides my c section scar
NOW...since insertion I have had a mess of problems. I have been a healthy woman for a long time and never had issues like this until July-ish. I am 27.
1. I had horrible back pain and my legs felt like I walked in 7" heels the night before (the tight muscle cramps, etc). My PCP told me I could possibly have a slipped disc and wanted me to go to PT. I had all my blood work come back fine btw. Since I knew in my heart I didn't have a slipped disc I did not waste my money on PT.
2. I have NO sex drive. The thought of sex makes me gag. No joke. I had sex 6 weeks pp and had a libido with no sleep. My son sleeps 11 hrs a night and I still don't want sex. As I type, I could go the rest of my life with no sex. THAT IS NOT ME AT ALL!
3. Extreme tiredness. Like I said my son sleeps 11 hrs a night and I sleep 8 hrs a night.
4. Light-headedness- I do have a BP of 110/70 so if I get up fast I get dizzy, but more now than before.
5. Started to have SEVERE pelvic pain right above my c section scar. It hurt so bad I was about to go to the ER. I was home alone with my 6 mo old so I tried to wait it out. I called my OB and they got me in. In his exam he felt a huge knot in my pelvis and it hurt like a MF! He suspected a hernia so he sent me for a CT scan.
Got the results yesterday and they came back normal. He said maybe I bruised something. But why do I have a big knot in my pelvis?
I feel like I am crazy. My bf takes my pain issues with a grain of salt now days. My OB did say since there is progesterone in the Mirena that my leg issues could be from Mirena and he was more than happy to remove if I wanted.
I still have it in and more and more I am thinking of getting it removed. My issue is I am so bad at taking pills and didn't like the Depo.
Anyways ladies...please let me know if you have had these issues. My email is arizonaequine@yahoo.com
Hope this can help someone feel less crazy!!
November 5th
2008
10:02 AM
Ok ladies! I got my mirena out a little over a week ago and I can't even believe the difference. My acne is GONE! My moodiness has almost dissappeared & I'm starting to feel like my normal self again.
I've still got the weight to loose but of course that will take more time to loose than it did to gain. I'm looking at doing another full body cleanse to finish clearing out my system of all the little extra toxins that the Mirena might have left in my body. I am SO happy that I opted to have mine taken out. I no longer have terrible cramping. THe bleeding has stopped, I feel normal again. It's amazing what a difference it made in me.
Again, Ladies follow your bodies, if you stop feeling like yourself PLEASE follow your instinct. Don't let your doctor decide what you should do with your body and well being.
-- By slroache52 | Reply | Private Message me
October 31th
2008
3:51 PM
My 18 yr old daughter has been on singulair for several years and has complained this week of numbness in her feet and toes. I have told her to stop the drug. Is this a reversible side effect? Does anyone know if there is anything else to do?
-- By mlouk | Reply | (5) replies | Private Message me
October 28th
2008
4:51 PM
I have had the Mirena since September 22, 2008. Getting it inserted was easy and great. I took a pain pill an hour before having it inserted and there was hardly any pain. I cramped slightly for about a week and spotted in between then and now. My cycle came at its normal due date but it has not gone away. This is the second week. It is much lighter now but it has turned brown and has a very strong odor. The odor is so embarrassing I don't know what it is. I am also experiencing a lot of hair shedding. I have beautiful long hair and I am afraid that I am about to lose it. I have read where others have experienced severe hair loss. I have also started crying a lot lately too. I go to the doctor tomorrow and after reading everyone's comments I am having this thing removed. So much for birth control!! I guess I will go back to the pill.
-- By nbeavers | Reply | (2) replies | Private Message me
September 29th
2008
12:04 AM
I am a loving mother of a 5 1/2 year old boy. He has been on Singulair for over 3 years. In this past 3 years my son has suffered in an unspeakable amount. He came down with Rota Virus and was hospitalized at 2. He then came in contact with Pneumonia in the hospital while he was there. They automatically put him on Singulair, Zyrtec, Prednisone, and antibiotics to treat the pneumonia. Since that day, my son has gone though more tests than I have in my entire life. He has had asthma, sinusitis, leg cramping ( to the point he cannot walk for 2 years), IBS, Acid reflux,(they gave him laxatives for a year that made things worse and addicted to them also), stomach pain, constipation and diarrhea back and forth. He also got Erythema Mulitforme TWICE, while on this drug. All of which the doctors said could NOT be caused by Singulair. He has had several Upper GI's and CT scans. Along with Barium enemas, several hundreds of blood tests, and many many pokes and prodded that were not necessary. All since he has been on Singulair. He now has frequent bathroom trips, depression, confusion, and anger outbursts. He also has to go to the restroom every 5 minutes. He has had genital swelling, and many other aches and pains. None of which his "doctor" ever said could be a result of Singulair. I am 100% sure it was!!!! He currently has anxiety and emotional sporadic issues causing problems in school The teachers and counselors say that it is so strange because there is no TRIGGER and the outbursts are completely inconsistent. His preschool teacher and director are sure he has ADHD. Well, we had him tested and he does not have any part of it. He has no learning disability what-so-ever. So that brought me back to square one. He is in a positive loving enviroment. How could he be depressed and want to hurt everyone around him? He cannot sit still. He cries and says he is 'stupid" and "can't think" like the other boys. He has nightmares and cannot sleep alone. He is scared of everyone and everything. So, as I sit here crying, I realized that this has all been a reaction of his "medicine" Singulair. He never should have gone through all of those painful tests, only to prove they couldn't find anything. So many treatments and sound full advice speeches from his doctors. How could they be so naive and selfish in the life of my son?
When I called my pediatrician of 5 years, she told me that " parents that have children with behavioral problems will LOOK for something to blame their problems on." She also said "drug companies only put side effects on their labels to PROTECT the drug companies. (as she laughed at me) They are not always valid". Then she said "if you take you child off of Singulair you will be playing Russian Roulette in his life." Then she said that all children around 5 or 6 go though this emotional time in their lives." She told me that if I take my child off of Singulair that she would no longer be a part of his health regimen for his asthma. She told me to see a Pulmonologist for further treatment.
Who is paying who? This is my son's life???????? I decided to go with my mother-gut instinct and get him off of this medicine. No matter what. He has been a different person since. He is currently going though a lot of side effects and withdrawals (leg pain, insomnia, hic-ups, emotional distress) but every day is getting better. How can the drug companies say that this is a "wonder drug?" There are more reported side effected patients then clinical studied patients! How can a "medication" that stimulates the brain not be connected to other problems? This "medication" interferes with the bio synthesis and action of LTs and has been marketed as NOVEL medication against asthma and allergic rhinitis. Who the hell is playing God here??? The pocket books of Merck or our over PAID "doctors?" Who pays the price? Our children? Or us. Thank god I found this before it was too late. I would not be able to withstand the pain of losing my son due to their lack of scientific evidence. They are lucky I am one of the smart ones. I will not settle for less than Justice for the drug companies and their paid "doctors?" You all end up in the same place. HELL
There are 18 million people on this drug. Most of them are children. Please save a life if not your own child's life. Thank You
-- By daisydookes | Reply | (14) replies | Private Message me
September 9th
2008
1:51 PM
I had mine inserted in Jan of 2005. That wasn't bad. The numbing medicine was what was bad. It made my heart race, I went deaf. But within 5 minutes the IUD was in and the numbing meds had wore off. I LOVED the IUD until I realized what it was causing. I was healthy...Since I have had the IUD:
-Migraines 3x a week or more
-Extreme amount of discharge
-Vaginal Infections
-Acne.
-Anxiety
Rarely had a headache before the IUD.
I have always had discharge, but since the IUD, it has increased by at least double the amount.
I have never had any infection until the IUD. Since I have had it, I have gotten 4 yeast infections and one bacterial infection. The doctor says that is not from the IUD. Several of my friends that have the IUD have the same problem.
I had a clear face up until about 7-8 months after getting the IUD. The doctor says that is not a side effect.
I have never suffered from anxiety until I had the IUD. I have had several attacks where I felt Suicide was the best way to handle it. Fortunately, I have 2 beautiful boys whom I would NEVER abandon!!! They are my angels.
I have to disagree with the doc. I would also like to go the doc for my next pap and tell her that she was wrong. I can't wait for my face to clear up and the infections to suddenly stop. Every one has different side effects and a woman who sees you maybe 3 times a year, is not qualified to say whether BC is the cause or not the cause of your symptoms. Like someone else said, women are born with an instinct- always trust it. More then likely- you are right.
I am married with two kids. My husband is faithful- I know for a fact. So why else would I have infections. I take care of my self the same as I did before the IUD. The acne has ruined my face and my life.
I had my IUD taken out today at 11:30 CST. We'll see what changes. And yes, I had the MIRENA!!!!
DON'T GET THE IUD!!!!!
August 29th
2008
2:21 AM
I am a 54 year old male who started taking Lipitor about 4 years ago. It seemed OK at first, but over the next several years I began to have increasing amounts of joint pain after exercise. Nor muscle pain, joint pain. And it seemed to be a result of exercise. By the time I stopped it, I was hurting after everything, not just exercise. I felt better within the first two weeks, but it took about 4 months for me to be able to exercise vigorously again. Over the years I seemed to have forgotten how much vitality I used to have. I am a physician, and because of the long lag time until I felt better, I wondered whether improvement might have related to other factors, so after about 5 months I decided to restart Lipitor. It surprised me that after just one dose, I got back all of the joint pain and fatigue when I was at my worst on Lipitor. I was really hurting. Needless to say, I didn't take any more.
Coincidentally, a physician friend of mine who had statin induced polyneuropathy had a similar experience. After his symptoms went away he found that after only one dose the entire polyneuropathy came back.
Stopping and restarting the drug is a way to test the correlation between the drug and the side effect. For such a large spectrum of side effects to recur after only a single dose, it argues that the problems that my friend and I had was due to some sort of immune memory response. I have not seen this in the medical literature.
I am off it now for about 8 months and am able to comfortably play singles tennis and jog - much more energy (and I took 200 mg of CoQ10 a day with the Lipitor).
-- By n8healer | Reply | (8) replies | Private Message me
August 26th
2008
10:04 PM
Friends,
I've posted on this twice before. I was on the ring for nearly 2 years before I got off this past February when I discovered this site. I have to say I feel sooooo much better. Currently, I'm not on any birth control (we use condoms and spermicide) and I love being myself and being normal. While I gave up convenience and a relative peace of mind, I also gave up a decreased loss in sex, dryness, mood swings, fogginess, and putting my health at risk etc.
I still have numbness in my legs especially at night (RLS was ruled out) but it's much better than months ago. I never had this before I started the Ring.
I worry about others because I didn't know my side effects were caused by the Ring. And my obgyn made me feel like an idiot when I suggested it. But getting off the Ring was the best choice. I have my health, my sex drive, and natural lubrication not to mention a great relationship with my boyfriend (when you lose interest in sex obviously your partner is going to take it personally).
If you have NO side effects and are confident the Ring will not affect you then by all means go for it. But if you have doubts look into it. Trust your instinct and take care of your health. There's no point in taking birth control if it's going to kill you (figuratively or literally).
I'm looking forward to being healthy again and I hope that you all are safe.
-- By kdesai1 | Reply | Private Message me
August 19th
2008
4:18 PM
I am calling to make an appointment to have my Mirena removed as I type this post. I've had bleeding off and on - mostly on- since inserting in late June, but my main issue is incredible mood swings. Feelings of being out of control, depression and anxiety. My husband pegged it. He noticed that I had not been so witchy before I got my mirena. To make things worse, once I get upset, I can't control it. It is almost like I am possessed. Just two short months ago, I was nothing like this. It is amazing what a different person I've become and I can't wait to get back to my old self!!!!
I can also be added to the list of those who have had stomach cramps and constant discharge.
-- By andir | Reply | (2) replies | Private Message me
July 26th
2008
2:13 AM
I took this medication as a malarial prevention whilst traveling through India.
Never EVER again. My boyfriend had suffered from depression in the past and we had heard bad things about Larium in relation to anxiety and insomnia so we specifically asked our doctor for the malarial tablets with the least amount of side effects associated with that kind of stuff. He reassured us that there was no record of Doxcycline ever having caused those sorts of effects.
So off we went- we followed the instructions exactly and began our trip.
A week or so into India I began to notice shortness of breath and stomach pain- I put it down to typical India travelers upset and thought no more about it. A bit later I began to suffer moments of anxiety that were really out of character ( I've never suffered from anxiety or depression). I'm very well traveled ( I work in the travel industry and have traveled extensively in the Americas, Africa, Australasia and se Asia) and so although this was my first trip to India- i knew my anxiety had nothing to do with India itself. ( people kept telling me this but I loved India)
It came to a head on a overnight bus from Goa to Hampi- I was feeling really anxious, sweating and clammy, I couldn't sleep and my breathing was really tight. Eventually I had a full blown panic attack that was almost like a out of body experience- I couldn't see and I couldn't breath. The whole bus had to stop ( embarrassing!) at 3am in the morning. Eventually I managed to get back on and make it to the next town ( although not as far as Hampi) so we could take stock.
I was petrified and had no idea whatsoever what was going on. It never occurred to me it could be the malaria tablets as we had been so clear and our doctor so confident they didn't have these kinds of side effects.
I was worried about being on buses, trains even planes again since I didn't know what caused the attacks and I was terrified another one would happen. I had no valium or any other sort of thing that might have helped. In the end we had to cut our trip short and make it back to Mumbai - In Mumbai I suffered from another two panic attacks- one where I could see the walls closing in in our cheap hotel room. Shortness of breath, tightness all through my body, hysteria, blurry vision - it was awful! And also this ongoing pain and upset in my stomach.
I ended up cutting short a RTW trip that my boyfriend and I had been saving for for over a year and coming home to Australia 2 months early.
It was devastating and I still had no idea what was causing it. Finally a friend said her doctor had mentioned sleeplessness and anxiety as a rare side effect of this drug when she was taking it for some problems to do with vaginal bleeding and spotting. I started searching on the internet and was amazed to find loads of sights with people experiencing heaps of the side effects that I'd been told were never a problem with this drug!
Obviously Malaria is really serious but if I had been properly informed I could have made the decision to come off the drugs and look at alternate medication. For now - Im taking the risk of no malaria tablets at all for my next couple of trips (to Borneo- so not a major risk anyway) and will actually research much harder before taking anything again!
April 29th
2008
1:32 PM
(A divorced father)
My son has been on Singulair now 5 years and I am in the middle of fighting to get him off. My son is now 7 years old and has been diagnosed with allergies (no test have been done which I find very odd), which leads to a case of mild asthma. This past weekend his mother forgot his Singular on Friday so I could not give him any till the next day, where we met at his soccer game. Saturday night I gave him his usual pill and thankfully due to his exhaustion from playing out side all day he went to sleep in 10 min. vs 3 hrs later which is the norm since Singulair seems to jack him up.
He also has red puffiness under his eyes - most likely allergies.
Seems depressed - just driving down the road and I look at him in the rear view mirror and he just sits and stares into space. When I ask what's wrong he either says nothing or I am tired.
He will try to tell a story or think for himself and just stops mid sentence and says " never mind I am just confused"
He will be having fun one moment and just starts crying or gets depressed.
He was throwing a ball in the house (yes I know) and accidentally knocked a glass over breaking it - he went running to his room, crawled under his bed and sobbed profusely for over 30 min.
He has a hard time doing / focusing on homework - becomes bored very easily.
Does not want to go outside. I will take him to allot of cultural events/ hands on or participation events - he will not try anything. He is unsure and will not come out of his box so to speak.
I spoke with his doctor who was reluctant to take him off, but then agreed that if it was OK with the ex, to take him off for a week to see what happens.
The fun part: My ex is convinced that since he has been on Singulair for 5 years he is fine and does not need to come off it.
1.) Son is diagnosed with mild asthma or allergy induced asthma.
He has never had an allergy test done and has not had a lung function test in over a year.
2.) It is documented that our son has four outbreaks a year. (sounds like the changing of the seasons) but is given Singulair all year round and the dosage has also been increased.
3.) Since the court order, ordered my ex to enroll our son in sports (she would not let him play anything) he does not wheeze or cough uncontrollably.
4.) Since I had to battle to get our son on my insurance I have cut her control issues off a little, but she is refusing to take him off Singular just for a week to see how he reacts. Although I do agree that he should have some form of allergies medicine.
5.) When I found out about the side effects of Singulair, I also found that his doctor was getting ready to add two other allergy medicines to his portfolio - totaling 3 different meds.
I see our sons behavior getting worse and I watch him turn into something he is not and with a controlling individual not believing anything about the side effects it looks like I will have to rely on the medical system to prove my point. I do believe he needs to be accurately tested for allergies and given a regularly lung function test but most of all since he is now on my insurance, a second opinion and a 3rd to narrow down what the situation is and an alternative medical procedure that is fit for the symptoms.
-- By aussie63385 | Reply | (9) replies | Private Message me
April 10th
2008
5:40 PM
Follow up to my post earlier today...
I took the my son to the doctor this morning and he was somewhat dismissive of the recent reports on Singulair...says he's had a lot of kids on the drug and never heard a peep about side effects until last week when the report on suicidal tendencies showed up. He did advise that when these kinds of behavior changes happen after a new drug is started he would recommend that we stop taking the drug no matter what it was, but I still felt uncomfortable with his response to us.
I felt like he was accusing me of making it up or only coming up with it because of recent news and message board posts. In fact, I made the appointment BEFORE I saw the posts. I was worried about his behavior BEFORE I saw the posts. It's just that seeing the stories from everyone else basically confirmed my suspicions that it might be the drug causing the problems.
I feel like I definitely wasted OVER AN HOUR waiting for a doctor to spend five minutes making me feel small.
Last night was the last time my son will take the drug, and I don't care what the doctors think of me.
-- By adschimek | Reply | (10) replies | Private Message me
April 6th
2008
9:37 PM
In response to Concernedcitizen with regard to the additional medications prescribed, we never got that far, but we were close. My son, as I've mentioned on here before (sorry for the repetition, but I think it's important), was about to be diagnosed as bipolar, which would no doubt have led to a whole host of other drugs.
Also, I totally agree with concernedcitizen with regard to not necessarily blaming our doctors. We should expect them to listen to us and take our concerns seriously, though. My son's first pediatricians were dismissive and condescending. We switched doctors and when I handed the new doctors a printout of all the posts from this site (back in 2005), they looked skeptical, but guess what? They READ it. And, my son's primary pediatrician has since told me that he's taken several kids off Singulair based on our story and the posts he read. The research provided her by concernedcitizen is INVALUABLE. If enough doctors see this stuff they'll start to question it and at least look at some of these children differently. Rather than throwing a prescription for Ritalin at them or stuffing them full of wellbutrin/abilify/lithium/klonopin/cymbalta/ they might think, "Hey, this kid's on Singulair...maybe we should try taking him/her off for a while to see what happens."
Finally, I wanted to put it out there that while kids may show mild side effects in the beginning (so mild that they can be dismissed in one way or another) I, personally, believe that with this drug side effects intensify over a period of time. My son, for example, was highly functional on singulair in the beginning and it completely eradicated his asthma and allergy symptoms, so it was great. Over time the side effects were more numerous and increasingly intense. Finally it got to the point where we couldn't dismiss it as bad behavior anymore, it was just completely outrageous behavior and my instinct told me it HAD to be the singulair. So these case studies that look at kids over a 24 week period are useless. In 24 weeks my son was fine. 52 weeks? Totally different child.
Definitely use the info provided on here, it will help not only your child, but other children as well.
-- By cheflette | Reply | Private Message me
April 4th
2008
2:33 PM
I am 13 years old i have been on singulair for 8 years. I use to be the kind of girl who loved art and i was always happy and active, but whene i started Singulair all that changed i didnt like any of the things i use to like my mood was conpletly different i always yelled at my mom and my little sister. About 4 years later whene i was 12 i was sent to a Psych Center because i attempted to kill my self and my mom. i have been off this for about a week and i have been feeling much happier.
-- By lizzie99 | Reply | (4) replies | Private Message me
April 3th
2008
3:33 PM
Both my son and I were on Singulair. As of Sat March 31st we both stopped taking it. My 6 yr boy has been on it for apprx 3 1/2 years for allergies along with nasonex and claritin when needed. He started pre k after being off the singulair for the summer. His first 3 weeks of school had no complaints. 3 weeks into school he started singulair and teacher immediately noticed the difference and brought it up to dr's who said it had nothing to do with his behavior. Over the years he has experienced, problems with excess urination after taking dose at night causing exploding pullups.. changed to day time and that helped somewhat. nightmares/ hyper /moody, irritable, leg pain, stomach pain,angry outburst (he says his brain made him do it), headaches, stuttering,sinus infections that he finally had his adnenoids removed in Feb.. He started kindergarten last Sept and it has been a nightmare..I tried to take him off Singulair in Oct but due to his enlarged adenoids his allergy symptons became so much worse I put him back on. The last few days where up and down as the Singulair was coming out of his system but I was seeing improvements.. Well I decided today to remove him also off the nasonex as I have read similar side effects about the nasonex. He had a pretty good morning today and went to school and came home for the FIRST time all year with smileys for the entire day!! I am overwhelmed with emotion! So happy that he is coming out of the fog and guilt that I have been giving him this medication and didn't follow my Mommy instinct to stop it years ago! I had side effects as well to the point people were telling me my personality had changed. I was irritable, short of patience and having alot of headaches. The last few weeks I was having days of depression and crying over little things especially with the stress of what my son was going through.... I am also coming out of the fog and happy to be back!
-- By sp2008 | Reply | (1) replies | Private Message me
April 3th
2008
9:52 AM
Our son was put on several medications 9/07 due to bad asthma and allergies. Since then we saw his behavior begin to go down hill. He would complain of stomaches, not want to go to school, became increasingly more irritable and has mood swings. He was a good student and we have never had a problem with him attending school. Since 9/07 we have taken him to a total of 10 different doctors. Pediatricians, therapist, allergy doctor and three licensed psychiatrists. Everyone said that we were crazy when we suggested that this behavior was linked to the medication. The psychiatrist diagnosed him with anxiety disorder along with school phobia. This has been a nightmare. I finally took him to an acupuncture doctor as a last resort because the doctors wanted us to put him on Prozac for the anxiety. Our family doctor has even suggested he is Bipolar! The acupuncture doctor has recommended a diet change and some treatments with her so that we can remove him from all his medications. I am so glad that I listened to my instincts and did not put him on the Prozac. I was so upset when this story aired about the Singulair. We have been trying to get the doctors to listen to us since 9/07 about the possible link. They still deny the connection and advised us to not remove him from the medicine. But for once I am going to handle things my way and we have already seen a difference in his behavior. We will keep our fingers crossed and hope for the best. My heart goes out to everyone that has had similiar experiences. These doctors should listen to the parents instead of assuming we are all trying to blame behavior problems on medication.
-- By swaldron | Reply | (4) replies | Private Message me
Singulair (16) Mirena (9) Lipitor (3) NuvaRing (2) Lisinopril (2) Doxycycline Hyclate (1) Omnicef (1) PredniSONE (1) Hydrochlorothiazide-Lisinopril (1) Aciphex (1) Yasmin (1) Lamictal (1) Levaquin (1) Ultracet (1)
August 30th
2009
1:10 PM
I'm a 46 year old, Caucasian female, average weight. I was on Lisinopril 10mg once a day for 3 months. I'm in relatively good health (except for a slight increase in B/P).
During that time I experienced:
gagging cough (especially at night)
depression
anxiety (mild)
no menstrual cycle (it came back 4 days after stopping the drug)
dry nasal passage (including polyps)--this seems to be clearing up with Fluticasone.
feeling of an irregular heartbeat
I did go to my doctor and he said that the side effects are common; however, he said that this medication shouldn't effect my menstrual cycle... well, it did. He did put me on another B/P medication and told me to stop the Lisinopril.
I'm posting this because it's been hard to find anything out about a lack of cycle for women who were taking this drug. I wanted to share my experience to let you know that you're not alone. Always follow your instinct with medications you're taking. You know your body best!
-- By ztoamom | Reply | Private Message me