July 17th
2009
9:59 PM
I had a lap done last year in May and my doctor removed an adhesion that was hanging above my uterus. Also a fibroid (3 cm) was found in the muscle and is located right against my bladder. My doctor could not remove the fibroid because of its location and because of a risk that I might have scar tissue and could be a problem to get pregnant. He also said that I could have some other complications, like lose a lot of blood. I feel like he is not being straight with me. I also have ovarian cysts which is common in the women in my family. Since a teenager, I always had really bad cramps and heavy bleeding. As I got older, it became worse. Before I had the lap done, I bleed for 6 weeks straight. I was changing pads every 30 minutes. Then my stomach extended so far out that I looked pregnant. I could not sit or stand. My husband had to take me to the E.R. An ultrasound was done and found that my uterus was enlarged (9 cm). I was put on Nothridone to control the bleeding and to treat endometriosis. After taking 2 months of this drug my doctor did a vag lap and abdomen lap. Everything was good that is what he said. I believed it. I was doing better. I was working and had no pain for 8 months. Then it all changed for the worse. I started to have really heavy menstrual bleeding and lots of blood clots. I felt week all the time and sick. The bleeding went on for 8 weeks and finally my doctor said that I had to take Lupron injections. I asked my doctor if he could just do a myomectmy and he said no because that was should be the last result. I could no longer stand the pain and I asked him what kind of side effects come with this drug. He made it sound like it was not bad and that there are very little side effects. He gave me a some information about the drug and I read the information and I did a lot of research. I was terrified but I had to make a choice. I was calling in sick because I could not work with the pain and worrying about embarrassing moments when my pads failed to keep me from overflowing. So I took the 1st shot in May along with add-bak therapy which is Nothridone. The bleeding tapered off slowly and the pelvic pain decreased. I did not feel any side affects right away until the second week. I started to forget things and would just stand in the middle of a room feeling confused. I always had headaches since a child but now they are pounding headaches, which I cannot stand any noise. I also can't stand the light. I have body aches like I have the flu and have problems with my right hip all of a sudden. I had a x-ray done because my doctor thought I might have fractured my hip. There was no sign of a fracture but my pelvis id tilted. I have some arthritis in my spine which I do not understand how that happened. Sometimes I cannot walk and I have to use crutches to get around. I cry all the time because I am extremely sensitive and confused. I use to be a very strong person and now I just cry all the time. I called my doctor to tell him what I have been experiencing and he said its all normal. I have already had a total of three Lupron injections and the symptoms just get worse. I have been spotting here and there, sometimes I have a pinkish discharge, and now the pelvic pain is back. My doctor knows this and he just says its normal. I requested for another ultrasound because I am worried something is wrong and he said that I have to wait until I get the 6th injection.I feel like my doctor is insensitive but he is supposed to be the best GYN doctor where I live. I also want to say that I have gained 20 pounds in three months. My sex drive is gone. My hair is thinning. I lost my job because I ran out of FMLA. This has been a nightmare! I am losing trust in my doctor. My poor husband and family are having to put up with what I am going through. I pray all the time to help be stay focused and think positive. I just do not know what to do anymore. Is there anyone out there that can give me some advice?
-- By edanko | Reply | (4) replies | Private Message me
July 17th
2009
1:47 PM
I am so relieved to hear that so many people have experienced significant WEIGHT GAIN while on this drug. I weighed 150 pounds when I got pregnant and was 183 when I gave birth. I got all the way down to 152, when I became depressed and suffered from severe anxiety. I have gotten as high as 210 lbs, and my life has been miserable because of my attempts to lose weight and NOTHING WORKS! I can do an hour of spin class (supposed to burn 500-700 cals), lift weights, eat perfectly for weeks and step on the scale and lose NOTHING! I even hired a personal trainer and I think she thinks I am lying because she sees how hard I work out, and nothing changes. This is so depressing, I am embarrassed to go in public or even look in the mirror. I have decided to wean off although I have been taking this med for 10 years. It did help the depression, but now I am so depressed from this weight it is not worth it. Thank goodness I found this thread, because maybe I am not crazy!!!! Is there any chance I will ever lose the weight, or is my metabolism ruined for life?
-- By fatty1 | Reply | (1) replies | Private Message me
February 18th
2009
10:52 AM
Like many of you here... i am extremely happy to have found this website. I have been on Yasmin for about 5 years (frightening!!) and not until yesterday did i realize that all of the peculiar things that have been happening to my body must be connected to this pill. Let's start with the weight gain...
I am 5'9" and have always weighed about 128-132 lbs... As soon as i started taking the pill i jumped up to 138lbs and then over the course of 2-3 years peaked at 160 lbs!! I have struggled to lose that weight for years, exercising daily (with a trainer and also running, doing bikram yoga etc) and eating immaculately (under the supervision of one of New York's best nutritionists..) the result?? not much! i have struggled to lose 10 lbs and have remained at this weight (around 150 ) for about a year!! no matter how many crunches i do, laps i run, and vegetables/ salmon i eat my tummy and midsection is flabby, bloated etc. and i can't shake this weight
next up... i am always tired but yet have trouble sleeping... lie awake at night clutching my chest thinking i'm having a heart attack. fluttering heart/ palpitations etc. they always pass but i thought i was mad until i came across this site.
phantom leg pains... i have inexplicable cramps in my lower legs... thought they were blood clots. have been to see about 20 doctors... all over the world... been tested for blood clots w/ ultrasound, been tested for nerve damage, muscle damage, bone density issues... you name it. even went down the whole eastern medicine, acupuncture route... NOTHING!! nobody can diagnose it or even locate any issue.
these pains also wake me in the night.
last, but not least, i develop hyperpigmentation when i expose my face to the sun... basically looks like a have a moustache b/c my skin darkens... i know this is normal for any birth control/ hormone pill but figured i'd throw it in anyway! also noticed hair on my lip/ sideburns which i promptly removed with laser but i'm now thinking might have been from the Yasmin.
i am midway through a packet but as of today i am stopping. praying that the weight will fall off and the weird aches and pains and imaginary heart attacks will stop.
thank you all for your posts and good luck! does anyone have any updates as to their progress since getting off it??? i promise to post an update in a few months to hopefully help anyone with similar issues!!
all the best!
GM
January 9th
2009
5:35 PM
I was given a shot in I think January of 2008, not knowing exactly what it was, because I had a fever and the doctor said it would jump start my recovery. At first there seemed to be no problem with the injection site and I felt great just days after.
A couple of months later, when I was working out and losing weight and keeping a very close eye on my body because of it. Suddenly, I noticed that I had a deep indentation and discoloration on the left side of my lower back - right where they gave me the shot. It seemed like it appeared over night. It got deeper, and darker as time passed.. I was scared to press my finger in it because when I did, it just kept going in..as if there was no fat OR muscle in that spot.. I was FREAKED out. I'm a model so this fact that there was a bottomless whole in my lower back was devastating. I also feared that there may be something life threatening going on. I mean, a chunk of you just doesn't disappear overnight..Unless someone stole your kidney, but, I didn't wake up in a bath tub full of ice.
I typed in "Injection that causes Indentation in the lower back" and I found this board. Everyone here suffered the same exact symptoms from this shot and worse. I was certain that it had to be Kenalog. It seemed to cause death of all tissue at the injection site, depression, lethargy, moodiness, insomnia, pain and all sorts of other symptoms after this shot. I started to suffer from all of them soon after the shot and I didn't really know why or where it came from. I was in so much pain and was so tired.. I stopped doing everything I loved and I could barely sleep because of the pain.
I don't know what to do about this. I'm extremely broke and I don't have health insurance(and they wouldn't fix anything considered to them as "cosmetic" anyways).. My parents are in no position to help me anymore and I could never afford an attorney to try to claim against this.
How can I go about fixing this with no money? Is there any way to fix this to begin with?
Any advice, insight or experiences would be GREATLY appreciated!
-- By angelkitten | Reply | (2) replies | Private Message me
November 7th
2008
8:58 PM
Ladies ladies!! this might not apply to all of you but please read this....I have severe endo and was on the lupron for over a year I'm only 18 and Ive had 2 laps in the pasy year for my endo. Throughout the first six or so months of being on Lupron I had tons of bleeding same amounts of pain and horrible hotflashes. But after about 9 months things DID start to get better and even out. It really does take time to work for some people.
I did decide to stop the treatment though and I was wondering if any of you knew when you stop the lupron shot what the side effects are because since Ive been off it I have had the worst nausea and heachaches ever constantly. Does anyone know if its related? Please let me know.
-- By missy2424 | Reply | (1) replies | Private Message me
October 2th
2008
8:16 PM
I made an appt. with my gyno. about six weeks ago because my period was going on for two weeks at a time. Around that time my husband noticed a dent in my butt cheek, and since then it has gotten worse. I was looking up indentation on the butt and came across this information. I JUST called my Dr. and asked them when I was in there for poison ivy what they gave me for a shot, you guessed it KENALOG 80MG. This was five months ago. The indentation is getting worse. Will it ever stop, and what kind of Dr. do I go see about this? Will my periods ever regulate?
-- By kenhol | Reply | (2) replies | Private Message me
September 26th
2008
8:07 PM
I had one injection of Kenalog to treat anal itching. Doctor did not know how to treat it and used Kenalog as her last resort. It did not make any difference. Eventually another doctor diagnosed me with Herpes Cold Sore and treated me with Valtrex.
However, Kenalog messed up my menstrual cycle so badly and I haven't had ovulation for the last three months. What's upsetting is that my doctor knew that I was trying to get pregnant and did not inform me of such side effects. When I called the doctor later and told her what happened, she sounded very surprised and said that she had never heard of such a thing.
Doctors need to be better informed about side effects before recommending any medicine to their patients. And the lesson learned for me is to not trust doctors any more, always do research beforehand. Oh well, hopefully the ovulation will come back soon, it has been way too hard emotionally to deal with the overall situation.
Hope it's helpful.
September 17th
2008
11:26 PM
I don't know if it was the two kenalog injections but I began to menstruate-three years post-menopause. I immediately was seen by my endocrinologist, trans-vaginal sonogram and endometrial biopsy done. i just received a call tonight informing me that a polyp was found and I will need to have a D & C. It sounds like endometrial hyperplasia and this is a very sudden onset - I had the same sonogram in February and all was fine.
I have now found out that steroids can "wreak havoc" with our hormones. I was schedule to have epidural injections of steroids for back and neck injuries. I will not have them now or ever- they are not as benign and helpful as many doctors would have you believe.
August 26th
2008
1:26 PM
I'm a physician. Usually Kenalog injections can be avoided and oral steroids used like prednisone. The local dimpling effect may occur if the injection is too shallow, actually there is a temporary "disolving" of the subcutaneous tissue, the muscle and joints are not damaged. It is usually viewed as a "cosmetic" adverse effect. The Kenalog injections was primarily designed for joint injection and the kenalog or similar depo form stays active in the joint for a few weeks. All steroid medications can cause irritability and this is usually temporary for a few days. Steroids can cause muscle weakness- this is usually associated with high doses for prolonged use like being on prednisone for 3 or 4 months. Steroids can have an adverse effect on menstruation, but this is usually associated with chronic use. The most serious problems with the steroids result in bone weakness(osteoporosis) and serious damage to joints like the back and hip. Steroids can also result in weight gain, diabetes, high blood pressure and cataract formation. I don't think Kenalog is any different than other steroids such as Medrol or Prednisone in terms of the side effect profile. These are dangerous medications that can also be very helpful in saving lives and diminishing pain.
-- By mloren1357 | Reply | (9) replies | Private Message me
April 11th
2008
10:43 AM
I took 20 mg of Lisinopril and experienced skin flushing the first day. Mostly on my arms, neck and face. Has anyone else noticed this symptom?
-- By patandali | Reply | (6) replies | Private Message me
December 2th
2007
12:03 PM
Give Zoloft some time. At first I was concerned about the nightmares and upset stomach, but today (after 6 months) I feel so much better. I am a 60 year old woman who has arthritis, fibromyalgia, hypertension, and sleep apnea. Yes I still sleep more than 10 to 12 hours a day, but when I wake up I feel I can handle the day. I still work as a grade school teacher. I am more social with my peers at work and generally happier and catch myself singing a lot and joking around with my students. I have lost 20 lbs on Zoloft, but it could be that I am now exercising (swimming ten laps 3 times a week) and have given up drinking wine at night. Maybe that explains it, but the Zoloft helped me work on these other issues. Keep trying it, you never know.
-- By puppyjasper | Reply | (2) replies | Private Message me
September 26th
2007
3:25 PM
I am 17, soon to be 18, and have suffered from this horrible pain over my right ovary (basic area) for near 5 years now. I have missed my whole high school years, ended up being home schooled from the pain and graduating early. I FINALLY have a job that I love, but I'm afraid I won't be able to last. I go in to work with pain, get fevers because of either the pain or inflammation. I have had 2 laps, the first one showed nothing (I also, in 8th grade when all this started, had a 5.5cm cyst on my right ovary), the second showed endo on my right ovarian ligament. I have tired almost every birth control out there, and all they do is make me 10 times worse (odd, but true). Now this new doc wants me on Lupron. After all I have read, I'm scared to take it. I'm supposed to take it Friday. The bad thing is, I already have an auto immune glitch (we believe, every problem I have is linked to auto immune), I don't want to be worse. Recently I was on DEPO, which is horrible (seriously, don't take it you gain so much weight and it is so hard to get off, you bleed for like a month or more after you stop... it's awful). Every time I get this pain I bleed 10 min later, badly. I just want this gone, but I don't want any other problems too occur. If anyone has any links that specifically list the side effects of lupron or anything else that might help me, I would love it.
-- By jazz1020 | Reply | (1) replies | Private Message me
April 13th
2007
11:36 AM
My son has severe side effect after having Omnicef, prescribe by his doctor for his ear infection. He has bad mood, waking up several times during the night and crying; won't eat or drink, keep sitting on his grandma's laps all day...He also has reddish loose stools. I understand this medicine must be too harsh mentally and physically to my son, which I have never experienced with other anitbiotics. I will never allow the doctor to prescribe this medicine.
-- By liu_paula | Reply | Private Message me
March 25th
2007
8:44 PM
I had a raging head cold, something that resembled a brocheal infection and a low-grade fever.
I'm on day 4 right now and really don't feel much better. My head has hurt the whole time and my fever has not gone away. This is probably just a flu, which Zpak does not fix, but I got the script because it was quicker and easier than telling me to chill out for the next 10 days.
I wish I could blame my woes on Zpak. I can't. I think it's the nature of the virus that is using my bloodstream to swim laps in right now. Hopefully time will be my ally. If not, this is living hell.
-- By seth.millstein | Reply | Private Message me
December 18th
2006
3:41 PM
hi silke,
glad to hear you are feeling better again,thanks once again for your kind words,you have been a wonderful support to me over the last year. i will keep my fingers crossed that my weight will start to drop off again naturally.when i was suffering the side effects and people would so ooh you have lost so much weight, i would say i would rather be fat and happy....... i guess i got my wish! i find it so hard to excercise now i get tired so quickly and i get a really bad burning in my chest. i went out for a run today for the 1st time in ages,i used to run quite a lot but today i did 3 laps of the playground and i was heaving for breath!!! i guess it will take time for my strength to get back to how it was before but i know i will get there eventually! i was so glad to read that you are back singing again...keep us posted when your 1st album comes out!!!!!
sarah
-- By flowerbabies | Reply | Private Message me
May 13th
2004
1:26 PM
This drug was given to me along with toridol for a sinusitis attack. After fifteen minutes I screamed to have my IV taken out and began jogging around the room; not good since I had undergone back surgery two weeks prior. The nurse unhooked everything and said he had seen the same reaction that night with a similar case of migraine. He said it should wear off after fifteen minutes. Twenty minutes later the doctor came in and suggested that I have a shot of Benadryl to sleep. No sleep came. I have also experienced this reaction with compazine, except with compazine, I feel like I could run a marathon, but can't move. With Reglan, I run around and feel jumpy and insane. I came home that day and took more Benadryl. I walked laps around the mall. Still no change. Just waiting to get tired.
-- By ehp1978 | Reply | Private Message me
Kenalog (5) Lupron (5) Zoloft (2) Yasmin (2) Lisinopril (1) Zithromax Z-Pak (1) Reglan (1) Omnicef (1)
September 9th
2009
12:06 PM
I am deeply saddened to read all of these posts! I have a dear relative of mine who is suffering due to Lupron shots as you all are! Same symptoms same everything!
I did not know much of Lupron until she contacted me. My family knows that all my life I have struggled with health issues so they call on me for advice. It caused me to research Lupron for months. I am so glad it did, bc I was not aware that Lupron was so MUCH like Synarel was for me in my youth (I am 44 now).
I was prescribed this new unheard of Synarel for endo. It medical induced menopause-shrinking my uterus to the size of a walnut. I didn't care much about all that bc I was in pain w endo & cysts and was having way too many laps done. So I took this Synarel! You sniff 1 shot in 1 nostril am, and 1 shot in other nostril in pm. Suffice it to say that day built up and led me to 2002 where I had my oophorectomy-salpingo total hysterectomy.
I am in surgical menopause - and ladies so are you!! That is why all the terrible, terrible side effects! Losing hair, arthritis, hip fracture, hot flashes, insomnia, no libido, prolapse, etc. Just look at your mom, grandma, great grandma - you are experiencing their (age) symptoms. And doctor are saying that's a "normal" side effect of Lupron. Well of course it is your in Menopause!
THE GREAT NEWS is that there is help, answers, and health you just have to find it. I have been "finding" it since 2002 from all the resources I blog about and list on my blog (books, authors, doctors, pharmacies, websites, etc.). I am NOT a doctor just a woman who has been seeking answers to a life-long battle and who is FINALLY finding answers from those who have paved the way for me!
I would be honored if you would visit my blog and perhaps empower and arm yourself with the same information I have spent years researching!
I wish you all health, happiness and peace in these terribly difficult times you are going thru - there is light at the end of this tunnel - DON"T GIVE UP!
K.
-- By kimmie_myjourneysofar | Reply | Private Message me******