February 13th
2008
9:14 PM
I started taking Toprol XL after being diagnosed with SVT back in May of 2003. I was only in my late 20's & was very trusting, at the time. I was recently sent to a cardiologist because I was having horrible chest pain & the Toprol XL 50 MG wasn't working at keeping the heart rate down. The GP put me on a double dose as well as Cardizem to help with the chest pain & rapid heart rate. I was already on Lanoxin 0.5MG, the highest dose allowed. The cardiologist took me off of the Cardizem right away because he said that is was too stressful for the heart to be on that much heart medicine. I went though several tests & was told by the cardiologist that I didn't have SVT & that this was actually Postural Tachycardia (POTS) & Neurocardiogenic Syncope. I was taken off of Lanoxin, but kept on Toprol XL 100 MG. He put me on lots of salt & water to increase my blood volume which would help my blood pressure when standing. That was in June of 2007. All went pretty good, I thought, until January 18, 2008 when I was working. My heart rate went up to 136 just standing or walking across a room. I called the doctor & talked to a nurse who suggested that I take another 1/2 of a Toprol. I did that & felt better for awhile, but it was short lived. I had been having chest pain, rapid heart rate, fatigue, muscle pain, joint pain, headaches, nausea, vomiting, short term memory problems, rapid weight gain, hair loss, cold extremities, & other things I can't think of right now for what seemed like forever. My gynecologist & my cardiologist first thought that I had thyroid problems, but all tests have come back negative. They then thought that maybe it was from the birth control pills that I had been on for the ovarian cysts. I was changed from one medicine to another & at first I thought that was what was wrong. I am now certain that all of the problems that I have been having were & are a result of the Toprol XL. I was even told that all the problems were "psychiatric in nature". I know that that isn't it at all! I have never had anxiety problems & the GP now thinks that's all that is wrong with me & wants me to go on Zoloft. I tried it, but became so ill that after one pill, I quit. I now plan on weaning myself off of the Toprol XL without the GP's knowledge or consent. The cardiologist was planning on weaning me off at some time in the future, but I am starting without him knowing it at the time. I'll just tell him when I see him next month. Thanks everyone for alerting me to the facts about this medicine. If I had known then what I do now, I'd have never consented to starting it in the first place. My only question is, are some of the "side effects" going to be a permanent thing for me or will they eventually go away? Any advice would be welcome! Thanks again!
-- By micheledelp | Reply | (7) replies | Private Message me
January 14th
2006
1:51 PM
After 3 months on Toprol XL 50mg, I experience the common side effects but it has improved the atrial fib for which I'm also on coumadin and lanoxin. Also I have been on a daily Flomax cap for 15 yrs for a prostrate condition. Two weeks ago the Flomax was too effective so I went to one every other day which also became to be too much. Now I'm to one every two days which feels too effective. My thoughts focus to the Toprol as the reason for the favorable influence for improving prostritis or whats going on ?.
-- By elmsyl | Reply | Private Message me
December 23th
2002
1:43 PM
my wife(47) has been taking rythmol for over 9 months. We would like to know if this medication can cause a loss of weight.
She takes lanoxin and novasen along with rythmol to help her heart problem.
My wife has lost over 15lbs in the past 4 months lacks energy. and looks very pale.sshe has been taking rythmol for over 9 months.
Four months ago she started walking our dog(over a mile a day)and we are wondering if this is the cause of this weight loss or is it the rythmol.
June 19th
2009
5:54 PM
I started off taking Tenormin 50 mg 1 x a day and Lanoxin 25 mg 1 x a day about 21 years ago. I continued to have constant palps and skipped beats even though I was on these meds. I wound up developing vertigo after about 5 years that got so bad I had it daily. I ended up with severe sinus problems and was given a cortisone packet of pills (the kind that decrease each day you take them) to take. The vertigo left for 6 months, coming back again with a vengeance. I begged the docs to put me back on cortisone pills again, once more helping to stop the vertigo. However, at the same time I also stopped the Lanoxin. ??? I totally believe that Lanoxin was part of the problem causing the vertigo. I now only have it from time to time, maybe only a few times a year. I still blame the Toprol that I now take for the left-over vertigo. I was taken off of the Tenormin after about 10 years of taking it and put on the Toprol at that time and have been on the Toprol xl for the last 11 years. The docs said that I needed to be on Toprol XL, as it was an extended release and would help me much more around the clock. I did not notice much difference throughout the switch, but looking back I do believe that a lot of the things that I have been dealing with through the years are side-effects of the medicines. I have had irritable bowel syndrome, told I have fybromyalgia, then told I did not have fybromyalgia, hip and back pain, skin problems on one of my hands that started with the Toprol, headaches, tiredness, horrible weight-gain (without overeating!! Honestly.), I have averaged 5 lbs. a year and the docs never even listen to me when I voice my concerns, I have been diagnosed with anxiety, joints ache, ankels, feet, face and hands swell, stomach bloats something terrible, acid reflux, hiatial hernia, and I had a tumor removed that could have been a problem off my rectum (who knows what caused it), I have had CTs and MRIs of my head, twice, for the vertigo and what I was told was probably psuedo-tumor cerbri (because of months of severe headaches), told by my eye doctor that he wonders if I have beginning MS, everything came back fine and things seem to resolve and go into something else. I have been passed from my general physician, to a cardiologist, to a ENT, and a neurologist. No one can ever find anything physically wrong, but they did conclude that I definitely had benign positional vertigo. LOL, that means they could not tell me why I had it. I put a stop to testing when they wanted to do the spinal taps.
Now I am experiencing tightness around my lower rib-cage and feel as though I am sucking for breath, I have a terrible time falling asleep at night, I wake up gasping and swearing that I am dying. My rib-cage is numb around my right side, not so much the left side when I lay down to go to sleep at night. After a few bouts of this I finally fall asleep and sleep all night most times. My blood pressure is now on the rise 150/99 at the highest. I have been working out lately with a few positive effects, more energy, more endurance, less aches and pains, muscles are starting to tone up, however, no weight loss. I thought my bp was starting to lower, but found out it was actually up. I went to my family doc and she listened to me really good, realized at last that I was not shedding the weight despite the efforts I was making. She cut my toprol to 25 mg 1 x a day and put me on lisinopril, I did not tolerate the lisinopril so she switched me to dyazide, lowest dose 1 x a day. I have great positives ...no more swelling, weight loss, lower bp, HOWEVER, I am now having jitters, anxiety (somewhat), no appetite at all, a few muscle spasms in my arms and legs, nothing painful or severe, dizziness, slight headache that comes and goes especially through my eyes. I am also experiencing coughing, and raspiness...but I am also coming out of a bout of bronchitis, which got really bad with the lisinopril. I believe it is partly due to the meds.
I called my doc today to tell her about the twitching and buzzing feeling and to ask about the dyazide. My feelings are that I am experiencing a lot of different things, first the bronchitis, and all the meds I was taking for that...albuterol, musinex, tylenol w/codeine, and biaxin, then the decrease of my toprol xl, the bad effects of lisinopril (coughing and raspiness), and now starting the new drug dyazide (generic form). I really want this to all settle down and work out for the best, but it is getting to me now (after 2 weeks). Last Saturday I would up in the ER with shooting pains through my chest that left me very pale and lightheaded when it happened as well as very tight throug my chest and sucking for air. The ER did chest xray, chest CT w/contrast, bloodtests, urine test, bp's sitting, standing and lying down (it is highest while sitting), everything came back good. No heart attacks, no blood clots, no bronchitis anymore, nothing. Blood work was good, urine was good. I am beginning to think that perhaps my body is reacting to cutting the Toprol xl in half. Sort of a withdrawal. There is really nothing else it can be and I really don't think that the dyazide is that bad of a drug and probably not causing all of my problems now, maybe just a part. Which are the tingling, dizziness, anxiety, twitching, and coughing. I have only had 3 of the dyazide medication. But have read that withdrawal symptoms of Toprol can cause these problems for a while. I am also thinking that the shooting chest pains last week were also withdrawal of the Toprol as it had been 1 week at that point that it had been cut in half.
Any opinions, if anyone can make heads or tails of anything that I have wrote. Sorry for the length and if it is confusing.
-- By kalisa | Reply | (1) replies | Private Message me