Lipex symptoms and conditions

15 years ago, at the age of 35, I had a major heart attack. After testing, the doctors decided I needed a quadruple bi-pass operation, followed by Lipitor, among other things. I was taking 20mg (the doctor ordered 40mg), but due to financial reasons I took only half. Everything was just great for 15 years. During a routine annual physical this year, my doctor noticed that my liver enzymes were off the chart high. He immediately had me discontinue the Liptor, but stay on all of my other medications. One month later, my liver enzymes were normal, and so was everything else; however, my cholesterol had climbed to 204, and I eat no meat, eggs, or other dairy products. They say my liver damage is permanent. Having had 4 lumbar surgeries and 1 cervical surgery to fuse disks in my spine, I have always attributed my back and other muscle pains to that. Now that I have been of the Lipitor for 3 months, I have not noticed in decrease in pain in these areas.

After being on Lipitor for over 5 years, I was told to stop cold turkey by my doctor after my routine blood test. Within 10 days I got blood clots and a pulmonary embolism. I had been on an aspirin a day for over 10 years, I drank cranberry juice often and always ate green leafy veggies. I never had any blood clots before coming off the Lipitor and I am convinced that it caused them. It has been a struggle with the pains in my legs ever since. Has anyone had the same or have heard of someone with the same side effect? ******

I am a 54 year old male who started taking Lipitor about 4 years ago. It seemed OK at first, but over the next several years I began to have increasing amounts of joint pain after exercise. Nor muscle pain, joint pain. And it seemed to be a result of exercise. By the time I stopped it, I was hurting after everything, not just exercise. I felt better within the first two weeks, but it took about 4 months for me to be able to exercise vigorously again. Over the years I seemed to have forgotten how much vitality I used to have. I am a physician, and because of the long lag time until I felt better, I wondered whether improvement might have related to other factors, so after about 5 months I decided to restart Lipitor. It surprised me that after just one dose, I got back all of the joint pain and fatigue when I was at my worst on Lipitor. I was really hurting. Needless to say, I didn't take any more.

Coincidentally, a physician friend of mine who had statin induced polyneuropathy had a similar experience. After his symptoms went away he found that after only one dose the entire polyneuropathy came back.

Stopping and restarting the drug is a way to test the correlation between the drug and the side effect. For such a large spectrum of side effects to recur after only a single dose, it argues that the problems that my friend and I had was due to some sort of immune memory response. I have not seen this in the medical literature.

I am off it now for about 8 months and am able to comfortably play singles tennis and jog - much more energy (and I took 200 mg of CoQ10 a day with the Lipitor).

I started using lipitor from my doctor, it lowered my cholesterol all around but I started to have lower back pains. At first I thought it might be prostate cancer, but after having to MRI's done they found no cancer, thank god. But I went to an orthopedic surgeon to see what the problem was. He looked at the mri's and saw lower dics hitting my nerve endings. He also thought that it might be muscle problems so he gave me 3 epidurals and that helped for a while took away about 50% of my pain, but I still have the pain, It is hard for me to get comfortable when I sit or even when I am sleeping. I don't want to think that it is the lipitor that is doing it to me but after talking with others I feel it is time to talk to my doctor about it. My doctor said that lipitor is the safest one that will do very little harm to my liver. I am not a doctor so I would not know.. My cholesterol level was 246 at one time now it is 175. I am now facing possible spine fusion to help correct my disc problem. But will also ask doctor to prescribe something else.

Alan

In my previous message I was wondering why the same medication has to have so many different names.

I haven´t had a reply to that, but I found some information on Wikipedia that migth be helpful when looking for more information.

Zocor (=Simvastatin) can have many different names as you can see below.

"Brand names: Zocor, Zocor Heart Pro, marketed by the pharmaceutical company Merck & Co. and Denan (Germany), Liponorm, Sinvacor, Sivastin (Italy), Lipovas (Japan), Lodales (France), Zocord (Austria and Sweden), Zimstat, Simvahexal (Australia), Lipex (Australia and New Zealand), Simvastatin-Teva, Simvacor, Simvaxon, Simovil (Israel), Simvotin (India) and other."

I have been taking 10 mg.lipitor for 3 years or more....I seem to loose track of time because my memory is so bad....I ache and hurt all the time...I have severe back pain...Sometimes my back hurts so bad I cannot do any of my housework....All of my muscles just ache and hurt...I am 47 and I am steadily going downhill with my health....I feel nauseas for no reason...I have headaches...I told my doctor all of these symptoms and she has run all kinds of tests...They all come back normal...She has no idea why I have no energy and why I feel the way I do....She set me up for a stress test because I was complaining with chest pains...That test was normal...She set me up a sleep study...I am now sleeping with a cpap machine with the pressure set at 11.4...After going through all of these tests, I still feel like crap...I was sure after the sleep study things were going to get better...Then I started having such bad pains in the bottom of my feet...I could just be laying in bed and my feet would be throbbing with pain....and when I would try to get out of bed I could hardly walk...After about 5 or 10 minutes I could walk okay but the pain was still there....This is when I started looking around on the internet to see if I could find out what my problem was...I found this site and begin reading all of the side effects of lipitor...I knew right away that this was most likely my problem...I stopped taking lipitor 3 days ago....The only difference I can tell so far is that the pain in my feet is not as bad...I can hardly wait for the next morning because I am so anxious to see how I am going to feel...I am just wondering how long will it take for me to get back to my old self....oh I forgot about my stomach pain...The bottom of stomach hurts so bad at times...I told my doctor and she examined me and ran more tests but found nothing....My doctor does not know I have stopped taking lipitor...I have read that taking vitamin c or fish oil will help with lowering cholesterol..Does anyone know if this really works???

I am 43 yr old woman and have been on simvastatin on and off for the past 3yrs, it's only since coming across this website that I have actually managed to find a connection between this awful drug and a whole heap of medical problems. The most recent course made me so ill that I thought I had an incurable illness that no one could diagnose, at times I have been in so much pain I thought I was going to die. It started with severe knee pain, I have a little arthritis in the knee but doctors were baffled at why it would hurt so much as x-rays on knees and hips were ok. I ended up having an operation to cut a ligament, that was over a year ago and had been in crippling pain ever-since. Also; foggy head, headaches everyday lasting all day, pain in jaw, shoulders, neck, swollen throat, incredible limb swelling, numbness all down right side, kidney problems, weakness in muscles, aching hips and legs, itching, insomnia, to name a few. I complained to my doctor when I was prescribed 50mg of this poison because as soon as I took it, I immediately felt ill and collapsed from terrible weakness, couldn't even lift a feather. They reduced it to 20mg, and I blindly kept taking it, in the meantime, my leg function was worsening, my back was killing me, I couldn't sleep because of the unbelievable burning in my shoulders, hip, neck and legs, everything hurt so much. I have been in tears from the pain and frustration of not knowing what was happening to me, painkillers, even high potency prescriptions just didn't work. I was a healthy gym-going person with a slightly high cholesterol reading, and suddenly, I was almost crippled, unable to function or look after my family, couldn't even handle simple chores that I had done a thousand times before, couldn't think, speak well, do crosswords, it was unbelievable. I have had ECG's, heart stress tests, been to and fro to doctors, hospitals, specialists, even seen an osteopath with these pains, they must have thought I was a hypochondriac! Finally, I insisted on an MRI on my thigh as it had changed shape as there was a lot of muscle wasting in both my right arm and thigh, and so much pain. A lump had also appeared and was really worrying me. The doctor tried to fob me off and said it was a fat lump, I argued that if it was fat it wouldn't hurt so damn much, so the result of the MRI is that I have a tumor which is getting bigger. If I find out that this is a result of the medication, the gates of hell will open.
I took myself off this lethal stuff immediately as soon as I realized there was a connection between it and my debilitating condition, though it's too late to save my 12 yr relationship, that went down the tubes because I just couldn't function well, oh, and my job. and any chance of working after being ill for so long.
I have been off it just a few days but already I feel almost human again. I know it'll be a while before I can see a marked difference and do some of the things I used to be able to do like walk the dog!! but I am furious with my doctor's and have written a letter of complaint, and have told them that I would rather take my chances with god and be a happy person than ever trust them again. I am in no doubt whatsoever that this drug has ruined the last 3 years of my life and probably caused irreversible damage to my leg muscles. Why take a pill because the doctor said so??NEVER AGAIN from now on everything will be checked via websites like this, I am so disgusted that instead of helping me, my own doctor just prescribed other medications I need not have had because of this pill when all he had to do was take me off it. I find it hard to believe that they don't know of these side effects, or pretend not to, how can they not make the connection?? Absolutely furious. I am in worse health now than I ever was, there should be a serious health warning before this is given to anyone, and the first port of call for any complaints should be the doctors who prescribe them instead of offering alternative solutions. This is a time bomb waiting to explode.

I am 56 year old New Zealander, had stent inserted 1 year ago.
Was first put on Lipex, after 6 months on that would have welcomed departure. Came off it voluntarily and problems went away.
NZ is too mean to provide Lipitor with out a fight, so after much cajoling my doctor finally got permission to provide me with it.

At first it was fine, but slowly the same symptoms as with Lipex returned.
I have every single symptom I have read about here.
Joint pain, short term memory loss, nausea, swollen ankles and by association I am getting pretty depressed.

I had to come off beta blockers for similar reasons.

Finally this week I have developed kidney pain and have decided that that is it.
Lipids are out for the duration, I am told that half an onion a day will reduce your cholesterol naturally, so that is where I am going.

Thank you all for providing me with proof that these drugs do not work for all of us.

I have been on Lipitor for several years now, I am 54 year old female, had heart attack at 47 and at 49 triple by-pass, have diabetes and high blood pressure all under control. For the last 4 or 5 years have been having severe hip and leg pain, worse when laying down, doc finally sent me to specialist and he gave me cortisone shot which did not help. In the last few months my arms have been very painful, along with both my legs . My doc will say it is something else and wont test me, cause after all he wont even take me off Avandia which causes heart attack and has been all over the news lately. so he surely wont believe this.

I began taking statins about 10 years ago because of a high cholesterol blood test, beginning with Lipex and then Lipitor about two years later. Until recently, I was taking 40 mg daily. I developed multiple migraines with auras after about two years of statins, then I had a 13 hour episode of transient global amnesia. For the next two years I had constant nausea and tinnitus, foot and leg cramps, with the migraines occurring frequently. At the beginning of this year, I had my first episode of paroxysmal hypertension. In June, July and August this year, my blood pressure was labile and it was accompanied by nausea, tinnitus, feelings of great weakness, painful tightening in left arm, shakiness, enervation. The general physician I saw in hospital thought my migraines could be triggering the paroxysmal blood pressure. (Later when I read the weight of anecdotal evidence on the internet, I asked myself whether both were triggered by Lipitor.) It was then discovered that I had acute gastritis. When I was told that the cause might be one of the drugs I was taking, I looked up Lipitor on the internet. I could see so many of my own symptoms but the standout side effect for me was transient global amnesia. After reading the many websites on Lipitor side effects, I asked myself whether both were triggered by the Lipitor. I stopped the Lipitor immediately and the doctor I was seeing at that time agreed that my decision was the right one. However, my general practitioner only accepts the peripheral neuropathies and tinnitus as Lipitor side effects because TGA is not listed in Pfizer's patient notes. When I contacted Pfizer, they said TGAs were not listed in their research material, but when I pressed the point, admitted that TGAs are a form of amnesia, which is listed but only in the material given out to doctors on request.

My husband is also on Lipitor for CAD. Although his cholesterol readings were low, his doctor doubled his dose of Lipitor. Since that time he developed appalling short term memory problems and could not think through relatively simple problems without a great effort. He cut the dose by half without reference to his doctor, and his short term memory had definitely improved. He is considering his next step.

I'm a mid 40's guy from New Zealand who has been recently prescribed (1 month ago) a 20mg tablet of Lipitor per day. I went off Lipex because I was having certain side effects with that paricular drug. For the last 2 week I have had pain in my right leg, knee and right hip that has got progressively worse. When I wake up in the morning and sit on a chair the leg pain is so severe I can only sit for only 30 seconds . When I stand up the hip issue begins...so I'm like a damn Yoyo at times. This has of course affected my work. After reading information here and on other websites I'm gonna quit Lipitor. Just rely on my Low carb diet and exercise, will later see how this affects my cholesterol level. If it reads okay...no more statins for me.
Pete

I have been taking Lipex (Simvastatin) for 6 months. During this time I have been experiencing an enormous amount of gas, cramps, constipation, headaches, blurred vision and an itching rash. Three weeks ago after looking up the side effects on the internet and finding these symptoms listed - I stopped taking the pill. My health has improved dramatically.