November 17th
2009
8:41 PM
I had Mirena put in January of this year, I am 49 years old. I did not need it for birth control as my tubes are tied. I was having very bad perimenopausal symptoms so my doctor suggested I try it for the hormones. I was still having heavy periods 8 months later. A little over two weeks ago I had a complete hysterectomy so obviously the Mirena is gone! I was and am having HORRIBLE joint pain as others have posted. I feel like I am 100 years old some days, my legs and shoulders and hips hurt the most. I read that the Mirena hormones are contained in a steroid reservoir, whatever that means,does anybody know? I have been on steroids before and this is exactly the same reaction I had, hip and joint pain so bad they had to take me off. Well anyways, I am glad it is out of my body but my question to anyone is, once you had it removed, how long did it take for the joint pain to subside????
-- By jules14 | Reply | (1) replies | Private Message me
November 17th
2009
5:47 PM
I got my Mirena o June 18th, 2009. It is now November 17th and I have an appointment to have it removed this Friday. It started with unexplained hives and rashes constantly. The bottom of my feet, my palms, my knees, upper arms, throat and stomach. I was on constant high doses of Prednisone and anytime I started lowering my doses, the hives returned. I went to the ER three times for swelling and hives so bad I could barely see and could barely breathe. seemingly caused by NSAIDS, which I had never had a problem with before.Next was severe lower abdominal pain accompanied by groin pain so bad I could barely walk. Friends said it sounded like cysts, but, when I had an internal ultrasound done, nothing was found. After that I had severe breast pain and swelling. The final straw was the constant all over muscle aches and joint pain in my knees. I feel like I am 100 years old! I am tired all the time no matter how much sleep I get. I went to a dermatologist and I mentioned the Mirena, as I had to my OB, his response was "middle age". I thought I at first has Lupus, but, the rash did not fit that description. I changed detergents, blamed it on a foster dog, anything I could think of. Finally after reading so many posts and finally finding a connection with the rashes and hives, it can be nothing other than the Mirena. I even noticed that this device had the second most posts on this site. I can not wait to have the Mirena removed.
-- By jbugler | Reply | (2) replies | Private Message me
November 11th
2009
6:27 PM
I am a 51 year old woman and I have been on Lisinopril for about 12 months. At first it was 20mg, then increased to 40mg per day. I started having shortness of breath and decided to cut back to the 20mg after a month or so. I am a nurse so I often adjust meds that I am on. I found this board about two months ago. I am so glad I did! I have BP of about 126/82 on meds. I have just stopped the 20mg two days ago, after developing more chest pain. I have lost all the weight that I needed to and eat a low salt diet now. I already feel better today. Chest pain is almost gone. I see my DR. tomorrow about all of this. I am going to try to stay off all HTN meds if I can! I had so many side effects that I never realized were being caused by this horrible drug. Some of them included: chest pain, shortness of breath, rib pain, extreme hair loss, tingling in all extremities, joint pain, muscle pain, headache, loss of appetite, loss of sex drive, difficulty thinking and comprehension, memory loss. I just wanted to let others know that I also know this drug is very dangerous. I am hopeful that I will continue to feel better as the weeks go by.
-- By gingerllt | Reply | Private Message me
November 11th
2009
4:38 PM
I had Mirena since Sept 2008. All I felt was a slight cramp when it was put in and a minor ache for a few hours afterward. I had some spotting for about 4 days after it and then nothing. Periods got lighter each month but the spotting got longer and longer.
I stumbled across this sight a few days ago when I was wondering if the Mirena could cause weight gain. After reading everyone's experience with it, everything started to come together. I got it 3 months after my daughter was born. I had gained 80 pounds while pregnant and lost 40 within 3 months. I then had that damn IUD put in. I gained it all back. I haven't been able to lose anything after gaining it all back. I have trouble just trying to maintain my weight. This is what I've experienced so far: weight gain, facial hair, cramping, sharp abdominal pains, joint pain, constant exhaustion, mood swings, bloating, tingling sensations, headaches/migraines, 15 days of spotting each month, constant hunger, no sex drive... I've had blood work, tests on my stomach and abdomen, iron infusions... All my doctor was telling me to do is change my diet and exercise when I went about the exhaustion. I've done that and gained 3 more pounds!
It's scheduled to come out December 4th. That day can't come fast enough for me!
-- By hallowseve1031 | Reply | Private Message me
November 7th
2009
8:27 AM
I'm currently taking Doxycyline for my Varicocele and so far I have been feeling very nauseated haven't been as hungry and I have anxiety in my stomach and I also feel shaky and nervous sometimes.. it is discomforting.Also I have been experiencing joint pain and an overall body ache.
-- By dylan111291 | Reply | Private Message me
November 7th
2009
12:50 AM
Well, I have one side effect I haven't seen anyone mention. My breasts feel weird, like they did at the beginning of my pregnancy. I've been trying to figure out a way to explain the way it feels, and its a combination of when I had a yeast infection in my breast while breast feeding (not nearly as painful though) and the way they felt when I was in my first few weeks of pregnancy. I also have constant cramping, its not terrible, but constant. Then I've also had joint pain in my hips, I've woke up in the middle of the night with my hands asleep. And you can't even imagine the weight problems I've had. I weighed 180 two days before I had my twins, 160 when I came home from the hospital, 135 in January, and now I'm 175. If I gain 5 more lbs I'll weigh as much as I did 8 months pregnant with twins. I've tried dieting and I still keep gaining. Then my DH also says that I am not the same person. He was the reason I started looking into side effects because he told me one night that I've changed since I got the IUD and it is making me crazy. I thought he was crazy, that it was just because I had babies and more on my plate now, but then I thought that maybe he was right, that my moodiness and weird feelings combined could all be from the BC. Then I started researching. There are too many woman posting problems with the Mirena. I think it should be taken off the market (and they should pay for everyone to have it removed). If you go to Google and just search for Mirena IUD, don't include side effects or problems, just type in "Mirena IUD", you will get an official site, a couple of drug websites, and the others are sites for side effects. That should tell you something. There's even an support forum.
-- By abmonk | Reply | (1) replies | Private Message me
November 6th
2009
9:00 AM
Hi everyone ~ I am so glad I have found all of you. I have an appt today to have the Mirena placed. I highly considering canceling the appt now. I have read probably 98% bad and only 2% good. can anyone help me decide what I should do? I was having it placed for my heavy, painful menses, the birth control is/was a bonus feature. really? I shouldn't do this eh? someone please respond.
-- By tonya1111 | Reply | (10) replies | Private Message me
November 6th
2009
9:00 AM
Hi everyone ~ I am so glad I have found all of you. I have an appt today to have the Mirena placed. I highly considering canceling the appt now. I have read probably 98% bad and only 2% good. can anyone help me decide what I should do? I was having it placed for my heavy, painful menses, the birth control is/was a bonus feature. really? I shouldn't do this eh? someone please respond.
-- By tonya1111 | Reply | (10) replies | Private Message me
November 5th
2009
1:23 PM
I am 50, pretty healthy, but have had a new condition of inflamed and severely painful joints and muscles limiting activity. Doc put me on 60 mg prednisone for 3 days, then 40 mg 3 days and 20 mg 3 days. First day was ok. Since then I have been a raving lunatic! I read the post about the person chasing their cat around and had to laugh and relate. I flipped off the neighbors workers because they were backing up a truck and it was noisy! It is all I can do to keep myself in check. I have canceled/rescheduled all unnecessary appointments until next week when I am finished. I "sleep" about 3 hours a night. Last night I peed the bed. I eat constantly. I have to work and concentrate (teach college) and that is so hard. I imagine my students must think I am on meth. I can't take it any more. I have 1 day left and I am not going to take the last one. I hope that this regimen will have calmed down the inflammation and if it recurs I will seek alternatives. AM NEVER going back to prednisone unless it is life or death situation.
Good luck to all those out there who have to take it long-term. Bless your hearts.
November 5th
2009
7:13 AM
I am a 27 year old female and I have stage 4 endo and have had lots of rupturing ovarian cysts. The laporoscopy was pretty ineffective for me and I tried birth control and had severe vaginal bleeding during intercourse. So my doctor wanted to do 3 months of Lupron Depot and add back therapy with Premarin.
I have only had one shot of Lupron and that was on 10/16/09. I noticed side effects with in 24 hours. I had severe joint pain especially noticed in the right hip ( I was injected in my right side) severe migraines, awful mood swings, short term memory loss and that was all in my first week on the shot. I started feeling better like 10 days after the shot, but that was only short lived. Now even after three weeks into the shot, I am in so much pain in my joints, it is difficult to take care of my two toddler boys and my home. I now have a crazy rash on my butt, and still have so much pain in my body as well as feeling numb in my toes, left arm, and fingers. This drug appears to be more ineffective than effective and I feel like women need to explore other options before going down this unknown path. I found out through research on the internet that the Premarin that I was taking as an add-back is made from PREGNANT HORSE URINE and that the horses are treated like crap so everyone can get rich off them. There has to be other options for people that have already gone through the nightmare of endometriosis. I would take endo over these side effects any day.
November 2th
2009
11:34 PM
One of the newest thing my daughter is experiencing is, her joints in her body hurt alot. Mostly in her knees and ankles. Anyone experiencing this?
-- By lorinda | Reply | (2) replies | Private Message me
November 1th
2009
11:39 PM
Please help me I already post my side effects that after taking that med for 7 months I start having a joint pain ,my all body hurts I have no energy left ,I have stopped taking doxy from last one week but I m not recover .does anyone know how I will get normal I m continuously taking Motrin 800 mg for my pain but I'm worried how long I can be on Motrin but if I don't take Motrin I cannot even walk ,does anyone think arthritis but my blood work was negative ...plz help me
-- By bfaridi | Reply | Private Message me
November 1th
2009
10:57 PM
I am happy that I have come across this website. My son was born in July 2nd, 2009 and I had the Mirena IUD inserted on August 24th, 2009. The insertion wasn't all that painful, but the cramps that followed were. It lasted for approximately 2 weeks following and I had some spotting here and there. I have had serious cramping on my right side and after sexual intercourse, I always bleed and cramp on my right side. I have complained about my right wrist hurting bad and my thumb seemingly being dislocated. After reading these post I see that I could possibly have joint pain as a side effect. I can honestly say that the joint pain didn't start until after the Mirena insertion but I never associated it with that.
I thought that I'd love the Mirena because I wouldn't have to worry with pills or having to remember to take birth control, but the side effects are not worth it. I have also had some weight gain. Serious mood swings. Depressed moods and very emotional. Ive been short tempered about just minor things and I haven't been motivated to do much of anything around the house.
I'm debating on whether or not I should have the Mirena removed. I'd hate for any of my symptoms to get worse.
-- By jlynn0702 | Reply | Private Message me
November 1th
2009
10:12 PM
I took Zocor for 25 days when I suddenly had such pain at night in my upper arms that I couldn't raise my arms up at all. It's been 2 full weeks since I stopped taking Zocor, and every single night around 7 I develop severe pain somewhere in my body, usually in my hands, knees or feet. It's in a different place almost every night. Tonight it's in my left hand across the whole top of my hand, below the wrist. Can Zocor cause this kind of pain so long after stopping taking it? And I only took it for 25 days! Please help - this really hurts and I hope it will improve.
-- By darbysmom | Reply | (3) replies | Private Message me
November 1th
2009
3:19 PM
Joint pain in fingers, joint pain in knuckles, wrist weakness after a week on 10 mg daily dose of Zetia. Amazing reduction in bad cholesterol and triglycerides when used with daily maximum 80 mg dose. Zetia was discontinued because of these painful side effects. 68 year old male.
-- By chuckie68 | Reply | (4) replies | Private Message me
October 31th
2009
1:58 PM
I am a 48 year old female with a-fib. I am not overweight...just started falling apart since now I am menopausal. I've been on Warfarin for 6 weeks. My INR has hardly moved. I'm now on 8 mg and have my INR test on Monday. I started at a 0.9. Now I'm at 1.20 and have been there for three weeks in spite of upping the warfarin. I've not changed my diet except to exclude greens and green tea when I began the therapy. Everything else is consistent.
I just started exercising again a week ago. Something I haven't done in five years since I lost my sister. I bought a Total Gym and enjoy it. It has helped me get some energy back, has helped alleviate some of the mental fog, and has lowered the incidence of anxiety attacks. (I've been getting anxiety lately...since the mental fog and memory lapses...that bothers me since I love to read and write and the mental fog seems to be taking the joy out of it now.) The reason I decided to start strength training again is because of the joint pain I have been experiencing lately. I didn't have it before warfarin. I do now. Only one joint, though. The strength training does help, but every once in awhile, that sharp pain comes back to visit. It's just a little less now.
I plan to tell the doctor that I have begun strength training again. Not just because it's good for me and my heart, but it seems to help with the side effects of menopause and warfarin...without adding another drug like an antidepressant.
Warfarin...I believe is a life saving drug. BUT, I have to do my part too.
BTW, if I didn't have triple thick hair, I would complain about hair loss. Right now, it's a non issue for me. Just saves money at the hair dresser.
-- By karenwest1961 | Reply | (1) replies | Private Message me
October 30th
2009
1:19 PM
I just want to say how happy I found this site. I'm not alone! I thought I was going crazy or that my body was shutting down completely. I had my mirena put in Sept. 2006 and my body has become something I don't even recognize. I am extremely bloated all the time and it hurts every time I eat and use the bathroom. I keep on thinking maybe I have Irritable Bowel Syndrome, but it doesn't make any sense because the symptoms showed up after I had the Mirena put in. I thought it might be food sensitivities so I got tested and have been trying to cut those foods out but it doesn't seem to be helping. I have tried all sorts of natural remedies but it never seems to go away.
I have gained 40 pounds since I the Mirena put in even though I have never have had weight gain problems before, I eat healthy and I am active. I also have a difficult time concentrating and focusing on anything. I also get dizziness, depression, irritability and mood swings. I also have been experiencing a sharp pulling or stinging in my uterus at times as well as joint pain (especially in my hips, knees) and painful intercourse with bleeding afterwards. My hair is also falling out and I have lost my desire for sex.
I've also noticed a drastic decline in my immune system. I have never been as sick as I have been in the last three years of my life. I seem to always be getting sick. For the first three months after the Mirena was inserted I had frequent bouts of yeast infections, bladder infections and still three years later I have these types of infections frequently. Not only this but I seem to catch everything that is going around when before the Mirena I hardly ever got sick.
Finally after reading the posts on this site I can trace all the changes in my body to when I had my Mirena put in. I am so upset that I have been suffering for 3 yrs with these side effects and it has taken until now for me to figure out that the Mirena doesn't just effect your uterus it effects your WHOLE body. I cant believe I trusted the doctor I went to when I had it put in that said that the hormones would only affect my uterus. NEVER, NEVER USE THIS PRODUCT!! It is coming out as soon as I can have it done! Please ladies if you know what it is like to have it removed let me know.
-- By danealfrancisco | Reply | (1) replies | Private Message me
October 29th
2009
9:11 PM
I'm partial to Mirena. I had it for all 5 years, but still debate as to whether my weight gain, hair loss and joint pain were related. I got it shortly before my boyfriend of 2 years broke up with me, starting drinking a bit more and was in general stressed out. So stress & alcohol equals weight gain. Weight gain (30 lbs in a year) equals joint pain. The hair loss is another story. It might be stress, but I went long periods afterward without stress and I could pull out rat size clumps of hair once every few weeks from my shower drain. I had it removed on October 6th 2009. I immediately started NuvaRing. 3 weeks later, I'm DONE with that. That's another story. Overall, though, I don't think the majority of the side effects were caused by Mirena and the 5 years I had it in were good. I won't get another one, just because I'm still skeptical. I think I'm going to take some time off birth control with hormones. We'll see how it goes. I can't say I'd recommend Mirena due to all of the horror stories I've read. Maybe in a year, if all my symptoms go away, I won't be so wishy washy.
-- By eightthirty | Reply | Private Message me
October 29th
2009
2:02 PM
I'M SO GLAD THAT I FOUND THIS WEB SITE BECAUSE I JUST DIDN'T KNOW WHAT WAS WRONG WITH ME. I THOUGHT I WAS JUST FALLING A PART. I HAVE HAD THE MIRENA FOR 14 MONTHS AND I HAD HEAVY BLEEDING FOR THE FIRST 8 MONTHS AND THAT ENDED. I HAVE SEVERE HEADACHES, INSOMNIA, DEPRESSION AND NUMBNESS AND TINGLING IN MY FEET. SOME MORNINGS I WAKE UP AND IT'S LIKE I CAN'T GET OUT THE BED BECAUSE I HAVE JOINT PAIN. I'M ONLY 38 YR OLD. I HAVE NEVER HAD ANY OF THESE PROBLEMS BEFORE THE MIRENA. ONE LAST THING I HAVE ALSO LOST THE DESIRE FOR SEX! IT'S GONE. I'M IN THE PROCESSING OF TRYING TO GET THIS THING OUT OF ME. ASAP . LADIES THINK TWICE BEFORE YOU GET THE MIRENA.
-- By malpatwen | Reply | (1) replies | Private Message me
October 25th
2009
12:26 PM
well im so glad i found your site. i thought it was just me. the headache every single day. the strange cramps for no reason. the joint pain. the unexplained mood swings. im getting this thing out of me asap
-- By maryearnest | Reply | Private Message me
October 24th
2009
7:00 PM
I had that Kenalog and it's been a total nightmare...My doctor Dermatologist injected into my two index fingers on each hand. The itching has been insurmountable and absolutely horrible....I haven't been able to sleep, wash dishes, do anything with my hands....I am telling you I am about to go out of my mind. I went back to her..and now she put me on Prednisone and Singular...now I am reading the side effects of Singular. She never told me what type of shot she was giving me for the pains in my hands that i was getting. I have had cortisone shots for joint pain before...for I figured that what it was that she was giving me...later to find out it was this damn Kenalog. I would have never agreed to such a thing until I had looked up the side effects. This has been a night mare completely...
The itching is so bad, that I have broken the skin, I have a rash completely on both fingers. It so sad...and she's charged me a fortune for it too, and the second time I had to come back for help. What the hell is wrong with people..?
DON'T TAKE THIS DRUG...UNLESS YOU DO CAREFUL CONSIDERATION..!!!PLEASE
-- By jesse24 | Reply | (1) replies | Private Message me
October 24th
2009
9:18 AM
I am so glad I am not crazy and all alone. I've had my Mirena since January for perimenopause and was still getting my period every month until this month. No I have such cramping, joint pain I can barely walk and my lower back is killing me. I am scheduled for a hysterectomy this Wednesday, I CAN'T WAIT, I'll be done forever.
-- By rwb4ever | Reply | (1) replies | Private Message me
October 18th
2009
7:35 PM
Has anyone had terrible joint pain from the Mirena? I didn't know where it was coming from, every time i would sit down for awhile then get up my joint ached so bad, i had never noticed this before, i told my doctor about it and he said i was just starting to feel the effects of getting older, i couldn't believe that, i am 38 years old and already being this stiff, i told him that i would not be able to move around by the time i was 50 if i felt like this already...and i was going to the gym at least 3 to 4 times a week so i was getting a lot of exercise, well i had my Mirena taking out about 3 weeks ago, mainly because my blood pressure kept going up and i had never had problems with this, so i thought maybe it was from the Mirena since i wasn't on anything else and i ate right and exercised, well i happen to notice the other day that i no longer have the joint pain i was having, i couldn't believe it, it had to of been from the Mirena, i feel so much better now, my sex life is back to normal and my blood pressure is staying down without medications, please don't listen to the doctors when they say its not the Mirena, we know our bodies more than anyone.
-- By honeygirl10 | Reply | Private Message me
October 16th
2009
5:24 PM
Hello Friends, it's been a week after i finished my 21 day Doxy treatment for lyme, Im still feel lot of fatigue and joint pain, i went to see my doctor yesterday, he explained the fatigue is a normal side effect after finishing the treatment. I feel so weak headache and migraines. The doctor told me to take pro-biotics and vitamins to recover faster i just started taking the pro-biotics today so i have to wait how it goes. the dizziness, migraines and fatigue doctor said it's a normal symptom of Doxy,, I hope these side effects will go away soon. if anyone has the same side effects after the treatment please write me.
Drink a lot of water.
thanks for sharing your stories,, we are not alone here.
-- By gato | Reply | Private Message me
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November 17th
2009
9:51 PM
I am 19 years old and have had Mirena since May 2008. I really struggled with the cramps and continuous bleeding for the first two months. My menstrual periods became less and less until I hit my year mark of having it. NOW, if I'm around a girl friend for more than a few days, I automatically get my menstrual period the same day she will and it will last for 8 to 10 days. I thought I wasn't supposed to get my period after a year of having Mirena?!! I've really enjoyed not having to worry about taking a pill every day or putting a new patch on every week and hope it stays on.... BUT, a year and a half of constant acne, the freshman 15, the anxiety, the decreased sex drive, the abdominal cramps are really starting to take a toll on my mental health!
-- By wigrl23 | Reply | Private Message meI recently have developed new symptoms of excessive sweating in my armpits, loss of interest in doing things I used to love, joint pain, thin peeling nails, dry skin, cold intolerance. I mentioned these things to my mother the other day on the phone and she reminded me that thyroid problems are very congenital in our family. I have a doctor appt in 2 days for a blood test. If all goes well, I may just have to say goodbye to Mirena. Its been 100% effective for me in the past year and a half, but I can't handle the excess fine-print bullshit that comes with it!!!