Itp symptoms and conditions

I just turned "51"

I've been on Yasmin for the past 5 years.

I never have been on a birth control pill in the past as when I was a young teen I tried and couldn't handle the first side effects.

I have had a lifetime of the most HEAVY periods. I have to stayed glued to the toilet on my first two days.

I was diagnosed 20 years ago with ITP where blood platelets deplete. I thought my periods were so heavy because of this. I just couldn't take it anymore so my DR put me on Yasmin.

Yes at first my boobs were big and sore. But after 3 months I thought I had died and gone to heaven with a better life. Period so light.

BUT:
I've gained 40 lbs over this time frame. I look pregnant with the tummy Bloating. I've just had the most thorough physical, ultra sound for fibroids and everything came back normal except which never had previous: Borderline high Cholesterol, High Blood Pressure.

So, I've been power walking and never eat anything bad. ???? so why can't I loose even a pound?

Back in November I went off Yasmin for a month and had a period that hemorrhaged! So I went back on Yasmin. But I'm bloated now more than ever. I know it is the hormone changes.

I'm hooked on Motrin for my headaches which is like a sinus ache in my hear.... weird headache.

BUT: Hmmmmm I've had arthritic symptoms in my joints just over the past 4 years, severe Dry Eyes in the morning. All I googled is Bloated all the time and got Yasmin.

I'm in between pills and seriously think I need to just put up the the bad bleeding and get off the Yasmin. It is like quitting coffee, the headache is because of stopping the pill. I took one pill today even tho I have my period right now. My head is clearing up and I am feeling better.

I Don't think it is just Yasmin I REALLY BELIEVE WE ALL HAVE THESE SYMPTOMS WHEN THE HORMONES ARE IMBALANCED.

I Loved Yasmin for giving me back a life. But I'm so BLOATED right now I've got to try going off.

I do not take any other drug. I did a Candida cleanse but it didn't elevate the Bloating.

I will keep you all posted........

I was admitted through the ER in sept. i had previously taken Bactrim for a bug bite on my foot three months prior. I had been severely bruising and had some lab work done. I got a call from my Dr. around midnight to go to ER immediately. My platelet count was at 11,000 a normal being 100,000-400,000. I went to ER and was admitted for 5 days. After running test after test there was no conclusion to what had caused this low platelet count but I was diagnosed with ITP. From here they put me on 50 mg/day of Prednisone for 1 month. I have now started to taper 40/ 2 weeks. 30/2 weeks. But then the side- effects started to come so fast. At first it was just sweating, minor anxiety, mood swings, and slight increase of appetite. Now that I had tapered my adrenal gland is suppressed much more and I am going through withdrawal. I am 21 years old I am 5'7" and I weighed 118 two weeks ago, since I have gained 12lbs of water weight. I am working out daily and eating healthy, although it is more than I used to eat. I have some family friends that work at Stanford University and they are ITP specialists. They told me their regimen for Prednisone is a 5mg/wk taper instead of 10/ 2 weeks. So the past two weeks I have been going down by 5. Today was my second day at 20 mg. I have gone through all of the mentioned side- effects except the back hump. I am hoping and praying that these symptoms will clear asap. And to everyone else out there your not alone.

Hello everyone! I just want to thank each and every one of you for your postings. On more than one occasion I would come to this site because without all of you I probably would have truly lost my mind. I just want to give a brief history of what's been going on with me because if it can help one other person then it's all worth it. In 2005, I go vaccinated for chickenpox, I work in health care, never had them, and wanted to start having children since I'm 36. A month after the vaccine I broke out in a horrific rash ALL OVER and had it until April of 2008. I went to the hospital where I had the vaccine, 5 dermatologists, 3 Infectious Disease, various medical doctors and no one knew what it was. This April, I was admitted to the hospital with Autoimmune Hemolytic Anemia. After 3 hematologists, the last one feels the vaccine threw my immune system into a tizzy. I started with 60mg of Prednisone and eventually got down to 2.5mg. The hemolysis(body produces antibodies that attacks it own body) started again so I went to a new Hematologist and was put back up to 30mg and just got put down to 10mg today. Right now my biggest concern is the hair loss. I use to have such thick hair and now I cry almost daily because I loose so much. I am going to try the Ensure like someone posted just to see if that helps. I drink protein shakes, take Silica, multivitamins (Solgar) that have biotin, and going to try Nioxin shampoo. I have terrible mood swings and now I feel like I am going through withdrawal. It's almost like I want to take more just to feel better. I know that sounds crazy. The big fat moon face, my joints feel like they pop out, confused easily, can't sleep, and just can't really leave my house and live a normal life since April. I HATE IT!!! The only thing that helps me feel better when the daily prednisone "kicks in" is walking and exercising. I feel so bad for everyone this drug is just awful. I get angry because not one person told me what life was going to be like on prednisone. I think that is just mean. That's why these postings are so important. I know this is entirely to long but I feel so much better getting my story out there. Did everyone's hair eventually grow back. I don't know if I will have any left next month. Thank you all so much.
GG

Does Bextra cause stomach or gastrointestinal bleeding? I have ITP with 83,000 platelet count.

Was on Prednisone 2 years ago for respiratory problems 30mg. Gained 25 pounds, fat face, felt tired, etc.

However 2 years later, after weaning off Prednisone my muscles ache, joints are most always stiff, esp. hands plus my feet feel numb and my short term memory has not returned to normal----does any one else out there have similar problems. What can be done?

i have been on prednisone for over a year now for ITP. i started taking 150mg then 140 then 130 etc. i hate it so badly. i am not the same person. the doctors are trying to wean me off it but then something happens and i get bumped up to taking more again. at first my face swelled up like a balloon and i put on weight. i now go to the gym almost everyday and have lost it. i could not drive at night because i couldnt see properly. i had just given birth to my first child so i was extreemly emotional and cranky. i used to be a happy person now im irritable and have no patience. i used to get 'the wobblys' i couldnt walk straight and fell into walls. i experienced so many side effencts i cant remember them all. now they are apart of my life im so used to it. i dont even know whats real with my body and whats the pred. i hate it. but i cant be on it forever so if i dont get better real soon its chemotherapy for me. woo frickin hoo. good luck everyone.

My daughter has been on Prednisone for 16 months because of a blood platelet disorder (ITP). She started with 100 mg and has gradually been weaned down to 2 mg. Yesterday, her platelet count dropped quite a bit, so they took her back up to 3 mg. to get the count back up. I have several questions--because she is scared to check for herself. 1st, she has had a "sore" or achey spot on the side of one of her breasts--not a premenstrual sore, just a deep sort of ache. Could this be related to the prednisone? Also, she has had breakthrough bleeding between cycles. Also the pred??? Are there side effects even on this lower dose? She is 25 years old, and this has been a horrific ordeal for her and her new husband (who is incredibly understanding and patient). She is constantly anxious and deals with irrational fears. Frequent mood swings are common. I am sure this is all a result of the long term use of pred., but she so much wants to return to normal again. Has anyone experienced any of these or been on pred for this long? Thank you!

Hi my name is Angie i was 15 at the time and a only child from a single parent when my mom was put on 60mg of prednisone because she was diagnosed with a blood disorder called ITP(idiopathic thrombocytopenic purpura) she had been hospitalised for about 2 weeks and then was released but still was on the prednisone as time went by my mom had to stop working, she gained about 100 pounds on a very small framed body,her hair grew very fast, tremendous stretch marks, mood swings, just about everything on the list. She was to have a Splenectomy on Sept 13 2005 she had her surgery and it went perfect and was shortly released. 1 week after surgery she was having very severe hip pains, we took her to the hospital and she had X-rays and all sorts of tests done but nothing was found so she was sent home with pain meds. 2day later she was taken back to the hospital the pain had gotten worse, while at the hospital she had been told she had a fractured pelvis and was put on bed rest and given MORE pain meds. The doctor had mixed the 2 medications given and they counteracted eachother.During the 3 days she was home she had overdosed on pain meds because they counteracted eachother. On Sept 27 she had a meeting with her surgon and was admitted to the hospital for a drug over dose and broken pelvis. She had a bone scan and the doctors found she had also 3 broken ribs a broken tail bone and a bone infection. HOW? you may ask.... because the prednisone made her bones very weak and the weight she gain, her body collapsed on itself. My mom put herself into a coma for 2 weeks and was in the ICU for 3 weeks. She is now awaiting surgery because her hip is collapsing because of Avascular Necrosis she is bed ridden and is very heavily sedated...my mom hasnt been home in over 4 months I just wanted to tell my story in hope that people will listen and that no one will have to go through this just as I am.

Late in January 05 I was admitted to the hospital for severe ITP (low platelet count). They first gave me prednisone in my IV, then each day after 80mgs. I returned home 14 days later on a daily 80mgs for three months. I had isomnia and had no strength at all and just felt like a totaly different person. My platelets stabilized around 190 thousand for a few months. I was weaned off it completely. Then my platelets started to go down again. My Dr. put me back on 30mgs of prednisone. The second time around with a smaller amount is worse than the first time with the larger amount. I'm now down to 20 mgs and I have a deprresion now with low physical strength and can barely get throgh 8 hours of work. I feel an inner anxiety that I hate with no appetite. Prednisone probably helped me with my platelet count but who knows, they gave me other things, but I really hate prednisone and can't wait to get off it so I can begin to feel like a normal person. I'll tell you it's impossible to feel right when your on prednisone.

i am also a diabetic,I was given prednisone for itp started at 100 mg am now at present weaned down to 5 mgs every day still have 3 months on this drug the devil created, moon face bloating, hair loss depresson, anxiety etc

I started on 60mg of Prednisone a day for severe ITP on month ago. I'm always hungry, feel spacey, have a rapid heart rate, feel short of breath and sweat easily on any exertion. Am definitely awake! I've gained weight, a moon face, and am losing too much hair. But my platelet count has improved and I hope to be able to taper down in the next couple of months.

I had been on 60mgs of prednisone for a month and a half for ITP. Initially it brought my counts up slightly but they crashed back to where they were when I started after a month of the treatment. I did my research, and demanded I be given anti-D treatment (win-rho). My hematologist (blood vampire) gave me it and it brought my counts up considerably. Three weeks later they fell and he won't let me be weaned off the prednisone saying that its jepordizing my counts. The prednisone did not work for me, dropping as it did while on such a high dose. He says he won't advise me to go off the drug nor will he write me a perscription for a tapering dose. I go to a clinic because I'm a poor 23 year old that just graduated from college. This drug has made my life a living nightmare. The first two weeks it gave me severe depression and I did not eat. Gave me horrible mood swings, killer fatigue, joint pain, double vision, skin and acne problems, nasty taste in my mouth, muscle weakness, fat distribution on my stomach, waggy skin, etc. I am so ashamed of my body. I got edema all in one place my stomach one night and I could barely breathe and my heart was pumping so hard. It stretched out my stomach permanently and gave me stretch marks. I have gained 17 lbs dispite following a strict diet - I went off sugar and watched my salt and carb intake. My idiot of a doctor won't let me get off this drug from hell. I am so miserable and depressed. I basically threw any chance away of growing into a healthy person when I am older, I think. I think that because of this drug I am facing irrepairable damage. I am not even married or have children and yet who knows what damage it is doing to my reproductive system. If I knew what I knew now, I would never put that drug in my body, or I would have never even seen anybody for my disease, I would rather bleed to death. This drug should be taken off the market. It's handed out like it is candy. If I was just given the safest treatment for my disorder (anti-d) and seen that it worked then I would have never had to gone through this. But preds are nice and cheap let's give it to a 23 year old and ruin her life. What do they care what it does to me? They ignore me, even after telling them it made me suicidal. I feel like a shell of a person and haven't been myself since. I'll either have to find another doctor or taper myself off which I hear isn't too good since I'm on 20mg pills and can't accurately measure a taper. I'm lookin foward to premature aging with prednisone.

I have been on prednisone for 3 months to treat ITP. I started out on 60 mg and have been able to reduce to 20mgs. I am experencing all of common side effects (weight gain, moon face, acne, mood swings, NIGHT SWEATS, insomnia). I have also noticed that my teeth are very sensitive to cold. I have not seen this listed as a possible side effect anywhere. Has anyone elso noticed this?

It is hard to decide what is really happening.
Cold autoimmune hemolytic anaemia, ITP
IgG and IgM attack normal blood cells.
Liver and Spleen Hyperactivity due to damaged blood cells.
Combination of Pneumovirus, exposure to extreme cold, and Fluoroquinalone drug used for treatment.

Suspect Hospital cold drinks and Ice cream continue to exacberate.

Reaction with Ciprofloxacin treatment for ear infection. Nov 2001. First episode.
Jan 2002 repeat after 1 useage of CiPro in combination with Cortisteroid. landed in hospital cramps and CAIHA.

recovered and went north. -35C and ear drops. Clotting and CAIHA. counts down. Severe pulmonary emolism. Sever -Cramping in legs hands and chest.

This was my first experience with fluroquinalone drugs and doctor prescribed Levaquin three times afterwards have put me in hospital with repeat symptoms. Hemoglobulin counts 60-64.

Suspect that in certain persons Quinolone drugs react on autoimmune system to produce antigens against self.

This is probably an autoimmune condition that is pre-exisiting and in combination with the drug the autoimmune system overreacts.