August 5th
2009
7:50 PM
I am 26 years old and I've had the Mirena for two years. I ended up getting it because my doctor told me it was so much more convenient than taking the pill and more affordable. In the beginning, I felt okay but after awhile, I started feeling nauseous and sick all the time. Six months ago, I started bleeding for a couple of weeks straight, but I figured that it was due Mirena and the effects of it with menstrual cycles. Just to be safe, I took a pregnancy test and it came out positive and I was planning on going setting an appointment to see my doctor, only to have to rush to the E.R. later that night with killer cramps. I found out I had an ectopic pregnancy (I never had an ectopic pregnancy nor has any of my family members) and had to go in for a laparoscopy. I asked the doctor in the E.R. if Mirena should be removed and he simply replied that there was no need to. I had severe depression for a couple of weeks afterwards. I thought I felt awful with my usual symptoms of Mirena, but then the symptoms got even worse. I began experiencing dizziness, irregular cycles, a total weight gain of 20 pounds (I've never had a weight problem and my diet never changed), and extreme moodiness. After all the things I've experienced and now having to worry that Mirena will only increase my chances of having another ectopic pregnancy, I really look forward to my appointment in getting Mirena removed!
-- By drkphoenix | Reply | Private Message me
July 9th
2009
10:27 PM
i had mirena put in about 2 months after my daughter was born, first of all just the insertion was excruciating. the cramps were horrible and i could barely drive home and then when i finally got home i had to crawl up the stairs with my daughter. and i never felt right after i had it i was crampy a lot painful urination. my boyfriend also complained about the wires poking him during sex. then about a year after i got the mirena the cramping intensified and i would get sharp shooting pain in my urethra so went to my gyno and she ordered a ultrasound. well in turns out the mirena had moved and was in my cervix so she said she was going to remove it that day and told me it wasn't as painful to take it out. well when she went to take it out all i could do was scream she tried for a couple minutes to get out it was some of the worst pain i have ever felt. she pulled so hard it that the wires snapped out, so she finally stopped and told me that the mirena was embedded in my cervix and i would have to have surgery to get it removed. i thought ok whatever i knew this was a possible risk, i should have known better. well i go in for what should be a quick 30 minute simple operation i wake up 3 1/2 hours later with a searing pain in my stomach. it turns out that the mirena had dislodged somehow from my cervix then travelled through my uterus into my abdomen so they had to go through my belly button to retrieve it and i also have a small incision on my lower left abdomen from a laparoscopy where they searched for the mirena and also filled my stomach up with C02. I definitely think this product needs to be taken off the market and im thinking of sueing.
-- By luckieyou | Reply | (1) replies | Private Message me
May 5th
2009
10:00 PM
I was prescribed Lupron after a laparoscopy to diagnose endo between my freshman and sophore years in college. I was never told of any psychological side effects, even though the first page of my chart has a lot of info about my history of depression and anxiety. In addition to the night sweats and hot flashes, the depressive side effects were so bad that I dropped out of college (I was a stright-A student the year before.) It took me 2 1/2 years to get back to school, and I'll be paying off the $12,000 for a semester that I spent almost completely in bed. I'm a nursing student planning to work in women's health care, and will advise any of my patients to seriously research this medication before listening to their doctor. My pain never did go away while on the medication and was actually worse later and caused me to go back in for surgery.
-- By jhilton | Reply | Private Message me
March 8th
2009
1:32 AM
Im almost 19, and in summer of 08 I started having terribly sever abdominal pain, mostly in my right side right where you appendix is. I was sent to the ER multiple times because my OB thought I had appendicitis. I went through many MRI's, lots of blood work and ultrasounds and every time they tried to tell me that my appendix was fine and the implied that I was over reacting and the pain wasn't real. The only thing that they found was free fluid in my abdomen which they said was probably from a ovarian cyst. But the thing with that was that my pain should've been better after the cyst ruptured and it had not improved at all. Finally, my OB did another ultrasound and found that I had a blood clot on my right ovary. So my OB told me that she HAD to go in and do a laparoscopy in order to remove the cyst. When I woke up from surgery I was surprised to find out that not only did I have a blood clot, I had endometriosis all over my abdomen especially on my appendix causing so many problems there that she had to remove it. My doctors opinion on how to treat the ENDO was simple, to go on Lupron. She told me that people just RAVED about how good this drug was. Because of the pain I had been in before the surgery, I was very quick to decide to take the lupron. The first shot was the beginning of my problems. I cannot even begin to remember all of the problems I've had. The hot sweats where UNREAL. I mean I would be drenched in sweat. I could barely stand to have clothes on. I mean, every 10 minutes I would suffer from another hot sweat. They were constant. I was extremely nauseous. I would constantly throw up. My appetite was ruined, I became very sore all over my body. The most horrible of all of the side effects was the weight gain. I was around 130 pounds at the beginning of the shots I now weigh over 160 pounds and I BARELY EAT! and what I do eat is healthy, I work out, when I can, and still, no weight loss. I just continue to gain with every shot. I am on shot 4 of 6 right now and have decided to quit. I can't deal with the horrible side effects of this drug.
-- By keroseneheart | Reply | Private Message me
February 25th
2009
10:31 PM
Since having a laparoscopy in Dec 2008 for endometriosis and having the Mirena Coil inserted then, i have felt worse than before my surgery. My periods have stopped but it is a big price to pay given that i now suffer from depression, detachment, tiredness, intense nausea, joint pain, dizziness and cramping. I find that the fault lies with not only having a foreign object in my body but also having an imbalance of hormones not intended by nature. I am going to remove this thing and place the trust, instead, in my body.
-- By overthis | Reply | Private Message me
February 25th
2009
5:39 PM
Thank goodness for this site. I had my Mirena removed on Feb.16th 2009 after reading everyone's posts. I first had it inserted in April 2008 because progestrin pills were making me gain tons of water weight which was leaking around my heart and I still had painful heavy clot field cycles. I have SLE lupus so I can't have estrogen. Mirena insertion was horrible. I was in severe pain for 2 weeks. There after I had contraction like pain daily(or at least that's the best way to describe it seeing how I've never had a child), developed multiple cysts that kept bursting between cycles, gained 25 lbs., have bad acne seeing how I used to be called baby face because I never had acne before, severe depression and mood swings, and the 'fuzzy' 'out of it' feeling several women have described on this site. When I told my GYN about what I was experiencing she made me think I was crazy saying the Mirena wasn't causing my problems. Granted my cycles got lighter but never stopped. So I had a laparoscopy done to see what might be causing me to be constantly in severe pain. It showed nothing. So then my GYN was really making me feel crazy seeing how the laparoscopy showed nothing and the doc kept saying it wasn't the Mirena. So Jan. 2009 I stumbled across this site looking for reasons I would have 2 excruciating and heavy cycles 3 days apart from each other while on the Mirena. Well I got my answer. The Mirena was screwing' me up and ruining my life. Turns out I'm not crazy and now am free from the grasp of that evil pharmaceutical plot to ruin women's lives while making big bucks. I was just about to start taking antidepressants before I had the Mirena removed now I'm holding off cause this constant aggressive and angry mode I was in has disappeared since having the thing removed. And I no longer cry for no reason. I just came off of a heavy cycle reminiscent of how it was before Mirena. I also experienced a 'crash' yesterday and I was very moody. But that's expected with the damage this thing has obviously done to my body. I'm trying really hard to lose the weight I gained by May 1st, or at least most of the weight. Was 170 lbs before Mirena because of the steroid Prednisone I'm taking for my Lupus and I'm 195 lbs right now. I'm going to Florida in May so I want to feel good about myself and maybe consider getting in a pool. Anyways, I will let everyone know how my Mirena rebound is coming along in the next few weeks. If anybody gets wind of a class action suit against Bayer pharmaceuticals please let me know. I'd love to get these jokers for ruining my life!
-- By kaygeecee | Reply | Private Message me
February 25th
2009
11:55 AM
I had the Mirena Coil inserted in Jan 2008 (age 42), for heavy and painful periods and fibroids.I was told by my Gynaecologist that ''It's the best thing since sliced bread''....It took a few months for the bleeding to slow down and I was bleeding approx every 2 weeks, sometimes bright red clots, then 'old' brown blood. I would (and still am) experiencing pain before, during and after a period, particularly in my pelvis and low back and across the front of my tummy. In July 2008 I had pain constantly for 2 weeks, yet basic swabs for std (I'm in a monogamous relationship), revealed no abnormality and no uti. I was having regular check ups with my Gynaecologist, telling her how much pain I was in. I persevered for the 'recommended' year of having it in place. In Jan 2009 I began with excruciating pain which lasted 3 weeks. I had a routine pap smear which was normal except for Actinomyces. As I was symptomatic I asked my GP to remove the Mirena. It was sent for histology and revealed it had grown Gram Positive Cocci. I am still waiting for extended culture results. A high vaginal swab also revealed I had Bacterial Vaginosis and Mixed Anaerobes. I am due to finish 3 weeks of Amoxycillin antibiotics tomorrow for the Positive Cocci, and am on my second lot of Clindamycin Phosphate inserted internally for the Bacterial Vaginosis as I was still in a lot of pain and in desperation went to my GUMed clinic which revealed I still had the BV despite having 1 lot of treatment. I am waiting for a Laparoscopy in April. I am so angry that I have suffered for over a year with the Mirena. I have no idea what my periods will be like in future or when they will return in full. This IUD has affected my relationship with my partner and family, my social life and my working life. I live in the UK and I would sue the makers if the opportunity arises.
M.
January 17th
2009
11:24 AM
Having breathing problems since taking yaz?-- I have been reading all the postings on ladies having breathing problems. It has been maybe 7 years ago now, but I feel a necessity to share my story. I had been on Yaz for 2 months. I became short of breath to the point I could not walk across the room without having to sit down. My primary dr did an EKG and immediately had me rushed to the ER for test. I was sent to different specialist and over $10K in test were done within a week. By this time I WAS ON OXYGEN! They ran blood work, test on my heart, lungs and checked my legs for blood clots. I ask my GYN if it could be the Yaz. (the only med I was taking) and he said no- never heard of such. I took it upon myself to stop taking it and guess what!---I immediately was better. I turned my oxygen tanks in, doctor's never diagnosed me and I never heard from them again. I am 34 and have always been healthy with the exception of this incident which praise God was resolved "in time".
However, I would like to share that I now have a Mirena. The first 5 years was great, I had it replaced in May 08 and I believe this second one is not agreeing with me. I bled for 5 months, have a very heavy feeling in the bottom on my stomach, lower back pain, & fatigue. My appt is Jan 29th to have it removed. ******
January 10th
2009
1:08 AM
I started Lupron in April of 2008. The year before this I worked HARD to lose 80 lbs. I finally got down to my goal weight because I was tld my endometriosis symptoms could be relieved if I wasn't overweight. I had a laparoscopy in March of 2008 confirming my diagnosis- Lupron was a last minute decision because of my age and status the doctor didn't want to do the hysterectomy right away. My endometriosis is spread throughout the body- including the lungs. While Lupron helped with the pain I was experiencing, it caused other pain. Pain that I can no longer even deal with. I became lethargic, depressed, and angry. My hair was falling out in large clumps. I didn't gain weight right away.. except a pound the first shot and three pounds hte second shot but I figured that was alright if it was only like 15 lbs total. I oculd deal with that. Here I am almost a year later. my last injection was in August. I gained a total of 47 pounds. I am a fat slob. I couldn't work out because my bones hurt so bad while taking the medication. No one around me knows what I went through physically. They al think that it was just some excuse to be a lazy fat cow but it truly HURT to move. Just simply walking from my bedroom door to my bed killed me. It hurt my ribs, my knees, my shins, my back. There were times when I couldn't even get out of my bed ebcause I just didn't have the energy. Then the depression started shortly after losing a large amount of hair. By now I am thinking about how ugly i've become on top of how fat I am. Nothing went right but my doctor pushed the shot. I figured hes the one with years of experience he couldn't possibly be this wrong. I trusted him. When I would go to him with complaints of my weight gain he would tell me to stop eating. The problem was... I wasn't eating. I was too sick to my stomach to bother. Then when I would get hungry i'd over eat. I bled a lot through the shots and I still had pain here and there but I was too afraid of what he'd put me on next if I complained. I started to forget simple things. My career was going down hill because they were sick of me not being 100% commited to my job any more. I cried all the time. I finally got sick of the weight gain while I was on my shots and I decided to work out regardless of how I felt and three times I passed out in the gym and was transported to the hospital where I had to listen to their advice on being overweight WHICH WASNT THE REASON I WAS PASSING OUT TO BEGIN WITH but no one wnats to hear what I have to say. Every one just assumed that I was this pig who never worked out in her life and over did it this time. What no one understood was that three months before the incident i was my average weight. I was tachycardic all the time- my normal resting heart rate while i was on my shots was 162. During a work out it would get up to 220!
Ive been off them since August and I haven't lost a single pound. I get up at 4am every day and work out. I park as far away as possible. I use the stairs instead of elevators. I eat healthy. I cut out extra sugars and stopped rewarding myself when I deserve it. I started these shots at 155lbs and today I am 215. Ive been on a strict monitored diet, diet pills and work out regimens and I am still 215. My knees kill me nad sound like velcro when I walk- ive even fallen a couple of times because they hurt that bad. My back still hurts and my neck still wont turn to the right completely because of a nerve that pinches or what have you in there that sends the sharp pain through my face when I move. I still have the depression but i think thats more because of my weight now than it is anything else.. and I finally ended up losing my job.
I recently saw my OB for a follow-up where he stuck me on yet another birth control. This one makes me vomit and gives me stomach cramps so Ive decided im done. I won't take another pill because its making me worse. Id rather have my uterus fall on the floor than pop another drug.
-- By jamielk | Reply | (5) replies | Private Message me
November 11th
2008
4:56 PM
I cant believe i have just found this page!!
After feeling more sore inflamed 'hormonal' spots on my poor cheeks i decided to look up 'mirena related acne'.. i knew that it had some side effects, like possible skin breakouts, but i really didn't think that i would have ended up with skin like a pubescent teenager.
i was diagnosed with severe endometriosis after years of complaining to my gyne at 19. i tried all the usual route of contraceptive pills, oestrogen and the mini pill, but non seemed to suit me, so i was recommend the 'mirena'.
i first had one implanted 4-5 yrs ago, this had to be removed after barley 5 months. i was doubled over in agony on the bathroom floor and often had my breath taken away with excruciating stabbing pains.
i had my current one inserted in May 2007 at 23, under general anaesthetic whilst having a laparoscopy to try and remove some of the endometriosis. Granted i felt rough after being in surgery for 5 hours, but once all the stitches were gone i thought i would begin to feel human again.
i have put on quite a bit of weight, i went from 7 1/2 stone to just over 9 stone in just over a year (i don't know what it is in lbs sorry!) believe me at 5ft in height it's noticeable!!!!
i have never previously had migraines until the mirena, i now have them every 2-3 months or so.
my poor long suffering boyfriend thinks i no longer 'fancy' him as my libido has gone!
my breasts have become so painful and swollen it hurts to sleep on my side, its painful if i even try to run up stairs, and the boyfriend is no longer allowed to touch them!!
and at certain time in my cycle, my tummy becomes so swollen, i look 5 months pregnant, in fact i was asked the other day when was my baby due...i was really not impressed!! during the swollen tummy time sometimes when i am sitting down it feels like the mirena may burst out of my back passage.. (not a nice image i know) there is a sharp stabbing pain and then a wave of nausea comes over me, this stabbing pain can last on and off for a full day.. i have told this to my gyne.. he had said it must be irritable bowel syndrome!! i have never had IBS before!!
all this at 24 nearly 25, i'm supposed to be enjoying these years, but with my skin the way it is and my body confidence shot, it is really really depressing.
i just thought for so long i was being silly and over reacting to everything, but obviously i'm not the only one..i would not recommend the Mirena to anyone, i fact i would not wish it on my worst enemy. ther are far too many side effects!
September 15th
2008
12:41 AM
In the past five years I've gone through two six month Lupron treatments. The first Lupron treatment was given without a Laparoscopy. After being told for ten years that I was one of the unlucky few who have "bad periods", I finally found a doctor who would listen. She diagnosed Endometriosis after I listed my symptoms and put me on a Lupron treatment plan. I had one one-month injection and two three-month injections. Most of my side effects were tolerable; weight loss (almost sixty pounds but I was over weight to begin with), hot flashes, night sweats and memory loss. However, I experienced horrible back and hip pain...to the point of following up with a pain management doctor who insisted there was no reason for me to be in pain.
About four years later I found a really great doctor who performed a laparoscopy to diagnose my endo. She removed fibroid tissue from both ovaries and my colon. My next period was just a horrible so she suggested we follow up with another Lupron cycle. I expressed my concerns with the pain I experienced the first time and she suggested I have add-back therapy. She prescribed a regimen of Estradiol and Norethindrone along with six monthly Lupron injections. The side effects were worse this time around. My depression kicked into overdrive, I was constantly struggling to keep my anger in check, I would wake up dripping from night sweats, hot flashes were bad, blurred vision, memory loss, insomnia and the pain in my back and hips was excruciating. She prescribed Celebrex for my back and hip pain, which didn't help too much. I have a three year old son and had to use a wheel chair when we went to the museum because being on my feet for more than fifteen minutes was impossible.
I've now been off the Lupron for about six months and I have yet to regain any sort of short term memory. My vision is much worse than before I started the second cycle and has yet to reverse. My depression is still bad, as well as anxiety and irritability. However, as soon as the last month of Lupron started to wear off, my back pain did dissipate. I'm still having trouble sleeping but have found solace in Ambien...which could be a bad thing. I don't want to depend on chemicals to help me sleep at night. I just had my yearly exam with my doctor and she apologized for all the pain I experienced. She told me that in all the years she's given Lupron treatments, she had never seen a patient in as much pain as I was in. I don't think I'll be undergoing the Lupron treatments again in the future. I'm currently starting Yaz as a way to keep my periods at bay and only have three or four a year. I'm not real sure if that's a good thing either but we'll see. I have sympathy for all the other Lupron patients out there who experience the bad side of the drug. I don't understand how a medication such as this, which has such drastic side effects, can be marketed to people who are already suffering from pain in the first place.
-- By jackie_vandyke | Reply | (3) replies | Private Message me
July 28th
2008
6:56 PM
hi i had my mirena fitted 24th july 2008. ive had a lot of pain in my lower abdomen im having a really bad period also,im still a bit apprehensive about it .i don't have intercourse with my partner and i have took lads of pain killers i do hope it will subside as that's why i went to my doctors in the first place he sent me to my gyry and i had a laparoscopy and a hystercopy done i feel awful just wish the pain would go away i also haven't been the toilet since 23rd of july.
-- By nicolad1 | Reply | (1) replies | Private Message me
July 26th
2008
7:38 PM
I'm on my second series of the lupron shot, I am also a very young age of 17 years old tying to conquer endo and it's symptoms.... At age 13 I received my first laparoscopy and have been on birth control since "becoming a woman". I have terrible cramps and creeping lower back pain that makes me feel weak and exhausted all the time. I should be full of energy,but i just have terrible mood swings, lost love interest, severe mood swing, extreme hot flashes, memory loss, I've lost so much weight ..... I have lost from 125 lbs to 111lbs in maybe a month. I get very sick to my stomach and vomit when something doesn't appease me such as the smells of certain things, room temperatures, or even if someone around me is smoking. Lupron does take care of my extreme menstrual pains i did have, but sometimes i just wake up to dread the day.... It just feels like anything can make me feel upset and empty on the inside, no one wants to feel like that. From April 08- July 08
-- By kristinw18 | Reply | (2) replies | Private Message me
June 16th
2008
6:26 PM
I am 30 years old and have been put on Depo Lupron after a laproscopy to help with endometriosis. I am 2 months into a 6 month course (one shot every 3 months) of Depo Lupron and my life has drastically changed. I started feeling life altering hot flashes and night sweats two days after the first shot and nearly drown myself in sweat 24 hours a day. I experienced a little postpardum depression after giving birth 6 years ago but have found myself sunk into a sinking hole of depression and anger like I've never felt before. I bawl at McDonald's commercials and become enraged if the dishwasher isn't loaded properly! I am ecstatic one minute and severely depressed the next. I have even had thought of suicide since being on this shot. I am normally a very outgoing, athletic, cheerful, happy person - but since taking this shot, I have become a stanger in my own head. I tell my family all the time that I need to "go stick my head in the freezer" to cool off because of the horrific hot flashes. I have to carry a handheld fan with me 24 hours a day and sleep with ice packs to keep cool. Since the shot started 2 months ago, I have lost all sexual drive, am thoroughly exhausted by 9am and find myself crying at my desk at work by late afternoon because I am so tired. My family thinks I am going crazy and I've never fought more with my husband. My daughter has gone to grandma's for awhile because I'm just so tired and irritable that I feel like an awful mother. Migraines have also come full circle since the onset of the shot as well as blurred vision and shaky hands. I'm a little achy throughout the as well. I know that everyone responds to medication differently, but I'm finding a lot of people with the same side effects as myself and have to wonder why the doctors don't warn patients about these types of problems before prescribing medications such as Depo Lupron. I don't think I'll be going back for the second shot. Could it get any worse?
-- By rmjtweety | Reply | (10) replies | Private Message me
April 10th
2008
2:05 PM
Hi: My doctor has suggested me lupron depot 3.75mg for three months before doing supracervical laparoscopy. I did ask the doctor about the side effects and she said that you might get hot flashes and mood swings. Thats all she said about the side effects. My first shot is on Tuesday April 15/08. After reading all these experiences i am so scared to take them and planning to talk to the doctor again and looking into the abdominal hystrectomy instead of supracervical laparoscopy. Do you guys think that because it is 3.75mg and not 7 or more mg it might not have that many side effects.
God, I am so confused now, please help me out here.
April 1th
2008
6:50 PM
I was diagnosed with endometriosis about 4-5 years ago. I had a laparoscopy done and was told if I got pregnant that the endometriosis would be cured. I now have a 16 month old son (who I adore). Anyways, it took us about 2.5-3 years to get pregnant. In December I went to another doctor who told me to start Lupron shots for the endo. He put me on 6 doses of monthly shots. I was told that it should get me by long enough to have another kid. The side effects haven’t been back. The worse one is night sweats. I hate those. My problem now, I am in the middle of the 4th month and I am having severe cramps….no spotting or bleeding, just bad bad cramps. I called the doctor and he put me on Hydrocodone for pain. Any suggestions? Has this happened to anyone?? I’m hoping to have another child but feel that my window is closed and he will want to do a hysterectomy next. HELP!!
-- By smo0919 | Reply | Private Message me
March 19th
2008
11:57 AM
I’m at the end my 3rd month on Femcon Fe and I have to say that none of the side effects I’ve experienced have been too severe. My doctor put me on it after having a laparoscopy to treat endometriosis and in place of using harsher treatments such as Lupron. The 1st month I had some mild nausea, slight breast tenderness, and spotting for about 3 days. The second month the nausea increased greatly, I lost my appetite a little and I would even vomit sometimes. Fortunately the nausea was mostly in the early in the mornings and late at night when I would take it. My breasts also started to grow and were a little bit more tender. Now in my third month, the symptoms have finally started to subside. My breasts are still larger (which is nice hehe) but no longer hurt as much. I still have mild nausea from time to time but that’s also almost completely gone. It’s important to note that ALL birth control pills have side effects and you just need to find the one that is best for you. It is true that most side effects eventually go away once your body gets accustomed to the level of hormones but you have to give it a chance first. This pill isn’t for everyone but it doesn’t always have the harsh side effects that some women post here after using it for only two weeks. Some positives for me: my period is much lighter only lasting 3 days or so and with very little cramping (it used to be severe), my skin has cleared up and is less oily. No depression and my mood has actually improved. No change in sex drive either but I do need to use more lubrication now. Finally and most importantly (to me at least), I’ve had NO weight gain. Some bloating at times but no big deal. There have been times when I've felt hungrier than usual but you just have to have self control. Don’t eat more than you usual, only have healthy snacks and drinks lots of water.
-- By diamonds_r_4ever | Reply | (2) replies | Private Message me
November 30th
2007
6:08 PM
I have been on Lupron Depot for a year and a half, and it has been terrible. I am a stage 3 endometriosis patient; I was diagnosed last year on my first day of school. They did a laparoscopy, D&C, and cystoscopy. I have experienced nausea, weight gain, mood swings, paranoia, night sweats, hot flashes, dizziness and have had to be hauled out of school in a wheelchair on many occasions. This is all while on Lupron Depot. It has barely taken my pain away, but I will say that at first it worked amazingly. I don't know if my system is just immune to it now, or what. I had to leave school today because of chest pain and my pulse was 111 bpm. Before I started Lupron, I was told that I "may experience some mild hot flashes at first, if anything." The hot flashes are absolutely brutal. I went from being a straight A student to barely scraping by, trying to get weeks of makeup work done. I have always been a sane, calm person, but when i went on Lupron, after about a month also had to go on Prozac because I was so incredibly paranoid and mood-swingy. I also went from a size 2 to a size 7 in about 2 months! I exercise regularly, I ride my horse everyday, and I eat right. I've always been in shape, but Lupron made me gain so much weight!!! I wouldn't recommend Lupron, but I don't really see what other choice there is, since they have already tried the pill and that stopped working after about a month. I'm so frustrated, and I can't take it anymore! Menopause and pain from endo are making me miss my life. I can never go out, I always have to call in to work, and I haven't been in school consistently for about a month.
To anyone considering going on Lupron Depot, I would think long and hard about whether you are ready to deal with the side effects of Lupron.
-- By joiedevie128 | Reply | Private Message me
November 27th
2007
2:21 AM
PLEASE READ BEFORE TAKING LUPRON DEPOT:
Hey there, I just thought I would add my experiences with the drug for everyone. I am a 25 year old with stage IV endo. I have already done a Laparoscopy and removed some of my endo. Started the Lupron on a six month treatment. My doctor said I would probably lose my period in a couple of months... well, I was due for my period two weeks after first shot and I didn't get it. I didn't have a period from then on.
This drug is great for only one thing: pain removal. It's been great for this aspect. I was in SO much pain that it was unbearable, but the Lupron Depot shots REALLY helped with this. No pain whatsoever.
HOWEVER:
Side effects: Wow...these are extreme!
WEIGHT GAIN:
Now, I am a very healthy person. I was a college cheerleader and in shape. I eat well and exercise very regularly. This did not help one bit after taking the shots! Within six months I have put on 30 pounds!!! And this is even though I am still exercising more than ever and eating amazingly! It just doesn't seem to matter.
HOT FLASHES:
My hot flashes are severe. I carry a fan with me everywhere I go--and use it all the time. They can come on me so sudden. Sometimes they are based on emotions (e.g. if I get nervous or excited or sad...they come on really strong).
NIGHT SWEATS:
Um, yeah...it's gross. I keep a fan on my face, the window open, barely any clothes on, no covers...and I still sweat!!!!!
INSOMNIA:
I have not had too many good night sleeps since I started the shots. I will say though that as long as I am kept cool through the night then I have a better chance of sleeping well
NAUSEA:
It's strange, but I never get nauseous...not even from motion sickness, but I have been starting on the last shot of the treatment. It was so bad that I would throw up!
One last thing, I tend to have a messed up equilibrium a bit. Seriously, I find myself walking crooked all the time!
On a whole the best I can say is that this drug makes you feel like it's not really your body. I kind of feel like my body has the flu or something.....it just feels weird and strange all the time. You can tell your body is all screwed up.
Other than that I haven't had anything else.
This drug is GREAT for pain removal and it's also nice to not deal with a period for a while, but the other side effects are so horrible that I would rather deal with the pain.
I just pray that the weight I gained will come off after the estrogen returns to my body....
-- By sunshinekiddles | Reply | (1) replies | Private Message me
October 10th
2007
8:34 PM
I just started my first Lupron shot yesterday & my jaw will not stop jittering. I had been getting hot flashes for the last 3 period & had slight insomnia. Last night I finally fell asleep at 5am to then have to get up at 6:45 am to get my son off to school. Due to the jiteriness that I've been feeling I feel as tho I am on some sorta crazy drug that I really shouldn't be on! After reading some others side effects on this sight I'm really starting feel I made a wrong decision going on this Lupron shot.... My Dr. refused to give me a 2nd laparoscopy & I just couldn't handle the pain shooting down my legs from my abdominal area due to the endometriosis. I have always had BAD reactions to hormones... I should've known this wouldn't be good either. But my Dr. ensured me the side effects really were'nt that bad.... he's a damn lier!!!
-- By newlupronuser1 | Reply | Private Message me
April 20th
2007
4:27 AM
I was recently diagnosed with endometriosis. For the past 6 monthss i've been dealing with cramps so bad I had to be on percocet for weeks at a time just to be able to get through my days. After my laparoscopy two weeks ago my gyn suggested that I get on bc to help supress all fo the cramps and the cysts. As of right now i'm on day 7 and I'm miserable. I cry all the time and snap at my fiance constantly. I've been eating twice as much as i used to. I'm constantly exhausted and sex? What sex? No sex drive what so ever. It's completely gone. Not to mention I'm to tired to even bother anymore. And vaginal itching is very uncomfortable. No yeast infections, just itchiness. I'm calling my doc today to see if there's another bc that would make me a little less depressed. Last night I actually thought of suicide.
Ladies, you know your bodies the best. If something is not right, tell you doctors. Bug them until they listen and treat you properly. You do not need to deal with symtoms like this just because our docs got free samples from the drug companies. Tell your doctors what's going on with you. and good luck to all of you.
August 15th
2006
8:17 AM
Well, I'm 29 I have three boys 1, 4, and 6. Between My one year old and four year old i had a miscarriage. I've always had bad periods but i learned to deal with it. After my last baby who was born at 27 weeks gastation. My periods got worse!! Besides that i started passing blood clots. ?@## What in the world was wrong with me?? Well, i went to see my doctor and i told her i had bad pains with my periods and passing blood clotes. We decided to do a Hysteroscopy, a Laparoscopy and a DNC!! Well, the test results came back that i have servere Endometriosis!! I seen my pictures AND THEY DON'T LOOK GOOD. But i don't like either of the options... Lupron shot or complete hysterectomy including my ovaries..NOT LIKE'EN THAT EITHER. RRRRRRR someone help me!! It's been a little over two weeks sence my surgery and i started reading about it endo. I got the book ENDOMETRIOSIS The Complete Reference for Taking Charge of Your Health By MARY LOU BALLWEG and started on an Endo Diet even started takeing Vitamins "MEGA VITA MIN FOR WOMEN". I just don't know what else... learning from the book over 600,000 hysterectomys are done a year and only 100,000 are really needed! AND after learning more about Lupron... i don't like it!! SOMEONE PLEASE HELP ME FIGURE THIS OUT! Who wants to face all this at 29... and go through menopause at 29...Not me...but this is what i was delt..
-- By stephfine | Reply | Private Message me
July 1th
2006
8:39 PM
I am only 36. I had a Laparoscopy and Hysteroscopy of my uterus. I was in surgery for over 2hours. My uterus was attached to my stomach, my ovary attached to my uterus. I had my right fallopian tube all twisted like a telephone cord. My left fallopian tube had a huge endometrioma in it. The doctor put everything back where it belonged, and cauterized some of the severe endometriosis. After surgery, I took Lupron for the recommended 6 months. Yes, it helped my Endometriosis, while I was on it. But, it is now ONE year later, and I am in just as much pain as I was BEFORE I took this medication. AND NOW on top of the endo pain, I HAVE SIDE EFFECTS FROM THIS MEDICINE THAT WON'T GO AWAY. I have had Foot pain since the first shot. I had leg pains, deep in the bones. I have had tendonitis in every limb, it just keeps moving around my body. (Lupron supposedly dries out your tendons) I had memory loss (though that was mostly temporary, mostly words) I had the night sweats and insomnia, though those both went away for the most part. I too was extremely emotional, both angry and upset. I also began to feel helpless and almost suicidal. The pain from the side effects made me feel this way. I gained about 20lbs. I have Osteopenia now, which is bone density loss, everyone should have a bone density test after Lupron. My feet are still killing me though. I wish they weren't, I would give anything to turn back to before Lupron so that I could say no thank you. Good luck to anyone who takes this, but hopefully all these posts will help you decide not to take it. It really isn't worth messing your life up at such an early age. I will never be the person I was before.
-- By dragonfly24 | Reply | Private Message me
June 12th
2006
1:47 PM
I took Lupron several years ago after having a laparoscopy for endometriosis. I had headaches- night sweats - hot flashes - bone pain - and SEVERE depression. After I had a doctor wanting to test my bone density because they thought I had lost alot with this drug - I started reading up on it and stopped taking it altogether. To think that ME (22 at the time) lost bone mass!!!! I should be worrying about this in my later years--not as a 20 year old! This stupid drug also had a huge hand in my divorce after 3 months on this drug. I was thrown into a depression so severe, I couldn't control it at all. I recently found out through my state's attorney general's office that they won a settlement with Lupron for overpricing the drug - why isn't anything being done on the SAFETY of this drug? I worry that for the time I was on this - I need to be concerned with cancer... it did nothing but cause me pain and misery - and didn't help the problem!
-- By cathzoemay1 | Reply | Private Message me
Lupron (14) Mirena (8) Yasmin (2) Lupron Depot (1) NuvaRing (1) Femcon FE (1)
September 16th
2009
2:57 PM
hI was diagnosed with severe endometriosis at 20 years old had my first laparoscopy at 21 (September 2003) and my second at 23 (January 2005). After my first laparoscopy I was placed on Yasmin by my GYN who said it was a great drug and would help with my pain and clotting. I had just started dating my now husband and didn’t seem to have any side effects of from it. If I recall correctly at one point after my second surgery I stopped taking Yasmin, but after a lot after clotting went right back on it. I will be 27 Saturday so have been on Yasmin for the last 6 years.
-- By skrut919 | Reply | Private Message meMy husband was a paramedic/EMT (so knows a little about this type of thing) before he joined the military 2 years ago and prior to that I lived close enough to home to keep the same doctors (even while at college). Now that we are a military family we have to jump through hoops to see a doctor, but would visit home every few months so I continued to see my same doctors. We recently had to move across the country so I am not able to do that and now have to see the military doctors or wait for approval to go off post. This week for the first time I ran out of my prescription so my husband and I decided I would just get off of it for a little while.
Sorry for the novel, but I am getting somewhere with this I promise! I caught a 24 stomach bug last week and can’t seem to recover from the nausea and dizziness so bad I barely stand up. Saturday would have been my last day on the pack, but since I was sick the last pill I took was Thursday. My husband thinks I am dehydrated, though can’t understand why after plenty of rehydrating including military rehydration packets. Something told me maybe I am having withdrawals from Yasmin (though I have never heard of withdrawals from birth control) and decided to look it up. After reading many forums which ultimately led me to medications.com I am thinking the following symptoms I have been experience the last year that doctors just can’t seem to figure out could be related to the Yasmin. My symptoms are:
• Low blood pressure (daily for the last 4 months and periodically over the last 6 years or so, going as low as 79/47 and consistently in the low 80’s over low 50’s in recent months)
• Excessive weight gain -25 lbs over the last year I started at 130 (still a little high for me, but have always had a slow metabolism) and had been that for at least 8 months prior. In September of 2008 the first 5 lbs came on, it’s starts with a fluctuation between 130-135 for a month or so than one day I am 135 and can’t go below that no matter what I do including exercise and eating right than fluctuation between 135-140 than 140-145, 145-150 and same thing up until now where I am 150-155 and seeming close to hitting the 155 mark. I have never been over 140 max and was only that as a kid after my parents divorce which I lost was never more than 128 tops. Oh this week when I was sick I threw up for a day and half and didn’t eat for 4 days and still gained 4 pounds, how is that?!?!?
• Extreme Fatigue
• Thirst ( which I can’t seem to quench no matter how much I drink)
• Dizziness
• Problems breathing (like I can’t catch my breath)
• Headaches
• Nausea
• Frequent urination
• Heart palpations
• Depression/Moodiness/Crying for no reason
• Breast pain
• Cellulite I never had before
• Ears hurt a lot (but checked out with no problem)
• And the last one I wouldn’t have mentioned but I too have the pain/numbness in my right arm going from my neck down to my leg and lots of pain with it. I was in a car accident a few years ago and have a back and neck injury as well as nerve damage on my right side which I thought was the pain I have been feeling but it has been getting worse and am only mentioning it because it’s someone else’s symptoms as well.
Now until yesterday I thought my low blood pressure and weight gain were signs of an underlying problem and the rest were symptoms related to those things (I am on wait-list to see an Endocrinologist), but now I am thinking it could all be from my birth control. Do you think I am reaching here, or considering what is being learned about the drug is it a possibility? I greatly appreciate anyone’s comments/suggestions. Thanks so much for listening.
S.