October 13th
2009
12:39 PM
About 2 hours after taking my 18th day of generic Wellbutrin XL 150mg. (Sun)the palms of my hands started itching like crazy! No bumps or anything, just intense itching. I immediately applied 1% Hydrocortisone cream to them and after about 10 minutes that pretty much made all the itching go away. I didn't want a replay of that, so I kept applying the HC about every 4 hours all day long, or after washing my hands. That evening everything was okay. Then the next morning, my hands started itching again...so again I applied the HC cream again, and headed off for work...they itched SO bad, and this time it took about half an hour for the HC cream to even begin to work. Then about 20 minutes into the hand itching, the soles of my feet started itching..too wierd! I was driving, so I couldn't apply it to my right foot b/c it was on the gas pedal, but I applied the HC cream to my left foot, ahhhh! Then as soon as I could, I applied it to my right foot. It took about 10 minutes, but it was soon itch free. When it came time to retake my med, I decided not to risk it. I called my prescribing doctor and she was off, and some other doc just said to take Benadryl. Duh, I was at work and #1 didn't have any and #2 it makes me so sleepy, I can't function. Then later on in the day, my wrists got welts on them, then my left elbow got a huge set of welts on it, and itched like crazy...then a few hours later, my left ankle got a huge welt on it and it looked like my ankle was swollen and both my feet and ankles had pin pricking sensations....a few hours after that, my right leg started itching behind my knee...I could feel a welt through my slacks...so again, I went into the ladies room and applied HC cream and it helped. By now I've used 1/2 the new tube of HC cream! When I finally got home, I pulled off my clothes and I had huge welts (hives) all over the back of my right leg. Plus, a big long skinny (horizontal) welt where my bra and wrapped around me. Since I was home, I could take Benadryl...so I took 4 tsp. and jumped into a warm (not hot) bath (they say to use cool water but I couldn't do it) with a cup of baking soda. Felt SOOOO good! By the time I got out they felt much better. I kept taking the Benadryl every 3-4 hours all evening but by the time I went to bed, I had welts on the back of my left leg also and on my buttocks and hips. My head kind of itched here and there in weird places, more like pin pricks but I have really thick hair, so I can't tell if I have any welts there or not. I stayed home from work today to continue on the Benadryl and making sure it doesn't get any worse. It hurts to sit here typing as my panty line is in the middle of a big 3" welt. The Wellbutrin XL seemed to be helping my depression and anger issues, but I assume the MD will put me on something else. I really liked it. It did suppress my appetite during the day but not much at night. Oh well! I'm glad I'm not the only one with these symptoms.
-- By halobabe99 | Reply | Private Message me
September 22th
2009
10:02 AM
I was reading your post and had to reply to it!! I have been on toprol xl for about 10 years or a lil longer! Started out at 100mg a day now take 200 mg a day. Am a 37 year old female,feeling like a 90 year old female! For the past 3 years or so experiencing numbness started in my toes, now my left foot to right below my knee is completely numb,right foot and leg getting that way!My hands stay real tingly also! When they are not numb they hurt me so bad. I just couldn't believe your post when I read it! Been to neuro telling me I have severe nerve damage in arms legs and feet? I am like from what? Had all kinds of tests and MRI, nothing.... Thank you for your post,printing it out and taking it to my doc! Maybe we have finally got a diagnosis!!! Sounds like it is the meds to me,Not to mention I am also on 3 other bp meds! Just scared me saying I might have M.S. More like toprol xl huh? How is your numbness now? Was wondering if u experience pain w/ the numbness? Thanx T.
-- By pigluver71 | Reply | (1) replies | Private Message me
August 7th
2009
7:54 PM
My local hospital prescribed Avelox for a sinus infection since Amoxicillin wasn't working. My fever jumped up to 102 the first 2 days so I called my family doctor. He told me to keep taking the meds for 2 more days and if my fever persisted to call him back. I experienced the high fever on day 3 and then was in a world of shock when I took the 4th pill. My body went numb, I was speaking but had no idea what I was saying, dizzy, the fever subsided during the day but spiked back up to 102 that night and I was very irritable. I made a doctors appointment the next day and the doctor told me to take the meds at night and I wouldn't have those reactions. After reading these comments and my day 4 episode, I had it in my head that I was not going to take any more pills. Then I called a nurse friend who assured me that it wasn't the antibiotic making me feel that way.....it was the extra strength Tylenol. She advised me to take the pill. I took the pill and not two hours later, my body went numb, I became dizzy, my tendons in my right knee and left foot swelled and I couldn't sleep. After my body went numb, I took the rest of the pills and flushed them down the toilet. I'm still feeling the affects of the pills and it's been 2 days. I've been swallowing gallons of water to flush it out of my system. I lost an entire week of work and pretty much my normal life. I'd much rather have sinus pressure in my head then deal with these side effects.
-- By mlewis123 | Reply | (2) replies | Private Message me
July 8th
2009
4:43 PM
Hi, I am a 47 year old woman and started Warfarin and Lovenox June 29th as a result of blood clots in my left leg from knee surgery. I was able to go off the Lovenox July 4th (Yay!) because my INR levels were above 2. I thought the Lovenox was the cause of the nausea I experienced, but apparently that is not the case. I keep telling the clinicians at the Anticoagulant Clinic about the nausea and their response is that they haven't heard of it as a side effect. Thank you all for posting to this website, there is some comfort in learning you are not alone with these strange side effects. I also experience dizziness and have difficulty finding words. I think I will switch from Warfarin to Coumadin to see if the side effects are less, though many of you have written about weight gain ~ yikes. For those of you bruising with Lovenox I was told if the needle is dry when it goes in there is much less bruising. And to everyone my thoughts and prayers are with you. Oh yeah, I also have nerve pain in the bottom of my left foot, the compression hose do help website is ******
-- By goawayclots | Reply | Private Message me
June 26th
2009
11:51 PM
I am 50 years old. Two years ago was diagnosed with very high LDL and low HDL. I told my doctor then that I did not want to go on statin drugs, but 3 months of Niaspan didn't help the cholesterol, and I hated the hot flashes and flushing that could come at any time after taking a dose. So my doc put my on Zocor.
Two years later I my bad cholesterol is within normal limits but my good cholesterol is still too low, even with fish oil and borage oil taken regularly. Almost immediately after starting the Zocor I started experiencing light-headedness and dizziness that would last for up to a minute--even lying down in bed! My doctor prescribed Meclizine for the dizzy spells--more stinking drugs! I get migraines at least twice a month. For the last six months now I have been experiencing increasing muscle pain, joint pains in the knees, elbows and fingers, and now have been having stabbing pains in lower back around the kidneys. I would wake up in the middle of the night with shooting pains and stiffness in my left knee and cramps in my calf muscles. The first joint of my middle finger had become extremely soar so that I could not make a fist or grip tightly. I have had a recurring stabbing pain in my chest under the left pectorals muscle. My feet and toes are soar--especially my left foot. When I exercise even the slightest or do some long walking or outside work, my muscles in the arms and legs get very soar and tender, then stiffen up. I had to see a massage therapist to loosen up my legs last week! Six months ago I would be up at the crack of dawn, ready to start my day, but recently I have become very lethargic and tired with little zeal for any physical activity. I have had intermittent pain in my left testicle. We recently moved and I started seeing a different doctor. After a physical exam, he brushes off these symptoms.
Well, I stopped taking the Zocor a week ago, and already my fingers are much better, although my knees and elbows are still soar. The dizziness has gotten worse but I'm hoping that after my body re-adjusts and flushes the simvistatin that that will subside, too. I have drastically changed my diet to drop 15 to 20 pounds and lower the cholesterol with better eating habits and swimming exercise; hopefully that will help alleviate the pain, too.
-- By pianoman2 | Reply | (2) replies | Private Message me
June 20th
2009
10:15 AM
Oh, and I forgot to mention.... the bloating is actually WORSE and I have GAINED 2 lbs since removal. Not to mention the headaches are worse and the tingling in the foot is still there.
-- By ameigh | Reply | (1) replies | Private Message me
June 3th
2009
2:17 PM
I'm sitting here in tears reading all of your posts because I've also been on prednisone and have horrible side effects. I was diagnosed with metastatic breast cancer in my lungs in June of 2002 and, after starting at 60 mg/day then, I have been on 20 mg/day for years now. The very first posting that I read mentioned problems with the femur bone. Besides all of the other problems associated with this devastating drug, in December, 2007, I broke a bone in my left foot with no known cause for it. Then I started experiencing pain standing or walking in my left leg and was diagnosed with a fractured femur bone and after several months of trying to get it to heal (including an ultrasonic bone healing system), it just kept getting worse until an orthopedic surgeon recommended that I have a 16 inch rod put into my leg which I did and it ended up to be one of the worst decisions that I have ever made. After experiencing all of the prednisone side effects for almost seven years including depression, severe fatigue, weight gain, moon face, thin skin, cataract surgery on both eyes, hump on my back, mood swings, etc., the pain and suffering that were caused by that operation brought me to seriously consider suicide. I was also diagnosed with chemical neuropathy in both of my legs also which makes my legs so weak that I have to crawl up any steps and have trouble just standing. I actually have an appointment for this evening to have an x-ray done to see what is wrong with my knees and did not realize that this also is yet another side effect. I never make it through the night without waking up in pain and getting a pain pill and then getting up in the morning is almost unbearable with that "burning" pain. I am now on Cymbalta for depression, Xanax for anxiety, Percocet for pain, and of course 20 mg of Prednisone. I was told that I would have to remain on Prednisone for the rest of my life because of the lung scarring and COPD. After reading all of your comments, I have decided that I would rather put up with any breathing problems (and I don't even know how slight they may be at this point) than to remain on the Prednisone. I have tried weaning off several times but get so fatigued that I can't move and that's dropping one mg every week. I'm affected by the decrease but it gets out of hand when I get to 14 mg and I get so frustrated and depressed at not being able to do anything that I just go back up to the 20 mg/day. If you have been able to wean off of it, would you please let me know how you did it and what you had to go through? I'm 65 years old now but I have two wonderful granddaughters (ages 4 and 6) who I can't do any normal "Grammy" things with anymore at this point and I have to change this condition for them and for me. Obviously, the doctors don't recognize the severity of the drug because they just keep prescribing it and out of a regular doctor, an oncologist, an orthopedic surgeon and a neurologist, they can't seem to get together to come up with a solution. I have to say that I haven't considered suicide lately but I do wish that I would just die and be out of this pain. My family and definitely my granddaughters and wanting to see them grow up are the only things that keep me going. There are probably things that I'm forgetting but I'm sure that one of you have covered it in our posting. Although my family is so supportive, no one and I really mean not one of them, realizes knows what we all go through because of this drug. How could they know that something that is supposed to help you could cause these problems? My life is a living hell, all because a pulmonary doctor prescribed prednisone seven years ago and I trusted him to only do what was right without informing me of what was to come. I more than sympathasize with all of you. I sincerely appreciate the time that you took to post to this site and so thankful to know now that this knee pain is not something new that I have but another side effect of the prednisone. I wouldn't have known that if it wasn't for this site because I'd be willing to bet that after I would have had this x-ray done, one of my doctors would have just prescribed another medication to take. Please feel free to contact me directly with any comments or especially any help that you can give me. I know that all of you are going through the same thing so if I can do anything for you, even just listen and understand, please contact me also. Sometimes that's the only thing that people can do is to listen and someone who is in the same situation can always understand. I'm here for anyone who needs a hug for the day.
-- By karen122275 | Reply | (2) replies | Private Message me
June 1th
2009
11:19 AM
I took Zocor for 9 months after I had a heart attack. After about 8 months I began having sever muscle spasm in my legs. I had a couple of episodes where when walking I couldn't pick up my feet and thought I was having a stroke and had to sit down and rest before walking on. I had to do this several times to get where I was going. I told my cardiologist and he had me stop the Zocor. The spasms stopped but I never regained the strength in my legs. Today I have had to put ramps in at home cannot climb steps. The ramp is difficult because of the incline but it is better than crawling up my steps to get in the house. I can only walk about 50 steps before my legs give out on me. I cannot walk on uneven ground without holding on to something or someone. I have now had 2 back surgeries because I have been told over and over it is my back with no relief for the legs. This last surgery my left foot drags and my big toe hangs down and I cannot pull it up. Now I fall a lot because of that and have to wear an AFO to keep my foot and toe up so it doesn't drag and trip me. The back doctor thinks it another pinched nerve and wants to open back up again. I am so tired of them trying to convenience me it is my back when I know it was the Zocor and the damage apparently is irreversible but no one wants to agree with me. I am sick of it and just wish they would say yes it was the Zocor and get you a scooter and live the best you can. I know I am headed for that road I use a walker and cane when I don't have someone with me to hold on to. Because I am so unstable on my legs.
-- By tyleen | Reply | (8) replies | Private Message me
May 22th
2009
2:43 PM
Less than 2 months after taking Lipitor I have been experiencing intense weakness of the legs, especially the hip area. A normally avid walker, last week really woke me up when I was unable to walk over 40 feet without having to stop from sheer leg exhaustion. I'd have to actually lean on my partner until I could manage to shuffle again- a shuffling gait is what I had to resort to just to make it back to the car.
This is bullshit because even though I've had some angina symptoms, right up until I went to the hospital I was able to hike; was still relatively strong.
So today I have spent hours researching side effects and have seen on this site alone many mentions of intense leg weakness and pain with Lipitor.
This, along with simultaneously educating myself on the truth about high cholesterol has convinced me to gradually cease taking this medication.
Instead I will replace with sufficient quantities of VitC, buckwheat combined with gingko, and of course I can never stop with the garlic because it is delicious.
-- By oceanfloats | Reply | (9) replies | Private Message me
May 18th
2009
3:03 PM
After 7 doses of Welchol I could not swallow, had severe heartburn and pressure in my chest, fatigue, and shortness of breath upon ANY exertion worsening pain in my left shoulder and pain in my left foot I felt that I was having a massive heart attack. I will never take this drug again and I can only pray that these symptoms go away, which so far they have not (last does was yesterday morning)
-- By nancyz9 | Reply | (1) replies | Private Message me
May 17th
2009
2:26 AM
My girlfriend is 36 she had a kidney infection and got Levaquin IV in the hospital. Her legs were going numb and she could hardly get up to go to the bathroom in the hospital. She thought it was her infection. They sent her home two days later with 5 pill containers. One of them was Levaquin. She called me today and said she is having terrible pains in her hands, wrists, hips, and knees. She says she cant make a fist or hold a bag of groceries and her hands have swollen up so that she cant get her rings off. I told her I would do a search on the net to see if it might be one of the drugs she was taking. Slowly but surely I made it to the Levaquin. The drug maker fairly non chalantly refers to tendon rupture as a side effect effecting mostly people over 60 years old. I dug a little further and found this web site and was amazed at how many people are being poisoned by this drug. I am praying if she stops taking it the pain and debilitating effects will go away quickly. She has two disabled boys she has to take care of, including lifting them into wheel chairs and into beds. This is no joke! I am so angry at this drug maker and these doctors who often times do more harm than good.
-- By fireworx | Reply | (1) replies | Private Message me
May 10th
2009
10:13 PM
I took Levaquin for a sinus infection March 26th... 5 doses of 750 mg. I felt slightly better initially but that lasted only a day. I think it was prescribed wrongly, I had a virus and was getting over it... not a bacterial infection. The problems started about a week after the 5 day course ended. I ended up in the ER feeling like I was going to die, some strangeness in my breathing and feeling as if I was having a stroke... like I was going to pass out. They found nothing wrong except an elevated blood pressure and did a d-dimer to see if it could be an embolism (at my insistence, I had no idea this could be from levaquin and thought I was having a stroke. After the ER visit, I just felt like I had the flu, but I didn't... weak, extremely tired with some muscle aches ... two weeks out I had a lot of pain in both legs, like charlie horses that didn't go away... that lasted several days to a week... the weird depersonalization and the anxiety has been intense throughout. Constipation (never ever had it before this drug) started about a month out from taking it. I still feel pain in my legs from time to time and a feeling like there is a tight band across the top of my left foot... like when you tie your shoe too tight and need to loosen the shoe strings, but I am not wearing shoes.
-- By uneasyone | Reply | (2) replies | Private Message me
April 14th
2009
1:22 PM
I started to take Atenolol after my kidney disease caused my bp to be extremely high. I'm on Avapro 150 mgs a day but at my last doctor's visit my doctor decided to put me on Atenolol for a rapid heartbeat. After about a week I began to feel extreme fatigue consulted doctor and he said it's not the Atenolol so I continued taking until my I started to feel pins and needles in my hands and feet. One morning I got out of bed and my left foot was swollen and curled up into a ball, the pain was excruciating. I was rushed to the emergency room where they said I pulled a muscle, I didn't. I asked the emergency room doctor could this be the Atenolol since I only started taking the drug for a few weeks when these symptoms began. He stated no that's not one of the side affects. After looking online I found that it is one of the side affects. So I stopped the Atenolol and after a few days was able to regain feeling back into my toes and slowly my foot. I still have pain and have trouble walking but hopefully I will recover. DO NOT TAKE THIS AWFUL DRUG. Either the Doctors know the side affects and are allowing us to be used as quinny pigs or their receiving some type of kickback from the pharmaceutical companies for prescribing this drug. If you know anyone taking this drug who is experiencing the above side affects stop the drug immediately before it's too late. If I had continued the drug I would have become paralyzed or worse stopped breathing. Another thing they are telling people that they have MS Multiple Sclerosis so they can treat you for yet another disease you don't have.
-- By charmedy | Reply | Private Message me
March 13th
2009
1:22 AM
Been reading everyone's postings and now I'm scared. I currently am on Vytorin 10/80 and today the doctor added Welchol. I just had and ACL replacement surgery 4 weeks ago and my leg aches anyhow. I can't remember a time I have not had back pain, and I have arthritis in my joints and neuropathy in my feet. Any yeahs or nahs out there for you experienced ones? Is it worth taking, do you assume all my current pains will only get worse?????
-- By lizzbizz | Reply | (2) replies | Private Message me
January 26th
2009
11:54 AM
I got mirena in January of 08, so I have had it about a year now. I have had constant depression, fatigue and chronic headaches. My eyes are are starting to ache now and I am having abdominal pain as well. I get this very odd tingling sensation through my whole body. I have been to so many doctors and like everyone else, all the sudden thought is it mirena? I called to make an appointment to get it taken out, still waiting for the call back. Please anyone write back and let me know if you experience this weird tingling and eye pain. I have also started to have anxiety and panic attacks as well. They put me on Valium and all sorts of stuff. I have anxiety because no one can explain all of these symptoms. I constantly just feel tired and angry. I hope when I get this out I can be NORMAL again.
-- By mamacass | Reply | (5) replies | Private Message me
January 7th
2009
3:32 PM
I am a 44 year old female with diabetes. I have high blood pressure and as a precaution was prescribed simvastian(zocor). I have only been on it for about 3 weeks...I have been feeling tired and very moody lately...but yesterday I woke up with my right leg swollen from the calf down my foot with severe burning pain and numbness. Now I have experienced Neuropathy in my left foot for years and somehow thought maybe this pain and numbness and swelling had to do with that...until this morning when I woke up to a severe pain in my right calf ( I immediately thought blood clot).. well I have a doctor's appt tomorrow to see what this is....right now Im sitting at work in so much pain and discomfort I want to cry...my feet are burning, my right leg and right shoulder are in burning pain...and my hands are numb and burning and in pain. I have to sit for hours at a time and cant just take a break when I need too...Ive only been taking this medication for 3 weeks and can not believe that all this pain and burning is from one little pill. Has anyone else had severe swelling from this medicine. Any other diabetics taking this medicine and having the same side effects? Im certain they are going to want me to stay on this medication and at this point after reading all these wonderful post, Im going to stop...Im even having difficulty in typing this post my hands hurt so bad. Im so angry that when I asked my Doctor about side effects he never mentioned these. he told me about being nauseated, constipated and so one...Ohh and I have also gained about 10 pounds in 3 weeks without changing my eating habits...anyone else have that? Thank you for letting me vent here. I was scared to death until I found this site. I was seriously considering leaving work and going to the ER room...Now Im just going to stop taking it and waiting this out till tomorrow....
-- By minpinlover64 | Reply | (2) replies | Private Message me
November 4th
2008
11:55 AM
I'm not sure my symptoms are the result of Lipitor, but I sure am going to find out by stopping taking Lipitor for a week. My symptoms - the numbing of my left foot, the reduction of motor skills in the left foot - it comes quickly and stops almost right away. I have been on Lipitor for several years taking 20 mg but recently was increased to 40 mg. I have no other
symptoms. Just touching base. Thanks for the site.
October 1th
2008
7:25 PM
I had been on Effexor for about three years and could no longer stand the side effects so doc put me on Cymbalta. Wonder drug to start with. I felt happy, normal. After two weeks on 30mg per day the doc increased the dose to 60mg per day. SHEER HELL! It started with a mild pain in my left foot and after a week at 60mg both my feet were swollen with intense burning and incredible pain. Went off the meds and four weeks later I am still in intense pain and my feet feel permanently on fire. Anti-inflammatories only take the edge off the pain but not the burning
-- By barbstar | Reply | Private Message me
September 30th
2008
1:33 PM
THIS IS A HORRIBLE DANGEROUS DRUG!!!!!
Doctors prescribed this to my mother for 5 years!!!! Because of it's devastating side effects it is FDA approved for short term 4-12 weeks and only as a last resort. And NEVER for Parkinson's patients. It is unclear if Reglan caused the Parkinson's like symptoms or if she had it prior. Either way the doctor was so wrong to prescribe this medication to her. She is completely disabled can't walk or even get out of a chair had a auto accident and falls one time a metal frame fell on her head causing a hospital visit another time she fell into cactus! I was horrified to learn that no one caught this error. Not one doctor or the drug store told my parents REGLAN could cause her to end up using a walker and unable to function even the simplest daily tasks and that these symptoms could be permanent.
August 25th
2008
7:35 PM
i am 55 and have been taking simvastatin for about 2 years although my cholestrol was under 5. over the last few months have had pain in my knees which i thought may be arthritis and then about 2 months ago the pain started in my left foot and became so severe that i had to change to an automatic car, still believing up until today that arthritis must be getting worse although my foot xray came back normal, i found this website today as my finger and thumb joints are hurting so much i cant hold anything and every muscle aching so much i just wanted to cry.after reading these letters i realize that even the choking feeling im sometimes getting isn't a menopausal panic attack and now i have checked my simvastatin leaflet an d box and realize that although my last cholesterol reading was only 3.5 one of my doctors has put my tablets up from 10 mg to 20 mg so big question is this an overdose ? im not taking another one of these pills an see what progress my health makes. i am slightly worried about heart disease and will look into herbal type as my parents use these,have never taken statins and are 90 and 87 so i think this speaks for itself,thanks everyone who has helped me diagnose my own illness!!!
-- By ho18 | Reply | Private Message me
August 4th
2008
2:41 PM
I was prescribed Levaquin for a bout of diverticulitis six weeks ago. About a half hour after taking it each morning, I felt completely unwell--dizziness, fatigue, overall weakness, odd sensations of pressure in my head, chest, and bladder, weird bouts of sudden joint pain. The worst side effect was terrible insomnia. I'd go to sleep OK, but wake up after 3 hours and not be able to get back to sleep, sometimes for the rest of the night. Instead of getting the rest I needed to get better, I was getting more and more exhausted. Now, a month after stopping the medication, my sleep hasn't returned to normal. I'm still awake in the middle of the night for two or more hours. Is this a residual side effect from Levaquin? Has anyone else experienced it? When can I expect my sleep to improve? Is there a way to detoxify from this drug?
-- By cindyo | Reply | (4) replies | Private Message me
July 27th
2008
2:22 PM
I started using lipitor from my doctor, it lowered my cholesterol all around but I started to have lower back pains. At first I thought it might be prostate cancer, but after having to MRI's done they found no cancer, thank god. But I went to an orthopedic surgeon to see what the problem was. He looked at the mri's and saw lower dics hitting my nerve endings. He also thought that it might be muscle problems so he gave me 3 epidurals and that helped for a while took away about 50% of my pain, but I still have the pain, It is hard for me to get comfortable when I sit or even when I am sleeping. I don't want to think that it is the lipitor that is doing it to me but after talking with others I feel it is time to talk to my doctor about it. My doctor said that lipitor is the safest one that will do very little harm to my liver. I am not a doctor so I would not know.. My cholesterol level was 246 at one time now it is 175. I am now facing possible spine fusion to help correct my disc problem. But will also ask doctor to prescribe something else.
Alan
-- By asperling | Reply | (7) replies | Private Message me
July 21th
2008
11:26 AM
I have been on 5mg of Lisinopril for about four years now. I have the cough everyone talks about. It can start as a dry cough and come from nowhere but often I know it is coming as I can hear the rattle in my chest. If I have just eaten and it comes on I often end up being sick. I have this awful clear (totally colorless and odorless) mucus that comes up. It is horrible, it is so hard to cough to clear it without being sick and I make horrid noises. If anyone is around me they all look at me with horrified expressions on their faces. My Bp is now under control since I now also take a water tablet too, but I still get horrid fluid retention around my ankles and on top of my feet and have to go to doctors now as the pain on top of my left foot is stopping me from walking - the only exercise I do, and what keeps me alive I guess) and the cough is not occasionally anymore, I get it daily. I don't cough all of the time, and it mostly gets me in the morning when I awake, but I know it is a side effect and getting worse. I guess I am putting off going to doc because I hate the thought of having o come of the drug and try something else as my BP is reading a lovely 123/79 most of the time, which is great!
-- By dyezee | Reply | Private Message me
July 13th
2008
2:23 AM
Hi all, I was amazed to find this site. I too have had a rough life for the past eight years! I am going to be 39 in a few days but this story starts back in August 21, 2000. The day that put me in HELL for the next eight years and still going through it. Prior to this day, I had a lot of UTI's and Pneumonia and several times prescribed both Levaquin and Cipro. I did develop Achillies tendinitis but I thought this was due to my active life style, see I was an LPN and a firefighter. So I went for treatment to fix the Achillies tendinitis. This was a foot Dr that of course gave me a cortizone shot in it. I cant remember how much earlier this was that this took place and I am still not sure if this is what did it but as I am thinking back these are the things that come to mind. On August 21, 2000 I was on a fire call and my right Achillies tendon popped off the bone! They took me away by ambulance. The Dr in the ER said to go home with an air cast on, eat or drink nothing and come back in at 10:00am and they would possibly do surgery. Well, I did just that. The orthopedic Doc said oh yeah it is achillies rupture will have to go in and tie back all the little fibers. So away to the operating room I went. They gave me a spinal and just knocked me out. I was awakened suddenly by my Dr. voice loudly saying " Holy shit it peeled off the bone!" And another nurse saying let me see! I came up on my hands and they grabbed me put me back down and knocked me back out! (I still have night mares over that!) Anyway, I spent the next 3 months in a cast. During this time, I was told from over usuage of my left foot, I now was developing tendinitis in my achillies tendon in the left foot! Which this sent me to a wheel chair. They took the cast off in 3 months then I was still no weight bearing for another month. Then i had physical therapy for about 6-8 months with little improvement. I complained to the Dr about the left achillies tendon and he said he would not do anything about it unless it too popped! So now many Dr later, and many many medications tried and many surgeries later, and now diagnosed with Lupus, Sjogrens, and Fibromyalgia, the most my rheumatoligist says is I have a connective tissue disorder, and taking cancer medication (Methotrexate) I am now disabled at 39! My life taken from me. I have situational depression, panic attacks, sleep trouble, Suffer from post traumatic stress, nightmares, basically my life is a mess and it is over. On July 1, 2008 I had to go to the ER cause I was sick. I had been run down and feeling bad and sleeping a lot, disoriented, couldn't stay awake. They found I had another UTI and a sinus infection. The Dr Says we will put you on Levaquin and that should take care of both problems. So he left, it took me a while for it to sink in that I should stay away from that drug, so I caught him and told him, he said to me that this was only found to be in kids while they are young and developing that it causes tendon rupture, and besides he said, one dose will not hurt you. I took 5 pills, one a day. Since then I have been in so much pain all over my body it is unreal! It still took me days to figure out that it was the Levaquin doing this to me! I feel like at random someone is sticking a knife in different muscles in my body! I felt like I had done Tie bo for 24 hours straight! Even my butt muscles hurt so bad to sit here and write this email! I have days when I cant even use my hands! Write my name with a pen. I am not sure if this is all due to these drugs, but I am most miserable and not a bit better. I may have just made it worse by taking this last round of them. Has anyone else had this kinf of symptoms?
-- By pwg | Reply | (4) replies | Private Message me
Levaquin (15) Lipitor (14) Mirena (8) Lisinopril (6) Zocor (5) PredniSONE (4) Yasmin (4) Toprol-XL (3) Avelox (2) Fosamax (2) Simvastatin (2) Lamictal (2) Welchol (2) Warfarin Sodium (2) Norvasc (1) Cymbalta (1) Reglan (1) Wellbutrin (1) Doxycycline Hyclate (1) Flagyl (1) Zithromax Z-Pak (1) Atenolol (1) Sulfamethoxazole (1) Lantus (1) Schiff Move Free (1) Cipro (1) Ultracet (1) Cortisone Acetate (1) Paxil (1) Diovan (1)
November 6th
2009
5:37 PM
SIX HOURS POST REMOVAL- I had my mirena removed today after 3 years and nearly 3 months. My side effects included headaches, sore breasts, weight gain, nausea, severe hair loss, depression, severe pitting edema of my right foot, cramping, hip pain, exhaustion, severe mood swings, and acne. During the first six months I had constant bleeding, which I had been told to expect. I took regular pills everyday and the bleeding stopped. Then the hair loss started. My hair came out in clumps and was EVERYWHERE. I lost about 15 inches of my hair in spots. I went to the salon and got a fantastic hair cut, I attributed my hair loss to stress. Now I'm not too sure. I also didn't feel like I was myself with the odor that I developed. No matter how many times I showered I felt not regular. Slowly but surely over the past three years I have gained 30 lbs. I worked out to try to get the weight off, I lost nothing and in fact gained weight! The pitting edema of my left foot started in July of 08. I have been tested for everything including diabetes, heart problems, clotting disorders, pregnancy, high blood pressure, kidney problems, and the list goes on to the tune of $6,000. I went to my OB back in the spring and was told if they could find nothing else then they would remove the IUD. In the interim I lost my job and subsequently my insurance. I luckily was able to get coverage again and immediately set an appointment for the removal. Insertion hurt like nothing I have ever experience, removal was quick and almost painless. I also ended up with BV (bacterial vaginosis). I feel and look as though I am about 6 or 7 months pregnant. My belly is actually the same size as it was when my son was born. I weight about 15 lbs more. My breasts were extremely swollen and sore.
I instantly felt better after removal. My hip immediately stopped tingling. I have no back pain. It felt almost like a lifting if that makes sense. I am curious to see what the next few weeks will bring and I will definitely keep you all posted.
-- By crebre80 | Reply | Private Message me