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Levaquin symptoms and conditions

Here are side effects posted by other members, that mention levaquin.
Click on a listing to see the full text of the user's posting, and any replies.
900 Side Effects posted for levaquin

October 30th
2009
10:30 PM

I took my 2nd Avelox pill at 10am this morning, by lunch time I felt very jittery and anxious, and had isolated tingling in my left hand and foot. Tonight I had severe abdominal pain and then the subsequent emptying of the bowels (ok, that's gross!). I am a healthy 39-year old woman who has never had any side effects from medication. This was prescribed for a sinus infection. Thank you all for your posts about your experience with this horrible stuff. I feel better knowing that I'm not going crazy. Unfortunately, because this is a once-a-day pill, this stuff is still in my system. For those of you who are posting on this site saying you've had no side effects and this medicine worked great, you probably work for Bayer in their PR department....if not and you really did not have any side effects, this site is for those of us who HAVE had side effects.

-- By happymomof4stinkers | Reply | (2) replies | Private Message me

October 30th
2009
6:08 PM

This is not a new side effect, but the same day I started taking Levaquin for sinusitis, I suspected something was wrong. Within hours, ears were roaring. First night, NO sleep, and that's WITH Ambien CR. Day 2.....depression! Immediate. This is in spite of having a severe depression under control for over a year. Sudden. I really started suspecting Levaquin then, but thought it was a coincidence. Took it this morning. Deep, dark depression. After reading these posts, I knew my suspicions were correct. The depression is getting better after 10-12 hours after the dose. This is really scary stuff. Really scary. Oh, yes, and I had the stomach pains, also. Told my husband it was just hurting like a bruise, not like indigestion or gas. I will report it to my doctor so they will no it's a "no-no" for me....in spite of all the websites that said how safe it was. Glad I found this website. Thank God.

-- By complainer1 | Reply | (3) replies | Private Message me

October 30th
2009
4:15 PM

Three pills @500mg each. That’s all it took. Three pills of a five-pill prescription for levaquin. I can still see the pursed lips and amused twinkle in the eyes of my urologist who said "You're going to be all right" after he prescribed meds for my prostates. The doctor discerned the rapidly cycling angst in my face as I teetered emotionally between blind faith in his curative powers and a nagging suspicion that he was another overpaid oaf in a long train of medical practitioners whose 15-minute consultative look-sees had done sometimes good and sometimes bad to stem the ravages in my then 61- year old frame. Subsequent events proved my nagging suspicions were correct.

Was my urologic problem bacteriologic, viral, or "non-specific"? Was it psychosomatic, STD-related, or associated with my recurrent bouts of kidney stones and urethritis? The medicine man really didn't know, but that didn't stop him from enlisting quaint Latin phrases to describe my condition. He prescribed me with an intimidatingly-named antibiotic (”levofloxacin”) from an odd sounding family of antibiotics (”fluoroquinolones”), which loosed on my internal flora a block-buster med suffused with flouride molecules just to make sure that the quinolones would penetrate every single tissue and nerve bundle including my brain, which is protected by a blood barrier normally inhospitable to biochemical interlopers. And the quinolones got into my brain where they proceeded to have a ball!

First, the quins performed little warm-up exercises. The tendons in the back of leg calves began to ache. Then the quins floxed my neck tendons, which began to make little “cracking” noises every time I pivoted my head. Now began the full spectrum assault: insomnia, intracranial pressure, near fainting, eye floaters, white-outs at vision periphery, unprecedented nightmares more preposterous than scary, panic attacks, intense agitation, anxiety, diminished executive function, inability to focus, depression, heart palpitations and a ghastly feeling of having been poisoned. My body felt toxic as if I were being cooked chemically from the inside-out.

The worst of it was cognitive impairment: I couldn't finish a sentence because I couldn't find a critical word or descriptor that informed my attempted communication with meaning. I tried to fill-out a questionnaire at a doctor’s office, but my hand-writing became an illegible scrawl that masked my inability adequately to describe the sensation of being poisoned. I couldn't find the vocabulary to cry out: "Doctor, I am in full blinking eclipse. My body hurts, my mind races from one obtrusive and disconnected thought to the next, and sometimes I feel as if I'm going to faint." What I didn't tell my doctors, family and friends is that my consciousness was filled with “suicidal ideation,” shorthand for existential dread and hopelessness where I wanted to escape further psychic torture and agony.

Looking back I might as well have been treated with voodoo, chicken claws, leeches, rooster blood, maybe some arsenic — all rolled into a gelatin tablet made from horse hooves and marketed by glad-handing pharmaceutical reps who barely could get their tongues around the multi-syllabled, ponderous Latin inflections required to bill-out their pills at stratospheric prices. But, wait, big pharma needs those hefty margins to pay for their marks' "educational" seminars, mini-vacations at Club Med, and lengthy faux testimonials from leading medical lights who neglect to mention to prescribing physicians that a public relations flack had ghost-written their research trial reviews, which big pharma had underwritten to begin with!

So, what do you get when you put the “sin” into “levofloxacin”? You get sick. Big pharma can make-up all the high fallutin’ Latin names in their multimillion-dollar laboratories, embargo their advertisements' release on infomercials during t.v. show intermissions, and continue to spend twice as much on marketing as they do on research & development, but it all boils down to this: feckless corporates abetted by toothless regulators have reaped a bowl-full of profit and left too much devastation & misery in their wake. Even assuming its best intentions and expensive brilliance, how can a medical system remain in denial about its own missteps? Have we become so litigious and politically correct that it’s too expensive for the medical industry to govern its own? Botched pharmaceutical intervention, they name is deregulation!

-- By elgel | Reply | (1) replies | Private Message me

October 29th
2009
2:02 AM

In 2002, my doctor prescribe Avalox after two, ten day doses of Levaquin didn't seem to work for a sinus infection. I was very tired, swollen, vomiting and unable to urinate. At the hospital tests determined that my blood sugar was out of control, as was my blood pressure. I had excess potassium and several other nutrients were depleted from my body. It felt as if bugs were inside my skin and my mouth was very dry.

I stayed in the hospital 12 days because my kidneys had shut down. I was put on dialysis. My new doctor says that my kidneys are still sick. I have excess protein. Normal levels are 17 and mine are about ten times higher. I have to take a pill to protect my kidneys every day.

I have learned a lot about natural medicine and have improved my health. It took a several months and painful biopsies before the experts determined the cause. It was a combination of the two drugs.
epbp.....VA

-- By enid | Reply | Private Message me

October 28th
2009
4:54 PM

The best drug out there !! No I am not ignorant enough to make these cart blanche statements like some of these posts---Millions of people have used this drug successfully like I have. Just because it works for one individual they should not recommend it to the world nor if it causes you personally some harm YOU SHOULD NOT POST A STATEMENT THAT INFERS IT WILL HARM EVERYONE--IN-OTHER-WORDS GET A LIFE!

-- By gpl | Reply | (10) replies | Private Message me

October 26th
2009
12:09 PM

Hello I am 40 yrs old and got a lung infection which cause swelling in my lungs so the put me on high doses of prednisone via IV for 21 days in the hospital. The drug saved my life and took it at the same time.

After I got out of hospital i was on 60 mg for 6 weeks the 30mg for 6 weeks then 20mg the 10mg. It has been a living HELL over the last 5 months or so.

I told my DR. i have very bad blurred vision and he said it because the med runs my sugar up but I check my sugar and limit my sugar and it around 100 all the time which is normal soits not sugar. Then he said well them you need to see an eye dr. cuz your eyes are going bad. I begged to differ with him and told him if there was something wrong w my eyes then why is is one day I see fine and the next day all blurred and then back to normal!? it this stupid steroid if you ask me plus on day my right eye is bad and next day my left uggh!

The WORST side effect it the brain fog as yall call it. OMG I feel like im loosing my mind and going crazy. The dr. says hes never heard of such with a wise remark and says you know where your at now right? I know where i am and what I say but I feel like its not really happening. Its like im dreaming it. I feel like Im trapped in my head and I lookout blurry eyes.

Before I was a very confident independent person but now I feel scared all the time i feel hopeless and ive went through 3 girl friends over the summer because of the extreme forward attitude the med gives me. I am not the same person I was. I some time just want to die. I'm extremely tire if i do any exercise at all.

Plus I have all the other typical side effect like the moon face and weight gain. I don't even look the same cuz my eyes have huge bags under them and a double chin I never had.

I feel for all of you because i know what your going through.
I saw one comforting post in here where someone said within 2 weeks of completely getting off the pred. he was his normal self.
I CAN TELL YOU HOW GLAD I WAS TO READ THAT!

Please if you have finished the med and have got back to normal don't forget about this post. Please let us know because we need any hope we can get to keep our chins up and not loose hope and go completely crazy or worse kill ourselves.

I have about 4 more months of this LIVING HELL and I will surely let you all know if it get better. If you have come off of it and are reading this PLEASE let us know if we get back normal at least w the brain fog. I can take all the side effect ok except for the crazy dream zone zombie feeling.

I WOULDN'T WISH THIS KINDA HELL ON THE DEVIL HIM SELF!!
Let's pray for each other that the Lord keep out minds strong until we get off the nightmare drug call Prednisone.

side effects:
brain fog, blurred vision, puffy eyes, depression, confusion, dizzy, moon face, buffalo neck hump neck, hopelessness

-- By jaspbr | Reply | (3) replies | Private Message me

October 24th
2009
8:10 PM

I took the drug for 2 days for a sinus infection. Midway thru the first day, I started to feel numbness 2 front teeth, palate, upper lip and nose. Thought it was the sinus. Took one more pill.

The shoulder and elbow pain was exacerbated by the pill as I already have tendinitis.

The sinus infection is gone, at least for now. I hope it doesn't come back to bite me!

-- By toller | Reply | (1) replies | Private Message me

October 22th
2009
4:11 PM

After you read a representative sampling of this website's testimonials, you certainly ask yourself inter alia: Can this be true? Did thousands of people inject an antibiotic from the fluoroquinolone family, which crippled them for longer or for shorter? Most of us, I suspect, never really get beyond the initial litmus test: Did this medicine poison me or save me? (The answer depends, of course, upon the age, gender, medical condition, and most importantly, the DNA make-up of the individual patient. For hundreds of thousands of patients this antibiotic is a boon. For thousands of other misfortunes this antibiotic is a disaster.) But there is another important question here.

Who gains from self-revelation? To be sure individual sufferers gain certain emotional catharsis from posting their adverse drug reactions (ADRs) to levaquin. E-postings are one-way anonymous tracks that form ruts on a well-traveled trail of tears. Unless these postings are hoaxes written by mischievious gnomes, then they consitute prima facie evidence for a causal link between levaquin injection and sundry crippling ADRs.

Curiously, this e-forum cannot be used as a tool for organizing thousands of potential litigants who might coalesce under a class action lawsuit. Yes, we can analyze each other's anonymous revelations to see if they muster our respective sense of the "ring-of-truth" re: levaquin toxicity, and we may contact each other one-on-one, but no-one can harness this intoxicating communication's technology to reach simultaneously all respondents en masse as a bloc.

So, who wins? The emotionally unburdened e-poster who learns belatedly that s/he is not alone and that prescription medicine likely caused more pain than the underlying malady for which s/he is being treated? Or big pharma that continues to manufacture and market a medication that poses downside risk to many consumers who unwittingly incur more damage than therapeutic value?

Indeed, who wins in a forum where consumers anonymously reveal their symptoms and unconfirmed suspicions? The answer is big pharma wins. Pharmaceutical companies data-mine our postings to estimate the frequency and bredth of ADRs about which consumers complain. House statisticians estimate the ratio of active complainants : silent complainants, i.e., the ratio of complaints who show up on this website to the far heftier percentage of complainants who never post on this website because either they are technology-challenged or they are incurious. House actuarians proceed to estimate how much operating profits their employers must set aside to cover losses in out-of-court settlements or in awards made to plaintiffs in class action lawsuits.

I think this is how the game is played in a behavioral sink where billions are made in a deregulated marketplace that allows predators and prey to interact anonymously. Sorry to be such a downer, but I fathom only the desperate plight of tens of thousands of levaquin consumers for whom no monetary award ever will compensate them adequately for their suffering, and the hundreds of millions of dollars at stake in court awards if consumers ever brought to bear their aggregate numbers and draw a bead on their big pharma tormenters.

I think it a true horror and shame that pharmaceutical companies have not devised a test which determines in advance which patient safely may consume levaquin and which patient's DNA places him or her at risk. I suspect the genome technology is available, but would dig too deeply into big pharm's bottom line. The economics of "parachutes-for-everyone" is infeasible. We are all guinea pigs in a B-grade movie featuring Russian roulette, billion-dollar pay-offs, and an FDA that pretends not to know.

-- By elgel | Reply | (4) replies | Private Message me

October 6th
2009
12:17 PM

I was prescribed Cipro for a UTI infection 2x3days the first day I felt really bad! I was tired and had stomach pain along with nausea. The second day I also had stomach pain with headache and tiredness, my mind was foggy as well as my vision was blurred. I took it even though our clinic is against all medication for this exact reason bad reactions and death. I did some research this morning and have STOPPED the Cipro. I will start a 21 day detox to get this out of my system. I will help fight to get this product off the market! My niece is turning 10 years old and she has also been prescribed this medicine she has had many medical problems. It feels great knowing I may finally be able to help her. I know god has forced the infection upon me to help others. Please!! do the research before you take any medicine only you can make the decision. WE ONLY HAVE ONE BODY TAKE CARE OF IT!!! NO ONE ELSE CAN DO IT FOR US!!!

-- By life10609 | Reply | (1) replies | Private Message me

September 21th
2009
7:01 PM

Since July 12, 2009 (Saturday) my life has been altered by a cure for a UTI that caused me to be taken by ambulance to the E.R. with a 105.6 fever. The horrible feeling of waking up shaking from the fever and not being able to stop it was scary. That was quickly followed by an ambulance ride to the local E.R. It was explained to me that the cause of my fever was a UTI that became a kidney infection. The E.R. doctor prescribed Levaquin 500 mgs for 10 days and Lori-tab for the ache very typical of a kidney infection. I am a 42yo woman who owns a motorcycle, swims, dances with a group and loves to wear beautiful heels. My life has changed since that night in the E.R. July 14 (Tuesday) , I was in my doctor's office complaining about bad headaches and feeling achy. I asked if this should be a concern since headaches were part of the warning label. The response was to remain on the antibiotic since the benefit far outweighed the side effects. The rest of the week was full of aches, pains, swelling, and a cloudy mental state. By Friday, the 17th of July I was laying in bed after noticing I no longer had ankles and I hurt all over. Thinking maybe this would pass I rested for an hour and my partner came to check on me. My jaw was tight and felt like it was locking down, every part of my body, every joint was hurting including my head. I called my doctor's office and asked if this was an allergic reaction and should I go to the hospital. The on-call said she was at the E.R. and maybe I should come in to be seen although it would be a long wait time because they were busy. I was seen, they talked about finishing with Cipro and then decided they would give me Bactrim. I asked how long I could expect to feel the effect of the Levaquin, the answer was 3 to 4 days. Since then, I have been in and out of the E.R. with acute and chronic pain. Walking has become almost impossible on some days. All of a sudden I have a back and hip problem. I am getting lumbar epidurals now and have sold the motorcycle. Oh, Dr. Higgins said, "Levaquin is a great drug". This was a E.R. doctor that was angry that I asked if this seemed to be an on-going issue from taking Levaquin. I am desperate to be pain free for even one 24 hour period. A storm of depression and clouds have set in...the thunder is my pain....

-- By vivianc | Reply | (3) replies | Private Message me

September 12th
2009
12:40 PM

I was give Levaquin when I had a Prostate Biopsy and had a reaction to it , Hives, muscle pain oral thrush ,I told the doctor about it so he gave me another anti biotic,CIPRO which made things worse, then I find out they are both from the same family of antibiotics, these doctors don't know what they are giving you and he said all that I should have gotten from them was a little stomach problem, Its two years now and I still have skin
problems, joint pain and pain in my neck amd the doctors say it can't be from the Levaquin, Well how come I was healthy until I took it

-- By jonno | Reply | (4) replies | Private Message me

September 10th
2009
6:41 AM

Hi,
I am just looking for a web site that can help me with Levaquin side effects.
I had some of the listed side effects however within 4 days of starting the medication my taste and smell was totally gone. That was in Feb. 09, its now Sept.09 and i got back some smell and taste back but nothing like I
used to. In fact a lot of things taste different than they used to. Can
anybody help or point me in the right direction?

-- By sct871083 | Reply | (2) replies | Private Message me

September 5th
2009
7:56 PM

I have been on levaquin now for my second round of 5 days of a 28 day does for prostate. I have experienced joint pain, insomnia, irregular and skipped heart beats, fatigue, anxiety and many of the previous mentioned symptoms by others. I had all of these with my first round of this drug but I thought it was because if the severe infection in my prostate, UTI, kidneys and bladder. I was feeling great until 5 days ago when I start taking levaquin again. I think there is something very wrong with this drug and someone should be looking into a class action against the maker of this drug.

-- By mur224 | Reply | (1) replies | Private Message me

September 4th
2009
9:40 PM

I took levaquin (750) for a bronchial infection about 9 months ago. My doctor gave me individual samples with no info. on any side effects. Like most people, I trusted my doctor and took the pills without question. The aftermath has been a complete nightmare as I have suffered severe joint pain, depression and an atypical anxiety that at times that feels like a drug induced brain fog. I've seen numerous specialist searching for an underlying process causing the symptoms but nothing is ever found. Since the beginning I've contended that the Levaquin was at the root of my problem, but no doctor has ever given that thought any consideration. Prior to the Levaquin I was perfectly fine with no history of any joint pains or mood disorders. Does anyone have any ideas on how to reverse or heal the process?

-- By walnuts93 | Reply | (1) replies | Private Message me

September 4th
2009
10:00 AM

I have been on Levaquin 750mg for an infection in the bone of my toe. I am also on a daily IV drip of antibiotics. Since I have been taking the Levaquin, I ache all over. Every joint aches from my hands to my ankles.
I'm wondering if this is all a side effect of the Levaquin. I have nothing else to blame the aches upon.

-- By kalberts | Reply | (3) replies | Private Message me

August 29th
2009
10:09 PM

in 2006 i was attacked and bitten by a dog , the wounds became infected and was prescribed levaquin for the infection, about the 8th day of taking it i noticed bad joint pain, insomnia, anxiety, ringing of ears,and more symptoms, i was in good health before this, and have been in misery every day all day ever since!!!!
i have been told by my dr that i have fibromyalgia. if anyone has a doctor that will verify that the levaquin , and the trauma from the dog bite caused the fibromyalgia, please contact me , thanks

-- By decordarryl | Reply | (1) replies | Private Message me

August 27th
2009
11:06 PM

After major surgery in mid-June I got an infection. I took a week-long dose of Levaquin. Approximately a week later, my shoulders, back, wrists, hips, knees and ankles became extremely sore and stiff all at once. It took two and a half weeks for those symptoms to disappear, however, my right hip is still affected so much that it hurts to walk. I am an otherwise healthy, young person. The pain does not dissipate when I sit, lay down, or stand in any position. It's really awful and completely has put a hold on my life. Just about everything I enjoy doing involves the use of my leg, and the pain stops me from living normally. I hate this! I wonder whether it's related to the antibiotic. My doctor has not been able to figure out what it is. I'm going to ask her to look in to this! Thanks for letting me vent..D.M. Washington

-- By ameli | Reply | (1) replies | Private Message me

August 27th
2009
12:50 PM

I began taking Levaquin for a kidney infection. After the first pill (500mg) I had insomnia, joint pain and a little under the weather. I thought maybe it was a combination of the pill and still having the kidney infection. I figured the infection wasn't gone because the first med, Sulfameth/trimethoprim 800/160 I had a reaction too also. That was prescribed for 10day when I only was 4days into it with that pill. So I went from Friday to Monday without any medications. I felt that the kidney infection was still there because I was still hurting, not as bad as when I went to ER but knew it wasn't gone. So Monday night I started taking the Levaquin. Felt bad after the first pill but after taking the 2nd pill I became very weak, had ringing in my ears, eyes started to swell,had sweats nausea, stomach hurt and became very bloated, neck pain so bad I could hardly turn my neck. Pain running down into my shoulder blades, jaw pain, sore throat, nausea, felt like someone was squeezing muscle in left arm and squeezing muscle on left side of neck Started to have some muscle pain in right calf. Call Dr. on call and he said STOP taking the medicine, take some Benadryl and if gets worse go to the ER. Well, I took some Benadryl which made it seem a little better, but this is the day after and my muscles by my shoulder blades are so sore and have a burning sensation. I still feel somewhat weak but not as bad as last night. Seems I tired out real quick. This medicine made me feel like I was on the way out. I was prescribed it for 7 days and only took it for 2. Now I am very hesitant about taking anything as I have had reactions now to 2 different meds. Still don't know if kidney infection is gone or not. Does anyone know of any natural ways to rid yourself of kidney infection? I would appreciate any advice anyone has. All I know this has been 2weeks of @@@@ since I was diagnosed with this kidney infection.

-- By bowler | Reply | (1) replies | Private Message me

August 23th
2009
7:33 PM

Hi All,

I am so glad that I found this group of postings. For the past 5 days I have been experiencing muscle pain which began on the inside of my left knee day 1. On the second day I had significant pain in both calf muscles as if I had begun a new calf workout routine(I haven't) as well as pain in the large back muscle that runs down either side of the spine. Day 3 I noticed serious pain in my forearms and wrists. The forearm pain is causing hand cramping and my thumbs don't seem to function properly. I tried to sign a credit card receipt today and could barely grip the pen. I now have pain in my neck muscles as well.

I know I have taken Levaquin in the past 6 months, I am just not exactly sure when it was. I am definitely going to research that. I went to the Dr. yesterday to discuss my muscle pain. He took 2 viles of blood. He said he is going to check for Lyme's disease and other infection. I am hopeful it is not something serious. I must say thought, many of the posts above sound a lot like what I am experiencing. I am going to be beyond angry if I have a permanent condition from taking Levaquin. Some pain I believe I can deal with. It is the current poor function of my hands I am most concerned with.

I wish all of you the best in recovering. If my condition turns out to be something else I will repost.

-- By scoot84 | Reply | (1) replies | Private Message me

August 12th
2009
9:52 AM

What is so incredibly sad is that its just not cipro there are many more in the family which is a Fluoroquinolones ( cipro, avelox, levaquin etc.) And then there are the Antiprotozoals ( flagyl, tindamax etc.) Antimalarial ( lariam, etc.) Please read read read before you take!!! get on your computer and do your research and ask yourself.... Do I want these side effects? Is there something else I can take? .....And remember for whatever reason Doctors have been told that these are the best drugs.....PLEASE question you have the right to know......I cannot express this enough.

-- By teresa1964 | Reply | Private Message me

August 7th
2009
12:25 PM

I started taking levaquin about a week ago. At first, I was doing fine but then I started to get fevers. Next thing I know, I have full blown flu systems and break out in a crazy rash. I have to go to urgent care. I kept calling the nurse and asking her if it was the antibiotics. She indicated that levaquin was very well tolerated and that she did not think it was the pills. After reading these posts I am confident it is the pills.

-- By kasia222 | Reply | (1) replies | Private Message me

August 3th
2009
1:50 AM

I have been taking Levaquin for four days now and am suffering from serious lower leg pain, weakness in my right hand, nausea, my skin feels so hot all the time and not able to sleep. I am sure the Levaquin is causing this as this all started right after taking the first pill. I did not get an information sheet from the pharmacy that there were serious side effects to this drug. I was prescribed Levaquin for a sinus / ear infection because I am allergic to Zithromax (my liver reacts negatively with this antibiotic). I will not be continuing the course of antibiotic and hope the pain stops.

-- By josephandrewjohn09 | Reply | (1) replies | Private Message me

July 28th
2009
3:34 PM

Murdered by Levaquin.
This may be hard so bear with me. I need to give you a little background to show what an injustice (criminal you be the judge) happened to my soulmate. Her lifelong dream was a humble little spot in the wilderness and at 58 and on a disability we were able to make that happen; and she was happier than I'd seen her in years. Existing conditions included depression, anxiety, fibromyalga and chronic fatigue, and a thyroid condition that she got from over radiation for Graves disease many yrs. ago. Oct. 07 she came down with pnemonia and made a trip to ER. the Dr. saw something he didn't like so prescribed Levaquin. She left there sure she had lung cancer. Three days into a 10 day course her lower extremities became extremely painful and swollen, a call to her GP was never returned. We thought she was experiencing some effects of pneumonia or cancer. 2-3 wks. later a dr. appt. where she was in such bad shape she had to wear my shoes and be carried from car to wheelchair she could barely walk. An alternate dr. saw her. got xrays prescribed more levaquin and prescribed water pills for her swollen lower extremities. 2-3 weeks later side effects much worse has now traveled up to her midsection (peripheral neuropathy) she is now wheelchair bond going to dr. office and guess what lung hasn't cleared up yet so more levaquin with no solution or idea what is happening to her body ( she was terrified and in horrific pain. So she was prescribed 3 courses of levaquin and ignored the blatant side effects. The next several months at home were hell, the neuropathy continued up her body, she could no longer feed herself or hold anything in her hands. Every day the pain and frustration were unbearable and she cried for hours at a time. I couldn't get her to go to hospital as by now we knew what we were dealing with PN and it is irreversible and she knew she was dying and if she left she'd never see her dream home again. We finally got her to the hospital, they wouldn't accept my Achumes Razor and suggested numerous things conducted numerous tests including a Gallum scan and still no answers. She deteriated fast. She was within a week about 63 pounds and suffering severe sycosis with hallucinations. She experienced depersonalization. She had severe pain to the touch. I now know she is going to die and I'd promised her I'd never let her die in an institution but we could get no home care. They now wanted to kick her out of hospital after 3 months and suggested a hospice and although terminal she was undiagnosed so did not qualify. I have seen both parents a brother and numerous people die from a variety of ailments but this was truly a horror show esp. the psycosis and pain she was in. It scarred my heart and soul forever. No insurance so I am fighting to keep our dream home and keep her memory alive, made it a year but the future is uncertain. She died July 5 07, 2 days after she died the FDA put out a black box warning label so how come every time i insisted it was that poison they would not take me seriously. I now know what drives people over the edge to retaliate in some way. In Canada I don't think there is any class action happening, but in everybody that knew about it it would appear like gross negligence at least giving it to her 3 times after showing adverse reactions after first course. She was stolen away form me and her daughter just as she had reached peace and serenity. It breaks my heart continually and I don't know what to do with this rage I feel. It is now 13 months and no autopsy, apparently a hold up at pathology. Feel free to comment I really can't believe she's gone I haven't disposed of anything or even changed the house in any way.
M.

-- By holeinmyheart | Reply | (3) replies | Private Message me

July 20th
2009
2:34 AM

I was given Levaquin for a kidney infection. It seemed to help break my fever but after only one dose, I broke out in rash and later that night had tingling in my legs. My hand felt numb. When I called the oncall doctor she told attributed to anxiety. I told her I was anxious because all of a sudden my hand had gone numb and knowing that was a danger sign I refused to take anymore. Later that night, I could not walk or stand or bear weight on my legs. My shins and Achilles tendons were burning and only because of the internet did I know what was happening to me. Only 1 out of three doctors would agree I was having a drug reaction. For some odd reason, the doctors REFUSE to believe or acknowledge this was caused by Levaquin. No wonder the side effects are "rare" if no doctor will acknowledge the pain their patients are going through....how can the drug companies get any real feedback. Funny thing is only after I sent an email out to my team essentially warning them about this drug did I find out my coworker who had been on medical leave had suffered the same fate of torn achilles tendon and only after 3 months of PT is finally walking without pain. WHAT IS WRONG WITH our world when no one will listen to us. Thank God for the internet. I can walk now and have no pain standing (lasted only 2 and half days) but I am scared about the future as I know the results are lingering. I have been exhausted this whole weekend and wonder if its just me recovering as my PCP had me quit all antibiotics even at the risk of getting my kidney infection back. Well nice to know our stories are the same...and its not in our heads. BTW, my ER doctor told me it was a good drug and very unlikely the cause of my leg pains. They rather believed I had pneumonia or lyme's disease before they would believe it was caused by their beloved drug. All I can think now is I hope one day they are given this drug and it cripples them like it has so many others. Sometimes that is the only way they will acknowledge the truth. It has to happen to them or someone they love.

-- By seaturtlemom | Reply | (1) replies | Private Message me


 

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