Lesions symptoms and conditions

I had my Mirena placed in April 2003 after the birth my second child and by August 2003 I had headaches, nausea, yeast infections, severe fatigue, pain and fever. By September 2003 I was fed up and made an appointment with a specialist, at my fist appointment he found a 8cm cyst in my left ovary and the 4 cm cyst in the right. The Dr. made me come in for an ultrasound every 6 weeks and told me the cyst will go away on there own. 2 years and over $10,000 in out of pocket medical fees asked to have the Mirena removed. The Dr. insisted it was not the cause of the cyst or pain and scheduled exploratory surgery. On September 16th 2005 the Dr. removed my ruptured left ovary and found a mass of scar tissue on the right ovary along with endometriosis lesions in on and around my uterus. The pain was gone for 2 months and quickly returned. I asked again to have it removed and when he declined I made an appointment with planned parenthood and had the Mirena removed. Since the removal of my Mirena I have had 1 miscarriage and 3 additional surgery's, I still have cyst on my right ovary and just had my first abnormal pap.

Hi. I just had a laproscopy done 3 weeks ago for endometriosis. I am 26 yrs old and have been dealing with this pain for almost 2 yrs now and it is the worst pain in my entire life. My doctor is now suggesting Lupron because even after the laproscopy the endometriosis was level 4 and had bonded to my intestines and literally trapped my ovaries and uterus against the lining of my stomach. The pain was a 15 to say the least and the past 3 mos it had landed me in the E.R. Finally the docs figured it out. I started my period 2 weeks after the surgery and the pain was still pretty bad. An 8. Now I am seriously considering Lupron. My health is on the line and this pain is not right. At this point I am considering a hysterectomy if Lupron does not work. Any help suggestions please? Monday I follow up with the Dr.

I've been searching for answers on LONG TERM side effects of Lupron hoping that it could give me answers as to what's going on in my body now!
23 yrs ago my fertility dr. gave me Lupron to inject MYSELF EVERY DAY (experimental back then). I had SEVERE endo since the age of 16 and was fighting that as well as trying to get pregnant thru invetro. I was 26. At 29 I had an emergency hysto. Now at 48plus I have chronic tendonitis where the tendons will shred off of the joints. I have been diagnosed with C spine and T spine disease, osteoarthritis and a mystery that I'm going to have to go to the Mayo to figure out (hopefully). I have tumors that are growing in my lower back...growing around nerves, tendons and bone, They aren't sure why they are there, why they are growing, or even what they are. Surgery removed 2 of them...but pathology shows foreign matter other than tissue/bone. All they DO know is that it is not cancer. One year ago I started losing weight (25 pds) for no reason. I'm now holding my own at 112 and hoping to figure all of this out. I can't help but wonder if Lupron or any other experimental drugs I was on has something to do with this. Is there anyone out there that used this drug so long ago??

I had my Mirena removed yesterday due to complications since i had it replaced in May 08. (little to no complications with the first one) The GYN said I now have an infection in my uterus (Endometritis). My symptoms are: lower back ache, headaches, abdominal pain, bloated, nausea, irritability, breast tenderness, fatigue. I got a shot while in the office and am on Doxycyclin Hyc for 10 days. My primary Dr called today with results from a CT Scan done last week due to these symptoms and I have lesions on my liver. I now have an ultra sound scheduled for tomorrow. Listen to your body. If you have the Mirena and do not feel well, please do not put off having it removed. I hope my symptoms will subside soon. I faught to keep this 2nd mirena for 8 months now. I hope I haven't waited to late, and more damage is yet to show up.

My husband initially took Prednisone after getting strange lesions, severe joint pain, severe fatigue and severe stomach cramps/nausea. It worked great he was tapered off and no problems for about 18 months. Then he go sick again (2/08) and has been up and down on Prednisone for 7 months- currently taking 60 mg. daily. Some doctors think he has Wegener's, but testing is inconclusive (Wegener's starts with upper respiratory stuff, which he also had). His mood swings are severe and he's a different person, twitching, hand trembling, muscle spams, malaise, anxiety/depression, very fatigued, insomnia, severe stomach cramps/vomiting. How do you tell which symptoms are the Prednisone and which are the disease process? They want to taper him to make him sick enough to get some test results that show organ damage or something, but everyone chickens out and he ends up getting increased. How long should he be on Prednisone and not be put on something stronger?

I started using lipitor from my doctor, it lowered my cholesterol all around but I started to have lower back pains. At first I thought it might be prostate cancer, but after having to MRI's done they found no cancer, thank god. But I went to an orthopedic surgeon to see what the problem was. He looked at the mri's and saw lower dics hitting my nerve endings. He also thought that it might be muscle problems so he gave me 3 epidurals and that helped for a while took away about 50% of my pain, but I still have the pain, It is hard for me to get comfortable when I sit or even when I am sleeping. I don't want to think that it is the lipitor that is doing it to me but after talking with others I feel it is time to talk to my doctor about it. My doctor said that lipitor is the safest one that will do very little harm to my liver. I am not a doctor so I would not know.. My cholesterol level was 246 at one time now it is 175. I am now facing possible spine fusion to help correct my disc problem. But will also ask doctor to prescribe something else.

Alan

I started full body internal itching after taking 10 days of Singulair. The physician that prescribed it said it couldn't cause itching. My new doctor tested for Lupus, I have an autoimmune disorder called Churg Strauss. After undergoing several steroid treatments and 3 days of IV Prednisone I got some relief. This has been going on for 6 months now. The itching becomes severe enough to make me want to commit suicide. Luckily it is pretty controlled by taking nightly doses of Atarax along with Periactin. Thank God I found a doctor who cared enough to search out the symptoms and help me get thru day by day.

I had been taking bactrim for a week when one morning i woke up feeling achy, tired, and light-headed. I noticed a slight rash forming on my arms but didn't think much of it bc i had been on the Bactrim for a week already. Then the symptoms got wayyyyy worse. I started to form lesion like sores on my vagina, and I immediately saw a doctor to get tested for STD's. The gyno examined the area, and she said it did not look like herpes but that she would test for it just in case. She put me on augmentin bc she said I definitely had some sort of infection down there. After taking 4 doses of augmentin almost all the lesions went away. The STD tests (blood, culture, and urine) all came up negative, as I expected they would. Has anyone else had genital reactions to bactrim???? Because as of right now the doctors are unsure what caused this outbreak/infection.

Allow me to introduce myself, I am Christopher Wunsch. I was a practicing Critical Care RN for 13 years active practice, until September 2002, the onset of my disability at age 34.
Until Sept 2002, I had been a healthy adult with very few medical problems. I had elevated cholesterol since I was in college that I know of, and I had always chosen to eat right and exercise regularly. which had no appreciable impact on my cholesterol.
In 1999, my father had bypass surgery at age 58, and it was decided that I be started on statin therapy, and I was started on 10 mg QD, which I tolerated well until September 2002, when I began to have terrible unrelenting headaches, disorientation and confusion. I would sleep for 14-18 hours per day, therefore I missed a lot of work over these 4-6 weeks. I had a CT scan done at a local hospital, despite my persistent request for an MRI scan. The CT scan was normal. After the 3rd visit to our local ED, I was discharged home with a diagnosis of a probable Migraine Variant, and was given Imitrex, which I could not even figure out how to give to myself. I called my PCP at home after we were sent home, and I requested he order an MRI scan for me, which he agreed to and was done the following day. revealing multiple scattered lesions throughout the grey matter of my brain. When my PCP received these results, he referred me to a Neurologist who diagnosed me with a migraine Variant. My wife and I sought a second opinion from the University Hospital and Clinics in Madison, where I was evaluated by a Neurologist who specialized in MS. When I was evaluated by him in the clinic, he did not think what I had was MS at all, he did not know for sure what I had, but was quite sure it was not any form of MS. I was sent home, to be rechecked in a few weeks.
Over the course of the next few weeks, my symptoms of Headaches, Lethargy, Fatigue, and confusion had worsened, only now it was accompanied by Ataxia and slurred speech. My wife called to UW Madison and spoke with my Neurologist who informed her that I should be re-evaluated as soon as possible. We dropped off our 2 year old son at my parents and headed to UW Madison to be seen again. When we arrived, I was given a mini neurological exam, which I failed terribly, and I was admitted. I was hospitalized for 28 days, I underwent a brain Biopsy, which revealed multiple areas of vacuolization, mitochondrial changes under electron microscopy revealed thickened disarrayed cristae, inclusions of lysosomal and autophagic vacuoles.
The Differential diagnosis from the Brain Biopsy was a new Variant CJD, a Mitochondrial Disorder such as MELAS, and a few others. My muscle biopsy done at this time, was suggestive of a Mitochondrial Disorder such as MELAS or MERRF. I was started on a Mitochondrial cocktail, which consisted of 12-14 Vitamins, amino Acids and Ubiquinone. I was scheduled to transfer to a nursing home, pending bed placement. When one of the residents suggested increasing my CoQ10 dose, which was done, now 150 mg BID.
Over the next few days, I began to become more alert, less confused, and less ataxic.
I was discharged home with aggressive Physical, Occupational and Speech therapies which continued for approximately 15 weeks. After several months of rehabilitation, I tried to go back to work as a Workers Compensation Case Manager, and after a few weeks of trying to do this, I was approached by my boss, who informed me that what I used to do in a couple of hours, was now taking several days, and was inconsistent with employment, and suggested I return to Disability, which I reluctantly did. A few months later, I had neuro psychiatric testing done, which revealed cognitive slowing and other issues consistent with significant frontal lobe pathology. After this occurred, I saw Dr. Beatrice Golomb on Good Morning America one morning, talking about a Statin Effects Study she was going to be doing, I never thought for one minute, that my Lipitor use could have had anything to do with this illness and disability, but I enrolled. After about 1 year in this study, I was informed by Dr. Golomb, that "Lipitor was the likely causal contributor to my diagnosis of MELAS, as well as the holes in my brain as evidenced on my Brain Biopsy.
I havd done probably thousands of hours of research into this, and I have found that most Doctors do not nor will not listen to your opinion no matter how much proof you have, nor how many studies you have found that prove your case. It is going to be a lifelong battle for me, but for each person I can get to not believe the lie that cholesterol causes heart disease, and convince them not to take a Pharmaceutical, thats just one step in the right direction.

i've been on synthroid for 9 years. started at some low dose and gradually went up to112 mg. get extreme itching all day everyday if i don't take allegra for that.not a rash just itching. that doesn't bother me as much as the fatique. every joint in my body aches all the time. sure there are better days but fo rthe most part it's bad. tried physical therapy and chiripratic care but no avail. they ended my sessions. my legs get sooo weak and my feet burn lower back really aches. sometimes muscle cramps. i'm very negative towards my loving family and it hurts me to do so. can't seem to keep upbeat. soo tired all the time.
is it the syntroid? i used to be very energenic and a doer. now i have spurts of activity in the morning , but then i just can't get motivated. help me any suggestions?

Hi! I am a 36 year old female and have been on this HORRIBLE HORRIBLE drug (prednisone) for 2 1/2 years now..... Hopkins doctors still arent sure exactly what i have. My immune system is attacking my liver so to speak. My body is basically looking at my liver like it doesnt belong and is attacking it with large multiple lesions that is eating it away... the good thing is that it hasnt interupted the functioning of it yet but is leaving horrible scar tissue. I have been in and out of the hospital 13 times, have had just about every test imangable, 12 liver biopsies and they STILL have NO clue! They are leaning towards Church Straus desease and Wegners but the weird thing is i have half symptoms of both. The first year they had me on 80 mgs of prednisone a day which had seemed to put me in remission for about 4 months and then they came back even worse so i was put back on the prednisone, 80 mgs a day AGAIN along with 100 cc's of Methotrexate, another not so nice drug... i had EVERY SINGLE BAD SIDE EFFECT OF BOTH DRUGS!! This second time around was ALOT WORSE for some reason!!! My body DID NOT LIKE IT!! Nausea, hair loss, moon face, gained 40 pounds (and i was in great shape, worked out, i am 5'4 and was 110 pds!), EVERYTHING was swollen, legs, ankles, arms, neck, face, had the camel hump, fingers and especially my belly!!! UGH!!! Have bone, muscle, and SEVERE joint pain! Kaliedescope vision, dry eyes and then had mucus discharge (kindof like pinkeye), headaches, intestinal problems.... VERY CONSTIPATED and then the opposite!!! I literally felt as if i had turned into a man in my behind!!! Sorry to be so gross but thats how bad it was!!! Jaw problems, teeth and gums as well, skin sensitivity and have little bumps all over my skin (kindof like tiny little moles), itchy, broke out with acne and pretty much NEVER had more than 1 pimple a month, had facial hair (VERY DISGUSTING!!!! HAD IT WAXED EVERY WEEK!!!!) and then on top of all of that the swelling of my liver not to mention the PAIN! I was recently in the hospital again with 12 new lesions, pneumonia, and 104 fever. My doctors said the Methotrexate was the cause and i was having a bad reaction to it so they now have me on 100mgs per day of Azathiroprine. I am now finally down to a maintenance dose of 5 mgs of prednisone cause my body was starting to reject that as well. I thank god that i am now down to that dose!!!! It as only been 2 wks and the withdrawl symptoms are horrible worse then they were but i know what is to come =) loosing all this fluid and all of the HORRIBLE side effects i listed above. I will have to be on the maintenance dose of 5mgs the rest of my life and can live with that cause when my body gets back to somewhat normal i wont even notice that im on this CRAP!! I will be on the high dose of Azathiroprine for a few years and then on a maintenance dose of that as well for the rest of my life to keep whatever this is that i have under control.... the scary thing is is that they arent even sure that all of these meds will even work...... im a guinea pig..... The only thing that i am on out of all 25 pills/meds that i take everyday that works is my pain meds. Oh and i also forgot to mention that i had to be put on some "HEAD CASE" medication (thats what i call it =) ) for depression. Its a low dose but it does seem to help... I am terrified of what the future holds but continue to be strong and have an amazing support team... my fiance and family =) I dont even want to think about how i would be without them. I go back on the 25th of this month for my MRI so please who ever reads this keep me in your prayers as for all of you are in mine. I feel for each and everyone of you that has to endure this horrible drug everyday and i hope that everything works out you. =)

Sue =)

I have had warty skin eruptions on the joints of my fingers. My dermatologist has given a preliminary diagnosis of perforating disorder and thinks it may be due to fosamz. Since the drug is changing metabolism - he is suggesting that these lesions are erupting from near the joints. Has anyone on Fosamax had warty like skin eruptions over the joints of your fingers? I do not like taking this drug. I have taken it 11 months.

I started on IV Solu-medrol this past Monday for an MS exacerbation. I was on it for five days. Yesterday was the fifth day.

I have had trouble sleeping, heart palpatations and today my face is very bloated and all flushed. The biggest thing I feel is that I am really out of it and feel really tired, but can't sleep. I hope these treatments are worth it and slow down the exacerbation. I went from 4 to 14 lesions in six months and have a new one on my brainstem. I am also on copaxone, so that could be causing the heart palpatations too.

On OCt. 20th, 2005 I received injections of Kenalog with lidocaine and epinephrine (total 2cc.s) into 6-8 sites in atypical scar tissue and lesions. Ten minutes later I went into anaphylactic shock and was given 2 shots of benadryl in my hips. Didn't help much, 911 was called and the paramedics injected me with more stuff and I was taken to the emergency room. Ever since then, the muscles under my left eye constantly twitch. The doctor thinks I was allergic to the lidocaine and wants to give me more Kenalog injections. I have no prior drug allergies. Did anyone else get an allergic reaction to Kenalog?

I recently recieved local injections into the psoriasis lesions on my hands. The MD used about 3cc. Within 6 days I began to experience insomnia. Being a menapausal women, I have had my share of 3:30 AM sleeplessness and night sweats. This however is different. I cannot fall asleep. My MD prescribed a sleeping pill to use short term. I am wondering if anyone has experienced this?

Help!!! I have experienced massive (2 inches across) hive-like lesions-- that did not appear until shot #14... then all 14 sites ballooned into large, hot, red, lumps. Unfortunately, I have had to discontinue Kineret-- and prior to the swelling-- it seemed to have been moderating the disease a bit!