November 13th
2009
12:26 PM
OMG!!!!....This Is Totally Happening To Me Too. I had my Mirena put in in 2007 and ohh for the past year or so I have started having Excruciating Pain in My Left Leg, Lower Back, upper thigh all the way to my foot...Also I have had to go to the ER quite a few times with Migraine pain so bad it was incapacitating. I have just called my Doctor and am going to insist this thing be removed..Thank you for the Info...I hope this puts an end to this PAIN!!!
-- By nurse08 | Reply | (1) replies | Private Message me
November 8th
2009
10:28 PM
Been on coumadin for a year, horrible medication. Have aches all over, legs, shoulders, back, always tired, want to be off this med. Was taking alternative meds previously...nattokinase, bilberry which are blood thinners but are also SAFE. Then I had no leg pain, no muscle pain. I now take vitamin e and fish oil with the coumadin, no interaction since I've been using them for a long time and are more beneficial than the coumadin as far as I'm concerned. What I need is a naturopathic doctor, but they are hard to find, regular mds have no clue about supplements..all they want to do is increase your prescriptions. Doctors try to scare people telling them they'll have a stroke without coumadin, but have no solution on how to prevent stroke, etc. without drugs.
-- By jennyjay | Reply | (1) replies | Private Message me
November 7th
2009
3:42 AM
Hi there... I came off of Yasmin just 2 weeks ago and thought I should share with you my story since yours is a skin issue. I took Yasmin for 3 years. This past year I would wake up some bumps on my lip.. then on my hands.. then (this is over a period of months) I would wake up and have a slightly swollen lip... this was over the last year or so. I would also get a feeling in my throat, like something was in it and swallowing felt funny.
WELL, 2 weeks ago, I took my bc like I always do, right before I go to bed and my lip starts to tingle and itch.. and in the morning my face was swollen 3x the normal size on on side, mostly at the lips... I couldn't really talk.. it was like those awful photos on google. It was angioedema and can kill you by swelling of the throat. I had also for about a year- an ear issue.. it would sound like I was talking under water and felt like swimmer's ear- related to the swelling I found out later. Turns out I'm allergic. I developed this allergy over the period of time I was exposed.
I just want to say to anyone out there that has FACIAL/LIP SWELLING, or swelling of the hands... GO TO THE ER. It can kill you. I got lucky.. my swelling started slow and after about a year if was full blown. It is not something to mess around with!I was prescribed an epi pen. I developed an allergy to a preservative in it and I'm not an allergen sensitive person. That was just the parms/doctor guess I might add.
The first year I took Yasmin I had numb and tingling toes. and the whole tie I've had on and off leg pain.. no sex drive, that's the truth..definite bloating issues about 6 lbs weight gain, sometimes more without change in diet. I haven't noticed any hair loss thankfully. Migraines. Lots of nausea in the morning, every morning like morning sickness. Car sick even when driving.. not normal! I used to work on an airplane and I never got motion sickness.
I'm now on day 4 of Mirena IUD and I'm having having severe diarrhea and trouble sleeping.. I really, really don't want to get pregnant. Our next step is a vasectomy for the hubby. I'm 25 and I weigh 140 5'10 if that helps. I wasn't an 'at risk' like the pamphlet said.
-- By giovanna456 | Reply | (2) replies | Private Message me
October 19th
2009
4:20 PM
I have been on Lantus & Humalog for about 3 years. I am a 75 yr old male T2 and the only other meds I currently take are Toprol XL and aspirin. After reading all these Lantus postings, I decided it was time to quit Lantus just to see what happened. Like one other person said, "all of a sudden the fog lifted"! I am a different person. I can now sing in church (after 3 days off of Lantus). Before this, I did not have enough breath to sing. When I was on Lantus I had many sleepless nights, suffering from RLS and leg pain. Now I am sleeping the entire night through. These benefits are the tip of the iceberg, I just feel better all over. Needless to say, I am injecting more Humalog now to make up for the absent Lantus but that will not be a problem. Please understand I am not advocating this for anyone else, I am simply reporting what happened to me. I see my doctor in a couple of weeks and can't wait to share the news with her.
-- By arguscameo | Reply | (1) replies | Private Message me
October 13th
2009
10:36 PM
57 YO Male taking this in 5/6.25 for almost two years. I should have gotten off it in two weeks. I allowed my physician to convince me that I should give it a chance. I suffered from ED and he gave me Cialis - too much leg pain but worked very well. The problem I have has is with not being able to focus on my work and it has gotten worse with time till the point where I don't feel like doing anything. Major dry eys and trouble getting a full nights sleep. My wife started with this at the same time and has vaginal dryness, eye dryness and lost sex drive. Keep BP in check but not worth it. Scalp dryness and itching and rash on arms if subjected to sunlight. It has had my mind so fogged up that I couldn't make a rational decision to get rid of it. I have cut dosage in half for a few days and took nothing today and my head is clearing up. However, my BP is elevated to 165/104. I am going to start lisinopril tomorrow and hope that I do not have the side effects that many people have listed here.
-- By yellowjacket | Reply | (1) replies | Private Message me
September 21th
2009
11:24 PM
I am taking 20-25mg of Lisinopril and have been for about 1 month. First, I have to say the stuff works - my blood pressure went down immediately. Recently I have noticed a dry bottom lip (neither water or chopstick helps) and I am drinking AT LEAST 12 glasses of water a day and still feel thirsty. Anyone have similar side effects?
-- By bhouse | Reply | (1) replies | Private Message me
September 19th
2009
10:58 AM
What brought me to this site is the fact that I have a bitter taste in my mouth that gradually occurred since I have been on Simvastatin 40 mg for about three weeks. I have also noticed a strange burning/numbness in my heels only, which has also been gradual. I feel more sleepy most days and not what I would call fatigued, but just like I don't feel like doing anything. I eat more just to try to get the taste out of my mouth and don't feel like exercising. I also finally went back to my Pilates class and felt unbalanced when trying some simple stretches. I usually have excellent balance. I guess my question is: Are these things related, and are they going to just get worse?
-- By curioustoo | Reply | (6) replies | Private Message me
September 9th
2009
7:55 PM
Hello,
How long do side effects last after completing steroid treatment? I've been off of pred for 4 months for crohn's first time. I was on 40/30/20/10 for a 6 week period. When I got to 30 my legs went into extreme pain. They felt like they were on fire, burning knees. Went to several doctors. One said steroid withdrawal, one said inflammation of nerves from Crohn's. Neurologist put me on neurontin to get off of the pain meds. I am still in excruciating pain and wondering if it really is steroid withdrawal. I can barely walk at times with extreme sharp pains, like someone is stabbing me in the legs. Can't stand for long periods of time and pain pills barely touch the pain. During steroid treatment, they gave me 3 rounds of Dilaudid in the ER and I was still crying, and I don't cry. Has anybody ever had this effect this long after being off the drug??
September 7th
2009
10:47 PM
Hi, I am 28yrs old. I tried the nuvaring for the first time 1 month ago. After 2.5weeks I noticed I had shortness of breath (before i would normally bike about 30 mins three times a week), my heart was racing, chest pains, leg pain mainly in my left calve, depression, a rash on my arm, yeast infection, body aches and flu like symptoms (I went to the emergency room this weekend and they told me I had sinucitis) , when I breathe in my chest hurts. Also this past weekend my period started and I am bleeding so so heavy and the pain is unbelievable ( I am thinking about going back to the emergency room as I type this). Basically I have almost every side effect that could lead possible stroke, blood clots or death. I need help. I am so scared right now, but i am not going to use it anymore. When I asked my ob/gyn about my symptoms she said "the nuvaring does not have side effects.
-- By lekeita | Reply | Private Message me
September 6th
2009
11:24 AM
I've posted here before right after I removed my mirena. Well it's been 27 days since I've had it out. At first I felt great. I had a period two days after I removed it. That period lasted a week long. Right after my period I CRASHED MAJORLY!!!! I had severe depression, severe anxiety and really bad leg and joint pain. All of that lasted about a little over a week. I got put on clonazapam and 20 mg. of celexa. So far I'm doing pretty good. I still get a little leg and joint pain, but not as bad and it doesn't last as long. I feel 90 % better and am expecting my second period on the 9th. I really hope I don't crash again. It was awful!! While on the mirena I had high blood pressure, fast heart rate, low grade fever, joint and leg pain, anxiety and depression, bloating like I was 4-5 months pregnant, nausea, heartburn, headaches, body aches (like I was sick), carpul tunnel syndrome (which I only get when i'm pregnant just like the heartburn) and more! Everything went down or completely away within a couple of weeks of having it removed. All except my heart rate. I am on a low dose of beta blockers to keep my heart rate from going over 100. Just like many of you I have been tested for many things like lupus, rheumatoid arthritis and so on. i have also been suspected of having hyperthyroidism, but with negative results from blood work. We are experiencing a major hormonal imbalance from this mirena. I just hope and pray our dr.'s will do their research and realize we are all right about our experiences and something can be done about this IUD. There is hope. Your bodies will regulate. It's only been about 4 weeks for me, but I am feeling better so far since my crash. Don't hesitate to tell your dr.'s about any depression and anxiety you may be experiencing as those are very serious side effects and can be treated even if it's just temporary to get you through the crash. I also take a one a day multi vitamin. So maybe that will help to.
-- By makyjoykad | Reply | (1) replies | Private Message me
August 26th
2009
11:27 PM
I am a 36 year old woman, and I have taken Singulair for the past 8 months. I got a lung infection over the winter, and the clinic I went to put me on the 10mg Singulair. It helped my lungs and got me over the worst of the infection, but I never anticipated the side-effects. For several months, I attributed what I was feeling to hormones (like severe PMS) and the stress in my life. I started to have thoughts of death, especially at night. I also began to have a hard time leaving my house. I would have panic attacks, worrying that the window was left open, the stove was left on, and god forbid there was a dark cloud in the sky (I became convinced that a terrible storm would come). Several times, I nearly got in a car accident racing to get home after work. Then, I started to obsess over getting sick. I was convinced that I would get some terrible disease and die soon. The fears and anxiety got worse and worse until one day (a rainy day), I quit my job of twelve years. It was a good job. I was happy with my work, and I made more than enough money. I ended up moving across the country back in with my estranged husband, because here I would not have to work. I could stay home all the time, away from germs and storms and anything else bad. That was three months ago. Still on the Singulair, I began to obsess over death. The panic attacks were so severe that they triggered asthma attacks, and not being able to breathe triggered more anxiety. I stopped sleeping at night. In three months, I've slept four nights. I began to have nightmares that made me wake up screaming and violently lashing out. I had to urinate 5 or 6 times every night. I developed severe stomach pain and nausea. And I had leg pain (actually, I hurt everywhere, severe pain). I had headaches, dizziness, and fatigue. Slowly, I began to realize that it might be the medicine. I started to research, and yesterday, I took my last pill. Since then, I have not had one panic attack. I have not had one asthma attack. I slept last night with no bad dreams. I know what's happened now, and I'm so sad that I lost so much of my life because of this drug. I really had a good life...friends, a home, a great job... Now, I'm very tired. My body is very weak and still hurting. I'm shaky. But I believe in time, those effects, too, will go away. I feel like my body has been through a war. I'm grateful that I didn't kill myself. There were a couple of really bad days when the urge to be violent towards myself was overwhelming. One day, I punched a fence, making my knuckles bleed. I think I could've killed myself, and I know it was Singulair. It's going to be better now. Just as a note: what helped me withdraw without any major worsening of asthma was Advair 250/50 twice a day.
-- By autumnsparrow | Reply | (3) replies | Private Message me
August 20th
2009
5:20 PM
I have SEVERE leg pain, behind the knee, kneecap and just above my ankle, Also my hip. This is concentrated on my right side although I do have occasional pain on the left side. My primary care doctor said it was arthritis. When I told my GYN Dr. about this, her head snapped around very quickly. She said to stop the Fosamax and start on vitamin D, calcium and vitamin E. It has been 2 weeks, and the pain is still severe. I'd like to know when it will stop. Does anyone know?
-- By sueu113 | Reply | Private Message me
August 13th
2009
11:41 AM
headache, leg pain, sleep problems-waking up several times at night, constantly tired, depressed, excessive saliva, now no saliva, swelling
parotid gland, neck swelling. Fatigue is unbelievable! Can't seem to do everyday chores. Has anyone else had swelling of parotid glands?
August 5th
2009
11:06 PM
I started Macrobid last Tuesday coupled with Perks for the pain. I have finished the few days of perks that I was given and have started noticing severe leg pain and insomnia ( I cannot sleep due to extreme body pain and sweating.) along with sharp pains in my stomach and very loose stools. Im calling my Pharmacist tomorrow to see what he says. After reading what everyone else wrote, Im starting to get scared.
-- By littletee1 | Reply | Private Message me
August 5th
2009
3:33 PM
Hi I posted this on the Coumadin site when I should have been here,
I am a 66 year old female and up to a year ago I felt 20 years younger now I feel 20 years older.
I fell and broke my hip June '08. Had a hip replacement and developed a blood clot (DVT) in my left leg.
They put me on Coumadin and when that didn’t do the job they added Lovanox (another blood thinner requiring shots in the stomach).
Not only has they not helped but my blood clot is growing.
My symptoms:
daily headaches, debilitating leg pain (the pain is so bad that it is crippling me), fatigue (an overwhelming feeling of tiredness, I set down for a few minutes and wake up hours later.), loss my concentration (trouble doing simple crosswords), can’t study simple directions, numbness in toes and hands. I can go on.
And the doctors? “It’s all in my head. It can’t be the blood thinners.”
I am going to copy your blogs and take them to my doctor and demand something be done.
Thanks again to this site and all of you. I was beginning to think there was something wrong with my mind.
-- By ellaclark | Reply | Private Message me
August 4th
2009
9:17 PM
I'm not crazy!!!! Thank you..
I fell and broke my hip June '08. Had a hip replacement and developed a blood clot (DVT) in my left leg.
They put me on Coumadin and when that didn’t do the job they added Lovanox (another blood thinner requiring shots in the stomach).
Not only has they not helped but my blood clot is growing.
My symptoms:
daily headaches, debilitating leg pain (the pain is so bad that it is crippling me), fatigue (an overwhelming feeling of tiredness, I set down for a few minutes and wake up hours later.), loss my concentration (trouble doing simple crosswords), can’t study simple directions, numbness in toes and hands. I can go on.
And the doctors? “It’s all in my head. It can’t be the blood thinners.”
I am going to copy your blogs and take them to my doctor and demand something be done.
Thanks again to this site and all of you. I was beginning to think there was something wrong with my mind.
-- By ellaclark | Reply | Private Message me
July 28th
2009
2:01 PM
My son was put onto 4mg Singulair when he was three years old. He is now six years old. For the past three years he has been a very quiet child, to the point that people commented on how shy and withdrawn he was. He never wanted to go anywhere or do anything. His favorite activity was lying on the couch watching tv. He was always thirsty, frequently went to the toilet,often complained of a sore stomach & had several bowel movements every day, did not sleep well at night, was often grumpy, could not concentrate for very long, was frequently ill with cold-like symptoms and did not really like you to touch/hug him. At the beginning of the year he was diagnosed by an occupational therapist as having low muscle tone. In March of this year, his pediatrician increased his singulair to 5mg. He began having terrible pains in his legs, to the point that he would cry and be unable to walk to the toilet at night. I took him to my GP who did every blood test under the sun and x rays of his pelvis and legs. He could find nothing wrong. The only thing that had changed was the increase in Singulair. I had a look on the internet and found this website. I immediately decreased his dose to 1/2 a tablet for a week and then 1/4 tablet for a week before taking him completely off it. Within a few days our whole family and his teacher and therapist noticed a huge change in his personality! He talks all the time now, he laughs a lot, he loves playing outside and has lots of energy. He teacher says he is much more receptive at school. His occupational therapist says his muscle tone has improved. He has not had one single leg pain since coming off the medication. He is sleeping well at night, his stomach is never sore and he has not been sick at all. Not even one little sniffle!! Best of all he is a normal, affectionate little boy. I feel very angry with the manufacturers of Singulair and with his pediatrician, it feels as though my son has lost three years of being a child. He felt terrible all the time and I had no idea! I have told everyone I know who has a child on singulair to look at the side effects.
-- By bronwynt | Reply | (3) replies | Private Message me
July 19th
2009
7:50 AM
I've been on a 7 day regime of Levaquin 500mg for an a infection that wasn't cured by other antibiotics and I can say it's worked. Yea I had a some muscle craps in the legs and some leg pain and a first day bout of nausea but overall, it's worked great for me.
I'd suggest that anyone on it do as my doctor said and either eat at least 1 cup of yogurt a day and/or take a Probiotics pill. The antibiotic/any antibiotic kills the "good germs" that help raise your bodies immune system and helps with digestion and the Yogurt/Probitic pills help grow the "good bacteria" back and ease the side effects while on it. Good luck to all
-- By sjoseph2000 | Reply | Private Message me
July 14th
2009
11:34 PM
I find it extremely annoying and offensive that people have the nerve to comment things like: You are all complaining or whining, read the side affects before you use it. why do any of you think that you are more educated or better than any of us? of course we all knew the side affects but people react to medicines (etc) differently. i find it very hard to believe that all of these symptoms are coincidence. 99% of us have given birth and raised children which is the hardest, most challenging, emotional roller coaster and im sure we are all able to deal with a headache now and then and mild cramps but that is not the case with us. its a problem when you wake up every morning with migraines and back pains. it is also a problem when women are so depressed and tired that they aren't able to take care of their children and husband. we all have one thing in common. We are suffering from these side affects. I appreciate everyone who has opened up and told their experience and i will not let someone comment about any of us and tell us we are making this up in our heads or that we are whining. if you feel any of those no one is making you read these stories.. so GET LOST!!!
for those of you that have had a great experience with Mirena why are you even on this site?? you are no help to those who actually need help and those that are suffering.
bottom line is no one is right or wrong but this forum is made for those who want help not someone adding their input to make us feel even worse.
July 5th
2009
5:48 PM
I had the Mirena placed in Sept 07. I truly thought I had found a great and simple birth control method..I have read many of the posts and seem to have realized some of the things that are going on with me. I have the hair loss, lower abdomen pain, lower back pain, tiredness, leg pain to the extent of not sleeping at night, and the most depressing one is the WEIGHT GAIN! I have always been able to control my weight within 5-7lbs. but not now! I have put on at least 15lbs and can't seem to get it off for anything! It's horrible! I feel bloated all the time, and seem to have some moodiness that I could just scream! I took a low dose of birth control pills for 16 years and NEVER had any of this!! I have seriously been thinking of having it removed, for those of you that have, does the weight hang around or have you lost any since the removal? And, are all hte crazy symptoms better? I would love any information!
-- By phill025 | Reply | Private Message me
June 30th
2009
3:42 AM
My 4y/o son has asthma that was not well under control, so the doctor put him on Singulair and Flovent about 2 months ago. In the first few weeks, he started having severe leg pain. He would be up at night crying. I would massage his legs till he went to sleep. He also started soiling his underwear with small thick amounts of stool multiple times a day; despite the fact that he has large soft bowel movements at least twice a day. His asthma has been well controlled since the start of the medicine. We stopped the Flovent 1month ago to see if the Singulair would continue to control his asthma, which it has. We adjusted his diet, since the doctor attributes his stooling to constipation, which has not helped. He is now frequently peeing his pants and frequently complains of arm and leg pain which comes on suddenly and seems to last for 5 to 15 minutes. I am going to take him back to the doctor for a full check up to rule out anything more serious, such as a spinal tumor, but till then I am going to stop the Singulair and see how things go. I wanted to stop it as soon as the incontinence started, but was afraid of his asthma flaring back up. Is flovent causing anyone's kids any issues. My son also seems to be having trouble getting his words out.
-- By tara77 | Reply | (1) replies | Private Message me
June 28th
2009
11:39 PM
I am so glad I found this site. I'm 42 and the doc put me on these stupid pills because of ovarian cysts. The first few days were fine but by day 4 I had awful stomach and lower back pains and by day 9 I had leg pain. I have had awful insomnia which I NEVER had before. One other thing that I thought was odd I woke up in the middle of the night soaking wet, like I had peed myself but it wasn't urine. I thought I was really sick and then out of curiosity I googled these pills and was shocked at what I found. I will stop taking them tomorrow, it's not worth it. The body and joint aches are awful not to mention the bloating. I look like I'm 5 months pregnant. I wish I had seen this site at the first sign of my symptoms because I would have stopped right away. I was really starting to think I was going crazy.
-- By v123 | Reply | (1) replies | Private Message me
June 28th
2009
11:41 AM
I am in my 2nd pack of Loestrin 24 FE and was put on them due to my extremely heavy bleeding. I am 39 years old and am not using this for birth control just period control. The first month went great, bled for 3 days and then stopped. My 2nd pack is going horrible. My legs are always cramping and hurting. In general I feel like I have the flu. I started my period after taking the second pack for 1 week and now at week three i am still bleeding and cramping. I am due to start taking the brown pills in three days and do not know if i am going to take them or skip them and go straight into the white pills again or just quit them all together. I do not feel that bleeding like this all the time is of any help. How many of you have experienced bleeding like this and continue the pill to see it quit? Also, I do not always take the pill at the same time, it sometimes varies by an hour or so.
-- By savedbygrace | Reply | (3) replies | Private Message me
June 27th
2009
10:03 AM
I am a 58 year old female Who has been taking Simvaststin for 16 months .
I have been increasingly bothered with mainly night leg pain ( bilateral) that radites to my hips and back. It's like a tooth ache. I too have had to resort to taking pain medication at night to sleep. During the day when I sit for long periods my legs ( especially the thigh area) aches and standing up , walking etc does not alleviate the ache. It is not constant at this point but very frustrating.
After reading the posted notes I am contemplating going off the Simvastatin for a while to see if my symptoms improve.
Any thought?
Thanks!
-- By corve2 | Reply | (3) replies | Private Message me
Singulair (49) Lipitor (47) Levaquin (36) Yasmin (30) Mirena (20) Advair HFA (14) Zocor (12) NuvaRing (12) PredniSONE (11) Toprol-XL (10) Fosamax (10) Loestrin 24 Fe (9) Lisinopril (8) Omnicef (5) Synthroid (5) Lamictal (4) Warfarin Sodium (4) Simvastatin (4) Levoxyl (3) Ovcon (3) Lupron (3) Vytorin (3) Neurontin (3) Avelox (3) Pravachol (2) Lyrica (2) Bactrim (2) Advair Diskus (2) Crestor (2) Benicar (2) Aciphex (2) Levaquin Leva-Pak (2) Januvia (2) Gabapentin (2) Wellbutrin (2) Flonase (2) Kenalog (2) Macrobid (2) Depakote (2) Hyzaar (1) Coumadin (1) Zyrtec (1) Dynacirc (1) Yaz (1) Lutera (1) Questran Light (1) Kadian (1) Viactiv Soft Calcium Chews (1) Mobic (1) Welchol (1) Imuran (1) Omeprazole (1) Ultram (1) Metoprolol Succinate ER (1) Atenolol (1) TriCor (1) Cipro (1) Anucort-HC (1) Lotrel (1) Remeron (1) Isovue-370 (1) Femcon FE (1) Epidrin (1) Eltroxin (1) Vioxx (1) Rituxan (1) Lopressor (1) SMZ-TMP DS (1) Prevacid (1) Levatol (1) Bisoprolol-Hydrochlorothiazide (1) Zometa (1) Endodan (1) Lantus (1) Prilosec (1) Cataflam (1) Zyprexa (1) Solu-Medrol (1) Loestrin Fe 1/20 (1) Plavix (1) Tri-Sprintec (1) Topamax (1)
November 18th
2009
10:30 AM
I have had COPD for years and treated with daily prednisone and Foradil but I wanted to come off prednisone so used Symbicort and Spiriva and was doing good until a new doctor put me on Advair 250/50 and my body went to h... I had terrible bronchitis with hacking cough for 5weeks, noise when on exhaling, severe leg pain, blurred vision, flu like symptoms and harder to breathe. Came off off Advair and felt better the next day. Saw another doc who yelled at me for stopping it but by the weekend I couldn't walk 5feet and this was using my oxygen machine. Stopped Advair and saw my regular doc so I'm back to my original meds and recovering. Yes, I think doctors get a kick-back and yes, there should be a class action suit.
-- By 12345drug | Reply | Private Message meEveryone......take charge of your own body!!!!!!