November 19th
2008
7:09 AM
After 3 weeks on Fosamax, I had an attack of back pain that put me in bed for a couple of days. I wondered if it might be the Fosamax. I quit taking it for 2 weeks. I thought I would give it another try to see if it came back. This time after taking Fosamax for 3 weeks, my ankle is swollen and I am having gout like symptoms and feel achy like I have the flu. My podiatrist did some blood tests for gout. The results came back fine. Low uric acid levels. I do not have gout. He took a lot of fluid off of my ankle joint. The pain has been horrible. I am in athletic shape, working out at the gym 5 days a week, and bicycling. This has been torture. I am stopping the Fosamax. I had a horrible reaction to Lipitor a few years ago with pain from my knee into my back. I could hardly walk. I am the one that figured out what was up then and stopped the med.
-- By westielucymom | Reply | (1) replies | Private Message me
November 17th
2008
12:00 PM
I decided to read about side effects of Welchol. I just got back from the doctor's and she gave me some free samples of this. In the past, I had been on Lipitor and Zetia but had terrible back, hip and leg pain. I went off of those and I was fine. Started on Crestor- same pain in back, hips and legs. Now my doctor says that Welchol is not absorbed in the blood stream so there should be no side effects- only possible heartburn. After reading all of these side effects that everyone is having on Welchol, I am not going to even try it.
I am going to record everything I eat and try to control my cholesterol with a good ,healthy diet. I also have heard that Red Yeast Rice- available at GNC or Health food stores can lower your cholesterol. I might try that but for now I'm doing the healthy diet and exercise.
November 16th
2008
10:29 AM
muscle aches, NO sex drive or interest in sex at all been on zocor, and lipitor off & on for past 7 yrs. and I'm 59 yrs. old
-- By bruce59 | Reply | (1) replies | Private Message me
November 15th
2008
9:41 PM
About eight years ago I felt heaviness in my chest along with some pain/discomfort when doing hard physical labor and occasionally in the hot-tub. Following my doctor’s advice and an angiogram, a stint was placed and medication administered – Lipitor and plavix I also went through a 6-month program for cardiac recovery including dietary changes and a proper exercise program. About six month following that I gradually just stopped taking my Lipitor and plavix and returned to my old eating routine and other life-style. I don’t smoke (never did) and don’t drink or otherwise indulge in any recreational drugs. I’ve never been hypertensive with blood pressures typically at 115/68. I maintain a trim and healthy appearing body just naturally or genetically. I eat lots of red meat, not a lot of vegetables, drink gallons of orange juice, and eat much more junk-food than I should. About six years after that (near heart attack) event I was given a “stress test” by my physician… I was then 61 and tested at the level of a 38 year old! Two years after that I had a significant heart attack out in the middle of nowhere! It took almost 6 hours to get me to an emergency room in Spokane, Washington (that’s a story of its own). That was on a Thursday – I was back to work full-time the following Monday (four days later). This time around with more drugs than I could swallow in one gulp! Lipitor, Plavix, Coumadin, aspirin, and carvedilol. The combination or amount was more than I could tolerate and I was weaned off all but the Lipitor and aspirin within a year. My heart has returned to nearly full-function and I have no physician imposed restrictions. All that said, I’ve been gradually developing muscle soreness (pain, actually) in my fore-arms and legs. I’ve been growing more lethargic and tired with each passing month. I’m now 65 and feel that the Lipitor is inhibiting my health… I want to get off it and be “normal” again. Or is it just being sixty five? Can I just quit taking the drug? Leaving only aspirin for blood thinning and the hope of a better diet for cholesterol control.
-- By fgwilder | Reply | (4) replies | Private Message me
November 15th
2008
12:33 AM
Hi I started taking Lipitor when I was about 41 and gradually noticed a big toe becoming numb. Then later another toe became numb. I had just started swimming about this time with fins and thought at first it may have been caused by them. But then I stopped swimming and the numbness continued. I visited a Neurologist a couple of years ago who tested for everything and found some peripheral nerve damage to the feet. I said the only thing I could think of was Lipitor. He said here was no conclusive evidence it causes this but explained how nerves are made of Lipids and lipitor limits the production of lipids. I stopped taking it but later my GP said I need to go on something for my cholesterol. He put me on Crestor. I took a Lipitor the other week and my toes tingled that night. So I am convinced it is Lipitor. I am not sure how to reverse the damage though.
-- By budd2008 | Reply | (5) replies | Private Message me
November 13th
2008
1:30 PM
Bobby you are so right "BIG Pharama" and thank you for your well researched comments that you post.
BUT let's not forget big pharma whom I do hate over this issue does state a lot of the adverse side effects on the labels.
SO MR and MRS DOCTOR why don't you read the instructions and advise us of what to watch out for. I told my doctor over a 3 year period of leg cramps that made me squeal and physically dropped me, I also told him over 3 years that my swimming speed overnight dropped by 25% which I now know is a dangerous condition called loss of muscle power. In the end I went to him knowing I was dying, I could only shuffle not walk straight and my whole body was hunched like an ape, people in the street were looking at me. My speech was slurry. This clown who was previously highly respected and revered by myself and wife asked me if I had a low pain threshold, he stood up behind his desk imitated my ape like shuffle then told me to stand up and walk straight. So in my mind there are 2 very clear issues.
1) The big pharma criminal scam.
2) The doctors failing to be safe, read instructions and think for themselves.
I'm in New Zealand a couple of months ago a 69 yr old fellow in Australia with an axe chopped up his wife and grandchildren killing them. A neighbor said they were an ordinary family and the man had become deeply withdrawn.
I stopped a car in the middle of the street and attacked it with my walking stick, I heard "voices" and stalked my house at night with an axe in my hand.
Go to space doctor DOT net and type in Allen Woodley suicide. There are 3 examples here where people lost their minds and took their own lives through statins.
We the "small" people have to originally put the pressure and file the complaints against the doctors then they can resist the pharmas.
No I am getting my faculties back make no mistake I will be filing a police complaint of criminal negligence.
Get the instructions and front the doctor after all he/she is the "retailer" and they can take it up with their "wholesaler"
These b#$%^&&ds are not only wrecking us but they are demonstrably negligently and criminally wrecking the lives of society's grandparents whose golden years we must protect.
Incidentally when I asked my doctor in January for an apology he rammed his bunched fist in my face in his surgery and said how dare you doubt my ability as a doctor. Not bad some of these clowns.
Then of course as we who have been forced to research ourselves we all now know that cholesterol and elevated cholesterol as we get older is absolutely essential for longevity.
These practitioners are totally unbelievable.
-- By oldcarpetcleaner | Reply | (4) replies | Private Message me
November 13th
2008
2:04 AM
I'am 45 year old female and I have been on simvastatin 40mg for at least 6 months. Here in the past 3 weeks I have had very weak legs and arms,they felt like they were wet noodles. I also was getting these week spells where it felt like I couldn't lift my arms or legs cause they was so weak.I had pain in my ear and big bad headaches that wouldn't leave. My heart feels like it skips a beat and I get very bad anxiety attacks. I have been to the ER several times and they can not find anything wrong. I even got very dizzy. The ER doctor told me that the dizziness and headaches was from a inter ear disturbance,well I think the inter ear disturbance might have come from the simvastatin after running across this web site. I'm going off the simvastatin tomorrow! Oh yeah and forgot to mention the weight gain and the tiredness and how I feel like a couch zombie. I think I'll stick to my salmon oil.
-- By nanashouse60 | Reply | (2) replies | Private Message me
November 12th
2008
9:02 AM
No hearing loss in family history. Doctor put my father on 80 mg Lipitor, 1-1/2 years latter he started having trouble hearing. I was taking 40 mg Lipitor after 2 years my left ear went bad, 9 months latter my right ear went bad the same exact way. The ears went bad with a tinny sound to all when the hearing came back the 3 kHz area was very low. I have just put this together the recently. This is not a coincidence, I am sure Lipitor caused this. I also think this caused me to go through Hell from hard bump break outs on my body, had me spend thousands hunting for a parasite that was not there. It was not a rash, small bumps with a hard center.
-- By drwfll | Reply | (3) replies | Private Message me
November 11th
2008
12:37 PM
I am a 55 year old female. I had a heart attack in July -08. I had a stent placed. Since then I have been on Plavix, Lopressor, Lisinopril and Lipitor. I have been back to the Hospital 2 times since then. The first time they found nothing. The second time I had to have another stent place because the first one didn't work. This last time they did another catheter and found nothing. I have episodes every couple days of Light headedness, heart pounding, stomach upset, confusion , really bad burping and sometimes diarrhea. I am at my wits end. I have lost 30 lbs and am weak most of the time. I was very active before all this and can't get back on my feet. When I ask about the medicines, the doctors say I don't think it's that. Someone please help!
-- By suebeam | Reply | (1) replies | Private Message me
November 11th
2008
12:13 AM
I am wondering if the plantar foot pain that my husband is suffering for 6 months could be from lipitor that he is taking for several years now. Has anyone have this problem?
-- By achoo44 | Reply | (3) replies | Private Message me
November 10th
2008
11:47 PM
I am a 65 year old female taking 20mlg of lipitor for almost 10 years. All of a sudden I started having severe pain, shaking and weakness in the calf muscle. The pain is unbearable. Doctors after doctors including a cardiologist, rhoumatologist and internist don't know the reason. I have stopped lipitor for 3 days. I cry and pray to god to help me everyday. I cannot exercise which is my passion for many years. I am hoping the lipitor is the reason and not something else. I have to wait and see. But I suspect it is.
SR
I do have nausea, depression and low back pain and arthritis and frequent headaches.
November 10th
2008
10:48 AM
Went off simvastatin in March, all pain went away within a couple of months, but muscle weakness in legs remained. In October, found out my cholesterol is sky high, over 325. So Dr. wanted to try Crestor 5 mg. Within 1 week, I had overwhelming fatigue, could hardly stay awake during the day and the weakness in my legs was getting worse. So I just went off Crestor. Frustrating!!
-- By lindag48 | Reply | (4) replies | Private Message me
November 9th
2008
10:49 PM
Get off the Lipitor, me and me husband, both had the severe joint pain. The pain moved from one joint to the next. It would be in the shoulder, then the next day or so, it would move to our feet, then to the hand and wrist. It would swell , so bad, that it felt like, that part of the body was going to burst !!! My husband was on LIPITOR for 1 1/2 years, before it hit him. Doctors thought it was gout, and my husband was walking on a walker ,at 49 years old, and never being unhealthy. I was on LIPITOR for only one month, after a stint was put in my heart. Believe me, it is not the stint , it is the LIPITOR. I knew what it was when it got in my joints, so I went off it right away. It still takes about 2 weeks to get it out of your system. I now know of other people, who are on LIPITOR, that have severe muscle cramps. If this is happening to you, then you can not take anything with STATINS , in it. If you are allergic to STATINS, it can cause another muscle disorder , that can destroy your muscle tissue.
-- By marshalynn1952 | Reply | (2) replies | Private Message me
November 4th
2008
10:41 PM
PLEASE HELP! My father, age 74, was on lipitor for a year or so and then was switched to zocor a few weeks ago to help control his cholestorol. In the past week, the tightening he experienced in his leg, while on lipitor, has become debilitating leg pain now while he is on Zocor. Ultrasounds have ruled out a blood clot. He has no pain when he sits, but he describes the pain has his calf wanting to explode when he stands and he cannot walk with out the help of a cain. The pain radiates from his leg up to his hip.
His cardiologist has taken him off the zocor for a few weeks to see if there is an improvement. It has been 3 days and he feels a bit of relief. SO here is the million dollar question: His labs indicate his cholestorol is normal now, most likely thanks to the statins.....can anyone suggest another form of meds that will help regulate his cholestorol....say COeq10 and fish oil? Any help is SO appreciated!!! Thanks to each of you for your posts. It is so comforting for my dad to know he isn't developing a new issue and that it can be resolved with the removal of zocor!
-- By reneedejager | Reply | (6) replies | Private Message me
November 4th
2008
3:44 PM
I am asking a question on behalf of my brother. He had a stent inserted about 5 years ago due to blockage in one artery. The doctor put him on 20mg Lipitor and Plavix. Ever since then he has been getting Afib. Twice he has had to go to the hospital to get his heart back in rythm and other times he's able to get it back on his own. He has cut back to 10mg Lipitor and takes 100 mg COQ10. Has anyone else had Afib with Lipitor? He seems to think it's the stent causing it and I'm convinced it's the Lipitor. By the way, his cholesterol was not high, only his triglycerides. Thanks for any input.
-- By ruralex | Reply | (3) replies | Private Message me
November 4th
2008
11:55 AM
I'm not sure my symptoms are the result of Lipitor, but I sure am going to find out by stopping taking Lipitor for a week. My symptoms - the numbing of my left foot, the reduction of motor skills in the left foot - it comes quickly and stops almost right away. I have been on Lipitor for several years taking 20 mg but recently was increased to 40 mg. I have no other
symptoms. Just touching base. Thanks for the site.
November 3th
2008
6:18 PM
started 10 mg in 1998. was controlling everything ok. In 2004 developed weakness in both legs, started slurring words and eye trouble, went to several doctors then in April 2005 had to quit work as I was just to weak. That was at age 54. Finally a neurologist diagnosed me with Myasthenia gravis, and lambert eatons myasthenic syndrome. Had my thymus gland removed, which is supposed to put disease in remission, also had small cell lung cancer surgery at same time. improvement did not come and the drugs for myasthenia only made me sick. started having chest pains and doctors ,.found several blockages in my heart ,still do as to weak for surgery, cardiologist took me off of lipitor and I seem to have stabilized, still have trouble with short term memory, and vision, and really weak
-- By pepsiman | Reply | (2) replies | Private Message me
November 2th
2008
11:00 PM
I have extreme thumb spasms, often both thumbs at the same time. i had an episode a few weeks ago of a severe pain in my hip running down my leg. I was in bed all weekend as a result and needed a cortisone shot to help relieve the pain. I forgot a name right after they tell me and I am only 50 years old. I lose my balance and sometimes almost fall and have vertigo every now and then. I wonder if all these symptoms are from lipitor. I have been on it for at least 3 years.
-- By rosenbergelisa | Reply | (3) replies | Private Message me
November 2th
2008
10:18 PM
I commenced Lipitor 14 years ago at age 47. At that time I was a regular tennis player, walker and generally fit for my age. No problem with Lipitor for the first couple of years until I began to experience hip and low back pain. My GP diagnosed arthritis. Gradually became worse and I started to gather injuries (over stretched ligament in right knee which refused to heal, plantar fasciitis twice) My back pain became far worse, I persevered with tennis believing that exercise would help. I began to "trip" on the carpet and going up stairs (foot drop). I was sent for a CT scan in 2002 which showed spondylolisthesis and root canal stenosisss. On advice from doctor I stopped tennis. Referred to a neurosurgeon who after several months carried out a laminectomy in July 03. Cleared to recommence exercise in December 03 which is when my nightmare commenced. I developed bursitis in one hip, stopped walking until it settled, then excruciating pain in feet, and then bursitis in the other hip and continuing foot pain. I developed rib/back pain, again diagnosed as arthritis even though I felt the pain was muscular. I had one session of aqua aerobics and woke the next morning with plantar fasciitis which continued for 3 months even with doctor, physio and acupuncture treatment. I was then referred to a Spots Medicine Dr who ordered bone scans/x-rays which revealed a stress fracture in my foot. In 2006 I began to notice that my right arm had a tense feeling all the time, I had a loss of dexterity in my right hand which assumed a claw like appearance and my normally neat handwriting became practically illegible. My physio recommended I see a Rheumatologist who said I had "no more arthritis than I would see in any 62 yo", he sent me to a Neurologist who after 5 mins diagnosed Parkinson's Disease. Within 7 weeks of commencing the PD medication I was experiencing Restless Leg Syndrome every night. The neurologist said that my condition had "progressed" and increased the medication - twice. I was then getting RLS DAY AND NIGHT and getting no relief OR SLEEP!!! Finally after 12 months misery my GP suggested that I try coming off Lipitor to see if that was causing my body pain. Within 6 days I felt better, my muscles became less stiff and relax. I went back to my Neurologist who refused to accept my claims, he insists I still have atypical PD (because I do not have tremors). I told him the cure is worse than the complaint and against his advice I weaned myself off PD medication and Lipitor. It was hard going but I NO LONGER SUFFER FROM RLS AND MY DEXTERITY IS SLOWLY IMPROVING. I still have dexterity problems with my right fingers but the tense feeling in my right arm has gone and my "claw" hand is starting to relax My muscles feel bruised all the time. I am still taking my blood pressure tablets and 150mg of Co-Q10 a day. I have been off Lipitor 9 months. It has been a painful journed for the last 8 years and a nightmare for 12 months. My GP has marked my records as "allergy to statins" but says she just doesn't know if I have Parkinson's. I know that I will never take this awful drug again. My cholesterol has skyrocketed but I will have to try and lower it naturally and take the risk. I constantly feel like I have worked too long and hard in the garden, all my muscles are so sore. I really need to know if this damage is permanent and if this drug has caused Parkinson's Disease itself or just PD like symptoms. I guess I will just have to wait and see. I don't think doctor's believe us when we say Lipitor is doing damage to thousands of people. They love it!! When we are aging we are not surprised to get diagnosed with arthritis and this is why we take this medication unwittingly for so long.
-- By kirsty1 | Reply | (4) replies | Private Message me
November 2th
2008
4:27 PM
I stumbled onto this website just today looking for information on another drug. Little did I know what I was going to find and so happy I did. I have been taking Zocor for nearly 5 yrs. now. My health has taken a spiral downhill. I too, have been experiencing almost every symptom that has been mentioned. Rt. shoulder pain, hand pain, pain and tingling in hands and feet, leg cramps, muscle weakness, numbness, memory loss, itching, fuzzy headed at time, can't concentrate, and trouble breathing. My doctor has told me my cholesterol is just fine the last two times I've had my checkup, but has never suggested I come off it. I guess I will be calling him tomorrow.
-- By bellis | Reply | (4) replies | Private Message me
October 31th
2008
2:44 PM
My husband started januvia a few months ago, in addition to his lipitor and benazepril and glumetza, which he was already taking for some time. Since starting I have noticed him being tired, irritable (almost angry), and short on patience in general. He has not complained of muscle pain, but has commented about having less hair. When I mention the mood/behavior changes, he tells me I'm wrong, he feels just fine. He won't discuss it with his doctor.
Has anyone else heard of or seen this effect? I have read only one or two comments along this line. It didn't happen all at once, change came over time. Think about it, ask the people you live with.
Thanks, good luck to all
October 31th
2008
10:17 AM
No side effects yet - coz I haven't taken it!!! I recently had my blood work done, it had been 2 years slightly elevated cholesterol so, in those 2 years leading up to latest bloodwork, I've eaten oatmeal every morning, taken Flax/Omega 3, B-complex, olive oil for all cooking, I have a glider, 20mins. 5 days wk. but had to watch myself, lost too much weight, I'm only 105lbs now, etc. etc....so, shock and horror my latest results: 232 Total Chol. 157LDL 57HDL-good number really, and best thing, 91 triglycerides, glucose 87 - so I guess some of the above improved some numbers. Dr. suggested a doppler/carotid.....a note received yesterday "some build up" and enclosed prescript. for 40mg. of this poison which seems kind of a high dose to me? So, is he not telling me the extent of "some build up?" what's "some"....I need to find that out first - but I really don't think I'm gonna be taking this stuff - there is so much info out there debunking this cholesterol thing....I'm 58, would there be natural build up in arteries, I mean your plumbing pipes don't stay pristine forever - there's bound to be build up, surely? Or am I kidding myself. Any suggestions out there, people!????
-- By camberwell | Reply | (1) replies | Private Message me
October 29th
2008
11:12 PM
I have been on 20 mg Lipitor for years, and as I also have Rheumatoid Arthritis, all my symptoms have been blamed on that. I have been diagnosed with Fibromyalgia and put on Lyrica because of the muscle aches and depression. My lower back, hurt in a car accident when I was 17 years old, had gotten so much worse that I had 12 steroid shots in my lower spine a couple of years ago. They didn't help my back at all, but my blood sugar went from normal to diabetic levels, and I am now on Byetta to try to lower it.
I am a 56 year old woman who was the math specialist in a school district until last December when I had to retire early. My back pain was so severe that I could no longer go from school to school carting materials. I could barely make it from the parking lot to my office. Mentally I was not ready to retire, but physically, I was (and am) a wreck. I have severe muscle pain in my shoulders, sometimes one or the other, but always present. I have tingling in my right hand, especially in my fingertips, and have trouble gripping and drop things easily. In the last few months the pain in my right thigh and calf has gotten unbearable. I thought at first it was sciatica, but I have had sciatica before, and this isn't the same, although there is tingling, burning , but the pins and needles is so deep in the muscles I have just sat and cried, or wanted to scream. I have wished I could just cut my leg off. And...I am on some pretty heavy duty pain killers for the RA: a small dose of prednisone plus Enbrel, Methotrexate, and Vicodin, and this pain is cutting right through all these meds. I get severe headaches, I went off Lipitor for 5 days and seemed a little better, but then went back on, and it came back.
Since I no longer work, I sleep longer, am exhausted ALL the time, have terrible mental fog, am clumsy, cannot stand for more than a minute or so without wanting to scream, cannot walk more than a few yards...just getting to the car is an ordeal. I tell people that I can only shop in shoe stores and furniture stores...the only stores with places to sit down.
I no longer cook or clean, cannot play with my granddaughter, even holding a book to read can be too much, and I love reading. I feel I am just dying bit by bit as I lose parts of myself.
My doctor is really into lowering cholesterol, and has put me on Zetia in the past few months...and it has been in this time that the pain in my leg has gotten unbearable. He wants my cholesterol to be between 50-60, and has said that the Zetia along with the Lipitor will do that. Is this normal or in any way reasonable??? I am having a full blood workup done tomorrow morning, and I want to go off the Lipitor starting the day after.
I came across this web site tonight while looking up Lipitor side effects, and I am shocked. I have so many of these symptoms, and there are so many I had no knowledge of at all. I knew about the muscle aches, but that's all. I hope someone can help me with what supplements and vitamins I should be taking. I started taking CoQ10 a month or so ago. What else should I be taking for my health? I know vitamin C and fish oil, but don't know how much or anything else. Right now I am just stunned with the thought that all of these problems that have left me unhappily retired, exhausted and in constant pain can all be caused from a drug I have been taking to help me be healthier.
Lipitor (386) Zocor (63) Simvastatin (20) Lisinopril (18) Toprol-XL (16) Welchol (10) Vytorin (8) Niaspan ER (5) 5-Aminosalicylic Acid (4) Pravachol (4) Levaquin (4) TriCor (3) Actos (2) LidaMantle (2) Cordran (2) Crestor (2) Levoxyl (2) Diovan (1) Methadone Hydrochloride (1) Plavix (1) Serzone (1) Advair HFA (1) Lopid (1) Erythromycin (1) Wellbutrin (1) PredniSONE (1) Metoprolol Succinate ER (1) Fosamax (1) Questran Light (1) Gabapentin (1) Lescol (1) Altace (1) Omeprazole (1) Clindamycin Phosphate (1) CellCept (1) Synthroid (1) Januvia (1) Yasmin (1) Metoprolol Tartrate (1) Viagra (1) Fosamax Plus D (1) Zoloft (1) Danazol (1)
November 20th
2008
3:35 AM
My hair kept coming out by the handfuls. I've lost at least 8 inches since I started simvastatin! I mentioned this to the endocrinologist and he said he didn't know, but he prescribed it. I am furious, hair is a woman's crowning glory.
-- By tiredoffeelingsick | Reply | (1) replies | Private Message me