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Journey symptoms and conditions

Here are side effects posted by other members, that mention journey.
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100 Side Effects posted for journey

October 29th
2009
8:36 PM

I am 28 and have almost been on Loestrin 24 for a month now. I haven't noticed many side effects. It has actually even helped my acne thus far into my journey. However, I've felt bloated for about two weeks straight. I was on Yaz for the past few years and liked it okay but switched due to a conflict with another medication with potassium in it. Long story short, I have gained 5-8lbs this month. I am working out at least an hour most days and eating well, so I am really bothered by this. It seems others have had this issue as well. When you switched back to another BC pill did the weight seem to come off? I am trying to decide if I stick it out for another month or two and see if my body adjusts to Loestrin or if I should call it quits and start on Yaz again.

-- By jj963 | Reply | Private Message me

August 27th
2009
10:15 AM

I took this poison 5 years ago and I'm still suffering the effects of it. PLEASE send it MEDWATCH reports so that they can get this off the market.
For all of you just starting your journey into hell, only time will help you. Take hot baths, don't over exercise ( you will tear tendons), change doctors tell everyone you know not to take any FLUOROQUINOLONE (LEVAQUIN, CIPRO, ETC.)

-- By helen950 | Reply | Private Message me

July 30th
2009
3:16 PM

Like everyone else, I am SO glad I came across this web-site. I had the Mirena put in about 4 months ago, and it’s been quite a journey since then. I don’t have a horror story like some of the women have, but my experience hasn’t exactly been a walk in the park. I gained 18lbs in 2 months, I feel nausea all of the time, I look to be about 4 months pregnant, and I no longer recognize my period…it’s been different every month. The first month I think I bled 23 out of 30 days, the second month was 17 out of the 31 days, the third month I had light spotting for 6 days, then a regular period for another 7, and this month….well, we’ll just have to see what happens. Oh, and the nonexistent tolerance level, I can relate with that one, too. Of, course the doctors say “it’s normal” or “it’s not the Mirena”, but I know my body and this is definitely NOT normal!! Having a baby is not part of me and my husband’s 5 year plan, but we may just have to take our chances and go back to condoms.

-- By ladyburns1 | Reply | Private Message me

July 19th
2009
4:06 AM

I'm loving it.

After trying every HRT and pill under the sun for surgical menopause, and I'm in my 30's, I'm glad I've finally found something that makes me feel better.

Trust me here. Everyone is different and it may take you a thousand different medications until you find the right one, especially with hormones, but when you find the one that works for you life as you know it changes for the better.

Don't listen to that bollocks about HRT or the Pill causing you breast cancer and death... not having HRT or the pill etc can cause you just as many difficulties. Some of you may get osteopenia, vaginal atrophy, and other things that are very private. Let's face it, death can come after you even if you're not on hormones, just look at a children's hospital if you want proof.

I wish all of you suffering from hormonal conditions a healthy long happy life. I know the journey there is hard, but never give up. Just try something else. Even giving hormone therapy a break for a few months and then trying a different drug or approach such as a smaller dose.

Perhaps it's not even your hormones causing the problem, perhaps you should seek a specialist physician, immunologist, endocrinologist or just find another doctor that understands what they are doing and actually helps you.

All of the above saved my life. All of it. Together. It is a long hard road ladies but it's your life.

Blessings to you all.

-- By sunsetdreams | Reply | Private Message me

July 6th
2009
1:35 PM

I am a 39 year old mother of two teenager daughters. I had my original Mirena inserted in July, 2002 due to extreme bleeding for many months. I would bleed for about 24 days out of every month and felt horrible. As I was only 32 years old at the time, my GYN did not want to perform a hysterectomy and suggested the Mirena. I bled for a couple of months after insertion, but shortly thereafter I had no bleeding and have had no period ever since. This is the side effect that is fantastic!

Shortly after having the Mirena inserted, my marriage fell apart and I was feeling very depressed, EXTREMELY EXHAUSTED and overall "crappy". I assumed that this was all due to my life circumstances. I gained significant weight in my mid-section, I had (and still have) constant headaches, I am always still very very tired, am dizzy, fuzzy-minded, blurred vision, achey, etc. etc. etc. I never once thought about the Mirena being the cause of any of these symptoms.

My doctor has checked my bloodwork numerous time to ensure my iron levels, etc. were okay as well as my thyroid - every time the results were normal so I thought it must all be in my head and all be due to me being somewhat depressed, etc. due to my marital breakdown.

I had my 2nd Mirena put in in December, 2009 as the first one was in for the full 5 years. It was a little painful getting it taken out and the new one put in, but for me the pain was worth it to continue to be period-free for another 5 years!

Recently I have been experiencing hot flashes and night sweats so I asked my doctor if I could be going through menopause. She ordered bloodwork to check my hormones and informed me last week that yes, in fact I am quite far into menopause!!! (remember, age 39)! Because I have not had a period in almost 6 years, I did have the early warning signs of menopause such as missed or irregular periods.

I wondered why I would be going through it so early so googled "Mirena and early menopause" which brought me to this site. When I started reading all the side effects, I wondered if it was maybe the Mirena that cause a lot my problems over the years and it wasn't in fact the dissolving of my marriage and change in life circumstances.

I now have to decide what to do. My doctor stated that I should (because of my young age) go on Hormone Replacement for quality of life. (I am close to my decision and believe that HRT is beneficial for me) - hopefully this will help with the terrible symptoms of menopause I have been having.

I am wondering if having the Mirena inserted had any part in accelerating my body into menopause. I am thinking of having it removed before starting HRT because even though the doctor told me that there is a very low hormone dosage in the Mirena, I don't want to over-do it with hormones as that could cause me even more problems. It would be amazing if I had it removed that I would feel the way I used to feel back 6 years ago (minus the husband)

FYI, before I had the Mirena inserted the first time I read and re-read the pamphlet which contained all the possible side effects, etc. But, as I stated above, my life changed dramatically very shortly after insertion so it never occurred to me that some of my problems may be related to the Mirena.

If this device does accelerate a woman's body into menopause, this should be well publicized as it would be tragic for young women who use this as a form of contraception early in their life to only find out later that they are no longer able to conceive due to their body going though "the change".

-- By 39yearold | Reply | (7) replies | Private Message me

February 24th
2009
11:35 AM

February 24,2009
I am a 66 year old woman in good physical condition(that is until I took Levaquin) I took it in December 2008 and it is over two months later and
i am still suffering from extreme jount and muscle pain especially in my left
shoulder and left knee. I took it for twelve days for a sinus infection and
on the eighth day woke up with great swelling lumps on the back of both knees. Initially thought it was just old age and arthritis. Soon all the joints in my body begin to ache and swell causing severe constriction of movement. Could hardly manipulate the stairs in our house. I quit taking the meds as I had never experienced anything like that before and knew it was the Levaquin. I can only hope that the damage is not permanent but am afraid it might be. I can't sleep on my left side for the pain and it never goes away. Left knee is still swollen and sore. Elbow joints are also painful and hands are sore. I know the medical profession will not acknowledge this so I didn't even tell the Dr. This drug is dangerous
and should be taken off the market. L. H., Blanchard, Ok.

-- By lorettahedrick | Reply | (2) replies | Private Message me

February 23th
2009
4:34 PM

I am a 31 year old male, in decent shape (play basketball, volleyball, workout at least 3 times a week) but I have a family history of high blood pressure and have had it myself as long as I've been tested. Went to cardiologist as a check up on my slightly enlarged heart, long story short, ended up on Metoprolol (25mg) beginning of 2008 and have been fine but no real help with bp. Then was put Lisinopril (5mg) a few months ago and my blood pressure was great at last checkup. However during that time I had a couple of weeks where I was very dizzy, that sort of feeling your brain is taking a second to keep up with your head as you get up, along with a fogginess and what seemed like sinus issues but I chalked it up to weaning off of a small dosage of Zoloft I had taken for over a year. I also developed "the cough" everyone refers to, but since it is winter in New England I chalked it up to dry heat, even though it was a choking cough unlike any I've ever had before. Also during that time I seemed to completely lose my sex drive, again figuring it was just something to do with the Zoloft or general anxiety. Then in the past week I started getting a constant headache, having really interrupted sleep, very foggy and out of it, tired, dehydrated, constipation, nausea, all things that I would normally associate with allergies or some kind of sinus/flu, but yet I couldn't really pinpoint anything that would be causing it.

Then I finally started looking up things about the meds I was taking and came upon this site, and guess what? Everything and every way I was feeling was described in hundreds and hundreds of posts on this site. I don't think my side affects were quite as strong as some have experienced (for instance the cough is very infrequent, like twice a day) but I have only begun my journey with Lisinopril. So despite the warnings, I decided to stop taking it a few nights ago, and almost instantly I began feeling better the next day and since then.

I have since called my cardiologist and he has recommended I switch to Diovan, basically saying that based just on the cough symptom alone, he wants me off of Lisinopril as this is a known side affect. Now I am left debating whether or not I want to continue down this path of trying different combinations of pills to poison my body in order to lower my bp. It seems like others have noted marked differences between taking Diovan and Lisinopril, where the Diovan has been much more tolerable than Lisinopril (with a great decrease in any side-affects) but I'm 31 and although I know it will be very difficult to reduce my bp on my own (believe me, I've tried) maybe I'm too young to start with the "last resort" of these toxins. Just reading about the possibility that Lisinopril was robbing my body of zinc or other minerals, so that my immune system is greatly weakened, likely being the cause for most of the symptoms, is enough to ward me off of pills altogether. It's a sad statement on the state of health care in America when I am left to basically make such an important decision on my own, because I can't trust that my doctors aren't just working in the interest of the drug companies to boost their income. I don't want to have to choose between a silent killer and a horrible existence filled with "side-affects".

In the end, based on some of the reports on here, I think starting on 40mg of Diovan will be fine, but I will certainly be VERY wary of anything unusual and immediately find other options.

-- By dmbfreak | Reply | (6) replies | Private Message me

February 18th
2009
8:31 PM

****OKINPA: I can't wait to hear how you're doing with the generic Celexa, because I just started it today. I have noticed a couple side effects: fatigue, shaky hands and sort of "in a fog" but I feel much more relaxed than I did yesterday!! I'm praying to God that this medicine will just be a guide to help me begin the journey of counseling. I am only on 10mg and hope I don't have to increase, just need a little something to calm my nerves so that I can actually make it to the counseling sessions without having a panic attack. I was also prescribed ativan to use as an immediate relief until Celexa kicks in. I take half of the .5mg tablets of the ativan. I HATE taking medicine and any weird change in my body makes me paranoid, so I can't believe I'm actually trying this. BUT, I have to, I'm so sick of being a prisoner in my home.

-- By readyforchange | Reply | (2) replies | Private Message me

February 15th
2009
3:34 PM

It is hard to tell what side effects come from which med but after reading other peoples experiences I think that its easier to put my finger on. I have been taking Lamictal and Lexapro since last spring/summer. I started to feel a lot better as soon as I started the Lamictal. I have a history of being severely depressed all the time. It has been a long road in search of the correct combo of meds. We added Lexapro and I got even better. I was on Wellbutrin and Topamax before this and it was too much drugs in my system causing loads of anxiety. I heard Topamax makes you Dopey so I was happy to get off that. I don't notice Lamictal doing the same thing. I think clearly now, but I do have trouble crying - which is fine with me. I am so sick of fucking crying everyday. Aren't you??? The whole point of treatment is to increase the quality of life and These drugs have definitely helped me to be happy which is all I care about. However, I do still wonder what I would feel like without them. It is tempting to stop once you feel this good. Why cant i just be able to feel this good naturally. WHY WHY WHY .

-- By happynow33 | Reply | (2) replies | Private Message me

February 3th
2009
11:49 AM

No horror stories to report. Was on Lexapro 20mg for several years. Am switching to the generic Celexa soon because that is what insurance will pay. I have had weight gain problems with Lexapro, hope that subsides with the Celexa.

At times I did notice "weird sensations" while taking Lexapro. Seemed to come on if I missed taking the med or took it late. Almost like some type of withdrawal symptom. I just work hard at taking it as prescribed. Lexapro worked well for the Panic/Anxiety though. Will let you know how things go with the Celexa in a few weeks.

-- By okinpa | Reply | (1) replies | Private Message me

January 27th
2009
11:35 PM

I am a sophomore college student who just withdrew from college because of the side effects of depression and anxiety. Yaz is a horrible medication to be on and I would not recommend it to anyone. I am still experiencing the side effects and it is the worst feeling in the world. I used to be a strong, independent person who knew what I wanted out of life and loved it. After taking yaz for about 8 months I feel like I am going crazy, I am so confused, lonely, and scared to be alone because I don’t know how bad my depression might get. There has not been a night in a long time that I have not cried, sometimes even for no reason. Like I said I have taken a semester off from college in hopes to transfer closer to home because the side effects are that serious. If you're not on yaz don't take it, if you are watch for these symptoms because this is a dangerous product.

-- By lax16cliff | Reply | (2) replies | Private Message me

January 21th
2009
12:06 AM

Hi, I have been taking birth control for almost four years now. It has been a journey like many woman have experience. I started with Diane which made me gain a lot of water weight! More than 10 pounds in a month!!! Then I switched to Yasmin, which was grate for a few months and started to have mood swings and severe depression, I went psycho with this pill, doctors prescribed me and antidepressant which in turn made me loose the little libido I had left… so I switched to Nortrel which was ok, but I still gained weight, so finally I started Loestrin24Fe about four months ago. The first two months were fine, a little spotting between weeks two and three, but I considered normal since is a side effect, after that, no more breakthrough bleeding but lately I find it extremely difficult to wake up every morning, my head feels so heavy!!! It feels inhumane to wake up!! ( I have never ever had that problem before) and also I feel that my libido is slowly disappearing… so, so far that’s the story…. Have any of you experience anything like this with Loestrin24Fe, and if you have, how did you solve this problem?? I found a website that suggests taking multivitamins, but don’t know if its going to work.
Anyhow… please help!

-- By star2306 | Reply | (2) replies | Private Message me

January 18th
2009
5:14 PM

this is such old news, and such sad news, and I am so tired. Previous severe tendon pain, now after 6 mos. tendinitis on an mri in two ankle tendons, and a longitudinal tear in one tendon. sever pain after 10 weeks. do not know what to do anymore, I feel like the system has swallowed me up and no one wants to listen. Is someone out there for me???????????????//

-- By rubellaumbrella | Reply | (1) replies | Private Message me

November 21th
2008
12:36 AM

My mother is 74 and has been on Lipitor 5 mg for about 6 weeks now and has experienced her 1st TGA. She called me today to tell me that someone had come into her house and cooked a platter of bacon and moved a basket around. She couldn't find her purse and went outside and sure enough it was in her car, but the door was standing wide open and the purse was sitting on the seat. She remembers nothing! This evening she swore that our second child was born in a different house. This from a woman who can remember the tiniest minutia. This Lipitor is terrible stuff! She is now officially off of it. R.

-- By royblizzard | Reply | (3) replies | Private Message me

November 6th
2008
8:38 PM

I have tried the NuvaRing off and on over the past year. My journey started because every pill I tried gave me mild to severe headaches for 3 to 10 days a month. I have not had headache issues with NuvaRing -- yeah!!

BUT -- here is the kicker. I take Zoloft too. When on the pill and taking Zoloft, my anxiety was under control. When I use the NuvaRing and Zoloft I spin into anxiety mode again, almost as if the Zoloft doesn't work at all.

I am 39 and my spouse won't do something permanent. I feel really trapped.
Does anyone have any suggestions?

-- By janie_in_mo | Reply | (2) replies | Private Message me

October 23th
2008
6:51 PM

Why does Singulair cause these symptoms? I am going to give my explanation which is only a HYPOTHESIS. This should not be categorized as any thing but an educated guess. This is not backed by scientific research because nobody will do any research that would appear to anger
Merck even if people are suffering in the thousands.

1. The original research that preceded the development of Singulair (montelukast) seemed to focus on the theory that asthma was caused by an unusual immune response to certain pathological stimulus. There are many references to the observation that a high percentage of asthma sufferers are people whose asthma is caused by fungus. Many people suffer from asthma and are told that they are allergic to dust mites. Dust mites can live only because the fungus aspergillus pre-digests the
food source that dust mites can then absorb. Other sources of fungus occur in the home due to dampness or problems with wood rot.

2. The body's immune system fights certain categories of pathogens such as bacteria and fungus by creating nitric oxide which kills them at the site where they try to enter the body. The mast cell is the immune cell that is responsible for the production of nitric oxide. Mast cells are found in the skin, airways, intestines etc. The mast cell is capable of many different types of biochemical functions that are designed to signal other cells or other chemical responses. When the mast cell knows that pathogens
are present and nitric oxide is NOT produced, then it signals other immune cells to be sent to the site of the infection. Thus in the case of asthma, it is known that excessive numbers of eosinophils appear in the airways and these cells create inflammation.

3. Singulair was developed for asthma and later allowed to be prescribed for other reasons. I believe that montelukast probably creates a source of nitric oxide that prevents the mast cell from signalling for other immune cells to arrive at the source of infection. I arrived at that conclusion from studying the chemical structure of montelukast, the chemical structure of the gene cysLT1 receptor, and the chemical structure of the cell wall of fungus which would be what the mast cell uses to determine "what to do in order to kill the fungus."

The researchers who invented montelukast first had to clone the gene-cysLT1 receptor meaning that they had to be able to identify the gene and replicate it. Then by trial and error they had a find a "chemical"
that would bind (connect chemically) to the cysLT1 receptor. The theory would be that montelukast would take the place of the fungus or other pathogen and thus prevent the gene from reacting to produce the
responses that the sick patient with asthma produced. Merck says in the literature that montelukast binds with the cysLT1 receptor in order to prevent the mast cell from signalling the eosinophils to arrive in excessive
numbers that cause inflammation. I believe that montelukast is also causing the production of an amount of nitric oxide that is actually killing the pathogens that are present. For one thing, I would think that it
would be dangerous to incapacitate the immune system in that way without providing a way to kill the pathogens. I don't believe that the asthma response is just allergies to something like dust. Pollen from trees and flowers is loaded with fungus spores.

4. IF, IF, IF, montelukast does actually produce nitric oxide, then it does so by binding with the gene. Any place in the body where a molecule of montelukast encounters the cysLT1 receptor (a gene) then the corresponding molecules of nitric oxide are produced before the liver enzymes break the montelukast molecules up. Nitric oxide is TOXIC and
INFLAMMATORY. So let's look at the symptoms in regard to the location of the cysLT1 receptors. The location of these symptoms would not be places in the body where the mast cells normally encounter fungus or bacteria. The cysLT1 also has other functions in that it communicates with the cysLT2 receptors. Obviously, nitric oxide
should not be produced in these locations because of the signalling effect of nitric oxide on other physiological functions.

a. intestinal pain - the cysLT1 receptors are located in the small intestines
b. leg pain actually caused by vasculitis - cysLT1 receptors are found inside blood vessels- consistent with the fact that montelukast causes
Churg-Strauss
c. some people who didn't have asthma develop asthma - the cysLT1 receptors are in the airways
d. nightmares, depression, neurological damage - when montelukast penetrates the blood brain barrier probably due to unusual conditions of blood pH or electrolyte imbalance then nitric oxide in the brain causes neuron damage and excitoxicity

5. Why do some patients not experience side effects? Probably because genetically they are completely compatible with the model that researchers created when they cloned the cysLT1 receptor gene. I didn't not find any information about whether researchers knew that there are many different variations of this gene.

6. IF, my theory is even close to being correct, then why doesn't Merck do anything about researching these side effects. Maybe because nobody in the company knows how this drug works but the researchers who created it. All of the Merck literature is very vague about any biochemical information.

Again, this is just speculation and hypothesis. I have made an attempt to put this in simplistic language and therefore sacrifice scientific accuracy. But, I think that you will get the point.

SINGULAIR IS VERY DANGEROUS TO PATIENTS WHO EXPERIENCE NEGATIVE SIDE EFFECTS. DOCTORS SHOULD JUST REALIZE THAT
THOSE PATIENTS ARE NOT COMPATIBLE WITH THE MODEL FOR THE DRUG.

-- By concernedcitizen | Reply | (4) replies | Private Message me

October 23th
2008
12:30 AM

Sorry to repeat this post, but I wanted to make sure people know about it. I replied to a 19 yo who sounded perfectly ok with being on this pill, and it made me shudder. Here's what I told her:

I was looking for information about class action suits against the makers of Aviane, and I ran across this web page. When I saw your post, I just had to respond. Who knows, it might save your life.

My 17 year old daughter was on Alesse, then Aviane ( the latter for over a year) for a total of about 2 1/2 years, for acne. On Nov. 19, 2007, she was alone at home, and did jump roping for exercise. After jumping for about 5 minutes, she collapsed. Over 2 hours later, her brother came home, found her barely responsive outside, and called 911. She had had a stroke. She was in the hospital for 1 month, in rehab for a month, and then came home. It's been a horrendous nightmare. She couldn't say more than 1 or 2 words for a few weeks, and spent about 3 weeks in a wheelchair. Gradually, she learned to walk again. Now she walks pretty well, but she still has almost no use of her right hand. She can't move her fingers at all except for a weak grip. For you medical folks, it was a left MCA stroke. Her cognitive function was massively affected. She is relearning speech,math skills, writing, etc. All of her friends left her, except for one who was very negative, and an alcoholic. Finally, we encouraged her to let that one go, and make room in her life for some quality friends.

There's much more to the terrifying journey that this has been. We feel fortunate that she continues to recover. I wish someone had warned me about the pill. I thought only fat, old, chain-smoking people got strokes. Now I know better.

If any of you find out about a class action suit against this company, please let me know.

Thanks,

WH
Send Private mail | Add as friend | Flag as inappropriate

-- By aikido_karatefan | Reply | Private Message me

October 1th
2008
5:43 AM

Despite having a brush with the big C last year (I finished chemotherapy in January) I have been very fit and healthy during my 61 years! A few weeks ago I started having palpitations, hence a visit to the doctor revealed high blood pressure and cholesterol reading of 9.9!!! Shock, horror. He informed me that it was genetic and prescribed Simvastatin 400mg and Bendroflumethiazide 2.5 mg daily.
Not being satisfied with the enclosed leaflets I have looked up more info. on the net. Should I have done this!!! After reading some of the posting on the site I am feeling a bit apprehensive. Last night I had a terrible night couldn't sleep for the pains in my legs and a bit nausea this morning.
But I need to be sensible, I really don't have any choice but to take these drugs just hoping that I won't have to stay on them for the rest of my life and I don't get any of the side effects that some of you have suffered. I also wonder if the chemotherapy could have caused by raised cholesterol?
Hope to keep you posted and would welcome any comments!

-- By conditions | Reply | (4) replies | Private Message me

September 27th
2008
2:43 PM

I hate it! My doctor prescribed 1200mg a day. When I followed this dosage for a week (approximately 2 years ago) I was so lethargic, my tongue felt as if it weighed 10 pounds plus it was numb and I was the most unproductive individual! I stopped taking 1200 and started with 600; the same side effects occurred. Now, I take it every few days which really sucks because the manic monster rears its ugly head. At this point, I have to do my own research to find the right medication for my bipolar. I do know that I cannot continue this medication. I thought it was going to help control the severe angry outburst; I've broken one of our ceiling lamps by throwing my shoes. It's like being trapped within myself. I hope any and everyone who posts to this and even those out there that have bipolar, finds the right medication. It is so incredibly difficult not knowing which way my mood will take me; what journey: being ok one minute and the next, feeling terrible.

-- By wontgiveup | Reply | (1) replies | Private Message me

September 22th
2008
10:39 AM

I've had Mirena for almost 2 years. I am bloated and fatigued. My joints hurt, especially my hips. I've gained 5 pounds and cannot lose it, even working out 7 days a week. I workout regularly but not with the stamina I used to have. I am 39 and in great shape. I can't make it through my classes the way I used. I struggle and it's very depressing. For the past few months my sex drive is zero. I am considering having it removed. Was it extremely painful?

-- By victoriav | Reply | (1) replies | Private Message me

September 10th
2008
10:15 PM

Ladies! I think it is wonderful that we are sharing our experiences here and helping one another. I felt it is necessary I share my experience as well. Thank You to all you ladies who have posted. You have helped me.

Got Aviene from my pharmacist saying 'it's same as Alesse, it's cheaper and the drug company covers this versus Alesse.' How dumb of me not to research this despite the fact this came without a box and instructions.Where is this made? Read up on it etc... things one would do BEFORE trying something. I did not do this and this has cost me.

I noticed changes as you all say you did as well. I have been taking the pill for 3 months. I work out as much as I can so about at least 3 times a week, I had a energy loss, I felt in an unexplainable way, just tired and irritated by the day. No, this is not normal for me. I got a great deal on a scale and stood on it and couldn't believe a 20 pound weight gain. This was not exactly a surprise since my clothes don't fit well and I am very uncomfortable. However, this still didn't make sense b/c I have breakfast and it's not junk, toast coffee or eggs with it or serial. For the last 3 months I made healthy lunches, I cooked ahead so took fish, chicken, rice, whole wheat sandwiches, orange juice, water, milk to work. No junk, no pop, no over eating. Had fruits and veggies. I was glad I was keeping up with this but to gain weight from it? I have a full time and a part time job keeping me busy and this life style, what I did for the last 3 months always included weight LOSS not GAIN. I am pretty pissed about this. (Of course, I am on Aviane, we are all pissed off, haha but not really haha right?) I have major issues with my face, considering I am using the same wash... no change...Anyway.. you're all seeing something doesn't' make sense. I have actually had bloating. Major bloating. 3 weeks. Never had this before. I took over the counter aid, that did help. I am 30 I never took over the counter aid.. let's not mention what I took but it helped.

Listen everyone, get off this pill. I will never take this pill again. I have 4 left this month and forget it I'd rather get my period tonight and anticipate change to occur.

On my way home, as usual of late, I tried to figure out WHAT is wrong with me. In conversation with a cooworker I mentioned the 20 pound weight gain and all and she said 'so much in such little time?' I was thinking about it on my drive home... I am at 2 new jobs and have stress but... to gain this much... and it dawned on me. I CHANGED MY B.C. It HAS TO HAVE something to do with it. I came home and goodled. You can't find anything on Aviane but negative comments. You go on Alesse... oh! a company website at least shows up.

Thank you Ladies... I believe I am having the same reaction as all of you did and I do sincerely Thank everyone for taking time out to post. You have helped me and I do think this B.C. is the reason for my current state.

I'll post in a week or two and then after a month to provide an update.

Take care Ladies!

-- By thanksladies | Reply | (1) replies | Private Message me

September 5th
2008
10:15 AM

I am astounded that this study of old data is being used to reinforce the message that Singulair is not connected to depression / suicide. The study is disputed by the fact that those suffering from the life threatening and incurable "Mental Illness Side Effect" see a complete return to normalcy within 7-10 days off the drug.

My own personal story, like many others, was a complete and total nightmare for my family over many years. In short, I went from a 10 year successful career as an art director with tremendous responsibility at a top international arts museum, to 2 years of full-time disability unable to leave my home with crippling anxiety/panic/depression. I was very lucky to have a loving wife and supportive doctors intervene before I took my own life.

The last few years is a blur of toxiPharmacological hell. A frustrating long string of tests, medications and treatments were attempted without any success... much to the consternation of my care givers. Not one of the dozens of doctors that I saw raised any question about the 10mg of Singuliar they knew I was taking daily.

Financial ruin, forced me off medical insurance. So I stopped all the psychoactive medications and came full circle back to suicidal ideation with more determination. A few months later, in March of 08' I could no longer pay out of pocket for may asthma medication Singulair and was surprised to find the mental illness begin to lift. A few days later the stories broke on the wire that this drug was perhaps connected with the unfortunate suicide of Cody and other teens. A week or so later, I felt myself again after many lost years.

Merck may have quietly updated the patient info several times over that period, but they made no attempt (still haven't) to reach out to prescribing doctors and pharmacists to let them know about potential issues. It seems that Montelukast interacts differently in individuals, and while it may be beneficial for many folks it is criminally dangerous not to increase the awareness of the side effects.

My General Practitioner pointed out that the original Montelukast study was quite large as these things go, but considering that it is prescribed to millions of people it is truly an irresponsibly small fraction sampled over a short period of time. Adding insult is the fact that these studies are conducted by the very company that seeks to benefit from positive findings.

The ALA has done a terrible disservice to the people the ought to represent. Downplaying the verifiable risks of suicide by recycling old data is completely and totally heartbreaking. I am ashamed to say that since I've been off the drug, I have been so preoccupied with trying to rebuild my life that I haven't been as forthcoming an advocate for the issues associated with Singlair. Misbelieving that others would take up the charge of spreading awareness and information so that new patients and their families would at least know the risks and be ever watchful.

Since that no longer seems the case, I offer myself and my well documented medical experiences with this drug, to anyone trying to get the message out. The media will pounce on the ALA study, giving many families a false sense of security.

Be well.

-- By singulairsurvivor | Reply | (3) replies | Private Message me

August 25th
2008
1:44 PM

I was prescribed Prednisone along with an H2 Blocker and an Antihistamine for a severe chemical reaction to using old lotion in a tanning bed. I only laid 2x, but I am severely paying for it now. I was only prescribed Prednisone for a 9 day treatment. By the 3rd day I had the acne. I suffered with Acne all of my life until I was 18 (I am 27 now) ... and haven't looked back at that terrible part of my life since... well, now I am faced to stare right back at it. Literally. I have only been off of the prednisone for 2 days, but I can not WAIT to get my life back. If I could take back the last 2 weeks over something so stupid and cosmetic as tanning, I certainly would. I have never had any previous problems with any of this, and this is the first time I have really had an allergic reaction to anything.... typically, Benadryl would have cured me. Although this time incurable with Benadryl and Cortisone, I regret the Prednisone. Severely. I hope this goes away within at least three weeks.. as my husband is coming home from Iraq and that is not the welcome home I want him to have (even if he is much less superficial about it then I am). Sigh.

-- By sbouvy81 | Reply | (1) replies | Private Message me

August 18th
2008
1:46 AM

My birth control journey (including Nuvaring) has been horrendous. I was on Alesse for several years when I moved to a different country where it wasn't available. I went on Yasmin for 3 months and proceeded to gain 15 lbs. of weight I had worked really hard to lose only a few months before. I was depressed, moody, and nauseous all the time. My doctor then put me on a different pill which made me so nauseous I would sometimes vomit in the first week of the pack, then when the nausea subsided the PMS and moodiness started. Again I researched birth control options and heard about Nuvaring. I asked him if the lower dose of hormones would help and he said I should try it. 4 months later, during a routine medical exam I was told I had EXTREMELY high blood pressure. I had never had high BP before. I couldn't figure it out, I had my kidneys tested and they were fine, my diet was healthy, I just didn't understand until I took it into my own hands and googled it. It clicked that it was the Nuvaring. I took it out and have never felt better. I feel less bloated, my mood is amazing. I am having my BP tested again in 2 weeks and only hope that it's gone back to normal. I am NEVER returning to hormonal birth control methods.

-- By missdirection | Reply | (1) replies | Private Message me

August 17th
2008
10:00 PM

I am a 72 year old white female who has been on Fosamax over 5 years for osteoporosis which runs in my family. In December, I had severe discomfort in the thigh area of my right leg. X-rays ordered by my GP showed nothing. Sent me to orthopedic surgeon whose x-rays also showed nothing. He ordered bone dye test which showed stress fractures of BOTH femurs. No one, NOT EVEN THE ORTHOPEDIC SURGEON, could figure out how it happened since I had not fallen or had other trauma. When I began to do my own research, I found answers to other problems I had been experiencing, for which no one had answers.....bone and muscle pain, hair loss, depression. I realize doctors are overwhelmed with info but I am especially disappointed in the orth. surgeon who should have known this was a possibility since the study came out in The Orthopedic Journal. As I continued my research, I find that women have been experiencing these side effects for years. I was previously very active and a dedicated walker, but this has robbed me of my confidence since I fear breaking other bones. The femur is the largest and strongest bone in the body and if I broke both of those with no trauma, what else could happen? I want to get the word out to women but am not sure the best vehicle for that. Any suggestions? There are Fosamax lawyers anxious to jump on this but I am more interested in spreading the word, not litigation, however I think there are possibly many unreported cases of the Fosamax side effects just because people don't know where to turn.

-- By sandyj1936 | Reply | (1) replies | Private Message me


 

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