November 18th
2009
12:44 PM
It is amazing to read about all of the side effects of Mirena and yet it can still be on the market. I don't understand.
I have all of these side effects. I had it inserted in April and am now getting it removed. However - went to have it removed and they can't find it (as they cut the strings to close) so I have to go back in for an Ultrasound so they can remove it??? GRRRRR!!! I have to wait until next Tuesday to get it removed.
I have put on 15 lbs in 3 months (I eat healthy and exercise daily), my back is killing me, my breasts are the size of watermelons.
I am so angry and movited to get this device taken off the market. I can't wait to get my life back. If you are considering it DO NOT DO IT!!!!!!!
November 17th
2009
5:47 PM
I got my Mirena o June 18th, 2009. It is now November 17th and I have an appointment to have it removed this Friday. It started with unexplained hives and rashes constantly. The bottom of my feet, my palms, my knees, upper arms, throat and stomach. I was on constant high doses of Prednisone and anytime I started lowering my doses, the hives returned. I went to the ER three times for swelling and hives so bad I could barely see and could barely breathe. seemingly caused by NSAIDS, which I had never had a problem with before.Next was severe lower abdominal pain accompanied by groin pain so bad I could barely walk. Friends said it sounded like cysts, but, when I had an internal ultrasound done, nothing was found. After that I had severe breast pain and swelling. The final straw was the constant all over muscle aches and joint pain in my knees. I feel like I am 100 years old! I am tired all the time no matter how much sleep I get. I went to a dermatologist and I mentioned the Mirena, as I had to my OB, his response was "middle age". I thought I at first has Lupus, but, the rash did not fit that description. I changed detergents, blamed it on a foster dog, anything I could think of. Finally after reading so many posts and finally finding a connection with the rashes and hives, it can be nothing other than the Mirena. I even noticed that this device had the second most posts on this site. I can not wait to have the Mirena removed.
-- By jbugler | Reply | (3) replies | Private Message me
October 26th
2009
10:56 AM
I have been getting lupron depot injections since my laproscopy back in August and had no trouble the first month except for hot flashes. After the second injection I started to experience migraine type headaches and I would get the shakes really bad through the night almost as if I was coming down with the flu. I just had my third injection and the symptoms are worse. I feel tired, nauseated, body aches, chills through the night and hot flashes all day long. Will my symptoms continue to get worse as I go on? I have two more months of injections and I am contemplating not doing it. My husband and I have a beautiful little girl but really want another child. Is two more months really going to guarantee pregnancy or is it a waste of my time?
-- By sarahmitch23 | Reply | (1) replies | Private Message me
September 19th
2009
3:09 PM
I have just taken my sixth and FINAL Lupron shot. I was unaware of many of the side effects, like IBS. I am a lot different than most women. I was born with a birth defect called cloacal exstrophy. I am 41 years old and have lived my life with no bladder or rectum, due to extreme reconstructive surgery at birth. I have a permanent Colostomy and urinary diversion (ileal conduit). I do not have a very large amount of intestine, which creates an absorption problem of certain things, one of them being Calcium. I have also had severe orthopedic reconstruction since birth.
In December of 2008 they found a mass on the right side of my abdomen along with a hydrosalpinx. The hydrosalpinx was drained and I was then urged to start a 6 month cycle of monthly Lupron shots. There is a long history of endo in my maternal family. I have been advised that because of existing scar tissue from so many past surgeries a hysterectomy was not possible. I can not even have a laproscopy to determine that the growth is actually endo.
3 months into the shots I started to suffer extreme diarrhea, lasting from 1 to 3 weeks at a time post the Lupron shot...it was blamed on overgrowth from past surgeries, etc. It has become a terrifying experience for me. Due to my inability to absorb calcium well I now have several calcium kidney stones that must be broken apart with a laser. I have no idea what will happen with the GI symptoms or if they will continue once the Lupron "wears off".
I have no concerns about fertility, since having children has NEVER been an option for me. My concerns are surviving my life longer without additional risk to it from taking this drug.
I have had the usual symptoms of sweating, night sweats, fatigue, Hair loss, loss of appetite and occasional insomnia. Again, the most concerning to me are the kidney stones and GI problems I have been experiencing, including "sludge" in my gallbladder.
I am severely disheartened by the lack of looking at the whole picture, at least midway through this treatment. This is compounded by the fact that my treatment stems from one of the country's "top 10 Hospitals", which is a direct affiliate of the Children's hospital that did an AMAZING job of successful reconstruction in 1968. It is 2009 and I have fewer options to improve this situation than I did the issues from the original reconstruction in 1968.
I feel I never should have been put on this medication and am deeply concerned about my survival from here. If I could go back 6 months, as informed as I am now.....this IS NOT the path I would have chosen. I no longer know which Doctor to trust, what decision is best for me or how much more I can take.
If there are any AMAZING Dr.s reading this, please feel free to contact me...I am desperate, I do not feel that this should affect my survival rate and am willing to listen to alternative solutions IN THEIR ENTIRETY.
Anyone with a shortened GI tract, absorption issues, or previous health conditions should WEIGH ALL OPTIONS and do AS MUCH RESEARCH AS POSSIBLE before agreeing to this treatment. I placed trust and confidence first, not one of my better decisions concerning my health. I will not continue treatment with Lupron.
-- By cjcatz | Reply | Private Message me
July 16th
2009
9:49 PM
Hi. I just had a laproscopy done 3 weeks ago for endometriosis. I am 26 yrs old and have been dealing with this pain for almost 2 yrs now and it is the worst pain in my entire life. My doctor is now suggesting Lupron because even after the laproscopy the endometriosis was level 4 and had bonded to my intestines and literally trapped my ovaries and uterus against the lining of my stomach. The pain was a 15 to say the least and the past 3 mos it had landed me in the E.R. Finally the docs figured it out. I started my period 2 weeks after the surgery and the pain was still pretty bad. An 8. Now I am seriously considering Lupron. My health is on the line and this pain is not right. At this point I am considering a hysterectomy if Lupron does not work. Any help suggestions please? Monday I follow up with the Dr.
-- By bkbomber | Reply | (2) replies | Private Message me
July 10th
2009
10:47 PM
I had my Mirena placed almost exactly 3 years ago. For about the last year, I've had pelvic pain almost constantly. I've gone to my gyno and she's given me several ultrasounds. All show that I have multiple follicular cysts on both ovaries. I am starting to worry that I have endometriosis and my gyno won't give me a laproscopy to find out-you won't believe her reason. She says because I don't have a problem with fertility (I have 3 children), that she's pretty sure that isn't what's wrong with me. So, I was talking to a friend who has endometriosis and she gave me her gyno's name. I have an appointment on 18 August and the nurse told me to consider, in the time I'm waiting for my appointment, having my Mirena removed. I have battled depression for quite a while, I've never been able to lose my baby weight (my oldest turned 4 last month) and recently, my pelvic pain has become so bad that I have considered going to the ER a few times. Also, I have lots of cramping in my back. And something that I never considered being a symptom of the Mirena, I'm having a lot of trouble remembering things. If I'm trying to say something sometimes, I can "see" the word I want to say but I can't get the word out. But I've seen a lot of other posts here that describe the same thing. I was honestly afraid I had some horrible brain tumor. I have recently gotten divorced, so I don't need the BC anyway. I had another ultrasound last Thursday, with the same results, only this time, my gyno told me to go see a gastroenterologist (sic). Basically, I felt like she was saying "don't bother me anymore because I can't help you". She never, ever suggested removing the Mirena and stupid, gullible me never considered it because I trusted her that it's not the Mirena. However, now, reading these experiences that are so similar to mine (and my sister, who also has a Mirena and is having the exact same symptoms), I am going to call the gyno on Monday and tell her I want it removed at my appt next month. Thanks for sharing, ladies.
-- By getthisiudoutnow | Reply | (3) replies | Private Message me
March 6th
2009
10:11 AM
I was prescribed the generic form of Yasmin by my ob/gyn for irregular periods, severe cramps and as a way to treat my endometriosis (insurance won't pay for a laproscopy until I try some sort of pill). I started taking it two weeks ago and in that time frame, I have had severe mood swings, fatigue and cannot eat because of my stomach hurting while suffering from nausea all the time. I even had to call my family doctor and he prescribed me Compazine for the nausea because I literally could not function. I am not the same person I was before starting the treatment. As a stay at home mother of a two year old, I have just decided this morning, that I am going to stop taking Yasmin for myself (my health) and my child. As a matter of fact, I threw the rest of the pack away down the sink. It is not worth all of these side effects when I cannot function during the day. Thank you for sharing your stories with me. At least I know that I am not alone.
Andrea-Pittsburgh PA
January 18th
2009
2:31 PM
I WAS DIAGNOSED WITH ENDO ABOUT 10 YEARS AGO WHEN I WAS 21 YEARS OLD. I WAS TOLD I WOULD HAVE TO HAVE A TOTAL HYSTERECTOMY BY THE TIME I WAS 25. I LIVED OUT OF STATE AND DID NOT LIKE THE DOCTOR I WAS SEEING SO I JUST DISMISSED IT. YEARS LATER AFTER MOVING BACK HOME AND GETTING MARRIED TO A WONDERFUL MAN WHO DOES NOT HAVE CHILDREN ( I HAVE TWO) I WENT TO MY OLD DOCTOR THAT I WAS REALLY COMFORTABLE WITH. TOLD HIM ALL OF MY SYMPTOMS AND ABOUT MY PAINFUL PERIODS AND HOW ME AND MY HUSBAND HADN'T GOTTEN PREGNANT AFTER FOUR YEARS OF TRYING. HE SCHEDULED ME FOR A LAPROSCOPY TO LOOK AROUND AND SEE WHAT WAS GOING ON. HE IS ALSO A FERTILITY SPECIALIST SO I KNEW HE WOULD TRY TO DO WHATEVER POSSIBLE FOR US TO HAVE A CHILD. I HAD A CHOCOLATE CYST ON MY RIGHT OVARY, ENDO, AND THE ENDO HAD FUSED MY BOWELS TO THE LEFT SIDE OF MY ABDOMEN. I HAD ALWAYS HAD PROBLEMS WITH CONSTIPATION BUT I JUST THOUGHT I WAS LIKE ALOT OF OTHER WOMEN. HE TOOK CARE OF ALL OF THAT AND WHEN I WOKE UP HE TOLD ME HE WOULD LIKE FOR ME TO GO ON LUPRON ONCE A MONTH FOR THREE MONTHS. THIS WAS ON SEPT. 11TH. I HAD READ ALL THE BLOGS BEFORE HAND ABOUT LUPRON AND I WAS VERY SKEPTICAL AND JUST PLAIN SCARED ABOUT TAKING IT. MY DOC TOLD ME IT WOULD HELP W/ THE PAIN AND AFTER TAKING IT FOR THREE MONTHS IT WOULD HELP US GET PREGNANT. I TOOK MY FIRST INJECTION BEFORE I LEFT THE HOSPITAL THAT DAY. THE FIRST COUPLE OF WEEKS I REALLY COULDN'T TELL ANY SIDE EFFECTS EXCEPT FOR HOT FLASHES. THEN THE HEADACHES STARTED. I HAD ALWAYS GOTTEN MIGRAINES, BUT THESE ARE 100 TIMES WORSE. I COMPLETED MY THREE MONTH CYCLE OF TAKING LUPRON ON NOV 6TH. I HAVE TURNED INTO A MOODY, CRANKY, ANGRY PERSON. IT IS UNCONTROLLABLE. AFTER MY LAST SHOT BEGAN TO WEAR OFF I GOT A HEADACHE SO BAD MY HUSBAND HAD TO PICK ME UP FROM WORK AND TAKE ME TO THE E.R. THEY TOLD ME IT WAS HORMONAL AND THAT I WOULD JUST HAVE TO DEAL W/ IT. THEY GAVE ME A SHOT AND SOME SAMPLES OF BUTALBITAL. THE SHOT DIDN'T DO ANYTHING AND THE BUTALBITAL ONLY MADE ME SLEEPY. I HAD THIS HEADACHE FOR OVER A WEEK. THEN IT JUST WENT AWAY. WHEN I HAD MY LAST SHOT MY DOC TOLD ME I WOULD HAVE A PERIOD WITHIN 6 TO 8 WEEKS AND WHEN I OVULATE AFTER THAT I SHOULD GET PREGNANT. IT TOOK ME OVER TEN WEEKS TO START. I FINALLY STARTED MY PERIOD A COUPLE OF DAYS AGO. I FEEL AS IF I HAVE ALREADY HAD A CHILD WITH ALL THE BLEEDING AND THE PAIN. IT IS UNBEARABLE. I FEEL SO SORRY FOR EVERYONE AROUND ME BECAUSE I DON'T EVEN KNOW THAT I AM BEING HORRIBLE. THROUGH THE LUPRON I HAVE GAINED 20 POUNDS, HAVE HAD SEVERE HEADACHES, HAVE BECOME VERY FORGETFUL, VERY VERY MOODY, AND JUST FEEL LIKE A TOTAL DEFERENT PERSON AND NOT IN A GOOD WAY. I WILL NEVER TAKE LUPRON AGAIN!! NEVER. IF ME AND MY HUSBAND DO NOT GET PREGNANT AFTER THIS I WILL JUST HAVE THE HYSTERECTOMY AND BE DONE WITH IT. I AM HOPING I BECOME LESS MOODY SINCE NOW MY BODY IS STARTING TO GO BACK TO NORMAL. OR AT LEAST I HOPE IT IS. HOW AM I SUPPOSED TO GET PREGNANT WHEN I AM SO MOODY THAT NO ONE CAN STAND TO BE AROUND ME? PLUS I NEVER WANT TO HAVE SEX. DOES ANYONE KNOW EXACTLY HOW LONG IT TAKES LUPRON TO TOTALLY GET OUT OF YOUR SYSTEM?
-- By kat1977 | Reply | (5) replies | Private Message me
November 3th
2008
6:29 PM
I had the Mirena inserted in March '08 after my second child turned 1. With that I also had an ovarian cyst removed 3 on Oct. 3..I like the Mirena b/c I never had a period and didn't have to worry about taking a pill everyday, however the cons outweighed the pros and my husband and I decided to have it removed. Which I will on Nov. 6...I can't wait...I have mild cramps constantly, light bleeding, and horrible mood swings,... and after having laproscopy to remove the cyst I just don't want to risk being infertile..My husband and I have decided on having a third child and are very ready and relieved to have the Mirena removed.
-- By k419 | Reply | Private Message me
October 5th
2008
6:52 AM
Ok, I had my mirena inserted 7/17/08, mind you I haven't had any kids yet. From that day forward it has been hell. I called my doctors office because the pain was so bad that I couldn't even stand up straight. They told me that this was normal and it will get better. After two weeks of calling I finally called with an attitude and told them, something is WRONG. I went in and seen a doctor, my doctor wasn't in that day. As this doctor went to do the exam he said I don't see the string. I freaked out, they sent me for ultrasounds, still couldn't find it. Long story short, they tried to tell my it expelled my body, well after they did more xrays they found it in my abdomen. Since I have had it surgically removed, I have been in pain, it was done on the 2nd of August 2008. I am still bleeding, not like a period but enough for annoyment. I also, haven't been able to have sex because of all the pain I have been in. I am now seeing another doctor because I basically had to tell my last doctor what to do, I felt I should see another doctor. He is waiting to see if my bleeding will stop on its own in the next few weeks, if not then we are going to do another laproscopy to see what the problem might be. I am on birth control, have been since a week after the removal of the mirena.
Is there anyone else out there that might be going through the same thing as I am? This is really disturbing, I thought I was getting better for a few days then, again I start bleeding. The pains are sometimes unbearable, but they are not cramps, they are shooting pains. I am sick of taking pain meds. If there is someone else out there that can relate please respond.
Thank you
August 25th
2008
8:11 PM
i do believe this is the most horrific form of birth control ever created. i had this suggested as a birth control option after giving birth to my 3rd child. after having a bad experience in labor there was no way i wanted anymore. i would love to have a hysterectomy. hrt. i could probably cope with a lot better than being put through hell asnd back every month.
mine was suggested my my gynecologist and i do suffer strange reactions to anaesthesia so seemed to be a good idea to have this put in to see if it worked. how wrong was i. i was a very very angry person. i never ever suffered any nervous conditions before so this was new to me when i completely lost the plot. i was put on beta blockers and i thought i was having a heart attack on them. i suffered worse periods . cramps fatigue . headaches . my skin is still spotty. i always had a lovely complexion before this. my immune system isn't what it used to be. the list went on and on. i didn't like it at all. i asked for removal and they said i had to wait for another gynecology appointment. i knew all the side effects were off this thing in me. i had to wait for an appointment to get it removed./ said 9 months was the normal wait. i think they get paid to test run this contraception. and at what cost? our health
i will voice my opinion about this as its disgusting how much these fat cat pharmaceutical companies profit on what should be free to British citizens.its getting so bad in the nhs we are told to get seen quicker we have to pay. but 20 or 30 years ago people would have laughed at that.
has any real tests ever been carried out on what is in these devices and how it affects so many women in a really bad way.
my problem was when i finally got a sympathetic locum doctor at my gp surgery to agree to remove it. she asked me to give a sample for pregnancy. can you imagine how hysterical i was . yes i was pregnant. so much for the 99.9 % effectiveness. that meant i couldn't have it removed. one idiotic nurse congratulated me
i screamed are you insane woman . congratulations!! what is wrong with you? do i look happy?
the doctor was more sympathetic. everything was a daze at first. she explained chances are i will either miscarry or have the baby and dispel it in childbirth. on my own again. i had a miscarriage 2 days later. not impressed with this at all. i then had to wait 2 weeks for an emergency scan as chances were it came away complete.
how did i feel .angry. empty. physically and mentally drained. i think if i could have i would have ripped that thing right out of me
so i had the scan. luckily it had came away. i begged them to take it out. sent me back to the doctors a week later. and they removed it. i refused to do another pregnancy test said , please just get on with it.
two hours later i was feeling a lot calmer.
i so thoroughly enjoyed having that thing removed for good . never again would i have that in me. or any other coil.
however this is the beginning of a very upsetting case of long term side effects at there worst.
i decided to get sterilized after all this . understandable as being highly fertile sex was a big issue and i wouldn't meet anyone let alone sleep with a man. fear was the biggest thing. getting pregnant was a big no no.
i got sterilized. this is where the problems start for 3 months periods would be getting worse. horrific migraines. couldn't fathom it. my cramp was bad before but god this was like hell. about 6 months passed and steadily was getting worse each month. no amount of painkillers would help. and i could see in myself my skin getting worse. spots. my eyes feeling tired. red sometimes. itchy and dry. feeling sick and tired. then unable to get any sleep on a night. catch 22 . cant sleep then cant get up .i could sleep all day and night no doubt if it was possible . mood swings very bad depression. so much so i had a breakdown in December 07. i took 6 weeks off work and it helped somewhat .but still the periods and bad painsdwere getting worse. i am not a whimsy sort of person. cramp is tolerable this is so bad i cry and cry and wonder why i have to be suffering like this every 3 weeks. i nearly pass out with the pain. i do not like going to see my gp as i find them no use at times. feel like a conveyor belt and you lucky to get ten minutes as the norm is 5. i finally went up to the doctors July 08 and he gave me lots of pills and said i shouldn't mess with mother nature and get sterilized. i don't think he got that right. i still blame that coil. my depression is quite bad at times. my pain is a constant dull ache in my abdomen still. i feel like its on fire when i have my period. i have to work out when i am due on my period and take a week off work. its really bad. i end up in bed. due to the fact i cannot stand upright. it is so bad it feels like labor. but its excruciating. i feel ive aged a lot in the last yr too. i cry most days as i am so tired and feel myself dreading the next one. i try to remain positive and think it will last a week and then i will have two weeks where its not so bad. but my cycle is so messed up that i suffer headaches a week after the bleeding and i am still suffering occasional contractions. if anyone has any experience like this i would be grateful of some sort of assistance be it advise or medical. i don't mind any sort of critical opinion either. i have a very open mind to all sorts of issues so will take any advise on board. i may see an end to my battle of suffering. i am waiting for another hospital appointment to see my gynecologist and hopefully it will be very soon.
tracy.
-- By tracyp123 | Reply | (2) replies | Private Message me
July 18th
2008
11:18 PM
I just got done reading a lot of this page, I was in tears. I'm a 23 year old female; I started taking Advair 250/50 (two times a day) about 3 1/2 years ago for COPD. Before my problems started I was working overtime every week, just financed a car a year previous, moved out of my parents and felt like I was on top of the world. Minus my general anxiety and clinical depression, I was only on 2 medications plus an albuterol inhahler.
I kept getting sick, was having trouble breathing, so I was put on Advair; at first It's like I read in almost all these forums...It's a miracle drug! I was able to breathe, but I noticed I was starting to feel pretty lazy, in 2 months I gained 30lbs. I kept taking it along with a lot of other medications for more problems that seemed to keep coming along. In late summer of 2005 I had a seizure while I was at work in a restaurant kitchen. I was opening and had passed out between 4 fryers and a flat-top grill; an ambulance picked me up. I kept getting dizzy spells and vertigo, I started having seizures a few times a week; I was released from my job on a long-term medical leave because of the hazard it was for me to work there. Things kept getting worse, It got to the point of averaging 17 pills a day because of medical problems. Before I got sick I weighed 131lbs, I currently weigh 170lbs. I was having seizures everyday, then every other day, and it slowly decreased over time. I went through so many tests, I'm still going through them. I started having really bad bowel problems which I'm still dealing with; It's sort of like IBS. I also deal with chronic daily stomach/abdominal pain; in a laproscopy, the doctor said that my small intestine looked like "a bag of snakes". Another daily pain that I'm still dealing with mouth/teeth/jaw pain. Although I rinsed my mouth out after each use, I believe Advair royally screwed my mouth up for life. My gums bled everyday, I had to use a kids toothbrush, my gums were peeling off; It was told to me that It's like a mouth yeast infection. The gums over my canines started receding and didn't stop until I quit taking advair. The nerves on my canines are exposed and partially rotted, other teeth have chips and are rotten around them. The gums above my canines are still raised and will still flare up from time to time. I haven't been able to work since August 2005. I've been denied disability twice. I have panic attacks when I'm around people. I'm scared to drive because I've had a seizure behind the wheel. I'm in so much pain everyday that I normally don't move unless It's to use the bathroom. I used to cook 80 hours a week, hang out with friends, and work out. Now, I can't work, can't be around people, and take enough medications to start a pharmacy. It's odd how it all seemed to start when I began Advair. One other thing, I'm constantly coughing up these weird mucas spheres. My advice if you're thinking about taking advair...well, I'll just say if I would have known that this is what it'd do to me, I would have chose bronchitis 4 times a year.
June 25th
2008
8:54 PM
Im 18 years old and was diagnosed with endo when i was 15, was put on lupron shot after the doctor did a laproscopy and finding my ovaries completely black(which was from the endo covering my ovaries. So ya im on my 2nd time to be on the lupron shot and have all the side effects i have read here, try being 15 and sittin in class and get a hot flash, or worse start crying...
-- By youngbutold08 | Reply | Private Message me
June 16th
2008
6:26 PM
I am 30 years old and have been put on Depo Lupron after a laproscopy to help with endometriosis. I am 2 months into a 6 month course (one shot every 3 months) of Depo Lupron and my life has drastically changed. I started feeling life altering hot flashes and night sweats two days after the first shot and nearly drown myself in sweat 24 hours a day. I experienced a little postpardum depression after giving birth 6 years ago but have found myself sunk into a sinking hole of depression and anger like I've never felt before. I bawl at McDonald's commercials and become enraged if the dishwasher isn't loaded properly! I am ecstatic one minute and severely depressed the next. I have even had thought of suicide since being on this shot. I am normally a very outgoing, athletic, cheerful, happy person - but since taking this shot, I have become a stanger in my own head. I tell my family all the time that I need to "go stick my head in the freezer" to cool off because of the horrific hot flashes. I have to carry a handheld fan with me 24 hours a day and sleep with ice packs to keep cool. Since the shot started 2 months ago, I have lost all sexual drive, am thoroughly exhausted by 9am and find myself crying at my desk at work by late afternoon because I am so tired. My family thinks I am going crazy and I've never fought more with my husband. My daughter has gone to grandma's for awhile because I'm just so tired and irritable that I feel like an awful mother. Migraines have also come full circle since the onset of the shot as well as blurred vision and shaky hands. I'm a little achy throughout the as well. I know that everyone responds to medication differently, but I'm finding a lot of people with the same side effects as myself and have to wonder why the doctors don't warn patients about these types of problems before prescribing medications such as Depo Lupron. I don't think I'll be going back for the second shot. Could it get any worse?
-- By rmjtweety | Reply | (10) replies | Private Message me
May 18th
2008
1:32 PM
I have been on Lupron for not even a month yet. My side effects are bad headaches, the pain has not gone away, I am still having my period, I have terrible mood swings, I have trouble sleeping, I have no sex drive at all, (my husband hates that) I get shortness of breath sometimes. I get hot flashes, they don't really last long, but when they hit, they hit. I get stomach aches and nausea sometimes. I think the worst thing about me is that I am in the Army. One doctor that I was seeing did a sonogram, a CT scan(i think), and put me on birth control pills, but none of that worked. She said there was nothing wrong with me and that I was making it all up. She said I needed to go to mental health. I finally got referred to OBGYN. The doctor there did a laproscopy, but let her tell it, she doesn't even know if I have endometriosis. She said I have a lot of scar tissue, but she can't say if it is endometriosis. Why are you treating me for endometriosis if you don't know for sure if I have it? The worst part of all is that I am supposed to be deploying to Iraq next month and I am still in pain. Yall please pray for me...
-- By armychick | Reply | Private Message me
December 3th
2007
12:21 AM
I am 27 and have 3 children. In March of 07 I had a laparoscopy to detect (and laser) endometriosis. At the time of the surgery, I had the Mirena implanted because 1, I needed birth control and 2, I was told it would stop the progress of the endo. This past 8 months has been anything but, fun. I've had cramping, spotting, bleeding, migraines, not to mention that my mood swings and emotional breakdowns have been so bad my husband can't deal with me and my Dr diagnosed me with bipolar 2 disorder and I really think it's all from the IUD. I've had depression before but, never, EVER this bad. I've called the Dr on several occasions and they always say something like, "one more month, everyone has such great luck, just try one more month". Tomorrow, I have an ultra sound to "check placement". I pray they just take this thing out once and for all.
-- By cksun98 | Reply | (3) replies | Private Message me
February 27th
2006
7:22 AM
I am 24 years old and I have had suspicions that I had endometriosis since I was 16. In January of 2006, I had an operative laproscopy confirming my suspicions and found out that it was worse than we all thought. I had my first Lupron Injection the 9th of Feb. 2006 and I must say I think I am doing pretty well. My doctor has me on the ortho tri-cyclen lo birth control pill for"add-back therapy" to help with the night sweats, osteoperosis, etc. I have only had one case of night sweats. I have however, experienced and increase in my appetite. I am bloated and I have gained weight. I also have had hot flashes but I have always been a sweater. I was skeptical about the drug after reading everyone elses side effects but had no other choice if I wanted to preserve my ability to have babies. I am grateful that I have yet to experience the other side effects and I hope I never do. Ladies, everyone does not have a horrible experience with the drug. And if you are like I am and want to have children in the future you should, if recommended by your doctor, try this drug! These horrible side effects may not happen to you either. Good Luck!
-- By kacop | Reply | Private Message me
March 13th
2004
1:38 PM
I am 25 years old, and have been experiencing ovarian cysts on both sides for the past 9 years. Which, comes with doubling over pains. Keeping me from having a normal life. Last year I had a laproscopy to remove the cysts. With in two months I was back in the hospital for a cyst that ruptured. Doctors have tried Birth control pills to control the cyst formations, which I was on for about 8 months when I went through surgery. Now Doctor is recommending Lupron, which I am not sure about!!! I am terrified reading some of the comments written, memory loss, anxiety, attempted suicide, Hot flashes/which I already get anyways, and other body aches. I dont know if this treatment is right for me. Has anyone had ovarian cyst problems and undergone the lupron to treat and what was the outcome and the side effects for you???? PLEASE Help me out here, before the thoughts drive me crazy!
-- By blueeyes3479 | Reply | Private Message me
February 10th
2004
3:43 PM
I am writing because i just got my 4th shot of lupron. During my office visit my dr. told me that because the pain hasnt gone away and the only thing lupron did for me was stop my periods, she now believes what I have suspected all along. I DONT HAVE ENDOMETRIOSIS!!!!! Now i am being referred to an ob pain specialist. She suspects it may be an ovary problem. No surprise considering I have had ovarian problems since puberty. She is suggesting a full pelvic exam with a possible laproscopy. She is fearfull of further surgerous and wants them only as a last resort. GOD BLESS HER FOR THAT!!!...She also is suspecting the uterine tumor and ceasarion scares as a possible problem.. Hey gals my advice is this.....Make sure you know what you have before you get treated. I took all those shots for something i dont even have. All the aforementioned symtoms were not worth it for me. The good news is the hot flashes and crying jigs have stopped. so there is some hope for people oin the shot. And as i mentioned before about the lack of appetite and weight loss....IT IS THE REVERSE OF WHAT LUPRON DOES TO YOU...A good sighn it may not be endo.. She is now worried about that one too. thanks for the posting after mine and may you all gain some insight from this one...good luck to you all..
-- By casandforcer8 | Reply | (1) replies | Private Message me
February 2th
2004
2:52 PM
I was diagnosed with endometriosis in Novemmber 2003 from having a diagnostic laproscopy. I am getting a shot of Lupron every month for 6 months. The side effects are getting worse each month....hot flashes, migraines, constant hunger...I've gained about 10 pounds, feel and look bloated all the time...lately i've been feeling really depressed, i cry all the time for no reason. very paranoid. My body hurts increadibly bad- my joints when i wake up are horrible.
-- By tali_lewis22 | Reply | Private Message me
November 18th
2009
12:45 PM
ive been on mirena since march 2008. at first i thought this was the best birth control product out there. however for over two years i have been riddled with allergies, sinus infections, upper respiratory tract infections, tiredness, headaches, joint pains, muscle aches, gastric and bowel problems, cyst like acne, mood swings tachycardia (rapid heart rate), anxiety. at first i thought all these were related to getting older (im 29) and work related stress so i wrote it off. but being a person who has never been sick in my life to all of a sudden being sick once a month is crazy. this has been the only thing i could think of that i could think the problem is. i hate to remove the iud because it is so convenient but i am sick of being sick. the doctors dont tell you of the not so obvious side effects like these. i just hope that no permanent damage has occurred.
-- By mommy715 | Reply | (2) replies | Private Message me