November 2th
2009
11:34 PM
One of the newest thing my daughter is experiencing is, her joints in her body hurt alot. Mostly in her knees and ankles. Anyone experiencing this?
-- By lorinda | Reply | (1) replies | Private Message me
November 2th
2009
9:03 AM
Hello everyone! I am a 28 yr old male, and I have now been taking this drug for about 1 1/2 yrs. What is so overwhelming to me is that I have been having some of these side effects, but it never occurred to me that they may have been caused by this medication. My side effects are not major, but they do really affect my self esteem and I think have some what depressed me a bit.
None of us have direct physical evidence that this medication is the cause, but I don't think this is a big coincidence. Below are what I believe may be side effects of this medicine:
Unlike before I now feel:
-Anxiety (im always nerves, and was blaming debt for it)
-Decrease in sexual drive (also blaming my financial problems)
-Joints popping all the time (blaming my gaut)
-Bigger forehead because of minor loss of hair (blaming age)
-Problem falling asleep (blaming financial problems)
and again im always scared, even if everything is ok (ive been holding together because on the other hand, since i was born, I have always been a very strong minded person). This is really depressing because two years ago, nothing would be scare me, I mean nothing, I was afraid of nothing. No matter what time it was, or what situation I found myself in, my buddy down south would be ready for action, now when im going to have sex, im all worried hoping that it works!, (dont get me wrong, it works like 90% of the time) but before it would work 200% of the time, i mean i was turned on by a damn broom, and now its not the same. This really *ux!
I have been blaming everything on my financial ruin that I am currently in, but am having second thoughts on what is causing all of this. This site has really opened my eyes and given me a whole new theory and even hope.
I once asked my doctor that if I went home and got on a diet, exercised and did all that was necessary, would he consider taking me off the pill or lowering my dosage and he immediately said NO. I mean he almost didn't even let me finish asking. He told me that If i wanted to go in a pine box to stop taking it. So he scared the crap out of so I have not stopped taking it. I can afford to go to different doctors because i don't have insurance or money to pay for the visit. I wonder if this doctors has advised me based on his financial convenience. I mean is it possible that a doctor may lie? I never thought doctors would lie. Im afraid of just getting off the pill, im afraid that all the doctors are going to tell me not to get off of it. my bp is usually about 130/85 some times up to 140/90.
I would appreciate peoples thoughts on what I should do?
Thanks everyone that takes part in this blog! it is really helpful for people like me that have no money to get advice.
Hope everyone makes the right decision!
Regards!
-- By jackpot | Reply | (2) replies | Private Message me
November 2th
2009
4:47 AM
Burning sensation in joints ,specifically in knees started after 4 yrs of Arimidex use besides muscle pain,fatigue and weight gain inspite of exercise and diet control .Frequent fever lasting 2-4 days with lot of weakness.So far so good as long as I am protected of relapse.
-- By vipla | Reply | Private Message me
November 2th
2009
4:16 AM
I have been on Arimidex since 2005 ,will be completing 5 yrs in 2010 .After 4 yrs ,I have started having burning sensation in my joints ,more so in my knees .I have been doing exercises prescribed very regularly ,I have added at least 7 kg in 4yrs .I have a controlled veg diet.Fatigue and body ache are the other side effects since the beginning of the drug.
-- By vipla | Reply | Private Message me
October 28th
2009
12:18 PM
that medicine has killed me ,i have been taking doxycycline from last 6 months and since 2 months i start having severe joint paints thou i started feeling little pain when i started that medicine but i didn't pay attention but now i feel my self very old my whole body hurts and i m only 25 but i feel like killing myself ...my each part of the body hurts ,i stop taking doxy from last one week now i m taking Motrin to get rid of my body pain i don't know how long it will take for me to recover ,even my throats hurt everything of mine gives me pain ,i m very depressed i wish i get over with my body pain soon :(
-- By bfaridi | Reply | (2) replies | Private Message me
October 27th
2009
9:35 AM
Both my husband and my son have had Kenalog Injections for Hay Fever for quite a few years. I heard recently that long term use of this injection for hay fever can cause osteoporosis in the bones. My husband has spinal trouble and my 40 year old son has trouble with the joints in his elbow. Does anyone else have any similar problems
-- By amygeorge512 | Reply | Private Message me
October 26th
2009
2:06 PM
I'm 48 and got a Mirena put in last January at the suggestion of my doctor. I'd been having menstrual migraines and we thought that a steady dose of hormones might help with the dips and prevent my headaches. Well, it has helped some, as the headaches don't come every month anymore, however, I do still get them, so it hasn't really done what we hoped. Add to that my (growing!) list of symptoms and something has to be done. I am very active. I do Taekwondo 4x a week and was working out 5x a week this summer in preparation for my black belt test. You would think that I'd lose weight with the workouts I've done for the past 10 months, but no, my weight has increased over 10lbs! And it's not muscle, either: My breasts, waist, hips and thighs have all increased. I feel bloated, tired to the point of exhaustion even after 8 hours of sleep, and all of my joints are achy. The brain-fog has gotten so bad that I've had to go back on ADD meds to try to maintain my focus at work. I'd been doing my workouts for 3 years prior to getting the Mirena, and I never felt tired the way I feel it now! I'm seeing my doctor next month and this thing is out of here!
-- By tkdmom | Reply | (2) replies | Private Message me
October 23th
2009
10:48 PM
I'm 54, started taking lisinopril in jan 09. I took for about 3 months and noticed a decrease in libido. My pressure was pretty much in control, so I stopped taking it. I started again around 1st of Aug 09. Approx 3-4 weeks later, I began to experience severe pain in my left shoulder and arm. It began to move into my neck and back. I went in for an EKG to ensure I wasn't having a stroke. It was normal. I experience dizziness and headaches. I wake in the night and my 2 left fingers on the left hand are completely numb. The pain in my neck is now moving to the right side and some shoulder pain seems to be apparent. I noticed pain in other joints as well. I'm unable to work out at the gym as I usually do due to the pain my my left arm. I highly suspect these symptoms to be caused by lisinopril. I've been taking 20mg and was just switched to 20 mgm Hct. a week ago. X-Rays were taken of my neck and shoulder last week. Haven't' heard from the doctor as of yet. I was on Diovan before I lost my job and health benefits. As a vet, the VA put me on the Lisinopril. The Diovan worked fine for me, too expensive for us vets I guess. I am discontinuing the Lisinopril as of today 10/24/09. I feel like I imagine a ninety year old would feel with these aches and all. I havent' admitted it, but I believe I'm feeling mildly depressed as well. Let's see what a week of purging this from my system does. f. D.
-- By jlias | Reply | (3) replies | Private Message me
October 23th
2009
8:00 PM
I've had my Mirena out for nearly 2 weeks now, after 15 months of living with the side effects. I've posted before about fatigue, crankiness & irritability, low-grade depression, weight gain, poor sleep, headaches, etc -- same old story as everyone else -- that came on gradually over the months. I'm still SO grateful to this website for making it clear to me that this wasn't just typical exhaustion due to having 2 little kids (now 3yrs & 16mos) or post-natal depression. Anyway, getting the Mirena removed turned out to be an ordeal in itself -- the strings disappeared and the doctor couldn't see anything with a speculum, so I had to wait 3 weeks to get an ultrasound and it turned out to be in the right place (phew!). Then I had to wait nearly 2 months to have a hysteroscopy -- they dilate your cervix and poke a camera up inside your uterus so they can see where the coil is, then they can pull it out. The poking and prodding was a huge drag, uncomfortable but not excruciating. When they actually pulled it out it barely hurt at all. I was a bit sore for a day or two, like mild period pains but nothing serious.
So, here's the update so far: My sex drive came back the very next day after being completely gone for ages! That was such a nice feeling again, to actually want to be with my husband instead of just going along for the sake of the marriage! I haven't felt sick or achey in my joints since it came out either, and the headaches are pretty much gone after being a constant in my life. I'm sleeping easier, and generally feel healthy again -- such a relief! My energy levels are still really really low though; I sure hope they start to come back soon. I think it's going to take awhile since I'd pretty much stopped exercising due to feeling so ill and tired all the time. I'll have to build myself back up through eating better and getting back to the gym, so unfortunately I think the weight-gain and fatigue are going to take longer to 'cure'. But still, I'm so glad to have it out and know that whatever happens to my health now, at least it's not being caused by hormones that just don't belong there.
Hang in there everyone; and don't be afraid of the pain in having it removed.
-- By luluweezie | Reply | Private Message me
October 23th
2009
5:52 PM
I was prescribed Avelox for a sinus infection that would not go away. After 4 days of taking it I have had severe cramping in my joints around my ankles, knees, shins and calf muscles. I have pain in my fingers too. I feel totally out of it, and dizzy. I have little to no appetite. This is a terrible drug, and should be pulled off the market. I was desperate to get rid of my sinus infection, and now I find myself having bigger problems from the side effects of this drug.
I have had pain now for 4 days. Does anyone know when this pain goes away?
October 22th
2009
6:45 AM
Hey Guys,
I'm new to all this but just wanted to share my story with everyone so I feel like i'm not so alone! I'm 23 and was diagnosed with SLE 3 years ago.
It started in my joints and then moved to my kidney's real fast. I now have stage 4 nephritis, finished 6months of cyclophosphamide in Feb and have been on no less than 40-20mg of pred for about 2years. Just when things were starting to look better it has stared in my blood so they are trying to up my dose again. It has thinned my bones so I am on special meds for that now too.
I know taking the pred is something I need to do to live but it comes at a really high price. I don't even look like the same person I used too because of the moon face. I know it's shallow but at 23 it is almost as bad as having to live with this disease. I now have really low self esteem and get anxious all the time, which is affecting my job. As much as I want to come off I also worry that I would have to stop work again as the pred is what keeps me going. All I want to do is get off it though! Anyone know any alternatives? Also, just wondering if you guys are still drinking alcohol while taking pred?
Thanks for listening guys!
October 18th
2009
8:36 PM
I have been on Fosamax for eight weeks. I had joint and muscle pain especially in the neck right from the beginning. I went to the pharmacy and asked about the effects. She told me to just continue to take the medicine.
After the second refill I also have been having stomach pain that wakes me up from sleep. My neck seems to feeling worse. After reading all the other blogs I am stopping this drug. All of my joints are painful and also there is a lot of clicking!! I hope that it hasn't done too much damage.
October 14th
2009
8:09 PM
hair loss, neuropathy in my right leg, complete exhaustion, numbness and tingling, stabbing pain in my back that wraps around my chest, headaches, depression, paranoia, stomach pains, chest pains, tremors in my head, pain down my neck, pain in toes, blurred vision, tearing pains in feet, very weak, moody, pain in face, really bad symptoms week prior to period, cracking sound in joints, -- Have had symptoms for three years and just had a neurologist confirm today that all of these problems have been caused by my doctor prescribing avelox and prednisone!
-- By jodyestel | Reply | (1) replies | Private Message me
October 11th
2009
9:25 PM
Tendons were tight in my legs, fingers aching, and joints were hurting after taking this antibiotic. Besides the fever accompanied by the headache.
-- By sammy7082 | Reply | Private Message me
October 9th
2009
11:45 PM
Within 5 hours of first dose, I had "severe body aches" like those with the flu. My joints and muscles hurt so much that night that I had to call my parents to help me take care of my kids the next morning. I told the doctor who prescribed it, and he said to try to stick it out for the week...what horrible advice! Thinking it was crazy advice, I reluctantly took doses 2, 3, and 4 and experienced the joint/muscle pain each time, but I guess I just somehow tolerated it as if I had the flu. My hands became rather puffy as well. After the 5th pill, I woke up in the middle of the night with HORRIBLE joint and muscle pain, which was so awful that I could barely move; I was able to move a little bit, with extreme pain all over my body--particularly my knees, wrists/hands/thumbs, feet, and shoulders. I felt and heard unnusual snapping, cracking, and popping all over my body when I would move around at all. I stopped the med immediately, and noticed some improvement over the next several days. It has since been 9 days since the last dose, and I still have considerable pain in my knee, my thumbs/wrists, and arms. Unable to do my regular exercise, I tried gentle swimming and light water aerobics several days ago, but found even that to be too painful to do. I'm still unable to pick up my young children, drive without pain (mostly in right knee and muscles connecting to it, when pushing the brake) and am still somewhat limited in typical daily activities. Also, for the last 5 days or so, I've had a strange nodule present on a tendon in my thumb which has been hurting since taking the antibiotic. This has been a very frightening experience, to say the least.
-- By amyalison71 | Reply | (1) replies | Private Message me
October 5th
2009
5:09 PM
I just got my Mirena removed today. I am SO excited. I have had it in for 1 year and it has been the worst year of my life. My symptoms were :MIGRAINES!- for which I was admitted to the hospital, they did all kinds of tests, and found nothing-( they even gave me an IV of morphine, and the migraine was so intense, i still felt it with the morphine.), arthritis- (or EXTREME ACHING in all of my joints, especially my hips, knees and lower back area., pain in my chest- like unable to breath, pain in my neck, I was sleeping 9 hrs a day and still exhausted and lately its been severe insomnia, cramping in my lower stomach and bloating really bad. I am 5"3, 21 yrs old, originally 107 pounds, and have two kids. After my daughter I was on Seasonique and although it made me have mood swings it was NOTHING in comparison to this. After my daughter I lost all the baby weight and then some. Even after I had my son in the 6 weeks before I got the Mirena, I lost all of the baby weight and was back down to 107 pounds. Now I weigh 130 pounds- and thats doing the same exercises and eating the same that I have always done. I have also never had ANY UTI's and I have had consistent UTI's since I have had it in, that have NOT gone away with various medications. I have had NO sex drive. Absolutely NONE, and I am 21years old! I felt very fatigued every day and it took all my strength and energy and mostly motivation that I HAVE TO provide for my family, to get up and go to work everyday. I read the brochure for Mirena when I got it inserted, and there were NONE of these side effects. I found some of these side effects on the Canadian website, and found people's horror stories of having Mirena in. I am SO happy to have finally gotten it out and am looking forward to being a normal healthy person again.
-- By juniadegracia | Reply | (1) replies | Private Message me
October 2th
2009
2:09 PM
I just turned 34 and I am a woman. I have struggled with mild asthma from early teens. I was always able to control my mild asthma with a rescue inhaler as my asthma was triggered primarily by cats/some dogs. However eventually that faded away and I was in control as long as I wasn't around cats. At age 31, I had my daughter (she is now 2 1/2), I rarely had asthma symptoms during my pregnancy and before. However about 1 week after my c-section I had to go to the ER because I couldn't breathe. They thought maybe I was having a pulmonary embolism from the previous c-section surgery. Fortunately I wasn't, but unfortunately for whatever reason, my asthma had been triggered (even if I wasn't around animals). My doctor put me on a Advair, another rescue inhaler, and ZPac. It helped right away.
I noticed a big difference in my ability to breathe. However 2 1/2 years later, I'm still on it. 250/50 once a day. I've tried going off of it several times but I'm unable to breathe. I don't want to be on a steroid long term, but I also have to be able to breathe after about 2 days being off of it. It's like gasping for every breathe. Not fun at all. The side effects I've had are hives to anything cold, itchy skin, stiffer feeling joints, occasional mouth sores, lots of phlegm (coughing up phlegm especially in the morning). I've never suffered from leg cramps or depression from Advair, in fact prior to having a child I was on Lexapro for anxiety and after being put on Advair my depression/anxiety has gone away. In fact, I've lost weight (30 Lbs) and am now down to the same size I was in college! I've asked two different doctors my OBGYN and Family Doctor if it's safe as we are planning for another child. They say yes. My OBGYN has said if I can't breathe I'm not going to be able to carry full-term. Which I guess makes sense. My Family Doctor said you can use Advair only as needed as it is not a bad drug to go off and on again (unlike antidepressants where you should never just stop them cold turkey). He said (he also suffers from asthma) that asthma can be triggered by stress (and my life has been extremely stressful over the last year).
Is there anyone who has had similar side-effects? Do you believe the benefit of Advair outweighs the negatives? I'm wondering if there is a better non-steroid drug that I can take that is SAFER for pregnancy and for my future. Open to suggestions...
-- By poodle_girl | Reply | (1) replies | Private Message me
October 1th
2009
8:52 PM
I'm a 54 years old. I've been taking lisinopril hctz 20mg-25mg and is now having severe pain in my joints; it started in my left knee first. I thought I may have twisted or turn it , then both knees started hurting and my legs are weak and my feet burn' it like i'm falling apart. I've only been on the medicine for 6 weeks but convince its the cause of my joints pain. I will no longer take this harmful drug. I pray that the pain and weakness in my joints will go away.Thanks very much for this web sites, I can only imagine the money it save me from MD advice.
-- By jwnelso45 | Reply | (1) replies | Private Message me
October 1th
2009
11:26 AM
this is my second week of this drug and my joints hurts, feel dizzy and weak, Im taking after breakfast and after dinner, I think it's better this way, don't take with an empty stomach.
the doctor said I have lyme disease but he said i have only 1 positive band normally needs 2 to be positive... does anyone knows this?
Thanks guys ... keep strong
-- By gato | Reply | Private Message me
September 30th
2009
9:57 PM
I've now taken 12 days of 21 day course of treatment. After struggling with acid reflux, nausea, etc., I thought I'd share some things that I found that helped me tolerate it better in hopes it may help others.
I take a pill as soon as I get up and then another as soon as I get home from work - 5:30 a.m. and 5:30 p.m. I drink a good 4-6 oz. before I take the pill and another 8-10 after swallowing the pill. I try not to eat any later than 2 hours before going to bed, which has dramatically reduced and mostly eliminated the acid reflux.
I've been following the instructions to the letter - not eating 2 hours before or 1 hour after taking the pill and no dairy for 2 hours in hopes it would give maximum absorption to get rid of the Lyme Disease. However, I've found that by keeping something on my stomach during the times I can eat, my nausea has also been lessened. I was really struggling with nausea about 45 minutes after taking the pill, but have found increasing the water to the levels indicated above helped reduce the nausea.
All that said, I'm feeling some fatigue, am a bit lightheaded and my stomach is bloated and a bit tender. Still, it's not nearly as bad as some of you are reporting and while I wondered at Day 4 if I could complete all 21, I'm now hopeful I'll be able to make it. I will, however, be doing a happy dance when I take the last of the pills next Friday. Good luck to all - hope maybe something I've suggested may help someone!
-- By lyndyb | Reply | (1) replies | Private Message me
September 30th
2009
7:54 AM
I had back surgery in July and caught two infections from the hospital, Staph and pseudonymous. I had a picc-line put in and was put on Cipro oraly and Ancef. I got Steven Johnson syndrome from the Cipro and almost died. I looked like a burn victim and swelled from head to toe that was three weeks ago. They pulled me off the Ancef and Cipro. It took a week of me running 103 + temps and the dr. kept telling me its a virous until the rash showed up and my tongue swelled and private parts and throat started to swell shut before they decided to admit me. Then once all that was done and they figured it out they put me on impernem to kill both infections. They pulled my picc-last week and put me on Doxycycline. I have done my research and know that the two are related I asked my dr. what the chances were of a reaction again he told me less then 1%. Ha! I am seeing an infectious disease dr. by the way. Since I started the Doxycycline last Thursday I have developed hives I called the dr. and was told they are not worried about it because I am not running a 101 temp and I am not swelling, plus they don't even know if the Pseudonymous is cured. What do I do? If I go off the antibiotics I will die and if I stay on them I am probably going to die. My joints hurt all the time now and I am only 31. Do I look for a new dr.? Can someone please help me? This is the only website I have found so far where people have had the same reactions as me. These antibiotics are dangerous they need to be taken off the shelf. Thank you and good luck to everyone who is struggling with this.
-- By krazycowgirl28 | Reply | (2) replies | Private Message me
September 29th
2009
11:06 AM
I took Levaquin several months ago and have had on going foot pain. I was recently diagnosed with Complex Regional Pain Syndrome following a Stress Fracure in my heel. I have had muscle aches, all ove pains, bone pain, insomnia, depression, irregular heart beat, headaches. irritability, dizziness,stiffness in my joints, stomach aches. This has all been a terrible ordeal. Do you think it is related to Levaquin. I have also taken Cipro several times for UTI and Diverticulitis. Thanks for listening.
-- By jdasstevens | Reply | (1) replies | Private Message me
September 28th
2009
9:55 PM
I took doxy for 5 days then stopped because of side effects. It is 12 months later and I still have a very uncomfortable burning feeling on arms, chest, and back.
Has anyone had this prolonged side effect? Has anyone been able to get rid of it?
Thanks
-- By jeff001 | Reply | (1) replies | Private Message me
September 19th
2009
9:56 PM
Took Doxy for 2 years for Lyme and Babesia. Never had a problem with it. I stopped taking it for 8 months, then the Lyme disease symptoms returned. So I started back up on it. I noticed migrating pain in all of my joints...even every toe. I stopped taking it for a week and the joint pain pretty much resolved. I started it up again and sure enough, joint pain returned mainly in my knees and hands. Constant cracking of my thumbs, knees, toes,elbows. It also caused my tendons to become very tight and sore in my right hand. Making it hard to hold my dog's leash or open a door knob. Whether it was a bad herxheimer reaction or just my body deciding it was sick of this drug......I may never know.
-- By fit2move | Reply | (2) replies | Private Message me
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November 5th
2009
7:13 AM
I am a 27 year old female and I have stage 4 endo and have had lots of rupturing ovarian cysts. The laporoscopy was pretty ineffective for me and I tried birth control and had severe vaginal bleeding during intercourse. So my doctor wanted to do 3 months of Lupron Depot and add back therapy with Premarin.
-- By soliderswifey2005 | Reply | Private Message meI have only had one shot of Lupron and that was on 10/16/09. I noticed side effects with in 24 hours. I had severe joint pain especially noticed in the right hip ( I was injected in my right side) severe migraines, awful mood swings, short term memory loss and that was all in my first week on the shot. I started feeling better like 10 days after the shot, but that was only short lived. Now even after three weeks into the shot, I am in so much pain in my joints, it is difficult to take care of my two toddler boys and my home. I now have a crazy rash on my butt, and still have so much pain in my body as well as feeling numb in my toes, left arm, and fingers. This drug appears to be more ineffective than effective and I feel like women need to explore other options before going down this unknown path. I found out through research on the internet that the Premarin that I was taking as an add-back is made from PREGNANT HORSE URINE and that the horses are treated like crap so everyone can get rich off them. There has to be other options for people that have already gone through the nightmare of endometriosis. I would take endo over these side effects any day.