February 13th
2009
9:40 AM
Hi
My name is L. H. and I am a medical reporter for teh ABC station in Tampa. I am looking for a family in the Tampa Bay area who is experiencing night terrors or other symptoms from Singulair. Can you contact me if you are in driving distance? ******
thanks
L. H.
******
October 9th
2008
7:59 AM
Just wanted to offer a follow-up on our daughters behavior since getting off Singulair and Advair. AMAZING difference. She is a pretty normal 12 year old now. The most noticable thing to me is her voice. On the drugs she always sounded so gruff and angry. Now she sounds sweet. She smiles so much more and is not eager to become angry. I can reason with her more now when there is a disagreement. It will be a long process to break habits of behavior that have developed over the past ten years, (yes, ten years, she started these poisons when she was two years old) We are very hopeful for her future. I am so very thankful that I was led to this site.
-- By bamvanfam | Reply | (4) replies | Private Message me
September 24th
2008
7:47 AM
I wanted to post an update on my contact with the Congresswoman's office , which I am communicating with.The ALA study we were all so upset with,was originally done by Merck,what a surprise!The FDA did contact me and state that they look at all the available data and have even reviewed this site.I am reiterating how important it is to contact your representative in Congress,they are trying to form a coalition for better notification practices.Our Congresswoman Kirsten Gillibrand is working with other members and looking for more to contact her office, that have families they represent.Also the Parents United for Pharmaceutical Safety and Accountability group that Jenna has formed is a very important tool.I will hand deliver it to Washington if we get enough people to get involved.The FDA is taking more time than we would all like but,if they have hired more staff and hopefully that alone will expedite this investigation along.I hope the awareness level rises when WBZT out of Boston airs our stories.Again Please Make a nuisance out of yourself with your Congress Rep. it will help to make it a law to expedite important information on added side effects to the doctors and pharmacist .All of us need to come togehter as one voice and it will make a stronger statement.When the advocacy website is up and running,we can all help by taking the time to contact those who have posted to sign up and get involved.The importance of this was stressed to me by the Congresswoman's staff.I also walked in a Suicide Awareness and Prevention walk over the weekend,I took the opportunity to hand out flyers I printed. They contained information on the serious side effects such as suicidal thoughts and actions, so people that may have had a loved one die from suicide and taking SINGULAIR could make the connection.Many have not made the connection and they are unaware of the link!!!!!!!
I am looking for all avenues to travel, any ideas are appreciated.I have scanned a print out of a sheet that is an alert to post in schools and emailed it to Jenna,if you would like a copy send me a private email and your email address.A family member worked with the School nurse in her hometown and made this a communication tool.You can start at that level and just white out the name of the town and the nurse add your own or nothing just the alert.We went to all the local schools and there is no liability it just states the facts,good for the bulletin board in community centers also!Do what you can to help,it is grass roots efforts that brought this country to what it is now.Even through disappointments we still have the freedom to try to make change.Kate M.
June 3th
2009
2:02 AM
My 4 year old Son has had diarrhea from about the last 4 weeks... we have started some tests for Celiac disease but today it only occurred to me today that he has been on Singulair for about that time frame... after all the worry and reading these other storied Im even more convinced that it maybe the Singulair..
-- By cinderella92 | Reply | (7) replies | Private Message meIm just hoping that someone might read this sometime today or the next couple of days to tell me if when they come off the singulair how long did it take for the diarrhea to pass. My son had is last tablet 2 nights ago ( so he has only been off it so far for one night. But he still has the diarrhea.. should it have started to come out of his system already.