Kindergarten symptoms and conditions

My son was put onto 4mg Singulair when he was three years old. He is now six years old. For the past three years he has been a very quiet child, to the point that people commented on how shy and withdrawn he was. He never wanted to go anywhere or do anything. His favorite activity was lying on the couch watching tv. He was always thirsty, frequently went to the toilet,often complained of a sore stomach & had several bowel movements every day, did not sleep well at night, was often grumpy, could not concentrate for very long, was frequently ill with cold-like symptoms and did not really like you to touch/hug him. At the beginning of the year he was diagnosed by an occupational therapist as having low muscle tone. In March of this year, his pediatrician increased his singulair to 5mg. He began having terrible pains in his legs, to the point that he would cry and be unable to walk to the toilet at night. I took him to my GP who did every blood test under the sun and x rays of his pelvis and legs. He could find nothing wrong. The only thing that had changed was the increase in Singulair. I had a look on the internet and found this website. I immediately decreased his dose to 1/2 a tablet for a week and then 1/4 tablet for a week before taking him completely off it. Within a few days our whole family and his teacher and therapist noticed a huge change in his personality! He talks all the time now, he laughs a lot, he loves playing outside and has lots of energy. He teacher says he is much more receptive at school. His occupational therapist says his muscle tone has improved. He has not had one single leg pain since coming off the medication. He is sleeping well at night, his stomach is never sore and he has not been sick at all. Not even one little sniffle!! Best of all he is a normal, affectionate little boy. I feel very angry with the manufacturers of Singulair and with his pediatrician, it feels as though my son has lost three years of being a child. He felt terrible all the time and I had no idea! I have told everyone I know who has a child on singulair to look at the side effects.

TO ALL

MY SON LOGAN IS SIX NOW AND JUST FINISHED KINDERGARTEN TODAY.
WHEN HE STARTED KINDERGARTEN HE WAS ON SINGULAIR FOR 4 YEARS. HE HAD ALL TH ADVERSE SIDE EFFECTS. TUMMY ACHES, CONSTIPATED, DIARRHEA, LEG CRAMPS TO POINT OF NOT WANTING TO WALK, BEHAVIOR PROBLEMS, HATED EVERYONE, NIGHTMARES, SEES GHOSTS, CRIED OFTEN.

ANYTHING SOUND FAMILIAR. HIS MOTHER THOUGHT HE HAD ADHD OR ASPERGERS AND PEDIATRICIAN AGREED WITH HER.

SOMEBODY THAT I THINK IS SPECIAL FOR ONE WAY OR ANOTHER KICKED ME IN THE RIGHT DIRECTION TO INVESTIGATE SINGULAIR IN EVERY ASPECT.

FIRST WEEK OF GARTEN I HAD TO HAVE A CONFERENCE WITH COUNSELOR AND THREE TEACHERS AND HIS MOTHER.
I LET THEM TALK AND EXPLAIN THEIR THOUGHTS ABOUT LOGANS PROBLEMS. I THEN DROPPED A BIG PACKET OF PAPERS ON TABLE ABOUT SINGULAIR AND ZYRTEC. THEY WERE VERY VERY SURPRISED THAT I PRODUCED THIS INFO.

THAT DAY HIS MOTHER AGREED TO TAKE HIM OFF SINGULAIR. IT TOOK ABOUT 6 MONTHS FOR LOGANS ADVERSE SIDE EFFECTS TO SUBSIDE. HE NOW ONLY TAKES ZYRTEC AND IS GROWING SO FAST.

SO PROUD OF THE LITTLE TURD!!!!!!!!!!!!!!!!!!!

IM NO DOC BUT HOW DID KIDS AND ADULTS SURVIVE ALLERGIES IN THE OLD DAYS?

GIVE IT TIME LET THEIR IMMUNE SYSTEMS CATCH UP. KIDS DO GET SICK. DO YOUR KIDS A FAVOR AND INVESTIGATE THE DRUGS DOCTORS PRESCRIBE THEM. SOME HELP BUT SOME HURT!!!!!!!!!!!!!!

TAKE CARE AND GOD BLESS ALL!!

Hi,
My 5 year old son has been having similar problems. He was on Singulair on and off since 2006, throughout winter for his asthma and sporadically in the summer. His new pediatrician finally said to keep him on it everyday the beginning of 2009. The only reason I am here today is because I just filled a new prescription of Singulair and low and behold it had a new warning label none of the other bottles had, "Call Dr. if you experience mood changes, sadness, depression or fear." I quickly went online to read some reviews, to my horror I see hundreds of posts from other parents detailing my sons exact aggression/fear issues.

I have been having so many many problems at his school. I had to take him out of first Kindergarten because he hit the teacher a few times. In the new school he was doing ok but then it got worse, then better, then worse, then better again and so on. Maybe it was the breaks of singulair he would get. I had him meet with THREE different therapists for ADHD and they refused to conduct any further evaluations on him because they couldn't find what the problem was. The school even ordered an educational evaluation for him to see if there was a learning disability.

The teacher is always complaining that he's too distracted, doesn't sit still and is so aggressive. He is meeting all his benchmarks and is very bright but his social behavior is causing mayhem. At home his fear of things got out of control. He was scared of his lamp and would wake up screaming at the top of his lungs full of panic and fear because of the stupid lamp. He won't go to the restroom by himself because he's scared a monster would attack him etc. Since I started giving him the medication consistently everyday everything just got worse. He flips out at home, pushes hits and is snotty as all hell.

It makes me sad because I swear he tells me the same thing, "But mom I was trying so hard to be good and I couldn't. I was telling my brain to stop but it wouldn't listen. I don't know what happened." He would come home so sad, frustrated and upset. He had a few bouts of crying in the classroom too, lots of problems with aggression.

I've done the same thing, time outs, reward system, even made up "Jacob days" which were days we did whatever he wanted at home if he had a good week at school. NOTHING works..... I was at a loss until I read these reviews.

I am taking him off tonight and hope this is the end of all the aggression or at least helps a bit. I'm not going to say my son is 100%angel but he used to be much sweeter, calmer understanding and so on. I would just be happy if it helped a little. It's a shame because this medicine was helping with his asthma but at what cost. I will post an update and let you all know how it's going.

Oh I forgot to mention he has been in and out of the school nurses office this past month for stomach aches... he had a lot of stomach problems at home too. So I will see if that clears up too.

My ADOPTED son almost 6 and was already on Singulair when he came to live with us at age 20mos.
After finding this site just over 2 weeks ago, I took him off on this stuff. Well, after about a week, things were so good that it was scary. His behavior improved so much, that everyone said he doesn't act like Jacob. I said, yes he does, we just didn't know him before going on this med.
He is currently going thru ADHD evaluation and I advised the therapist that I took him off this drug and he was like a new child. Her comment was "did we cure him"? Well, after her one on one with him, she commented, I don't know whats wrong, but he is extremely HYPER and then all hell broke loose on the way home. But, he has been fine since.
I am praying that I don't have to medicate him for ADHD, I am just not ready for that and have been fighting it for a while and then after reading all the side effects on this site, it described my child to a tee. He is in Kindergarten and is doing great academically and the therapist was a bit surprised by that with how hyer he is.
Please tell me with how long my son has been on this drug, that it's going take more than a couple of weeks. He is not near as hyper to us as he was before. Maybe he just got excited about all the toys in her office. He can also be very defiant, that is whole other issue we are dealing with. He does way better for his Dad than Me, so now if he doesn't want to listen to me, he Dad intervenes. I am hoping he will get it, that he can't be disrespectful to his Mom or he will have his Dad to deal with.
Thanks for listening and please pray that his behavior will continue to improve over the next few weeks with the absence of Singulair.

my 6yr old daughter was put on singulair at the age of 4 she had a reaction to nuts and had the allergy testing she was put on singulair and claritin and nasacort .(so she has been on the medication now for 14 months) about 3and 1/2 weeks ago she quit eating we had her to the dr several times they said it was all in her head that she could eat if she wanted to.she was then put in the hospital for 4 days they did the scope down the stomach found nothing i took her off all her meds because i didn't want her taking them with no food in her. she came home from the hospital and i put her back on the meds as the doctor requested and within 2 days she was crying non stop hitting me and telling me that she wanted to kill herself and everyone around her.she was putting her fists in everyines face and was very angry.she would cry and tell us that she didn't know why she was so angry.we took her back off of the meds because we were treating her for the stomach acid from not eating and within 4 days she was like a new kid.she is now eating ..happy ..and doing good in school..this is the 3rd time this yr on this med that she has quit eating we were told that it was all in her head .after reading everyones comments on here i called her doctor today and he said it could be the medication but they would have to put her back on it to check and i refused.no more singulair or clairitin for my children

My 3 year old son was having trouble with aggressive behavior in his daycare. The head teacher asked if he was on singulair. When he said he was, she said that that might be the cause of his aggressive behavior.

My wife went with my son to Chile for a month. The singulair prescription ran out while they were there, but because it had not been a month before the last refill before they left, they could not refill the prescription before leaving for Chile. The singulair ran out after their third day in Chile. So my son went a month without taking singulair.

And interestingly, his behavior did not change. He aggression was about the same as before. It is only recently, now that he has been developing more language skills and has also been potty training, that his aggressive behavior is for the most part under control. So in our case, it does not seem that there has been a cause-effect relationship between taking singulair and our child's aggressive behavior. He still takes singulair every day and is doing fine. Also, he never experienced any of the problems sleeping that others reported.

In response to Wewe's post, I've been wondering the same thing. Since taking my daughter off Singular almost 2 months ago, I'm seeing a different almost typical kid. Four years ago about 2 months after starting Singular my daughter was diagnosed with anxiety. As her condition got worse she was diagnosed with depression. We started to see OCD and tics so they were added as a diagnosis It was determined that it was related to strep infections so she was diagnosed with PANDAS. She was started on Zoloft and klonidine. The Zoloft made her worse. Her fears of hurting herself got so intrusive she was hospitalized. Her cholesterol was high too. The Zoloft was discontinued and Prozac was started. She's had therapy all 4 years. She also neede physical therapy due to muscle and joint pain. Now she's doing better, off Singular. Does she really have PANDAS, OCD? I don't know. She's still on Prozac, we just did a slight decrease this week. Is this medication the trigger for underlying conditions. Learned behaviors can be unlearned, but are there lasting physical effects? If a gene has been turned on, can it be turned off? I wish we knew the answers to help all of our kids.

After reading all the horror stories on here, me and my husband soon began to realize that we were having a lot of the side effects listed here and not listed on my son's actual Singulair prescription. The side effects my son had were behavioral changes, irrational behavior, inattentiveness, not able to stay on task or stay still -- in fact he broke his arm twice being so hyper, yelling, screaming and just plain mean.

We took our son off of Singulair as a trial for a few days. Immediately we began to notice differences in his behavior. He wasn't as agitated and quick to yell or get angry. (He's only 5 years old). He actually would be listening when we would speak to him. He would sit calmy and read books and the one huge thing he would do was look at us and smile. He even said to my husband once, "I love you Daddy," which just brought tears to our eyes. I never realized what a Singulair fog he was in and what it did to him. Here we were pretty close to getting him evaluated for ADHD or even Aspergers. So now we're in the same boat as others that are searching for other asthma meds to give my son. Right now we have gone back to Pulmicort, Xopenex, Nasonex and Allegra. I'm so glad I read this forum because I was desperately searching for answers for my sons behavioral issues. Oh, by the way he was on Singulair for 1-1/2 years.

My son is 6 years old and he has been on and off Singulair for about 2 years. He was off since last Fall 2007, but was put back on in April 2008 for allergies. He began telling me that he was having "dreams" during the day. He would then tell me these totally bizarre thoughts, "dreams" that he was having. They were very strange and perverted and violent. I asked him why he was saying this stuff and he said, "I just can't help it, they pop into my mind." I thought that he was going through a phase because he was bored. He is in 1/2 day kindergarten and I attributed this to too much television and boredom. I was thinking that someone was feeding him this crazy information (kids on bus, class, etc.) and he was repeating it to me. He was too showing OCD symptoms, afraid if he touched his feet- "is that dirty??" afraid if he touched someone's hand, "is that dirty if I touched Tim's hand?" He would also cry and whine often over the simplest things. I thought this was a phase. Our prescription for Singulair ran out and I did not fill. I started noticing a change over a week's time period. My little boy who was coming to me several times a day with bizarre "dreams" had not mentioned them at all. His compulsive behavior has stopped and so has the whining. I feel lucky that I did not fill the prescription because I would not have even thought it was the singular, since there are no side effects like the one's I mentioned above on the label. I am sick about this!!

My son is 8 and he has been on singulair for at least three years, maybe four. When I heard about the side effects a few weeks ago, I stopped his medication right away. I have since learned that it should be tapered off, but won't put him back on to do that. He had so many of the depression, I hate myself, everybody hates me, facial tic, stomach ache symptoms . . . Now he is almost two weeks off of singulair and he is throwing screaming fits, kicking, threatening, uncontrollable for up to two hours and more! Is this a side effect of coming off of the medication? Has anyone else had this experience? Please email me at amy-weaver4@sbcglobal.net - I'd really like to hear if anyone else has experienced these symptoms. Thank you! Amy

My daughter is seven years old. She was diagnosed with asthma when she was around two years old and, for years, suffered with the night cough associated with childhood asthma.

When Singulair came along, my initial reaction was that of joy. My husband and I could not believe that we no longer heard coughing throughout the night. However, while on this drug, we also noticed that she underwent a change. Sometimes, she seemed terribly sad and withdrawn. Other times, she became angry and even aggressive. We rarely saw her smile. It also seemed like she was in some sort of fog much of the time. About a week ago, I found her on the floor of our office. She had just gotten out of the shower, and I was getting her pajamas for her. The towel was not around her and she was shaking violently and crying. She explained that she had the chills, but it was clear that she didn't even comprehend that her towel was not around her. We all know our kids, and, I'm telling you that this scene was frightening. This was not at all my daughter.

In addition to the mental/emotional changes, she also had physical symptoms including sudden and frequent headaches, fatique, stomach pain, and bed wetting. A day after her "breakdown" in our home office, my husband called me from work and told me that he had just been reading MSNBC and that there was an article about the negative side effects of Singulair. When he listed things that matched what our daughter had been going through since on this drug, it was both comforting and horrifying. I am relieved to know that there is nothing wrong with my daughter psychologically, but I am furious that she and so many others have been treated like guinea pigs. We took out daughter off Singulair the very same night that my husband came across the article on Singulair, and she hasn't had any of the mental or physical symptoms that she had been experiencing...the change was that drastic. Currently, we are only using her inhaler and Benadryl at night. She has a doctor's appointment next month, and I will tell the doctor about our experience.

I have my little girl back, but I can't help but wonder how many families are going through this and do not have a clue that Singulair could be the problem. Other than reporting this to our pediatrician, is their another agency I should contact?

My daughter is in kindergarten and has been on singulair for about 4-5 weeks. Her allergies are gone, no more snoring and and no more coughing attacks. My husband did ask the other day what was wrong with her because she had cried about 3 times that day. For any little comment regarding her older brother/ saying we loved him more etc. This is just not like her, now that I am reading this... I am putting two and two together. Does anyone out there know if Clariton will help with allergies as well as singulair?
I am seriously thinking of stopping the singulair.

My 5yo son is one week removed from Singulair, and we are starting to see a gradual improvement. When I first started reading these posts, I just sat and cried. My son started the meds last fall for allergy induced asthma and his behavoir has gotten progressively worse this January and February, so much so that I contacted the pediatrician to start the process of having him see a counselor. He was fine before last August. I blamed his problems in the fall to his adjustment to kindergarten, then my grandmother got sick and passed away February, so I thought this time his obsession with death and bad behavior at school was related to her. I never once even thought it was the Singulair. Looking back I realized the behavoir coincided with his Singulair use (I took him off it in December because there was nothing in the air to cause him to cough and he was fine). In January we started back up full steam ahead and the doctor increased dose...Hello!! He was so angry sometimes and had a multitude of the symptoms listed on this site. He would constantly say he hated school. He chewed his shirts repeatedly, actually chewing holes in the neck and sleeves, he would blink his eyes weirdly which I have equate to the "tick" other people described. He would say he was stupid, that no one loved him, that no kids wanted to play with him and that he was an idiot. He said he wished he was in heaven and wanted to leave this world. My mom found him wrapped in blankets over spring break and when she asked what he was doing he said he was trying to suffocate himself. His crying wasn't even a normal cry, it was in a word: soulful. It would make me cry just hearing it because it was such a mournful sound. At his aftercare program he would try and leave and say he wanted to get hit by a car, they actually had to restrain him. He had instances of aggression with other kids in school, which resulted in phone calls from the teacher and principal. Again I thought it was related to the death in the family and him having no other way of expressing his anger. I even blamed the other parent thinking they were overreacting - embarrassed about that now to say the least. I started getting names of dr's to get grief counseling to determine if it was the loss or if he was in the throes of depression. Then I see the news about Singulair and looked it up on the web since he was on it. Talk about taking your breath away. Then his stomach cramps made sense too. I would have to massage his stomach to make it feel better, thinking it was the milk causing it. People can say we are all making this up, or the posts are fake...even his allergist said they feel the benefits outweight the risks, but until you live it you really just don't get it. I took him off it that night. Each day is getting better. Today was a great day and I am cautiously optimistic for tomorrow. He was happy. Even his sister remarked about what a good mood he was in and that he wasn't whining or crying. Putting him to bed tonight he told me he loved me more than tomato pie...and in his world that's at the top of everything The sad thing is that the medicine works for the asthma and controlled his coughing. The cough is now back in force so it is a double edged sword. It's amazing how similiar the symptoms are with other kids. I guess hindsight truly is 20/20 huh?

I am posting this because I am just outraged reading all these e-mails and it is exactly the same thing over and over again. My son is now 6 and has been on singular for a little over a year. He was started on it after a asthma attack over the Christmas holidays. Prior to taking the medication he was a sweet loving kid. Honestly because he was so good we could not wait to have another one. Then came these crying spells for no reason. Then out of no where he would attack and kick and scream like someone was killing him even if you just asked to put your shoes on. It was crazy. Never made the connection to the singular. He started kindergarten and it was the same thing there. One week we happened to be really short on money due to an emergency and could not refill his prescription till the following Friday. And looking back now it was the first week that there were very little problems with him and he got all good remarks that week from his teacher.Well again at the time we did not make the connection.Back on the drug and back with the aggressive and bad behavior. Then our local t.v. news did a story about this medication. We looked at each other in shock and thought how could we have missed this? We decided to do our own test and took him of the medication again. While the hacking cough is back his mood swings have all but vanished and he is back to normal minus a few crying spells the last few days. I am confident keeping him off the meds. those will disappear soon enough to. We are only into day 4 off our test and already the diff. is huge. Something needs to be done about it now.

Our story is like so many of yours…My son, 7, started Singulair at 2 ½ after a hospital visit and too many rounds of oral steroids. When he started Kindergarten at age 5 his behavior became increasingly problematic. It was hard for him to meet new people - something we had noticed at birthday parties in preschool, where he clung to me the whole time. He became more and more anxious, ran out of the class, didn’t really socialize, chewed his shirt, wouldn’t talk to people he didn’t know (or even look at people). I thought - he’ll adjust, he’ll be ok - he did well in preschool (although looking back, there were some repeated behavior problems there as well). By November the teacher told me she was really starting to worry about him - that he was depressed. I took him to a psychologist and he was diagnosed with anxiety.

In the summer I tried to enroll him in an art camp - but he ran around like a chicken with its head cut off and they kicked him out. In first grade he hid in the back of the room for the first few weeks. More shirt chewing, wouldn’t take off his coat, threw things, hit kids. At home he was capable of acting normal, but then every so often would act - well, psychotic. Mumbling to himself, overreacting to everything, screaming. Meals were hard, bedtimes were hard, getting dressed was hard. I had him evaluated and he was put on an IEP for behavior/emotional issues. More and more he was talking about death - wanting to die, wishing he was dead, saying that he hated himself.

Throughout all this time, I wondered, could it be the Singulair? I asked the doctor, the allergist, the psychiatrist - have you heard that this medicine could cause this? No, no, no- they all said after looking it up.

Finally, I looked on the web and found this site back in January, 2007. I read enough postings to recognize that other people were having similar issues. I told my doctor I was taking him off. She tried to get me to wait until after winter, but I didn’t. I just stocked up on pulmacort and albuterol and figured I would be ready with the nebulizer.

I watched my son carefully that first week, and it seemed like a cloud had lifted from him. He did not instantly change all of his troubling behavior, but as time passed it became less severe and more manageable. He became capable of things that he couldn’t have handled in the past. Almost immediately he learned to read. He had been almost reading for so long, but was so self-conscious about reading aloud to anyone. He took swimming lessons without a problem - it had been impossible to take him to any new class or camp where he didn’t know anyone before.

During this time, he also got lots of support at school and I enrolled him in group therapy. But I know that he would not have made as much progress as he has if I had kept him on the Singulair. Back at his worst he was like another child - haunted, crippled by intense anxiety and self-hatred. We wondered - what could be the cause - abuse? - but it just didn’t make sense - there were no other signs. I have an older son - who never went on Singulair - who has the sunniest disposition. Yes we have some history of mental illness in our family - but most people start showing signs either from birth or in their teens. My son was a happy baby, a friendly toddler, and all along, was very loving in his good moments to his close family members. Things just weren’t making sense. We were looking all over for an explanation. Now that we have it, even though we feel relief, we also feel tremendously sad.

I wonder - how many kids out there with crazy behavior are getting punished, are falling behind in school, are being institutionalized? I will be writing my senators, congressman, state and federal, as well as notifying the FDA.

This is what bothers me the most - all of us across the country go to our doctors and ask about these side effects. But (except for those who posted here) we don’t report the side effects, because everyone tells us they are not caused by the medicine. So our individual reports were never taken seriously because it never got past the doctor’s office.

I feel bad I didn’t post earlier, but I was intimidated, and almost embarrassed to “blame” my son’s behavior on the medicine, rather than taking responsibility for it as a parent. Thank you to all the parents who had the guts to post, and especially to the parents of Cody Miller who brought this to the public. I am so sorry for your loss - and I am so sorry for all the parents and children and teens and adult Singulair users who have suffered. I feel like we should form support groups because we have all been through a terrible trauma. I live in Massachusetts and would love to hear from those who live near me.

Here is some perspective for you all. I take Singulair and do well on it and in ACTUAL studies it has one of the safest safety records. Understand that post marketing reporting does not mean there is a correlation between the event and the product. Throughout the life of a drug the companies must disclose any report of side effects reported to them REGARDLESS of causality. A popular antihistamine that is OVER THE COUNTER also has suicidal thinking/behavior listed in its post marketing section. However, just because patients who had reported having these thoughts while taking the product doesn't mean it was a result of the product! Maybe they had a depressive personality and were also on multiple other medicines to treat that. You must look at the "Adverse Reactions, Warnings and Precautions" sections of package inserts to see the side effects that were actually seen in studies. You can die from ulcers derived from over use of aspirin or ibuprofen. Decongestants can throw off your blood pressure and these events are documented in actual studies! Listen to your bodies when taking any med. If you feel differently report it to your doctor.

These are all drugs people, there are potential side effects. There are also side effects to those "natural" over the counter remedies that are not nearly as regulated by the FDA or studies by the drug companies.

To anyone out there who has experienced side effects to singulair timed to when you started it, talk to your doctor, stop taking it and see if it goes away. Same advice for any product prescription or over the counter medicine. Side effects can be a combination of many factors (what other meds are you taking?) But understand for many people this product is the safest and most effective treatment for them. The FDA and Merck are reviewing all information to see if there is any correlation to the reporting. But singulair been around for about 10 years and prescibed to billions of people and is known to be one of the safer medicines out there overall.

In between the legitimate posts on this site I get the sense there is a lot of ambulance chasing going on. People looking to cash in on this big drug companies. We want drugs, we want them cheap and with no side effects which is not a reality. Keep stepping up the regulation and make the companies hire more lawers to protect themselves and jump through even more hoops and see what happens to the price and access to new meds. Even better, see how regulation has impacted the development of new medicines around the world (here's a tip, it will dramatically decrease). Drug companies certainly aren't perfect but which industry is?

Please, when taking any medicine over the counter, prescription or herbal supplement listen to your bodies to see if the potential benefits of the product outway the risks or side effects. Report any changes to your doctor.

First, I would like to tell you what my daughter used to be like. My daughter used to laugh, smile, sparkle and she loved life! My daughter was smart, as her pediatrician had been telling us since she was one. She sailed through life! Then we had hurricane Isabell come through, and she was rushed to the hospital in the middle of that storm for our first asthma attack. She was three at the time. We took her to a Pulmonologist, which she has seen since. She is now 7 going on 8. She was put on Singulair about 4 years ago. Starting kindergarten was pretty much a breeze. First grade came and she complained of headaches, stomach problems, trouble concentrating. Telling me "mommy I can't think". I asked her Pulmonologist, 5 times that year if it were any of the asthma medications. I was assured it was not. now we are in second grade, and she has steadly declined in every aspect of her life. She started having "eye darting" and head movements, which she was unaware of over Christmas. Her teacher kept saying there is something wrong, "but I can't put my finger on it". She retreated from family and friends. Since December we have been through a slew of testing. The first was an EEG, next came an MRI and lastly an 24 hour EEG. All looking for seizure activity. She has seen a pediatric Opthamologist. She has been through testing for ADD....this being the last. She had a serious reaction to an ADD medication last week. When my daughter asked me "mommy, why did God make me this way", the tears just wanted to run. I had no answer. My husband and I both feel that it is NOT ADD! Let me add some facts here...she can not concentrate, she can not focus, she has withdrawn, she has started to have anxiety, she is weepy one minute, and agitated the next, she can not stay on task and finally her grades are dropping to the point of retention. My heart aches for her, I feel helpless. I want to see my girl back, I want her happy smiling face back, I want her to be confident again. I just pulled her off the Singulair last night, after my sister left many phone messages concerning this blog. I have read them with the love only a mother knows, and the pain for each and everyone of you going through this. As I sit here and type this, I can only have hope. This is very difficult to write, and I am not even sure if I have written it all down. What I do know, is that at 2:00 AM last night I took the time to report her side effects to the FDA. Today is a new day, and I hope and pray for my daughter and everyone of you out there dealing with this.

Terry A

No side effects here - my 5 year old has been on Singulair since he was 2 1/2 and has showed no strange symptoms outside of those of a normal 5 year old boy. He has asthma and severe allergies - including a nut/peanut allergy. He also takes Zyrtec in the Spring and Summer seasons (heavy allergy time for him). Gets good grades in Kindergarten and has never had emotional/behavioral issues at school or at home. I am shocked to hear that people are having these extreme reactions! Although, it seems that there are always going to be reactions to ANY drug out there - go to any of the boards on any drug and you will find people with extreme reactions. Singulair has saved my sons lungs, and possibly his life.

Four years ago, when my son was six and in all day kindergarten, he was taking Singulair every day. After a few weeks, I noticed when he came home in the afternoon, he would be very sad and sit in my lap and cry. This was very out of character for him and it concerned me enough that I called my pediatrician and told him. I specifically told him I thought it was the Singular so he checked and could find no such side effects. We switched to another medication and the depressed behavior stopped. I knew it was that drug!!! Watch your kid very close if they are taking this drug. You will notice the change fairly quick.

In 2001 my daughter started Singular for about 3 years to treat what the doctors said was childhood asthma. After being on the medication for a few months she started having nightmares and was terrified about going to sleep. Unfortunately, I did not relate this to the medication. We did extensive research on the Singular before starting her on the med.. No- where did we find anxiety, nightmares, or impulsiveness as a side effect. Two years into the med we brought my daughter to see a psychologist because of the nightmares, who diagnosed her with anxiety and impulsiveness. We didn't medicate her for either; however, we did use behavior modification. Although the behavior modification helped slightly with the impulsiveness, it did not do anything for the fear she endured when it became nighttime. She would not go to sleep in fear of the nightmares until pure exhaustion hit. After being on the med for 3 years it stopped working so we took her off. A few weeks after being off a friend asked if my daughter was still on Singular because the FDA just came out with information about it causing vivid dreams that could cause anxiety that Merck seemed to have held back as a side effect. A few months of being off the med and the nightmares went away. Unfortunately, she was on the med for so long and because she was so young I don't know if this caused any long term effects such as the anxiety and impulsiveness that has now became part of her personality. Being 3 years old and taking it for 3 years how can that not make an impact on a child's personality. They are learning things at that age about themselves and the way they rationalize things. Fortunately, she is extremely intelligent and hopefully as she grows older she will mature enough to deal with the anxiety and impulses.

If you want to see the story about the SINGULAIR AND SUICIDE click on on this page and the news affiliates have the video and the story.

My 6 year old son has had all of these more or less. He has been on Singulair for about 5 months. We took him off last Friday when he started having seizures. It is only now that we are connecting the things he has complained about. He is still going through testing but everytime a test is done it is negative. He is in perfect health. The dr.s are stumped. What happens is, he smells a wierd smell. Then he sees lights. After this he has a bad headache and becomes weak so he lays down. Shortly thereafter he stiffens and starts shaking his arms and legs while clinching his hands. He also grunts and makes a buzzing sound and appears as though he only breathes out. the dr.s say it is not seizures but movement disorder and if it is Singulair it should be out of his system within 3 days... He is still having the seizure type fits and its been a week since we took him off singulair. He is still losing his temper and having horrible dreams as well. Cat scan was normal, EEG was normal, blood work is ok, they want to do an MRI but does this sound familiar to anyone?

My son is 5 years old and was born with Prune Belly Syndrome and Bilateral Hip Displasia. He also has kidney failure. On Sept. 7th I donated my kidney to him. He has since done great as far as his kidney is concerned but the side effects of the prednisone have been hard. He gets so upset at the smallest of things. My husband and I have been married for only a year and his children who are 8 and 12 dont' want to be around him. My son adores them. But they can't handle the mood swings and don't understand him and neither does my husband. My son has worries that a 5 year old shouldn't have. He worries about me dying and about his brother and sister not loving him. Since the transplant was in Sept., I didn't start him in Kindergarten yet. He will start after the holidays. I hope that going to school will help. I don't know what to do. I continously let him know that I love him but I feel like I'm always having to get on him for the way he behaves. What do I do??? I need any kind of advise I can get.

I am so glad that I found this site, my son is 5 1/2 and has been taking Singulair since he was two. It works, but the side effects are not worth it. He is our first child so we attributed his behavior to the terrible two's, terrible three's when he started pre-k we thought it was immaturity, now he is in kindergarten and the teacher reports restlessness, inability to concentrate, clumsiness, all types of issues that could be related to ADHD. We were about to start the process to see if he had ADHD when I found this website. He has been off of the med for two weeks today. He went to the pediatrician, eye doc and allergist. All say he is in good health and that he can sit still for their exams, doubting ADHD. The pediatrician wants us to wait another two weeks and then look at his behavior in school and see if it has changed. It's hard to get an ideas as to how long before the effects of the pill will wear off. I have read entries that say one day, to entries that say up to 6 months. I have seen a change at home, he states he is less "squirmy." The allergist says that this effect on children is rare, but he did admit that it happens. He has seen 3 cases in 6 years.